Amivantamab Side Effects - Treatment Update
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- Опубліковано 7 сер 2024
- P.O. Box
Jenny Appleford
7211 Haven Ave, Unit E-407
Rancho Cucamonga, CA 91701
Kyle’s Channel:
/ @kyleapple9702
INSTAGRAM: jenny_appleford
FACEBOOK: Our Brave Jenny
For business inquiries: veganapplefords@gmail.com
DIAGNOSIS:
March 19th, 2021 Stage IIIA Non Small Cell Lung Cancer (Non-Smoking)
February 2022 Stage IV Non Small Cell Lung Cancer (spreading to Brain, and other parts of lung and lymph nodes)
Gene Mutation EGFR with Exon 20 Insertion
TREATMENTS: Received or currently Receiving
2021: 8 Rounds of Chemotherapy (Carboplatin and Paclitaxel) with 30 concurrent radiation treatments to chest and lung
Failed Immunotherapy directly after Chemo and Radiation (Durvalumab, 1 round)
2022: Chemotherapy
10 rounds of Chemotherapy (Carboplatin, Alimta, and Avastin)
6 with Carboplatin, 4 without
Targeted Brain Radiation (Completed)
CURRENT TREATMENT:
I am on a clinical trial for my specific gene mutation
Our GoFundMe Link:
gofund.me/5edf81e5
The purpose of my channel is to document my cancer journey to look back on, and/or help anyone else going through anything similar. It is also to potentially help loved ones supporting those who are in this fight as well. This is also an easy way to update a lot of people at once. My main goal is to have footage of this journey for my husband and children to look back on. I originally created this channel as a sort of video diary for my
family.
Thank you so much for following along on this journey. Your love and support help me so much.
Please don’t ever be sorry for sharing your struggles & opening up to us. This is a safe space & you are loved here!❤
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I was just about to comment this! Please, never be sorry for your feelings, and expressing them in the way you know how. Tears are just a testament to remembering a difficult situation you've lived through. You're a f'n warrior!! Much love Jenny and anyone who may need to read this. 🌹
@Jenny Apple, cry, scream, anything you need to do. We may not be there physically, however we are here for you. ❤We will continue to pray for you and your family. We love you guys. Enjoy your time and relax while you can. ❤😊
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Being an Onc nerd, I researched this treatment. It's the newest thing on the market targeting your particular mutation, and has good efficacy once you get through the initial side effects. Supposedly they diminish after the first treatment and become tolerable. IOW, life may be getting better shortly. I hope so and wish the best to your family.
🤗 positive information ❤
Good words to give her! Thank you for your efforts...
There is an oral lidocaine medicine that may help your mouth.
Such beautiful pictures of a wonderful family!!
Thank you for your sweet comment I don't think you're a nerd at all, thank you for caring for jenny and her family ❤️
What a positive perspective and information to know about this treatment. I ‘m so sorry Jenny and I ‘ praying for you . See if your doctor can give you a script for Magic mouthwash I believe it’s called. My husband is a pharmacist and he mixes it up for chemo patients that he has. IT is very helpful for mouthsores dear heart. Much love and many prayers for healing and recovery
For the people saying she is gaslighting with the crying thumbnails. She has cancer. Stage 4. I don’t care. She can do what she wants. How terrifying for her and her family. When my husband was diagnosed with Leukemia last year, all I wanted to do was cry a thousand tears. She probably has shed a million tears that are not in her videos. Glad she can benefit from her Go Fund Me. I wish she could have a million dollars a day for what she is going through.
I agree with everything you say.
I know genuine when I see it.
I have nsclc. Jenny is genuine.
Sheryl Forbister - Thank you for your tender and kind heart. Thank you for taking the time to post your comment. I am so weary of the cruel, immature, ignorant, harmful, reckless, careless, and unnecessary comments. I have spoken up many times in honour of Jenny, and I will continue to do so. I am so sorry to read about your husband's diagnosis of having Leukemia. It is most understandable that all you wanted to do was cry a thousand tears. I hope you have surrounded yourself with a loving support system. You deserve to ensure that you are allowing others to take care of you, and that you also extend yourself self-care and self-compassion. I am holding you and your husband in my thoughts, heart and prayers. (Or whatever speaks to you). Sending many blessings and heartfelt hugs from Canada. 🦋✨️🫂🕯🙏🏻💙
People are cruel... How in the world does that gas lighting??! She's acting and taking it much better than I would!
@@bohochic2459 Thank you, You are the sweetest. Last year was terrifying for our family. We didn't have a Go Fund Me for my husband and are still climbing out of dept from when he was off work. I'm so glad Jenny has one less thing to worry about and the Go Fund Me provides a little more financial security. My husband finished his treatment. His blood levels are getting better. I wouldn't want anyone to walk through what we walked through in 2022 but many people do. Sending love from Winnipeg, Canada. Thank you for keeping us in your prayers!
When you have cancer, you do you boo. No one is forced to watch the vids.
You do what you need to get by.
People can really be off the chain with the unkind comments. Why dog pile on a stage 4 patient?
Love yah Jen and family ❤💕
I don’t think any of us can even express fully how very sorry we are that you are going through this.
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I’m crying with you darling. You’re such a beautiful lady and I hope and pray that the treatment works for you…
😢😢
Jenny, being a cancer patient myself I have found that cancer isn’t my biggest enemy. Fear is. Fear will steal our joy, our strength and ability to enjoy life right now. I’m learning to embrace the pain and sickness that comes with cancer and side effects that come with new treatments. It means I’m alive! It may not be the best quality of living but I’m living. Fear is stealing your precious moments of living of making sweet memories with your beautiful kids and your wonderful husband. I draw strength from prayer and from the Bible. The 23d Psalm says, “yes even if I walk through the valley of the shadow of death I will not fear, for you God are with me, you comfort me.” I’m praying for you. I’m not praying about the cancer but I’m praying God will comfort you. I’m praying you will find peace of mind and heart. I’m praying in place of overwhelming fear you will find confidence and comfort in our Creator. I hope this helps you Jenny. Fear is our biggest enemy in this fight but we can conquer it and have peace of mind and spirit. Love you Jenny! 🤍🧡
Soo beautiful,and it is so true.
Beautifully said -
You are so right. Fear is everyone's enemy, no matter what you battle. I will join you in prayer that Jenny's fears will be conquered and that she will be enveloped in God's peace.
Amen🙏🏼
AMEN❤️ HALLELUJAH PRAISE GOD MAY HE BE WITH YOU AND JENNY THROUGH THIS 🙏🙏🙏❤️
You don’t have to say sorry lovely lady. I don’t have cancer, but I have MS, a cyst near my spinal canal , asthma and a host of other conditions. Every day I’m in constant pain, and my heart goes out to you. I read a scripture from a bible app everyday and I always find a morsel of encouragement to trust and carry on. Sometimes I want it all to stop,but I want to stay here for my family. I’m praying for you in-my little corner of the world which is South Wales, UK . Lots of love to you Jenny and family x
Go listen to "Live disease Free" on UA-cam.
Low carb diet so you get into ketosis then add in anti parasite drugs and oxidizing agents. You have to kills the parasites.
This is a treatment for MS.
MS is caused by parasites int the spinal fluid and brain.
Autopsy's were done on 10 people who died from MS and all the people had parasites in there spinal fluid and brains.
I have MS and CRPS and I feel the same. I dont know how to carry on living like this but I also don’t want to give up for my families sake. Jenny you are an inspiration, a warrior, an amazing human. Thank you for being so brave to share your life and cancer journey with us all. All my love and respect from one Mama to another 💚💚💚🕊️
Same for me with M.E six years of dreadful illness now can't go out so in bed most of the time.
@@raebird1797 Well said!
I’m so sorry to hear you have CRPS. From my understanding that’s the worst pain ever. I’ve had chronic pain since I was 29. I’ll be 64 in a few days. I went to the Midwest RSD/CRPS chronic pain workshop a few years back. They had talks and vendors. It was informative, and people came with their blankets and pillows. They had their feet up and everything we have to do just to survive, we all did it to try to be somewhat comfortable. It refreshing to be at a place where no one thought anything about how you were sitting or that you brought a blanket and pillow off your bed into the conference, etc.
I feel like people in pain have a compassion for others and are able to have empathy as well because, we’ve really been there. Of course there’s some that are crabby and sometimes it’s hard not to be for sure. Especially if there’s a problem in getting your medication for the month by either the doctor or the pharmacy or whatever. That can be so stressful because I sure don’t wanna run out of my medication and none of us do.
Anyway, I just thought I would say hello and take care of yourself as best you can !❤
Love, from nan in the Midwest 🫶☮️✝️
from another little corner of the world, which is Crete in Greece, I send you Terry and our Jenny lots of love and warm wishes. I suffer from UC and AS, take handfuls of medication daily including immuno-suppressants and I'm still in pain.
Dear Jenny, I am stage4 as well. I get what you are feeling... just sick and tired of being sick and tired. It is okay to be frustrated. It is so hard to accept that our bodies are too weak to do things that used to be so easy. Be kind to yourself beautiful girl. One day at a time. ❤
I'm sorry hope ur OK now
My mother fought cancer when I was a kid and I know she worried about how that affected my childhood. What I remember most is how brave she was and how she was always there for me even in the darkest days of her treatment.
What gets me is how beautiful your face is through this tough time. I think everyone is in awe of your courage and determination.
My thoughts exactly!
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I agree with you 💯 percent!
Jenny❤ is Beautiful and courageous.
Dear Jenny, Please remember to take your pain meds around the clock. It is easier to prevent pain than it is to try to “catch up with” existing pain, especially once the pain has a hold. I’m sure you are already doing this. 🫶🫶 Please just consider this a loving reminder from a chronic (non-cancer) pain patient.🤍💛🩷💜🩵
I have always heard how bad cancer pain is. Now I have you as a friend, and I can see for myself how much pain you are in. I’m glad you were strong enough to give us a quick update today. I am so incredibly sorry you’re going through such terrible pain and apprehension.
I continue to pray 🙏in unison with all of your prayer warriors!🤍🩵💜💙🩷❤️💛🧡💚
May Our God Bless and Keep You, Dear Jenny ✝️ 💟 ☮️
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All true!!! Easier to stay on top of it then catching up!!
I very much doubt Jenny needs reminding to take her pain medication.. pain is not her only problem, she is dealing with stage four cancer and the side effects of treatment.Some of the comments are really patronising, maybe uni tentional though.
@@patsmith8035 - That is not patronising at all. It has been very usual to take pain meds when the pain gets really bad, but doing so, it can be really tough to get on top of it. So if you instead take it around the clock, it is easier to get on top of it when it gets bad. Nothing wrong with telling her that, it is just sharing the experience of someone who has dealt with non-cancerous severe chronic pain for years. She may just find that helpful, as she is gaining more and more of her own experiences.
@@lottatroublemaker6130 she must know that by now
Hi Jenny! I am a cancer survivor. I was diagnosed with two different cancers at the same time. That was in 2014. It was Ovarian and endometrial. I was one of the lucky ones because my ovarian tumor was classed 1a very rare to find it that early. I have to thank my other tumor for giving me symptoms that caused them to look and discover the ovary was tumorous too. I had radical surgery, chemo for 6 rounds and the 3 high density radiation treatments. Although I am NED for 8 years now you know it’s never over. There is alway the chance it could come back. I break out in a cold sweat thinking about going back into treatment if it came back. Don’t apologize for what you are feeling physically and emotionally. It is not easy! It’s always a part of your life even if you are a survivor. It never leaves you completely. Watching you as a young mother and wife is amazing. I have nothing but admiration for your strength and determination. I had just become a grand mother for the first time when I was diagnosed and I remember that ache in my heart not knowing if I would be able to get to know my granddaughter . Thanks be to God she is now 9 years old and becoming a wonderful young lady and I’ve been given the time to know her and her sister. I hope to be around to see them become adults but that’s something I can’t count on for sure. You are not alone! You are so loved! It is so wonderful to watch. I pray everyday for a miracle to be granted to you and your family. God is good in all things and I will always pray for you! Your story has touched my soul. God bless you dear Jenny ❤
Praying for you and that your Doctors hit on the right treatment for you. Keep up the good fight!!!❤❤❤❤
Praying for you dear Jenny! God bless you ❤❤🙏🙏
God bless you.💜🙇🏻♀️
I had the exact same thing! My Dr. said be thankful for the endometrial cancer because it allowed us to find the ovarian cancer and probably saved your life.
Hi Jenny, I am praying for you and will pray for you every day. It is so brave of you to share this difficult time in your life, and I pray that in the sharing you.
Jenny, you have a network of so MANY people supporting you from far and away, in addition to that of your supportive family that’s as near and dear to you as you are to them. We’re ALL here for you, to support you emotionally and, even at that, there’s no doubt that some can relate to the physical aspect, as well, due to similar personal experiences. Therefore, there’s nothing you need to feel sorry about sharing. We’re here to listen and to let you know we’re listening. No matter how many times a day you might feel the need to reach out, we’re here, and never feel afraid if you feel that you need to do so. You’re loved by so MANY. I’m kind of a newbie compared to some viewers but it took me no time at all to fall in love with your sweet, kind and warm demeanor plus that of your family. You’re all very special people.
My continued prayers for you Jenny on a full recovery. We hold you in our hugs and prayers.
Just know you are not alone with your pain, think of how many cancer patients have pain. The problem with pain is that it is hard to get comfortable when you ache.
Everyone is giving you positive vibes so that you can relax from the pain.
"I just can't believe how hard cancer treatment is." No truer words have been spoken. I understand completely. As a stage 4 fighter right beside you, I don't remember what feeling healthy was like. My immunotherapy journey was rough as well. It gave me colitis, appendicitis, pancreatitis, and sepsis all within a short month. They're restarting that same treatment again soon to make sure it will be ruled out. I appreciate their tenacity especially since ruling out a treatment as a stage 4 patient is tragic. Just the thought of that ordeal a second time is unnerving. You're an incredible warrior and I am so blessed to have your videos to watch to know I'm not alone. You and your family are an incredible light to all of us. Much love and prayers are being sent your way! ❤
Hi my name is Ashley and I read your story. If immunotherapy doesn't work again you should try hydrogen peroxide food grade. My husband told me about it and I honestly didnt believe him but then I met a girl and her dad had cancer come back again and they tried everything and said nothing more could be done and he had 3 months to live so he ordered h2o2 online and got a darkened dropper and started with 7 drops added in a glass of pure water on an empty stomach 3 times a day. He also did fasting too. The body heals itself during fasting. Every few days he did 1 more drop and he ended around 20 drops. 3 months later he had his cancer checked and it was gone. My friend said he started having stuff come out his skin. Like we put it on cuts and it kills the bad stuff it does the same but food grade (extremely strong and has to be mixed with water 16oz) but to the inside of the body. Also a juice fast. Organic everything you can find apples ( all colors) 5 lbs bag of carrots ( 2 of them) 10 lemons, 6 beets. Fast on days just on that. You will need a real juicer $100. I pray more than anything that you know the Lord. Jesus is the best and in Heaven no more sickness for all eternity🎉❤ He loves you soooo much. He knows physical pain more than most.
Sorry to hear this... Hope life gets better for you ❤
I am so sorry, but i hope you know that this community would love to support you in whatever you are going thru. You are so strong and so powerful.
Immunotherapy can be tough on some people. It affected my thyroid, kidneys and caused (managed at the moment) liver damage.
I had to stop it.
I have colitis for the first time this month, but think it might be the pemetrexed. Oh, I now have vitiligo as well.
Joy oh joy.
Also Lung Cancer, nsc, Diagnosed at Stage 4, with mets to bones, just over a year ago.
The only solace i find in watching this is knowing that Jenny is finally out of pain! May she find eternal peace. ❤
Jenny, your videos have touched my heart, I even told my fiance about you, (he doesn't watch you tube) but I told him a beautiful, young wife and mom is going through a lot right now, and it makes me sad. Wish I could do something. I can listen and respond, you have people out here cheering you on. This video made me cry WITH you. Sending PRAYER, HUGS, and LOTS of ENCOURAGEMENT from Ohio.
Jenny you are one of the strongest, kindest people. Those children are lucky to call you mom. And Kyle! What a gem.
Sweetheart, please don’t ever apologize for openly sharing what you’re going through. You have an army of support & love behind you and we’ll be here for you no matter what. You’re so very strong & inspirational. Praying hard that you get to feeling better both mentally & physically. 🙏🏼❤️
Jenny.. I stumbled upon your videos about a month ago by happenstance. You have my heart. Your family is a gift for all of us to watch. Your love with Kyle is a storybook love(I think a pop up book). So special, beautiful and a one-of-a-kind love. As a mother, you are remarkable. When my daughters were young, I don’t think I could endure. Yet you do, with the most contagious smile, grace, and humor.
You are truly a gift to all of us that are given the honor to be a part of your brave journey.
Jenny, I am praying for you every day and for my daughter too. She has stage 4 breast cancer. I am so encouraged by your positive attitude and bravery. You are so loved. 🙏❤️
Your a warrior Jenny it’s ok to cry you are only human and you have handled it with grace. I pray that God heals you miraculously and thank you for allowing us to be a part of your journey! Don’t ever give up all be praying for you everyday!
It's so important that you speak your truth here because we all understand. I have terminal stage 4 lung cancer so I'm sending you a hug from Canada. 🇨🇦
I had a special mouth wash for my past mouth sores when I did chemo it helped a lot as it numbs the environment.
Sending you love and prayers to you and your beautiful family ❤🙏
Praying for you as well 🙏💗✨
@@jennyapple4704 thank sweet darling. 🙏
May prayers for you❤
@@lidiamatzek1171 thank you 🙏
Never say sorry for sharing your feelings. This is your outlet to let it go and clear your head. You are a true inspiration to so many of us. Also, tell Kyle he is good man, husband and father. It’s beautiful to see him take his “roles” seriously. You’re in my prayers to healing and comfort. Take care!
Know you have a mama in the Pacific Northwest who hears, understands and weeps with you. 💕🌸
Oh Jenny, I’m so very sorry. I’m sure this IS overwhelming, & you never need to say you’re sorry, friend.
YOU are one of the strongest people I’ve ever seen with stage 4.
You have such a beautiful soul, and you are always in my prayers.
We love you, and send you all things good.
God bless you. ❤️
Sending you and your gorgeous family all the very best from Ireland 🇮🇪 ❤
You're still positive and you're still pushing forward which is incredible..as we say here in Ireland "you're some woman for one woman" ❤🙏
I watched your update last last night. I then went to sleep as I cried and prayed for you. For some relief from the sores, the other side effects, and the sadness. You have taught me more about how to live life, and for that I'm grateful. I will keep storming heaven for you, for hope, for healing, for a day when you have no evidence of disease and are no longer in treatment!!! Sending you and Kyle and Ellis and Winnie and Flower and all of your loved ones many hugs and prayers and love.
My best friend died of bowel cancer I know what she went through 35 yrs ago my mom died of cancer fro breast to spine then he brain I saw her suffer an now knows how you are suffering so courageous l may say god bless you an your family
FIRST JENNY: The pictures at the end of the video are absolutely beautiful!!! Second: Your honesty is amazingly appreciated. When I had cancer I had no one to talk to my family scattered like they were afraid to help it was strange but 8 years later here I am healthy following you. Your rawness has actually helped me heal emotionally all these years later. So Thank You!! You are tired, and feeling down and that is alright it's part of your journey. You are in my Prayers and thoughts continuously. I love you and your family ❤❤❤❤
I’m so sorry you’re suffering Jenny. I’m right there with you. God bless you and Kyle and the fam praying for you all. ❤
I’m so sorry Jenny, please know we are all praying for you and your family. It is ok to cry, you have been a true hero through all of this. Sending hugs, prayers, love to you.
You are the strongest woman I know of. A hospice nurse mixed liquid Benadryl and Milk of Magnesia together and put it on my dad's mouth sores. It numbed them and helped them heal. You're in my prayers
💜🐷💜 I have stage 4 lung cancer with Mets to my liver and lymph in my neck. Almost a year since my diagnosis. I'm 60yo and already disabled with emphysema 8 years so I declined treatment. After seeing how you and others are suffering from treatments I know I made the right decision for me. I've felt good most days and get out with friends and family often. You'll catch me on the back of my ex-husbands Harley with the wind in my hair. Not running to apps or sick from treatment. Stay strong girl. 💞💞💞
She has small kids. She wants to stay with them longer.
I agree. It must be different when you're younger and have small children
Have you researched fenbendazole?
I wish I had a mother like you in my life for any amount of time-- depositing love into a child's life during formative years will last them a lifetime. Love never dies. It only grows.
I had my mother alive into her 90's and she never loved me the way you love yours. Well done, Jenny.
Love this
I'm so sorry Jenny....I wish treatment wasn't so hard. Please know that I am rooting for you and praying for your comfort on the daily. xo
I'm so sad for you, Jenny! You have had to deal with so much in your precious life. I'm sorry for anyone who is fighting cancer. I have a healing prayer candle I light for you every day. Prayers are sent! The pictures were heartwarming and beautiful! I lived in San Diego for several months and LOVED it! Prayers are sent to you and Kyle and your precious children!
Jenny, I'm going through the same, it is very overwhelming after the bone infusion. Hope you find happy things to do on your good days with family and friends, we just live in hope an pray for you 🙏❤️
I’m so, so sorry you are going through this. I’m praying hard for you and for peace of mind🙏🏻✝️❤️
Please do not apologize for your tears or when you are frustrated. You are such a strong woman and I have no idea what lies ahead for you but I do know that God is carrying you through this storm. None of us know how hard it really is for you and your family. Whether it’s smiles or sad tears we care for you know matter what and the fact your are sharing the journey your going through. 🛐💜✝️
Praying for you, Jenny … that you tolerate this treatment, that it will eradicate your cancer and for strength and peace for you and your family. Love from Ontario, Canada ❤️🇨🇦🙏🙏🙏
Jenny. I live in the Uk and have been utterly inspired by your incredible positivity throughout the terrible pain, fear and treatment you are going through. To see the world as beautiful throughout what you are suffering is such an amazing attitude. Although I am not religious I send you all my love and spiritual hope that your suffering will ease, that your treatment will be successful and that you continue to bring such light and bravery to this world. Sending a big hug to a wonderful woman. ❤
You are very brave Jenny.your an inspiration the love you show your family the fighter spirit in you through treatment crying is a release to help you feel stronger I pray to God above to support and comfort you and for treatment to work ,a miracle cure, for cancer for everyone to heal xxx
Our Mother the Virgin Mary did appear to me twice at the St-Joseph Oratory in Montréal Québec 🙏
And I'm gonna pray her for you to asking her to bless you and protect you also my dear Sister 🙏
Amen Amen Amen 🙏
Didnt work, try harder.
Please don’t apologize for sharing your pain and side effects and how horrible going through the treatment is. You have so many people who love and care about you. You are very brave and strong.❤
Dear Jenny, up to now, I never commented on your channel. Just reading and feeling deep empathy for all you are going through. I am from Germany and struggling with stage IV breast cancer, HER positive. I am doing a support group and one of my girls 😊 recommended a product named Kamistad for mouth sores which is available here in pharmacys. It is an ointment or spray consisting of Lidocaine and soothing things like camomile. Sure your pharmacy can mix it or something similar is available in the US. I wish that you will feel better soon and that your therapy will bring all the results you wish. Love and hugs from Germany, Beate Schierle PS: Absolutely loved your big night out ❤. May you wear these beautiful rings for a long time by yourself!
Jenny I keep you in my daily prayers! Treatment is very hard!!!! When I went through it I had no quality of life at all. I couldn’t even get up most of the time, I still deal with side effects. I pray your body can accept this new treatment and you find comfort. 💕
Take one day at a time. Once you get over these rough side effects, I’m sure things will level off. You’ve got this, Jenny! My thoughts and prayers are with you.
Sweet Jenny, I would love to wrap my arms around you and tell you how brave you are!
I sobbed through the entire video and thought about how precious you and your amazing little family are, I wish I could give my life for yours, I am 68 years old and have be blessed to see my children grow into adults, I want that for you, the world needs more Jenny’s to brighten the days. I pray for you and your medical team every night….rest sweet child and know how much you are loved.
I can't imagine the amount of pain and discomfort physically and emotionally you go through almost daily. It must be very tough and I can't begin to imagine not only what you are experiencing but the amount of stress and worry Kyle must go through as well. All we can do is pray for you and hope it works out well. Keep fighting we ❤ you
Jen, first of all I'm so sorry to see in here you go through all of this. I myself am terminal and there is no hope for survival or treatment for it. But I wanted to let you know that you're not alone these feelings that you're having the physical feelings, the emotional feelings, all of them together I feel them right there with you the exact same ones. This week has been the worst week of my life emotionally to the point that it scares me. I was diagnosed five years ago and they gave me a 5-year survival rate Aaron for the past 6 months it's only gotten worse and I'm terrified because that because I know what's coming. I have no support group for family so I just wanted to let you know that you're not alone with all this kind of pain that you're feeling and I continue to pray for you and we love you and you're going to beat this!
Just know that this granma hurts for you. To see you like this sometimes is more than I can stand. You and Kyle are so wonderful. I been with you so long I feel attached to you and kyle and kids. I'm sure so many other grandmas watching feel the same.i hope the day comes when the treatment will be milder. I believe all these hard treatments are going to put you in remission one day. All my prayers and love are headed your way.
@amanda miller I'll pray for you too Amanda and I'm sure all of us here are ready to talk and support you. You're not alone
amanda miller sending you many hugs
Amen to that.🙏🙏🙏
I so get what you going through! It sucks. Been through 3 diffirent cancers. Currently in remission for 3 years 🙏🙏 Let your faith be greater than your fear. Know that God is in control. Wishing you all the strength and calmness to persevere! You can do this! ❤❤
Cheryl u said it all in a nut shell
Prayers for you Sweet Jenny!! I smile when I see your picture come up on my phone. You are such a beautiful woman inside and out. I pray every day for you and for your family & for cancer to leave you. Thank you for sharing ❤❤❤❤
Because of YOU, I am being more cautious about ‘signs’ my body is showing me. Thank you for that! You and Kyle are so respected and cared about! Keep sharing your journey as you wish! Love from OH!
Your photos brought tears to my eyes. There is so much love and joy in your family. I can see why you endure the huge challenges of your treatments, Jenny. You are a warrior....a warrior of love.
I’m praying for you Jenny. I know those mouth sores are horrible. Have your team prescribe a mouthwash for that. I’ve had mouth ulcers from immunotherapy and my Dr. prescribed this mouthwash that numbs your mouth. I kept it in the fridge and that cold thick mouthwash felt so good. I’m hoping your therapy goes well tomorrow. Much love from Montana! ❤️🙏
The mouthwash does help.
The doctor prescribes me "Magic mouthwash ". It works really good.
Thank you Jenny for sharing your feelings and don't think it's ever too much. We can handle it. I lost my husband after a 7 year battle from a terminal cancer diagnosis. He shared a lot with me and he had a wonderful friend he was able to talk to about his cancer. But I also l knew there were things he just couldn't say to me. Listening to you is like listening to him and maybe the things he was thinking that he didn't say. He fought with every treatment option, then on to clinical trials, then we moved for "compassionate care" treatment options (for drugs approved in other countries but not approved by the FDA. He fought until his body told him he couldn't anymore. You are touching so many people's lives in ways you don't even know. I thank you for sharing your story. I pray for you and your children and I pray for Kyle because being a caregiver to your spouse is an amazing gift and blessing but it is so painful and he is being so wonderful and I'm so grateful you have him. Jenny you are love and light. ❤
We are just so sorry to see you going through this - it hurts to watch a person who is obviously so loved and cared about, go through this pain... our prayers truly are with you.
I was a care giver for my husband for 8 years as he went through all treatments for his metastatic breast cancer. You must always get your feelings out. Caregivers want to do what is best and it helps so much just not just knowing about the pain, but your fears and feelings. I hope you have many new friends going through the same treatments as you. I know that helped my husband. I am sending a big, gentle hug from Texas
Lifting you up in prayer, sweet Kenneth. Thank you for being a caregiver for your husband. I worked with men and woman with breast cancer for 15 years. God bless you and comfort you. ❤
One day at a time, you ll get through this, and come out better on the other side. You are strong, you've got this. Many prayers.
Another hug from a caregiver in Illinois ❤
You are a strong lady! When going thru my chemo for breast cancer, I literally could not get out of bed. Towards the end of the two weeks between treatments I would start to feel better. A side effect was as the days went on between treatments I would start to move out of the deep depression I experienced only to have it returned two to three days after treatment. Your doing amazing. You always look so pretty. If this is kicking butt on the outside, think what it is doing to the cancer. Go Jenny!
Dear Jenny, you are not alone, I feel the same as you as I have had stage four thyroid cancer for four years, and two surgeries on my right leg (replacement of prosthesis in my right leg due to a fractured femur in the night)
Lenvatimib for four years, I feel rough and am down quite alot
Just keep on keeping on, do whatever you can but rest too!
It’s all hard, I am the same, would do anything to be with my family, hugs and love to you and your family💕💐💕💐💕xxxx
Sending prayers and hugs beautiful.
Thankyou so much for continuing to show up. You're something special.
Not many have your courage.
Your courage is beyond description, tons of love to you and your family.
Oh sweetie , please, please don’t apologise for feeling so poorly, I’m totally in awe of how you do so well at carrying on as a mum, wife , sister and everything else.
Your bravery alone deserves some sort of medal and if I had one I’d def give it to you! I will also be praying for you continually that God will make this painful journey as easy as possible on your body, he is with you always and we may not understand why these things happen to us but there will be a reason and you will understand why someday.
I wish I cud hold you gently and give u a soft hug, you are so very courageous and strong, Jesus loves you so much🙏. Sending love from the U.K, Lucy x x x x x 💖
Everything you are feeling and going through is understandable and normal. Don't think that you are handing it badly, because you're not. You are beautiful inside and out. You are strong and will power through it, like you always have. Something that helped my Mom with her horrible mouth and throat sores is called Magic Mouthwash. Ask your oncologist for it. Keeping you in my prayers. Hang in there, you've got this. ❤
Great suggestion! Yes please get the Magic mouthwash. It sure helped me going through chemo. Just adore you Jenny and your beautiful family. Keep fighting Jenny.Every moment and memory count. You and your loving family are always in my prayers.
My oncologist prescribed this magic mouthwash for me…It was a “life saver”!! Pray Jenny gets it!❤
Oh beautiful Jenny we miss you incredibly! Your videos are all so amazing! You really left a mark on all your followers hearts. God rest your beautiful soul! You are missed beyond words😢❤❤❤
We love you so much Jenny♥️ you are such a wonderful human being. Prayers for you🙏
I watch your videos all the time but have never chimed in. I am so glad to see everyone else said the same thing I am going to say. Please, don't EVER apologize for your emotions. You are going through something most of us can only imagine the horror of. I watch in amazement of your strength and grace as you go through this journey. If sadness washes over you, let it out. It's okay to cry. If you're angry, let it out. It's okay to be angry. Processing your emotions is important and is not something you should ever apologize for. I don't have cancer, but my mom does. She is on her treatment journey as well and that's how your videos were recommended. Granted she has a different type of cancer and different treatment, but the emotional suffering seems to be about the same across the board for people fighting cancer. Your videos have helped me understand my mother's emotional lability a little more to be able to help her when she needs an ear, a shoulder, a sounding board. You and your family will definitely be in my daily prayers. You are all amazing and beautiful!
Sending you great big gentle hugs. I know how you do it. While I don't have cancer I live with a neurological disability that turned my families world upside down. Yet 9 years in with help I keep going. I do what I can. Rough days/weeks/months come along where everything just doesn't work and I feel awful, get down , frustrated with myself but keep going. How do you and other cancer patients do it? How do people with long term incurable illnesses/disabilities do it. It is because we have no choice. We have to keep going because if we give up we miss the beautiful moments, the better days. Hang in there Jenny. Its ok to feel awful, it is ok to feel sad in fact it's normal and expected. Rest, rest, rest. I know it feels daunting and it is difficult not to think ahead but try to focus on the love right here , right now. The love of your beautiful family, the love of so many people around the globe who care about you on this journey and the love of God who hears all our prayers. Big hugs from Scotland
Jenni, you are courageous & beautiful. Inside & out! Wishing you peace & comfort moving forward with your new treatment.
Many prayers for you and your family, Jenny. You are definitely a fighter and an inspiration.
Never have to be sorry., you are strong and brave! I am a nurse and I am so impressed with your tenacity and positive attitude. You’ve got this, your amazing!🌺
So sorry you have to go through all your going through Jenny , never be sorry for your feelings we are here for you always ❤
Morning Jenny, I know you feel like crap you are still beautiful from the inside out. You are the best of the best aspect of your life. I have grown to love you Kyle in the babies and you my heart I will always remember you and Kyle being the best in courage and strength. Thanks for sharing the pictures. They were also good John that I could not pick a favorite 1❤ I'm going to close for now and spend some time in prayer for you and the family. Nurse Pam in Mich.
Jen not John
The love in the pictures at the end got me so choked up. Praying this treatment works for you. You have such a beautiful family. 😊
I am keeping you in prayers and feel honored that you are willing to share these difficult times with us. Each time you post, you are helping others too. Bless you!
Jenny you inspire me everyday! I’m praying for you. I walked the cancer journey with my husband, so I understand to a degree what you are going thru! Be encouraged, you are a light in a dark world ❤🙏😘💕
Sweet, beautiful Jenny. I’m an RN and ten years ago I studied and trained to be chemotherapy and bio therapy certified to work on an Oncology floor here in San Diego. I was never able to administer chemo on our unit because just about every patient gets it outpatient as you know. I spent a day at the infusion center and was so impressed at how knowledgeable the nurses were, and surprised at how they would slow down or stop infusions completely if the patient had literally just about any type of weird symptom. They explained that even something as strange & minor as, “the bottom of my left foot is itching” or “my fingertips are tingling” can be the first subtle sign of an impending reaction that’s much more serious. I ultimately chose not to stay in oncology because the few patients that we did have really suffered from chemo. It broke my heart and for the first time as a nurse I felt helpless to make things better for my patients. In addition, most of our patients were in their 80’s and the doctors would convince them to get chemo because it may give them an additional six months with their grandchildren. What the doctors neglected to tell them was how horrible they would feel, the painful open sores in their mouth and GI tract, and all the symptoms that you have mentioned. I genuinely got the impression that our small group of oncologists place more value on quantity of life over quality of life. I know you have your sweet beautiful children, loving husband and supportive family to hold on for but don’t forget that they don’t want to see you in pain or suffering and that it’s ok to take your pain and anxiety medication before it increases to the point that it’s unbearable. Not sure if you’re seeing a palliative care physician or if anyone has suggested a simple NSAID like ibuprofen for the body aches. In addition, antidepressants such as Cymbalta help with pain (and also affects the way our brain perceives pain by tricking our mind that we’re not hurting as much), but I’m not sure if it’s used or beneficial with oncologic pain. I just wanted to mention ideas of things that you might want to ask your doctors about. You’re an inspiration to us all and really touch our hearts with your willingness to be vulnerable and share your journey. And don’t forget that you can do hard things and you’re absolutely more than enough… many blessings to you and yours.
Dear Jenny, l am sending you special healing prayers from Israel. May you be blessed with good health and may your symptoms, sadness and sorrow be replaced with joy to live in the best of health and happiness. Loretta.
The “quantity, quality” saying can’t be used on someone’s life .. people are not objects , she knows what is best for her family and herself , if someone wants to suffer through the last days of their life for their kids just to see them once more its worth it . that is not “quantity “ those moments are more precious than the rarest diamond you can find . I know you said that from a good place in your heart , sorry if I came off as rude
@@junebug8276 It’s very naïve not to understand the pain and suffering loved one’s endure in witnessing this level of suffering. And yes, quality of life matters. It’s incredibly selfish to insist anyone subject themselves to this level of suffering. At some point, folks have to be honest and ask, is this living or only prolonging dying?
Jenny please get your doctor to order MagicMouthwash, it will help. I am a retired oncology nurse and I have found that this helps most patients. You and your beautiful family are in my daily prayers 🙏🙏🙏💕
Sometimes for a cancer patient, quantity of life is just as important as quality. Maybe even more so. Obviously I can't speak for anyone but myself. I would rather be this sick for however long I am able to be here than be given an expiration date because treatment is too hard. But I am young, and was diagnosed stage 4 at 33. I definitely would feel differently at 73 or 83. Life is precious and amazing and I wouldn't change my difficult and painful life for anything. ❤
Sorry for all you're going through. I had Kidney Cancer and surgery Stage One Basal Cell Carcinoma. No Chemotherapy. I was lucky but it changed my life. Be kind and grateful to others. You never know what they are going through. Love and prayers ❤❤❤🙏🙏🙏.
beautiful pics of the family-thank you for sharing and praying for your comfort
Jenny, I love your courage and I will tell you why. You are absolutely honest about how you are feeling because of the new treatment and it’s side effects wether it be to much TMI or not. You are very strong for your family, some are unable to do this because of how poorly they feel. You press on for them, especially the children, for them to have memories. Just think how many lives you are touching and giving people the strength to to go on and know that it’s ok to cry. Crying is a good release!
I’ve read some posts and one in specific stood out to me. Pain creates fear and then fear drags us down. I will not lie, I still have a little fear of my cancer returning, but I am so so thankful for each day I have and I try to be the best that I can be. Even 16 years later that fear is always with a cancer survivor. I wish you all the best my dear and I hope your next treatment will go smoothly. You are always in my prayers❣️
Jen you are so loved by so many & you are in our prayers everyday. Use us as your supporting therapy, lots of love 🇬🇧 xx
You’re such a strong beautiful person! Kyle is awesome. Stay strong and pray
I am very sorry you are suffering so much with this treatment. I hope it will get better for you. Thank you for the privilege of allowing us to be on this journey with you. I admire you and Kyle very much. Love the pictures of your beautiful family. Your love for one another is so palpable. I'm glad you have family close to you, and always know that you have all of us out here rooting for you, praying for you and sending lots and lots of love and hugs.
I'm so sorry you are having rough side effects . I pray that you will be able to tolerate the new treatment better next week. Always in my prayers .🙏💗💗🙏
I am so glad you were able to find some comfort with Kyle's help. He sure is an angel in this! I am also happy you were able to go and enjoy a vacation if even only in bits and pieces. Seeing you struggle reminds me of all the reasons I hate cancer and what it does to such beautiful people. I am remembering you in prayer and sending you so much love! Hang in there and never forget how strong you are! Hugs to Kyle and family also!
Happy to pray Jenny. These pictures are so beautiful. You look happy, your whole family looks happy. That's nice to see in the middle of your miserable cancer treatment. Thank you for keeping it real. We all love you.
I cried throughout your photo montage. You have the sweetest family, and I pray you make many, many more memories together and will enjoy showing them to your grandbabies!!!!!
I am so sorry you are experiencing these awful side effects. You are always in my prayers. I came across a quote today from Katherine Wolf, “Keep the end in mind.” And the end is to kick this dreadful disease to the curb so you can spend more time with that beautiful family of yours.
Do you think drinking a lot of water the day before your next infusion might help with the side effects?
I was thinking that with this initial shock to your body, maybe the side effects won’t be as great with the next infusion.
I loved the beautiful pictures! 🥰
We got this girl! Your youtube ohana is praying for you.
Father God, please relieve your precious daughter Jenny from these side effects. I pray that you bathe her in your love and peace. Give her strength to endure this journey. Thank you Father.
Jenny I am so sorry you are having to go thru this. I wont even pretend to know how difficult this must be. I do know that you have one of the most beautiful families I’ve ever seen and I know that is what gives you the reason to fight so bravely. Also, although that is why you started this channel …to preserve memories for them…..Inadvertently you’ve gained a community of people who love you dearly, have become a shoulder for you, and who pray for you daily. Stay strong sweet Jenny. You always seem to have that sparkle in your eye, no matter what. Thank you for sharing with us. Hugs to you. ❤🙏🏻🙏🏻🙏🏻♥️♥️♥️
Still rewatching the videos missing jenny and sending love to all that loved her!!!
Beautiful pictures Jenny. So sorry you start of new treatment was so rough. Praying as you begin a new week your body will become more adjusted to the new treatment and you will be able to complete it. I am sorry you’ve had to endure so much pain. Hoping and praying for good news. You are my hero❤
I’m so sorry that you are in pain and sad! I don’t have cancer, but I do have anxiety and depression and I know how bad panic attacks and sadness can be. Prayers and hugs sent for you! When you are upset in the videos, I just want to reach out and hug you! ❤🙏🏻
Mouth ulcers are so incredibly painful! I understand that pain well. I was getting them from a medication I was on and I had to stop immediately because of all of the open sores in my mouth, on my tongue, etc. I was in so much pain (and I have a pretty high pain tolerance!), the only thing that would keep the pain down, not even away but at around 70% better was Fentanyl. When people haven’t been through something, they have no idea. I’m always praying for you Jenny. For healing, for comfort, for happiness. I pray for you to have a nice day, hopefully pain free or very close, and feeling mentally well. We all need ‘mental health’ days too, especially when dealing with something so life changing. This UA-cam crew loves you so very much and we are all here for you, in whatever capacity you want us to be!
The photos at the end of you and your family are so beautiful. You have such an amazing smile!
Okay, I’ll end my novel here, haha! Sending virtual hugs your way! And of course, so many prayers. I hope today is a better day, sweet girl. 💗💗💗💗
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The pictures are so great! You and your family are inspiring. The BEST SMILES make my heart feel joy🙏🎉👏🏼🥰🌻🌻🌻🌻🌻🌻🌻🌻
You are so brave Jenny and an inspiration to me and I am sure to whoever is going through rough times. Keeping you in my prayers 🙏
I can't imagine how hard this journey must be for you. Remember, you are stronger than you give yourself credit for. It's okay to have days when you're feeling down. No need to apologize for that. Rather, give yourself the grace to feel what you need to and feel the strength everyone is sending you❤🙏
God bless your family.
!a!!aaa!!a!aaaaaaaaaaaaaaaaq!!!!å
Oh my I feel asleep justwokeup♡
😊
Jenny, I don't know how you do it, either. But I think you figured it out: Your family and your will to experience love and soak in all of life's beauty - these are the reasons you fight, accepting the unpredictability, distress and pain. This is what courage is; understanding the risks, enduring any suffering, and still continuing to march on anyway, because there's something so precious at stake.
One day at a time, you dearly treasured person. On this day, you are doing it. Tomorrow, you can decide to do it again. Beyond that, no one knows what's in store for us. But in your case, history shows you are strong and brave, because you have a life worth fighting for. You have reached a plane of richness and gratitude that many of us never approach. Great big hug.
Wow that was beautiful. I couldn't agree more.❤
oh Jenny, watching this video brings out the momma in me! I just want to hug you! You are such a wonder! So happy that you have such a wonderful family! Hugs and prayers coming your way!
The pictures of you and your family are beautiful!! Praying for you! God Bless.
No need to say sorry Jenny . I feel for you . Praying for you ❤
Please don't apologize Jenny. Let us be your safe outlet when you are feeling overwhelmed. Who wouldn't feel overwhelmed in the situation that you are in! We hurt for you and want to help in whatever ways we can. I hope it brings you some comfort to know that you have thousands of people who want to listen to everything you have to say while we quietly hope and pray for your wellness! So glad you enjoyed the best bread in the world! You deserve this and more! Healing thoughts and hugs to you and your beautiful family! 💖 🙏💞😇💘
Sweet Jenny, always a smile, speaks so gentle. You amaze me. You are a gift from heaven. So, so special.
I am so touched by the love and support you have and you adjust to living with cancer. You are so amazingly brave and strong, even when you struggle mentally and physically. You are LIVING ❤ . Thank you for sharing your journey and showing everything that goes with it. Always sending strength and love your way 💪🏻♥️👍🏻
Don’t apologize, you are going through so much!! You are SO strong and inspirational to so many people, myself included…I can empathize about your body aches & panic attacks (I have a chronic pain condition/immune disorder) it is all so overwhelming and I’m just so sorry that you are having to go through all of this❤️ I’m am praying for you and sending so much love, support and encouragement to you and of course Kyle , Ellis & Winnie💕 from small town in Ontario, Canada 🇨🇦
Oh girl.............. my love, prayers of strength and pain free treatment!! HUGS from Australia
Gorgeous pictures, Jenny. Thank you for sharing them with all of us! You are one of the strongest people I know. I can’t even imagine how much this damn disease has taken out of you, physically and mentally. We listen…from all over the country and abroad. Many thoughts and prayers for you for next week. Hugs, love and 🙏🏻 from OK. 💕
YOU PRECIOUS, BRAVE, BEAUTIFUL GIRL! I will be praying for you and praying that your next round of treatment goes much better! Love your heart, you have so many lovely people out here PRAYING and BELIEVING in you! Let's get you WELL!! Sending you many, many, blessings and love!