Ally Hilfiger on Lyme Disease
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- Опубліковано 30 чер 2016
- Author, artist and designer Ally Hilfiger, the daughter of fashion icon Tommy Hilfiger, reflects on how Lyme disease stole her childhood, and her mind after being committed to a psychiatric hospital!
![ПОЛНАЯ ИСТОРИЯ ЭКЗОРЦИЗМА [Топ Сикрет]](http://i.ytimg.com/vi/qBySr6Bt0B8/mqdefault.jpg)
"It can kill your soul... Its lonely" Truer words were never spoken. Perfect description. We need more celebrities to bring awareness to Lymes
The Officially Ignored Link Between Lyme Disease and Plum Island - Truth Stream Media
no help your on your own .. i found shit that smoked it imedatly .. desperation ... lol
instaBlaster.
@@cowpoke02 Which shit specifically?
Years of telling me I'm treatment resistant bipolar and now found out positive late stage Lyme
As a person battling with Lyme and finally diagnosed after over 15 years I GET YOU. Thank you of speaking out!
She verbalizes what we go through so eloquently. I'm reading her book right now, called Bite Me.....very well written. I'm so grateful that she is using her celebrity for Lyme Disease awareness and activism. God Bless, Ally. 💗
the disease is finished.
ua-cam.com/video/vhZomhBgJ2s/v-deo.html
@Ivan Poohbear thx thats interesting
why is it called bite me? just askin because avril lavigne had lyme disease and her new song is called bite me
The problem is that unless you are rich you can’t get treatment. Been fighting this crap for 30 years and can’t get help. All sorts of doctors, naturopaths, chiropractors, functional med docs, etc all ready to help… but ONLY if you have a ton of money. Only difference between Ally and myself is she’s got money and I don’t.. which means I’m stuck getting sicker and trying to not die before I can raise my child.
I have it now. This video. This is me. I'm in horrid pain, EXTREME FATIGUE, my blood pressure is extremely low and my pulse is high. It does kill your soul. She is so on point with this description of what Lyme disease does to your physical, mental and emotional state.
I was constantly called lazy by my family and friends, no one would believe that I felt exhausted. I had the bulls eye rash but never knew it was a sign of Lyme.
@jenni andais my rash lasted a few weeks maybe. I don't think it should last over a year, perhaps your family member has something else or is a rare case. The bulleye rash is supposed to disappear in a matter of days to weeks. It's possible they have ring worm. Feel free to ask me more questions.
My daughter is suffering and the doctors are not listening to her it's infuriating.god bless you for the work your doing.
It makes me so angry that there are people who will say that it's all in their head, or that they are just wanting attention, when people suffer from lesser known issues and diseases like Lyme disease. I don't have Lyme disease myself, but do suffer from chronic pain caused by severe restless legs syndrome. That's another one of those lesser known evils: restless legs. People don't understand and therefore judge or tell you to stop moving your legs. "Uneducated" is the perfect way to describe them. My heart goes out to anyone suffering from Lyme disease or any other disease or syndrome out there. Let's pray for a cure for all of it.
Nikita Cavalier
This invitation for treatment of the,Lyme Disease with Apitherapy y very unique,special and imposible to find anywhere in the world and the best part is that it is very effective with Lyme and all the difficult illnesses no matter what they are such as: Hipertension , diabetes ,parquinsons HIV ,cancer, Digestive, bipolar,insomnia, any Inmune disorders,cardiovascular and much more.
We know Apitherapy works and it works very well but because the ultimate goal here is to establish a World Class Apiterapy Clinic in Los Cabos, La Paz and Rosarito Baja California is by offering free treatment to you and your family ( free of charge ) or selected friends of your just to make a point that we know what we are doing thereby getting real live testimonials from known Hollywood celebrities. Our experience of curing people for more than 25 years puts us in the lead because we are the precursors of this Bee Venom Therapy. I will continue to insist on a well know celebrity to take this as serious as possible because once I can prove to you it's effectiveness you will want to become a business partner because there is no end in sight of what Apitherapy can do in the hands of licensed profesionales in this specialty.
You have nothing to loose and everything to gain. Also I want you to know that I am not telling the best part of this Apitherapy treatment . If you respond back to me and want to know more you can ask me anytime.Iam going to share this invitation with other celebrities and the first one that sees the potential and responds back to me will definitely have priority over the treatment because Iam only going to need a certain number of characters who need treatment to make my point in the documentary movie.
Your Amigo
Castillo Ruben
Hi Nakita, may I make this very late suggestion: Calcium and Magnesium. You can buy the Mg as a gel, too: rub into your legs every night, just before bedtime, and take the supplements:
Remember the CALCIUM/MAGNESIUM RATIO: 2:1
EX: 1000mg of calcium with 500mg of mag.--you can buy them this way, too.
Be sure the calcium is calcium lactate, if possible, no dolomite.
I hope it helps.
I had strep throat throughout my childhood at least 3 or 4 times a year. My legs ached every day until I was in my 20’s, and I have severe RLS. I think that’s worse than the pain!
I have no idea if it was from Scarlet Fever as a child, or I had an infection somewhere.
After I got breast implants, I got extremely sick and was in a condo that had hidden mold. I was so sick and I lost everything and everyone. Now I have Lyme at 67!
Thank you SO much, Ally!!! We 'Lymies' appreciate you!!! We need more famous people to step up and acknowledge their LYME disease.... Thanks from my heart....
Karen Badea This invitation for treatment of the,Lyme Disease with Apitherapy y very unique,special and imposible to find anywhere in the world and the best part is that it is very effective with Lyme and all the difficult illnesses no matter what they are such as: Hipertension , diabetes ,parquinsons HIV ,cancer, Digestive, bipolar,insomnia, any Inmune disorders,cardiovascular and much more.
We know Apitherapy works and it works very well but because the ultimate goal here is to establish a World Class Apiterapy Clinic in Los Cabos, La Paz and Rosarito Baja California is by offering free treatment to you and your family ( free of charge ) or selected friends of your just to make a point that we know what we are doing thereby getting real live testimonials from known Hollywood celebrities. Our experience of curing people for more than 25 years puts us in the lead because we are the precursors of this Bee Venom Therapy. I will continue to insist on a well know celebrity to take this as serious as possible because once I can prove to you it's effectiveness you will want to become a business partner because there is no end in sight of what Apitherapy can do in the hands of licensed profesionales in this specialty.
You have nothing to loose and everything to gain. Also I want you to know that I am not telling the best part of this Apitherapy treatment . If you respond back to me and want to know more you can ask me anytime.Iam going to share this invitation with other celebrities and the first one that sees the potential and responds back to me will definitely have priority over the treatment because Iam only going to need a certain number of characters who need treatment to make my point in the documentary movie.
Your Amigo
Castillo Ruben
Yes, Thank you Ally for this video. This was to the point, as my sister and brother don't want to recognise our Mom's Lyme disease, and they keep saying: "Why the doctor doesn't find anything wrong with her? They claim "It's all in her head".
Medicine HAS to change. I am a designer also & have struggled for more than 10 years. I thank you for re-inspiring me to work at getting well.
This is the we exact interview I needed to hear. She is describing exactly what is happening to me down to being lost in the grocery. It is such a lonely feeling. Thank you Allie for sharing your story.
We are going through the EXACT same thing with Babesia and Lyme with my son going on 10 yrs (diagnosed 2 years ago). She is on the money on all of it. Horrible disease. Ignorant doctors and people. I am so grateful to Ally and her candidness.
You are one of the strongest people ever.All of us with Lyme have to be strong in order to withstand the so called 'normal' life. From age 6-14 years old I was bitten multiple times per year. I have recently seen an old neighbor that still lives there and she has Lyme as well. Doctors have labeled it as MS, fibro, etc.There's almost no doctors connecting the dots these years as well.Social responsibility. That's wonderful. I feel each of us have that responsibility. I was robbed of a normal childhood and has kept me from living a normal life. I've been cut by tongue of the ignorant that have no idea what I've been through. I've suffered for around 30 years and got the diagnosis just August of last year. I've been doing all kinds of things for years to help myself without knowing what was going on. I've tried just about anything that would hit the market. I have found great progress in a program that other Lyme people are in and plan to go back to doing it soon. Above all we need prayer. That's what holds us together.
Connie Scott This invitation for treatment of the,Lyme Disease with Apitherapy y very unique,special and imposible to find anywhere in the world and the best part is that it is very effective with Lyme and all the difficult illnesses no matter what they are such as: Hipertension , diabetes ,parquinsons HIV ,cancer, Digestive, bipolar,insomnia, any Inmune disorders,cardiovascular and much more.
We know Apitherapy works and it works very well but because the ultimate goal here is to establish a World Class Apiterapy Clinic in Los Cabos, La Paz and Rosarito Baja California is by offering free treatment to you and your family ( free of charge ) or selected friends of your just to make a point that we know what we are doing thereby getting real live testimonials from known Hollywood celebrities. Our experience of curing people for more than 25 years puts us in the lead because we are the precursors of this Bee Venom Therapy. I will continue to insist on a well know celebrity to take this as serious as possible because once I can prove to you it's effectiveness you will want to become a business partner because there is no end in sight of what Apitherapy can do in the hands of licensed profesionales in this specialty.
You have nothing to loose and everything to gain. Also I want you to know that I am not telling the best part of this Apitherapy treatment . If you respond back to me and want to know more you can ask me anytime.Iam going to share this invitation with other celebrities and the first one that sees the potential and responds back to me will definitely have priority over the treatment because Iam only going to need a certain number of characters who need treatment to make my point in the documentary movie.
Your Amigo
Castillo Ruben
I would not be surprised if 95% of people diagnosed with Fibromyalgia actually have Lyme Disease.
ruben castillo Why just celebrities get free treatment? What about free treatment and testimonials from everyday people??? This sounds silly! Because most celebrities get paid to give positive reviews on products and procedures. I would trust my neighbor before I would trust what a celebrity has to say! You need to have hundreds to thousands of testimonials from your average person to say “yes it worked and cured me”!
@@rubencastillo8305 Is this in Operation now? I am extremely ill with Lyme and mold (and currently homeless) and willing to travel anywhere for apitherapy or any other kind of therapy that might save my life. Thank you so much.
The Lyme denial is a shame in this country! I tested pos through Igenex last week.
yeah, but doctors generally think that only diseases who are well spread are possible. they constantly dismiss things they don't know anything about. or are hard to diagnose. do not dare to even make a suggestion for a blood test in front of a doctor, or tell them a suspicion you have come to by youself, by listening to your own body. they know better. something like psychosis or sending a patient to the psychiatrist is way easier. and destroys your self consciousness in seconds. try to get a rare disease diagnosed. you will get crazy just from this experience alone. there must be a tremendous amount of people who end up in a psychatry cause of docs telling them they are metal. you'll meet 20 doctors before one even considers a test for lyme for example. going through this for years is a task most people do not withstand. ignorace in doctors is BIG. there are good docs for sure. but those are rare.
...And the CDC doesn’t approve IgeneX as a valid test; so, doctors won’t acknowledge it.
It really is. Hope you're feeling better.
@@phrynnie thank you!
How do you get an igenx test for lyme and Co-Infections? What is the process?
Storys like these give me hope. Here in Arizona it is nearly impossible to find anyone to take me seriously and it makes me feel so defeated. I have hope that one day sooner than later people will become more knowledgeable on this disease and will be eager to find a cure so all of us Lyme warriors can live a normal meaningful life without all the symptoms lyme brings. Thank you for sharing your story it means the world to all of us who have silent voices.
Did you ever find help in az? Im here too…sucks so far
@@kristielynn7349 7 @natashagilbert1619 I found Dr. Jenn Smith in Scottsdale AZ at Silver Tree Wellness
I’ve heard there’s a rly good Lyme clinic in AZ!! My mom and I have actually considered moving there for treatments bc her and I both have Lyme!
I was dx when I was 12 with Lyme back in 1990. Had a bullseye rash. The pediatrician thought it was caught in time. I was given 2 or 3 weeks of an antibiotic. I no longer have those records as they got lost over the years, but my mom believes the full course of treatment was done at that time.
I’ve experienced all kinds of things over the years. Too many to mention, but I know my body has always stayed in a state of inflammation, and I have been affected neurologically as well. I was checked for MS, lupus, fibromyalgia, rheumatoid arthritis and the best they could give me was fibro. Some labs are iffy but not definitive. I also have a rare syndrome called RSD that I acquired at the age of 20 from a snowmobile accident. It stayed in my body and then about another 20 years later I got another injury that left me permanently disabled in my right hand and with severe pain. I live with chronic pain all over and sometimes I just wish I didn’t exist. For me, the hardest part is not having people who actually want to get down to what is going on or not getting the right dx. I haven’t been to any dr since 2017 because I’m tired of wasting time and finances. I cling to the hope that one day there will be more accurate ways to dx, along with better treatments for all those effected. Best wishes to all those who have grappled with Lyme. And thank you Ally for sharing your story and for using your platform to help others.
This is my exact story! Its amazing hearing someone who grew up on the other side "of the tracks" from me have the exact same story...thank you Ally :)
Great interview, I have chronic Lyme 11 years before diagnosed as well. And you have a child! !! That gives me hope, I want children.
derek eccles
Who is your Doctor that is the top specialist in the world???
My husband has been suffering for years and I don’t know where to turn.
derek eccles
Thank You
derek eccles would you be able to email me? megsmonterrosa@gmail.com. I am in need of some advice on how to treat this. I have an 18 month old son and need to keep fighting so I can take care of him again.
This girl is inspiring. This Lyme road is rough. We need to be advocates for each other. She is one bad-A woman! My favorite part was when she said she found out she wasn't weak, she was one of the strongest people shes ever known. Inspires me not to focus on my pain but to help others with what God has put in my life.
And here we are 2020, doctors still denying the chronic state of lyme, it is litteraly a nightmare.
She is unbelievably strong. I'm speechless. This is horrible and how she handles it makes me want to handle it on all levels.!
Pretty sure I'm going through mold illness. It's a lonely time. Just because you can't see it or understand it does not mean it's not real or it's just anxiety. Anxiety and depression is usually a side effect of Lyme and mold.
Thank you for sharing. I have had a very similar experience, maybe CF, maybe fibromyalgia, maybe R.A. The symptoms I have point to lyme or MS. The most difficult thing is finding a doctor willing to listen and help. I feel for everyone dealing with any of the invisible illnesses.
There is no such thing as "Lyme or MS", Lyme is a cause whereas MS is simply a term used to describe a collection of symptoms. Lyme can cause a persons MS, just like mercury toxicity can cause it for example or other infections trigger it.
Our stories are the same. This is the hardest thing to live with. Prayers to you Ally, thank you for speaking out.
I am fourteen years old and am suffering from very very late stage chronic Lyme disease. we think I was bitten and infected before the age of four. I started my treatment around fifty days ago I can see improvement but I still suffer so greatly. thank you Amy for doing this for all of us that suffer so much
It's terrible disease. Hope you find some relief
Kira Lynn Sands Thank you so much for sharing this information! It's really, really kind and incredibly caring of you to take the time to share information about what has helped you in your journey with Lyme disease. Actually thanks to people like you, who are kind enough to share their experiences so throughly online, my mother did a lot of research because my LLMD in Florida aka my Lyme doctor, although I could never thank him enough for providing me with the pain medicine I need to function that any other kind of doctor would deny me because as I'm sure you know Lyme sufferers have to take a lot more medicine and in higher concentrations in order for it to make any sort of impact on them than those who don't suffer, my doctor is kind of well....there's no other way to put it than pill happy. I am now four months into treatment and around month 2 and a half we noticed that I was only getting worse. The pain medicine and antibiotics provided by my doctor were working however he was also giving me medicine for the mental symptoms of Lyme and I ended up on just way too much medicine. Often times he would add more medicine, more anti depressants and even once a very powerful antipsychotic medicine that my mother chose not to even let me touch because of her and my brother who suffers from severe anxiety and depression and many others onlines' absolutely horrible experience with that particular antipsychotic. Basically what happened was all of the crazy amounts of anti anxiety and anti depressants and just crazy heavy medicine were making me worse. Destroying the neurotransmitters in my brain and I was truly going through the worst hell I have ever felt for months. I was getting worse and worse spending every single day having multiple absolute breakdowns and going literal weeks not being able to walk or to stop screaming and crying and the pain became absolutely unbearable especially in my head. We knew we had to change and my mom did a ton of research and realized we needed to try the organic route, because it seemed to help so many others. She did intensive research and the very next day purchased all kinds of natural herbs and extracts including the ones you named with all kinds of weird names and started weening me off of the medicines that were hurting me so much. After just two days of starting this new route I started feeling a million times better than I had only two days prior. Thank you so much for sharing! I mean it, it may not seem like it but other people are going to see these comments and benefit genuinely from hearing of others experiences just like I have so much so. The only reason my mom knew what to do was because kind people like you offered their advice and experience on what helped their symptoms. 😘
Charleigh LaRocca
Pass this MESSEGE to your parents..
This invitation for treatment of the,Lyme Disease with Apitherapy y very unique,special and imposible to find anywhere in the world and the best part is that it is very effective with Lyme and all the difficult illnesses no matter what they are such as: Hipertension , diabetes ,parquinsons HIV ,cancer, Digestive, bipolar,insomnia, any Inmune disorders,cardiovascular and much more.
We know Apitherapy works and it works very well but because the ultimate goal here is to establish a World Class Apiterapy Clinic in Los Cabos, La Paz and Rosarito Baja California is by offering free treatment to you and your family ( free of charge ) or selected friends of your just to make a point that we know what we are doing thereby getting real live testimonials from known Hollywood celebrities. Our experience of curing people for more than 25 years puts us in the lead because we are the precursors of this Bee Venom Therapy. I will continue to insist on a well know celebrity to take this as serious as possible because once I can prove to you it's effectiveness you will want to become a business partner because there is no end in sight of what Apitherapy can do in the hands of licensed profesionales in this specialty.
You have nothing to loose and everything to gain. Also I want you to know that I am not telling the best part of this Apitherapy treatment . If you respond back to me and want to know more you can ask me anytime.Iam going to share this invitation with other celebrities and the first one that sees the potential and responds back to me will definitely have priority over the treatment because Iam only going to need a certain number of characters who need treatment to make my point in the documentary movie.
Your Amigo
Castillo Ruben
Dear Kira, pls send me email with lyme curing thank you: mihaly.adam7@gmail.com
@@charleighlarocca1402 - you left this message over 2 years ago, but I am testing with a reply to see if you might get this message back before I type too much more.
My daughter was just diagnosed TODAY after 12 years of suffering.
I am VERY INTERESTED in the research and treatment approach your mother discovered for you.
Hopefully you see this message and can reply with a way I can make better contact and find out more.
Thank you for speaking out about this horrific disease. It took over 15 years for me to get diagnosed.
My Lyme disease went undiagnosed for nearly 40 years.
Psychiatric issues are not so strange when you consider what the Lyme suffer has to endure of a social nature: your friends and family are too busy to put up with your problems, you can't explain yourself, you can't work a normal job, people think you are stupid because, yeah, you can't think, you're tired and depressed all the time. If you had money to burn, you might get away with stumbling your way through life...
For men, if you can work, people don't question your health. If you have a job and are sick, they just call you a loser when you can't function. And once you are unemployed, you are really screwed. All of your energy will be directed at managing the abuse of strangers or worse, fighting the elements and starvation.
If you haven't gotten a diagnosis, you need to know because having that will keep you sane and it might even mean the difference between getting hired and not getting hired. I think I'd be homeless or dead without my diagnosis. My life is still difficult, I have a lot of problems and I am very much alone, but it would be much worse without money. I just wish I knew what it was like to actually be able to use my body and mind and have a functional life.
Be careful with the medicines. Psych meds are especially problematic. Anything you can take that isn't directly addressing the root cause or it's symptoms is going to make you sicker. Choose wisely. You will do much better with probiotics than xanax...
Thank you Ally. Please keep talking about it. More about doctors & medicine that work would be awesome. So many people out there are suffering big and undiagnosed, without treatment they're just lost in it. Appreciate how much you care.
Thank you for sharing, Ally! I'm so glad you've made so much progress and have the courage to speak out about your story. We appreciate you and desperately need voices like yours!
My heart goes out to you. This has made you stronger. I must have been so difficult to have been in psychiatric care bc of this and fortunately that one psychiatrist took care to pay attention. For so many those places are a dead end. Thank you for sharing your story.
It is clearly painful yet part of healing for you too. Be grateful and try to look at all the things that worked out for you like that doc, your parents and your strong will. I feel you will help many bc you can empathize and do not give up. That is a profound battle, dealing with the medical system, the frustration, and not giving up
Great interview! Thank you, Ally!!
Excellent interview. As someone with this disease, I can relate so much.
@Ivan Poohbear thank you so very much for this information! I really appreciate it!!
What test was used to diagnose?
Lyme disease is so awful. Even if you can get a doctor to acknowledge it, the current treatments don't help. I've been treated with the current CDC guidelines and don't feel any better. The doctor has declared me "cured". I feel like I'm dying. I can't afford better treatment. My only option now is spending $200 a month on homeopathic treatments and preying they help.
They will, I use only homeopathic stuff plus grapeseed extract and silver ♡
the doctor you saw who you say told you he has "cured you" was he an LLMD a certified Lyme literate doctor?
Charleigh LaRocca No. He wasn't. Just regular infectious disease doctor.
Alexis R
You don't get cured you go into remission
I recently got diagnosed with chronic Lyme's disease after a year battle trying to find the cause of my symptoms. This disease is sick. Does anybody have these symptoms , shortness of breath (I can't take a deep breath or blow out. Can't perform a PFT test) , skipped heart beats all day (anything triggers it , laughing , speaking loud , exertion,) my ejection fraction goes up and down , massive anxiety and depression the list goes on
Michael Anthony
Yes, Lyme disease is awful. I was diagnosed back in 2018 after 4 years of misery and anguish, because I didn’t know was wrong with me. I got all your symptoms and much more such as, dizziness, sensitivity to any noise or sounds, a weird sense of smell like, electric wires burning..... that make me feel like I was asphyxiating myself, neck stiffness, random aches all over my body, and of course arthritis. Hope you got treatment and feel better now!!
Sound like you have the coinfection Babesia.
@CANADIAN UKRANIAN what do you do with the garlic? Eat it?
The depression is the worst part
Thank you so much for your work on Lyme, Ally!! PLEASE keep it up for all of us Millions who have been left to suffer and die by IDSA and CDC!
Justin Reilly This invitation for treatment of the,Lyme Disease with Apitherapy y very unique,special and imposible to find anywhere in the world and the best part is that it is very effective with Lyme and all the difficult illnesses no matter what they are such as: Hipertension , diabetes ,parquinsons HIV ,cancer, Digestive, bipolar,insomnia, any Inmune disorders,cardiovascular and much more.
We know Apitherapy works and it works very well but because the ultimate goal here is to establish a World Class Apiterapy Clinic in Los Cabos, La Paz and Rosarito Baja California is by offering free treatment to you and your family ( free of charge ) or selected friends of your just to make a point that we know what we are doing thereby getting real live testimonials from known Hollywood celebrities. Our experience of curing people for more than 25 years puts us in the lead because we are the precursors of this Bee Venom Therapy. I will continue to insist on a well know celebrity to take this as serious as possible because once I can prove to you it's effectiveness you will want to become a business partner because there is no end in sight of what Apitherapy can do in the hands of licensed profesionales in this specialty.
You have nothing to loose and everything to gain. Also I want you to know that I am not telling the best part of this Apitherapy treatment . If you respond back to me and want to know more you can ask me anytime.Iam going to share this invitation with other celebrities and the first one that sees the potential and responds back to me will definitely have priority over the treatment because Iam only going to need a certain number of characters who need treatment to make my point in the documentary movie.
Your Amigo
Castillo Ruben
ruben castillo s
Justin Reilly have you had any treatment for Lyme
They made it in a lab, and want to keep what they have done a secret.
Hiya I appreciate you sharing all that you have gone through. And it's the diminishing of cognitive skills that is so frustrating to keep educating yourself. It's encouraging to have someone else share what you yourself are experiencing. Thank you kindly.
God is the answer. I've had 3rd stage Lymes age 44 & now I am 82 years! I suffer 24-7 & My Lord is why I'm still alive. I lost my precious daughter a month ago & stress activates 3rd stage Lymes very painfully... God Bless you...❤
Thank you for sharing your experience!you honestly have touched my heart so much! I appreciate your honesty and openness, I pray this will help my family on our journey! Xoxo
OH Girl, she did so fantastic. Explained my disease like a champ. Thank you for airing this.
Got diagnosed Lyme a few days ago (5 years after the tick bite). Most people would freak out. I am relieved to hear that there finally is an explanation to this awful mix of symptoms.
I fully understand how Lyme is hard to diagnose but before knowing that I have Lyme - I lost all confidence in visiting doctors because the different assumptions and diagnosis made me want to give up (on finding the cause for this mess).
Poor mental and physical health problems have been there for a few years now but somehow I am still standing. I am not entirely sure what is ahead of me. Wish me luck 🤘
I've been dealing with this for almost 18 years. Was even locked up in a mental facility for a week for attempting suicide.
My muscles and joints hurt so badly. I have memory deficits and short term memory issues, as well. I feel like I have the flu all the time and am sooo fucking exhausted.
I've lost ALL faith in the medical community.
Good luck! I need it too! 🙂 🍀
Thank you so much for sharing, I am going through a very similar story as we speak and I am greatful you had the strength to get better and help people who are lost.
I have been diagnosed with fibromyalgia, but I am not starting to wonder and I think I need a doctor to look at my illness and see if it is Lyme
Omg Aly,u are such a great person .U are so positive and the world need more human like you . i have no idea what lymes disease actually is anddd ur explanation is just crystal clear !! God bless your beautiful soul . i know you are super super strong May u always stay happy :)) love from Malaysia ~
Thanks for sharing your story❤️❤️❤️
Heartbreaking to hear your problems 😭😭😭
I’m glad you are better🤩🤩🤩
Thankyou Alley ! For speaking out. Ppl have no clue how drastically bad this is.
awesome interview!! thanks so much"
Thank you x a million for putting yourself out there. My 9 year old little boy is going through Lyme/PANS diagnosis. It is SO DIFFICULT. This helps validate and put words to this horrendous ordeal!
I think I will use this video to show a few people that care about me what its really like having Lyme Disease! Perfectly stated and explained very well in terms that everyone can understand.
She is telling everyone what we are going through and hearing it from someone else helps others understand you better!!! THANK YOU
If possible what treatments did you have done?
And yes. You totally feel like you are complaining all the time. I have felt like I am crazy. When you stop talking about it and suffer in silence is horrible too. You do slip into depression too, and that makes all of the rest so much worse. I LOVED my job. That is so rare that you get to do a job that you love doing, and are successful at it. I am devastated that I cannot hold myself together.
Me too, Tina.. I had my absolute dream job.. I’ve gone down hill so far I had to move back in with my father.. now I’m just the biggest burden on him that I could ever imagine. We’ve seen so many doctors that just shame us.. I’ve lost what should have been the best and funnest years of my life.
Idk how much longer I’ll go on.
@@meowzy2439 I know this is a bit late, but I know very much how you are feeling. I don't know if you've tried natural stuff, but may I offer some info you might find interesting? If you already know, think about it, OK?
Nattokinase, serrapeptase, sorbitol, grapefruit seed extract, glutathione, oil of oregano, food-grade, organic DE.
Dr. Richard Horowitz: several excellent videos here on YT
His 2 books: WHY CAN'T I GET BETTER?
HOW CAN I GET BETTER?
2 excellent movies:
UNDER OUR SKIN
EMERGENCE (UNDER OUR SKIN PART 2)
can be found online, DVD, free, rentals
I feel the same way, but don't think of yourself as a burden, at least try. You cannot help being sick. I too, have given up on drs, and am trying this protocol I suggested.
It is working, I am experiencing changes. Unfortunately, you have to go back through your illness and experience HERX reactions--research that, too, OK? Besides Lyme, I also have chronic shingles because my "doctor" told me I waited to long and refused to prescribe anti-virals, so I'm fighting that, too...yippee.
It may well take months, or maybe years, but if you stick with it, eat clean, no refined sugar or flour--the little beasties love sugar, which is why sorbitol is so cool--it fools the spirochetes into thinking it's sugar time, they come out of their hiding places and gobble up the sorbitol, but because it isn't really sugar, they starve and die...
One more--look up BIOFILMS; they have really cool videos of what they look like, and the spirochetes, too.
This is just the beginning; I can't afford all the treatments available, but I'm willing to do whatever I can to find a way to be comfortable in my own body.
This is my way of fighting back, as long as I can. I'm learning all I can about it and applying everything I can. I would really like to see these last few years, however perilous things may get, pain-free, and at peace.
I hope you find your way back, meowzy. You deserve it.
Now, go bang some bugs!...;0)...
Tina Bean holy shit, I feel like that to, complaining all the time feeling crazy, and then you stop talking the silence is heavily depressing. According to some lymes can give depression, I don’t know how I feel about that but it most likely does
@@erzulie8972 i
this is an amazing interview. great questions by the sensitive interviewer and I have to point out that Ally's eloquence and storytelling skills are commendable. Powerful story
Thank you for explaining this complicated and horrific disease. It’s really hard to explain to people.
Good morning,
Thank you Ally and others for sharing I’m learning quite a bit .
Thank you .
Ally you are such a beautiful and strong person. I wish you nothing but the very best for the rest of your life.
I truly appreciate this interview. I have chronic Lyme and I’d been going in circles with specialists for 8 years before my efforts to keep on landed me at an out of state infectious disease specialist that I TRUST ..though however frustrating journey ..knocking and knocking on Dr’s doors that would always land me exhaustingly stunted at another dead end ...do not give up .. “self advocacy”!!!! It will take perseverance but it is worth the work to take back your SOUL.. DO NOT let them win!! They do exist >>trustworthy, legitimate & knowledgeable healers out there!! 🎣 🙏
Would you tell me what doctor you see? I fear my daughter has Lyme
Ally,
Thanks for sharing your story! It is similar to the story of some many people including myself.
D
The world needs something to do about this! If this continues everyone will be sick and dying!
Insurance companies...sigh....what a broken, rigged system: Healthcare for profit....only in the Land of the "Free"--IF you have lots of $$$$ and connections.
@@erzulie8972 :(_ _ _
people will have to move to big urban cities and avoid nature!!!!!!!!!! Oh wait, i think thats the whole reason it was created. /conspiracy.
More than 300,000 diagnosed in US this year and growing.
DariaRock that’s our governments plan. So we fight it!
memory fog is a HUGE part of my LYME
thanks for bringing awareness 💚
Kris kristofferson had it! He was in final stages of Alzheimer’s, and didn’t recognize anybody. Then they discovered his Lyme disease & treated him. He came back 100%!
I had it & didn’t know it. One of my Georgia Drs treated me & it’s gone now.
I'm in Georgia now and have been suffering for years. Can I ask what doctor you used?
Thank you for speaking out on Chronic Lyme. It's a terrifying and painful disease. Youve done so much to help and I'm so grateful.
Excellent Interview. Ally, you're a force of Nature! ...... I just read about Osha root......
The way she describes reading and learning…never heard someone explain my experience with this disease so well
As well as how she describes the right and left brain not communicating. I describe this sensation the same way.
What an incredible human - so so strong and such a FORCE! I love how she is spreading the message to not give up if you know something is wrong - don’t give up to find the answer - fight for it and advocate for yourself!
Ugh same story here! I am seeing a Naturopath and he is the one that FINALLY diagnosed me with Chronic Lyme Disease! After MANY pcp visits and numerous appointments with pretty much every specialist in the book. My Naturopath wants me to do a treatment called Lyme-N which is $4,000 and not covered by insurance of course! 😒
And then some reviews say this treatment didn’t even work for them, soooo….
I’m leaning toward homeopathic options as well!
My biggest issues are fatigue, brain fog, some memory loss and just all around mood imbalances! Lucky I didn’t end up in a psyche ward myself!
most effective treatments based on ppls reviews seem to be bee venom therapy which is cheap, or sot therapy which is expensive
Amen! Sister! So many ppl feel crazy, they are not!
You are strong. Thank you for sharing.
What a lovely young lady she is. I had no idea she had been through such a nightmare. God bless her, I hope she is much better today!
Thank love for this interview mine was hard to diagnose because I was have Lupus I am so tried most days it's hard most day to even pick up my infant daughter I am so stress
I haven’t been diagnosed with Lyme but I feel like my symptoms line up with Lyme I’m going in for an MRI on the 22nd I have been having mood changes,depression,anxiety,it started at 15 but got progressively worse after my first child and after my second and third child too. The depression was hard to get over especially with the suicidal thoughts. I still struggle with mood changes and I hate it because that’s not who I am. Then I started to sweat at night not being able to sleep,then my headaches were getting worse and then I started waking up with these extreme headaches debilitating I couldn’t get out of bed which was terrible since I had kids to care for!Then it was the forgetting things at first I dismissed it as busy forgetfulness but then it got so bad were I couldn’t remember words or even my address if someone asked me which is when I realized that this was a serious problem and then being clumsy dropping things feeling weak and extremely tired all the time even if Ive slept well now my legs and hands are tingling and numb! And then the random twitching in my eyes,fingers,toes,lips...A lot of bruising on my body,pressure on the left side of my head and eye and ear,I also feel pain in my ankles and in my spine,it might sound weird but I can hear liquid run down my spine. I lost the ability to swallow food and I struggled with really bad heartburn the doctors told me I had anorexia and that it was all in my head and I felt like they didn’t believe me this was also around 15-16yrs old I couldn’t eat solids or swallow liquids for about 4 years it was to traumatic I was at 112 my lowest at 20 years old and I finally switched doctors when I became pregnant with my first child that is when they found that my esophagus muscles were paralyzed and I had to get surgery mind you my oB only found out because they couldn’t figure out why I weighed only 120 on my last trimester. The myotomy saved me from starving to death and I am so grateful to this day for those doctors who didn’t dismiss what I was telling them and actually listened to me. I hate it when doctors don’t listen or think that we are making things up not saying that they all do this it’s just that most doctors lose their passion and are in such a hurry to get the patient out but I’ve learned to speak up for myself as should everyone and I will do so for my kids as well! honestly mentally debilitating. Hopefully they can find what is wrong.
Omg i have the same story like u i today found i have late stage Lyme and I was years treatment resistant for depression bipolar have chronic autoimmune condition s and finally we found i have Lyme ... Now I'm going through long-term antibiotics treatment i hope i will be able to feel emotions again
18 years lymes, and i have her book. Thank you for doing this.
I'm so tired
'uneducated and ignorant'... Yes, yes, yes! 'I could have died'... Yes! So true!
She is honest and we need that!
So sorry Ally had to go through this, it is very hard, so hard that someone like her who has Doctors and resources cannot completely get cured, imagine someone like me without a Dr help. So I had to research and I found that Lyme Disease is not healed because it is not just a bacterial infection but it has parasites, and by not treating the parasitic part of it Doctors are not properly treating. The Lyme community has marched in from of IDSA's building requesting to have the protocol modified but they won't do this to favor the insurances. Treat the parasites, the viruses and mold too. Ally you have a friend in me ;)
the ignorance surrounding this illness is overwhelming not to mention the illness its self. We need a comprehensive treatment for current suffers. I cant stress the importance of faceing this epidemic, its more commen then most people have been lead to believe, doctors and super stare's have contracted this, i wouldnt wish this on anyone. Mean while while the medical establishment has failed the suffers. Please help us spread awareness as to one day get a treatment out to those that suffer, thank you for speaking out for us ally that takes courrage. And your honesty about your journey brings comfort and understanding.
Wow I feel like this explains why I've been feeling this way for many years 🥺😭😓❤
The good thing is you were able to use something negative and turn it into a positive by writing a book! To bring awareness!!
I got bit at 5! It will be 49 years next May! Cry myself to sleep sometimes.
god bless my wife kinda same way music really helps her the songs in the time she grew up
I got bit at 14. I am 51 now. Wim Hof breathing. I just watched “Herbal Relief of Lyme Disease, Wyoming PBS”
No one should have to cry themselves to sleep. I was reading that people have reported good results from chlorine dioxide or high dosage vitamin C (grams not milligrams).
Antibiotics ruined my life I almost committed cuz I was depressed. I healed my gut bacteria I use to cry got no reason sorry this sounds harsh!! I never want to be that miserable AGAIN
You've been experiencing all those crazy symptoms for 49 years? Or when did you start to feel it? (Sorry for my english)
Such a good elaboration...💚
Love her b4 & love her now, she's very intellectually mesmerizing. I've seen her on that mtv shows :). Wishing her & everyone who's got lyme disease " to get better bc ik they're strong " ~ ally hilfiger 💞
So true, I only found out my long term health issues were down to lyme disease last year...even with my blood tests results my doctor won't accept it and instead says I have fybromyalgia, prescribed mindfulness. I've tracked it back to age 13 when I got a sudden bowel infection, after i started getting sore hips, limping, back aches, nervousness, not sleeping....fast forward 35 yrs i have terrible fatigue, weight problem, poor memory, anxiety, joint pains, muscle spasms, palpitations, stomach issues, poor immunity. I'm thinking of getting a rife machine so if anyone has any advice I'm all ears.
Thank you for sharing your story. I actually had lyme disease for a while undiagnosed. Finally when I was diagnosed the test came in 2 parts one week apart. The first came back positive and was given Doxycycline. I started taking it, I hate taking drugs. The second part came back negative. The dr said I didn't have lyme so I stopped taking it.
Hindsight if I had taken it for the full month would I have been over it? I will never know.
That was 7 years ago. I did get chronic. J started with a specialist but ran out of money. Eventually I got the help I needed. I prayed and God answered me by giving me help with Gregg Kirk and the Tickedofffoundation. I used the Cowden protocol and got almost everything back.
Last summer i was moving a pile of wood at my dad and mom's in Gilford,nh. I didn't think to put on bug treatments. One morning I woke to a blown up tick on my shoulder
i was just diagnose with lyme disease about a week ago, after 2 years of illness i finally knew the mistery of my sickness. im very happy to have founded out what it was but i became really depress seeing my self almost dying everyday and seen doctors who only told me it was a mental problem and noone really believe that i was very sick. everything she is saying is true and i when trough it too...hopefully i can began treatment and get thiß horrible disease out of me.
Su Amigo El Ilegal This invitation for treatment of the,Lyme Disease with Apitherapy y very unique,special and imposible to find anywhere in the world and the best part is that it is very effective with Lyme and all the difficult illnesses no matter what they are such as: Hipertension , diabetes ,parquinsons HIV ,cancer, Digestive, bipolar,insomnia, any Inmune disorders,cardiovascular and much more.
We know Apitherapy works and it works very well but because the ultimate goal here is to establish a World Class Apiterapy Clinic in Los Cabos, La Paz and Rosarito Baja California is by offering free treatment to you and your family ( free of charge ) or selected friends of your just to make a point that we know what we are doing thereby getting real live testimonials from known Hollywood celebrities. Our experience of curing people for more than 25 years puts us in the lead because we are the precursors of this Bee Venom Therapy. I will continue to insist on a well know celebrity to take this as serious as possible because once I can prove to you it's effectiveness you will want to become a business partner because there is no end in sight of what Apitherapy can do in the hands of licensed profesionales in this specialty.
You have nothing to loose and everything to gain. Also I want you to know that I am not telling the best part of this Apitherapy treatment . If you respond back to me and want to know more you can ask me anytime.Iam going to share this invitation with other celebrities and the first one that sees the potential and responds back to me will definitely have priority over the treatment because Iam only going to need a certain number of characters who need treatment to make my point in the documentary movie.
Your Amigo
Castillo Ruben
ruben castillo I take that back it was a false positive. I was checked by a infectious disease so he checked me for all kind of disease that give a false positive. I did had h pylori and i have a big ulcer in my stomach witch I'm dealing with at the moment ... I did had panic attacks that I verly get them. now I know left with anxiety
dr eva seppi found 101 strains of lyme, what one where you tested for? you need the right test, the testing needs to be re-done, dr sturt mcdonnald lyme patholigist talks about this. vary hard to find lyme with a test
@@SuAmigoElilegal There is no such thing as false positive Lyme test. If the test was positive, you have Lyme!
Thank you Ally💕
One doctor uses Miror EPF from amazon which is made from plant sterols to treat bacterial infections and Lymes 4-5 drops in 4-6oz water on empty stomach 3 times a day for 10 days!
Does it help? Thank you
The first Lyme disease diagnosis in Minnesota was 1980,, the 4th was in 1985. I got it between 1982 and 1984. Diagnosed in 2013, so I suffered for about 30 years before diagnosis.
I’m so sorry! Hope you have found some good help for it.🙂
@@C.Hawkshaw
Yes I started on Crypto Plus in November 2020. My first flare up while on it started late April 2022 but I’m feeling better now than last spring.
What’s in your toolbox exactly? I’d love to know 💕
Me Too.
So, how does one get diagnosed? What are the tests? What are the treatments? I feel like is still know very little.
I thought I was going crazy! I was paranoid! I hated everything and everybody! I had feelings of panic and sadness! I had problems to walk, swollen knees, feet an shoulders! I thought I was going to die!
how are u now. im so scared i have it
@@jjjj-zq9uz I had to take antibiotics for about 3 months. All joint problems disappeared! It felt like being ten years younger! It took about half a year to stabilize my psyche! Today life is a lot better!
@@GT-pl1wx very happy to hear that! thank u for answering
I have a question does this affect your visio ?
Does this affect your vision?
I just got the bullseye bite but I want to get tested to make sure. Any advice on getting tested? For example, doctors around me want to see me before sending me out to a lab. Anyway to go straight to a lab? Please help I suffered the worst yesterday
Wow Ally is beautiful, inside and out. And like others have said, she spoke so eloquently! ❤❤
Fantastic video but when you live in Australia where Drs and specialists are not allowed to treat us. It's a hopeless situation. I feel like I've been tortured for over 38 years it's certainly not fun. I've tried remedies myself without any help. But no success. Spent most of my super travelling to Germany which was the biggest wrought of my life. Travelled to the USA which was initially successfully but then I regressed. What do you say to people in this category?
This sounds just like me! I have been diagnosed with fibromyalgia but I am having second thoughts if that is correct
@@laramieseattlewrennwkbthta4007 Lyra Nara on utube explains how they cure Lymes. I wish more people knew about them.
This girl speaks the truth!
I've been to the doctors the last 10 years since I started having heart murmur and rashes, but all these doctors tell me I'm just stressed . I'm not imagining it. I have chronic fatigue and there was a point when I was 9 that I couldn't walk for a month... How do I convince a low income medical doctor to test me without them calling me paranoid!!!!!? My left side has been going numb gradually over the years. Help.
You don’t convince, you demand.
I think this has been my problem for about 15 years now.
These celebrities need to start donating money for people to get treatment
I do appreciate people like this speaking for us.... But the hard part is, many of us don't have the option of staying in bed. I take feeling like shit everyday for what it is, because at least I can drag myself to work everyday. I NEED to find a treatment that works but am so scared of it making me worse before it makes me better. As it is, I'm barely making it....I don't have the option of staying in bed if a treatment makes me sicker before I get better.
One morning in july I woke to see a blown up/engorged tick on my shoulder. I looked at it in disbelief but knew it meant I was starting all over again. I will get through this again. Please pray for me. God has a purpose for me here. When I have the money j will start a fund of my own to help as many people as possible.
Have any of you looked into the sponaugle wellness institute. Looks amazing and has saved many ! Im thinking of going .
I was diagnosed at 30 years old. Now diagnose with fibromyalgia, the symptoms are exactly the same but I also have a big toolbox, at 63 no oils, no homeopathic stuff. I’m way past that. As you get older there’s no natural healing. I still don’t know if it’s chronic Lyme or fibromyalgia