Help us find a CURE for MPS 1- Hurler Syndrome

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  • Опубліковано 20 січ 2025

КОМЕНТАРІ • 1

  • @narcissaclink3653
    @narcissaclink3653 5 років тому +2

    I cry I was told my oldest expected life expectancy is 10 hes 8. He has a 14th chromosome deletion that doesn't have a name. No support at all.