My Diagnosis with AML | Leukaemia | Acute Myeloid Leukaemia (AML) | Cancer
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- Опубліковано 30 лип 2018
- Heres the story of my diagnosis and what the last 24 hours of my old life were like. I also share with you what I think is the hardest part of diagnosis, and how I dealt with that during those first hours after being diagnosed with Leukaemia.
Follow my daily journey on Instagram:
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Stay strong. 11 years remission and counting for the same cancer.
Shane Walker Really happy for you please contact me I'm currently going through this and I definitely have some questions
Thank you for this comment. My husband is 9 months in remission and this is so hopeful on bad days!!!!! Congrats!!!!! 💕💕💕💕
did you also do a bone marrow transplant ?
Am suffer last 2012
Relapse 2017
BMT sep 2018
Now problem cronic gvhd
Lung shrinkig can I recover???????
@@gouravsaini5809 how are u doing
I was diagnosed last June 2nd and was later told at the time of my diagnosis I had maybe 1 to 2 wks to live. I have been horrified at that ever since they told me. My AML was a sudden mutation of FLT3 (fleet3) gene. I wen through 2 phases of chemo and an 11 day in-patient stay due to fever and an infection. Then they said after all that it was in my best interest to have a stem cell transplant from a donor because of the odds of relapse. Well, I am now +123 days out since my stem cell transplant and making a very good recovery. You’ve got hope mate! Don’t let it get you down and keep fighting!!!
Thats so great to hear! SCT's seem to have some amazing results and I am so happy to see that yours is going so well!
Congrats!!!! My husband also has FLT3 and is currently 9 months post transplant.
How are you doing now man?
Bro sct is necessary in this means who condition and recovry is good for chemo can they live without a sct
Matt Howell hi Matt I seem to have the same as you aml FLT3 and idh2 diagnosed March 5 transplant with my sister 100% match doner in June. Would you mind terribly my asking your age? I’m 69!
FAQ! I am sorry I forgot to include it in the video! What made me get a blood test?
I had a developed a slight cough, with about 3kgs lost over 7days. With these combined I had requested a blood test. This was then forwarded to Haematology. Hope that fills in the gap. Sorry for missing it in the video!!!
Tyler Blah my husband have Aml and he receive his first chemotherapy we don’t know what’s happened next I have too small kids one 2 years and 4 years old .we are so worried
What was the subtype of your AML?My husband has AML M5 with 11q23 deletion?what was yours?
Allah swt says that He will never give us something we cant handle. Even when disagnosed with cancer people get stronger mentally and become better people.
Why do you have to bring religion into this?
I was 19 when I was diagnosed last July. Just 4 more months of chemo and I should be back to going to uni and working at the clinic again!
Hey Sara! Wow 4 months then, which would be 2 months by now? I hope you are going strong
@@TylerBlah hope ya okay
@@emilyjames3110 yes I am going very well! You can check out my recent videos to see I am alive and going well 👍Thanks for checking Emily 😊😊
the fact that you have the empathic space to consider so carefully the feelings of the people in your life when you tell them your diagnosis speaks volumes about your strength of character. I hope you're doing well!
I’ve been battling ALL ( acute lymphoblastic leukemia ) for a year and 1/2, and all I can just say to you is that you are so incredibly strong, I know that it’s hard to stay positive, but keep pushing and know there’s a light at the end of the tunnel :)
Thank you Anna, and thank you for both sharing and watching :) I met a few ALL patients in my rounds and you're all fighters!!!
I hope you are doing well. I was just diagnosed with AML. Just got off chemo. Doctors say l am doing well.
Thank you Myrna, glad to hear you just got off of chemotherapy, and I hope your recovery is going well.
Hi Myrna , how are you doing now ..i hope u have recovered from this .
All the best on your recovery road, Tyler😊🌻
Tyler ❤️ what an amazing platform for you! We miss you xx
I'm showing my husband your channel. Good luck on your journey!!!💕💕💕
Hi Tyler,
Thank you so very much for sharing your story with people. You are an inspiration and I feel that by sharing this it will help so many people who are about to go through the same or starting their own journey xx
This is a brilliant video, thank you. We all have more and more friends having to go through this, and it could also happen to any of us at anytime ... Although we know and can imagine and empathise with what our friend is going through, your truthful detailed moment by moment narrative is incredibly helpful in really understanding it and guiding us. I hope you are still well and wish you all the very very best, and thank you again for this. 🌈
Hi Tyler; my daughter and I are very inspired by your videos. My wife was just diagnosed with AML and my daughter ran across your vlogs and they’ve given us hope. Your a real Saint that’s gone through hell & back. Thanks so much for sharing your history. It makes the pain a little easier to swallow and gives families hope and inspiration to succeed and fight like yourself. Did you have just AML or a specific sub type? My wife is diagnosed with just AML she has something up with her 7th chromosome. We’re early in the process and not quite sure what that means. She just finished her induction round but the mucus throat ulcers are unbearable for her. We can’t wait to show her your clogs but due to Covid she can have no visitors. It’s really hard on her and us. God Bless you and congrats on Notre Dame. Sincerely Chris & family
Your an awesome speaker. Hope all is well and you will overcome this!
hello...i also got diagnosed with aml in may 2018....bt i am fine now....
so stay happy nd positive
Can u share your number..
My son got aml now he in oral medication ,how u survive n amp
Hey dear kn SE hospital SE plz emergency h
Himani and indranil plz share your no.
I also have leukemia, I have cml - chronic myeloid Leukemia. I take medication to prevent it moving into aml.
The bone marrow biopsy is a weird feeling isn’t it haha
This definitely makes you a stronger person, it changed my life so much and now I appreciate things so much more now. Good luck in all your future treatments, hope it all goes well and stay positive. A good spirit can get you through such tough times 😃
Hey. Great to have you on the channel :) Yes bone biopsies always are weird! Thanks so much for sharing that you have CML. Thats so interesting to hear the different treatment approach. How long have you been diagnosed for ?
Tyler Blah since December 14th 2016, I think they are always working on new treatments. Blood cancer research is very progressive 😃
@@TylerBlah Tyler, Iam so happy for you!!! I hate hospitals, how the hell did you cope? Some of those doctors and nurses are so snotty, but I do think that nurses rock!!!
Thank you , it’s a shock. AML, waiting for the first chemo this afternoon
Hi mate how are you? Hope you going stay strong. My husband been diagnosed cmml last year on February.. But we hope he get a trials this month, it's really hard but because of you I will show to my husband how you been going through. I promise I will include all of you in my prayers. Thanks alot for sharing mate.
Thank you so much for sharing! You definitely reached me.
Peace and blessings brother!I wish you and your family the best!Your a strong soul💪🏽
Thank you Corey!
Hi Tyler. Just came across your video. Just diagnosed with aml flt3 mutation right after Christmas. Finished my induction called 7+3, and was in targeted therapy. 3 weeks at the hospital. Discharge then less than 24 hours at home came back for a covid pna. Stayed another 5 days. Now i am on my consolidation chemo as i am on remission. Waiting for a donor for bmt/stem cell. Your videos really really inspire me. Thank you.
Your insight and strength are inspiring. I found myself nodding in agreement at several points. I received my diagnosis over the phone as well. It was a different cancer, but also devastating. Yes, your life changes completely. I wish you and all the others who are "in the fight" all the best .
So very true, I hope you are progressing well, and at least feeling positive in these times :) Stay safe !
Love you mate. You'll come back as a man who's lived more than 1 life.
Keep fighting! Stay strong!
God bless you. Be strong. God is with you 😘
I hope you are doing well now ? Your video was insightful, thanks for sharing your story. Keep on fighting!
Thank you Mel. Just recovering from my last treatment still. But feeling strong and as positive as ever! :) Glad you liked the video!
Thank you for sharing. I am newly diagnosed ALL and Lymphoma. I really appreciate what you said about staying strong for others. I also made a video because it made it easier to share. I hope you are doing well and thriving.
Thank you for sharing your story. You’re amazing. Sending love❤️❤️❤️❤️
Thanks Hej Hej!! ☺️
i have a leukemia last may 2020..chemotherapy...blood transfusion etc etc...june 9 was my 2nd bone marrow and bone marrow biopsy..so june 12, 2020 ....after the bone marrow results...i am now a cancer free🙏🙏🙏🙏 im an overseas filipino workers here in kuwait..thank you Lord...amen🙏🙏🙏
Great news! I am so happy for you 😊😊
Thank you for your story. I can’t imagine how difficult life is for you. I promise to pray for you.
Thank you Linda Lou :)
Your editing skills are really good you know. The sound effects ✨ your cat Merlin ✨ and don't forget the confidence talking in front of the camera ✨✨✨😌
Thank you so much!!
Omg I just saw your diagnosis came on the same day as mine. Hope your well
What a coincidence! I hope you are going well! 😊
I loved listening to you, it felt like someone understands me... or I understand you and feel your words in my bones...I was diagnosed with AML luekinema, 11/11/20... I'm done all my rounds of chemo, I've spent 3 to 4 weeks at a time in hospital stays... it was so difficult, I was very sensitive to every treatment... I haven't spoke to my friends about how it all felt or family, I would ring my closest people on my really bad down day's and just cry... because with covid 19 I couldn't have visitor's... and been in a room alone for weeks on end and not aloud out, it was mentally tourting... I'm still struggling with everything mentally, because I feel like my support group dont understand what I'm feeling or going through, so what's the point in talking, and then I feel like I'm repeating... I'm so angry, upset lost and do feel alone... I got discharged from hospital June 18th this year, and every 3 mths I go for a bone marrow biopsy and bloods... I'm in hope for my future, but I'm scared every single day... and it starts to feel like an obsession thinking about this luekinema all the time... I hope I can start to love life again...
Wow thanks so much for sharing! I’m really glad to hear that felt you could relate. That was one of the main reasons why I make these videos as sometimes we are the only ones able to understand. I hope you’re feeling better today and that every day after gets a little bit better 🙂 that’s how I see it, a little bit everyday feels great!
@@TylerBlah next week on the 11th it would be a year since I was diagnosed... I've become a little happier because all seems okay, I'm out walking with my headphones again... I still wish I could sit with someone who would understand my feelings.. I'd love to be able to have someone in my life who can relate and understand me... still feel alone but dealing with it better... I hope you are keeping good yourself...
thank you for sharing your story. many hugs from Sanna in Sweden🤗💞
Thanks Sanna !
Thank you for sharing!
Hey! I really hope you're still going strong!
Hey! Thanks yes still pushing on!
I’d rather not tell anyone since there isn’t anything anyone can do. It will save them a heartache. You are strong, god bless you ❤️
That’s entirely reasonable. It’s a very individual choice and is best to do what you would like to do
Thanks Tyler. Really great help in dealing with a cancer diagnosis. Don't know what were the things you ate to help offset the aluminum after taste in the mouth? I may not be familiar with them as I live in the US
To all people who have AML. STAY STRONG! I can feel you all! Just enjoy all your lives. After all, we are only human being in this world. There is no forever on earth. Living on earth as human is just an experience so you dont have to worry as long as there is LOVE inside your heart. All of you will be fine!
i lost my mother to aml 4 months back i dnt know why did it happen to her how could i have saved her i already lost my father in an accident i feel very empty and bad at times
I am so sorry to hear about that Vidushri
I don't know how you deal with that loss I really don't but god bless you. I hope you stay strong through all of this and don't lose hope.
Vidushri,
I’m sorry for your loss and grief. I lost both of my parents a few years ago and both passed just 2 months apart. After their passing I no longer have their support in life but I did have them in spirit since my AML diagnosis last June I have been remembering their love for me and our memories.
I don’t have the clear answer but I am sure your parents would want you to live a full life.
You are alive now and try to make the most of it even if it’s just volunteering some of your time to a cause. Enjoy and do things your mother and father loved to do, rejoice in that love.
Take care of yourself
Sorry for your loss my mother died from AML in 2003. I am a big supporter of families dealing with Cancer. Prayers to you. Time does heal your loss.
So sorry for your loss please stay strong and I’m sure they are with you wherever you go♥️
A bit delayed but I started to watch your vids. Wanted earlier, but it was just too real as I went through the same. AML too. Now I’m doing better, so it feels “safer”. Probably was afraid to see if my story goes down on a different path and I wanted to focus on my battles. I’m happy you doin’ better and will watch all your vids, kinda waiting for the transplant part, that was the toughest for me. Stay safe!
I understand entirely the difficulty of watching this content when going through it yourself. I found similar struggles so I understand completely. Focusing on your own journey is the most important thing during this. How are you going now ? which stage are you up to ? Always feel free to pop by and chat :D
@@TylerBlah thanks, I’m doing better and better, had my transplant on 4th of June. Having blood test every second week, but didn’t need any IV products for about 3months, however my platelets are still pretty low. Been around 10 for a while, on the last test it was 22, hopefully it’ll keep going. I’m on 150mg Eltrombopag/day, so max dose, good to see it has some effect now. Haemoglobin is 110 now, so not worried about that :)
Still feel weak and my stamina is really far from the “original”, kinda miss work, but to feel less useless I started to study again and doing some exercise. Typically the part of healing when it slows down and can’t see that much improvement, but if I just think about where I’ve been couple months ago, I clearly see it’s much better now. You know…Slow and steady wins the race
My brother is going through this at the moment. Stay strong.
All the best to your brother right now !
Nice to see that you have strong face your leukemia. Tyler, do you have planning to do Bone Martowardojo transplant after this chemoteraphy? Thank you
Hi Banuasa, yes! We are scheduling a Bone Marrow Transplant after this current round of chemotherapy
I commented on this video about a year ago.... thank you for giving me hope... sadly my mother passed away in February... I wish you the best.. and again thank you
Hi Jon. Thanks so much for coming back. I am sorry for the loss of your Mum, I hope you are going okay right now. But it's never fair to have to go through that. My sincerest apologies, and strength is with you Jon. Thank you for coming back to say hi though, I appreciate seeing and talking again :)
I am doing well now. I talked to others that lost there parents and it made me feel so much better. For weeks, I couldn't help but experience a huge weight off my shoulders which saddened me more. The weight I was experiencing when she was living had nothing to do with her luekemia at all.. at first I thought it was then I came to the realization that the weight was the unhealthy relationship my mother and I had. We argued constantly and we both felt like we were not good enough for one another. At the end I knew she forgave me and herself which was bliss for us. She went peacefully snoring away. I love and miss her dearly but my daughter is her living twin.... I mean personality exactly the same down to there blood type which is nuts.. ill pop up every once in a while. If there is a way I can donate stem cells for you I would love to see if I am a match or not. I'm O- if that helps.
Hey mate, glad to see you are holding up well in this hard time for you.. Nice video, which undoubtedly many people will find helpful. Really wish you the best and quickest recovery and please let me know if I can help in any way.
Hey Stefan! Thanks so much for the comment! Hopefully after all of this we can catch up soon 😊
So far, this is my exact reaction to how mine started... I guess we will see what the doc says tomorrow
Hey Sandra! Glad the video helped 😊 Hope the next day went well and you're going strong 😊😊
@@TylerBlah you are awesome...i hope you are doing well. xo
My primary care doctor noticed some abnormalities in my blood work, and I have an appointment on Monday with an oncologist/hematologist. I’m a pre-med student in America. I’m very nervous for my appointment and I’m kind of in that point where you were in the beginning. I have a long history of cancer in my family, but I’m hoping it’s anything else. Thanks for making this video. I don’t know who to talk to about how I feel because I don’t want to make anything a big deal until it is.
Hey Alexsandra. Thanks for sharing what you're going through. Sorry for the delay in replying! Im glad you liked this video, and you are always stronger than you believe you were. Trust me on that one :) I hope you're going okay!
Hi Tyler! I have a few CT scans and an MRI tomorrow. My onco’s main concern in lymphoma and were going from there. Thank you for replying ❤️
Sheree Hardin I have bone cancer unfortunately
@@sandeewarren3881 Rick Simpson oil! Research it! I am in Michigan, if you need oil. Free of charge. Please take me seriously.
Sandee Warren what blood test did you have done that showed this?
I come a Cross your videos,and you tell the truth 🙏🙏🙏🙏🙏
I have cml I went to the emergency room for fever chills pain and my wbc was over 100 I was able to get it into remission I’m 2023 for a few months it’s back and now I’m looking at new medication for 3 months and also another possibility of a transplant
This was so strong. How are you now ? My best friends brother is going through chemo himself. He was in remission for 10 years and unfortunately the cancer is back. He is 22 years old tomorrow. Any words or advice while he’s going through that. How do we make him feel better that made you feel better when you were.
I am currently preparing for a transplant, had some new videos explaining how its been going. To your best friends brother, I hope he is managing this with minimal side effects, and I think the best thing you can do for someone in this situation, is just be present. Which at times can be difficult when its going tough, but that's my best advice :)
Rick Simpson oil! Put it in the search bar. Google! It works!
God bless you. I’m praying for you 😅
Thank you J W
Lots of prayers and good wishes to all strong people here!
I have Leukaemia. This is the first time I have said it outloud.
We are all here for you in this community Graeme 💪
May I ask what symptoms made you get checked out in the first place? I have some symptoms and have been referred to a haematologist and have been very sick lately and am thinking seriously about why it could be.
Hi Hannah! I have pinned my initial symptoms at the top of the comments as I forgot to mention them in the video. I hope they help. And I hope you had some resolution with your haematologist RE the symptoms :)
I’m getting my BMT for chronic and acute myeloid leukaemia, I’m so nervous. Any tips
Inspiring
Sorry brotha,peace be with you and if you ever want to talk I'm here ok.my mom is dying from stage 4 gbt
awhllot offtshs4ya my mom died of aml
@@vidushripatel979 sorry for your loss
Can I ask what made you get blood work in the first place? Were you having any symptoms? I’ve been going through this stressful process since August, where my blood work showed slightly elevated white blood cells. Infection and any other problem has been ruled out with a CT scan and X-ray so I’m finding out this week if it could possibly be leukemia.
Hey. Of course. The more questions the better as it can help others too! I had lost just over 2kgs in a week unexpectedly. And it was more unusual to me than normal fluctuations, because I had been on a fixed calorie and exercise regime for about 2 months so I had been quite steady in my weight. I messaged a Doctor I knew which suggested some blood tests over a week. During the blood works I then got a cough which was a bit suspicious a few days later, but I then responded very quickly to antibiotics. But it was that initial loss in weight.
I must say it was very non specific, and even as a medical student, I never had even considered it. I was very lucky with my Doctors.
My thoughts are with you in this stressful time
@@TylerBlah Thank you for getting back to me so soon! I guess the uncertainty has been going on for so long because I don't have the usual symptoms and everything is normal except my WBC count. At least it has given me a lot of time to come to terms with the possibility, but it's still scary. On the up side I guess it will be early detection which is good. I think my doctors are being extra careful :)
Hey! Hope results came back negative. Please share with us how your wbc is doing now?
Hope you are still doing well, best wishes! Q: what undertype of AML did you have?
Hey Andrea! Inv. 16 cbf. Hope that helps :)
Tyler Blah Yes, thank you. I had AML M6, also known as acute erythroid leukemia a while back, all good now. I find it so good to hear about others experiences and stories. So thank you for sharing!
To everyone reading this please turn to Jesus He loves you and wants to save you from what you are going through, He is the God of miracles, Only Jesus truly heals, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the lifes of people I know, God saved someone I know from illness leading to death, There is nothing impossible to God, Its as simple as asking Him to show you He is there and if you really want to know He will answer you, I know this because it happened to me when I called out to God
Amen, I was diagnosed with AML over a year and a half ago. I’m 76 years old and I know the Lord will use me to help others go through similar difficult times . I don’t know what the future holds but I know the one who does and I will trust and serve Jesus until He call’s me to my eternal home. Praise the Lord!
Tyler, what brought you to have your bloodwork done in the first place? Were you having symptoms?
Hey mshell4444. Great question and a common one because of my error in filming this video. I have a comment at the top of the comments section explaining it
Hi Tyler, I hope u r alive and doing well🙌✨
❤️
....my mother was diagnosed 4 days ago. 2 days before that she collapsed.... if I wasn’t there at the time she would not be here anymore. When the doctor came in the room and said she had cancer all I remember is my head ringing loudly. It’s so difficult to be strong. When she went to the hospital she had less then four ounces of blood in her body........ idk what to do how to act, even though I am acting normal around her.... my entire being is shredded. What the actual fuck do I do......
Jj Marsh, these experiences are really tough. And its difficult for people around you to understand that at times too. I hope you're staying strong!
Literally no choice but to be strong, right? This experience was a wake up call about how important life truly is.
Plz someone suggest that blood cancer treatment possible in India
What blood test u did for detecting abnormality? could you name it?thanks in advance
Hi Aditya, the initial tests are Peripheral blood smears. Then we did bone marriow biopsy with different molecular studies on those samples to get specific subtyping.
@@TylerBlah ty bro.i thought the same.i recently did complete blood count and peripheral blood smear test.all came normal..just my hematocrit and rbc is a bit high due to low vitamins.getting shots for that
How much does it cost to get the leukemia treatment? I have leukemia, but I'm an immigrant with a student visa. What do I do?
Hi Daniel Junio. It depends on which country you are in. I think it's best to find out the level of care that you're visa can grant you and then see what additional support is available from there! All the best and I hope you are going okay!
What do you mean sarcasm??? 😂 Bon Iver is definitely NEVER sad EVER 👍🏻
Why did you get blood work to begin with? Did you think something was wrong so you wanted blood work done?
Hi Victoria :) I had lost just over 2kgs in a week unexpectedly. And it was more unusual to me than normal fluctuations, because I had been on a fixed calorie and exercise regime for about 2 months so I had been quite steady in my weight. I messaged a Doctor I knew which suggested some blood tests over a week. During the blood works I then got a cough which was a bit suspicious a few days later, but I then responded very quickly to antibiotics. But it was that initial loss in weight, which made me enquire ! I am lucky I was monitoring my weight at that point in time so specifically!
Tyler, i need your help
My uncle is suffering from acute leukemia,,, his hemoglobin level is 7.8
Will he alive??😥
Always best to talk to the doctors. They know his case better than anyone
IS THIS NICE YOUNG MAN STILL ALIVE
Yes going very well! New video coming out soon 😊
@@TylerBlah Oh thank god. I was worried about you. I love your accent. I wish you all the best in the world. Speedy recovery
I Hope you will beat this
Thank you DJ AJ
Are you doing okay?
Yes surviving and almost at two years post transplant 😊
@@TylerBlah Great.. I hope you have a healthy day every day.
How u survived n aml
The.amazing work of doctors, nurses and team in Sydney 😊
What where your symptoms?
I had lost a bit of weight over 1 week, in the presence of a viral infection, with my platelets dropping. Hope that helps 😊
#1 head shaved looks better on you #2 did you get a bone marrow transplant? If not why #3 are you alive if so get a transplant mine is in two weeks
Hi Paul, thanks I am enjoying the shaved head! :) Yes I did get a transplant, just past day 100 now. I have a posted a video just recently showing how I've handled recovery etc. on my channel!
Good luck with your transplant, I hope it goes really well ! :D
Hey..plz help me out..in lukemia.. after bone marrow transplant..can we say patient is fully normal.. my sister recently diagnosed with this..I don't wanna lose her..
Hi. A bone marrow transplant is normally one of the therapies they choose for certain types of leukaemia, and is an effective therapy to treat the leukaemia. However, the success of therapy is always dependent on the type of leukaemia that you have. Ie the sub-type, for example mine is inversion 16 cbf, and that guides my therapy and determines my risk. If you speak with your sisters doctor's they should be able to help you understand your sisters type of leukaemia and can explain the best therapy and whether she will benefit from a transplant, as not all patients with leukaemia require one. All my strength to you and your sister during this journey.
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background music is annoying i'm not going to watch it. So are the bits in between the speaking where I need to change the volume.
Hey. Thanks for the criticism. Will do my best to take it on for the next videos!
Plz someone suggest that blood cancer treatment possible in India