Understanding Ryan (Phelan-McDermid Syndrome)

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  • Опубліковано 23 лип 2017
  • Ryan is 1 of only 1500 people to be diagnosed with Phelan-McDermid syndrome. Many underestimate his intelligence due to the unique characteristics associated with this condition.
    But those who get to know Ryan soon learn that he understands the world in his own way.

КОМЕНТАРІ • 94

  • @Jakethesnake7321
    @Jakethesnake7321 2 роки тому +57

    Maybe I’m missing it somewhere, I don’t know your name but you’re one of the most outstanding human beings I have ever had the pleasure of encountering even if not in person. You are beyond description. I salute you.

    • @R.F.9847
      @R.F.9847 2 роки тому +21

      You mean the guy who runs SBSK and interviews everyone? His name is Chris and I agree, he is amazing.

  • @diipped
    @diipped 2 роки тому +22

    You're amazing Ryan! My daughter was also diagnosed with Phelan-McDermid Syndrome at a young age (She's 9 now) and while it has been a struggle, I love seeing the joy on her face. The way she views the world is honestly, life-changing. Thank you for this interview, and thank you for being you. You spread a lot of joy, kindness, awareness, and patience on this channel. Never stop.💜

  • @nugsymalone1247
    @nugsymalone1247 2 роки тому +25

    His eyes are like the dark blue of a night sky, very unique

  • @Heather_Morgan
    @Heather_Morgan 2 роки тому +43

    Great interview, Ryan! You seem like a kind, interesting, fun young man.
    Ryan's mom seems wonderful. You can tell she loves her son so much.

  • @TVHouseHistorian
    @TVHouseHistorian 3 роки тому +212

    I already love this guy. If being silly makes him laugh, I’d be happy to make a fool of myself in the process of getting to know him! God bless, Ryan!

    • @marilyntape508
      @marilyntape508 3 роки тому +10

      I’m 70 and I love being goofy with the right people 😊🇦🇺

    • @dirkdiggler8427
      @dirkdiggler8427 6 місяців тому

      Did you go? I hope you didn’t just write this comment. Have you reached out to him & “make a food of yourself”. You need to follow through

    • @GeeNoniGee
      @GeeNoniGee 4 місяці тому

      ​@@dirkdiggler8427Some of us just need to say less.

  • @tracy4591
    @tracy4591 3 роки тому +57

    Your awesome Ryan! You've got a great smile 😃 Wishing you and your family love, happiness and blessings ❤

  • @caleigh2114
    @caleigh2114 3 роки тому +153

    Aww, he doesn’t like kitties. 🥺 But gotta respect his honesty. 🤧😂

    • @carlasuannelockett1694
      @carlasuannelockett1694 3 роки тому +10

      I don't like them either mainly because I am DEATHLY allergic to cats

    • @thermionicemission6355
      @thermionicemission6355 3 роки тому +8

      @@carlasuannelockett1694 There are hypo-allergenic cats!

    • @carlasuannelockett1694
      @carlasuannelockett1694 3 роки тому +4

      @@thermionicemission6355 your point? Idc I have enough to deal with medically I won't put myself at risk of dying.

    • @desertrose3511
      @desertrose3511 2 роки тому +8

      @@carlasuannelockett1694 okay sheesh, just from one comment we don’t know your medical history or your apparent loathe of cats 🙄

    • @carlasuannelockett1694
      @carlasuannelockett1694 2 роки тому

      @@desertrose3511 THEN sweetheart YOU NEED TO REREAD MY COMMENT OR GET GLASSES!

  • @amandacotten1654
    @amandacotten1654 3 роки тому +29

    Hello Ryan! I think you have an awesome smile and you seem so intelligent. I really hope people will always treat you the way you deserve to be treated.

  • @lefthanded22
    @lefthanded22 2 роки тому +11

    I found this channel yesterday, Nov 25th, I'm watching all the videos and I'm enchanted with the sweetness of this guy. God bless your forever, Chris!!!

  • @drewtweedie7408
    @drewtweedie7408 2 роки тому +20

    Ryan you got such beautiful eyes and a great smile. Hope you're doing well brother.

  • @marleenninaka1303
    @marleenninaka1303 3 роки тому +14

    Hi everyone: It's so nice to see you all again on UA-cam. I want to meet you all one day. Take care and stay safe.

  • @borderlineiq
    @borderlineiq 2 роки тому +7

    What an emotive smirk. Thank you, Ryan, for sharing with us.

  • @christinemartin7819
    @christinemartin7819 2 роки тому +3

    I've been watching your videos but I never realized you made one about my sister's disability! I'm so glad you're bringing awareness to Phelan-McDermid Syndrome!

  • @elisabun549
    @elisabun549 3 роки тому +6

    He is so beautiful! And so kind….❤️

  • @taylorzesiger8168
    @taylorzesiger8168 Рік тому +2

    I love hugs man people are so hurtful when it comes to people wanting a hug especially if they need to be comforted!!!!!!!! Hugs are important!!!!!!!! Especially if people need love and affection and need to be comforted if they’re sad or having a really bad day or even crying!!!!!!!!!!!!!!

  • @Swiftie4Life1331
    @Swiftie4Life1331 Місяць тому

    Chris, thank you so much for making this platform. I am really inspired by you and possibly making these peoples days ❤❤❤

  • @tuesday3381
    @tuesday3381 2 роки тому +6

    his smile is soooo pureeeee my hearttttt

  • @mariawallbergsinger
    @mariawallbergsinger Рік тому +1

    So much light in your eyes! ❤️

  • @melanietoth1376
    @melanietoth1376 2 роки тому +3

    Thanks, Ryan, for sharing with us. ♡

  • @sophtheloaf28
    @sophtheloaf28 2 роки тому +2

    His smile is the best. ❤️

  • @seczajkowski
    @seczajkowski Рік тому

    He has some of the most beautiful eyes! His blue is so unique!

  • @Okiedokie222
    @Okiedokie222 3 роки тому +5

    Great job! 🌸🌸🌸

  • @davidfranj7339
    @davidfranj7339 3 роки тому +2

    You're awesome Ryan.

  • @tadpole53
    @tadpole53 3 роки тому +17

    Ryan looks and sounds like such a sweet man 💖

  • @theirbrotherhoodandfriends6101
    @theirbrotherhoodandfriends6101 2 роки тому

    Salute to everyone in this video. My heart is melting❤

  • @missmystery22
    @missmystery22 6 місяців тому

    My son has PMS and he is the sweetest boy in the whole world much like Ryan ❤

  • @JonathanHernandez-mm3nd
    @JonathanHernandez-mm3nd Рік тому +1

    May god be with Ryan and god bless his family and god bless you Chris.

  • @zelda4lifeschramm
    @zelda4lifeschramm 2 роки тому

    Hes so handsome and smart.Another friend made :). thannks as always for sharing.

  • @DogGran
    @DogGran 3 роки тому +1

    BEST SMILE I HAVE EVER SEEN 😁 👏🏼

  • @natsdirksen9628
    @natsdirksen9628 2 роки тому +1

    He is so unique 💕
    I love him already
    God bless you all abundantly 🙏

  • @corinneweisbein6679
    @corinneweisbein6679 2 роки тому +3

    Ryan is absolutely good looking and handsome 😍

  • @MissMocha
    @MissMocha 2 роки тому +1

    What a great guy.

  • @kansasymbremchef6951
    @kansasymbremchef6951 3 роки тому +8

    Cool guy.

  • @rosekatongo6854
    @rosekatongo6854 2 роки тому

    The smile is amazing

  • @tyrellwilliams2914
    @tyrellwilliams2914 Рік тому

    Bless you all and the Very Gifted boy ❤️❤️💖 and Very Loving family 💗💗💗 In Love and Care and Concern Always ❤️❤️❤️

  • @trentp8035
    @trentp8035 2 роки тому +6

    I hope and pray to God that medical science will advance to a place where we can repair those with disabilities and allow them to have functioning lives. Even though it seems like this young man has a very productive and fulfilling life.

    • @river9215
      @river9215 Рік тому

      Disabled people aren't broken. Just bc people need additional help doing things doesn't mean they don't have full filling lives. No repairing is needed.

  • @aremanyasser2181
    @aremanyasser2181 2 роки тому +1

    This guy is soooo cuoooot 🤗

  • @siannonblack7145
    @siannonblack7145 2 роки тому

    He’s a Suga!!! I see a big heart! BIG LOVE RYAN from Tennessee 💗

  • @redlady222
    @redlady222 Рік тому

    What a sweet man❤

  • @bouncingyellowskull
    @bouncingyellowskull 7 місяців тому +1

    Treatment on the way. Exciting times

  • @Fnanaanf
    @Fnanaanf 2 роки тому

    I know the founders of the PMS foundation!! Wonderful organization

  • @scottkoenig6326
    @scottkoenig6326 Рік тому

    God bless these people. "Whatsoever you do to the least of my brothers that you do unto me."

  • @HollySikora
    @HollySikora 2 роки тому +1

    Hi Ryan, I like when people I like hug me but it makes me feel a little funny if I don’t know them that well.

  • @johannaweber9023
    @johannaweber9023 2 роки тому

    Ryan you are awesome!! 🧡 I like you very much! Greetings from Austria

  • @user-ed6ki6do1s
    @user-ed6ki6do1s 22 дні тому

    지구반대편에서 저희아이와 같은천사를보내요~건강하세요~♡

  • @carlasuannelockett1694
    @carlasuannelockett1694 3 роки тому +1

    💜💜💜from Oklahoma

  • @notmarkeza7937
    @notmarkeza7937 Рік тому +1

    Support from me!

  • @here4usa17
    @here4usa17 2 роки тому +1

    “I’m not a touchy feely guy either” as his arm is around the kid….. ;)

  • @jeffreyskinner7167
    @jeffreyskinner7167 2 роки тому +2

    A beautiful young man you have raise mom . It’s s privilege to get to know you

  • @ivanaprpic238
    @ivanaprpic238 Рік тому

    A shame that they don't touch on AAC - I'm an SLP who works with a few little ones with PMS and many use devices or boards to communicate...

  • @kathrynoneill5862
    @kathrynoneill5862 3 роки тому +3

    He is such a doll

  • @zelda4lifeschramm
    @zelda4lifeschramm 2 роки тому +1

    When was his first interview? Is it linked anywhere?

  • @spinneylainey
    @spinneylainey Рік тому

    Ryan’s gorgeous

  • @annabellek4513
    @annabellek4513 Рік тому +1

    My sister also has Phelan Mcdermid syndrome. She is four years old but cannot talk.

  • @aronlelenora9572
    @aronlelenora9572 2 роки тому +1

    ❤❤❤❤

  • @auti34
    @auti34 2 роки тому

    One of my friends has this

  • @TamarIngleton
    @TamarIngleton Рік тому

    Ryan is extremely beautiful❤!!

  • @Bratattack333
    @Bratattack333 Рік тому +1

    My sister is 15 and this is what she has. We’ve recently discovered letter boarding. Has this family checked that out?

  • @kennypuffle7433
    @kennypuffle7433 2 роки тому +1

    Cute 💕

  • @arsalanabolfathi552
    @arsalanabolfathi552 Рік тому

    ❤❤❤❤❤❤❤❤❤👏👏👏👏👏

  • @josejavieragramontedelaros6534

    I love you my friend ❤❤❤❤❤❤💟💟💟💟

  • @xxchristianxx6945
    @xxchristianxx6945 Рік тому

    💯

  • @auti34
    @auti34 2 роки тому +1

    My friend has this with autism .I just have autism

    • @Hellohihey670
      @Hellohihey670 2 роки тому +1

      Thanks for sharing, God bless you and have a wonderful day!

  • @carleenmejzastrumunderthes4130

    Do you like playing games such as board games?

  • @yomama8873
    @yomama8873 2 роки тому

    🤩🤩🤩💖💖

  • @Cetrifuga1945
    @Cetrifuga1945 Рік тому

    Ragazzo nn dici niente sei un grande fammi un sorriso per favore ti prego 🙏 bravo così adesso vorrei sentire la tua voce

  • @thescientistschurch
    @thescientistschurch 2 роки тому

    Cheeky monkey. I bet ya heaps of Fun to hang with.
    Look into his eyes. Ya a special One💖🙏. Intelligence comes in many forms. It's the relaying of... that the issue. PC software or Art. Math's, puzzles and mysteries. Animal interactions. Put some cracks in the wall....to grow, mature, experience.
    With my warmest regards and admiration👍🙏🇦🇺

  • @hotrichard4266
    @hotrichard4266 2 роки тому +4

    "How are you"
    "goo"
    He tried, never underestimate him

  • @louisalexander5815
    @louisalexander5815 2 роки тому

    A tattoo?

  • @ozcozfozc
    @ozcozfozc 3 роки тому +6

    How are you?
    G

  • @Cetrifuga1945
    @Cetrifuga1945 Рік тому

    Ciao come va no ti piacciono i cani o i gatti 👍cosa mi dici nn è facile esprimersi ti da fastidio qualcosa del passato io vorrei aiutare ogniuno a i suoi metodi nn si può solo parlare ci vuole delle finanze x aiutare le famiglie di questi ragazzi cosa ne pensi ma a te nn va bene nn guardare me guarda le conclusioni .

  • @brandonnoyes1364
    @brandonnoyes1364 2 роки тому

    What a little baby

  • @FrancisTheBerd
    @FrancisTheBerd 10 місяців тому

    I'm sorry but he sounds like a minecraft villager 🤣💀
    Cool dude though

  • @dutchvanderlinde8474
    @dutchvanderlinde8474 2 роки тому +2

    "How are you?"
    *"Goo."*

  • @justdonis1891
    @justdonis1891 2 роки тому

    he need raw meat aajonus vonderplanitz