I recently got diagnosed with a 4cm rolling hiatus hernia and acid reflux after years of physical, mental and emotional pain and the stress of fighting with my doctors just to be taken seriously. One thing I did learn while my doctors were ignoring me is, our stomach systems is really in tune with our emotional and mental state. Realising that made me think back to my childhood I always had an anxious stomach as a child sometimes we carry all our trauma experiences in our bodies without even realising it. Im currently doing therapy for the first time so I can heal my negative past experiences. I am so sorry the surgery didn't heal you but don't give up hope, keep researching this horrible disease. You are in my prays I hope we all find our healed self again.
I completely agree with you… all my problems really started when I was over stressed and had really bad anxiety and now unfortunately it’s a vicious circle! Thank you and I’m praying for you too 🙏🏻
@@georgiapatterson25 So how come your Muslim God Lah is so uneducated he didn't know who was in the Trinity..... Why does he say he's the greatest of creators when there is onlybone creator.... How does he say he's the greatest of deceivers & a crimminal.... Go visit the true God who lives in catholic churches in the tabernacle.... Your Muslim demon false moon god Lah....is bringing you to hell.
Georgia - you and I are basically clones of eachother. My primary complaint is the same exact thing as you (breathing issues/ severe lung sensitivity). I'm at the world's leading breathing hospital (National Jewish in the US). I've been working on this for 7 years. My doctor basically wrote the book on when and how to do Nissen. There are two components to the breathing aspect of this disease. There is reFLUX and reFLEX. The reFLUX component is what Nissen is intended to fix. When acid goes back up your esophagus and you aspirate it into the lungs. The reFLEX component is when the stomach and nerves send panic signals to the vagus nerve which inflames your lungs. I had Nissen 6 weeks ago hoping it would solve my issues and it did not. I'm in the same boat as you now. I am going down the road of attempting to figure out the reflex component now. Feel free to reach out to me, I hope you are doing better.
Pepsin is usually involved also as in my case. COVID causes multiple complications in all Organ systems including Nervous System and plays havoc with the Cranial nerves especially Vagus Nerve hence GI problems
I agree that everybody heals at different rates, so you maybe one of those people that will take a year! Maybe you are worrying too much which is causing the extra acidity! Have you tried alkaline water? It helps me a lot. Also, there are stretches and exercises you can do to help with diaphragm and hiatal hernia issues! Stay strong and positive!
I'm a nightmare case. I live in Philadelphia PA,USA and went to Temple Hospital end of 2006 at 28 years old They did barium swallows, esophageal manometry tests and a few others before saying I need the laparoscopic fundoplication. Got it September 06. By New Year's day of '07 I was back in the hospital. I had herniated the fundoplication, lost 40 lbs and couldn't eat or drink. They did an open fundoplication and it was horrible. 6 inch scar on my stomach and a closed hole/ scar on my left side where the gtube was. Here I am 16 years later at 44 years old and I can't work out, can't do planks and can't left heavy materials because if I do, my entire stomach bloats and I get dysphagia, which is horrible. I think I have a lot of scar tissue and I do throw up from time to time, so it means the open fundoplication operation failed. I came on here to research thinking " man, the procedure has had to have gotten better over the years" and of course, to no avail. Now I'm looking at trying to see a GI to remove the scar tissue. Good luck with everything, you seem quite young to be going thru this bullshit.
Even me i would not recommend surgery to others coz the symptoms is back to me after 1 year six months. And even my back started pain, acid reflux, soar throat, chest pain etc
Thanks for posting this video. I know it was not fun to film. I had the LINX device removed due to poor esophageal motility which caused it to fail after 1 year and then did the Toupet (270 degree) wrap. I was considering a redo as Nissen but after seeing your story I’ll just do a takedown bc I can’t do another failed surgery and my life was fine before (I’d gladly take PPIs forever at this point) If you have good esophageal motility you might consider LINX. Also, you have an option not available to us in the U.S. called RefluxStop, which sounds Interesting but it’s new and so no longterm data and info online is spotty.
Have you tried the opposite of antacids? I've had a fair bit of success drinking apple cider vinegar, has to do with the esophageal sphincter not closing properly when the stomach is not acidic enough. Even drinking too much water seems to add pressure and open up the upper stomach sphincter. I've had the same exact symptoms as you and things seem to be improving. Also taking inhaled steroids and salbutamol still. Look up GERD/Silent reflux and some things to take - alginates (creates a floating raft in your stomach to mechanically prevent reflux). Hope you see this message and try it out. A lot of american doctor specialists on youtube talkong about GERD/LPR/asthma link. All the best!
I am almost 5 months post op and still suffering! My quality of life is nil !!! I vomit at least once daily with choking. Have not been able to advance my diet. I HATE MY LIFE !
I am in the same situation Post Covid Organ Damage. Waiting for a Stretta Procedure appointment been a nightmare four years with GPs and Gastro Consultants as you did i did the research finally diagnosed LPR. But told by my Gastro Professor to avoid Fundoplication or any implanted device ie LINKS/TIF x
Try doing the Whole30 way of eating. It really helped reduce my acid reflux. I also had this surgery and am happy to say so far it’s working (Day 12). I’m sorry you’re still suffering. Please try the Whole30, you won’t be disappointed.
I’m getting Nissen fundoplication on 6th of March but worried about it because of my belching the doctor says I’m swallowing more air because of gerd and I dunno if this goes away after surgery.
I feel your pain, I hate GERD/reflux. I get so many random symptoms and ppis don't really work for me. Lately I've been having shallow breathing which I hate. I was hoping to get Stretta or Linx, but the insurance said it's experimental so a partial fundoplicacion is my only option. I'm going to wait bc I have a kid on the way, but I feel your pain. Stay strong.
Yes the symptoms are so strange, sometimes I can’t even pinpoint where it’s coming from… it changes all the time. unfortunately, I still have LPR/ GERD everyday! Congratulations on your pregnancy and I hope the surgery will help you out one day!
Is your gallbladder removed? Possible u have gluten or dairy intolerance creating gas/pressure in your upper abdomen creating pressure on your LES, allowing acid up? Im trying to figure all this out as well
Sorry you're going through this. Same thing happened to me. I had the nissen 8 months ago and it made no difference, the reflux never went. Im having it taken down in December. Have you still got your wrap?
@@georgiapatterson25 I understand that, I don't really want surgery again either, but I'm struggling to eat anything atm, so I'd rather go back to how I was. Hopefully the surgeon can do that!.
I’m going’s through the mas thing 😔. But like you said we gotta stay positive. Imma go back to the gym again and keep looking forward. For it’s being one month since I had my surgery how long did you wait to go back to gym ?
I want you ask something, after your surgery how long you took painkillers? Are they normal pills or dissolve kind of? So after surgey you can’t right and for taking pain meds hurt your stomache after surgery?
Hello. I'm sorry to hear that. How are you now? Did you hear about LINX surgery ? For me my LPR gives me voice problems and it is sttessfull as a singer
Sorry your still in he'll,I think your hernia could still be causing your symptoms, ask your doctor.I aren't a doctor myself but have heard these symptoms ca be caused by hiatial hernia
Yes I do, i think it’s because there’s not enough oxygen going to our head in that moment, it comes and goes… but after the surgery it happens much less but the other breathing problems are still the same
@@georgiapatterson25 thanks for your reply but l am 5 months post the surgery and l had headaches started one months and half ago l dont know why this headaches started its awful ,it's come most of the time day and night and increase with any acicity food like ice cream ,Mac and cheese,sausages I can't manage all this pain I really regret having this surgery ,may be it helped in reflux but brought a ton of issues l really unlucky and miserable
I had h pylori 8 months ago I was on 2 rounds of medications since then my reflux started my shortness of breath is very severe The food stuck in my throat don't know what to do
I recently got diagnosed with a 4cm rolling hiatus hernia and acid reflux after years of physical, mental and emotional pain and the stress of fighting with my doctors just to be taken seriously. One thing I did learn while my doctors were ignoring me is, our stomach systems is really in tune with our emotional and mental state. Realising that made me think back to my childhood I always had an anxious stomach as a child sometimes we carry all our trauma experiences in our bodies without even realising it. Im currently doing therapy for the first time so I can heal my negative past experiences. I am so sorry the surgery didn't heal you but don't give up hope, keep researching this horrible disease. You are in my prays I hope we all find our healed self again.
I completely agree with you… all my problems really started when I was over stressed and had really bad anxiety and now unfortunately it’s a vicious circle! Thank you and I’m praying for you too 🙏🏻
@@georgiapatterson25 So how come your Muslim God Lah is so uneducated he didn't know who was in the Trinity.....
Why does he say he's the greatest of creators when there is onlybone creator....
How does he say he's the greatest of deceivers & a crimminal....
Go visit the true God who lives in catholic churches in the tabernacle....
Your Muslim demon false moon god Lah....is bringing you to hell.
Georgia - you and I are basically clones of eachother. My primary complaint is the same exact thing as you (breathing issues/ severe lung sensitivity). I'm at the world's leading breathing hospital (National Jewish in the US). I've been working on this for 7 years. My doctor basically wrote the book on when and how to do Nissen. There are two components to the breathing aspect of this disease. There is reFLUX and reFLEX. The reFLUX component is what Nissen is intended to fix. When acid goes back up your esophagus and you aspirate it into the lungs. The reFLEX component is when the stomach and nerves send panic signals to the vagus nerve which inflames your lungs. I had Nissen 6 weeks ago hoping it would solve my issues and it did not. I'm in the same boat as you now. I am going down the road of attempting to figure out the reflex component now. Feel free to reach out to me, I hope you are doing better.
How are you and who was your surgeon?
Pepsin is usually involved also as in my case. COVID causes multiple complications in all Organ systems including Nervous System and plays havoc with the Cranial nerves especially Vagus Nerve hence GI problems
I'm praying for you. Thank your for sharing.
Thank you so much!
I agree that everybody heals at different rates, so you maybe one of those people that will take a year! Maybe you are worrying too much which is causing the extra acidity! Have you tried alkaline water? It helps me a lot. Also, there are stretches and exercises you can do to help with diaphragm and hiatal hernia issues! Stay strong and positive!
I'm a nightmare case. I live in Philadelphia PA,USA and went to Temple Hospital end of 2006 at 28 years old They did barium swallows, esophageal manometry tests and a few others before saying I need the laparoscopic fundoplication. Got it September 06. By New Year's day of '07 I was back in the hospital. I had herniated the fundoplication, lost 40 lbs and couldn't eat or drink. They did an open fundoplication and it was horrible. 6 inch scar on my stomach and a closed hole/ scar on my left side where the gtube was.
Here I am 16 years later at 44 years old and I can't work out, can't do planks and can't left heavy materials because if I do, my entire stomach bloats and I get dysphagia, which is horrible. I think I have a lot of scar tissue and I do throw up from time to time, so it means the open fundoplication operation failed. I came on here to research thinking " man, the procedure has had to have gotten better over the years" and of course, to no avail.
Now I'm looking at trying to see a GI to remove the scar tissue.
Good luck with everything, you seem quite young to be going thru this bullshit.
It could be nerve damage in the vagus nerve. It can cause continued cough and difficulty breathing
What would cause vagus nerve damage? Can lyme disease? Or is it more structural reasons?
Even me i would not recommend surgery to others coz the symptoms is back to me after 1 year six months. And even my back started pain, acid reflux, soar throat, chest pain etc
Is your posture kinda okay? That might create the back pain
So sorry
Thanks for posting this video. I know it was not fun to film. I had the LINX device removed due to poor esophageal motility which caused it to fail after 1 year and then did the Toupet (270 degree) wrap. I was considering a redo as Nissen but after seeing your story I’ll just do a takedown bc I can’t do another failed surgery and my life was fine before (I’d gladly take PPIs forever at this point)
If you have good esophageal motility you might consider LINX. Also, you have an option not available to us in the U.S. called RefluxStop, which sounds Interesting but it’s new and so no longterm data and info online is spotty.
Will look into that thank you. I’m so sorry, how are you feeling now? Any improvement?
Hello Mr. David, I hope you were doing fine.
Did you take down the wrap and bring back the stomach to the default normal position safely?
Have you tried the opposite of antacids? I've had a fair bit of success drinking apple cider vinegar, has to do with the esophageal sphincter not closing properly when the stomach is not acidic enough. Even drinking too much water seems to add pressure and open up the upper stomach sphincter. I've had the same exact symptoms as you and things seem to be improving. Also taking inhaled steroids and salbutamol still. Look up GERD/Silent reflux and some things to take - alginates (creates a floating raft in your stomach to mechanically prevent reflux). Hope you see this message and try it out. A lot of american doctor specialists on youtube talkong about GERD/LPR/asthma link. All the best!
I am almost 5 months post op and still suffering! My quality of life is nil !!!
I vomit at least once daily with choking. Have not been able to advance my diet. I HATE MY LIFE !
I am in the same situation Post Covid Organ Damage. Waiting for a Stretta Procedure appointment been a nightmare four years with GPs and Gastro Consultants as you did i did the research finally diagnosed LPR. But told by my Gastro Professor to avoid Fundoplication or any implanted device ie LINKS/TIF x
Georgia i hope you read this.. if your symptoms still haven’t resolved. Look into gastric bipass. Its your only solution to all of this.
Try doing the Whole30 way of eating. It really helped reduce my acid reflux. I also had this surgery and am happy to say so far it’s working (Day 12). I’m sorry you’re still suffering. Please try the Whole30, you won’t be disappointed.
I’m getting Nissen fundoplication on 6th of March but worried about it because of my belching the doctor says I’m swallowing more air because of gerd and I dunno if this goes away after surgery.
I feel your pain, I hate GERD/reflux. I get so many random symptoms and ppis don't really work for me. Lately I've been having shallow breathing which I hate. I was hoping to get Stretta or Linx, but the insurance said it's experimental so a partial fundoplicacion is my only option. I'm going to wait bc I have a kid on the way, but I feel your pain. Stay strong.
Yes the symptoms are so strange, sometimes I can’t even pinpoint where it’s coming from… it changes all the time. unfortunately, I still have LPR/ GERD everyday!
Congratulations on your pregnancy and I hope the surgery will help you out one day!
Try drinking apple cider vinegar, without ppi.
Is your gallbladder removed?
Possible u have gluten or dairy intolerance creating gas/pressure in your upper abdomen creating pressure on your LES, allowing acid up?
Im trying to figure all this out as well
Sorry you're going through this. Same thing happened to me. I had the nissen 8 months ago and it made no difference, the reflux never went. Im having it taken down in December. Have you still got your wrap?
I’m sorry you’re going through this too!
I still have my wrap and I will not have it taken down… I don’t want to go through another surgery
@@georgiapatterson25 I understand that, I don't really want surgery again either, but I'm struggling to eat anything atm, so I'd rather go back to how I was. Hopefully the surgeon can do that!.
@@HeyJoshyJosh How are you Now???
I’m going’s through the mas thing 😔. But like you said we gotta stay positive. Imma go back to the gym again and keep looking forward. For it’s being one month since I had my surgery how long did you wait to go back to gym ?
I went back around 2 months after but started really slowly and didn’t left anything too heavy to begin with
I want you ask something, after your surgery how long you took painkillers? Are they normal pills or dissolve kind of? So after surgey you can’t right and for taking pain meds hurt your stomache after surgery?
Hello. I'm sorry to hear that. How are you now? Did you hear about LINX surgery ? For me my LPR gives me voice problems and it is sttessfull as a singer
I had to cancel my operation because had a bug and they won’t operate on me until it’s gone so the 3rd of April I’m getting done now.
Have you tried dr Jamie koufman’s diet?
I had done nissen fundoplication 1 month ago and my heart burn has become worse and it takes one hour to finish my meal because of dysphagia.
When did your symptoms started? Try keto diet it has helped a lot of people !
Sorry your still in he'll,I think your hernia could still be causing your symptoms, ask your doctor.I aren't a doctor myself but have heard these symptoms ca be caused by hiatial hernia
I had a hernia repair when I had my Nissen fundoplication
Thanks for your update ,now l get headaches with the chest pain ,do you have headaches???
Yes I do, i think it’s because there’s not enough oxygen going to our head in that moment, it comes and goes… but after the surgery it happens much less but the other breathing problems are still the same
@@georgiapatterson25 thanks for your reply but l am 5 months post the surgery and l had headaches started one months and half ago l dont know why this headaches started its awful ,it's come most of the time day and night and increase with any acicity food like ice cream ,Mac and cheese,sausages
I can't manage all this pain
I really regret having this surgery ,may be it helped in reflux but brought a ton of issues l really unlucky and miserable
Have you been tested for sibo, celiac or hpylori?
I had h pylori 8 months ago I was on 2 rounds of medications since then my reflux started my shortness of breath is very severe The food stuck in my throat don't know what to do
It’s horrible and I know it’s much easier said then done but really work on staying calm it’s the thing that helps me the most when I can
@@georgiapatterson25 Thanks for your advice hun , sure I will do that
LPR doesn't go away very easily even after surgery...
Hi I recommenf you to read about endoestim device
Did you ever have throat issue's like clearing your throat?
Yes and I still do unfortunately
@@georgiapatterson25 yeah that's one of my main symptoms. It's really annoying.
Do you mean spitting up? Like saliva all the time?
@@nelly4185 yeah like musus
Do you have VCD? Your vocal chord maybe be the problem with your breathing.
No I had all of that checked… my vocal cords are inflamed but it’s not VCD
Sleep apnea perhaps? Your symptoms sound closely related, perhaps with daytime hypoxia.
No, I had all the tests done ✅