I had my bone marrow transplant when I was 5 years old. Now I am 33. Praise be to our Lord Jesus Christ who saves life and great healer. All praises to Him.
My mom was diagnosed and passed after around 8 months of fighting. She had a 100% stem cell sibling match, we had so much hope that she had all the odds on her side. Unfortunately she faced every side effect, every bad thing you hope doesn’t happen and in the end the transplant failed. I have been destroyed since loosing her, she was only 64 years old and still had so much life to live. We had so much faith she was going to survivor that we never discussed the possibility of her passing, what her wishes may be, or to say goodbye. Something we really wish we had done even though it was going to be extremely difficult. I’m so happy you beat this and I can only imagine the joy you and your family feel. All the best and so much love to you 💙
Your story is very similar to mine and my sister's, as she is a 100% match and is my donor. I'm so sorry for your loss. I'm 57 and my sister is 56, so it hit very close to home for me.
I have AML, and I am almost six months post-transplant. I spent most of my post-BMT time in the hospital due to the side effects of the transplant and GVHD. My experience so far has been a lot of bumps, but I see better days ahead; I pray we all get to celebrate 12,24 months and even 50+ years of Remission . Thank you for sharing !
Congratulations Blah. we beat this. I'm 24 months post transplant too. I'm happy we beat this and I'm praying and hoping every other person fighting this evil disease beats it too. You have got this! I love you all. Eldora from Nigeria
Hello Miz_eldy. I really would appreciate if you can share with me your journey through the BMT process, what it was like, if there were any complications, anything to look out for, what hospital did you do yours, in what country and just anything that can help guide me through a successful BMT transplant as I am considering getting a transplant done. I really look forward to hearing from you, from a fellow Nigerian.
@@sameerakhan6710 I'll put your son in my prayers and also my Laylatul Qadr prayers in the last 10 days of the Holy month of Ramadan. May God make the BMT process a success and may He grant your son perfect healing and health afterwards 🙏🏽
Congratulations! It's been over 13 years since I had an allogenic bone marrow transplant August 2009 for AML. It even changed my blood type from O negative to B positive. The GVHD went away after a year. Touch and go for the first two years but everything returned to normal so no more meds needed and no more cancer. Thanks for sharing!
So incredibly happy for you. My best friend was about your age when she had her bone marrow transfer. Complete success, she’s 26 years post transplant now, happy, healthy, fit and freaking fabulous!
About to start my 4th chemo treatment and by the end of the month starting the transplant! Ive been hesitant to look up to many videos but you did an amazing job! Hope you know you've been an inspiration for me and I'm sure many others out there! Thank you for sharing your experience with us!
@@badbarry5401 I'm still going through maintenance chemo right now, and I believe I've got 16 or 17 months left until that is complete. They asked me about a month after my transplant if I would do it again, and I told them if you said I needed to start over again tomorrow I would be back in the room ready to do it all over again if needed. I'm just thankful that I'm here and doing good and having another day to continue the fight!
Well done Tyler. I am down for transplant in 6/8 weeks. 68 years old but fit. I am sceptical but also optimistic. In remission with negative mrd in connection with acute myeloid leukaemia. Been battling for 12 months❤ regards Dave 🇬🇧
I am around 80 days post allo BMT and can relate so much to your arrogance. In hindsight, my brain just refused to comprehend the life threatening situation. It felt like going through a curing therapy... Thanks for sharing and all the best to you!
My partner passed away a month ago after catching fungal pneumonia 2 months post his transplant 💔💔 My heart aches, but this popped up in my recommended and I am somewhat happy to hear there are good stories too. I just wish he never had the transplant tbh
I'm so sorry for your loss, and since I'll be having a stem cell transplant myself, it was also very sobering to both me and my sister, even though my sister and I are 57 and 56 respectively. Especially since she's a 100% match for me.
So glad to see you doing well! Mine was 28/5/2020 so one year behind you, I also got my cells from a German donor. I like your videos because I feel you always give great insights about being a patient and how to get through hard times
One of the deepest point for me was about the 60th day after BMT. Numbers weren’t great, needed IV products really often, so had to do another bone marrow test and my doctor said there’s some chance they’ll find cancer cells again…as you know(better than me), on this stage you can’t do too much. Chemo wasn’t really working for me and you can’t retry BMT that early. So they told me if they find any cancer cells, I only have 1-2months left. They promised me the results in 3days, but they sorted out really quickly, so had the result on the next day, no cancer cells. That 24hours seemed like a week…it was awful. I’m 36, and was lucky to see and live more than couple of guys over 60, but obviously I wanted to live more. I always LOVED Canada, so that point made it so clear, I can’t die anywhere else. In that 24hours we checked flight tickets and everything in case we have to rush. Luckily we aren’t in a rush, but it was a really big head up, you know when the life screams into your face, “MAN!!! GO BACK TO CANADA!!” :D At that point it’s really easy to see what you REALLY want. So hopefully we can sort that in 2-3years now and relocate :D
@@sparklejan3 yeah, doing much better, thank you. Physical recovery takes forever, it’s frustrating, eh. I used to be pretty fit, so it’s really annoying how weak I am. But at least out of the danger zone. Good luck to your sis!
Congratulation on completion of your two years transplant.. I am currently at day+50 after transplant. But still feeling weakness and tiredness. Hope I will be as fit as you soon. If you can do it.. I can too
Hi Tyler, I very much enjoyed hearing about your two year update. My wife had a stem cell transplant (post leukemia treatment diagnosed June 26, 2019) on September 28, 2019 so we are approaching her 2 year mark. She has spent about 6 months of those two years in the hospital. (17 days of those were this last December when she battled Covid with a compromised immune system). Anyway, I just wanted to say I have gained comfort in our situation by watching you go through what appears to be a very similar situation with such a positive attitude. You definitely have been a source of hope for me and so far she is doing great as well!
Hi B Moss. Thanks for sharing this. Sorry to hear your wife went through those 6 months but I hope she is doing better. It means a lot to hear you find hope in these videos, I really value hearing that. I am so happy for you and your wife to be approaching the two year mark though 🎉🎉🎉 All of my celebratory enthusiasm from Sydney I send to you both 😊
I'm 10 months post transplant. My transplant month in the hospital was a nightmare, with bowel incontinence and bleeding from my back side while having extremely low platelets and hemoglobin, requiring almost daily transfusions of both. I also had one dangerous infection for a few days. My appetite was terrible and through the entire process I lost 50 pounds, and that was after coming in with a very fit body. I still have some GVHD issues with regard to my GI system, but nothing too terrible. Had one hospital stay a month after the transplant stay for some GVHD issues, but that was only for a few days. Then I had another hospital stay for a few days that was 6 months post transplant, which was for a bad case of CMV because of my low white cell count. They gave me heavy doses of Foscarnet in the hospital and then for 3 weeks afterwards through an IV at home. Since then it has been pretty smooth, and my bone marrow biopsies have been clear so far.
@@TylerBlah I'm doing well thank you! I have some GHVD but managed with topical steroids, and my Dr is happy with a little bit of it to stop reoccurrence. Also dealing with fatigue so tricky to get back into working more hours. But, happy to be here!
I am a great fan of you and your chanel, love your energy and positivity. Congratulations! Been through BMT with my 5 years old daughter, two month ago.. after leukemia treatment. You gave me a lot of information and strenght. Wish you all the best in life! ❤️
I'm from Canada and start my first Chemo cycles in two weeks, then an eventual bone marrow transplant. I’m getting my first bone marrow biopsy next week. Thanks for the honest advice. Watching this video was very helpful.
Luv u, Luxeria! Your commentary is so smart and funny. It’s fascinating to watch these shows back after all this time. What a wild time in tv history and pop culture. Keep up the good work and please give Mr. Biscuits a kiss for me 🖤
Really enjoyed this. I’m an RN used to work at RPA in Heamatology & ED, now working at CINSW. Anyway, just discovered you on UA-cam and enjoyed watching a couple of your videos. My brother lost his best mate to leukaemia a year after finishing high school… and I don’t think we’ll ever be over the loss. You’ll make a great dr - you’re a good communicator, honest, kind & down to earth. I actually didn’t know Ricky Gervais had done that show. I loved watching ‘humanity’ - hilarious. All the best!
Hello Tyler, Hope you are doing well now.. actually I found your channel while trying to find some hope for my baby brother, he was 16 when he as diagnosed with Leukemia and it was one of the worst things that i have ever been through and I am talking about myself as his sister so I can't and won't be able to understand his struggle and his experience .. ever your videos have given me hope that he will overcome this challenge and he will be healthy again Just watching you thriving after what you've been through helps me .. a lot. I pray and I make dua' for my brother, for you and every cancer patient to heal, to survive and thrive and have a life full of joy and health Thank you Tyler.. again.
I was diagnosed with non-Hodgkin lymphoma in 2020. I had 6 rounds of chop chemotherapy and 4 rounds of a chemo drug injected into my spinal fluid. I was in remission for 6 months. Then the cancer came back and May 7, 2021 had bone marrow transplant. I went back to work after 4 months of my transplant and that was a mistake. Now I am over a year from my transplant and I still have what they call chemo brain and I I balance issues. I also have problems with not always be able to taste my food or it is does not taste the same. I had to quick working. I hope that all of the issues go away soon. I am so glad that you are doing great.
Congratulations 🌻🙏🎉 What a tremendous accomplishment. You must be so proud. I just hit my 6 months after BMT and in remission 🙏😀. I’m looking forward to celebrating 2 years. I am a person of faith so I feel so blessed. I just want to get on with my life and enjoy every minute🌻
My German husband worked for TimeMatters and delivered stem cells around the world. That’s how we met in Chicago. I distinctly remember that he told me that he liked the fact that his job had a social component to it.
@@TylerBlah I'm happy for you dude and the medical school thing wow I'm jealous but hey have you ever heard of actor Evan handler? (Sex and the city, Californication) he survived a long shot bone marrow transplant back in the 80s when he was in his twenties, this after doctors told him he only had 6 months... He's an inspiration too like you. How old are you again btw?
So stoked for you!! Love watching your videos so inspiring. Luckily I've know my donor my whole life as hes my brother. I'm 55 days my BMT I'm lots of ups downs. I was wondering if you would ever share your experiences with your diet, hygiene and Excercise (energy levels) post transplant?
Hey Raphael! Wow 55 days congrats. Yes ups and downs sounds like a great way to describe post transplant! I’d be very happy to share those elements after a transplant! Thanks for suggesting it. I’ll be sure to cover it 👍
Hello Tyler, I am very pleased to see you so happy. Thank you for the recommendation of the After Life show. I started watching it and you're right, it's very, very good. Pink really looks good on you.
Hello! Great videos, which I've only just found. I have Multiple Myeloma Cancer and had lots of chemo and then my BMT in December 2019. Like you, I too absolutely 'refused to accept the circumstances I was in', and was 100% compliant with everything the hospital asked me to do, and was 'determined' to do well after my transplant and not to relapse too fast. And yet I DID. I relapsed this April 2021, so I was only in remission for 16 months. And now I am back on 2 days of IV chemo each week. So I would gently say that one has to be a little careful about telling people that your spirit and 'strength' and determination and refusal to accept the circs you're in, have helped you to stay clear. Because, believe me, I have been determined, strong and brave too - and yet I relapsed after just 16 months. Just a thought....
Hi Sophie ! Thanks for sharing your experience with the BMT. Sorry to hear about the relapse, but glad to hear that treatment started back 👌 I remember when I relapsed for the first time, it was a crappy experience but being able to start back treatment straight away helped me deal with it personally. Thanks for raising an issue about the strength of spirit to refuse to give up, but it was more of a comment about my inspiration and motivation during treatment. Not a method that I attributed to causing anything for cure, only how it gave me the ability to deal with the big mental health issues that I personally faced and know many others face during too. Sorry if I came off differently in the video, just wanted to provide an answer to the question of inspiration that I often get asked. 👍😊 All my strength to you in this next stage Sophie 💪💪💙💙
@@TylerBlah thank you SO much for this insightful, compassionate and patient response! Ironically, it sounds actually as though we've dealt with what has been facing us, in incredibly similar ways. I think I was just having an evening of slight despair last night, at having relapsed post transplant so quickly, when I had been so full of optimism that I would be clear for at least two years! BUT really I have accepted it, and obviously still feel incredibly grateful for my transplant, and I am now getting on with the new rather brutal chemo regime and REMAIN hopeful. I have to tell you that your videos, which provide perspective from both a patient and a clinician's experience, all in one go, are the very BEST that I have found.
You're so amazing, and happy to see you doing so well. I am learning so much from you, and your such an incredible inspiration to other's that may be going through this same journey, or may know someone that is dealing with Cancer. I really love watching your videos, and pray that God will keep you safe, and bless you abundantly my dear. You're the best! 😁
So good to see positive outcomes...congratulations. Sitting in RPAH atm with hubby to see Venay. Bone marrow ransplant admission is next week. Just praying just done pet scans are all good.
Congrats! and please rest with this bug! I totally agree about AfterLife. I lost my husband to cancer and I was/am Ricky Gervais’ character. Most relatable cancer loss story I’ve seen.
Hey Tyler, congrats on becoming a doctor I know you’re going to help so many people. My name is Joshua Lincoln I was diagnosed with AML last November 2022 & I just did my transplant September 6th. Is there any advice you can give me?
As Dr. Blah said to you, I wish your son all the best and I hope he's doing well. I live in the US, so I'm sure there are some differences between protocols in Australia and here, but, my sister is my donor and she's a perfect match to me, but my sister and I are both in our late 50's, and she just had to have an emergency appendectomy and after that, she got very sick while visiting my father (he and I live about 6 miles from each other, but she was so sick that they rushed her to the ER here... that's how sick she was... she spent over a week in the hospital here and I felt terrible that I couldn't go visit her in the hospital, even though I only live about a quarter of a mile from the hospital here, but I'm extremely immunocompromised so we didn't think it was a good idea for me to be around a lot of sick people, including my sister... she was very understanding about it, though, and they finally released her today and her husband just came down to pick her up and take her home... they live in Atlanta, GA, USA, which is about 100 miles from where my father and I live). Anyway, again, my best to you and your son, and thank you for your vlog, Dr. Blah... I've followed you throughout your transplant journey in preparation for my upcoming stem cell transplant, and even though you're quite a bit younger than me and my sister, your positive attitude has gone a long way in preparing me for it... and I see by the date of this entry that you graduated and are now a doctor... thank you for becoming a doctor... on behalf of myself and all of the other people who dedicate their lives to medicine, be it as doctors, nurses, PA's, etc, thank you so much for doing so.
Thanks Tyler she has aml at 28 you feel so helpless with a young family been having chemo since April 2020 and getting so nuetropenic easily trying to get to have blueberry oatmilk honey smoothies to help her recover as she is lactose intolerant any advice appreciated all I know is she has the best strain of aml
I’m just starting to meet the transplant team here in the uk and I am completely starting to freak out after my consultant has told me about the survival rate😫😫
Yes I was in that position when first diagnosed. We were going to first try to just do chemo, but then needed to advance to a transplant. It was scary initially but I am so grateful to have been through it all 👌
I have ph+ ALL, go to Dana Farber in Boston and just passed Day +100. Good labs, zero leukemia and BCR/ABL detected at 100 day bone marrow biopsy. Chimerism on Day 30 was 84 (T cells)/100/97 and on Day 100 was 95/76/76. My team says not to be alarmed , that chimerism can be dynamic and they reduced immunosuppressives and say if this doesn't help it improve eventually we can consider DLI/stem cell boost. This process can be so nerve wracking but trying to focus on the zero leukemia!
I have ALL ph+ as well but I’ve been diagnosed 2 weeks ago and currently doing a experimental cure and not chemotherapy. I don’t know what to think honestly. I hope this works but I’ll probably have to do a transplant in the future. What was your experience with this cancer? Let me know. I’m from Italy and I don’t have anyone that I know that it’s going through what I’m going through. I would love to have a conversation with someone who did. Thank u very much if you’re going to text back. That would mean a lot and let me know also how your doing now! Lots of love
My brother recently had a transplant for MDS In February this years unfortunately after 2 months his chimerism dropped and drs think it failed, they are talking about a second transplant now. It is going to be difficult to watch him go through this again.
First of all congratulations praise God you’re a fighter I love your positive attitude. It’s amazing you’re amazing How did you get cancer after the transplant? How is that possible right after I would love to know I am currently battling AML and I’m holding off on a transplant right now I do to them, not finding any traces of leukemia in my bone marrow after my induction, and to consolidations but I do feel alone, and there’s so many people that has the same story or similar stories. It’s just would be nice to talk to somebody.
Hey, I hope you are doing well. I do understand how lonely it can get. I have AML and am suppose to go in for a transplant in some time. How have you been doing? And if you don't mind me asking, what is the reason for you to hold a transplant?
Hello i’m doing OK im doing good thank you I hope you are as well too at least as much as possible.. i’m sorry to hear that. what kind of aml do you have? They want to wait because I did all my chemo and they don’t see anything right now but things are in place to proceed with one if necessary I’ll find out more soon can I ask how old are you? I’m 39
Hey happy for you💝 I’m going to have my bone marrow Trasplant in a couple months after almost 8 years waiting! Finally my daughter going to be my donor!! Im happy but same time I’m scared any advice?
Congratulations! ❤ I hope everything goes well for you. I'm also going to be going for a BMT soon. If you don't mind me asking, how and why were you made to wait for 8 years? Were you on some medications for these years?
Hello from 🇨🇦 I am so impressed by your story. I have ALL with Philadelphia chromosome, I’m considered a rare case. I have done 4 intensive chemo rounds including intrathecal chemos. All went well!! I have met with the transplant team and they scared the heck out of me! I have another option which is to do a treatment given by MD Anderson in Texas. As a medical student you must know they are, the top in the world in dealing with leukaemia. The treatment is called BLINATUMUMAB. it’s been successful but still a young treatment and the outcome after 5 years is unknown. It is much less invasive then transplant, barely any side effects. I’m 51 with 5 kids and so afraid to die from transplant complications. My brother is my match, I fear the common problem with transplant graph vs host could happen. I’d love to hear your take on this. Wishing you a healthy continued success. You are extremely inspiring ❤️
Hi Maya Marshmallow! Yes I've heard of MD anderson. It's on a lot of the facebook groups I am in. It's super that your brother was your match. I can fully understand that GvHD is a scary concept to have to face, it was very difficult for me beforehand when I considered it. But I know in myself I knew I'd live with it, if it was the chance for a cure. And as I learnt from my experience, it doesn't always occur, as in my situation I did not get any GvHD.
I am really happy that it worked well for you. I personally couldn't face going through it in 2019 and still worry about going through it. I also live in Australia and the low chance of survival persuaded me at that time away from having chemo and a stem cell transplant for myeloma. Smouldering or otherwise. The medical system wanted to rush me through it and all I felt at the time about was similar to someone trying to push me off a cliff. So I moved in the other direction.
I’m in the same situation right now, I have started the process of the bmt just 2 days ago, I know I can still stop it, I’m more then scared im terrified. What if this cure is even worse than the cancer itself, is the prize to high? My head is gonna explode 😥, may I ask, how are u doing right now? Are u still here with us 😭😭😭? Please please be 🙏🏼
@@felix34jyg I am still alive.I haven't had any chemo or radiation. I was given a poor prognosis if I had treatment for myeloma 5 years ago. I still live with pain but I have to survive so I try to do what I can everyday to take my mind off of it and so far that is working. I ditched bad habits and have a healthier diet. Exercise hurts to begin with but helps in the long run. I took my chances and am still alive 5 years later.
Im só please you reached 2 years and I know you will meet your doner please god im now 6 years and going well I would love to meet my doner like you I have a second chance at life and so thankfully to that person so please keep well xgod bless
My family doc was told by hospital lab that they have detected Leukemia. So I don’t know what type or even if it’s 100% for sure, but I’m very scared. I want the bone marrow biopsy to be done already!
Hi,my brother has completed 170 days of bone marrow transplant everything was going very well I was going through ur vedios which gave me strength,but just a month ago my brother was covid positive which was again a very difficult time for us,his ct reports scoring 15/25 but by God grace he is doing again well but now dr said he is having lung fabrosis which is scarying is alot. Pls advice will this also go with time his medicines r continue for the disease dr said it will take time to recover from lung fabrosis and now is complaining that his heart beats is rising and a bit pain I am very much worried for him he is only 30 years old pls pls advice me
Hi Taiseen. This seems like a lot has been happening for you and your brother ! Very sorry to hear about that. It is very much as the doctor said to you with time it will get better. Sending all my strength to you both in this. Always feel free to pop by and send a message! 😊
Bro I am having chills , night sweats and body ache from 2 months really frustrated and with fatigue too , lymph node biopsy was normal blood counts are normal what should I do sir I am feeling like dying
I have lymphoma they gave me chemotherapy for it and then it killed my bone morrow now I need a transplant platetes and blood always low but sometimes stays stable my sister might be my donor she’s 50 percent for it it’s crazy to hear u got lymphoma after the transplant Sadly for me there’s no 100% of math for me my sister is barely 50%
I am a couple months away from receiving my sister's bone marrow... I'm not stoked to be in the position where I have to have a caretaker during the whole process. We'll have to relocate to a bigger city than where we currently live, to be local to the hospital that treats leukemia. Did you have to move closer to the hospital that treats your disease?
Where in the video do you answer "what they don't tell you"? Watched a few seconds and stopped because I realized it was going to take you awhile to answer.
I had my bone marrow transplant when I was 5 years old. Now I am 33. Praise be to our Lord Jesus Christ who saves life and great healer. All praises to Him.
My mom was diagnosed and passed after around 8 months of fighting. She had a 100% stem cell sibling match, we had so much hope that she had all the odds on her side. Unfortunately she faced every side effect, every bad thing you hope doesn’t happen and in the end the transplant failed. I have been destroyed since loosing her, she was only 64 years old and still had so much life to live. We had so much faith she was going to survivor that we never discussed the possibility of her passing, what her wishes may be, or to say goodbye. Something we really wish we had done even though it was going to be extremely difficult. I’m so happy you beat this and I can only imagine the joy you and your family feel. All the best and so much love to you 💙
Your story is very similar to mine and my sister's, as she is a 100% match and is my donor. I'm so sorry for your loss. I'm 57 and my sister is 56, so it hit very close to home for me.
I have AML, and I am almost six months post-transplant. I spent most of my post-BMT time in the hospital due to the side effects of the transplant and GVHD. My experience so far has been a lot of bumps, but I see better days ahead; I pray we all get to celebrate 12,24 months and even 50+ years of Remission .
Thank you for sharing !
Congratulations on six months post transplant!
How are you doing now my friend, I'm like J-10 before transplant
Congratulations Blah. we beat this. I'm 24 months post transplant too. I'm happy we beat this and I'm praying and hoping every other person fighting this evil disease beats it too. You have got this! I love you all. Eldora from Nigeria
Hello Miz_eldy. I really would appreciate if you can share with me your journey through the BMT process, what it was like, if there were any complications, anything to look out for, what hospital did you do yours, in what country and just anything that can help guide me through a successful BMT transplant as I am considering getting a transplant done.
I really look forward to hearing from you, from a fellow Nigerian.
@@able8362plz pray for my son 16 years next month is his BMT my elder son is the donor full Match plz pray for him it should b sucess BMT😢
@@sameerakhan6710 I'll put your son in my prayers and also my Laylatul Qadr prayers in the last 10 days of the Holy month of Ramadan. May God make the BMT process a success and may He grant your son perfect healing and health afterwards 🙏🏽
Congratulations! It's been over 13 years since I had an allogenic bone marrow transplant August 2009 for AML. It even changed my blood type from O negative to B positive. The GVHD went away after a year. Touch and go for the first two years but everything returned to normal so no more meds needed and no more cancer. Thanks for sharing!
That’s amazing news !! Congratulations and thanks for sharing
So incredibly happy for you.
My best friend was about your age when she had her bone marrow transfer. Complete success, she’s 26 years post transplant now, happy, healthy, fit and freaking fabulous!
I am 35 years Post BMT. Thanks for sharing your journey.
About to start my 4th chemo treatment and by the end of the month starting the transplant! Ive been hesitant to look up to many videos but you did an amazing job! Hope you know you've been an inspiration for me and I'm sure many others out there! Thank you for sharing your experience with us!
How are you doing now?
I'm J-10 ALLO TRANSPLANT
@@badbarry5401 I'm 222 days post transplant right now. Honestly it's going better than I could have hoped for
@@badbarry5401 I'm still going through maintenance chemo right now, and I believe I've got 16 or 17 months left until that is complete. They asked me about a month after my transplant if I would do it again, and I told them if you said I needed to start over again tomorrow I would be back in the room ready to do it all over again if needed. I'm just thankful that I'm here and doing good and having another day to continue the fight!
Well done Tyler. I am down for transplant in 6/8 weeks. 68 years old but fit. I am sceptical but also optimistic. In remission with negative mrd in connection with acute myeloid leukaemia. Been battling for 12 months❤ regards Dave 🇬🇧
I am around 80 days post allo BMT and can relate so much to your arrogance. In hindsight, my brain just refused to comprehend the life threatening situation. It felt like going through a curing therapy... Thanks for sharing and all the best to you!
My partner passed away a month ago after catching fungal pneumonia 2 months post his transplant 💔💔 My heart aches, but this popped up in my recommended and I am somewhat happy to hear there are good stories too. I just wish he never had the transplant tbh
So sorry for your loss 🙏
I'm so sorry for your loss, and since I'll be having a stem cell transplant myself, it was also very sobering to both me and my sister, even though my sister and I are 57 and 56 respectively. Especially since she's a 100% match for me.
You and your donor can be so proud of you❤❤ Thank you to all the donors for saving lives!
So glad to see you doing well! Mine was 28/5/2020 so one year behind you, I also got my cells from a German donor. I like your videos because I feel you always give great insights about being a patient and how to get through hard times
One of the deepest point for me was about the 60th day after BMT. Numbers weren’t great, needed IV products really often, so had to do another bone marrow test and my doctor said there’s some chance they’ll find cancer cells again…as you know(better than me), on this stage you can’t do too much. Chemo wasn’t really working for me and you can’t retry BMT that early. So they told me if they find any cancer cells, I only have 1-2months left. They promised me the results in 3days, but they sorted out really quickly, so had the result on the next day, no cancer cells. That 24hours seemed like a week…it was awful. I’m 36, and was lucky to see and live more than couple of guys over 60, but obviously I wanted to live more. I always LOVED Canada, so that point made it so clear, I can’t die anywhere else. In that 24hours we checked flight tickets and everything in case we have to rush. Luckily we aren’t in a rush, but it was a really big head up, you know when the life screams into your face, “MAN!!! GO BACK TO CANADA!!” :D At that point it’s really easy to see what you REALLY want.
So hopefully we can sort that in 2-3years now and relocate :D
How are you? My sister is doing a bone marrow soon. I just read your post. I hope everything is well with you.❤
@@sparklejan3 yeah, doing much better, thank you. Physical recovery takes forever, it’s frustrating, eh. I used to be pretty fit, so it’s really annoying how weak I am. But at least out of the danger zone.
Good luck to your sis!
Congratulation on completion of your two years transplant..
I am currently at day+50 after transplant. But still feeling weakness and tiredness. Hope I will be as fit as you soon. If you can do it.. I can too
Hi Tyler, I very much enjoyed hearing about your two year update. My wife had a stem cell transplant (post leukemia treatment diagnosed June 26, 2019) on September 28, 2019 so we are approaching her 2 year mark. She has spent about 6 months of those two years in the hospital. (17 days of those were this last December when she battled Covid with a compromised immune system). Anyway, I just wanted to say I have gained comfort in our situation by watching you go through what appears to be a very similar situation with such a positive attitude. You definitely have been a source of hope for me and so far she is doing great as well!
Hi B Moss. Thanks for sharing this. Sorry to hear your wife went through those 6 months but I hope she is doing better. It means a lot to hear you find hope in these videos, I really value hearing that. I am so happy for you and your wife to be approaching the two year mark though 🎉🎉🎉 All of my celebratory enthusiasm from Sydney I send to you both 😊
@@TylerBlah Thanks again from Lehi, Utah, USA
I'm 10 months post transplant. My transplant month in the hospital was a nightmare, with bowel incontinence and bleeding from my back side while having extremely low platelets and hemoglobin, requiring almost daily transfusions of both. I also had one dangerous infection for a few days. My appetite was terrible and through the entire process I lost 50 pounds, and that was after coming in with a very fit body. I still have some GVHD issues with regard to my GI system, but nothing too terrible. Had one hospital stay a month after the transplant stay for some GVHD issues, but that was only for a few days. Then I had another hospital stay for a few days that was 6 months post transplant, which was for a bad case of CMV because of my low white cell count. They gave me heavy doses of Foscarnet in the hospital and then for 3 weeks afterwards through an IV at home. Since then it has been pretty smooth, and my bone marrow biopsies have been clear so far.
Thank you for sharing
I'm 5 months post allo bmt, this randomly popped up in my feed. this was heartwarming! thanks!
Congrats on 2 years! And on almost becoming a Dr - a great achievement.
I'll be two years in October.
Wow in October! Please come back and update me how you are then! How are you going now ?
@@TylerBlah I'm doing well thank you! I have some GHVD but managed with topical steroids, and my Dr is happy with a little bit of it to stop reoccurrence. Also dealing with fatigue so tricky to get back into working more hours. But, happy to be here!
@@sophiegrayyoga3229 yes the fatigue is very difficult. It does improve over time, but is definitely present !!
Scheduled to start my BMT 9/12/22. Scared but ready at the same time. Ready for the fight. I know I have this ( God not finish with me).
I am a great fan of you and your chanel, love your energy and positivity. Congratulations! Been through BMT with my 5 years old daughter, two month ago.. after leukemia treatment. You gave me a lot of information and strenght. Wish you all the best in life! ❤️
I am so happy you found the information here useful and it helped you. I hope that your daughter is going well now/she is getting better every day 💪
Thank you so much for sharing. My husband had his BMT yesterday so I am watching you to get encouragement. You rock!
Hope all is going well. My husband is scheduled for Oct 3rd.
I'm from Canada and start my first Chemo cycles in two weeks, then an eventual bone marrow transplant. I’m getting my first bone marrow biopsy next week. Thanks for the honest advice. Watching this video was very helpful.
All the best for your treatment coming soon
I am so happy that you are going to be a doctor and you have beat cancers butt. Congratulations 👍🎊
Thanks Barb 😊
Luv u, Luxeria! Your commentary is so smart and funny. It’s fascinating to watch these shows back after all this time. What a wild time in tv history and pop culture. Keep up the good work and please give Mr. Biscuits a kiss for me 🖤
Really enjoyed this. I’m an RN used to work at RPA in Heamatology & ED, now working at CINSW. Anyway, just discovered you on UA-cam and enjoyed watching a couple of your videos. My brother lost his best mate to leukaemia a year after finishing high school… and I don’t think we’ll ever be over the loss. You’ll make a great dr - you’re a good communicator, honest, kind & down to earth. I actually didn’t know Ricky Gervais had done that show. I loved watching ‘humanity’ - hilarious. All the best!
Hello Tyler,
Hope you are doing well now.. actually I found your channel while trying to find some hope for my baby brother, he was 16 when he as diagnosed with Leukemia and it was one of the worst things that i have ever been through and I am talking about myself as his sister so I can't and won't be able to understand his struggle and his experience .. ever
your videos have given me hope that he will overcome this challenge and he will be healthy again
Just watching you thriving after what you've been through helps me .. a lot.
I pray and I make dua' for my brother, for you and every cancer patient to heal, to survive and thrive and have a life full of joy and health
Thank you Tyler.. again.
I am on my day 5 of transplant, feel terrible now. But thank you for your video today, I will not let it beat me.
Yes day 5 is very early days! With time it always tends to get better 👌💪💪
You are an amazing soul. It’s an honour to have the opportunity to work with you 💙
I was diagnosed with non-Hodgkin lymphoma in 2020. I had 6 rounds of chop chemotherapy and 4 rounds of a chemo drug injected into my spinal fluid. I was in remission for 6 months. Then the cancer came back and May 7, 2021 had bone marrow transplant. I went back to work after 4 months of my transplant and that was a mistake. Now I am over a year from my transplant and I still have what they call chemo brain and I I balance issues. I also have problems with not always be able to taste my food or it is does not taste the same. I had to quick working. I hope that all of the issues go away soon. I am so glad that you are doing great.
How are you doing now?
@@shubhanksharma4179 i am in complete remission.
Well Done , my brother I’m so happy for you. Going to get a bone marrow biopsy soon, had JAK2 mutation in my bloods. Let’s see 🤞. From Sydney too
Congratulations 🌻🙏🎉 What a tremendous accomplishment. You must be so proud.
I just hit my 6 months after BMT and in remission 🙏😀. I’m looking forward to celebrating 2 years.
I am a person of faith so I feel so blessed. I just want to get on with my life and enjoy every minute🌻
Wow 6 months that’s great. That’s definitely worth a celebration! 🎉🎊
I’m day 2 of bmt transplant for ALL. Hope all goes well for me. I congratulate you
I hope you are managing your symptoms well !
@@TylerBlah hey bro I'm complete my +48
So good to see you Tyler. God bless and best of health. You are the best.🙏😘👍
My German husband worked for TimeMatters and delivered stem cells around the world. That’s how we met in Chicago. I distinctly remember that he told me that he liked the fact that his job had a social component to it.
Thats so great to hear! And impressed to hear thats how you ended up meeting one another :D
Congrats on such a huge milestone!
Thanks ! 😊
@@TylerBlah I'm happy for you dude and the medical school thing wow I'm jealous but hey have you ever heard of actor Evan handler? (Sex and the city, Californication) he survived a long shot bone marrow transplant back in the 80s when he was in his twenties, this after doctors told him he only had 6 months... He's an inspiration too like you. How old are you again btw?
@@starvingartist535 I will have to look him up and read about him! And I’m 26 😊
Happy Aniversary Tyler and great joydul celebration. 🙏😘👍
Congratulations Tyler, excellent news 👏. Also how fantastic that in no more than 7 months you will have completed your medical training, well done!
I had my bonmarow transplant 29th of November just 3 months now long to go and ur right only is have patience.
So stoked for you!!
Love watching your videos so inspiring. Luckily I've know my donor my whole life as hes my brother.
I'm 55 days my BMT I'm lots of ups downs. I was wondering if you would ever share your experiences with your diet, hygiene and Excercise (energy levels) post transplant?
Hey Raphael! Wow 55 days congrats. Yes ups and downs sounds like a great way to describe post transplant! I’d be very happy to share those elements after a transplant! Thanks for suggesting it. I’ll be sure to cover it 👍
Congratulations on 2 yrs and yes how amazing would it be to meet your donor🙂
It would be the greatest thing ever !
Hello Tyler, I am very pleased to see you so happy. Thank you for the recommendation of the After Life show. I started watching it and you're right, it's very, very good. Pink really looks good on you.
Hello! Great videos, which I've only just found. I have Multiple Myeloma Cancer and had lots of chemo and then my BMT in December 2019. Like you, I too absolutely 'refused to accept the circumstances I was in', and was 100% compliant with everything the hospital asked me to do, and was 'determined' to do well after my transplant and not to relapse too fast. And yet I DID. I relapsed this April 2021, so I was only in remission for 16 months. And now I am back on 2 days of IV chemo each week. So I would gently say that one has to be a little careful about telling people that your spirit and 'strength' and determination and refusal to accept the circs you're in, have helped you to stay clear. Because, believe me, I have been determined, strong and brave too - and yet I relapsed after just 16 months. Just a thought....
Hi Sophie ! Thanks for sharing your experience with the BMT. Sorry to hear about the relapse, but glad to hear that treatment started back 👌 I remember when I relapsed for the first time, it was a crappy experience but being able to start back treatment straight away helped me deal with it personally.
Thanks for raising an issue about the strength of spirit to refuse to give up, but it was more of a comment about my inspiration and motivation during treatment. Not a method that I attributed to causing anything for cure, only how it gave me the ability to deal with the big mental health issues that I personally faced and know many others face during too. Sorry if I came off differently in the video, just wanted to provide an answer to the question of inspiration that I often get asked. 👍😊 All my strength to you in this next stage Sophie 💪💪💙💙
@@TylerBlah thank you SO much for this insightful, compassionate and patient response! Ironically, it sounds actually as though we've dealt with what has been facing us, in incredibly similar ways. I think I was just having an evening of slight despair last night, at having relapsed post transplant so quickly, when I had been so full of optimism that I would be clear for at least two years! BUT really I have accepted it, and obviously still feel incredibly grateful for my transplant, and I am now getting on with the new rather brutal chemo regime and REMAIN hopeful. I have to tell you that your videos, which provide perspective from both a patient and a clinician's experience, all in one go, are the very BEST that I have found.
Yeah it’s not in our hqnds
You're so amazing, and happy to see you doing so well. I am learning so much from you, and your such an incredible inspiration to other's that may be going through this same journey, or may know someone that is dealing with Cancer. I really love watching your videos, and pray that God will keep you safe, and bless you abundantly my dear. You're the best! 😁
Thanks for the support so much Jeni! It means a lot that it can help you learn more about it 😊😊
So good to see positive outcomes...congratulations.
Sitting in RPAH atm with hubby to see Venay.
Bone marrow ransplant admission is next week.
Just praying just done pet scans are all good.
I don’t know you but I watched all your videos and I’m so proud of you❤️
Thanks so much Valeria 😊
Congrats! and please rest with this bug! I totally agree about AfterLife. I lost my husband to cancer and I was/am Ricky Gervais’ character. Most relatable cancer loss story I’ve seen.
Thanks for sharing Alison. Yes it’s incredible how relatable the whole show is
Hey Tyler, congrats on becoming a doctor I know you’re going to help so many people. My name is Joshua Lincoln I was diagnosed with AML last November 2022 & I just did my transplant September 6th. Is there any advice you can give me?
Hi! Thank you Tyler for your videos! So inspiring.
At the moment I'm waiting for the match and then BMT.
Have you met your donor?
Congratulations!!
Thank you!!
Congratulations love your positive attitude Lots of love ❤️ 🥰
Thanks Miriam :)
My son had his BMT yesterday. I felt how sad and afraid he was but he tried not to show it. He's only 11 and he's so tough.
All my strength to your son
As Dr. Blah said to you, I wish your son all the best and I hope he's doing well. I live in the US, so I'm sure there are some differences between protocols in Australia and here, but, my sister is my donor and she's a perfect match to me, but my sister and I are both in our late 50's, and she just had to have an emergency appendectomy and after that, she got very sick while visiting my father (he and I live about 6 miles from each other, but she was so sick that they rushed her to the ER here... that's how sick she was... she spent over a week in the hospital here and I felt terrible that I couldn't go visit her in the hospital, even though I only live about a quarter of a mile from the hospital here, but I'm extremely immunocompromised so we didn't think it was a good idea for me to be around a lot of sick people, including my sister... she was very understanding about it, though, and they finally released her today and her husband just came down to pick her up and take her home... they live in Atlanta, GA, USA, which is about 100 miles from where my father and I live). Anyway, again, my best to you and your son, and thank you for your vlog, Dr. Blah... I've followed you throughout your transplant journey in preparation for my upcoming stem cell transplant, and even though you're quite a bit younger than me and my sister, your positive attitude has gone a long way in preparing me for it... and I see by the date of this entry that you graduated and are now a doctor... thank you for becoming a doctor... on behalf of myself and all of the other people who dedicate their lives to medicine, be it as doctors, nurses, PA's, etc, thank you so much for doing so.
Great attitude Dr. Blah!
Best success my neice has to go through this soon
All my strength to your niece in this next stage 👌👍
Thanks Tyler she has aml at 28 you feel so helpless with a young family been having chemo since April 2020 and getting so nuetropenic easily trying to get to have blueberry oatmilk honey smoothies to help her recover as she is lactose intolerant any advice appreciated all I know is she has the best strain of aml
I go in for a bone marrow transplant mid Dec. AML FLT3-IDK and TK mutation. Scared to death but glad to be getting it over with at the same time
Im so happy for you
Congratulations❤
I’m just starting to meet the transplant team here in the uk and I am completely starting to freak out after my consultant has told me about the survival rate😫😫
Lymphoma after BMT!? That caught me off guard. How does that work and did it go away?
I have a AML and that's my first chemotherapy I'm going through right now and they're thinking about doing bone marrow transplant after that
Yes I was in that position when first diagnosed. We were going to first try to just do chemo, but then needed to advance to a transplant. It was scary initially but I am so grateful to have been through it all 👌
I have ph+ ALL, go to Dana Farber in Boston and just passed Day +100. Good labs, zero leukemia and BCR/ABL detected at 100 day bone marrow biopsy. Chimerism on Day 30 was 84 (T cells)/100/97 and on Day 100 was 95/76/76. My team says not to be alarmed , that chimerism can be dynamic and they reduced immunosuppressives and say if this doesn't help it improve eventually we can consider DLI/stem cell boost. This process can be so nerve wracking but trying to focus on the zero leukemia!
Hw r u now???? Any update u can give
I have ALL ph+ as well but I’ve been diagnosed 2 weeks ago and currently doing a experimental cure and not chemotherapy. I don’t know what to think honestly. I hope this works but I’ll probably have to do a transplant in the future.
What was your experience with this cancer? Let me know. I’m from Italy and I don’t have anyone that I know that it’s going through what I’m going through. I would love to have a conversation with someone who did.
Thank u very much if you’re going to text back. That would mean a lot and let me know also how your doing now!
Lots of love
My brother recently had a transplant for MDS In February this years unfortunately after 2 months his chimerism dropped and drs think it failed, they are talking about a second transplant now. It is going to be difficult to watch him go through this again.
That really would be very difficult. I send all of my strength to you and your brother! I hope this second one is the one to achieve it 👌
I hope it goes well, we are in day 8 now with my cousin. I wish a revolution to take place in this world and all will be well.
First of all congratulations praise God you’re a fighter I love your positive attitude. It’s amazing you’re amazing How did you get cancer after the transplant? How is that possible right after I would love to know I am currently battling AML and I’m holding off on a transplant right now I do to them, not finding any traces of leukemia in my bone marrow after my induction, and to consolidations but I do feel alone, and there’s so many people that has the same story or similar stories. It’s just would be nice to talk to somebody.
Hey, I hope you are doing well. I do understand how lonely it can get. I have AML and am suppose to go in for a transplant in some time. How have you been doing? And if you don't mind me asking, what is the reason for you to hold a transplant?
Hello i’m doing OK im doing good thank you I hope you are as well too at least as much as possible.. i’m sorry to hear that. what kind of aml do you have? They want to wait because I did all my chemo and they don’t see anything right now but things are in place to proceed with one if necessary I’ll find out more soon can I ask how old are you? I’m 39
Hey happy for you💝 I’m going to have my bone marrow Trasplant in a couple months after almost 8 years waiting! Finally my daughter going to be my donor!! Im happy but same time I’m scared any advice?
Congratulations! ❤ I hope everything goes well for you. I'm also going to be going for a BMT soon. If you don't mind me asking, how and why were you made to wait for 8 years? Were you on some medications for these years?
Hello from 🇨🇦 I am so impressed by your story. I have ALL with Philadelphia chromosome, I’m considered a rare case. I have done 4 intensive chemo rounds including intrathecal chemos. All went well!! I have met with the transplant team and they scared the heck out of me! I have another option which is to do a treatment given by MD Anderson in Texas. As a medical student you must know they are, the top in the world in dealing with leukaemia. The treatment is called BLINATUMUMAB. it’s been successful but still a young treatment and the outcome after 5 years is unknown. It is much less invasive then transplant, barely any side effects. I’m 51 with 5 kids and so afraid to die from transplant complications.
My brother is my match, I fear the common problem with transplant graph vs host could happen. I’d love to hear your take on this. Wishing you a healthy continued success. You are extremely inspiring ❤️
Hi Maya Marshmallow! Yes I've heard of MD anderson. It's on a lot of the facebook groups I am in. It's super that your brother was your match. I can fully understand that GvHD is a scary concept to have to face, it was very difficult for me beforehand when I considered it. But I know in myself I knew I'd live with it, if it was the chance for a cure. And as I learnt from my experience, it doesn't always occur, as in my situation I did not get any GvHD.
I am really happy that it worked well for you. I personally couldn't face going through it in 2019 and still worry about going through it. I also live in Australia and the low chance of survival persuaded me at that time away from having chemo and a stem cell transplant for myeloma. Smouldering or otherwise. The medical system wanted to rush me through it and all I felt at the time about was similar to someone trying to push me off a cliff. So I moved in the other direction.
I’m in the same situation right now, I have started the process of the bmt just 2 days ago, I know I can still stop it, I’m more then scared im terrified. What if this cure is even worse than the cancer itself, is the prize to high? My head is gonna explode 😥, may I ask, how are u doing right now? Are u still here with us 😭😭😭? Please please be 🙏🏼
@@felix34jyg I am still alive.I haven't had any chemo or radiation. I was given a poor prognosis if I had treatment for myeloma 5 years ago. I still live with pain but I have to survive so I try to do what I can everyday to take my mind off of it and so far that is working. I ditched bad habits and have a healthier diet. Exercise hurts to begin with but helps in the long run. I took my chances and am still alive 5 years later.
@@felix34jyg ask as many questions as you can and work out which way leads more towards life and follow that.
Hello sir! Thank you so much for your videos. I hope you’re doing well! Are you still on any meds? Can you go out in the sun?
Hey tyler, i am about to go through a bmt in two months i was wondering what type of match did you have with the donor, haploid, full or complete
I’m afraid… I have ALL and my transplant is next week
Im só please you reached 2 years and I know you will meet your doner please god im now 6 years and going well I would love to meet my doner like you I have a second chance at life and so thankfully to that person so please keep well xgod bless
My family doc was told by hospital lab that they have detected Leukemia. So I don’t know what type or even if it’s 100% for sure, but I’m very scared. I want the bone marrow biopsy to be done already!
Hi,my brother has completed 170 days of bone marrow transplant everything was going very well I was going through ur vedios which gave me strength,but just a month ago my brother was covid positive which was again a very difficult time for us,his ct reports scoring 15/25 but by God grace he is doing again well but now dr said he is having lung fabrosis which is scarying is alot. Pls advice will this also go with time his medicines r continue for the disease dr said it will take time to recover from lung fabrosis and now is complaining that his heart beats is rising and a bit pain I am very much worried for him he is only 30 years old pls pls advice me
Hi Taiseen. This seems like a lot has been happening for you and your brother ! Very sorry to hear about that. It is very much as the doctor said to you with time it will get better. Sending all my strength to you both in this. Always feel free to pop by and send a message! 😊
Hello my friend how you brother is doing now?
I'm J-10 Transplant
Bro I am having chills , night sweats and body ache from 2 months really frustrated and with fatigue too , lymph node biopsy was normal blood counts are normal what should I do sir I am feeling like dying
How are you doing now?
…..accomplishment on medical school and beating cancer.
Yes they’re two things I am very proud of
great news
Thanks Js 😊😊
In which hospital you did it?
We are also with you we were suffered this
You look amazing 😀
Thanks Lynn 😊
I have lymphoma they gave me chemotherapy for it and then it killed my bone morrow now I need a transplant platetes and blood always low but sometimes stays stable my sister might be my donor she’s 50 percent for it it’s crazy to hear u got lymphoma after the transplant Sadly for me there’s no 100% of math for me my sister is barely 50%
My son is due to have one I'm so scared, he also has AML.
Hubby is 9 years post transplant
Hey hello do you take sprycel ?
For my specific type it was not needed 👌
What are the risk
Where are you in your Cancer treatment ? What are your questions? 👌🙌🤔
ill be getting a autologous transplant soon for lymphoma hopefully everything goes well with relatively few symptoms. wish me well friends 😅
@@Ventus_Wraith all my strength to you in this next stage 💪
I am a couple months away from receiving my sister's bone marrow...
I'm not stoked to be in the position where I have to have a caretaker during the whole process. We'll have to relocate to a bigger city than where we currently live, to be local to the hospital that treats leukemia.
Did you have to move closer to the hospital that treats your disease?
Is he still alive?
Where in the video do you answer "what they don't tell you"? Watched a few seconds and stopped because I realized it was going to take you awhile to answer.
Is this guy alive
Blink?? 😂😂😂
Of course!! Is there anyone else ? 😅
God did not you but congrats and live you beat life
Venetoclax look it up it's a great drug my mother is currently on it!
God bless you❤