Julie’s SEVERE ME/CFS Full Recovery - What Saved Her

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  • Опубліковано 8 лис 2024

КОМЕНТАРІ • 233

  • @debbieattwell
    @debbieattwell 8 місяців тому +6

    Oh wow, I'm suffering from CFS triggered by Fluoroquinolone Toxicity. I was VERY ill for months just from 2 pills of Cipro, thought I was dying, tons of symptoms, and now 19 months on those symptoms have mostly gone but it's triggered CFS so I'm still stuck in my room, spent most of the last year bedbound. It's been a long hard road. I've been watching all these recovery stories for some hope, but haven't come across anyone else who has recovered from CFS triggered by Fluoroquinolone Toxicity. This is amazing to see, I'm so glad I stumbled upon this one, as it wasn't tagged with Fluoroquinolone Toxicity or anything. I'd even requested that Raelan make a video on it, I didn't realise she already had. Please could you add the Fluoroquinolone Toxicity tag Raelan? This could help so many more people.

  • @priyashiroy03
    @priyashiroy03 2 роки тому +41

    This interview is incredible. Love her insights and how clearly she explains each element of healing. Huge inspiration. Thankyou!

  • @cfsfibromom
    @cfsfibromom Рік тому +11

    What an amazing story! So inspiring! My CFS/ME was triggered by a virus but I am well aware of fluoroquinolone toxicity. A few years after getting ill I was given Levaquin (Levofloxacin) for an upper respiratory infection. I only took two days of the ten day course because I ended up in the hospital and stopped taking it. I was having tachycardia, chest pain, shortness of breath, diaphoresis. I thought I was dying and it was awful. I went home a few days later and those symptoms were a lot better, however the Levaquin caused another problem; severe tendonitis. These types of antibiotics are known for this and Levaquin even has a black box warning for achilles tendon rupture!! I had severe tendonitis pain for many years and it still flares up now and then. I wish everyone knew about the potential side effects of these antibiotics because doctors are still prescribing them. A few months ago a doctor tried to prescribe Levaquin to me for a persistent sinus infection. I have it listed as an allergy because I will not ever take those type of antibiotics again. Thank you for spreading the word!

    • @theantiqueactionfigure
      @theantiqueactionfigure 9 місяців тому +2

      Listing it as allergic sounds like a good idea!

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому +2

      They are horrible! They also severely deplete magnesium from the body, so sometimes just supplementing with that can make a big difference in symptoms! Also, liposomal glutathione can really help. And anything that restores the DNA, as the fluoroquinolones were originally designed to be chemotherapy drugs that destroy your own body’s DNA.

    • @Alice-vh4sk
      @Alice-vh4sk 8 місяців тому +2

      I also had fluoroquinolones to treat a simple urinary infection (which doesn’t make any sense, there a tons of basic antibiotics to try first). I read the warnings about side effects and before taking them I went back to the pharmacist and told them that I was a bit worried. They laughed at me and said « well you can either take your medication or destroy your kidneys, your choice ». So I took them.
      After 3 days I had severe pain in my Achille tendon. It lasted for more than a year, almost couldn’t walk for a while, and no one believed me when I said it was because of the antibiotic. Physiotherapy didn’t help much, only time healed it… It’s crazy that we can still use those so easily.

    • @pamdenman254
      @pamdenman254 5 місяців тому +1

      I had similar symptoms to yours, along with some others that scared the hell out of me. (extreme fear, paranoia and extremely high blood pressure) I did have to get physical therapy afterwards to correct damage to both ankles. It's a nightmare drug for sure!

    • @lettiee4726
      @lettiee4726 3 місяці тому

      ​@@PeaceIsYeshuaThere are 7 different types of magnesium. What type please. Thx. L

  • @katzinspace
    @katzinspace 4 дні тому

    Love how Julie listened to herself. Beautiful story ♥

  • @PeaceIsYeshua
    @PeaceIsYeshua 9 місяців тому +2

    *_Julie is so beautiful inside and out!_* ❤ What a beautiful soul she has to want to help others, and her app is so beautifully done, and the music is so calming and blissful to listen to! 🎶✨ I look forward to using it, and I will be getting more sunshine and grounding with the earth too! Thank you so much for this wonderful interview! 🌎💚☀️

  • @benxamin13
    @benxamin13 Рік тому +12

    So inspiring... so much wisdom!! Thank you... I feel I'm already half way through and ongoing, but messages and vibes like these are always so welcome. Thank you Raelan for presenting so many beautiful role models to me. It makes everything so much easier and enjoyable.

    • @RaelanAgle
      @RaelanAgle  Рік тому

      Thank you, Alonso! 💖💖💖

  • @granitesevan6243
    @granitesevan6243 2 роки тому +7

    It's still so comforting to hear others have had the same symptoms as I have, if that doesn't sound too insensitive. It makes me feel less of a freak and more convinced I'll be okay. The foot thing happened to me as well...
    *Along with the other multiple problems.

  • @Macchiato2398
    @Macchiato2398 2 роки тому +8

    This is one of the BEST interviews! It really breaks down the fundamentals of healing that people so often dismiss. I will take notes and re-watch this many times. This contains a few of the keys I've been missing. Thank you both!

  • @susannajohnson3736
    @susannajohnson3736 2 роки тому +11

    This is so interesting and inspiring. I've been on my on my recovery journey now for a while but in the last few months I have seen really encouraging changes and one of the things I've started craving is walking around in my bare feet. I knew it was to do with grounding and becoming more present in my body but so interesting to learn about the ions. Love this interview, thanks Julie and Raelan!

    • @RaelanAgle
      @RaelanAgle  2 роки тому +1

      Thank you, Susanna! You've got this! 💓💓💓

  • @Isabella25271
    @Isabella25271 2 роки тому +14

    Amazing interview Raelan! She gave so many great recommendations of little things to do that actually help. The sunlight part is so true and I was not aware the importance of it. Thank you so much to you and Julie! 🙂

    • @RaelanAgle
      @RaelanAgle  2 роки тому +1

      Thank you, Isa! ❤️❤️❤️

  • @mythriftedhomeandgarden830
    @mythriftedhomeandgarden830 2 роки тому +14

    What an awesome interview. All your interviews are amazing and inspiring but the things that Julie enumerated sounds attainable and not so daunting for someone who is already struggling. Thank you to you both!

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      Thank you! ❤️❤️❤️

  • @kerry00
    @kerry00 2 роки тому +14

    This interview was a delight. Half way through, I took off my socks and walked out into the garden with my feet on the ground!

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      Thank you so much, Kerry! It means a lot! 💓💓💓

    • @HealingGemsGLF
      @HealingGemsGLF 2 роки тому

      I did same lol

  • @kathy.7475
    @kathy.7475 2 роки тому +7

    Wow. This is an amaziing interview!! I took so much away from it to help me with my own healing from a mindbody dis-ease. I'm now heading outdoors for some sun and will be trying the Envol app. Thank you both.

  • @justinjones2634
    @justinjones2634 2 роки тому +12

    My big drop in health was after several courses of antibiotics and even some steroids. I knew they were the trigger, this video gave me the name of it. Thank you

  • @meghankeanestudio
    @meghankeanestudio Рік тому +1

    So inspriing. I've been working on a lot of what Julie describes since crashing terribly 5 weeks ago and in the last week I went from crawling to the bathroom to now able to walk a bit and do stairs a few times a day. She's spot on. It's not necessarily fast, but it is possible for many. This is such a good watch to keep us on track and inspired to keep going, and stay patient with the process. Thank you Julie and Raelan!

  • @sergiorrwodz
    @sergiorrwodz 2 роки тому +6

    2 beautiful souls. One great interview. Congrats!

  • @suzanneharkins6812
    @suzanneharkins6812 16 днів тому

    this is so beautiful, followed her page for like 10 years

  • @lisadiaz6230
    @lisadiaz6230 2 роки тому +14

    Same, symptoms started shortly after Cipro. Many years later and only made aware of a connection a few weeks ago so to hear this video too is something!

    • @Truerealism747
      @Truerealism747 Рік тому

      Yes did my father's 1989 though.fhtmr gene terrible the chemical s it's in Dr taulabaum book

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому +1

      @@lisa…,
      Same! It was years later, that I finally put the pieces together, and realized that it had been a fluoroquinolone anabiotic all along that made me so ill as a teenager! I was only 14, and it should not have been given to anyone under the age of 18. I am still struggling and it’s been over 30 years. However, luckily, my symptoms have not been debilitating, as it’s mainly been fatigue. But still, I’m tired of having to push myself all the time in order to live life!

  • @l.j.5509
    @l.j.5509 2 роки тому +9

    Thank you both so so much! That talk gives me hope and inspieres me!!! By the way: I took Ciprofloxacin 8 times and developed CFS

  • @justbecauseican1410
    @justbecauseican1410 2 роки тому +20

    I took antibiotics from my UTI and went downhill also. But not all people get sick from antibiotics. So there are more factors to play. In the end it are triggers that dysregulate the ANS

    • @Mariii146
      @Mariii146 Рік тому +1

      I had a bad flu, that was my trigger

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@justbecause,
      But the fluoroquinolone antibiotics are horrible. They were originally designed to be chemotherapy drugs, and they destroy your own bodies DNA. Doctors continue to hand them out like candy even though they have ruined thousands and thousands of lives by creating chronic fatigue and fibromyalgia. I would never take them again, or touch them with a 10 foot pole!

  • @gailducrest8851
    @gailducrest8851 2 роки тому +2

    Raelan, as usual, terrific in so many ways. This may be THE best overall guide to wellness.

  • @sjacka100
    @sjacka100 Рік тому +2

    Wonderful insight. I'm on the right track, and this is giving me more power in myself to continue my path to complete recovery.

  • @lessons9745
    @lessons9745 2 роки тому +3

    I had an allergic reaction to IV Ciprofloxin years before I got severely sick. But I did get a lot of tendinitis in my joints over the years after Ciprofloxin. What got me severely sick and mostly bedridden and housebound was I had a kidney stone that was slightly too large to pass and Dr put a Stent in and I caught a hospital super bug. Then it turned into sepsis and I had to have IV antibiotics/ antibiotics for months. I had to take carbapenems, which are known to cause mitochondrial dysfunction. Been very ill for 6 years.. Trying to get a better baseline and this video is inspiring.

  • @audreymatson3577
    @audreymatson3577 3 місяці тому +1

    Her story reminds me of my own the most out of any interviews here. Only, I am not better yet. But her list of things that she did to get better, I even have a list that’s almost identical with the first item being sleep. So this is super encouraging.

  • @ashleycarr9014
    @ashleycarr9014 Місяць тому

    Downloaded the app it’s amazing I am bawling crying and only did two short meditations. I love it! - recovering from long covid and burnout and prolonged grief

  • @lamchiang
    @lamchiang Рік тому +1

    She is the most helpful so far

  • @PeaceIsYeshua
    @PeaceIsYeshua 9 місяців тому

    Thank you so very much for this wonderful account from Julie!! Excited to use her app!! ❤

    • @RaelanAgle
      @RaelanAgle  9 місяців тому +1

      Much appreciated! ❤️

  • @JacquiQ
    @JacquiQ Рік тому +2

    Wow ! She did for herself what these programmes now offer. Quite amazing. I find the food thing so hard to do because my stomach is such a mess, so many 'healthy' foods I cannot tolerate. I start to make progress, then two steps back with the dsiet thing. So: Sleep. Food. Sunlight. Meditation. Movement. Knowing These are running themes in anyone who recovers aren't they along with inner child work or trauma work or therapy of some kind or boundary work. And Mind work/brain retraining.

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@JacquiQ
      Have you looked into the carnivore diet? A lot of people with digestive issues do really well on it! ❤

  • @mirandaandrea8215
    @mirandaandrea8215 Рік тому

    Lovely guest! I totally agree the diagnosis is just a symptom that conceals imbalances!Raelan I love your authenticity, and transparency, you don’t sugar coat anything! Shame on doctors they disgust me!

  • @NinaLouis-gq1of
    @NinaLouis-gq1of 5 місяців тому

    I love hearing about connecting with the Earth. I’ve started walking on the grass in my backyard and I really connect with memories of childhood rolling on grassy hills. The feel of grass on my feet feels so healing. I’ve been so afraid of grass since I got Lyme disease but I do believe my body has started to heal itself beyond all the medical treatments. You are so right that it is within our power to heal ourselves. Knowledge and conviction is the key!! Thank you for the affirmation 💕🌸

  • @kwamegreen2569
    @kwamegreen2569 2 роки тому +5

    Simply. Thank you. So much useful information to add to what I already know. Learning the connections between undertaking an activity, like grounding, or going out in the sun, meditation, and so on, and the benefits that can be derived from it, in the manner you have explained, inspires me do do these things more because I am clearer about the why of doing them. Similar things have been suggested before with a vague suggesting that they may be good for you and they may help. This video adds substance to why they should be undertaken. To me anyway and I am grateful. Thank you.

    • @seffie4363
      @seffie4363 2 роки тому

      yes i agree, esp meditation

  • @nolamayer4101
    @nolamayer4101 2 роки тому +6

    Wow Julie you are simply amazing !!!so inspirational 💃

  • @SplendidlyBright
    @SplendidlyBright 2 роки тому +9

    Brain Retraining is absolutely essential to recovery!! Essential!

  • @samanthakilkenny3357
    @samanthakilkenny3357 11 місяців тому +1

    i caught covid and it has left me with chronic after symptoms.i know this channel isnt aimed at this type of illness but it is still helping me immensely, encouraging me to stay strong and keep fighting. Thankyou so much.

    • @RaelanAgle
      @RaelanAgle  11 місяців тому

      So kind of you, Samantha! ❤️

    • @santeenl
      @santeenl 10 місяців тому +2

      Long covid = cfs, they are the same.

  • @idragonfly
    @idragonfly 2 роки тому +4

    !!! RESONATING !!! To the point of goose-bumps.
    ~ Much aloha to both of you. 🌴🌼🤙

  • @jayg4424
    @jayg4424 Рік тому +1

    You are an incredible listener. ❤️

  • @Krishnadewani-r74
    @Krishnadewani-r74 2 роки тому +3

    This is one of the most amazing interview ever thank you realan❤️🙏 and Julie you are awesome wish you all the best for your thriving future 😘😘

    • @RaelanAgle
      @RaelanAgle  2 роки тому +1

      Thank you so much, Somya! 💓💓💓

  • @pinning7726
    @pinning7726 2 роки тому +13

    Great interview. My hope is that people will continue to bring awareness to fluoroquinolone toxicity. I began getting deathly ill in 2018 from ciprofloxacin. It took me over a year to find out what my chronic illness was from. Looking back at my life ciprofloxacin has caused many of my illnesses. I was diagnosed with fibromyalgia many years ago. (I now know that it is actually fluoroquinolone toxicity), I believe that fluoroquinolone antibiotics cause accumulative damage. I think that fluoroquinolone antibiotics (they are also prescribed as eye and ear drops and also vets prescribe them to our pets) are the cause of many illnesses in this world. I probably would still not know today if not for social media. Doctors need to look at medications that a patient takes to see if they could be the cause of their illness.

    • @cet9374
      @cet9374 2 роки тому

      Any better?

    • @Truerealism747
      @Truerealism747 Рік тому

      They call them chemo antibiotics there are in Dr taulabaum s book worth noting if you are allergic to these your family will be also my father's was with these 1989 now ok.mine was from a fall pp me 1997 to now it's more fybromyalgia.worth noting huge preparation who are allergic to these are in the spectrum we can't clear our systems most if us undiagnosed Inc myself until sins been diagnosed as am sure my father and mother are.

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@Truerealism747
      Did you try Magnesium or liposomal glutathione? ❤

  • @sophiaalila555
    @sophiaalila555 2 роки тому +6

    What a self-empowered young woman.
    She mentioned Medical Medium (Anthony William). He’s very clear that the root cause of symptoms and illnesses are due to viruses, bacterias, toxins and heavy metals. He’s also clear about the possible detrimental impacts of antibiotics.

    • @knunez84
      @knunez84 2 роки тому +5

      This is true but the difference between those that can detox well and not become chronically ill from toxins and those that cannot is a dysregulated nervous system. I was only able to start healing from mold illness after I focused on my nervous system and brain retraining. Then the supplements and medication I took started to kick in and my body could absorb nutrients, sleep, etc. It’s a game changer !

    • @louiser2833
      @louiser2833 2 роки тому +2

      @@knunez84 Can I ask what was the name of the brain retraining programme you did? / How exactly you went about regulating your nervous system?

    • @knunez84
      @knunez84 2 роки тому +1

      @@louiser2833 hi Louise ! I used DNRS and now I am using primal trust which is amazing ! I’m uploading a new video to my channel that will up tonight about my experience. Please watch if you can and my email Is in the description. Feel free to reach out. Take care ❤️

    • @louiser2833
      @louiser2833 2 роки тому +1

      @@knunez84 Thank you! ❤

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому +1

      @@knunez84
      That’s so amazing! Thank you so much for sharing! I have been trying to recover from fatigue for many years, and I am just now learning how important brain retraining is. I don’t know why I hadn’t heard of it before! I have long been at peace, contentment, and feeling safe, but perhaps my nervous system is not in that state! I am definitely willing to try!

  • @skyman5709
    @skyman5709 2 роки тому +2

    Julie is Lovely, thank you for sharing your story.

  • @carolesenecal2255
    @carolesenecal2255 2 роки тому +1

    Oh. My. God. What an interview. Thank you so much.

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      Thank you, Carole! 💓💓💓

  • @kathystoner5239
    @kathystoner5239 2 роки тому +6

    Incredible interview and just what I needed! I have been severe before so I understand. I needed this because I have felt stuck for so long. This gave me the encouragement I needed. I have been using the breathing part of the app for a while now and love it! Im going to start using the rest of the app as well.

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      💓💓💓

    • @seffie4363
      @seffie4363 2 роки тому +1

      hi Kathy we have connected on yt before x just wanted to say i am also a little stuck just now and not sure why but def some good advice here x hope we can both move closer to full recovery soon 👍

    • @kathystoner5239
      @kathystoner5239 2 роки тому +1

      @@seffie4363 me too! Still feeling stuck

    • @seffie4363
      @seffie4363 2 роки тому

      @@kathystoner5239 sorry to hear that x i can live almost normally except for going out to work, i work from home one day a week and exercising but my energy isnt high and i still get symptom flares x feel impatient and frustrated neither of which are helpful x these recovery stories are very inspirational x

    • @kathystoner5239
      @kathystoner5239 2 роки тому

      @@seffie4363 thats good you are able to do those things! What has helped you get to the place you are at?

  • @MariaJose-wr1fm
    @MariaJose-wr1fm 2 роки тому +2

    I was floxed too. Thank you for your words.

  • @kylekenney9739
    @kylekenney9739 2 роки тому +6

    Wow, using Ciprofloxacin short term to treat an infection was the major "triggering" event for my CFS also! I truly thought I was the only one to fall ill from this drug.

    • @SplendidlyBright
      @SplendidlyBright 2 роки тому +1

      Oh my goodness no, so many are “floxed” thousands! There are websites, fb groups all over the internet! All the best to you!

    • @skippysmom
      @skippysmom Рік тому

      @@SplendidlyBright oh my gosh. i’m having a revelation. i think i got mine from amoxicillin.

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@kyle,
      Yes, you are definitely not alone in being floxed! The two things that help people the most afterwards are magnesium and glutathione IVs, but you can do liposomal glutathione as it is much cheaper.

    • @MegaLeoben
      @MegaLeoben 7 місяців тому

      did you recover?

    • @AngelaMansour
      @AngelaMansour 5 місяців тому +1

      Same

  • @janielightly1644
    @janielightly1644 2 роки тому +2

    Thank you so much for this Julie & Raelan, so insightful, I have downloaded the app and so far love it especially the meditations ❤️🙏🏻

  • @marcelafenner3772
    @marcelafenner3772 Рік тому

    Thank you so much Raelan and Julie. I was also given Cipro at the hospital, to take care of an infection on my elbow ,caused by falling on a branch in my garden. Followed by Rebone a month later, that triggered pain ....CFS
    Thank you for bringing Cipro’s side effects to my attention. Thank you for your App. Envol ❤

  • @MsDunn93
    @MsDunn93 2 роки тому +7

    Lovely! Julie is such a positive person in the healing community. Her story is amazing and I know she worked so hard to heal. From Willow (Ben's partner) xx

  • @PascaleDesrosierHickey
    @PascaleDesrosierHickey 2 роки тому +3

    Glad you finaly looked into this ap and incredible change maker :) I know it;s impossible to keep up with comments but just as an FYI I've been whistle blowing the hell of Fluoroquinolones as the #1 prescrition induced cause for CFS/ME, IBS AND FMS - I know I dropped her story here at some point (probably more then once) - her story changed mine #floxedandhealing

  • @wallywallace5616
    @wallywallace5616 2 роки тому +1

    Incredible interview. Thank you both.

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      Thank you, Wally! 💓💓💓

  • @TheMedusos
    @TheMedusos 2 роки тому +1

    Thank you for the video Raelan

  • @__OL__
    @__OL__ 2 роки тому +3

    I'm only 12 min in, but wow, what an incredible/riveting story.

  • @maevey3
    @maevey3 Рік тому +1

    She's fantastic!

  • @sofibregman4671
    @sofibregman4671 Рік тому

    I realised that I probably have fibromyalgia or cfs a month ago and since then I have found a lot of help online. By now i kind of had many knowledge but she just gave all of that in one hour. Amazing 🎉

  • @danielazo8791
    @danielazo8791 3 місяці тому

    Thank you Julie! 🎉 You are 100 p. Right!❤

  • @nickywellman594
    @nickywellman594 Рік тому

    Fantastic interview, packed full of lots of interesting information entwined in a incredible recovery thanks ❤

  • @nathalieforster9955
    @nathalieforster9955 2 роки тому +1

    Fantastic video Raelan. Appreciate so much Julies wisdom and insight. I too think that modern technology can impact our health and think that grounding is super important…although it’s not something I speak out about much as you can get treated like a conspiracy theorist for voicing such views! I didn’t know about the link between antibiotics and cfs, it makes a lot of sense. Thank you both so much for all your passion to educate, inspire and support us all on our healing journeys x

  • @nolamayer4101
    @nolamayer4101 2 роки тому +2

    Listened to Julies story again!! Just love her strength and determination 💃. Will probably listen again one day 🤣

  • @ednafernandesyi
    @ednafernandesyi Рік тому

    This is amazing and such an amazing shared experience. This is so inspiring. Thank you. In many support groups I have been to it has been a welcoming support mostly still there has been a recurrent message that this is it...and that dreams can no longer be the pursued...life will not be same. I think life may be different and still there is great possibility for improvement and further opportunities to come into our lives.

    • @RaelanAgle
      @RaelanAgle  Рік тому

      I'm so glad you've found hope again! 🌟
      Wishing you all the best on your health journey and hoping you find everything you need to get through this.❤️

  • @TS-rv4hf
    @TS-rv4hf 2 роки тому +1

    Adored this interview - thank you to you both for these beautiful truths about healing we can all do

  • @roonbooks1418
    @roonbooks1418 2 роки тому +3

    At the age of 14/15? I was put on tetracycline for acne. The problem was, I was put on them for 1.5 years straight for acne,which only knocked back the acne on my upper back.what took my acne away was taking shirt off and laying in the sun everyday. It only took 2 weeks and my acne was gone!!!!

  • @tommyfeinstoff
    @tommyfeinstoff 7 місяців тому

    This is a very good interview.

  • @christinakoufoudakis8310
    @christinakoufoudakis8310 2 роки тому

    This is absolutely incredible! Thank you, both so very much! Much love from Mtl, Canada

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      Thank you, Christina! 💓💓💓

  • @gingerztube
    @gingerztube 2 роки тому +3

    I always suspected that taking 2 rounds of antibiotics for bronchitis had something to do with me getting CFS. I got flu like symptoms only days after finishing those antibiotics and it felt like my muscles just hurt all the time. Then of course all the other symptoms piled on quickly. I'm in year 15 since getting ill and I'm at a point now where I can do some weight training and calisthenics. I'm doing so much better but the fatigue is still there, so I'm doing brain retraining daily to get fully recovered. Thank you Raelan and Julie!

    • @djVania08
      @djVania08 2 роки тому

      Any program or just some own developed brain retraining?

    • @gingerztube
      @gingerztube 2 роки тому

      @@djVania08 Just what I've pieced together from what other people have said that helped them recover.

    • @djVania08
      @djVania08 2 роки тому +1

      @@gingerztube anything specific that you use day to day? :)

    • @gingerztube
      @gingerztube 2 роки тому

      @@djVania08 Honestly a lot of what I say to myself comes from watching Miguel's channel (CFS Recovery). Things like; "This is just my brain causing these symptoms" or "My nervous system is just over-reacting". I try to focus on what I can do and not on what I can't do. Hope that's helpful. ;-)

    • @djVania08
      @djVania08 2 роки тому

      @@gingerztube Sure. Makes sense. Thanks

  • @FreshAgenda
    @FreshAgenda 2 роки тому +14

    Fluoroquinolones (mine was Cipro) were the final straw breaking the camel's back for me. And I only took 3 of them before it became unbearable. But... the root was cause before that last straw was decades of unacknowledged TMS / mind-body syndrome.

    • @kathy.7475
      @kathy.7475 2 роки тому +3

      I just learned of TMS/mindbody syndrome and recognize that I too have had it, to a lesser degree, for decades. It really explains some times in my life when I had no idea what was wrong with me. I don't have Me/Cfs but am dealing with different expression of TMS symptoms and sensations. I look forward to a full recovery for both of us.

    • @Truerealism747
      @Truerealism747 Рік тому

      @@kathy.7475 what symptoms.are you recovering from

    • @kathy.7475
      @kathy.7475 Рік тому +2

      IBS, Insomnia, palpitations, anxiety and numbness, tingling in foot, abdominal muscle tension.

    • @FreshAgenda
      @FreshAgenda Рік тому +1

      @@kathy.7475 I have that abdominal muscle thing too.

    • @kathy.7475
      @kathy.7475 Рік тому

      Yeah, it comes and goes. Sometimes feels like a boa constrictor is wrapped round my middle.

  • @ginafiallos6163
    @ginafiallos6163 24 дні тому

    Amazing!!!

  • @theantiqueactionfigure
    @theantiqueactionfigure 9 місяців тому

    This was such a great message.

  • @ldesatoff
    @ldesatoff 2 роки тому +1

    wow, truly a godsend for both of you to take the time and energy to share this. Thank you Thank you! what is the word before "toxicity" floura something? I can't interpret Julie's accent lol thanks!

  • @dianapaloma3102
    @dianapaloma3102 2 роки тому

    Beautiful. Thank you. 🙏💕

  • @Im_Bennythebooman
    @Im_Bennythebooman Рік тому +2

    Cfs, pots, fibro for 20 years. Ups and downs. Sometimes bedbound. Didn’t know what was wrong until I was in the thick of multiple small children.
    5 years now of trying to get better. Trying many things in the spare bits of time after keeping 3 boys fed, sage, and care for. Often parenting from a mattress on the floor.
    5 years of listening to recovery stories. I had yet to hear of one where a mother of multiple children with zero family members that can help was able to recover.
    Maybe I’ve missed one ?

    • @frentbow
      @frentbow Рік тому

      It's so important when other people experience relates close to your own. I hope you find more support on your health journey.

  • @swg6443
    @swg6443 Місяць тому

    So helpful! Xx

  • @poptarget
    @poptarget 2 роки тому +1

    There are some many parallels between the two of you. I'm reading your book. I'm starting my recovery after 20 years. I can't rely on just medication anymore.

    • @simona3738
      @simona3738 2 роки тому

      I sending you all the good luck and positivity..you can get better! Im on my own journey small steps big wins...

  • @ludamusludamus7130
    @ludamusludamus7130 2 роки тому +1

    This is great, add in lymphatic massage & Stanley Rosenbergs 5 exercises to reset the vagus nerve to really benefit body systems & organs.

  • @mirjana9664
    @mirjana9664 2 роки тому +2

    I have Cfs and have just finished Longacef i.v. for a month and Doxicilin 200mg per day for a second month because IgM on Borelia b. has been positiv. I am not better. I have heard that most patients with chronic Lyme are not better after antibiotics maybe because of it is just Cfs in basic or maybe because it is hard to get to Borelia b. Under antibiotics viruses are definitly becoming more active.

  • @jdcole82
    @jdcole82 2 роки тому +4

    I took Cipro when my symptoms first started

  • @bonniek9622
    @bonniek9622 8 місяців тому

    WOW!!!!!! AMAZING!!!

  • @NinaLouis-gq1of
    @NinaLouis-gq1of 5 місяців тому

    I took Levaquin and developed a six week spasm in one of my calves. I think I slowly developed me/CFS after that! OMG😢

  • @CinderellasMS
    @CinderellasMS 2 роки тому

    I loved this video everything was explained so well and gave motivation as to why we need to do each pillar daily. I also follow the pillars Julie prescribed daily and am slowly seeing results. One question about sunlight we have zero sunlight in UK right now would you recommend a sunlight lamp? My health results were so much better in summer and I have noticed a real difference as winter is coming.

  • @saralewismurre2134
    @saralewismurre2134 2 роки тому +1

    Thanks!

  • @Mimifra
    @Mimifra 2 роки тому +2

    Thanks

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      Thank you so much, Miriam! This means a lot! 💖💖💖

  • @NinaLouis-gq1of
    @NinaLouis-gq1of 5 місяців тому

    I can’t figure out what word you are saying, i.e the chemical compound in these broad spectrum antibiotics. I’ve taken countless ones but would like to look this up?? Thank you

  • @danielawerner1790
    @danielawerner1790 2 роки тому

    Amazing!! ❤❤❤❤

  • @timm.8729
    @timm.8729 6 місяців тому

    This interview is an incredible treasure chest. Every word is so profound and so true. Thank you! ❤

  • @normidwest1316
    @normidwest1316 2 роки тому +1

    so helpful

  • @forisma
    @forisma 2 роки тому +6

    I live in the Netherlands and I was dr Meirleir's patient as well. Same, diagnosed with chronic Lyme disease.
    I did a 2 year treatment, which cost me 13000 euros.
    No real change. I don't trust the test. I don't believe I ever had Lyme.
    I don't trust the treatment anymore either.
    I didn't know anything about ME/CFS when I came to him.
    And I just recently remembered that my ME started after a viral infection when I was going through my pictures on my computer.
    It's such a shame how much money I lost on this treatment. If only I knew.

  • @AnrupB
    @AnrupB 2 роки тому +1

    Totally agree with her on all points. My recovery so far has been mostly the same approaches, and treatments for my own root causes. For the antibiotics, was it fluorine she stated is the core issue?

    • @pambrunerbamalam
      @pambrunerbamalam 2 роки тому +1

      Cipro, an antibiotic that belongs to a class of antibiotics called fluoroquinolones.

  • @SuissePépites
    @SuissePépites Рік тому

    Fluorchinolone: Ciprofloxacin, Levofloxacin, Lomefloxacin, Moxifloxacin, Norfloxacin, Ofloxacin, Pefloxacin, Prulifloxacin, Rufloxacin

  • @Bachconcertos
    @Bachconcertos Рік тому

    So how did u heal from furi whatever antibiotics?

  • @RheaHughes-o2i
    @RheaHughes-o2i 8 місяців тому

    what is the app called please?

  • @PeaceIsYeshua
    @PeaceIsYeshua 9 місяців тому

    Fluoroquinolone antibiotics have harmed so many. 💔 The two best things I have researched for healing after taking them is magnesium and liposomal glutathione. I personally know of two people who got over all over body pain just by taking magnesium. Fluoroquinolones greatly deplete the body of magnesium. I hope everyone here gets better! ❤

  • @Bachconcertos
    @Bachconcertos Рік тому

    What is the name of this antibiotic because they kept giving me antibiotics for UTI different ones & they were making me feel sick

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@Bach….
      Any fluoroquinolone anabiotic can do this. I stay away from all of them.

  • @homemakersheart3614
    @homemakersheart3614 2 роки тому +1

    I think this was a God thing for me. I feel so grateful to hear I am not the only one.
    I got sick not long after taking Levoquin...many many years ago. I learned about 10 years ago that all the flouroquinines are now black boxed. Scary. (So I hear) They either cause spontaneous tendon rupture or long-term nervous system damage.
    Last year I saw a Functional Dr that took all my symptoms, including the questionable dx of Porphyria (AIP) and traced it back to this Anti-biotic. I took 1. Yep, 1. I saw colored strobing lights and had to get a brain scan done to see if there was damamge. No damage, but never connected the extreme fatigue and weakness to this until years later. The recent Dr told me to take a LONG vacation on a beach and let my nervous system try to heal.
    I think what I am hearing from all the recovery stories, is in essence, recreating that. Low stress, lots of good food, meditation, sleep, rest, joy. are all what I am getting. Now how to implement that in my day. THAT is what I need a white board for!
    to you Raelen for hosting, and for Julie's work at recovering.
    PS this is just my experience and my opinion, and yadda yadda.

  • @boltonlaurie1136
    @boltonlaurie1136 2 роки тому +3

    So much of what she did to recover resonates with the work of Dr. Joe Dispenza. She went all in with her meditations and seeing her future self healed. Also, I wonder if she did MM diet- plant based

  • @nazmaroof5843
    @nazmaroof5843 2 роки тому +1

    I believe my wife is suffering from chronic fatigue syndrome... she is on heavy medication for arthritis/psoriasis. She takes methotrexate injections. ...does anyone think or shed any light on this if the methotrexate is a cause of this? Does methotrexate suppress the immune system?

  • @Bachconcertos
    @Bachconcertos Рік тому

    I was given ciprofloxin & nitrofurantoin - are those the ones that can do this damage?

    • @STRAWBELLY1
      @STRAWBELLY1 Місяць тому

      Yes! Cipro is one of the Fluorchinolone antibiotics.

  • @dommccaffry3802
    @dommccaffry3802 2 роки тому

    So how do you detox the flouride anribiotics ??

  • @sjacka100
    @sjacka100 Рік тому

    Yes I had been given that antibiotic cipro

  • @jessicalambert7753
    @jessicalambert7753 2 роки тому

    The code keeps coming up invalid. Would love to try the full experience of envol.

    • @RaelanAgle
      @RaelanAgle  2 роки тому +1

      I'm sorry to hear that is happening. Thank you for letting me know, Jessica. I will contact Julie now and get that fixed!

    • @bryanbagayas8447
      @bryanbagayas8447 2 роки тому +2

      Hi Jessica, it should be sorted already. Can you try again?

    • @RaelanAgle
      @RaelanAgle  2 роки тому

      @@bryanbagayas8447 thanks!!

    • @jessicalambert7753
      @jessicalambert7753 2 роки тому

      @@bryanbagayas8447 thank you! It worked.

  • @andrewclarke7798
    @andrewclarke7798 2 роки тому

    P.S. I’m sorry,but, the antibiotic thing !! NO! I could go on,and on.Raelan,I’m glad you kindly,moved on from that!

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@Andrew, research, fluoroquinolone dangers. PBS even did a documentary on how many people have been harmed by this family of antibiotics. Yes, it was the antibiotic.

  • @tamarahimmelstrand8985
    @tamarahimmelstrand8985 Рік тому

    Oh dear Julie speaks so fast. My brainfog mind can' t quite grasp all the interesting things she's saying. It's interesting that she can trace her ME as a result her antibiotic cure. This really shows that ME/CFS is a symptom diagnosis and can be caused by different things.

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому +1

      @tamara,
      You can click the settings, icon and slow down the playback speed. ❤

    • @tamarahimmelstrand8985
      @tamarahimmelstrand8985 9 місяців тому +1

      Thank you for that suggestion.@@PeaceIsYeshua

    • @PeaceIsYeshua
      @PeaceIsYeshua 9 місяців тому

      @@tamarahimmelstrand8985
      You’re so welcome!! ❤️❤️

  • @Bachconcertos
    @Bachconcertos Рік тому

    I do not have family or friends at 63 so help me with this one because I am a social person.