Hi Jolene! You probably don't remember me, but about 12-15 years ago I spent a couple days with you down in Phoenix and met you through my old friend group. You were radiant and I never forgot you. In fact, I have periodically looked for you throughout the years to perhaps reconnect because I just always thought you were an incredible individual! To say that you made an impression, is obviously an understatement. I hope you're doing well. Please know I have always prayed for your health, happiness and success! Sending love! 💕
Wow, I remember you like yesterday and think of you often!!! I feel the same and send love back. I don't have social media but please email me and I'll give you my phone number! I would love to chat and plan on visiting Arizona in the near future. I have two emails they are josamanka@gmail.com or joroserein@gmail.com. I can't wait to catch up!
Hey! Fellow IBD warrior here (Crohn's) and I am also going through this. I feel sick to my stomach every time I lose hair (which is all the time). Did you notice regrowth while actively losing hair, or did the regrowth happen after you were done shedding? Also, were you on prednisone? I feel as though that has contributed to my TE as well.
How has your hair loss been ? I have had chronic telegen effluvium since December 2019 after the birth of my son . 20 months on and off . I went to the dermatologist mad she gave me prescription minoxidil and now when shedding is like 10 times worse. Been on it for a month. Praying the shedding phase from the meds end soon. I have been crying my eyes out for days. I cut my hair to chin length and just really. Depressed. Glad I found your channel ❤️
Hey! I am happy you reached out. This community is very supportive. TE is definitely depressing. We all have up and down days. It's okay to feel those feelings. My TE has slowed but depending on my illnesses, the pain and stress I am in etc. I will shed more or less. I think that is how things are going to be going forward so I try to work on acceptance and controlling my emotions techniques. These situations are a personal journey, I share what helps me so it can maybe help others. Has your derm done a biopsy? Remember that you have a choice to take what Dr's recommend. If it is not helping and your intuition tells you it is not for you go with your gut. There are many pressures put on people when it comes to prescription medications and it is a difficult choice to make when you desire an issue to go away. I deal with this on a regular basis managing my diseases. Some things work, some don't and others I feel deep down I don't want to take. It is important to advocate for yourself as well and weigh your options. Try your best to direct your energy to aspects of your life that you are grateful for and have hope.
@@joleneroserein8123 thank you for your response back. No biopsy as she is certain it is TE. I don’t have any balding spots thank god, my hair is just half the thickness it was a year and a half ago . She says I have had constant triggers. The birth of my son, then I had a cancer scare, then a colonoscopy which had me under anesthesia , my job that was beyond stressful working 60 plus hours a week while homeschooling my children. ( I have 4 - 10,8,4,1) and then I had breast implant surgery and went under anesthesia again. She is hopeful that I need to be patient with the minoxidil and let it do it’s thing for the next few weeks and hopefully the shedding should subside . She gave me the script 5 months ago and was uneasy about it so I decided to wait in hopes that it would correct itself on its own but it hasn’t. So here I am a month in . Too late too turn back now. I am using the topical , she wants me on oral but there are a lot of side effects I’m not sure I want to risk . Trying to be patient and get myself out of these funks but it’s so hard. I feel sick to my stomach everytime I wash or brush my hair. People says it’s just hair and I know that there could be a lot worse things going on in my life but it’s still hard. Gonna try and be brave and if the shedding doesn’t stop I guess I could look into a Wig for while 🥺
@@jennifermurschell7061 I am sorry to hear all of that. Your situation sounds similar to mine with constant triggers from stress, surgeries, diseases and day to day grind. I too lost over 50 percent of my hair. Life is overwhelming and hard. I can tell you are very strong and am sorry you have to go through all of that. People love to make those comments that don't help at all and are abrasive. It's a challenge to understand something you are not going through which is why support groups are helpful. Just because you have more serious things going on in your body/life does not make something else less difficult to deal with. Not to mention adding another thing to your already upsetting and tough to manage pile. I can relate to how deflated and exhausted that makes you feel. I think looking into a wig is a good idea. Self esteem really gets depleted. This is just food for thought to follow. I seen two derms, one of which I have been going to for years and I am a second opinion kind of woman so I went to another. They both told me after 1 year of shedding they perform a biopsy to assure that it is not diffuse alopecia and it would help give me peace of mind knowing for sure it is TE and not fpb. Once again all doctors are different which makes things more complicated. I'm only putting that out there for you to do as you please with it but it sounds to me that you are following your intuition which is the most important. I am sending you thoughts of healing and strength.
@@joleneroserein8123 thank you for the advise . If I don’t see improvement of shedding over the next 2-4 weeks I will bring up the biopsy when I see her again in September ❤️
Hum how odd. I'm sorry it's not working well for you. It's very loud on all of my electronic devices as well as others I made this video to help. No one I have talked to in any of my chats/comments have reported issues. I use a good microphone. If you have any questions I am happy to respond in a message 😊
Hello everyone sorry for the delay, I've been continuing to go through a lot health wise. I am going to look at my calendar and work on setting something up live in the next couple weeks. In the meantime keep your heads up and try your best to focus on what you are grateful for. Oh and stay out of the mirror if you can. Sending positive vibes to all of us.
Hey there big hugs back!! Your comment made me feel good. I'm glad my videos are helping you. I didn't do much more for the shedding aside from what I talked about in these videos. It got to a point where my other issues were so bad I didn't think about my hair loss as much. Chopping it off was also pretty helpful although it was difficult but good came out of it.
@@joleneroserein8123 thanx for your message It s very kind of you. I want Just Say that your hairs are very nice i hope your Shedding has slowed Down. You notice regrowth?
@@lararuffinatto2148 Hello, I really appreciate your compliment. I think having curly hair helps hide hair loss a little better. I have noticed regrowth although my texture is different now. My shedding is much less than it was but still fluctuates.
Hey there, I don't know much about prp so I am unable to give advice on that. My dermatologist told me I just have to ride it out because it's from my chronic autoimmune diseases. She did give me topical scalp oils for the burning but from what I understand and going through it twice it has to run its course and unfortunately nothing is going to really stop it. Trying your hardest to be patient/less stressed and promoting a scalp care routine is the simplest way to help. Good luck and stay strong.
@@moumitaroy5796 I have heard of what they are but do not have experience and a great wealth of knowledge on those injections. I would not want to steer you in the wrong direction. They were not offered to me as an option but if your dr is recommending them I'm sure they could be helpful. Are they available for you to get? If you think they are safe and will work for you, you could give them a try.
I'm also searching the same thing. Currently I'm in a very bad situation. My hairfall is very severe after typhoid. Don't know what can I do and doctors are not taking my hairfall seriously. I'm about to get bald. Its very scary being a bald girl in India. People in western countries are supportive, they don't make fun but here in small cities of India, people will kill me by their taunts and no one is ever gonna marry me.
@@alvinsimon4107 I am so sorry to hear that. It is terrible that people treat others in such a manner. True beauty comes from within. Try to manage your stress the best you can. TE unfortunately needs to be rode out until its course is finished. Are you able to get a wig or topper to make you feel more comfortable? You are not alone, many people go through this and people can be there for you online through UA-cam channels like this or support groups for hair loss.
Morning I'm so sorry to hear you are dealing with this. It is very difficult and what is going on in the world is not helpful with any stress you face. I'm sending you positive vibes. My initial trigger was a flare up of my ulcerative pancolitis accompanied with ecoli, and c diff. Then lice from my neice and surgical removal of a breast tumor. All of those things lead to it falling out for 14 months and it is just slowing again now. How about yourself? If you care to share. Any stressful event physically or emotionally can set this off.
@@joleneroserein8123 I had TE twice in the past; once from low iron (lasting about 6-7 months) and then once from the flu with high fevers, which lasted for 3 months. My trigger this time I believe was starting a new birth control pill, then stopping it, accompanied by extreme emotional stress/trauma from the hormone changes and TE itself. Did you ever experience any scalp sensations like itching or tingling during your TE? I did not have it in my prior TE bouts but I'm definitely having it this time.
@@Filmyism I'm sorry to hear that. It's crazy that there are so many things that can trigger TE. My scalp was terrible both times and worse at the neck nape, with itching, burning, pain, red bumps and an overall irritated feel on my entire head. My derm gave me a cream that helped cool it called betamethasone dipropionate and a medicated scalp oil that was even more soothing called fluocinolone acetonide topical oil. I still use these. I also used a couple different shampoos that are in one of my other videos (pics of the actual bottles) and I am currently using head and shoulders with tea tree oil that helps my scalp better. It took some trial and error to figure out what worked best for my head. I'm sure you will have to do the same but those are some things you can look into and try!
@@joleneroserein8123 hey i am suffering from t.e and i feel like burning sensation on my scalp and i have red bumps also in the scalp i am feeling like i will quit my life...facing 300-400 hairfall...can you tell me what was happen to you in t.e....it will help me....plzz do reply i am getting so much hairfall
@@meenaljha3992 do you really face hairloss like 300 400 daily???? I'm also losing a lot of hair after being covid affected..what was your trigger..you can share your experience
Hi Jolene! You probably don't remember me, but about 12-15 years ago I spent a couple days with you down in Phoenix and met you through my old friend group. You were radiant and I never forgot you. In fact, I have periodically looked for you throughout the years to perhaps reconnect because I just always thought you were an incredible individual! To say that you made an impression, is obviously an understatement. I hope you're doing well. Please know I have always prayed for your health, happiness and success! Sending love! 💕
Wow, I remember you like yesterday and think of you often!!! I feel the same and send love back. I don't have social media but please email me and I'll give you my phone number! I would love to chat and plan on visiting Arizona in the near future. I have two emails they are josamanka@gmail.com or joroserein@gmail.com. I can't wait to catch up!
Hey! Fellow IBD warrior here (Crohn's) and I am also going through this. I feel sick to my stomach every time I lose hair (which is all the time). Did you notice regrowth while actively losing hair, or did the regrowth happen after you were done shedding? Also, were you on prednisone? I feel as though that has contributed to my TE as well.
Another question - what type of alopecia does your sister have?
How has your hair loss been ? I have had chronic telegen effluvium since December 2019 after the birth of my son . 20 months on and off . I went to the dermatologist mad she gave me prescription minoxidil and now when shedding is like 10 times worse. Been on it for a month. Praying the shedding phase from the meds end soon. I have been crying my eyes out for days. I cut my hair to chin length and just really. Depressed. Glad I found your channel ❤️
Hey! I am happy you reached out. This community is very supportive. TE is definitely depressing. We all have up and down days. It's okay to feel those feelings. My TE has slowed but depending on my illnesses, the pain and stress I am in etc. I will shed more or less. I think that is how things are going to be going forward so I try to work on acceptance and controlling my emotions techniques. These situations are a personal journey, I share what helps me so it can maybe help others. Has your derm done a biopsy? Remember that you have a choice to take what Dr's recommend. If it is not helping and your intuition tells you it is not for you go with your gut. There are many pressures put on people when it comes to prescription medications and it is a difficult choice to make when you desire an issue to go away. I deal with this on a regular basis managing my diseases. Some things work, some don't and others I feel deep down I don't want to take. It is important to advocate for yourself as well and weigh your options. Try your best to direct your energy to aspects of your life that you are grateful for and have hope.
@@joleneroserein8123 thank you for your response back. No biopsy as she is certain it is TE. I don’t have any balding spots thank god, my hair is just half the thickness it was a year and a half ago . She says I have had constant triggers. The birth of my son, then I had a cancer scare, then a colonoscopy which had me under anesthesia , my job that was beyond stressful working 60 plus hours a week while homeschooling my children. ( I have 4 - 10,8,4,1) and then I had breast implant surgery and went under anesthesia again. She is hopeful that I need to be patient with the minoxidil and let it do it’s thing for the next few weeks and hopefully the shedding should subside . She gave me the script 5 months ago and was uneasy about it so I decided to wait in hopes that it would correct itself on its own but it hasn’t. So here I am a month in . Too late too turn back now. I am using the topical , she wants me on oral but there are a lot of side effects I’m not sure I want to risk . Trying to be patient and get myself out of these funks but it’s so hard. I feel sick to my stomach everytime I wash or brush my hair. People says it’s just hair and I know that there could be a lot worse things going on in my life but it’s still hard. Gonna try and be brave and if the shedding doesn’t stop I guess I could look into a Wig for while 🥺
@@jennifermurschell7061 I am sorry to hear all of that. Your situation sounds similar to mine with constant triggers from stress, surgeries, diseases and day to day grind. I too lost over 50 percent of my hair. Life is overwhelming and hard. I can tell you are very strong and am sorry you have to go through all of that. People love to make those comments that don't help at all and are abrasive. It's a challenge to understand something you are not going through which is why support groups are helpful. Just because you have more serious things going on in your body/life does not make something else less difficult to deal with. Not to mention adding another thing to your already upsetting and tough to manage pile. I can relate to how deflated and exhausted that makes you feel. I think looking into a wig is a good idea. Self esteem really gets depleted. This is just food for thought to follow. I seen two derms, one of which I have been going to for years and I am a second opinion kind of woman so I went to another. They both told me after 1 year of shedding they perform a biopsy to assure that it is not diffuse alopecia and it would help give me peace of mind knowing for sure it is TE and not fpb. Once again all doctors are different which makes things more complicated. I'm only putting that out there for you to do as you please with it but it sounds to me that you are following your intuition which is the most important. I am sending you thoughts of healing and strength.
@@jennifermurschell7061 also feel free to contact me by email if you need to just talk, vent etc. It is on my about page
@@joleneroserein8123 thank you for the advise . If I don’t see improvement of shedding over the next 2-4 weeks I will bring up the biopsy when I see her again in September ❤️
Even with the volume all the way up, I couldn't hear this video hardly at all.
Hum how odd. I'm sorry it's not working well for you. It's very loud on all of my electronic devices as well as others I made this video to help. No one I have talked to in any of my chats/comments have reported issues. I use a good microphone. If you have any questions I am happy to respond in a message 😊
If anyone is interested in a live video where we can all share our telogen effluvium journeys, please let me know!
Hey iam intersted
Plzz reply me...i am getting so much hairfall
Me too...
Hello everyone sorry for the delay, I've been continuing to go through a lot health wise. I am going to look at my calendar and work on setting something up live in the next couple weeks. In the meantime keep your heads up and try your best to focus on what you are grateful for. Oh and stay out of the mirror if you can. Sending positive vibes to all of us.
Hi i Always look at your videos i m in the same situation. How is going? I m so down. Did something help to stop shedding? Big hugs
Hey there big hugs back!! Your comment made me feel good. I'm glad my videos are helping you. I didn't do much more for the shedding aside from what I talked about in these videos. It got to a point where my other issues were so bad I didn't think about my hair loss as much. Chopping it off was also pretty helpful although it was difficult but good came out of it.
@@joleneroserein8123 thanx for your message It s very kind of you. I want Just Say that your hairs are very nice i hope your Shedding has slowed Down. You notice regrowth?
@@lararuffinatto2148 Hello, I really appreciate your compliment. I think having curly hair helps hide hair loss a little better. I have noticed regrowth although my texture is different now. My shedding is much less than it was but still fluctuates.
Hi there, did your TE effect hair on other parts of your body besides your scalp ?
Hi! I mainly lost a ton of head hair and maybe more eyebrow shedding than usual but no where else. I hope you are holding in there okay 🙏
During Telogen effluvium .... Prp is safe ? For hair fall control ?
Hey there, I don't know much about prp so I am unable to give advice on that. My dermatologist told me I just have to ride it out because it's from my chronic autoimmune diseases. She did give me topical scalp oils for the burning but from what I understand and going through it twice it has to run its course and unfortunately nothing is going to really stop it. Trying your hardest to be patient/less stressed and promoting a scalp care routine is the simplest way to help. Good luck and stay strong.
@@joleneroserein8123 ...prp - platlets rich plasma injection ?
@@moumitaroy5796 I have heard of what they are but do not have experience and a great wealth of knowledge on those injections. I would not want to steer you in the wrong direction. They were not offered to me as an option but if your dr is recommending them I'm sure they could be helpful. Are they available for you to get? If you think they are safe and will work for you, you could give them a try.
I'm also searching the same thing. Currently I'm in a very bad situation. My hairfall is very severe after typhoid. Don't know what can I do and doctors are not taking my hairfall seriously. I'm about to get bald. Its very scary being a bald girl in India. People in western countries are supportive, they don't make fun but here in small cities of India, people will kill me by their taunts and no one is ever gonna marry me.
@@alvinsimon4107 I am so sorry to hear that. It is terrible that people treat others in such a manner. True beauty comes from within. Try to manage your stress the best you can. TE unfortunately needs to be rode out until its course is finished. Are you able to get a wig or topper to make you feel more comfortable? You are not alone, many people go through this and people can be there for you online through UA-cam channels like this or support groups for hair loss.
Thank you for the tips, currently 7.5 months into mine :( what was your initial trigger?
Morning I'm so sorry to hear you are dealing with this. It is very difficult and what is going on in the world is not helpful with any stress you face. I'm sending you positive vibes. My initial trigger was a flare up of my ulcerative pancolitis accompanied with ecoli, and c diff. Then lice from my neice and surgical removal of a breast tumor. All of those things lead to it falling out for 14 months and it is just slowing again now. How about yourself? If you care to share. Any stressful event physically or emotionally can set this off.
@@joleneroserein8123 I had TE twice in the past; once from low iron (lasting about 6-7 months) and then once from the flu with high fevers, which lasted for 3 months. My trigger this time I believe was starting a new birth control pill, then stopping it, accompanied by extreme emotional stress/trauma from the hormone changes and TE itself. Did you ever experience any scalp sensations like itching or tingling during your TE? I did not have it in my prior TE bouts but I'm definitely having it this time.
@@Filmyism I'm sorry to hear that. It's crazy that there are so many things that can trigger TE. My scalp was terrible both times and worse at the neck nape, with itching, burning, pain, red bumps and an overall irritated feel on my entire head. My derm gave me a cream that helped cool it called betamethasone dipropionate and a medicated scalp oil that was even more soothing called fluocinolone acetonide topical oil. I still use these. I also used a couple different shampoos that are in one of my other videos (pics of the actual bottles) and I am currently using head and shoulders with tea tree oil that helps my scalp better. It took some trial and error to figure out what worked best for my head. I'm sure you will have to do the same but those are some things you can look into and try!
@@joleneroserein8123 hey i am suffering from t.e and i feel like burning sensation on my scalp and i have red bumps also in the scalp i am feeling like i will quit my life...facing 300-400 hairfall...can you tell me what was happen to you in t.e....it will help me....plzz do reply i am getting so much hairfall
@@meenaljha3992 do you really face hairloss like 300 400 daily???? I'm also losing a lot of hair after being covid affected..what was your trigger..you can share your experience