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I happen to accidentally see your video and started watching all of them absolutely love your family

How do you fiffer from hunter complex mos only biochemistry underdtandd

Merry Christmas, my grandma was Dollie Ladd.

I'm in New Zealand and my daughter has Hurler Syndrome. We are day +125 post transplant and she's doing really well and has just today come off all her meds and things are looking really positive. It's good to follow along on your journey of someone who is well ahead of us on their journey with Hurler as we honestly have no idea what to expect, but we know this is just part of our life now. Thank you for sharing your journey ❤❤

I want to donate

Seriously I wanted to know what this disease was not your life story!

These parents should be part of the Courageous Parents Network. God has blessed your two babies with wonderful parents who will make their lives happy and full no matter the lifespan. Those babies are adorable. There is time and I hope treatments and cures can be found. With two children with health problems, there is little time to post videos.

If we had universal healthcare in this country you wouldn’t have to raise money to pay for hospital bills. Wish your little girl the very best

My newborn the doctor said he has, now we waiting for the genetic test, my older maybe have autism, my grandpa is dying of cancer, and I was supposed to abandon my Lord and savior but it get more and more close to him, May God bless your Family ❤

I am really! So very sorry for your loss 😢💔 even though it was a long time ago

I am sending out my thoughts and prayers and love to this whole family ❤

I have to tell you that this was the worst video you have done. The kids noise was impossible to hear you with! It was a very obnoxious and it drove me right of the video. Please try to make it more conducive to hearing for my old ears. I love you and pray for you, please keep us up to date.

I think it would be good to meet you since I have a medical disabilities and think meeting you would be very helpful to help with my disability and starting a non-profit program for people with dofffersmt disorders and what they need

Love your familymily gGod bless!😊

She’s an amazing little girl even though she had this done four yrs ago! God bless your family always!

Wow! what a journey!!!

God Bless you guys!

Put me in your belly June Sunday ok

❤❤❤

We lost a grandson to hurlers syndrome about 30 years ago

I love how raw and real you are. It is refreshing! Don’t edit! And you have a serious personality. I get it. God bless your sweet family!

Prayers for your precious babies and your family in Jesus name 🙏🏻🙏🏻🙏🏻

Praying very hard for a cure guys.

THE TRAGIC LIFE OF KATHY THUREEN

I hope your kids is are a little better

hey I really hope your kids get better

Hi-! Our Child Is Diagnosed With Hurler Syndrome… He Is 3 Years Old-! We Are Worry About Him -! Can You Please Do Us A Favour The Disease-!

A friend of mine has 2 kids with the same names!

Why were the doctors worried about Kennedy’s ovaries if she wasn’t supposed to live past ten years?

My granddaughter was just diagnosed with MPS-1. She was diagnosed at about a week old. I am just wondering what this process is going to be like any advice any help we would appreciate 🙏 thank you for sharing your journey.

Ryan u seem so personable!! Nice to see that u can smile and get thru these conversations and maintain a sense of happiness.

As I watched these videos I can help but see straight misery on Allies face. Ryan is VERY personable and he has an open welcoming voice.

Just found your channel. Prayers for you all.

Never give up. When you kneel down to God, He stands up for you.

I I have a 7 year old with this diagnosis, I just had a baby 2weeks ago and they’re saying that he has this disorder at first I was heartbroken, but now I’m just waiting to see what the creato has in store

Just found your channel and subscribed. I pray God's blessings for your family. He's always there when we need Him.

So will all your children have hurlers?

Did you know that your other child could possibly have hurlers?

Hello Folks !! 🙋🏻 Just found your vids today. My nieces baby boy has been diagnosed with Hurler’s. He’s 3 mos. old today & receiving his 3rd enzyme infusion. We’re all awaiting his transplant journey & ‘learning’ as much as we can. Thanks for your candid approach & courage to share your journey with Kennedy. I’m looking fwd. to watching more. btw - I love your advice about asking forgiveness rather than permission - it’s my standard rule of thumb!! 😁 🌸💜✨

Praying for your family found you today and started following I don't know exactly where you live but I live in Livingston about 25 miles from cookeville bless you all

Hey guys. Praying for you. We are neighbors. I'm in Jamestown.

Not terminal u idiots

My daughter had the bone marrow transplant. She's now a happy 9 year old.

I am so grateful that you have faith in Jesus, you are so special and loved. I am so thankful you are a firefighter. So is my son-in-law and I pray that you can support him.

Who ever gave this a thumbs down has no heart.

I am sending you both love. These videos are so important. Thank you so much for taking the time to film this. Our grandson was being tested for Downs. How I wish it had been Downs. The MPS 1 Hurlers diagnosis has been the hardest thing we have had to face. Thank you so much again. You are so courageous!

For the shirts,how about doing the shirts in Kennedy and Lincolns favorite colors.