I hate how people say she’s faking it. It’s very hard for people with conditions like these, nobody seems to get it or understand what we’re going through. My brother is deaf and so I have to be with him to help him translate things, people always say he’s faking it for attention. It breaks my heart to see how people always treat them. 😔
Im sorry you've experienced that. That's horrible and no one deserves that. I think there are a lot of people on the internet seeking attention..faked cancer ect... that sort of thing. But those people are always found out. In my opinion people like this poster are not only making a group of people feel seen... she's raising awareness for people, mothers like me. 2 thumbs up from me.
Faking... deafness? For attention? Firstly, what a RIDICULOUS thing to accuse someone of with no proof. Secondly, I really, really hope those people are at least aware enough to be embarrassed when they're proven wrong.
People say he’s faking it because he wants people to think he’s ‘special’, or people say it’s for attention. It’s completely wrong to accuse someone of faking something about themselves that they can’t control. @@evelynkirishko5407
that's all kinds of messed up. What kind of world are we living in? But then again, at least your brother doesn't have to hear this shenanigan's. Sometimes I wish I could just take my ears off
I have epilepsy but have been "sober" of them for about 12 years now. I constantly suffered from tonic-clonic seizures. My heart stopped and I almost died in front of my parents. Seizures are a real thing! No joke about it.❤
@@Sirliam95when people age they sometimes just “grow out” of seizures which means if you get lucky you can stop having them when you get older. Also medicine can’t treat seizures only prevent them
I passed out and started shaking on the first day of my psych class, and the professor was super kind about it and even checked on me multiple times after class. Just a reminder that good people are still out there.
I had a teacher in secondary school.. I hated him. I was an asshole to him. i'd back chat. and kick off. and piss about all the time. I hated his classes. And wasnt at all interested in anything he had to say. This got compounded by the fact my behaviour got me a lot of detentions from him.. which increased my hate of him.. cause I had to spend even MORE time with him.. It was a constant spiral.. One day... During one of his classes.. I started feeling faint.. But I had never actually fainted before So was in full panic mode.. I wasnt able to talk. I could barely hear anything.. and my vision was going dark.. it was scary as heck.. I noticed that he was asking me something.. but I didnt know what and couldnt reply even if i wanted too.. Sure enough a few seconds later.. I open my eyes.. We're outside.. and hes full on fireman lifting me somewhere.. I black out again.. Im in a hospital bed attached to a machine pumping liquid into my arm (I was majorly dehydrated and they were pumping fluids)... and hes right there besides me asking if I was okay.. My respect for him shot through the roof. From then on I was his best student totally changed my view on him and every teacher at my school. This was a guy that I had put through hell and despite this.. he didnt even hesitate to help me when I needed it most.
@@TriscraftDid you ever thank him? What was his name? The reason I ask is because like you, I had a teacher that I highly disliked and gave her hell.. Until one day like you, something happened and I was in distress. It was horrible. But she saved me. And after that, nothing but pure love and respect I had for her and still do.. Even after graduating and having my first kid, I came back to see her.
As a child of a mom with seizures, ur seizures look very different from my moms! And that’s normal. It depends what causes the siezure usually. My mom has a scar on her brain which causes them and it’s in a emotional part of her brain which makes her cry. Edit: thanks for all the likes you guys! I dont wanna be that person but this is ALOT!
@@xaviannasmith9545it's not rare. It's quite common. I happen to be one of those who have absent seizures. I've had them since I was a toddler. Unfortunately for me, I'm one of those 1 in 4 people whose seizures don't go away in adult hood
I have absent seizures, and it was hard for me as a child. My family disowned me. People in the family couldn't even touch me because they thought I had demons that why I had seizures
@@damaranelson when i was a baby my two sisters and dad were home . My parents told me this story btw. My mom started rolling on the floor and started foaming from the mouth. My sister (middle child we will call b) was terrified it was something she will never forget.
Don’t feel sorry for this bitch. She’s faking it for attention. Let me ask you this, when someone has a medical emergency do they have time to set their phone up at the perfect angle and press record? Do people just casually film themselves every day in anticipation that something awful will happen? No, they don’t. What does happen is people faking medical conditions for brownie points because people are gullible.
@@JTguitarlessonsno she’s not 🫤give me some evidence. The only things I see are accusation of her faking tourrettes even though it’s proven she’s not faking it. Stop the 🧢, if you give me some evidence I’ll shut up
Exactly! And they have the audacity to say she's faking when she literally has the paper work to prove it. Also, to answer your question, no, no one is. Me and all of my closest friends have experienced hate in the form if bullying just because they might be slightly different.
"offended by disabled people" there's no other phenomenon sounds more stupid than that. Why are people like this 🙂 are they not getting enough attention or not feeling ungrateful to be healthy?
I think a lot of the frustration comes from the fact that we could cure this terrible affliction in one generation if those with epilepsy would be barred from procreation.
One of my high-school teachers had a medical condition of some sort that would cause her to have seizures. One of the first classes of hers I was in she used it to educate everyone on seizures and what to do if one happened. Later in the year one of the students had a seizure and, because she had taught everyone what to do, we were able to help him. She'd seated one of the fastest kids next to the door and he bolted for the nurse while the rest of us moved the tables and chairs out of the way and supported his head and limbs. He was ok😊
Just wanted to say for those of you who arent fully aware of absense seizures!! (I experience them) Here’s a few basic facts: - Absent seizures can happen 10+ times a day - Absent seizures can be zoning out ; twitching ; shaking - Absent seizures are often unnoticable by the person having them or the people around - Common Triggers Include ; Heat ; Tiredness ; Stress ; Hunger - 1 / 3 people have epilepsy! - They can lead to ; feeling shaky ; feeling tired ; feeling dissociated ; feeling detached front reality ; feeling unfocused ; feeling anxious ; sick ; headache etc A ambulance is only needed if; Its the persons first seizure It goes on for over 5 mins Or the person is hurt / unconscious
@@sadiemaxfield7566 lol to reply to comments just click the 3 dots besides the comment you wanna reply to and click “reply” 😭 it might help make your life a little easier
@@h1l1ght420 aww you care. Nope try again buttercup. I just call out Bullsh!t when it's there. And do you own research if you don't want to take my word for it. I only spent 8years in the medical field, seen my fair share of nasty.
@@h1l1ght420to be fare shes using her condition for clout not to spread awareness i mean you can say it for that reason but the truth is shes wants clout
I had a college roommate who would get seizures similar to this (I forget what it was called, it was years ago). That troll saying it’s “clout chasing”- yeah, so no. It sometimes looked like she was being weird or out of it, but she explained that she’s had seizures from a brain condition since she was a kid when we moved in with her, so we knew. It happened once or twice in our dorm during the school year, but one night, I was with her and one of our other roommates in the kitchen and she was like… guys I feel kinda weird, should I call my neurologist? (Her family was really wealthy and the neurologist was a family friend, so basically she was able to call them any time). She was slurring her words and her expressions were kinda off in addition to her usual seizure symptoms and I was like… maybe I’m overreacting, but this doesn’t seem normal. Thought it wouldn’t hurt to check, her pupils weren’t dilating when we shone a light on them and then we were like… dude you might be having a stroke, definitely call your neurologist. They had her go in for an MRI the next morning. And turns out, she was having “mini strokes” in a few parts of her brain. It’s a good thing that in my roommate’s case, it wasn’t too severe (she’s doing fine now), but being able to spot those things could save someone’s life or decrease the damage by recognizing it. Knowing what her seizures normally looked like helped us have an idea of what was normal (and not to freak out) and what wasn’t. All that to say- yes, it is important that people know about this, and I’m glad this girl posted this video because sometimes, you can’t go around telling everyone you see “hey, I have a condition…” It’s not clout chasing or attention seeking (sad comments like that one above, on the other hand…). A lot of these “quieter” seizures can be overlooked, but seizures can sometimes be caused by other conditions that make the person have a greater susceptibility to other issues, like strokes, no matter how old they are. My roommate was in her 20s- not the usual demographic you’d expect to get a stroke.
Zara no matter what u go through u need to know that there are so many people out there who care about u and other people with tics and stuff. Keep fighting! I love u guys!❤
While your message of support is kind, it's important to know that tics and seizures are NOT the same thing. They are not caused by the same condition, don't have the same effects on the person, not treated the same. Very, very different, even if (sometimes) they can look similar. Seizures can also result in brain damage.
@@Robodie that’s what I was saying and Ik I’ve known my whole life I was born with them and have worse then absence seizures but I do what she did but it’s not tics tho she going into one so she starts to do that movement and then when ur in it u see how she moving but she just staring that’s not tic that’s what a absence’s seizures are
Thank you for showing the signs of what seizures look like. It's scary to finally see what my husband see when I'm seizing but it's good to know. Every job I have applied for recently, I have always mentioned that I am epileptic and the ones that truly care always ask what to do in these situations. Please talk, sweet girl. Which I'm sure you do, but you're never alone. I wish we could be cured, we just have to stay strong through all the bullshit that we go through.
These look like epilepsy to you? I have never seen seizures like this. I’ve seen and experienced absence seizures, grand mal seizures, even seizures that are so quick, you’re only left with the feeling of impending doom and where nothing looks right. These…..I don’t know what they are.
@@pommiebears I experience these as seizures. I have been told by many medical professionals that they are indeed seizures. They are called Focal Seizures and they give you signs of De Ja Vu and you feel sick to your stomach and become spacious and unaware of your surroundings. I am not trying to be rude by any means, however I do trust medical professionals much more. And truthfully if you have never experienced them yourself, then it is not correct to judge those who do truthfully experience them.
@@pommiebearsFND so dissociative (non-epileptic) seizures. They’re similar to epileptic seizures but don’t come with any changes in brain waves on EEGs. Often an involuntary response to triggers like stress, fatigue, overstimulation. FND is an interesting one - very bloody complicated and often misdiagnosed. Source: worked in a level1 rehab unit for FND
Had absent seizures when I was younger, they went away right before high school. They’d happen frequently throughout the day, it’s so draining and frustrating, remember to take care of yourself.
Wow! I never knew this type of seizure existed. My brother has had epilepsy for 14 years and his seizures are violent. He falls to the ground, thrashing about and most of the time becoming sick while still laying on the floor. I had nightmares for a month when I barely heard a noise and saw him in his room tangled up in his headphone wires and hanging by his neck/arm from his desk. It's the only type of seizure I've known about for 14 years. Stay safe!
I have epilepsy as well and I think I have the same condition I’m very young too I’m 14 and I found out when I was 7/8 when I had my first seizure. Usually mine are in the mornings or nights. I’ve had to go through many tests to try to figure out what type of epilepsy like MRIs ect. I’m sorry that you had to go through seeing other people have them.
@@That_Sweet_child Hopefully, you'll grow out of them. I started mine when I was 12 and my doctor said I had a possibility to grow out of them at around 22. I don't have grand mal seizures anymore but I do have stress induced non epileptic seizures because my body copes with stress by sending me into a seizure like state...wild, huh? But I know many others who grew out of them just fine. One word of advice is to be careful when driving if you are still at risk when you come of age. Do not drive until after 6 months+ of your last seizure. If you can feel it coming, pull over and call someone if you have time. If you can carpool, don't be shy about it. Safety first!
@@Siren21893 Thank you for giving me advice! My epileptic doctor told me I might grow out of them near 16 I haven’t had a seizure in a few weeks thankfully! I usually have at least 30 seconds before I start seizing. I’m actually going for a checkup about it tomorrow! Anyway thanks for the advice!
The spectrum is really wide. There are focal and generalized seizures, with or without loss of conciousness, with motor or non motor symptoms. Al least this is relative to newer definitions. Absence ones are very particular because they tend to go unnoticed, they are really short and usually don´t have a "post-ictal" state as the tonic-clonic ones.
I live with a very similar condition and I absolutely HATE fainting or having absence seizures in public. Especially when I’m not with my friends. Mostly because it’s so scary to be alone and unconscious or not conscious enough to be able to act normally, protect myself, etc. you handled this like a champ! ❤
@@BrochaKleinShe's just showing how it looks like for her. But at the end there's also a caption saying she has a longer video on it, maybe she explains it. But you can also Google all these types of seizures she is having.
When I worked as an SEN teaching assistant, the thing that stood out most to me was that if someone has seizures, the seizures can be like a trance rather than a fit. Like seeing glazed over eyes was something I had to think about twice
@@p_campbell can confirm via internal heart monitor, and on my journey with these issues, that no - it's not blood pressure!! Heart irregularities can be a symptom, not necessarily the cause....
I got in trouble all thru school for "day dreaming" I'm 59 and was only recently diagnosed. My children would get mad at me bc I'd not answer them right away. It's tough unless the people around you understand.
as a person who has absence seizure consistently and at school in many public scenarios, i understand completely how this feels, it makes me feel so much better and less insecure about my seizures, thank you for sharing your journey!!!
Hey! I'm so sorry but i"m so curious. At the moment doctors are still not sure if I have epilepsy or not, because i only had two (very typical) tonic clonic seizures, but i am wondering if i've been having these absent kind for longer? Can you maybe describe what they feel like? Thank you!
yeah sure, i had been having these 'zone outs' or vaging outs. most teachers just thought i was day dreaming, but one day i had one whilst driving a ranger and crashed so we went to the doctor . they ran multiple tests like ecgs and heart monitors and discovered it. i don't really know whilst as im 'unconscious' but some i don't really notice an dim a bit confused and some make me feel really unwell and dizzy.@@inesgoncalves6081
Omg I didn't even know that there are seizures like this. Thank you for opening up and bringing your experiences to the public ik things like this can be hard ❤
They can all be equally debilitating too, especially depending on intensity and frequency. But even with “small”, infrequent seizures, you shouldn’t drive unless you’re 6 mo seizure free. It can really be awful.
There’s all kinds. I never knew until my son began having them. Depending on what area of the brain the seizure happens in determines what kind of seizure. My son even has some that are just extreme anxiety that isn’t an anxiety attack, but same intensity. The brain is so complex.
@@mcchrismwell that’s just plain wrong. You should educate yourself. People who have a disease that regularly give them seizures are very likely to have seizures such as this one. I mean really, a Google search takes like 10 seconds to see that this is true. Cmon now, do better.
I had an syncope sezuire at my college before... I wasn't allowed to get out the sun.. I fell to the floor.. A bully started yelling at me for being lazy.. I was barely on the floor laying next to a pitchfork... 8 got in a hell lot of trouble for 'falling asleep and having a classmate wake you'
What’s so scary is how subtle these seizures can look. Thank you for making videos like these so that I can be more aware of the signs in my friends/work colleagues
thank you for showing this, i feel that too many people think that seizing is shaking on the floor and foaming at the mouth when there are so many kinds of seizures. I used to have absence seizures so thank you for being brave to share this 💜💜💜
@@twinkletwinklelittlebat It's not a competition. I'm sorry you experience those types of seizures but it doesn't and shouldn't mitigate the pain that other people go through with their own issues, regardless of whether you believe one thing to be worse than the other. There's no need to be hostile to someone who is innocently appreciating a representation of what they go through and experience. We shouldn't need to create a competition based on who has it the hardest, the reality is that too many of us struggle (in different ways) and so we should be kind and supportive to one another. I'm also very sorry that there were times when people were not like that to you.
@@HowdyImYokei have seizures too! in fact i had one 2 days ago.. i was so out of it and had a grand mal. I was vomiting and felt so sick that day.. i thought for sure i wouldnt have one in September.. now im having them at least once a month or every few months
My 6th grade teacher had the kind of seizures where you fall on the ground. He told us on day 1 that if he starts seizing on the ground, to move all the desks away from him go into the hallway and go to the nearest teachers door. If they aren't there to start screaming and run to the office. He didn't have one our year but he did a few years later. He had prepared his class well and they executed the plan perfectly. It's always good to make sure the people you'll be around for an extended amount of time, know what's going on. At least a couple people that way if one of your trusted people is absent, there will still be someone else.
@@rm71991 nope he never had one in my year but did a couple years later. Thanks for telling me I'm wrong even though you know nothing. Have the day you deserve (a shitty one) 🥰
My friend has epilepsy, and she usually has absence seizures where she spaces out and slightly wobbles (although shes recently had a couple grand mal which is unusual and bad), so seeing more people bring awareness is amazing!
Grand mal is called Tonic Clonic now, which means that the body becomes rigid before the shaking. It's kinda funny because grand mal literally means "big bad" in French so it makes sense they wanted to switch to more descriptive words
I had a grand mal seizure when I was 3 and the same day as my little brother's birth. That was how they found out I have grey matter heterotopia. I'm 23 now and I've never had another seizure 😅
@@morgan4574lmao I never realized that it meant "big bad". But yeah, Tonic-Clonics are nothing to snuff at. Oddly though, NE seizures that look like Tonic-Clonic don't often have near as bad of side effects (source: had a 27min and several normal length NE and afterwards am pretty good, if hella tired)
As a POTs girlie I have these every week when I have what I call ‘a drop’ I’m there but I’m not there. It does look like and absent seizure, I’ve had people think it’s a seizure. In public you just look uninterested or on drugs or annoying, I feel bad cause people think my partner had just upset me they don’t know I’m barely conscious. Thank you for sharing, maybe more people will misunderstand.
Omg, thank you! Thank you for videoing this! I have these EXACT seizures, and I cannot tell you how many of my peers, friends, family and coworkers all WATCH ME Mid seizure, and tell me I'm faking it. Honestly, despite my neurologist confirming these are real seizures, I still felt like maybe I was somehow faking it for attention. I've never seen anyone else have these exact seizures like I do. I'm so glad you're safe, and managing to stay in college. You are so amazing.
I completely understand the idea of feeling like you're faking it. I'm epileptic and because my memories surrounding the seizures are so hazy, I used to thin, that maybe I was just faking it, or that it never happened
The imposter syndrome is a real thing ... don't let anybody tell you what you are experiencing - you know yourself better than anybody else and doctors confirmed it, so don't doubt yourself. Otherwise you are just gonna do damage to yourself
I’m so sorry that happens to you! Going through something so serious and having ppl tell u that ur faking it has to be so difficult to deal with. When it’s not extremely severe and in their face, it’s difficult for ppl to understand it and they’re wrong for that. Stay positive, keep urself safe and hope ur doing well!
Watching this, I totally relate to you as an epileptic and a college teacher. Seizure awareness is very important. Thank you for opening your heart! Educate your students and they might feel secured enough to come to you when they need it! 💜
I knew a girl who had absence seizures, and one day in class she was experiencing one, and the girl sat next to her thought it would be appropriate to slap her across the face. I couldn't imagine how disorientating that may be, and I've experienced tonic-clonic seizures
That's awful. I don't experience seizures, but I have a blood pressure issue (low blood pressure), which has caused me to nearly faint a few times. Basically I'll be concious, but I'll have completely lost awareness of my surroundings. I can't see, hear, or feel anything, and can't tell whether I'm sitting or standing or lying down. It's happened a few times in public, and it's very scary being in such a vulnerable position. I literally have no idea what's going on around me, and anyone could be doing anything to me, and I wouldn't know. It's very distressing. Also, slapping someone is assault, and is never OK, even if the person isn't having a seizure.
I’m so happy you’re diagnosed and your classmates are aware. It would be so difficult to notice an absence seizure without research. Enjoy your summer ❤🎉
I've had epilepsy pretty much my whole life and even after surgery I'm still on daily medication and probably will be for the rest of my life. Luckily I've had no proper seizures since before the surgery but I still have focal aware seizures each day. But yeah, life sucks.
My cousin has these. Its like pressing pause and then she continues doing whatever shes doing like nothing happened. Her father is grand mal where you have the "classic" seizure symptoms
I just heard a story of a boy who was too afraid to tell his teachers. Stay safe, friends, and never be afraid to do what you need to do to stay safe ❤
Oh my gosh!!!!!!!!! I have FND and I'm also attending college! You posting this and showing your experience makes me feel so much less alone! FND is so hard, and you're so strong for persevering! Thank you so much for sharing this!!! Really! It means so much to me!
I have FND too! When people find out it’s not exactly epilepsy they take it wayyyy less seriously and it’s discouraging. But it has such a huge impact on daily living. We’ve got this ❤
@@cecegure7684 no. as Somebody with a disability, we aren’t brave for simply existing. We cannot do anything about it. I didn’t miss the point, you did.
@@mckennadevore8692 I'm assuming they meant for posting examples of her symptoms/seizures that's helping raise awareness. I really wouldn't want to put videos up of my disability effecting me, especially as it's likely to attract ableists and bullies.. so I think you did miss the point
My sister used to have seizures along in high school. Some would literally last for hours, full absence and suddenly she would "come back" as we used to say. She would have zero recollection of anything that ever happened during her seizure. The only real way we could (sometimes) tell she was out of it was sometimes loss of bladder control. Often times she would have full conversations with people during her absences and never know what was actually said. It was so scary. Alot of her problems were stress induced. She hasn't had any seizures in quite a few years now. Seeing this brought back so many fearful days. I'm sorry you have to deal with this!
I was just scrolling through my UA-cam shorts and I saw your page and it’s helping me as a high schooler with seizures, it really just helps to see other who are like me living their life and not letting this make them think any thing about their worth
Very helpful that you are aware and open about it. Make sure someone close to you knows what to do. I expected a way worse seizure, and my instinct would be to protect your head, but i wouldnt know if its best to restrain you, or leave you to move around
When someone is having a seizure, do not touch them unless absolutely necessary. Clear hazardous items around if you can, but don't restrain them at all. Even a pillow for their head can be problematic, or the common idea of putting something in their mouth isn't a good idea. Let them have their seizure, then afterwards, if it's uncommon for them, if they pass out for more than ~30 seconds, or if they were more harmed by the seizure, call an ambulance
@brocrow5678 one thing to add, it's best to always call paramedics if someone is having a seizure as long as it's greater than what the above person was experiencing because most people don't understand when to and when not to call and would you rather risk them being wrong and not calling?
Leave em alone. My friend lifted a 400+lbs paramedic during one of his seizures before , they are crazy strong during it and have no idea what's going on Talk gently and just assure them they are OK, and guide them to safety best you can, a bed or couch , they tend to wanna walk around so just keep an eye on em
She's very clearly in a course and has dealt with seizures enough to know her own limits. Thus, she doesn't have the freedom to lie down at that moment and she most likely knew she would be able to handle the seizures without any precautionary measures.
It's not a prediction. It's called aura. My son has epilepsy and these are precursor signs. Recording is also recommended by many neurologists to determine the type of seizure.
It's smarter to have your medic alert visible and lay down in the recovery position, than it is to sit and wait for a seizure so you can record it for social media attention and ultimately instant gratification. Take your meds properly and you won't get seizures. Simple as. I'm on phenobarbital for my neuro-epileptic seizures that can cause massive issues if I don't lay TF down. I only get them when I miss a dose by 30 mins. Sit down children.
Hey FND fam, I have seizures too ranging from absences to full fits. They can be so sudden, terrifying & overwhelming but It is so helpful & comforting when people around you can be warned and remain calm thanks to people like you educating ❤🙏🏽 . Others recognising the signs which are individualistic can be so helpful, reassuring and safe. Some include: getting suddenly hot/flustered, looking and feeling lost/confused, staring, blinking double time, widened glazed eyes, head tilting/shaking, stiffness & rigidness or going limp of the upper body. People reactions can completely alter how an individual feels pre & post seizure. Everyone is different but someone gently calling my name a few times then saying "you just had a seizure but you're safe, we are at (location). You/we were just (activity/subject). How are you feeling? Do you need anything like water?" It takes a while for my mind to catch up so repetition whilst giving extra time to think and come around is key. Always remember to ask individuals of their preferred approach though. Also NEVER shout or abruptly tough or move the person unless they're in direct danger.
As a fellow person suffering from FND do you have any form of treatment that helps because I was told there's nothing that can be done except monitor it and I've been struggling for 8 yrs now and have lost the occasional job due to it
This isn't a seizure. This is anxiety induced paralysis and twitching. Literally a 1/100 on the medical charts for a problem. It's dumb new age "omg I have anxiety so I'm autistic and special" self diagnosed nothingness. She'll out grow this bs. And if she wasn't doing it for attention wouldn't have an entire UA-cam channel about her non existent pathetic condition. I actually have Real health issues and this is just annoying to anyone who's spent any time in the ICU for real.
@williamsalgado9738 so yes and no, legally they can't fire me because of the condition but they can for being late, or not being on shift. Even if the reasons for that are health related
My husband has epilepsy and while we were out to lunch a lady woke him from an absent seizure he was having by bending down and telling him to “take a picture. It will last longer.” He told her (after a moment of baffled speechlessness) that he had epilepsy and she’s like “and that means you stare” and he’s just tells her “yes it does.” She didn’t believe him.
Is that what it is when I “zone out” my doctor as well as many people in my life have suggested it may be mini seizures like those. I’ve looked into it and I don’t exactly remember what the cause is but I believe it has to do with my anxiety (not venting just explaining) I hope for your safety those around you are aware of your condition. Your videos are greatly helpful and informative :)
Maybe trying looking into “PNES” or psychogenic non-epileptic seizures, I’ve also heard it be called “panic disorder” in psychology as well. Earlier this year I began having seizure like episodes that seem to be heavily connected to panic attacks and anxiety. They don’t show up on tests geared towards epilepsy because they aren’t, (as far as research shows now, it’s still a fairly new thing), caused by electrical pulses in your brain but rather a very physical reaction your body gives due to stress. I’m still learning about it myself but it may be useful information for you!
I had a coworker who everyone knew she has epilepsy, but none of us knew the signs of when a seizure was coming. One day she started randomly blanking out, like in the middle of a conversation she would stare off into space or would be walking and just stops, stares and snaps back. After roughly 30 or so minutes of this and in the middle of talking to our boss, she looked up and went over backwards. She went into a full gran mal seizure and my boss reduced her fall, but couldn’t support her dead weight due to medical conditions. We had to call her boyfriend from another area to help restrain her, because we didn’t know how to do so safety and without risk to her. By the time the ambulance arrived she was conscious, but physically exhausted and barely standing on her own with no memory from the last 10 minutes and spots in her memory from all the times she blanked off.
She hasn't had one at work since, and she is on medication to prevent them from being frequent. We don't know if light, temperature change, or something else caused it. She did hurt her arm at the time cause with grand mal seizures, it causes a lot of flailing like movements.
I do also- sometimes I even feel like I programmed this self-fulling in my head, so I’ve cooled it on the flashy stuff. Just in case. That’s correct, I don’t have a diagnosis, just hypochondria 😅
I have these too. I don't remember a lot after which is the hard part for me. Seeing you go through this... I feel for you. You are definitely not alone and prayers are sent your way. Its a hard thing to live with especially when you go places and you feel something is off and you have to explain to people and they get nervous or fidgety. We just need someone to make sure we are ok, nothing more. Bless your heart! One Love 🤘🏼💚
I suffer from epilepsy as well, was diagnosed at 14. I have had to teach my husband what to do whenever i do have one so he can help me through it. I hate coming back from it and losing track of time as well as forgeting the people i love around me. I have forgotten who my husband was, i forgot i had kids at one point, its not a fun experience, i have had some where i have fainted and i have come close to hitting my head twice(dresser and concrete floor). I am glad you shared this because a lot of people dont really know the signs. I get asked questions by friends and some family members that want to know more about them. This is informative, but, i am sorry you have to go through this. You are not alone girl. :)
Our sweet Rotty had seizures from one year old. She had grand mal seizures very bad. We treated her with meds and the Vet's care and she lived happily until the age of ten. She almost bit me once when coming out of one so we learned to just let her be but always watched her to make sure she was fine. She is deeply missed. Most friendly dog ever. Most people don't know that dogs can have seizures. My best to you!
As an instructor, I appreciate your posting this. I do keep an eye on my students. I don't always know medical situations, many students don't wish to disclose, or just have friends in the class that are aware. Thanks again! I really appreciate the added awareness this brings.
In my lecture this girl had a seizure. Thankfully her friend was there and knew all of the right things to do (timing it, watching her head etc.). Hearing her gasp for air was absolutely horrific. BTW: yes I would’ve gotten up to help but her friend and a few others had it under control. It was also a HUGE lecture class and I didn’t want to get in the way of the people who actually knew how to help her. What pissed me off was the fact that people were recording her, laughing and snickering. She literally could’ve died. And after class this snotty brat who was in a lab of mine told me she SAW the girl fall and hit her head. She laughed and didn’t even ask the girl if she was okay. She literally saw her lying on the floor and did nothing. Talking about it as if it was some casual laughing matter. It really saddens me and I’m trying to get trained to recognize seizures/other emergency incidents so that I know how to help. Because I’m noticing with this generation that many people just don’t care or they don’t do anything.
Thank you for posting this. I suffer from anxiety induced seizures, either forming into absence or grand mal. Ive always wanted to know what my family sees when it happens. Sending you love and support from Canada
Hi I'm someone who also had absence seizures and I'm so glad to have found someone who also does! I have never seen anyone with this type of seizure on the internet and it's nice to know someone who does. ❤
I’ve read that you’re getting some not so nice comments, so I’m gonna comment today. I just wanna say that so many people including myself really look up to you. You’re a big role model for young disabled people, you help foster so much love and acceptance and help us set a good image of how we should view and treat ourselves. I hope you stay positive and I hope you’re doing okay🩷
You are so beautiful and brave showing your symptoms in front of the people. Make me understand more about this subject and realize how much support our children needs at school how much we expect from them to be high achievers ??!
My daughter was having lots of absences. Her doctors would ask me to make a video of it. But making videos of seizures or absences is not always easy cos you don't know when it'll happen. Anyway, her epilepsy became worse so I was finally able to make a couple of videos cos she was having so many seizures that I got the chance to record some. But the doctors didn't believe they were absences cos she looked normal. Looking at this video, I can tell this lady is having absences cos they look similar to my daughters'. But the doctor kept questioning me as to how I know it's absences, cos she looks 'normal'.
My sister has abscence seizures and they're so short that I can almost never tell. It might be hard to see on video. Maybe if you talk to your daughter on video, then they can see she is slow to respond? They should be able to test her either way, if she can sit still for an Eeg.
I am go through same thing over last two year’s 🇬🇧 doctors are a waste of time had EEG normal they came back…still have the one’s this young lady has..an just like you doctors want videos evidence..thing is I have young kids an I can’t see them remember too film seizures or absences…for the next appointment I have with doctors….back say 30 years ago the doctor had too use there brains too work out a diagnosis…so tired of the doctors in this country
You need a new doctor who actually has experience with absence seizures. Finding a good doctor is hard (and expensive) but so so worth it. I would not be functioning today if I hadn't kept searching until I found a doctor with lots of experience in my condition who listens and cares enough to figure out the best treatment.
I'm crying right now. I used to have type absence seizures when I was younger but with medication I grew out of it. My teachers always called me stupid and I struggled to make friends. I didn't know that that's what I looked like and I can't believe no one was concerned for me. I'm glad you seem to have a support system, and I hope you never have to go through what I did❤
Because it just looks like she’s just ‘spacing out’ on this end, especially to the untrained eye. So if people don’t know what to look for, they’re not looking for it to be concerned.
@@Lacroix999 yeah i need to remind myself at times people often arent aware of even some more common things, but spacing out still usually makes people ask me 'are you okay' even without knowing my medical problems, because someone could have a lot going on, we just dont know why people out there could call us or others 'stupid' or comment on intellect for something
@@bnuuyboy idk why someone would call you stupid for spacing out. That’s one of the dumber things to make fun of someone for, not that making fun of anyone for anything, deemed ‘dumb’ or not according to someone else’s standards, is ever ok because it’s not, but lots of people space out! There’s actually a technical term for it, of which I don’t even remember right now, but it happens a lot to some people, especially to those who have vivid imaginations, especially children and even more so who are bored and by those who are stressed out and don’t care to be in the environment to where in and use it as a coping mechanism to escape. Those are not bad reasons, but we make them out to be because we act like people need to be here and in the now, otherwise they’re not going what they’re ‘supposed to’….again, according to someone else’s standards, even if it goes against our own. We think that someone spacing out, has their head in the clouds and needs to be more in reality and because they’re not, it’s seem like they’re more of a basket case and given a negative connotation/stigma attached to it. We shouldn’t ever judge someone else or interfere with them in doing something they deem is important/useful/wanted to do by them in their own time and/or space unless it’s doing them or someone else harm. It’s not up to us to decide what that standard is for them. If someone is spaced out around you, it’s probably because they find you boring with many be a fair statement and it’s not rude to not want to engage with someone JUST because they’re there in your space doing something/making noise talking *at* you. If anything, it’s rude to assume that they should *just* because you are. I know that got off track a bit, but it just goes to show you that not everyone will find you as entertaining as you’d like to think and that it’s ok to have people space out because of that especially when doing so *is* found to be much more entertaining. 😂 but we need to stop seeing it as a bad thing like there is something wrong with people for doing so. There’s not something wrong with you if you do. Obviously if they’re doing it and you know what to look for for a seizure or their eyes are rolling back in their head, that’s not the same thing and by all means, please, ask if they are ok! But other than that, they’re off in their own little world for a reason and if the current one was more important to be present there, then they would be, so just leave them alone! 😂 If you couldn’t tell, that’s coming from someone who does it a lot and hates being interrupted in the process! 😂😂
I quit my last job because of my assistant store leaders attitude toward my seizures. She said it pissed her off that I had to sit down when I was having my seizures, she even had other people watching the security camera footage of me having a seizure because she doesn't believe it's a real seizure. I felt like an animal in a zoo or a case study in a science experiment. This video is very informative. It shows that there are different forms of seizures, and it can happen anywhere, anytime without any reason. Thanks for sharing ❤
My daughter has been diagnosed with 2 sever versions of epilepsy and suffers with absent and tonic clonic seizures, she’s only 6 and because the severity of her diagnosis hasn’t been given a long life expectancy. Seeing this video is so alike to when she has her “wobbles” (that’s what we call her little seizures) Just want to say…. We’re all proud of you and how you haven’t let your seizures affect your day to day life, well done with college also!
If someone you know talks and they are not responding always check on them, when you are having a seizure, some times you are unresponsive and are droopy
@@mrmerlin6287for you and others that have these, are you conscious when it’s happening? Is there a memory there? I have always wondered but don’t know anyone personally.
@@Clearlyclynnfrom the few seizures I've had, I wasn't aware of it going on. I'd only know after I had been told by the paramedics. I also have no memory of anything just before the seizure. And after is a bit of a haze. I'm not too sure about other people though
@@56kglifterno, seizures can be very exhausting to the person having them. Your brain quite literally short circuits. And if she has more physical grand mals, then I can tell you from the many I've witnessed, those absolutely drain the patient.
@@alonelychocolatebar1954 ik what a seizure I have them quite frequently. But not to whatever this soften version is. She is not on the fucking floor freaking everyone out in public or at home while you are unable.
I have absence seizures, and it’s so crazy to see how they look from the outside. For the longest time, I thought my eyes were closed and I was fainting, and then I would ‘wake up’ and it feels like my skull is buzzing and I almost instantly forget what happened. Learning the feeling before it happens is so important lol, the amount of times I’ve had to pass a cup or lighter to the nearest person before I lose control of my muscles is crazy.
I know. It’s embarrassing and you try to hold back and hold on from the feel of guilt from the public eye and mainly the ones you love the most. It’s hard. 😔💜
I have both FND seizures and epileptic seizures. Both are equally as exhausting. I can have ones where I am staring into space or just black out for 30 seconds. Then others that are more noticeable grand mals in some instances they’ve lasted longer than 5 minutes. As someone that has both FND and epilepsy thank you for shedding awareness on the different types of seizures, not many people know or understand the invisible seizures, it can be extremely misunderstood. Just remember you are a fighter and you are strong.
@@JupiterLXIX I don’t drive I have to be 9 months seizure free for that, but I live in the city so there is heaps of public transport so it’s not an issue.
@@nerolzvanity absence seizures mostly look fine, but she can't control her body and muscles for a short amount of time and seemingly blacks out, unlike "normal" seizures where their nerves and muscles spasm, this one is just the opposite of that
Ahh it sucks so bad. It’s so hard to concentrate. It’s more present when I’m sick. I use to be on so many meds for it. I been able to taper down to 3 now. I really hope you find some relief some day.
As someone with a brain I can confirm she knows exactly what’s going on. This is so clearly staged it hurts. She set up a camera, faked a medical emergency, and posted it online in the hopes that gullible idiots would fall for it and give her sympathy. Congratulations you are one of those gullible idiots.
@@inkazen epilepsy is merely the condition of having a certain amount of seizures in a certain amount of time. It just means you have frequent seizures. She’s a fucking faker
@@inthewoods5494she is a known content creator and records mostly all her classes for the chance of catching seizures etc like this. She cuts her videos down so it’s mainly just important parts of the recording. She didn’t magically set up her camera and straight away have a seizure. Will have been recording the whole class
I have been suffering from something similar and none of my doctors had a clue...but it totally sounds like 95% of my symptoms!!!!! Bless her for sharing!
This is real. Since I was about 14 years old, this medical condition has affected me. It is generically called petite mal, but the medical term is absence." You completely lose awareness for a few seconds and become slightly confused for a while. My friends and my neurologist know of my condition. In fact, I just had one as I was writing this because I wrote the word "condition" twice. Sometimes, I will repeat a letter like this "ttttttttttttttt" which means my finger was on the keyboard when having a seizure. Look it up in a medical journal for a detailed explanation. 😮😢😊
It’s hard to hear that some people suffer from such afflictions, yet your honesty helps those around you to give you the proper care. My brother suffers greatly. I will keep you in my thoughts and prayers. You’re an inspiration to others who also suffer from seizures.
There's a kid in my class who has had a very severe seizure in class once. He had to go to hospital afterwards and the doctors don't even know what's wrong with him. It isn't epilepsy or anything. The tests haven't found out what it is so when it happens, we were taught how to act. Always be there for those who need you guys ❤
I had a kid with pretty nasty epilepsy in my class. It'd come in very rare, short but powerful episodes as he said himself and I witnessed one in a class. Suddenly he started screeching very loud, jumped off his chair almost as if he went ballistic and flopped down, started squirming around the floor uncontrolled for 20-30 seconds before calming back down. It's one of the things that's always been with me as a reminder of what epilepsy can be and how to try to help (as my teacher obv tried, too). Never seen a human being move so irrational out of nowhere and I feel for those that struggle with it on a day to day basis.
Thank you for showing this. I have POTS and possibly FND i just haven't seen a doctor for it yet but this happens to me exactly the same where i can't tell if I'll seize or faint i just feel really tired and everything slows down around me. I usually seize three times a day and faint once a day but it used to be fainting 12 times a day but it's switched to seizing now. Thank you for showing this especially for people that don't understand and for me to know I'm not the only one with these symptoms.❤
I hope you can get treatment soon! I knew I was fainting several times a day but didn't realize I was seizing at night. Now I'm on several good meds and also a good diet that all keep me pretty stable. It took time but you'll get there too! Take care ❤
@@bodyofhope Thank you so much you're so kind! I'm glad you're getting treatment that works for you and figured it out. Thank you for having hope for me and telling me your experience! Wishing you the best♥️
I have a question real quick, there are points throughout the day sometimes where I don’t remember anything( like I’ll just randomly come to and like 5 min have pasted), and whenever I ask someone about what happened they just say I zoned out but I know when I zone out and it’s different, I was just wondering what you feel like during a seizure, like are you aware of it or is it just kinda like a blank moment for you. I have a lot of health problems that my parents won’t pay attention to so I’m kinda trying to figure out what all is wrong with me😅
@@noramowrey738 Thank you for asking that's a great question! I totally understand what you mean because I have absent seizures which is what it's called when you just stare blankly but it's different than just zoning out. For me I can tell that I had an absent seizure because I feel lightheaded afterwards or like you said I don't know what happened during that time because it's like everything stopped or slowed. I also have a few different types of seizures that actually make me twitch/jerk and my eyes flutter and those last for a while like from 10-20 minutes but the absent ones only last a few seconds to 2 minutes. I hope this helps and I hope you figure it out soon. I haven't even been diagnosed with my seizures yet so I get that and trying to figure out everything wrong with me too. I wish you the best of luck and I hope your family takes care of you well🫶
Awww i very sorry you have to go through this, i can tell its probably quite hard living with something that could become a challenge to put up with every day. Im enimic so i feeling droopy as well alot and feint not often but sometimes, not saying they are the same just trying to make you feel better i guess. 😊❤❤
My oldest daughter has absence seizures as well and sadly she was living with her father at the time they began. It took me 2 years of fighting for my child with her father, that she wasn't just "rolling her eyes" or "being a smartass" at 5yrs old. Finally, when she got her official diagnosis, her apologized for all the times he tried to punish her for "rolling her eyes" at him. Thank you for showing ppl that different types of seizures look very different.
Having absent seizures, I can relate to this so much 😭 it’s not even funny. People think they’re like a cool thing to have, but they don’t know how scary it is when people start gathering around you when you don’t reply.
I’m glad I can see other people experiencing this. I have absent seizures aswell due to epilepsy, thank you for helping me understand that other people go through it too
I hate how people say she’s faking it. It’s very hard for people with conditions like these, nobody seems to get it or understand what we’re going through. My brother is deaf and so I have to be with him to help him translate things, people always say he’s faking it for attention. It breaks my heart to see how people always treat them. 😔
Im sorry you've experienced that. That's horrible and no one deserves that. I think there are a lot of people on the internet seeking attention..faked cancer ect... that sort of thing. But those people are always found out. In my opinion people like this poster are not only making a group of people feel seen... she's raising awareness for people, mothers like me.
2 thumbs up from me.
Faking... deafness? For attention? Firstly, what a RIDICULOUS thing to accuse someone of with no proof. Secondly, I really, really hope those people are at least aware enough to be embarrassed when they're proven wrong.
You REGULARLY get people accusing him of faking it?? Why?!?
People say he’s faking it because he wants people to think he’s ‘special’, or people say it’s for attention. It’s completely wrong to accuse someone of faking something about themselves that they can’t control. @@evelynkirishko5407
that's all kinds of messed up. What kind of world are we living in? But then again, at least your brother doesn't have to hear this shenanigan's. Sometimes I wish I could just take my ears off
I have epilepsy but have been "sober" of them for about 12 years now. I constantly suffered from tonic-clonic seizures. My heart stopped and I almost died in front of my parents. Seizures are a real thing! No joke about it.❤
What finally stopped them for you? Medication? Diet?
@@Sirliam95when people age they sometimes just “grow out” of seizures which means if you get lucky you can stop having them when you get older. Also medicine can’t treat seizures only prevent them
Mine didn’t start happening until I was 28. Have had a couple dozen over 2 years. The medicine seems to be helping lately. Glad you are doing well
How do you know they gone, it's been so long since my last tonic clonic or shake but like how do you know for sure you know
Same I have epilepsy and was having multiple seizures a day until I started smoking weed and it helped calm them down 😂
I passed out and started shaking on the first day of my psych class, and the professor was super kind about it and even checked on me multiple times after class. Just a reminder that good people are still out there.
Isnt that kinda a job requirement
I had a teacher in secondary school.. I hated him. I was an asshole to him. i'd back chat. and kick off. and piss about all the time. I hated his classes. And wasnt at all interested in anything he had to say. This got compounded by the fact my behaviour got me a lot of detentions from him.. which increased my hate of him.. cause I had to spend even MORE time with him.. It was a constant spiral..
One day... During one of his classes.. I started feeling faint.. But I had never actually fainted before So was in full panic mode.. I wasnt able to talk. I could barely hear anything.. and my vision was going dark.. it was scary as heck.. I noticed that he was asking me something.. but I didnt know what and couldnt reply even if i wanted too.. Sure enough a few seconds later.. I open my eyes.. We're outside.. and hes full on fireman lifting me somewhere.. I black out again.. Im in a hospital bed attached to a machine pumping liquid into my arm (I was majorly dehydrated and they were pumping fluids)... and hes right there besides me asking if I was okay..
My respect for him shot through the roof. From then on I was his best student totally changed my view on him and every teacher at my school.
This was a guy that I had put through hell and despite this.. he didnt even hesitate to help me when I needed it most.
@@Triscraft ngl I would have fallen in love (obvi not lit bc that's gross)
Pretty sure he doesn't need someone dying in his classroom
@@TriscraftDid you ever thank him? What was his name? The reason I ask is because like you, I had a teacher that I highly disliked and gave her hell.. Until one day like you, something happened and I was in distress. It was horrible. But she saved me. And after that, nothing but pure love and respect I had for her and still do.. Even after graduating and having my first kid, I came back to see her.
As a child of a mom with seizures, ur seizures look very different from my moms! And that’s normal. It depends what causes the siezure usually. My mom has a scar on her brain which causes them and it’s in a emotional part of her brain which makes her cry.
Edit: thanks for all the likes you guys! I dont wanna be that person but this is ALOT!
Yeah ik I just found out about absent seizures I think it's like rare and are mostly found in kids they can go away as you get older or stay like hers
yea my mom has it to and it's bc she has epilepsy and she has the bad ones where they move a lot and foam in the mouth but she doesn't have them often
@@xaviannasmith9545it's not rare. It's quite common. I happen to be one of those who have absent seizures. I've had them since I was a toddler. Unfortunately for me, I'm one of those 1 in 4 people whose seizures don't go away in adult hood
I have absent seizures, and it was hard for me as a child. My family disowned me. People in the family couldn't even touch me because they thought I had demons that why I had seizures
@@damaranelson when i was a baby my two sisters and dad were home . My parents told me this story btw. My mom started rolling on the floor and started foaming from the mouth. My sister (middle child we will call b) was terrified it was something she will never forget.
Bless your heart sweetheart, I’m sorry you have to go through this. God bless you and your family.
Don’t feel sorry for this bitch. She’s faking it for attention. Let me ask you this, when someone has a medical emergency do they have time to set their phone up at the perfect angle and press record? Do people just casually film themselves every day in anticipation that something awful will happen? No, they don’t. What does happen is people faking medical conditions for brownie points because people are gullible.
She supports gay, she aint sweet
You got low IQ
A sucker is born every minute.
@@JTguitarlessonsno she’s not 🫤give me some evidence. The only things I see are accusation of her faking tourrettes even though it’s proven she’s not faking it. Stop the 🧢, if you give me some evidence I’ll shut up
It's scary reading the comments and realizing people are even offended by disabled people. Are any group safe from the mindless mob of hateful people?
Exactly! And they have the audacity to say she's faking when she literally has the paper work to prove it.
Also, to answer your question, no, no one is. Me and all of my closest friends have experienced hate in the form if bullying just because they might be slightly different.
"offended by disabled people" there's no other phenomenon sounds more stupid than that. Why are people like this 🙂 are they not getting enough attention or not feeling ungrateful to be healthy?
I think a lot of the frustration comes from the fact that we could cure this terrible affliction in one generation if those with epilepsy would be barred from procreation.
@@barbarossa1780That’s literally eugenics wtf?
@@barbarossa1780 That's not how that works...
One of my high-school teachers had a medical condition of some sort that would cause her to have seizures. One of the first classes of hers I was in she used it to educate everyone on seizures and what to do if one happened.
Later in the year one of the students had a seizure and, because she had taught everyone what to do, we were able to help him. She'd seated one of the fastest kids next to the door and he bolted for the nurse while the rest of us moved the tables and chairs out of the way and supported his head and limbs. He was ok😊
at least y'all had a nurse..
🙏🏻🙏🏻🙏🏻
@@claxeekhout1239 literally what are you talking about
@@claxeekhout1239bro ur 12, you haven't even hit puberty yet 😂
That’s good if you don’t mind what grade were you ? Just curious
Just wanted to say for those of you who arent fully aware of absense seizures!!
(I experience them)
Here’s a few basic facts:
- Absent seizures can happen 10+ times a day
- Absent seizures can be zoning out ; twitching ; shaking
- Absent seizures are often unnoticable by the person having them or the people around
- Common Triggers Include ; Heat ; Tiredness ; Stress ; Hunger
- 1 / 3 people have epilepsy!
- They can lead to ; feeling shaky ; feeling tired ; feeling dissociated ; feeling detached front reality ; feeling unfocused ; feeling anxious ; sick ; headache etc
A ambulance is only needed if;
Its the persons first seizure
It goes on for over 5 mins
Or the person is hurt / unconscious
Thank you this is rlly helpful!
Personally I think 5 minutes is a little too long to wait if someone is having a seizure. I feel like even a minute should cause for concern
@Quannar exactly- unless you know whats causing it- which is why if its your first seizure you should go to the hospital
Sorry @Quanarr
@@sadiemaxfield7566 lol to reply to comments just click the 3 dots besides the comment you wanna reply to and click “reply” 😭 it might help make your life a little easier
I’m grateful for the knowledge shared. Maybe if everyone was aware of conditions like this people would get support and understanding.
The condition being clout chasing on the interwebs, and wanting attention??
@@p_campbelland your condition being a troll on the “interwebs” for attention
@@h1l1ght420 aww you care.
Nope try again buttercup. I just call out Bullsh!t when it's there. And do you own research if you don't want to take my word for it. I only spent 8years in the medical field, seen my fair share of nasty.
@@h1l1ght420to be fare shes using her condition for clout not to spread awareness i mean you can say it for that reason but the truth is shes wants clout
I had a college roommate who would get seizures similar to this (I forget what it was called, it was years ago). That troll saying it’s “clout chasing”- yeah, so no. It sometimes looked like she was being weird or out of it, but she explained that she’s had seizures from a brain condition since she was a kid when we moved in with her, so we knew.
It happened once or twice in our dorm during the school year, but one night, I was with her and one of our other roommates in the kitchen and she was like… guys I feel kinda weird, should I call my neurologist? (Her family was really wealthy and the neurologist was a family friend, so basically she was able to call them any time). She was slurring her words and her expressions were kinda off in addition to her usual seizure symptoms and I was like… maybe I’m overreacting, but this doesn’t seem normal. Thought it wouldn’t hurt to check, her pupils weren’t dilating when we shone a light on them and then we were like… dude you might be having a stroke, definitely call your neurologist.
They had her go in for an MRI the next morning. And turns out, she was having “mini strokes” in a few parts of her brain. It’s a good thing that in my roommate’s case, it wasn’t too severe (she’s doing fine now), but being able to spot those things could save someone’s life or decrease the damage by recognizing it. Knowing what her seizures normally looked like helped us have an idea of what was normal (and not to freak out) and what wasn’t.
All that to say- yes, it is important that people know about this, and I’m glad this girl posted this video because sometimes, you can’t go around telling everyone you see “hey, I have a condition…” It’s not clout chasing or attention seeking (sad comments like that one above, on the other hand…). A lot of these “quieter” seizures can be overlooked, but seizures can sometimes be caused by other conditions that make the person have a greater susceptibility to other issues, like strokes, no matter how old they are. My roommate was in her 20s- not the usual demographic you’d expect to get a stroke.
Zara no matter what u go through u need to know that there are so many people out there who care about u and other people with tics and stuff. Keep fighting! I love u guys!❤
Ya I have tics too and it gets hard on me sometimes
@@jadehobby2520agreed
Ur wrong those are not tics like Tourette’s sydrome that’s what happens when u have a seizure I have them a lot Ik
While your message of support is kind, it's important to know that tics and seizures are NOT the same thing. They are not caused by the same condition, don't have the same effects on the person, not treated the same. Very, very different, even if (sometimes) they can look similar.
Seizures can also result in brain damage.
@@Robodie that’s what I was saying and Ik I’ve known my whole life I was born with them and have worse then absence seizures but I do what she did but it’s not tics tho she going into one so she starts to do that movement and then when ur in it u see how she moving but she just staring that’s not tic that’s what a absence’s seizures are
Thank you for showing the signs of what seizures look like. It's scary to finally see what my husband see when I'm seizing but it's good to know. Every job I have applied for recently, I have always mentioned that I am epileptic and the ones that truly care always ask what to do in these situations. Please talk, sweet girl. Which I'm sure you do, but you're never alone. I wish we could be cured, we just have to stay strong through all the bullshit that we go through.
These look like epilepsy to you? I have never seen seizures like this. I’ve seen and experienced absence seizures, grand mal seizures, even seizures that are so quick, you’re only left with the feeling of impending doom and where nothing looks right. These…..I don’t know what they are.
@@pommiebears I experience these as seizures. I have been told by many medical professionals that they are indeed seizures. They are called Focal Seizures and they give you signs of De Ja Vu and you feel sick to your stomach and become spacious and unaware of your surroundings. I am not trying to be rude by any means, however I do trust medical professionals much more. And truthfully if you have never experienced them yourself, then it is not correct to judge those who do truthfully experience them.
@@pommiebearsFND so dissociative (non-epileptic) seizures. They’re similar to epileptic seizures but don’t come with any changes in brain waves on EEGs. Often an involuntary response to triggers like stress, fatigue, overstimulation. FND is an interesting one - very bloody complicated and often misdiagnosed.
Source: worked in a level1 rehab unit for FND
When I was a baby I had 100 seizures a day and slept all day
Epileptic seizures are way scarier to witness especially for the first time
Had absent seizures when I was younger, they went away right before high school. They’d happen frequently throughout the day, it’s so draining and frustrating, remember to take care of yourself.
Wow! I never knew this type of seizure existed. My brother has had epilepsy for 14 years and his seizures are violent. He falls to the ground, thrashing about and most of the time becoming sick while still laying on the floor. I had nightmares for a month when I barely heard a noise and saw him in his room tangled up in his headphone wires and hanging by his neck/arm from his desk. It's the only type of seizure I've known about for 14 years. Stay safe!
I have epilepsy as well and I think I have the same condition I’m very young too I’m 14 and I found out when I was 7/8 when I had my first seizure. Usually mine are in the mornings or nights. I’ve had to go through many tests to try to figure out what type of epilepsy like MRIs ect. I’m sorry that you had to go through seeing other people have them.
Grandmaul I think they are called.
@@That_Sweet_child Hopefully, you'll grow out of them. I started mine when I was 12 and my doctor said I had a possibility to grow out of them at around 22. I don't have grand mal seizures anymore but I do have stress induced non epileptic seizures because my body copes with stress by sending me into a seizure like state...wild, huh? But I know many others who grew out of them just fine.
One word of advice is to be careful when driving if you are still at risk when you come of age. Do not drive until after 6 months+ of your last seizure. If you can feel it coming, pull over and call someone if you have time. If you can carpool, don't be shy about it. Safety first!
@@Siren21893 Thank you for giving me advice! My epileptic doctor told me I might grow out of them near 16 I haven’t had a seizure in a few weeks thankfully! I usually have at least 30 seconds before I start seizing. I’m actually going for a checkup about it tomorrow! Anyway thanks for the advice!
The spectrum is really wide. There are focal and generalized seizures, with or without loss of conciousness, with motor or non motor symptoms. Al least this is relative to newer definitions. Absence ones are very particular because they tend to go unnoticed, they are really short and usually don´t have a "post-ictal" state as the tonic-clonic ones.
I live with a very similar condition and I absolutely HATE fainting or having absence seizures in public. Especially when I’m not with my friends. Mostly because it’s so scary to be alone and unconscious or not conscious enough to be able to act normally, protect myself, etc.
you handled this like a champ! ❤
I didn't know that they existed, but it definitely explains some things
im sorry i thought that said “i hate farting”
Can you inform someone? This girl didn't.
@@BrochaKleinShe's just showing how it looks like for her. But at the end there's also a caption saying she has a longer video on it, maybe she explains it. But you can also Google all these types of seizures she is having.
When I worked as an SEN teaching assistant, the thing that stood out most to me was that if someone has seizures, the seizures can be like a trance rather than a fit. Like seeing glazed over eyes was something I had to think about twice
That's a blood pressure issue, not a seizure.
@@p_campbell no, it was an absent seizure. Part of my SEN training
Please don't call them FITs, A fit is something a person throws when they can't get their way. We have seizures, not fits.
@@p_campbell can confirm via internal heart monitor, and on my journey with these issues, that no - it's not blood pressure!! Heart irregularities can be a symptom, not necessarily the cause....
@@p_campbellwere did you get you're doctors degree UA-cam. Shut up you fool you know Jack sheet
I got in trouble all thru school for "day dreaming" I'm 59 and was only recently diagnosed. My children would get mad at me bc I'd not answer them right away. It's tough unless the people around you understand.
as a person who has absence seizure consistently and at school in many public scenarios, i understand completely how this feels, it makes me feel so much better and less insecure about my seizures, thank you for sharing your journey!!!
Hey! I'm so sorry but i"m so curious. At the moment doctors are still not sure if I have epilepsy or not, because i only had two (very typical) tonic clonic seizures, but i am wondering if i've been having these absent kind for longer? Can you maybe describe what they feel like? Thank you!
yeah sure, i had been having these 'zone outs' or vaging outs. most teachers just thought i was day dreaming, but one day i had one whilst driving a ranger and crashed so we went to the doctor . they ran multiple tests like ecgs and heart monitors and discovered it. i don't really know whilst as im 'unconscious' but some i don't really notice an dim a bit confused and some make me feel really unwell and dizzy.@@inesgoncalves6081
Omg I didn't even know that there are seizures like this. Thank you for opening up and bringing your experiences to the public ik things like this can be hard ❤
Yeah there are several types of seizures and they can look completely different. It's pretty scary!
They can all be equally debilitating too, especially depending on intensity and frequency. But even with “small”, infrequent seizures, you shouldn’t drive unless you’re 6 mo seizure free. It can really be awful.
There’s all kinds. I never knew until my son began having them. Depending on what area of the brain the seizure happens in determines what kind of seizure. My son even has some that are just extreme anxiety that isn’t an anxiety attack, but same intensity. The brain is so complex.
@@mcchrismwell that’s just plain wrong. You should educate yourself. People who have a disease that regularly give them seizures are very likely to have seizures such as this one. I mean really, a Google search takes like 10 seconds to see that this is true. Cmon now, do better.
@@mcchrismeducate yourself before going into somebody's comments to be an ass
This makes me feel so much normal and I feel like I understand my small seizures even more when it comes to twitching ect
This is me almost on a daily, I hate it when it happens. Like I will be doing stuff on my phone and my hand will just randomly slap the phone.
btw it's etc, from I believe the latin et cetera
@@aki_times_tenprobably a typo lol
This was me. It's been 3 yrs since my last bad episode. Blessed Be, soul sister.
I had an syncope sezuire at my college before... I wasn't allowed to get out the sun.. I fell to the floor.. A bully started yelling at me for being lazy.. I was barely on the floor laying next to a pitchfork... 8 got in a hell lot of trouble for 'falling asleep and having a classmate wake you'
What’s so scary is how subtle these seizures can look. Thank you for making videos like these so that I can be more aware of the signs in my friends/work colleagues
thank you for showing this, i feel that too many people think that seizing is shaking on the floor and foaming at the mouth when there are so many kinds of seizures. I used to have absence seizures so thank you for being brave to share this 💜💜💜
@@twinkletwinklelittlebat It's not a competition. I'm sorry you experience those types of seizures but it doesn't and shouldn't mitigate the pain that other people go through with their own issues, regardless of whether you believe one thing to be worse than the other. There's no need to be hostile to someone who is innocently appreciating a representation of what they go through and experience. We shouldn't need to create a competition based on who has it the hardest, the reality is that too many of us struggle (in different ways) and so we should be kind and supportive to one another. I'm also very sorry that there were times when people were not like that to you.
Yeah my brother has the flood foaming type. If I saw someone like her in the video I'd think they were just spacing out
I have seizures too!! All it is is pretty much getting really tense and then jerking your body a bit ❤😂
(Non epileptic)
@@HowdyImYokei have seizures too! in fact i had one 2 days ago.. i was so out of it and had a grand mal. I was vomiting and felt so sick that day.. i thought for sure i wouldnt have one in September.. now im having them at least once a month or every few months
My 6th grade teacher had the kind of seizures where you fall on the ground. He told us on day 1 that if he starts seizing on the ground, to move all the desks away from him go into the hallway and go to the nearest teachers door. If they aren't there to start screaming and run to the office. He didn't have one our year but he did a few years later. He had prepared his class well and they executed the plan perfectly. It's always good to make sure the people you'll be around for an extended amount of time, know what's going on. At least a couple people that way if one of your trusted people is absent, there will still be someone else.
I don’t care
@papaduck_6906 you do if you commented lmao
@@Zayetzo seriously though 🤣
@@rm71991 nope he never had one in my year but did a couple years later. Thanks for telling me I'm wrong even though you know nothing. Have the day you deserve (a shitty one) 🥰
@@papaduck_6906 Seems you cared enough to respond
My friend has epilepsy, and she usually has absence seizures where she spaces out and slightly wobbles (although shes recently had a couple grand mal which is unusual and bad), so seeing more people bring awareness is amazing!
Grand mal is called Tonic Clonic now, which means that the body becomes rigid before the shaking. It's kinda funny because grand mal literally means "big bad" in French so it makes sense they wanted to switch to more descriptive words
@@morgan4574didn’t know this!! Thanks for the info!!
I had a grand mal seizure when I was 3 and the same day as my little brother's birth. That was how they found out I have grey matter heterotopia. I'm 23 now and I've never had another seizure 😅
@@morgan4574lmao I never realized that it meant "big bad". But yeah, Tonic-Clonics are nothing to snuff at. Oddly though, NE seizures that look like Tonic-Clonic don't often have near as bad of side effects (source: had a 27min and several normal length NE and afterwards am pretty good, if hella tired)
These are functional neurological disorder seizures (FND), formally called non-epileptic attack disorder (NEAD), they are not epileptic seizures.
As a POTs girlie I have these every week when I have what I call ‘a drop’ I’m there but I’m not there. It does look like and absent seizure, I’ve had people think it’s a seizure. In public you just look uninterested or on drugs or annoying, I feel bad cause people think my partner had just upset me they don’t know I’m barely conscious. Thank you for sharing, maybe more people will misunderstand.
I’m happy that quite a few people understand seizures. 😊
wdym?
do you mean experience?
@@mochomowi I'm thinking that they likely mean that they are happy that there seems to be quite a few people with knowledge about seizures.
Omg, thank you! Thank you for videoing this! I have these EXACT seizures, and I cannot tell you how many of my peers, friends, family and coworkers all WATCH ME Mid seizure, and tell me I'm faking it.
Honestly, despite my neurologist confirming these are real seizures, I still felt like maybe I was somehow faking it for attention. I've never seen anyone else have these exact seizures like I do.
I'm so glad you're safe, and managing to stay in college. You are so amazing.
I completely understand the idea of feeling like you're faking it. I'm epileptic and because my memories surrounding the seizures are so hazy, I used to thin, that maybe I was just faking it, or that it never happened
The imposter syndrome is a real thing ... don't let anybody tell you what you are experiencing - you know yourself better than anybody else and doctors confirmed it, so don't doubt yourself. Otherwise you are just gonna do damage to yourself
If you fear you're faking it, you're not faking it. -The Click
I feel you.. :/
I’m so sorry that happens to you! Going through something so serious and having ppl tell u that ur faking it has to be so difficult to deal with. When it’s not extremely severe and in their face, it’s difficult for ppl to understand it and they’re wrong for that. Stay positive, keep urself safe and hope ur doing well!
Watching this, I totally relate to you as an epileptic and a college teacher.
Seizure awareness is very important. Thank you for opening your heart! Educate your students and they might feel secured enough to come to you when they need it! 💜
I knew a girl who had absence seizures, and one day in class she was experiencing one, and the girl sat next to her thought it would be appropriate to slap her across the face. I couldn't imagine how disorientating that may be, and I've experienced tonic-clonic seizures
That's awful. I don't experience seizures, but I have a blood pressure issue (low blood pressure), which has caused me to nearly faint a few times. Basically I'll be concious, but I'll have completely lost awareness of my surroundings. I can't see, hear, or feel anything, and can't tell whether I'm sitting or standing or lying down. It's happened a few times in public, and it's very scary being in such a vulnerable position. I literally have no idea what's going on around me, and anyone could be doing anything to me, and I wouldn't know. It's very distressing. Also, slapping someone is assault, and is never OK, even if the person isn't having a seizure.
I’m so happy you’re diagnosed and your classmates are aware. It would be so difficult to notice an absence seizure without research. Enjoy your summer ❤🎉
You’re so brave! I have epilepsy, and it is honestly scary when I have a seizure. But making sure your okay is the big thing.
i had it every 3 yrs around the same time. this yr hopefully i won’t have to take the medication for epilepsy but they have to do a brain scan first
I've had epilepsy pretty much my whole life and even after surgery I'm still on daily medication and probably will be for the rest of my life. Luckily I've had no proper seizures since before the surgery but I still have focal aware seizures each day. But yeah, life sucks.
@@Vhyc284 the surgery sucked, i woke up crying from it
@@jsransom good luck!
@@Vhyc284 I hope it gets better
Calmest seizure I’ve ever seen
you know there are several types of seizure right, not all of them involve shaking and rolling on the floor
That’s crazy
My cousin has these. Its like pressing pause and then she continues doing whatever shes doing like nothing happened. Her father is grand mal where you have the "classic" seizure symptoms
@@bilberrybarronstop the 🧢😂😂😂
@@d_i_a_v_l_o3827She fakes other shit so yeah
I just heard a story of a boy who was too afraid to tell his teachers. Stay safe, friends, and never be afraid to do what you need to do to stay safe ❤
Oh my gosh!!!!!!!!! I have FND and I'm also attending college! You posting this and showing your experience makes me feel so much less alone! FND is so hard, and you're so strong for persevering! Thank you so much for sharing this!!! Really! It means so much to me!
Stay strong
I have FND too! When people find out it’s not exactly epilepsy they take it wayyyy less seriously and it’s discouraging. But it has such a huge impact on daily living. We’ve got this ❤
@@kylieholladay775 stay strong as well you all are beautiful blessed souls
I’ve never fully understood seizures but this is making me want to inform myself more so thank you and you’re so brave!
brave? What do you want her to do? Just choose to not have one? She can’t avoid it
@@mckennadevore8692someone didn't understand their point
@@mckennadevore8692the point flew so high over your damn head its s spy drone
@@cecegure7684 no. as Somebody with a disability, we aren’t brave for simply existing. We cannot do anything about it. I didn’t miss the point, you did.
@@mckennadevore8692 I'm assuming they meant for posting examples of her symptoms/seizures that's helping raise awareness. I really wouldn't want to put videos up of my disability effecting me, especially as it's likely to attract ableists and bullies.. so I think you did miss the point
My sister used to have seizures along in high school. Some would literally last for hours, full absence and suddenly she would "come back" as we used to say. She would have zero recollection of anything that ever happened during her seizure. The only real way we could (sometimes) tell she was out of it was sometimes loss of bladder control. Often times she would have full conversations with people during her absences and never know what was actually said. It was so scary. Alot of her problems were stress induced. She hasn't had any seizures in quite a few years now. Seeing this brought back so many fearful days. I'm sorry you have to deal with this!
I was just scrolling through my UA-cam shorts and I saw your page and it’s helping me as a high schooler with seizures, it really just helps to see other who are like me living their life and not letting this make them think any thing about their worth
Very helpful that you are aware and open about it. Make sure someone close to you knows what to do. I expected a way worse seizure, and my instinct would be to protect your head, but i wouldnt know if its best to restrain you, or leave you to move around
Smh you dumby it's a seizure. Not a heart attack. Just give her a breath with her inhaler and jam 5$ worth of meth into her leg. Learn better 🙄
When someone is having a seizure, do not touch them unless absolutely necessary. Clear hazardous items around if you can, but don't restrain them at all. Even a pillow for their head can be problematic, or the common idea of putting something in their mouth isn't a good idea. Let them have their seizure, then afterwards, if it's uncommon for them, if they pass out for more than ~30 seconds, or if they were more harmed by the seizure, call an ambulance
@brocrow5678 one thing to add, it's best to always call paramedics if someone is having a seizure as long as it's greater than what the above person was experiencing because most people don't understand when to and when not to call and would you rather risk them being wrong and not calling?
Leave em alone.
My friend lifted a 400+lbs paramedic during one of his seizures before , they are crazy strong during it and have no idea what's going on
Talk gently and just assure them they are OK, and guide them to safety best you can, a bed or couch , they tend to wanna walk around so just keep an eye on em
@@stonedgoddess420really a 400+ pound paramedic
Glad she was at least able to find the place she left off in her book.
When you can predict seizures so you record them instead of laying down
Well, people with epilepsy actually can feel when it’s about to happen. Not every time and not every sort of seizure but still.
She's very clearly in a course and has dealt with seizures enough to know her own limits. Thus, she doesn't have the freedom to lie down at that moment and she most likely knew she would be able to handle the seizures without any precautionary measures.
It's not a prediction. It's called aura. My son has epilepsy and these are precursor signs. Recording is also recommended by many neurologists to determine the type of seizure.
Lol people are butthurt
It's smarter to have your medic alert visible and lay down in the recovery position, than it is to sit and wait for a seizure so you can record it for social media attention and ultimately instant gratification. Take your meds properly and you won't get seizures. Simple as. I'm on phenobarbital for my neuro-epileptic seizures that can cause massive issues if I don't lay TF down. I only get them when I miss a dose by 30 mins. Sit down children.
You're the first person in the world I've met with the same condition as me. This makes me so happy💖
It’s quite common in children
Wow you are amazing. School was so hard for me I can’t imagine. You rock thanks for sharing your life with us
Hey FND fam, I have seizures too ranging from absences to full fits. They can be so sudden, terrifying & overwhelming but It is so helpful & comforting when people around you can be warned and remain calm thanks to people like you educating ❤🙏🏽 . Others recognising the signs which are individualistic can be so helpful, reassuring and safe. Some include: getting suddenly hot/flustered, looking and feeling lost/confused, staring, blinking double time, widened glazed eyes, head tilting/shaking, stiffness & rigidness or going limp of the upper body. People reactions can completely alter how an individual feels pre & post seizure. Everyone is different but someone gently calling my name a few times then saying "you just had a seizure but you're safe, we are at (location). You/we were just (activity/subject). How are you feeling? Do you need anything like water?"
It takes a while for my mind to catch up so repetition whilst giving extra time to think and come around is key. Always remember to ask individuals of their preferred approach though. Also NEVER shout or abruptly tough or move the person unless they're in direct danger.
As a fellow person suffering from FND do you have any form of treatment that helps because I was told there's nothing that can be done except monitor it and I've been struggling for 8 yrs now and have lost the occasional job due to it
@@rakanharrisonis that legal where they can fire you for a medical problem
This isn't a seizure. This is anxiety induced paralysis and twitching. Literally a 1/100 on the medical charts for a problem. It's dumb new age "omg I have anxiety so I'm autistic and special" self diagnosed nothingness. She'll out grow this bs. And if she wasn't doing it for attention wouldn't have an entire UA-cam channel about her non existent pathetic condition. I actually have Real health issues and this is just annoying to anyone who's spent any time in the ICU for real.
@williamsalgado9738 so yes and no, legally they can't fire me because of the condition but they can for being late, or not being on shift. Even if the reasons for that are health related
My husband has epilepsy and while we were out to lunch a lady woke him from an absent seizure he was having by bending down and telling him to “take a picture. It will last longer.” He told her (after a moment of baffled speechlessness) that he had epilepsy and she’s like “and that means you stare” and he’s just tells her “yes it does.” She didn’t believe him.
Some people honestly need to stop victimising themselves every second
i would’ve slapped her no offense
She gave permission, id take a bunch of pictures of her tits and ass. Really get her going.
Nah he got caught👀💀
jeez some just have no sense in their heads sorry that happened
Is that what it is when I “zone out” my doctor as well as many people in my life have suggested it may be mini seizures like those. I’ve looked into it and I don’t exactly remember what the cause is but I believe it has to do with my anxiety (not venting just explaining) I hope for your safety those around you are aware of your condition. Your videos are greatly helpful and informative :)
I was wondering this same thing about myself
Maybe trying looking into “PNES” or psychogenic non-epileptic seizures, I’ve also heard it be called “panic disorder” in psychology as well. Earlier this year I began having seizure like episodes that seem to be heavily connected to panic attacks and anxiety. They don’t show up on tests geared towards epilepsy because they aren’t, (as far as research shows now, it’s still a fairly new thing), caused by electrical pulses in your brain but rather a very physical reaction your body gives due to stress. I’m still learning about it myself but it may be useful information for you!
@@_toasty_5806 thank you so much, I will look more into it and ask about it at my next appointment. Thank you I hope your research goes well. ❤️
I had a coworker who everyone knew she has epilepsy, but none of us knew the signs of when a seizure was coming. One day she started randomly blanking out, like in the middle of a conversation she would stare off into space or would be walking and just stops, stares and snaps back. After roughly 30 or so minutes of this and in the middle of talking to our boss, she looked up and went over backwards. She went into a full gran mal seizure and my boss reduced her fall, but couldn’t support her dead weight due to medical conditions. We had to call her boyfriend from another area to help restrain her, because we didn’t know how to do so safety and without risk to her. By the time the ambulance arrived she was conscious, but physically exhausted and barely standing on her own with no memory from the last 10 minutes and spots in her memory from all the times she blanked off.
This isn't epilepsy this is a kid with anxiety and self diagnosed BS conditions. By definition this isn't a seizure.
@@zyourzgrandzmazis this a joke?
How’s Coworker Doing
They really do drain you physically
She hasn't had one at work since, and she is on medication to prevent them from being frequent. We don't know if light, temperature change, or something else caused it. She did hurt her arm at the time cause with grand mal seizures, it causes a lot of flailing like movements.
Some people in my school has this and I used to be so confused but thankfully now I'm not because I know what's going on
As the person who reads the epilepsy warnings before playing games I feel you
Luckily my seizures aren’t triggered by visuals so I can play those games ☺️
@@sneakygoliath2568stress and sensory overloads, are my biggest triggers, when they’re not happening out of nowhere
As someone with light-triggered debilitating migraines, I really appreciate those warnings
I do also- sometimes I even feel like I programmed this self-fulling in my head, so I’ve cooled it on the flashy stuff. Just in case. That’s correct, I don’t have a diagnosis, just hypochondria 😅
A brave young woman Very inspirational just wanted to let you know
I have these too. I don't remember a lot after which is the hard part for me. Seeing you go through this... I feel for you. You are definitely not alone and prayers are sent your way. Its a hard thing to live with especially when you go places and you feel something is off and you have to explain to people and they get nervous or fidgety. We just need someone to make sure we are ok, nothing more. Bless your heart! One Love 🤘🏼💚
You are so wonderful I’m sorry for your struggle
I suffer from epilepsy as well, was diagnosed at 14. I have had to teach my husband what to do whenever i do have one so he can help me through it. I hate coming back from it and losing track of time as well as forgeting the people i love around me. I have forgotten who my husband was, i forgot i had kids at one point, its not a fun experience, i have had some where i have fainted and i have come close to hitting my head twice(dresser and concrete floor). I am glad you shared this because a lot of people dont really know the signs. I get asked questions by friends and some family members that want to know more about them. This is informative, but, i am sorry you have to go through this. You are not alone girl. :)
Our sweet Rotty had seizures from one year old. She had grand mal seizures very bad. We treated her with meds and the Vet's care and she lived happily until the age of ten. She almost bit me once when coming out of one so we learned to just let her be but always watched her to make sure she was fine. She is deeply missed. Most friendly dog ever. Most people don't know that dogs can have seizures. My best to you!
As an instructor, I appreciate your posting this. I do keep an eye on my students. I don't always know medical situations, many students don't wish to disclose, or just have friends in the class that are aware. Thanks again! I really appreciate the added awareness this brings.
In my lecture this girl had a seizure. Thankfully her friend was there and knew all of the right things to do (timing it, watching her head etc.). Hearing her gasp for air was absolutely horrific. BTW: yes I would’ve gotten up to help but her friend and a few others had it under control. It was also a HUGE lecture class and I didn’t want to get in the way of the people who actually knew how to help her. What pissed me off was the fact that people were recording her, laughing and snickering. She literally could’ve died. And after class this snotty brat who was in a lab of mine told me she SAW the girl fall and hit her head. She laughed and didn’t even ask the girl if she was okay. She literally saw her lying on the floor and did nothing. Talking about it as if it was some casual laughing matter. It really saddens me and I’m trying to get trained to recognize seizures/other emergency incidents so that I know how to help. Because I’m noticing with this generation that many people just don’t care or they don’t do anything.
I legit did not know this shut existed until right now, good job on the awareness thing
Thank you for posting this. I suffer from anxiety induced seizures, either forming into absence or grand mal. Ive always wanted to know what my family sees when it happens.
Sending you love and support from Canada
I suddenly don’t feel so alone. Thank you 🖤
Same I thought for the longest I was the only one that had these aswell as grand mals..
Hi I'm someone who also had absence seizures and I'm so glad to have found someone who also does! I have never seen anyone with this type of seizure on the internet and it's nice to know someone who does. ❤
Thank you for bringing awareness to this, it's encouraging when you don't feel alone💜
I’ve read that you’re getting some not so nice comments, so I’m gonna comment today.
I just wanna say that so many people including myself really look up to you. You’re a big role model for young disabled people, you help foster so much love and acceptance and help us set a good image of how we should view and treat ourselves.
I hope you stay positive and I hope you’re doing okay🩷
You are so beautiful and brave showing your symptoms in front of the people. Make me understand more about this subject and realize how much support our children needs at school how much we expect from them to be high achievers ??!
This is really exposure therapy for me after seeing a student in my class has a seizure when I was in Middle School the memories of it is terrible
I am so sorry that you have to go through that. You are not alone and you are beautiful inside and out.❤
My daughter was having lots of absences. Her doctors would ask me to make a video of it. But making videos of seizures or absences is not always easy cos you don't know when it'll happen. Anyway, her epilepsy became worse so I was finally able to make a couple of videos cos she was having so many seizures that I got the chance to record some. But the doctors didn't believe they were absences cos she looked normal. Looking at this video, I can tell this lady is having absences cos they look similar to my daughters'. But the doctor kept questioning me as to how I know it's absences, cos she looks 'normal'.
my only advice as mere layman is you need to find a new doctor, i know it's easier said than done but it's def for the better
My sister has abscence seizures and they're so short that I can almost never tell. It might be hard to see on video. Maybe if you talk to your daughter on video, then they can see she is slow to respond?
They should be able to test her either way, if she can sit still for an Eeg.
@@jamiececilielange5249 yes she's had an EEG. They found it to be epilepsy.
I am go through same thing over last two year’s 🇬🇧 doctors are a waste of time had EEG normal they came back…still have the one’s this young lady has..an just like you doctors want videos evidence..thing is I have young kids an I can’t see them remember too film seizures or absences…for the next appointment I have with doctors….back say 30 years ago the doctor had too use there brains too work out a diagnosis…so tired of the doctors in this country
You need a new doctor who actually has experience with absence seizures. Finding a good doctor is hard (and expensive) but so so worth it. I would not be functioning today if I hadn't kept searching until I found a doctor with lots of experience in my condition who listens and cares enough to figure out the best treatment.
I'm crying right now. I used to have type absence seizures when I was younger but with medication I grew out of it. My teachers always called me stupid and I struggled to make friends. I didn't know that that's what I looked like and I can't believe no one was concerned for me. I'm glad you seem to have a support system, and I hope you never have to go through what I did❤
That is heart breaking. I am so sorry you went through that.
Because it just looks like she’s just ‘spacing out’ on this end, especially to the untrained eye. So if people don’t know what to look for, they’re not looking for it to be concerned.
@@Lacroix999 yeah i need to remind myself at times people often arent aware of even some more common things, but spacing out still usually makes people ask me 'are you okay' even without knowing my medical problems, because someone could have a lot going on, we just dont know why people out there could call us or others 'stupid' or comment on intellect for something
People are idiots
@@bnuuyboy idk why someone would call you stupid for spacing out. That’s one of the dumber things to make fun of someone for, not that making fun of anyone for anything, deemed ‘dumb’ or not according to someone else’s standards, is ever ok because it’s not, but lots of people space out! There’s actually a technical term for it, of which I don’t even remember right now, but it happens a lot to some people, especially to those who have vivid imaginations, especially children and even more so who are bored and by those who are stressed out and don’t care to be in the environment to where in and use it as a coping mechanism to escape. Those are not bad reasons, but we make them out to be because we act like people need to be here and in the now, otherwise they’re not going what they’re ‘supposed to’….again, according to someone else’s standards, even if it goes against our own. We think that someone spacing out, has their head in the clouds and needs to be more in reality and because they’re not, it’s seem like they’re more of a basket case and given a negative connotation/stigma attached to it. We shouldn’t ever judge someone else or interfere with them in doing something they deem is important/useful/wanted to do by them in their own time and/or space unless it’s doing them or someone else harm. It’s not up to us to decide what that standard is for them. If someone is spaced out around you, it’s probably because they find you boring with many be a fair statement and it’s not rude to not want to engage with someone JUST because they’re there in your space doing something/making noise talking *at* you. If anything, it’s rude to assume that they should *just* because you are.
I know that got off track a bit, but it just goes to show you that not everyone will find you as entertaining as you’d like to think and that it’s ok to have people space out because of that especially when doing so *is* found to be much more entertaining. 😂 but we need to stop seeing it as a bad thing like there is something wrong with people for doing so. There’s not something wrong with you if you do.
Obviously if they’re doing it and you know what to look for for a seizure or their eyes are rolling back in their head, that’s not the same thing and by all means, please, ask if they are ok! But other than that, they’re off in their own little world for a reason and if the current one was more important to be present there, then they would be, so just leave them alone! 😂 If you couldn’t tell, that’s coming from someone who does it a lot and hates being interrupted in the process! 😂😂
She’s so beautiful. Best of wishes ❤
I quit my last job because of my assistant store leaders attitude toward my seizures. She said it pissed her off that I had to sit down when I was having my seizures, she even had other people watching the security camera footage of me having a seizure because she doesn't believe it's a real seizure. I felt like an animal in a zoo or a case study in a science experiment. This video is very informative. It shows that there are different forms of seizures, and it can happen anywhere, anytime without any reason.
Thanks for sharing ❤
My daughter has been diagnosed with 2 sever versions of epilepsy and suffers with absent and tonic clonic seizures, she’s only 6 and because the severity of her diagnosis hasn’t been given a long life expectancy.
Seeing this video is so alike to when she has her “wobbles” (that’s what we call her little seizures)
Just want to say….
We’re all proud of you and how you haven’t let your seizures affect your day to day life, well done with college also!
Too bad this youtuber is "self diagnosed" and fakes her disorders.
Fnd has nothing to do with epilepsy.
@@theinternetofficer6594where, show me proof that she is faking. I’d like a link please
You are handling so well and bringing so much awareness to people you have a bright future ahead
If someone you know talks and they are not responding always check on them, when you are having a seizure, some times you are unresponsive and are droopy
As someone with epilepsy, I completely understand this short
As someone with epilepsy I completely understand this comment.
as someone without epilepsy, I do aswell
as an epilepsy i do too.
@@mrmerlin6287for you and others that have these, are you conscious when it’s happening? Is there a memory there? I have always wondered but don’t know anyone personally.
@@Clearlyclynnfrom the few seizures I've had, I wasn't aware of it going on. I'd only know after I had been told by the paramedics. I also have no memory of anything just before the seizure. And after is a bit of a haze. I'm not too sure about other people though
That must be exhausting🥺I’m so sorry you have this condition…but I’m glad you know how to deal with it ✨
I mean I don't see how it's exhausting but worrisome, please use the right word next time
@@56kglifterseizures are extremely physically draining and you don't just get to decide what another person means to say. L comment
@@56kglifterno, seizures can be very exhausting to the person having them. Your brain quite literally short circuits. And if she has more physical grand mals, then I can tell you from the many I've witnessed, those absolutely drain the patient.
@@alonelychocolatebar1954 ik what a seizure I have them quite frequently. But not to whatever this soften version is. She is not on the fucking floor freaking everyone out in public or at home while you are unable.
@@56kglifter you do know there are several kinds of seizures right? I mean, clearly you don't, since you're lying about having them, so there's that.
Funny thing is it’s indistinguishable from someone that is pretending to have that type of seizure…
i did not know indistinguishable was spelt like that! and also you are right lol
@@Lefty-643indiditiguisher
Terettes 😂
um ok? isn’t anything indistinguishable compared to a person acting? someone having a heart attack vs someone acting like it can look very similar
@@jude3426 you’re literally just repeating their point? Lmao
Such a beautiful girl I wish we lived in a world where everyone accepts us as we are. ❤❤
These comments suck. Awareness is literally in the caption. Many people don’t know what seizures look like, or that there are even different kinds
Yep, I know how these feel. Keep strong.
I have absence seizures, and it’s so crazy to see how they look from the outside. For the longest time, I thought my eyes were closed and I was fainting, and then I would ‘wake up’ and it feels like my skull is buzzing and I almost instantly forget what happened. Learning the feeling before it happens is so important lol, the amount of times I’ve had to pass a cup or lighter to the nearest person before I lose control of my muscles is crazy.
I hope u feel okay! Just to let u know we're all here for you and keep doing wt u love x
Perfect timing for the clout video!! Awesome editing!
I know. It’s embarrassing and you try to hold back and hold on from the feel of guilt from the public eye and mainly the ones you love the most. It’s hard. 😔💜
If shes insecure why is she recording it for the internet to see it
@@alphalixxhmmmmm you got a point.
She literally recorded herself and posted it
Damn 🙄
@@alphalixxpick me gyal
Is it tho? Is it really? Guilt from the public eye gimme a break woman
I have both FND seizures and epileptic seizures. Both are equally as exhausting. I can have ones where I am staring into space or just black out for 30 seconds. Then others that are more noticeable grand mals in some instances they’ve lasted longer than 5 minutes. As someone that has both FND and epilepsy thank you for shedding awareness on the different types of seizures, not many people know or understand the invisible seizures, it can be extremely misunderstood. Just remember you are a fighter and you are strong.
Are you able to drive? One of my friends crashed a car because she had a seizure
@@JupiterLXIX I don’t drive I have to be 9 months seizure free for that, but I live in the city so there is heaps of public transport so it’s not an issue.
You can overcome anything if you are able to take that like a champ 😊 good for you!
everyone in the comments is the reason we need to be taught more about seizures
She seemed fine
Do you know more about seizures...
If so can you educate me?
@@nerolzvanity absence seizures mostly look fine, but she can't control her body and muscles for a short amount of time and seemingly blacks out, unlike "normal" seizures where their nerves and muscles spasm, this one is just the opposite of that
@@lilgreen561 im not a doctor💀
this is all public information, if you want to learn then do so
@@nerolzvanity You seemed fine but then you typed your stupidity.
Ahh it sucks so bad. It’s so hard to concentrate. It’s more present when I’m sick. I use to be on so many meds for it. I been able to taper down to 3 now. I really hope you find some relief some day.
can people stop saying she is faking it is it so rude
Thank you for sharing your reality with us. You are one gutsy woman! You educate and comfort so many. You are making a difference. 🌸
As someone who has epilepsy I can confirm she had no idea what was going on. I can’t remember anything that happened all day after I have a seizure
As someone with a brain I can confirm she knows exactly what’s going on. This is so clearly staged it hurts. She set up a camera, faked a medical emergency, and posted it online in the hopes that gullible idiots would fall for it and give her sympathy. Congratulations you are one of those gullible idiots.
She knew enough to set up her camera for it
It's because she doesn't have epilepsy. She has a different condition and a common symptom of it is absent seizures. Just look it up
@@inkazen epilepsy is merely the condition of having a certain amount of seizures in a certain amount of time. It just means you have frequent seizures. She’s a fucking faker
@@inthewoods5494she is a known content creator and records mostly all her classes for the chance of catching seizures etc like this. She cuts her videos down so it’s mainly just important parts of the recording. She didn’t magically set up her camera and straight away have a seizure. Will have been recording the whole class
Thank you for posting this so that more people can understand and be kind to those who have conditions like this.❤
I have been suffering from something similar and none of my doctors had a clue...but it totally sounds like 95% of my symptoms!!!!! Bless her for sharing!
This is real. Since I was about 14 years old, this medical condition has affected me. It is generically called petite mal, but the medical term is absence." You completely lose awareness for a few seconds and become slightly confused for a while. My friends and my neurologist know of my condition. In fact, I just had one as I was writing this because I wrote the word "condition" twice. Sometimes, I will repeat a letter like this "ttttttttttttttt" which means my finger was on the keyboard when having a seizure. Look it up in a medical journal for a detailed explanation. 😮😢😊
It’s hard to hear that some people suffer from such afflictions, yet your honesty helps those around you to give you the proper care. My brother suffers greatly. I will keep you in my thoughts and prayers. You’re an inspiration to others who also suffer from seizures.
No one:
Literally no one:
Moms: "It's because of that damn phone!"
Thats my dad lol
There's a kid in my class who has had a very severe seizure in class once. He had to go to hospital afterwards and the doctors don't even know what's wrong with him. It isn't epilepsy or anything. The tests haven't found out what it is so when it happens, we were taught how to act. Always be there for those who need you guys ❤
could be a brain tumor or something, seizures dont just randomly happen hopefully he's okay
@@aviunox yeah, but he's on medicine which helps. He just needs the perfect balance
I had a kid with pretty nasty epilepsy in my class. It'd come in very rare, short but powerful episodes as he said himself and I witnessed one in a class. Suddenly he started screeching very loud, jumped off his chair almost as if he went ballistic and flopped down, started squirming around the floor uncontrolled for 20-30 seconds before calming back down. It's one of the things that's always been with me as a reminder of what epilepsy can be and how to try to help (as my teacher obv tried, too). Never seen a human being move so irrational out of nowhere and I feel for those that struggle with it on a day to day basis.
@@veoa416 that sounds horrible. I'm sorry u had to witness that and I also feel very sorry for that person 🥺
Thank you for showing this. I have POTS and possibly FND i just haven't seen a doctor for it yet but this happens to me exactly the same where i can't tell if I'll seize or faint i just feel really tired and everything slows down around me. I usually seize three times a day and faint once a day but it used to be fainting 12 times a day but it's switched to seizing now. Thank you for showing this especially for people that don't understand and for me to know I'm not the only one with these symptoms.❤
I hope you can get treatment soon! I knew I was fainting several times a day but didn't realize I was seizing at night. Now I'm on several good meds and also a good diet that all keep me pretty stable. It took time but you'll get there too! Take care ❤
@@bodyofhope Thank you so much you're so kind! I'm glad you're getting treatment that works for you and figured it out. Thank you for having hope for me and telling me your experience! Wishing you the best♥️
I have a question real quick, there are points throughout the day sometimes where I don’t remember anything( like I’ll just randomly come to and like 5 min have pasted), and whenever I ask someone about what happened they just say I zoned out but I know when I zone out and it’s different, I was just wondering what you feel like during a seizure, like are you aware of it or is it just kinda like a blank moment for you. I have a lot of health problems that my parents won’t pay attention to so I’m kinda trying to figure out what all is wrong with me😅
@@noramowrey738 Thank you for asking that's a great question! I totally understand what you mean because I have absent seizures which is what it's called when you just stare blankly but it's different than just zoning out. For me I can tell that I had an absent seizure because I feel lightheaded afterwards or like you said I don't know what happened during that time because it's like everything stopped or slowed. I also have a few different types of seizures that actually make me twitch/jerk and my eyes flutter and those last for a while like from 10-20 minutes but the absent ones only last a few seconds to 2 minutes. I hope this helps and I hope you figure it out soon. I haven't even been diagnosed with my seizures yet so I get that and trying to figure out everything wrong with me too. I wish you the best of luck and I hope your family takes care of you well🫶
Hey, what is pots if you don't mind explaining?
Awww i very sorry you have to go through this, i can tell its probably quite hard living with something that could become a challenge to put up with every day. Im enimic so i feeling droopy as well alot and feint not often but sometimes, not saying they are the same just trying to make you feel better i guess. 😊❤❤
Stunning and brave, clearly.
huh
@@tagra_ the pin lol.
@@TheonetrueRad which one
@@tagra_the pride one is the one I was referring to
@@TheonetrueRad are you calling her brave for wearing a pride pin? it's accepted by the majority of society, it's not brave, its just a pin
My oldest daughter has absence seizures as well and sadly she was living with her father at the time they began. It took me 2 years of fighting for my child with her father, that she wasn't just "rolling her eyes" or "being a smartass" at 5yrs old. Finally, when she got her official diagnosis, her apologized for all the times he tried to punish her for "rolling her eyes" at him. Thank you for showing ppl that different types of seizures look very different.
Having absent seizures, I can relate to this so much 😭 it’s not even funny. People think they’re like a cool thing to have, but they don’t know how scary it is when people start gathering around you when you don’t reply.
Literally NO ONE thinks they're cool.
Wow I had a few ppl I know experience this. Always fascinating 🙏🏾💜
Just for everyone who thinks she's faking seizures Her peoples were dilated that means she's having a seizure
OMG!!!!! You're amazing dealing with your conditions as a pro.
Great job young student for being aware letting someone else know & handling it . Really strong of you.
I’m glad I can see other people experiencing this. I have absent seizures aswell due to epilepsy, thank you for helping me understand that other people go through it too