Lyme Disease and the Nervous System with Patricia K. Coyle, MD
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- Опубліковано 11 чер 2024
- At the invitation of Southampton Hospital's Tick-Borne Disease Resource Center, Patricia K. Coyle, MD, Professor of Neurology at Stony Brook University Medical School lectured to a standing room only audience of medical staff, allied health professionals, residents, and students enhanced their knowledge of Lyme Disease and the Nervous System. For a physician referral or to ask a question, please call Southampton Hospital's tick hotline at (631) 726-TICK.
- Наука та технологія
Brilliant. I wished she was the ER physician when I went to the ER x5 with lyme trying to figure out what i was dying from. 6 plus weeks of lyme carditis at home with zero intervention, 6 months total of sepsis and migrating symptoms. You know what saved me? My brother gave me his veterinarian prescribed doxycycline! I didn't hesitate and took his DOG'S medicine! After a single week I felt AMAZING.. I'm still not out of the water but I'm going to keep fighting. Went to the er five times, the drs office four, and a lung specialist --NOTHING.
🥺💚.. ohh..
How you doing?
@@kandacenoire full recovery. God is good
@@joshuamylesgibson Glad it worked out for you! Were there any side effects? Sudden violent urges towards the mail man? etc
@@chrishayes5755 hahaha you are the best man.Hope you are doing alright.
Absolutely brilliant! God if only she’d take an interest in our 37 year-old son who has been treated for 30 years. He’s broken us.
We desperately need MDs like Dr Coyle to educate other MDs on post-Lyme complications, so they could start taking us seriously.
All in my head since 1989 ......
I’m frustrated that she’s not talking about different labs. I was tested two or three times over the years for Lyme and it was always negative. I am seeing a functional medicine doctor now and he sent the blood to Vibrant Wellness in San Carlos California. They picked up 88 different antibodies to almost every type of Borrelia. They also picked up Bartonella, Babesia, Aflatoxins, Trichothecenes, and mycotoxins !! if my doctors only used, vibrant wellness 25 years ago, I would have not lost my life and dreams.
Where do you live? I live in MI and had the same test.
You are not the only person discussing this problem. In one of the many recent presentations I’ve watched, sorry I can’t remember which one- but will post if I see it again) One dr showed slide of ONE patient’s results from same sample, processed by 4 different labs. And the difference in the 4 bar graphs was startling! And depressing as far as missed diagnosis goes. Pretty sure one was Igen or Igenics lab (?)
I know this thread is old but I have been suffering so long! I have Lyme disease. I tested positive abt 12 years ago after being ill on and off for almost a year. I thought finally I have an answer! I was put on a corse of antibiotics for 10 days to get me through until my appointment at Yale Rheumatology could see me. I started to feel better after the medicine kicked in but when I got to the first Yale appointment they ran their tests and they told me I had Rheumatoid Arthritis! I was back to my old sick self and today I am very sick! I have so many different things wrong and many of them are what you are talking about in this video! I can't even think straight half of the time! I feel sick more and more with each passing week! I am tired of doctors who don't see this for what it is and I had positive test results! I feel hopeless! Thanks this makes me feel hopeful!
My husband has neuro borreliosis-neuro lyme.
Diagnosed 1 1/2 yrs ago. No balance and very sick. Trying ozone therapy, hydrogen water and gas.
@@irishjohannesson8869 Gas? Hydrogen gas? Or you mean petrol yielded gas? How is it going?
I can help you.
@@mikecarey1990 how
look into SOT (Supportive Oligonucleotide Technique) for lyme along with blood ozone treatment
lymes awareness month. Keep up the good work educating the general population, education is needed for prevention and treatment.
LYME
FFS it's LYME!!! not "lymes". It's not plural, it's not in possession of anything, it's just named after the town where it was discovered, LYME Connecticut. There is only one town and it doesn't own the disease. Anyone saying "lymes" immediately discredits themselves as ignorant and suffering from poor grammar skills.
@@jens7868stop freak
@@timberline1487Shut up. ..not everyone has perfect writing abilities as I do...who the fk are you to discredit another person for putting an "S" on Lyme....😂😂😂😂
My first symptom was phagocytosis and it scared me so bad I immediately called my doctor. She tested me and bam, she seen the antibodies and I've had cellulitis in spine and other areas. Scared me. Im going to an infectious disease doc.
You are genius doctor!
I love the way you explain everything. It's scary but real and im glad im on antibiotics.
Not sure if you will see this but hope so. Did they do a spinal tap?
@@galaxybot8103 Is it recommended or necessary? I'm weighing risks/benefits of having one done. Last time gave me terrible headaches, and not looking forward to having one done unless they are definitely helpful. Is it possible to have had Lyme and NOT get indications from CAF?
Wonderful talk! Very knowledgeable on Lyme disease. I had neurological Lyme and I live in TN. I actually contracted twice in 5 yrs. First time I did not have EM and went incorrectly diagnosed and treated incorrectly by 6-8 doctors. The second time I had a very large EM and found a Dr. who would treat me an was knowledgeable about Lyme so then I was treated for acute and chronic Lyme. It took two yrs to get me into remission but I still have joint pain, myalgia and spinal pain and radiculopathy.
This is a little over my head. I got Lyme between 83 and 84,, diagnosed in 2013, now into my third round of antibiotics. This is like going through hell.
Boyd W hell is correct.
Boyd W have you looked into MMS, Teasel root extract,sulfuraphane,phosphatidylcerine hydrogenized water.......
Cryptolepis Sanguinolenta
Ron, what helped you? Thank you
How are you doing now?!
Any tips for the rest of us?!
Thx 🌺
well done doctor and thank you, continue to educate.
I have it Morgellons/Lyme & have had 2 blood transfusions 2 pints both times. I have taken Doxy for a year with dormant success but flare-up & now I’m on Doxy & Rifapin but the HERX almost killed me. I pray for death everyday Thanks for your help!!
Just had my 3rd blood transfusion 3 pints now instead of 2 pints 2X . Started on Rifampin but the HERX were out of this world. I’m so tired I can barely hold my body up I use a rolling walker. This is OLD I’m on Salt/Vit C Protocol
Dr. Coyle , You are an amazing woman.
You can say that again!
If anyone's experience was like mine actually seeing her, you would think differently. 12 years undiagnosed with Nuero borreliosis, she was completely dismissive of me (despite having gone through so much of what she speaks of.) Part of her evaluation was asking me to stand on one leg with my eyes closed and then hop up and down. WTH???? Her diagnosis? Psychiatric issues, I had to lose weight, and I was on too many medications (all prescribed for the symptoms I was experiencing). This video sooooo angers me. She clearly is an expert in the field, yet as a treating physician, was no different than any other doctor I'd already seen for years and years...
This is excellent. Thank you..
I worked 22 years at Dunes National Lakeshore.
I've probably had at least 18 encounters with ticks over that time. Probably around 10 times embedded ticks. Last time one was embedded was around 2022.
I retired January 2023.
I'm 71 years old, and have for almost 9 months had rash issues, knee and leg problems mostly.
But have pain in arms wrists ankles hands. Joints and muscles.
My family doctor says its arthritis and age.
Once after pulling an embedded tick off, I asked my doctor about a lyme test. He asked if I had the bullseye. Told him no. He said, you don't have lyme disease.
I’ve been sick for 1 1/2 years. For months. I thought I had parasites. Drs. Kept telling me I was delusional! Yet, I had parasites coming out of my pores with sores full of them. It felt like a horror show. Finally, I learned I have Lyme disease and my immune system has allowed parasites to over populate. I have found out the hard way not to take photos or samples to a Dr. appointment or they automatically think you’re mentally I’ll. It’s been a long road so far but I’m trying to heal according to a Dr. with natural herbals. It’s my only choice as so many specialists have rejected me when seeing my chart. So I’m dismissed before I can talk to the doctor. Thanks for sharing your story & advice. Bless you. I hope you get well soon.❤
march 21 2022- I POSTED COMMENT A COUPLE OF DAYS AGO. IT WAS REMOVED- VERY STRANGE. I MENTIONED A BIT IN REF TO THE POLITICS THAT ARE GOING ON IN REF TO LYME DISEASE.
Very informative, Thank you for sharing
I respect your knowledge. I love your passion. I am impressed with your dedication 😊
At age 70 skin infections and bacteria caused a 50 pound weight loss and severe weakness. My husband got scared and found me an LLMD who saved my life. Then he retired. Now I am 76 and have been doing my own research and trial and error to stay healthy. Age is working against me. Have been fighting the good fight, and attempting to at least look like my life is normal. Prayers are needed at this point. We live in NE Michigan on Lake Huron and spend much of our time outdoors. There are currently NO LLMDs in Michigan and Natural paths tell me they are not allowed to treat LYME.
Really a master speech.
*TRULY*
I’ve had all of the “rare” manifestations she speaks of all from a Wisconsin/illinois infection. And I’m sorry but her yelling this to a chronic sufferer made it a little difficult to make it through. The sound and sight issues are very real. If it is not persistent infection then it is from all the damage that was done in the 10+ years going untreated and mistreated.
Wisconsin is infested with ticks. I had 2 bites, one went away but one made me deathly ill, I had a red solid ring around my bite, and it looks like a scar now. I still don't have my appetite back.😢
Absolutely..... What is worse, SHE is the doctor that I went to see already undiagnosed with Lyme nueroborreliosis for over 11 years. I experienced all of the signs and symptoms she speaks of, yet she completely missed the fact that I had Lyme and/or MS (I was pretty certain I had Lyme and wanted to rule out MS). I am sooooo sorry you had to experience symptoms and for SOOOO long... It is painful to say the least and frustrating/angering when doctors are so dismissive of what you are going through.
Excellent talk. More oriented toward doctors. But very interesting.
Yeah, cases are up to 476,000 a year now. And most likely double that estimation.
Wow.. I without a doubt have Lyme disease. Was diagnosed with vasculitis 3 years ago. 10 years ago I would get sick.. then heal.. then sic etc. Now I'm sick all the time. Tested negative for Lyme. Wow
Had lymes Carditis 2 months ago. Had 5 tick bites one I dug out of my arm that was skeletal and pin head size. No bulls eyes just red. Took 2 tabs doxycycline and felt good. 2 months past, Now going to specialist bcuz of symptoms. Tingling in legs, top of feet, numbness, exhausted, depression, chills, sweating. Knees burning.
Yo where you at the Jersey shore🤣 also hope you feel better bro shit is brutal
It's LYME, not "lymes". Saying "lymes" make you sound very ignorant.
Dr. Thank you, living with knee pain and neck stiffness for almost 10 years developed a neck tic/twitch. Last week my neurologist did the lime blot, I was positive 5 of 10 LGg 93, 58, 41, 39, and 28. I am relieved now, I will a wait her call to start treatment, I already had Mri, brain, neck and back. Brain has white matter disturbance, neck all 7 disc herniated. Total herniated 11 dics, thoracic lumbar and cervical. I a wait my treatment. Thank you.
I can help you.
@@mikecarey1990 I get bouts of cold intolerance
@@rccarsandmusic2641 There is a cause for everything. I can help you by finding and eliminating the cause.
@@mikecarey1990how? I have lyme
It would be nice to have an update to learn if protocols have changed.
watching 2023 brilliant 👏 👌 👍 thank you 💞
I had a tick in my leg for 2 and half days, black legged brown tick, that was in 1974, haven't a day of good health since, plagued with viruses etc from immune deficiency, crippled with arthritis from aged 18, Bells Palsy at 19, now the peripheral nerves are damaged (along with another 60+ symptoms). And it will NOT be a considered for parasitic infestation examination in Australia or New Zealand - we have Parasitophobia here.
Thank you. I finally after four years of fighting hard in N.Y. state. I traveled to PA to a Lyme literate Doctor. I have Chronic Lyme disease and RMSF. I also was infected by the Asian long horn tick. Now I am fighting with proving my Nerology system issues and damages. That is so difficult when physician's are uneducated. My Contrast MRI is tomorrow. I hope that gives me more evidence. Along with this video, I will have more knowledge to work with.
Cryptolepis Sanguinolenta
@@jameswest4819 also fot neurological lyme?! I take the powder now... thank you so much.
Add Texas to your list. We have a serious Lyme disease issue here.
Ah...I hope the map has been updated. West Virginia is deer tick capital of the world.
What options are available to an individual who was exposed in their childhood, but was diagnosed years later in adulthood?
Would antibiotic treatment still be worth pursuing (after consulting with a medical professional) ?
It can be worth it. I went through the double dapsone protocol after 8 years undiagnozed Lyme infection which created severe reactions that left me bedridden, but did clear out many symptoms. Of all the modalities I've tried to get well since, biomagnetic pair therapy has been the most painless, least expensive, and the most effective long term, and the Fremedica Wave One device and primal trust limbic training have been helped with long term emotional and immune support.
I live in Belgium , Borrelia Burgdorpherie shows up in my bloodtest every time for more ten 15 years now
I think I’ve had this for 15 years
I’m having the spinal pain in between shoulders with neuropathy in hands and feet. I have lost the use of my right hand. In Florida USA
Do you have Lyme?
Apparently antibiotics are only helpful in some cases, mainly early ones, not to mention the damage to microbiome which is one of our immunity centers
Cryptolepis Sanguinolenta, I'm using it now.
@@jameswest4819what us that??? Antibiotic?
@@colettejaques2559herb
I had 2 bull's eye rashes, at different times, yet the Elisa test was negative in Canada, on the Pacific Coast. I was instead diagnosed with Fibromyalgia & Chronic Fatigue Syndrome. This was 2 decades ago. Now I am experiencing neurological problems like dystonias & other neurological problems, My neurologist does not know what is going on & so he doesn't know how to treat me. I go to see him in 2 weeks. What tests should I suggest he do?
Alex Klatt You need to see a Lyme Literate Doctor. LLMD. I was diagnosed same as you and doctor's shook their heads. fibromyalgia is a myth as far as I'm concerned. I had rash in 1980 and had major incident in 2003 ans waa diagnosed them - 23 years later. So don't give up hope.
Alex Klatt ......Elisa and Western blot are only usefull at the very start ......when it's chronic it has gone deep into organs, bones ,brain ,spinal cord.....and can hide in mycoplasma(communities) and also in nematodes(parasites)
Alan MacDonald on UA-cam 26:03
Alex - Same here. In 2014, I had a tick embedded without a rash. Thanks to the CDC sycophant doctors I saw, it took me two years to get someone to just order a Western Blot -- even though I lived in the county with the highest incidence of Lyme in the world, and was an avid hiker and camper. When I did get the western blot, it was positive. I have developed bizarre, debilitating neurological problems.
Cryptolepis Sanguinolenta
@@Giselle0519 who did you see as an LLMD
I did an ELISA test for Lyme and it the IGG and IGM came back saying "Not Detected". However the WESTERN BLOT IGG said not detected but the IGM said "Detected" for bands 39 & 41. My Doctor said I have a false positive result and that I don't have Lyme. From what I know in order to be diagnosed with Lyme Disease a patient must have a positive ELISA test and a positive WESTERN BLOT according to the CDC. If however the ELISA test is an old, out dated, non specific and low sensitive test, then does the WESTERN BLOT Lyme test become a better Gold Standard test?
I'm wondering the same, as my ELISA is IgG positive...Hard to get a Western Blot here in Sweden...Just one positive ELISA and they are throwing the antibiotics at me, as if it's the end all, and be all...
The CDC has updated testing guidelines for Lyme that's a slight improvement, but still not great. Lyme testing is awful & needs an overhaul.
Ditto here but for 12 years until I was finally diagnosed. Ask your doctor to do a COMPLETE eval for Lyme and coinfections but send your blood to IGENEX to be evaluated...
When I had lime disease I had a lot of strange symptoms and I had already had a back surgery and was on some light pain management and when my skin started burning all over and she hurt me my doctor treated me like I was an addict she can more pain pills when I was scared to death cuz I didn't know what it was cuz I couldn't hardly stand for clothes to be on me and he kicked me out of his office. That was at least 17 years ago. It was caught by an emergency room doctor he had decided to do a lime tighter a second a week later the antibiotics and I did have a follow-up exam with a specialist that gave a timeline of sorts we did terrible test I don't remember what all I do know that since then blocked to my memory or not there when my daughter is telling me about something and I don't remember it I try my best on the record and act like I do or just start talking about something else I could line to see you be a part of that and I'm also told I have gout I couldn't bend my knees for 6 months and I haven't had much flare up not to stay anyway they'll swell and go back down but your thoughts on that for me. And around that time I was also diagnos ed with a mental diagnosis and now I have two more and sometimes I wonder if I need all this medicine at worse or better I don't know but I know all my joints hurt they take their turn s my knees go in and out the doctor told me the other day that's just ospreys cuz I pushed it out for him and pops is it connected could it be connected I live in Georgia I was diagnosed in Georgia hadn't left to stay if it got on me then I had it a long time before they found it because after that back surgery I couldn't fishing camp for a while I barely went outside. And of course I don't know what it could have been me and let go fell off. But I just don't know either way I get a nervous relief about all things My hands will shake and my skin will burn would that have anything to do with it and what kind of space would I need to see I mean there's lots of neurologists but so far the last two years four different doctors have told me no I'm never seen that I've never heard that let me refer you to someone though. Do you have any recommendations I love listening to you I don't know what CV means or some of the other things but I get most of it thank you please continue
Yes my spinal fluid was “abnormal” with abnormalities. And the fluid pressure was very high. I’m sorry I couldn’t make it to the end, maybe I can come back and finish later.
We need help.... I need help... what is it gonna take to make doctors understand this problem...
Cryptolepis Sanguinolenta try this herb.
🥺💚
I hope you are better, maybe try colloidal silver? I survived unbeliavable things as well
I hope you are feeling better now. If not, the podcast The Cure for Chronic Pain with Nicole Sachs was very very helpful for me.
James does it work for neuro Lyme? Brain inflammation?
I was bitten tick about 15_-20_yes ago but the area where I was bitten still itch very bad from time to time should I be still be itching after 20 yrs should I get tested for lime disease??
Yes, get tested. But find a Lyme literate doctor for that first.
But oh my, your comment is eye-opening to me. I have severe late stage Lyme Disease. But there is this one spot, that keeps on itching: under my right foot. Makes me wonder now, if that was the original place, where I got bitten by the infected tick.
Great presentation. I am unfortunately one of the post lyme central nervous system neuropathy patients. I've been shipped over to pain management and now live on gabapentin, Excedrin and tramadol. I am now looking into facet injections. Without my meds, the pain is around a 9. If anyone has any suggestions PLEASE let me know.
Ghana Quinine or Cryptolepis Sanguinolenta might just cure you.
Carnivore diet
DMSO
@@FOURTEEFIVEunless the meat allergy is present
@@paulgodden4974 What is this?
Alot of what she is saying as for me my mobility has decline a lot I have arthritis back problems joint Pain etc but I just can't believe a tick bit should still be itching after 20 years something is wrong need comments should I get tested??
O I also recent dleveloped tingling and numbeness in both hands_at fingertips started 2mos ago (maybe) later I'm getting all kinds of diagnosis but I follow my heart my mind and the Lord I'm not a trail run
Should you get tested? Why shouldn’t you?
What if you’re allergic to cetriflaxone penicillin classification of antibiotics?
Then you might try Cryptolepis Sanguinolenta. It's an herb, with few if any side effects, that kills Malaria spirochetes and has recently been found to kill Lyme spirochetes.
James West I ended up taking IV ceftriaxone and not having any allergic reaction to it. It worked well for me
@@jameswest4819 Is it similar to quinine?
@@jameswest4819 What about Ivermectin? Ive heard it also works well. Some of us who have Lyme were also infected with Covid...
Strep throat causes turrets ocd condition. If you have a condition like turrets, the cdc get the drs to say the patient have dellusions of Parasitosis. They wouldn't have their condition without the spirochetes attaining the autoimmune system and brain. That is why they have ocd. The ocd is not the cause it is the result. If they had ocd before they were likely to have streptococcus or some other viruses before. You can have more than one. There are many viruses about.
I am a morgellons sufferer and this is what happens. I have found people that have not even got an ocd condition, with morgellons disease the cr follows the script of offering the md sufferer with a phychiatrist.
Perhaps if they attended the root cause, the virus, then the neurological patients would be healing.
check out SOT (Supportive Oligonucleotide Technique),
I wish you could treat me!
I had Bell’s palsy 20 years ago. I got treated with Lyme in 2017 and only spent about $8000 but I’m going to get retested.
Acupuncture helped my bells palsy. I got BP 2x
This is fascinating! I wish she could tell me what strain I have/had. i've never heard about the Bells Palsy and Lyme!!!! I have horrible Neeve Pain in the roof of my mouth that is unremitting. I wish she was my doctor!!
Cryptolepis Sanguinolenta is an herb you can buy on the internet but be careful of the quality.
@@jameswest4819 What is best source or brand? Have you used it yourself?
silenced epidemic, thank you for helping lymes victoms.
She has not learned enough from her experience in diagnosing and treating lyme, and I wonder what percentage of her patients end up going elsewhere for treatment afterwards, because she will not help them for as long as they need help. She only departs slightly from CDC orthodoxy. This is a shame because it means we will not get the kind of neurological expertise that is needed. Neurolyme is far more common in the U.S. than she describes and that is orthodoxy too that fails to detect it. Many people have both neuro and arthritic symptoms in the U.S. Seems like a neurologist should know this by now.
She is still relying on the two tier test, so that tells you right away that this is old school outdated information. Says direct tests not available, and disses those who have had effective ones. This sure won't get us any further.
Nothing said is adequate to reveal what happens in cases that are late catches, and people who never saw the tick. This is the buik of those who end up failing the acute stage treatment she and everyone else follows, thanks to CDC and IDSA incompetence. And NIH giving insufficient funding for years and to the same people who guarantee not to rock the boat, or get us even one step closer to real help. This is where culture could work, unlike early stage diseases when it isn't fast enough. If you have already had lyme undiagnosed and untreated for several years, what is another month to wait for culture results?
Another issue with her talk is that she describes differences between Eurasian and American lyme cases, but does not address the possibility of strain and species differences in the U.S., which there certainly are and may affect the presentation and symptoms that are produced. Looking for summer flu in a case that was mostly latent for several years is not going to be helpful long after. Should we not be finding out why these cases don't blow up for several years? Is it a different strain that produces different time frames? And the biggest failure here is to understand that treatments for acute cases will not cure chronic cases as reliably as she seems to think, or maybe she just doesn't understand infection well enough to treat it in all its variability. An open mind is better when dealing with microbial disease or you will never be effective in treatment, or understand that microbes can elude the best that humans can currently throw at them.
I thought that when she said long term antibiotics are not necessary
Cryptolepis Sanguinolenta is an inexpensive treatment. Do a little research.
Thank you! I stopped listening when she said she doesn’t use Igenex, and also said things about cognitive issues such as depression.. which is a symptom of Lyme.. she also says pain and other symptoms will remain in a “small number of patients”. More people need to post comments here explaining why she shouldn’t be listened to. There are many much better videos on UA-cam about Lyme testing and treatments.
Try, check Methylene Blue
prolonged period of time? greater than 24hours? not true.
Lyme is tertiary (3 stages)
Ivermectin-i wonder if it helps.
Spirochetes are a parasites. Iverm3ctin kills parasites
It was a great lecture until you said Lyme is almost always transmitted by ticks🤦♀️🤦♀️🤦♀️
@Sloane Stat mosquitoes, fleas, etc. They are now researching sexual transmission
Sadly it is...🙄💚.. often..
in utero, sexually, other vectors - just because she speaks with authority....... it's like she's overcompensating for trying to mislead people
I've been going through this, without realising it was Lyme. I had Palsy, depersonalisation, twitching, meningitis. I didn't have antibiotics, and now I am fine, several years later and getting better all the time. Perhaps you just have to wait until the disease runs its course?
Almost 4 years in this miserable state. When does it run its course? We all wonder
Um, NO.
You got lucky. My life is ruined by Lyme Disease. Late stage detected in 2009 due to ACA, a Lyme specific skin disease. Got 6 weeks or oral Doxicycline. Thought I was healed, but symptoms crawled back in, very undefined ones at first. Had no clue, until it was too late. Extreme headaches, shooting pains, numbness, muscle pains, exhaustion, joint pains, rashes, allergies popping up, emotions all over the place like I wasn't myself, tinnitus, extreme sensory overloads, POTS, etc. Didn't get proper treatment for years. Finally found a doctor who gave me longer term antibiotics and also in my veins. Got extremely ill of that, couldn't handle the full regime. Stayed on it for 9 months on and off. Things were going much better.
But I relapsed and there's nothing helping now.
Day before yesterday I was working in the garden a bit with the sun being low. Day after so sick! Dizzy from a few minutes drive. Dizzy from getting up from a chair. Walking like a drunk person, so unsteady. Yeah, I'm totally oversensitive for light. Hadn't thought of it, while working in the garden (very light sitting work).
Before Lyme I was energetic, slim, eating real well, normally sportive. Now I'm a cripple, who can't walk longer than a few to fifteen minutes, before I literally cannot move anymore. I'm very sensitive to sound. I'm extremely sensitive to smells. Call myself half a dog, for I search the fire, when someone makes a coffee in another room!
Am exhausted ALL the time, leg muscles can hardly get me up the stairs. I ought to be in the prime of my life, but my health is worse than that of my elderly neighbors in their late 80s and early 90s...
The disease is running it's course alright... I've tried Everything in my power. Herbs, training, diet, antibiotics... So tired. My mind at times still creative, but the power to execute my ideas long gone. Won't have it for true on my good days. So my house is full of stuff I can't handle on all the other not-good-at-all days.
Happy for you, that you got over it. But yeah, you got lucky. The rest of us not so much.
Did I mention the constant bullying by doctors? The love to add insult to injury. You are not helped, but you are ridiculed, dis-believed, sometimes even named it's all in my head. Oh God, revenge me on those mean bastards in white coats, getting good money for deserting and hurting us.
Lost my thyroid gland, lost my uterus: they were making knots. Now my lower back is rubbish, 4 discs of my neck severely damaged. The idiot doctor had the nerve to even blame me for that.
You just got lucky.
@@gardenjoy5223 Lyme is definitely challenging and hope you can start finding your own healing. The pathogen can get very, very dark and destructive if you give in. Of all the modalities I've tried to get well since, biomagnetic pair therapy has been the most painless, least expensive, and the most effective long term, and the Fremedica Wave One device and Primal Trust limbic training have been helped with mindset, and long term emotional and immune support. Hope you find your way! Maybe a local Lyme support group can help.
@@askchristine111 Thanks for replying. But your wordings of 'the pathogen can get very, very dark and destructive if you give in' is truly offensive to me.
Like it's my fault, that I didn't heal. Like I stated, I did everything in my power to heal. I didn't give in. Still don't. Yet, the illness is real and is robbing me of almost everything.
Blame the raper, not the one being raped.
Cryptolepis Sanguinolenta or commonly called
I’m on that for babesia. How long did it take you? Have any symptoms today?
@@nomadicexplorers Did it work? I'm researching it now plus Ivermectin...
Why is this information 9 years old??
Her certainty about what physicians should be seeing or doing is very unnerving. The physicians I have sought out are not inquisitive, they are not treating full blown Lyme. They send you away very sick and don’t seem to care what happens to you. Frankly, we are very tough cases. There is a lot to be learned from our cases but the majority of physicians, so I hear of and have experienced, cover their ears. These therapies are inadequate, 21 or 28 days is ridiculous with a slow growing organism. We are caught in a living hell. Hello, is anybody in charge listening?
Same here.
Cryptolepis Sanguinolenta, look up this herb. It appears to be what I've been looking for since I got bit back in 1984. I just started but all the research I've done says this is the best broad spectrum antibiotic and it is just a lowly herb with about 42 members in the same family. It appears to be extremely effective but of course, since it is easy to obtain, big pharma won't study it because they cannot patent it.
@@jameswest4819 Hi James, How are you doing? Did this Cryptolepis Sanguinolenta, the herb you advised against Lyme Disease, really help you and/or others? If so, in what form and dosis and for how long do you recommend taking it? What were the benefits you saw?
Really hope you will reply :)
Hello Kathleenie, I got bit by two innocent looking little ticks in 1984 on my left ankle and since there were two of them there wasn't a bullseye rash, only and itchy red one. A day or so later, I had flulike symptoms. Back then there wasn't much known about Lime Disease. I was really sick for a couple years on and off...mostly on. There are about 30 varieties of lime disease that I've heard of an they only test for 2 or 3 on the west coast, and those don't exist on the west coast...go figure.
At first the only things that seemed to help me, by accident, were taking two broad spectrum antibiotics for around 2 months for a bad infection on my legs and repetitive scuba diving. That didn't stop it all the way but seems to have helped a lot. Later I read about hyperbaric chambers supersaturating your body with oxygen to help heal gangrenous wounds.
The spirochetes are pretty sneaky and hide out in various tissues. Instead of using oxygen to "breath" they use manganese which apparently confuses our immune systems. I opted to use a chelated manganese supplement because my nervous system was being compromised by the little rascals. The root that I tried was not a miracle cure but seemed to have helped a little.
@@gardenjoy5223 I got bit by two innocent looking little ticks in 1984 on my left ankle and since there were two of them there wasn't a bullseye rash, only and itchy red one. A day or so later, I had flulike symptoms. Back then there wasn't much known about Lime Disease. I was really sick for a couple years on and off...mostly on. There are about 30 varieties of lime disease that I've heard of an they only test for 2 or 3 on the west coast, and those don't exist on the west coast...go figure.
At first the only things that seemed to help me, by accident, were taking two broad spectrum antibiotics for around 2 months for a bad infection on my legs and repetitive scuba diving. That didn't stop it all the way but seems to have helped a lot. Later I read about hyperbaric chambers supersaturating your body with oxygen to help heal gangrenous wounds.
The spirochetes are pretty sneaky and hide out in various tissues. Instead of using oxygen to "breath" they use manganese which apparently confuses our immune systems. I opted to use a chelated manganese supplement because my nervous system was being compromised by the little rascals. The root that I tried was not a miracle cure but seemed to have helped a little.
Wouldn't long term antibiotics help because of the slow life cycle of the Bb. Spiro?
They do help, but the moment ABX are taken, the Borrelia go into cyst form or create Biofilms that doesn't allow the ABX to penetrate. Treatment needs to be staggered, changed around and then the stealth pathogen can be taken by surprise after it comes out of hiding.
What a load of crap. Abx depresses your immune system? You become antibiotic resistant to other infections? How can someone who has active infection, assumingly lyme, say this nonsense?
You know there are persisting infections besides lyme that need long term abx treatment for years, like tuberculosis? The chance of dying from not treating tuberculosis is way higher than the chance of dying from resistence to other infections. With your attitude towards medicine, a lot of people dealing with lyme, tuberculosis and other long term infections would die, simply because you have no REAL data that shows anything that you claim to say and ALL the opposite data showing what happens when you dont't treat.
Antibiotics are not the ideal treatment for Lyme, but regarding conventional treatment it was all they were willing and able to use....until the insurance companies balked at the cost of long-term use. Now there is no conventional cure as far as I know. One needs to see a LLMD, which will cost a lot, or research alternative therapies and muddle through.
As soon as someone starts to use demeaning criticism to antagonize others when they make an honest comment it is a sure indication that industry shills are out and about.
They have helped a lot of people, if they could get them. Many cannot.
The antibiotics help to kill the bacteria but as someone mentioned already it forces them to go into a protective biofilm which then makes the antibiotics useless. So in addition to the antibiotics, a biofilm buster needs to be taken to break the biofilm and allow the antibiotics to kill the bacteria.
Why is this info 9 years old??? Come on!!!!
please check it out there are books on it pray to God ask for forgiveness of sins. he can heal also
Maybe is better to ask those ,who are spraying chemicals from planes as well as different kinds of bacteria, fungus and the list is going on….to Stop Doin* that and be prosecuted???!!!
So much misinformation in this. Perhaps things have changed in 8 years, but nearly everything she said in the first 10 minutes is wrong
She is wrong about many things .
Parasitic, as in worms?
I don’t think she knows what she is talking about I don’t care how many degrees she’s got
Cryptolepis Sanguinolenta
Information is constantly updating, and recommendations made even a few years ago by the best doctors are already outdated. It may have been the best they could come up with at the time. Thankfully, times are changing and new breakthroughs are within our reach.
Phage testing can now be done to tell for sure whether or not Lyme is present in the body. Look up RED laboratories on YT. Dr. 'T' is the former head of clinical studies at the Pasteur Institute. Here's hoping this kind of testing will become mainstream, and we will no longer have to depend on ineffective (and prohibitively expensive) testing that gives false negatives, forcing so many of us to continue in our suffering.
Phage therapy is on the horizon, and there is a trial currently ongoing with phages and energy medicine used to treat Lyme. Search "New Lyme-Phage Treatment Appears to Eliminate Borrelia" and "The Effect of Antibiotics on The Phageome and Microbiome." Educate yourselves, and keep your finger on the pulse to stay up to date. Hopefully soon we will be able to beat this monster.
At this point I feel like I can't even go in my backyard or get a dog now (was considering it, as my own beloved pup died over 2 years ago). This neuro-Lyme is so bad, if I ever get over it, I don't ever want to deal with it again!
gross under reporting.
Is this a joke?
Cryptolepis Sanguinolenta, this is not a joke and you'd better check it out if you have chronic Lyme disease.
@@jameswest4819 Where do you buy it from?
@@Xyzjdisbzjd I buy a tincture off Amazon brand name Herbamama. I bought enough Cryptolepis powder from some seller in Canada to make about 3 months worth of capsules. I can't remember the brand but he was the only reasonably priced source that appeared legit. I remember reading that it takes about 90 days to kill off the cystic form of Lyme disease. I have been using both for almost 3 months. I could be imagining things with a placebo effect but it seems like my joint pain has almost disappeared.
@@jameswest4819 will it work as well against bartonella and the like? I have lyme bart , survived babesia, have viruses and and and.... it is a nightmare and even my friends do not fully understand. One thinks lyme is just joint infection
.....
@@jameswest4819 thank you so much for helping out
outdated inaccurate information. Please remove this video it's misleading
Wait, it’s not still valid? Helpppp. What do you mean. I was hoping to try and see her. I am so overwhelmed
THis bullSHT and should be taken down
Why?
41:47 post infectious immune mediated syndrome. Chronic Lyme arthritis doesn't respond to antibiotics.