I have Crohn's Disease
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- Опубліковано 11 січ 2025
- Where has Jeff been the past week? In the hospital! I'll get back to my regularly scheduled tech videos soon, but I thought until then I'd tell you a little bit more about my chronic disease:
The Joy of Crohn's: www.jeffgeerli...
Heaping Helpings of Hospital Humor for Healing: www.jeffgeerli...
On Colon surgery: www.jeffgeerli...
On colonoscopies: www.jeffgeerli...
#IBD #IBDvisible #Crohns
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I know this is an old video, but I was just diagnosed (last week) with Crohn's and it was nice to hear your story. I love your perspective on things.
Good luck on your journey, hope you can get it under control!
What is the symptoms. I have ulcers and h pylori I’ve been on antibiotics for seven days not feeling better.
The mental element involved i disease activation is decoded now guys. There's this eBook of J King , Bits & Pieces You Might've Missed About Your Crohn's Disease, it's on lulu, it shows the 7 identified like mental patterns that chronically come together at once in complementarity to do the damage they do with the flaring of the autoimmune element. I found myself in it. I think could be a huge read, one of the biggest if not the biggest. Really impressive. Best of luck to you! Hope it helps.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Impressive👍
I don't know why youtube decided to recommend me this 3 year old video a few times, but thanks for sharing your experience!
You're quite welcome!
You're always inspiring Jeff! No matter how the storm is, you always bring your own weather! 🙏
I’m 16, and I have Crohn’s too. Thank you for putting this into context for people who don’t know what we go through, and THANK YOU for addressing Crohn’s at it pertains to COVID. I am an aspiring programmer myself, and I love your videos. Wishing you all the best!
@Gaving Palmer, I am sorry you're struggling.. could please check Maker's Diet book by Jordan Rubin. He followed ancient Bible recommended nutrition ( very scientific too) and overcame Crohn's and other 17 conditions when he was around 20. Hope this helps.
Me too! I just got diagnosed and it’s been a really difficult year because of crohns.
Broo will chrohns affect growth please reply
@@muhammednabeel5128 yes. I stopped growing for about a year when I was in second grade, before I was diagnosed. Now that I’m on medication and being treated my growth is back to normal.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
I’ve watched a few of your videos and I had no idea you were suffering from this. I was diagnosed with UC in 2020 and I appreciate you spreading awareness. If there is anything good that comes out of being diagnosed with a chronic disease it you start to appreciate life and what matters most more. Stay strong brother.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤
Ohh, Jeff, I hope you feel better or back to your optimal condition soon, I enjoy all you do and I really appreciate you take even the time to explain. Take care and until the next video.
Thank you for being honest and vulnerable and sharing your situation. I never would have suspected anything through your regular techie videos as you said.. it's an invisible problem. You found a light-hearted and humorous way to talk about an undoubtedly difficult topic. Thank you for another great video and keep being an inspiration.
-central Wisconsin: Thank you for this video, and I’m so sorry for what you’re going through with Crohn’s disease.
I also want to thank you for including mentioning Lyme disease in your video, as I’m dealing with chronic Lyme disease, and as a result, my health from this disease has kept me not able to work for the past 17+ months. Friends don’t understand and many have stopped staying in touch. I spend each day inside unless I have a Dr appt, then they to optimize my trip out and stop at Walgreens and the grocery store.
Thanks
We not only need you as husband or father but we also need you as a successful tech guy, an author or youtuber, etc.
I am really happy to see you again like a Rock.
Thanks for this video Jeff. Took me a while to see this one. My sister has Crohn's disease and I didn't really understand what she would be going through until listening to this video. Love that you've added in your humour throughout this. Much respect for you, my brother from another mother 😸
❤You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Man, hang in there. You do have a lot of support out here. Take care of yourself and your family and I hope this lessens for you.
I’m 22, diagnosed at 14. I’ve gotten used to living like this but my first surgery is in a few months so I’m nervously watching random videos. Loved this one so much and I wish you all the luck!
It's amazing that you were diagnosed at such a young age, have you been taking medication since your diagnosis at 14?
@@Artofwarthebookof5rings yes, I’ve been on infusion medicine since my diagnosis. but as we all know being on a certain med for a long period of time can cause tolerance so lately I’ve gotten worse which is why I’m getting surgery soon
@Michael Murray thank you!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
@6:18 I have crohns and I get over remission naturally.
Force yourself to get better.
Bone broth
cabbage carrot apple juice
Blueberries
Whole Foods
Fatty fish
No stress
Restricted diet
Prebiotics
Probiotics
Cannabis
Vitamin D
These are my notes
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work😊
I can't STRESS enough how important is NO STRESS 😂
very sorry to hear that about you Jeff, and still we are wishing you all the best as you inspired many of us and motivated many, also keep in mind that you led us to the good spot, thanks for everything you did and still doing
Jeff, your video is so moving and touching. Thanks for posting. I have been following your channel just recently, and your video made sure that I will stick around. Wish you the best and fight on with the disease!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
I love your channel and came across this video. I myself got diagnosed with Crohn's/UC and had to have 42cm of the small and large intestine removed when I was 22. Also, a few years ago at the age 34 I got diagnosed with Multiple Sclerosis. I just want to thank you for shedding some light on these invisible diseases. I wish you the best of luck, stay healthy, and stay curious. Looking forward to all the quality content you produce.
Thank you, and best of luck on your own journey!
How about ketogenic diet? Have you tried that? It helped me with my gut issues a lot.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
Thank you for all the video's you make despite your struggles with such a disease.
Keeping your sense of humor is probably one of your best strengths.
I don't know you personally but i can tell you are a smart man with many strengths.
Thank you for sharing. 🙏 My son was recently diagnosed and we are on a massive learning curve. Wishing you all the best.
.You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work..
Wow! Your video did a whole lot of good to me! I'm 62, have had Crohn's since 12, but early symptoms were all related to joints pain, swelling and difficulty to move till I became 19. I was already used to being hospitalised 1 to 3 times a year, getting out feeling a bit better but never with a diagnosis. Then I started getting weak, fever and accute pain without being able to specify where it hurt. It ended up being 2 fistulas that took 6 surgeries to get rid of - but still no diagnosis. 2 years later, I started having diarreias even over a glass of water. Fast forward 24 years and, while living in Singapore, I had another flare and finally they told me what I had. Prednisolone almost killed me, I sttoped walking, had no family anywhere near and no one wanted to operate. Moved to USA and started using a kind of chemotherapy, called Remicade, which helped me immensely with the joint pain, but, after 5 years, doctors stopped it because they found something wrong in my heart. That is when a doctor in Brazil, my own country, was brave enough to tell me that the stenosed area of my terminal ileum could never get better with chemo and normal medication, or even immune suppressors. After that surgery, I became a guinea-pig for several immune suppressors in tablets and they all made me worse. But then I didn't have the hospitalisations because of obstructions anymore and decided that medication would not heal me and the side effects would only make something else get worse, so... I don't take anything for Crohn's disease anymore! I work from home, when I can, and avoid painkillers, though, by now, I also have spondylitis, enthesitis, fibromyalgia, arthritis and arthrosis. Life is not easy, pain is there everyday, all the time, but there is still life. One thing though: for me, there is no remote possibility of v@xines, for obvious reasons. But life goes on. Thank you so much for your video! It made me feel a lot less lonely and more hopeful to carry on fighting till Jesus comes or till I rest for a while before that!!!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Thank you for your post and sharing your experience with Crohn’s disease. I was only recently diagnosed with Crohn’s about 3 years ago (I started getting sick 4 years ago). It was very late in life that I got it (late 40’s). I spent my 30’s into my 40’s with IBS. If I had to choose between the two, I’d go back to IBS (of course I’d much rather be healthy again!). It’s been a tough journey thus far, without much support. Many of my friends or others I’ve spoken to about it (outside of the medical field) don’t know much or anything at all about the disease. Some haven’t even heard of it which is crazy considering there are at least 17,000 people in my city of Vancouver BC alone living with this disease. With that I’ve found it difficult to get support from friends and some family, even my GP. Most “friends” lost their patience because they don’t understand and don’t contact me anymore, and some very rarely. They don’t understand when I have to cancel plans last minute or if it’s going for a bite to eat, they don’t fully grasp my dietary needs (which consists of very little on my food list). I can’t help but then feel selfish and needy (I’m much a work in progress). This has presented such a huge change in my life. I’m on my 3rd biologic (trying to find one that works) which is now Entyvio. I’ve had a few runs of prednisone, the first when I was admitted to hospital with a blockage. That combined with my first biologic (Humira) seemed to make my weight rapidly increase daily-sometimes as much as 5 pounds a day! I gained about 45 pounds and two years later I have only lost about 15. The rest just won’t budge! I’ve been on two…or three? more runs of prednisone and luckily no more weight gain, just moon face and every other symptom that it’s known to potentially cause! I’m praying the Entyvio will start to do it’s magic soon (I’ve had 4 doses). Thankfully I’ve been approved for subcutaneous injection so I will be able to give it to myself instead of going to the clinic for IV infusions. I’m still frustrated with my GI specialist because I have painful and odd (to me) issues going on that he just won’t address every time I talk to him or see him (which is a rare occurrence), for example the tight pressure and distention under my ribs and feeling as if my liver is badly bruised along with every type of pain throughout my digestive system…and Oy Vey, the sounds it makes sometimes! My last colonoscopy in late March showed that things have much improved (Dr said like a 2 out of 10, 10 being horrible), so why do I still feel so rotten? And for some reason the Drs at this hospital that I’ve seen here in Vancouver BC, have performed my colonoscopy’s without the proper sedation, so I’m awake and feel all the pain and expressing myself about the pain doesn’t matter. This was my third test like this, from 2 separate Drs…so now I have anxiety about having another colonoscopy. A new symptom popped up eleven months ago. I went to bed feeling ok and able to walk just fine but I woke up the next day unable to walk properly! My left knee was completely inflamed all around the patella and my leg was frozen into a bent position. The numerous Drs I’ve since been to see, don’t have any answer as to why this is happening. The best answer I’ve received is from my Orthopaedic surgeon who said it may be caused by my fibromyalgia and Crohn’s disease being flared up? She seemed unsure. I was told to try physio and see what happened. I have a difficult time this would happen over night just like that.
I had my first Covid vaccination two weeks previous to this happening which for me raises some suspicion. It could very well have an odd effect on those with autoimmune diseases-especially those who are having a flare and are inflamed. It has been 11 months on crutches now. I’m at my wits end and feel so alone with it. I can’t seem to eat much of anything without having pain, even broth. I’m hoping I find an answer and/or relief soon! I’m tired of feeling this way. My life mostly consists of laying in bed, watching UA-cam or whatever! Oy Vey! When I feel adventurous and go out to do something very gentle, I often end up in pain for the next few days. Last couple of times I ended up feeling as if I had the flu, with a fever that only lasted 1 day (each time). So, I again find myself back in bed.
I apologize for the length of this “comment”! I’m feeling rather desperate for some possible answers and advice from someone who gets it!
I’m so sorry you’ve had to deal with this illness for the majority of your life, Jeff. I hope you feel better these days and have been in remission! Some say it can be healed-any thoughts on this? Would you happen to have any tidbits of advice for me? Feel free to email me at: jmnvan@yahoo.ca
Cheers, all the best!!
Have you tried solutions like water fasting, juice fasting and increasing herbs/veggies in the diet while cutting carbs? There's a lot of info out there and one of these might really work for you. Search up "autophagy" and look up the documentary "Fat sick and nearly dead". All the best.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
I've been following your channel for a few months now but only just came across this video. I have UC and have been suffering from it for a few years now, though luckily I live in Australia and treatment here is more available than other countries. Thank you for making this video and helping spread the word about IBD. Cheers man.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work😊
Very interesting video. I have been diagnosed of Crohn this October and still tired. Glad to see that you can live with the decease, although we all will carry it with us for the rest of our lives.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
Get well and stay strong. I am a Colon Cancer survivor and I watch your programs and make projects using RPi's to pass my time.
Great respect for you and your healing
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
You have an amazing sense of humor about you health issues. Thank you for sharing .
I just found this video on your channel and i have been dealing with chronic lyme for 7-8 years now and its not easy nor comfortable, but like you said a person outward appearance may not show any issues and this is so true, many of people have said well you look fine when its just not the case. I appreciate you spreading awareness for these kind of diseases.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤
Make sure to take care of yourself. The videos are fun, and you make them enjoyable + informative! If you need to take a break for any reason, I think we would all stand behind you in support.
This video almost brought tears to my eyes. I had symptoms for 12 years. Initially, doctors said it is IBS. Only recently, I was diagnosed with Cronh's. But, compared to you my symptoms are mild. This video was on point. Really appreciate it. Lack of understanding from people really hurts. Also, I am tired of people suggesting stuff that can cure this disease. 🤦🏾♂️
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work...
This video and your attitude toward Crohn's are awesome. As a fellow "Crohnie" and sufferer with Ankylosing Spondylitis, The two seem to be related, and yes, there are good days when you feel like going out, and bad days when you look fine but feel terrible. Thanks Jeff for your talents!
I had that lower GI done30 years ago and I can still picture the room with the bathroom right close by still in my mind like it was yesterday.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work😊
Thanks for sharing, Jeff. Appreciate the hard work you put into things.
Jeff, thanks for sharing! The 3 times my Crohn's disease has put me in the hospital I had a lot of interruptions to my sleep. The buzzers would start every time my pulse got below 40 bpm. Which was whenever I fell asleep! I had an ostomy for a while too. I was grateful when it was taken down and I did not have to deal with it anymore.
I share your worries about COVID too. Like you, Remicade and Imuran make me more vulnerable to COVID; so thanks for educating people about this.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
Crohn's/UC is a bastard. I was diagnosed at 33. Looking back, it explains so many things I experienced growing up, that were usually blamed on my growth, weight, or being lazy. I've been lucky, and while I nearly shat myself to death, I've been able to mostly recover thanks to Remicade and later Stelara. However, ancillary issues, like consolidated pneumonia and prednisone induced diabetes have been added on top of everything else. The best description I can give to people about any of these chronic illnesses is that everyone has a stamina bar, and mine just happens to normally be about half of a normal persons. However, sometimes, I can extend it, and other times, it won't refill as fast.
Sorry you were in the hospital. The 3 weeks I spent (over two visits), was annoying to say the least, especially those nights when you just can't sleep, regardless of what the disease is actually doing. Stay Strong!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤
Brother, I am so sorry that this is among your burdens. God Blessed us with you all the same! Thank you for making it happen through it all.
I was diagnosed with Crohn's Disease at age 5 (8 years ago) And boy, has my life been a battle. The sound that the IV machine makes slightly, is like my white noise. I've gotten used to it. Especially after last year. I spent almost all last year in and out of the hospital. I had my colon removed last September and am doing so so better now. I've not once sence I've had a colectomy had a flare. That and along with Stelara have helped me to the extreme!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤❤
Jeff, your vulnerability brought me to tears. Thanks for all you do
Thank you, thank you, THANK YOU for the COVID mention! I've been hospitalized three times since the middle of March for my Crohn's and am terrified of the ER now -- no matter how excruciating the pain -- because the medications I'm taking, Pentasa being one, completely demos the immune system and I know I'd be finished if I was exposed. It's a tricky time for Crohn's sufferers, thank you for saying something on the subject. Great video!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
i'm 24 & i have a crohns too,thank u for express this clearly
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
You have the best attitude Jeff! I feel for you so much! You're an amazing dude!
Don’t worry brother you are not alone I have Crohn’s disease too I was diagnosed when I was 8 and it was a very hard time I’m 18 now and it still bothers me to this day so stay strong your not the only one on this platform to suffer from Crohn’s disease 👍👍
Hi there! I am shocked and saddened to know so many of you suffer from Crohn's... have you come across Maker's Diet by Jordan Rubin? It helped me a lot.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
You are amazing man! Truly humble
Great talk! Big love and more power to you. Your brother in Crohn’s
Hugely engaging video on a very important topic. Dynamo’s last series covered a lot of his journey with Crohn’s disease which like your video was both informative and engaging. Wishing you all the best and thank you for your videos.
That's an extraordinary and courageous video, and I thank you for this! Sometimes we have to talk about the really serious things in life when most fun abruptly stops. I wish you and your family the very best and all the power you need to reach your goals! ❤
Jeff, I just started watching your channel and wanted to say welcome back. I hope at some point they find a cure for this illness and relieve you off this chronic pain. I'm truly inspired by your bravery, good nature and positive outlook. It takes courage to share this on such an open forum for your viewers to see, and I hope it brings you more strength and feelings of well being. I'll certainly subscribe to your channel and look patiently for new content when you feel up to making it. Please stay save and thank you again for the great content and for sharing your situation.
I’m 28 and I have Crohn’s as well you really made me laugh today but you’re so right about everything you said 💜
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤
I'm glad you're okay and I have autism and depression. It feels nice to know that it is not just me who go through these moments. I love your videos as we have common interests in computers and Raspberry Pi's. :)
.You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Very well done, and generous of you to mention other invisible diseases. As a high-functioning migraine sufferer, I felt seen. Thank you.
Soft bread doesn't sound like a good idea, gluten is inflammatory*, as are the oils and preservatives that go into making bread have that texture and shelf life.
*It activates zonulin which increases intestinal permeability, causing inflammation
Jeff, really I sorry to hear that . Also I am happy you are back healthy. Wish you all the health
What a fun and educational video, thank you so much and sending lots of strength from the Netherlands!
Hi Jeff, thanks for sharing, great to see a guy talk about this hidden disease, I can fully empathise with you. got CD too, had a Pan-proctocolectomy with ileostomy 4 years, currently on Ustekinumab (stelara). The worst of it was the steroids, drove me nuts (steroid-induced psychosis). Unable to work these last few years and to keep myself occupied I started messing around with microcontrollers which led to the Pi a few years ago to keep myself occupied. Love the channel...
A friend has this. He calls it "the weasles" because that's what it feels like when it's active. Since it's an autoimmune disease, it got him his COVID booter sooner than those of us that are just old. He's still got his LI and has told me of the joys of taking methyl-prednizone which is 4x strong than prednizone and the taper to get off it.
Thank you Jeff for all your efforts for the world, fighting your own battle, it's not easy...
Loved the science part, "with friends like these..." and the realistic but positive description. Thanks!
Thank you for sharing, Jeff. My acting/breathing coach has Crohn's, I never understood the severity. Much love to you brother!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
That takes balls # respect - thanks Jeff, great message.
I have IBS and often get frustrated by the pain, bowl movements, etc. It's especially annoying when I've technical deadlines to meet. I'm sure you've had this issue for far longer and much more intense then I've had it. Thanks for the context and I sincerely hope your health improves soon!
Awesome video bud, keep it up :)
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤❤😊😊
As someone with rheumatoid arthritis, thanks for sharing your experience to encourage others to understand the need to take care for others during this challenging time. Thankful to now be vaccinated and able to travel to more COVID-free environments! Maybe not to St Louis yet but, God willing, hopefully soon!
Just found your channel. I also suffer from Crohn's. When I was first diagnosed my doctor told me to eat whatever and just keep a track of what upsets your stomach. I was on Remicade from 2013 to last year. I had to stop because of the awful side effects. My hubby and I got Covid in 2021. I felt like I had the flu. He said he felt like death. He's now on oxygen 24-7 due to Covid damaging his lungs. Praying for all Crohnies.
OH I will pray for you all. Our family had 10 with Covid some light some very heavy but still alive. My 21 yr grandson found out yesterday he has Crohn's so I am learning all I can about it. Thanks Jeff. We will somehow be brave.
@@lucynourse4836 thank you. We'll pray for him. Crohn's isn't for the weak.
@@MrsAlmaTrumble I can't cry anymore but I can sure pray and support and thank everyone. I am 82 and a caregiver in peoples own homes one on one. I juice fast and it makes me strong and heals my arthritis.
@@lucynourse4836 I understand. We'll pray for you both.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤
Jeff, thank you very much for posting this. What a candid video you have made which is all the more amazing for your strength, humility and humour. Yes, I did laugh at points. As a fully paid up member of Colonoscopy Club I can appreciate how unpleasant they can be. Remember the number 1 rule of Colonoscopy Club is you don't talk about Colonoscopy Club. I'm am avid watcher of your channel and please keep making more as and when you can. Hope you are well.
Very alliterative description of the barium enema. Thanks for the puppy image after.
Really sorry that you are going through some serious stuff Jeff but not worry, We all are with you and you will beat it for sure.
Don’t worry. I’m with you I have chron disease for around 2 years diagnosed at age 11 now 13 almost 14 I understand your pain may god be with you.🙏
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
Thank u I have Chrones.. newly diagnosed and very confused.. any information you are out there helps me so much! ❤️♥️♥️❤️ Everything you said makes me feel not as alone
.You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Jeff, what a courageous post, opening up on your wider life, and speaking from the heart. Wearing a mask is simple, living with a chronic disease involves equal measures of discipline, courage and support. Keep well and keep inspiring us all with your wonderful insights in the world of technology and what's possible :)
Thanks for the encouragement!
Many thanks and great respect for your humour and openness. Be sure I know how hard is to fight crohns sometimes but humour definitely is the perfect weapon! Take care!
Inspiring, and done with so much humor and thought. Not really sure how to put it... just a fantastic video and wonderful message.
You just earned yourself a heaping of respect. Thank you for sharing and I hope you feel better soon and that the next earthquake is a LONG way off.
I’m 11 I was diagnosed with inflammatory bowel Disease when I was 7 this has really helped me put myself out in the worl thank you legand
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work😊
Way to GO, dude. Well done.
*internet fistbump*. thanks for that. My son has a variant (?) as a result of another autoimmune disease. I appreciate your scatalogical humor and attitude.
I'm sending you an **internet fistbump** too. Dude, we are just humans. Life is not rainbows and flowers all the time, so it's ok to share your experiences if you feel it's good for you. I appreciate your humor too. I'm learning a lot with your ansible videos. And the raspberry pi dramble is awesome.
Greetings from Uruguay
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊😊
You have a hilarious way to discuss a tough medical issue. I enjoyed the programming and eruption comparisons too. Oh, consider Old Faithful rather than Mt. Vesuvius but i get the picture...funny my doc called today...my covis delayed colonoscopy is back on. Best wishes in your fight to avoid covid and keep making great videos.
Good to have you back, stay positive stay strong
Happy to see you back. I have the upmost respect for what you just did. As someone who has other issues relating to bowels since the age of 23 I can relate to a lot of what you just said. Like someone else said. *Fistbump*
Please check ancient biblical nutrition ( Maker's Diet) by Jordan Rubin who overcame cronic illnesses including Crohn's disease.. hope this helps.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
Hi Jeff. I did enjoy your candid video, it allows me to better understand someone with Crohn's disease, you know, that empathy thing. I have been fortunate so far in terms of health, as have my 13-year daughter and my wife (yet, sometimes I think she suffers prolonged periods of bad humour... just saying). Best wishes to you and your family, and thanks for all the tutoring in Drupal and stuff. Cheers!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Great video Jeff and thanks for raising awareness of autoimmune disease. As someone whose own immune system is confused I am so happy that you have shared.
Thanks for talking about this. I learned a lot. Be well.
Great video - hope it helps people to see that every day takes a bit more courage for some of us. Personalising the stakes involved in COVID helps transcend the whole “team blue vs team red” aspect of people’s response. All the best.
Man I had no idea. You're a lovely person.
You are a funny man! ...we have Crohn’s in the the family and it does suck goat tentacles...glad you’re back home and feeling better!
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
Thank you for sharing the knowledge. It helps me understand my world. You make me think of one of the greatest rock pianists ever, Nicky Hopkins. He played with EVERYONE, like The Beatles, The Who, The Rolling Stones etc etc.I love his playing sooo much; it has been a great inspiration in my work as a musician. Yes, he had Crohn's Disease, just like you. May we all live long and prosper.
nobody:
random dude from Germany: there is no god besides those in our heads. Also the world is a brighter place because of you. It’s your unique and precious perspective which enriches the world. Thank you for this. (My Dad too had Cron’s Disease but came from a time where men must not show pain. I’m a little sad how long it took for me to to get a glimpse of his feelings. He just were not able to share them.)
I'm sorry, your "With friends like this..." coment made me laugh.
Best part is that Jeff is quoting his dear, departed grandma (it's funny because it's true)!
Having Multiple Sclerosis myself, I can totally relate to everything you said.
I would not wish what I go thru each day on anyone, I could never hate that much, but I do despair over some folks attitude towards Covid.
I along with my partner who has a compromised immune system, did not leave the house for 18 months, we coped with that by learning something we are interested in, for myself that is coding and for them 3d modelling, ya just gotta keep at it eh.
Best of to you and yours, keep fighting geez :D
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤❤
A former friend of mine has it too, and he told me that he doesn't want people wishing for him to get better because there is no getting better, there is only getting less-worse.
That being said, I hope your situation will be at least managable man. Keep it up
Thanks for sharing your experiences. Get well soon :)
I am 49, and I have Crohn's. I didn't get diagnosed until a few years after college(at 24), but saw symptoms before that. At my worst five years later, I was going 7+ times per day, exhausted constantly, and had rapidly lost weight, down from 140 to 93 pounds. I was hospitalized constantly, had Crohn's down my entire digestive tract, and my wife had resigned herself to watching me die. Since my fistfuls of pills, steroids and Remicaide did virtually nothing, I tried a lot of alternative treatments, eventually backing into the Specific Carbohydrate Diet. The idea behind it made sense, but relearning how to buy/eat was brutal. Still, clinical studies have shown that followed even partially it's as effective as steroids. My brother (who also has Crohn's) has a family with a lot of kids, and can attest the same. The studies are based on inflammation markers in blood tests. Instead of suppressing my immune system, my diet change slowly reversed my condition over the next year. My GI and primary doctors both said it made sense based on the study data, but it "was too hard for patients to alter their diet so severely." It saved my life. I'm still on the diet 25 years later, no pills, old scarring barely visible on scopes. If I stray from the diet I pay for it the day after, but if you (or other of your viewers) want to improve your own regimen, consider researching it and following it even partially. I'm a programmer and Pi afficionado myself. I pray you find something that works.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work...
Very inspiring! I love when people find the energy to joke about their disease. Also, my geek-joke-meter got damaged from the semi-colon-PHP-no-colon-Python joke. 🤣🤣🤣
Kudos for stepping out in the public and talking about Crohn. In fact I have a friend who's suffering from it and he doesn't do PHP, either. Coincidence? I don't hink so. Seriously, that made me laugh much more than it should have ;-) Thank you for all the work you've done, without that my professional world would be quite different. I do hope you're continuing with that.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work
Our capacity to adapt is our capacity to live. Live on!
as a former nurse, it always flabbergasted me, how many people don't get how its absolutely necessary to clean your bowels, in order to see anything, once the camera is in there and hence lie about taking their laxatives and then get angry, when told the whole thing has to be redone.
As they say in Monty Python: "Have you got the machine that goes ping?"
Keep smiling😊, Keep posting, I wish you a good health.
I’m in the hospital now for Chrons and oh my goodness the constant sleep interruptions are so real. 😭
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work❤😊
0:55 which reminds me Obama introduced regulations that trains have to honk on every intersection that doesn't have some extravagant upgrades, and even if they do the conductors honk anyway. The idea is that the horn will change the mind of people contemplating suicide by train.
This has turned most cities in the US unlivable because most residential housing tends to be within a mile or so of tracks. In my experience, earplugs are no match, talking about California.
Happy to see you back!!! 🌷
"aren't any semicolons in python" ROFL!. I love your sense of humor. I have a friend with Crohn's I'm sorry to hear you do to. Take care of yourself and have some pie.
Mmm, maybe some raspberry pi!
@@JeffGeerling love your sense for humor too, and I am happy to see that you can deal with it that way.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this Crohn's disease, I'm totally in awe of what you are doing to help others who are suffering from this so - called Crohn's disease" I appreciate your hard work...
you are a true inspiration to the IT community.. Thanks for sharing..