My Stage 4 Cancer Symptoms Were DISMISSED! - Leah | Stage 4 Lung Cancer | The Patient Story

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  • Опубліковано 25 лис 2024

КОМЕНТАРІ • 957

  • @heidivernathorbjornsen475
    @heidivernathorbjornsen475 3 місяці тому +185

    Yes I have 4th stage lung cancer that spread to my bones & brain- I went to many drs before I was diagnosed- dismissed many times - even by a nurse in ER because I fainted - because I had no fever she was going to send me home- I said I’m not leaving without a C-Scan & tests . My lungs lit up like a Christmas tree & they admitted me into the hospital- at first they thought it was tuberculosis but, my bronchial test’s biopsy said it was cancer . May , God help all of us going through this .

    • @debbyscheller2574
      @debbyscheller2574 3 місяці тому +15

      Joe Tippens' story is similar to yours. Google his name and you will find what is keeping him with "no evidence of disease" now!! I will pray for you!! (I have Leukemia.)

    • @TrustJesus333
      @TrustJesus333 3 місяці тому +9

      🙏💕

    • @aimeeheard2495
      @aimeeheard2495 2 місяці тому +11

      Praying for you Heidi

    • @mpat100
      @mpat100 2 місяці тому +4

      Blessings and healing for you ❤

    • @christacoffen7871
      @christacoffen7871 2 місяці тому +5

      XO

  • @debbieschultz9768
    @debbieschultz9768 4 місяці тому +90

    I’m a firm believer that the patient knows more than the doctor. After all it’s their body!!

    • @paige6028
      @paige6028 29 днів тому +5

      I BELIEVE THIS ALSO!!!!

    • @krysomish
      @krysomish 26 днів тому +3

      Так и есть. И в конце концов разбираются в своем заболевании лучше, чем врачи, особенно когда это что-то непростое. Столько историй, когда пациент сам себе диагноз поставил и даже сам себя вылечил! В моей семье есть такие истории.

    • @kellyname5733
      @kellyname5733 17 днів тому

      I only use Dr.'s for diagnostics. For healing/recovery I go the other way, natural, herbs, alternative methods. I do many things, (herbs, fermented foods, supplements, organic food) EVERYDAY. YOU MUST DO THESE THINGS EVERYDAY for long term health and vitality. Our food in the US is tainted but you can learn where to buy and what to buy for long term abundant life.

    • @claudiakrizay
      @claudiakrizay 6 днів тому

      Good point!!

  • @ewallis539
    @ewallis539 2 місяці тому +94

    My daughter also saw multiple doctors and went to the ER multiple times, and her symptoms were totally dismissed. It wasn't until a nurse practitioner in an urgent care center actually LOOKED at her bloodwork and test results from previous visits that anyone paid attention. She told my daughter to go straight to the nearest ER, and called them to say she was sending in a likely cancer patient. My daughter was diagnosed the next day with stage 4 ovarian cancer. Thank God for the NP's who are actually concerned about the patients they see.

    • @ishreeram
      @ishreeram 2 місяці тому +4

      How is your daughter doing now. Sending her hugs and positive vibes ❤

    • @PooleSilly
      @PooleSilly Місяць тому

      lord i much lift up Ewallis’s daughter and right now according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of Cancer in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome cancer free report lord that’s my prayer and that’s my hope!!!!!! lord despite the circumstances still even now i know your hand is on this daughter and you will see her throughout thick and thin!!!!! also lord i just ask that you please just wrap your warm and comforting arms around this young lady ewallis family and no matter what might transpire may unimaginable peace grace mercy and comfort be totally multiplied and poured out on this family to much help them pull through this ordeal and by all means please help not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!

    • @SatumainenOlento
      @SatumainenOlento 26 днів тому

      Ooooh...Ovarian cancer is so hard to detect in the early stages 😢 if ever 😢
      I hope that she will have a lovely time with her loved ones as long as possible ❤
      And I have also heard people surviving stage 4 ovarian cancer!!! So where there is life, there is always hope! ❤

  • @littlebitmckee8234
    @littlebitmckee8234 3 місяці тому +122

    As a nurse, I am embarrassed of our profession some times. There is a lot of good, but a whole lot of bad too. I am so happy you advocated for yourself!!

    • @helengazzara8725
      @helengazzara8725 3 місяці тому +7

      I went back and forth to the doctor with a range of symptoms, chief of which was a change of sensation on my left cheek.She got quite irritated with me, because had ‘a lot of issues’ she said a dentist would have to take care of the numbness in my lip….! I had the usual blood tests and a CT scan to check my sinuses. Not once did sheTake my blood pressure enough was enough and I decided to go to another doctor Who immediately sent me for an MRI and took my blood pressure which was skyhigh long story short I had had a stroke and I have energy I had an aneurysm on my anterior communicating artery thankfully I have had treatment to clear my carotid artery and had the aneurysm coiled this woman is still practising I don’t know how

    • @Official-Comments
      @Official-Comments 2 місяці тому

      It’s called God complex and unfortunately plenty of, but not all, doctors suffer from this condition. Doctors are like the pilots of the plane who get all the credit. When in reality it’s the engineers, technicians, mechanics, plane builders, and support staff that keep a plane going and more importantly safe. New research and medication are developed by scientists, not doctors.

  • @EJMG22
    @EJMG22 4 місяці тому +245

    Just sad how many others were dismissed trusting their Dr & passed away lack of treatment, so pleased your Nurse Practitioner took action, a hug to her as well ❤❤

    • @ilenerosoff7301
      @ilenerosoff7301 4 місяці тому +14

      Especially women.

    • @chicky8342
      @chicky8342 3 місяці тому +6

      My husband also was not diagnosed until it reached stage 4 lung cancer.
      He was sick for a year prior to diagnosis and went to many doctors.
      He was told he had a prostate infection and was given antibiotics and sent home.
      He had a low grade fever during that year ,we now know it was due to tumor fevers.
      He finally saw a different pulmonologist who listened to his chest and immediately put him into the hospital for a CT scan.
      He was told he had stage 4 lung cancer and had 1 year to live.
      He received chemotherapy during that time at Sloan Kettering.
      During that time it was found that the cancer had spread to the stomach.
      I was told that it was a very aggressive form of cancer and he was given 2 weeks.
      I brought him home with in home hospice.
      He passed 2 weeks later.
      That was 13 years ago.
      He was my best friend.😪

    • @marykr41
      @marykr41 3 місяці тому +3

      I am considered a bad patient we argue all the time. Because I want them to do test to rule out things. I research. I was a nurse, before my cancer. They think I am playing doctor!!

    • @paige6028
      @paige6028 29 днів тому +1

      You would think living in a time where medicine is supposed to be as advanced as it's ever been that so many people would be dismissed, missed diagnosed, overlooked, ignored, etc however I believe we're also living in a time where egos are also bigger than they've ever been in the medical field & actually listening to a patient has become a thing of the past! Just like "good old detective work" in the legal field is what used to really solve crimes, I believe that the same "detective work" is required in the medical field. Perhaps people have become too reliant on computers, technology, etc to solve everything therefore they ignore what a test/machine can't/won't tell them! Many doctors refuse to believe that a patient knows their body better than they do. They have GOT TO STOP putting everyone under the same umbrella. No two people are going to present with the same symptoms that have lung cancer.

    • @chicky8342
      @chicky8342 18 днів тому

      Just like my mom always says; doctors do not like it when you question them.
      I mean, its only OUR BODY after all 🤦‍♂️🙄🤦‍♀️

  • @dianesaienni5466
    @dianesaienni5466 4 місяці тому +139

    in my first months of cancer I cried every night when the sun went down and my husband asked why I was crying I said because the day is over and I'll never get it back again. he pointed out that none of us will ever get it back either and that helped me alot. I totally know what she is saying about the small things and the big things suddenly everything in your life becomes precious so in a way I'm blessed to live in that knowledge. God bless this woman and her family with many years of grace ahead

    • @iluvGodnUSA
      @iluvGodnUSA 4 місяці тому +4

      💝

    • @FrannyNan
      @FrannyNan 3 місяці тому +1

      💖

    • @christacoffen7871
      @christacoffen7871 2 місяці тому

      Your husband questioning why you are crying... With cancer. Umm duh. Feel better.

    • @PooleSilly
      @PooleSilly Місяць тому

      lord right now i much lift up Diane and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of Cancer in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome cancer free report lord that’s my prayer and that’s my hope!!!!!! yet despite the circumstances still even now i know your hand is on Diane and you will see her throughout thick and thin!!!!! also lord i just ask that you please just wrap your warm and comforting arms around Diane her family and no matter what might transpire may unimaginable peace grace mercy and comfort be totally multiplied and poured out on this sister to much help her pull through this ordeal and by all means please help Diane not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!

  • @pam164
    @pam164 4 місяці тому +521

    Jenny Apple died of that she was only 35, 2 small children, she had never smoked either. They have to stop thinking if you are a non-smoker, then you can't have lung cancer.

    • @taffycat93
      @taffycat93 4 місяці тому +40

      I followed Jenny's experience. So sad. But you're right, so many people who never smoked get stage 4 lung cancer. They neat earlier signs bc stage 4 is (almost) too late!

    • @suegamlin
      @suegamlin 4 місяці тому +53

      My son died in January at 32, of stage 4 lung cancer , he too was a non smoker

    • @taffycat93
      @taffycat93 4 місяці тому +27

      @@suegamlin Gosh, I'm so sorry. He was very young. Sending prayers. 🙏

    • @pam164
      @pam164 4 місяці тому +15

      @@suegamlin So sorry.

    • @pallavisreetambraparni6995
      @pallavisreetambraparni6995 4 місяці тому +12

      @@taffycat93 Wow. So so sad

  • @barbhelle5481
    @barbhelle5481 4 місяці тому +164

    I have a friend that was diagnosed with a rare bone cancer only children get and they never live long. She had surgery but was told she had 6 months to live. She did live and is still alive 40 years later. She also had lung cancer later and she never smoked.
    Praying for you to keep having a wonderful outcome.

    • @christinefiedor3518
      @christinefiedor3518 4 місяці тому +1

      Possibly misdiagnosed?

    • @monicawmonica
      @monicawmonica 3 місяці тому +3

      Stop giving false hope to people. Those are miracles and the definition of miracles is that they are extremely rare.

    • @CocoAvalon
      @CocoAvalon 3 місяці тому +4

      @@monicawmonica She's allowed to tell her/her friend's own personal story. Don't try to silence others.

    • @christinefiedor3518
      @christinefiedor3518 3 місяці тому +4

      @@monicawmonica I m a retired paediatric RN. It is known that very occasionally the boys own immune system kicks in and heals itself. This was happening even before the days of chemo. It is quite rare however.
      People need to remember that medicine is not and never will be an exact science.

    • @PoeLemic
      @PoeLemic 3 місяці тому

      @@monicawmonica So true that those instance of "miracles" (if you can call them that) are so very few, rare, and almost statically non-existent. Possibly cancer type was misdiagnosed.

  • @Noodles.FreeUkraine
    @Noodles.FreeUkraine 4 місяці тому +196

    What a strong, enlightened woman. Just imagine her ending up being diagnosed at stage IV even though she advocated for herself. Now think about how many folks won't do that and just nod at whatever their doc throws at them. It's the most important thing when it comes to your health to listen to your body and keep knocking sense into skulls that won't listen until they do.

    • @elizabethw.454
      @elizabethw.454 4 місяці тому +10

      It's so sad 😭

    • @BarbCosgrove-q5u
      @BarbCosgrove-q5u 4 місяці тому +9

      It's why we need more research and funding 🙏🙏🙏...

    • @roch145
      @roch145 4 місяці тому +9

      You need to keep in mind that the process of diagnosis is driven by probability and ruling out a higher probability diagnosis before investigating the next lower probability diagnosis. No doubt it’s helpful if one has enough knowledge and self-advocacy to push doctors if one feels like their diagnostic process isn’t delivering the results one wants to see.

    • @Noodles.FreeUkraine
      @Noodles.FreeUkraine 4 місяці тому +7

      @@roch145 Yes, think horses, not zebras, I get it. But I've seen so many diagnoses driven by error and oversight that I will make sure things run the way they're supposed to when it comes to my health.
      I may be a layman, but I stay on top of things and keep myself in the loop. Whenever I talk to medical professionals, they notice, and that alone makes them a bit more considerate when it comes to medical decisions.
      Mind you, I don't try to be pain and come off snooty just because I can google stuff. That's not how it works. But being informed and second-guessing things can sometimes tip the scales in your favor, especially when it comes to malignancies.

    • @roch145
      @roch145 4 місяці тому +8

      @@Noodles.FreeUkraine Being an informed consumer of any service is always beneficial. Car repairs, home repairs, healthcare are best consumed by knowledgeable customers. However, diagnosing cancer is a bit more complicated than diagnosing a misfiring spark plug. So there’s more of a tendency, if not necessity, to rely on medical professionals and their knowledge and experience to drive you in the right direction. Sometimes those care providers fall short and unless you can advocate effectively for yourself, you will suffer. I’ve been through advanced cancer treatments and I know firsthand the challenges of being a cancer patient.

  • @lauraa2484
    @lauraa2484 3 місяці тому +30

    When I hear your story all I can think of is all the people who have passed away because they didn't have a doctor who really cared or just didn't know what steps to take to get the help they needed. You are so brave and a blessing to those who may be going through the same thing. You are right you still have things to do on this earth. I pray you have many more years.

  • @mamacon5
    @mamacon5 4 місяці тому +212

    Keep pushing it! Sometimes I think nurse practitioners know more than the doctors!

    • @WayneLeng
      @WayneLeng 4 місяці тому +2

      I've a friend who would beg to differ!

    • @helentaylor7132
      @helentaylor7132 4 місяці тому +5

      I can all CRNPs are great, but I can vouch for mine. Since I have an HMO, all care starts with my primary. A few years ago, I was apprehensive when I found out my new primary was a nurse practitioner. Well, I had never before had care like she provided. She recently moved away and her patients are devastated. I'll be seeing a new one at next checkup. I'm not too concerned because I am able to advocate for myself. I feel bad for people who can't do that for themselves and have no one to do it for them. And my heart bleeds for those who don't have health insurance.

    • @erica_0612
      @erica_0612 4 місяці тому +20

      I don’t necessarily think they know more than doctors, but in my experience they tend to actually listen to you, which in turn results in better care.

    • @christinefiedor3518
      @christinefiedor3518 4 місяці тому +9

      I’m a tetied RN and I tend to agree with you. I’m often left wondering what the hell they are teaching at medical school nowadays!

    • @shermac246
      @shermac246 4 місяці тому +3

      I’m not a fan of MDs or NPs because I’m a long time chronic illness sufferer and have been gas lit, mistreated and misdiagnosed by both, most recently as of yesterday, I was treated horrifically by a nurse practitioner. I have a graduate degree in public policy and am an activist by trade which comes in handy because I am constantly advocating for myself in the medical community. Like Leah, I worry so much for those who don’t have an advocate or support because it’s necessary for survival these days.
      20:51

  • @With-one-wing
    @With-one-wing 4 місяці тому +139

    My husband was just diagnosed with brain cancer. Thanks foe sharing your journey. It gives me hope.

    • @amandag7777
      @amandag7777 4 місяці тому +7

      🙏🏼🙏🏼🙏🏼 my mama had glioblastoma. Prayers y’all’s
      Way

    • @EJMG22
      @EJMG22 4 місяці тому +5

      So sorry😢

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      So sorry about your husband. Sending love and strength.

    • @shannonparker1
      @shannonparker1 4 місяці тому

      Please lookup Dr Thomas Seyfried! He is curing or giving people with brain cancer. People who were given weeks to live are now living cancer free for many years! Just by ketosis! He is an amazing human being and thetop cancer researcher in the world. You can find him on UA-cam to start. He is out of Boston and has clinics going there! It's worth looking into!

    • @triawillow7682
      @triawillow7682 4 місяці тому +2

      🙏🏼🙏🏼🙏🏼Prayers📿

  • @barbaravyse660
    @barbaravyse660 4 місяці тому +110

    Everyone says not to Google your symptoms but I do it anyway. I go into my doctor’s office with my own diagnosis and the diagnostics I think I need and then ask for them. I once diagnosed myself after two separate doctors told me nothing was wrong! I ended up needing surgery.

    • @KS-yp1jl
      @KS-yp1jl 4 місяці тому +34

      I know of a bunch of people whose lives were saved by dr. Google. The "don't Google" advice is utter BS.

    • @td4611
      @td4611 4 місяці тому +11

      I do the same

    • @barbara6962
      @barbara6962 3 місяці тому

      ​@@KS-yp1jl YES, YOU ARE CORRECT 💯

    • @barbara6962
      @barbara6962 3 місяці тому +1

      OOPS, I FORGOT, I DO THE SAME THING!!

    • @LindaRobertson-io3zt
      @LindaRobertson-io3zt 3 місяці тому +8

      Yes I had an episode of TGA, which is a 24 hour memory loss and I went to the emergency room and they had no idea what was wrong after many tests but then the next morning I just googled my symptoms and figured out what it was! Doctors are so clueless it’s scary !

  • @sallyhere7849
    @sallyhere7849 4 місяці тому +65

    I hope that she beats this and has a long, long life. I can tell she's a good person and this world needs more people like her!

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому +1

      This world would be a much better place if more people were like Leah! She is one of our co-founders- young lung cancer initiative 🤍

    • @Rachel_Ryder
      @Rachel_Ryder 4 місяці тому +3

      I believe she has since passed.

    • @pamelannely
      @pamelannely 4 місяці тому +5

      I’m pretty sure she’s still alive and kicking! Google her, Laura Phillips -stage 4 lung cancer, as of 2024 she was still alive.

    • @Rachel_Ryder
      @Rachel_Ryder 4 місяці тому

      @@pamelannely oh thank God. I must’ve read someone’s comment wrong!

    • @organisedatoms
      @organisedatoms 4 місяці тому +1

      @@Rachel_RyderShe commented 11 days ago on this video.

  • @bl2298
    @bl2298 3 місяці тому +48

    Your story is so similar to my daughter's. 43, never smoker, went to Dr. many times with no answers. Then a CT with contrast showed the tumors. Liver needle biopsy. Stage 4 because it had spread to liver, bone, and brain. NSCLC, with the EGFR mutation. She is 3 months into her treatment with Tagrisso and had radiation to brain tumors and feeling much, much better! It is so encouraging to see how you are fighting your way through this and succeeding. There is hope. And its true that none of us are promised tomorrow, so live each day with joy. Sending you all the love!!! You got this. ❤

    • @PooleSilly
      @PooleSilly Місяць тому

      lord right now lifting up this person’s daughter and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of Cancer in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome cancer free report lord that’s my prayer and that’s my hope!!!!!! yes lord even now despite the situation i know your hand is on this daughter and you will see her throughout thick and thin!!!!!! also lord i just ask that you please just wrap your warm and comforting arms around this sister and
      no matter what might transpire may unimaginable peace grace mercy and comfort be totally multiplied and poured out on this daughter and family to much help her pull through this ordeal and by all means please help not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!

    • @paige6028
      @paige6028 29 днів тому +1

      Prayers for your daughter, you & your family.

  • @gdaymates431
    @gdaymates431 Місяць тому +11

    As a medical student and a human on this earth, these stories are so important. Thank you for sharing.

    • @paige6028
      @paige6028 29 днів тому +1

      PLEASE remember these stories when you become a Dr & please always listen to your patient & never disregard their concerns.

  • @CopingwithGrattitude
    @CopingwithGrattitude 4 місяці тому +65

    You are only still here because of your own advocacy. I am impressed and you rock! I hope you continue to encourage others who are meek to follow through and question everything! Doctors do not know everything-a rare presentation really throws them. A lot of cancers mimic so many other illnesses and at a young age-lung cancer, colon cancer, etc…it isn’t even on their radar.
    You go girl. Hugs from another cancer survivor.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому +1

      YES!! and now leah advocates for others. She is one of our co-founders, the young lung cancer initiative. we are trying to spread the word and support young people with lung cancer!!

  • @SaturninaEstano
    @SaturninaEstano 4 місяці тому +74

    My friend took tagresso for 3 years lung cancer stage 2, She’s now 7 years cancer free.

    • @mommyogden
      @mommyogden 2 місяці тому +2

      Praise God!

    • @PooleSilly
      @PooleSilly Місяць тому +1

      hallelujah!!!!! praise the lord!!!!!!

  • @SherryRoberts-xo5qu
    @SherryRoberts-xo5qu 4 місяці тому +66

    My mom was diagnosed when she was 65 with non small cell lung cancer stage 3A. It was in the lower lobe of her left lung. She had multiple doctor appointments and was diagnosed with pneumonia. She was prescribed antibiotics and steroids. Was finally sent to the ER and the doctor realized it was cancer. Her cancer had not spread and she had the lobe removed. She is an active 82 year old. Good luck.

  • @molliesdad4702
    @molliesdad4702 3 місяці тому +19

    After losing my mother and brother to cancer I have little faith in the medical community when treating patients. In each case proper diagnosis was delayed for 3+ months before the cancer was discovered. Now my sister was just informed that she has stage 4 colon cancer which has spread to her liver. So little faith in all of you college educated folks that become complacent when treating your patients while choosing to ignore what they try to share. Thank God that you kept up the fight. Enjoy every day and live it like it will be your last.❤❤❤😊

    • @jr.6199
      @jr.6199 3 місяці тому

      Who else can we trust but doctors? They are the control point in care and the administrators control them so they too are stuck, and also human.

    • @carynmartin6053
      @carynmartin6053 2 місяці тому

      I totally agree 💯 with you! I also lost a little brother to cancer, a mother who survived double breast/lymph node cancer, and a grandfather who had spinal cancer, two grandmothers who survived uterine cancer, and I often worry about who's next in my family; hopefully not my children or grandchildren!😮

  • @melissapoole8580
    @melissapoole8580 4 місяці тому +36

    This is heartbreaking. To be put off so much - you are soooo strong and inspirational!

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому +1

      Leah is the best. We are trying to raise awareness about lung cancer in younger people with no traditional risk factors. She is one of our co founders- Young Lung Cancer Initiative.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому +1

      Leah is truly a force!!

  • @georgepirsko3481
    @georgepirsko3481 3 місяці тому +21

    Keep fighting, don't give up. Stop any sugar consumption. My wife's mother died from dementia in May 2023. My wife was diagnosed with stage 4 pulmonary Adenocarcinoma at the end of May 2023 and she died August 11, 2023. She gave up. Listening to your story brought back a lot of memories. Keep fighting.

    • @karenkennedy6293
      @karenkennedy6293 3 місяці тому +2

      It's not the first time I've read of the connection between sugar and cancer

    • @clonejones7955
      @clonejones7955 3 місяці тому

      ​@@karenkennedy6293From some rando on UA-cam who judged his cancer stricken wife for "giving up" and probably weighs 400lb from eating sugar.

    • @mariemeek-m4v
      @mariemeek-m4v 3 місяці тому +1

      God bless you, comfort and keep you George! You Sir are a fighter!

  • @michelebulmann4569
    @michelebulmann4569 4 місяці тому +44

    I’m 65 and was diagnosed with NSCLC in January. I had a what I assumed was an upper respiratory infection in Dec. only symptom was a really hard dry cough. My husband insisted I see my PCP and she was fantastic. She immediately sent me for an X-ray and CT scan. Upon getting the results she made me an appointment with the Pulmonologist the next day. He sent me to get a PET scan and after those results sent me to get the nodule biopsied. It came back as NSCLC stage 1. I had never smoked and like you was physically active and diet conscious. Living what I felt was a healthy lifestyle. I had my upper lobe surgically removed along with 28 lymph nodes. After surgery it was discovered that cancer had spread to one of the nodes outside the lung which made the cancer stage 3. I had 4 rounds of chemo therapy. My oncologist has been fantastic and I can’t say enough wonderful things about every doctor and the cancer center I went to. I also have the EFGR mutation so will be on tragrisso for the next 3 years. My story seems to be the exception when it comes to non smoker lung cancer diagnosis. I was the one who went to the doctor asking for an inhaler because I was convinced I had developed exercise induced asthma. My PCP was the one who insisted on the testing before giving me one. I remember leaving her office mad because I didn’t want those annoying tests that was just going to prove me right. Boy was I wrong. I wish there were more stories like mine and less like yours. Unfortunately this type of cancer is on the rise for women who never smoked of all ages and doctors need to be aware of this. I wish you the best of luck on your journey.

    • @ScottsdaleSushi
      @ScottsdaleSushi 3 місяці тому +4

      Michele - please tell your NP that she is a rock star. Thank God she cared enough about you & caught your cancer early. Tell her that a lady in Arizona commends her for being so intuitive.

    • @jeffreyjitterbug
      @jeffreyjitterbug 2 місяці тому +1

      Could you have spared your lung lobe and lymph nodes by going straight to Tagrisso?

    • @dhivagarm4879
      @dhivagarm4879 2 місяці тому

      I was diagnosed with stage 4 NLCSC recently with pleural effusion currently taking tagrisso

  • @ryanelmiger176
    @ryanelmiger176 3 місяці тому +17

    Thank you for sharing. My sister had your EXACT journey, doctor after doctor misdiagnosed in every step. It wasn’t until her condition worsened, the ER discovered something was wrong. She was 37 at her diagnosis. She is now 40, 2 kids, married and doing well. Healthy eater, non smoker. Her cancer traveled from her lung primary to her spine. Targeted therapy through Cleveland Clinic has been a saving grace. The battle is far from over, but there is hope. It sure takes a toll on family. Keep bringing awareness to this, you will save lives…I promise you.

  • @hemacdonald400
    @hemacdonald400 23 дні тому +2

    You are an amazing woman who has convinced me to advocate harder for myself. At my age (78), my generation has been conditioned to revere doctors and accept what they say without question. Little by little I am standing up for myself more often, but you have inspired me to push harder when I am sure something isn’t right. I wish you all the best moving forward, and thank you for sharing your story.

  • @margaretbeard6564
    @margaretbeard6564 2 місяці тому +4

    I will just say you were one of the lucky ones who was able to navigate all of the crap you have to go through to get a diagnosis

  • @libbyneves5457
    @libbyneves5457 2 місяці тому +4

    As a survivor, my heart goes out to you. It takes tremendous energy to maintain treatment. You look great!

  • @royferguson2297
    @royferguson2297 3 місяці тому +57

    I saw blood in the toilet (2007) went to my doctor, he did an examination and told me I had a small pile. I called into were I played golf and bumped into a guy who was 80 and had just gone thru bowel cancer. I told him what I had found and some other symptoms and he advised me to get a second opinion. So I was a marine engineer and had a special unit were we could get treated in the NHS but fast tracked. I lived in Belfast the Hospital was in London, so my doctor referred me to the hospital I flew over they did a colonoscopy took a biopsy, and was told I had Rectal Cancer a 5 cm tumour.
    So I had a bit of luck it was found early, and that they would operate, in Northern Ireland they tended not to Operate as the tumour was very deep. I had the operation and nearly died twice, surgeon cut a main vain going thru my pelvic area down my left leg. I recovered and they said they had got all the cancer. On my way home, I had to get a train from London to Scotland and get a Ferry home they would not let me fly. While waiting to get on the ferry and old woman asked what happened to me (I was in a wheel chair) I told her, she asked had I gotten chemo, I said no they found it early, she said it will come back again, she had been nurse to a top cancer consultant. In 2011 I noticed blood coming from the mucus in the toilet ( I had a colostomy bag) so it had come back Surgeon said he could not go into my pelvic area again he would kill me. Only way was to remove tumour was by removing my rectum, but to do that the tumour would need to shrink, oncologist said this was very rare. Had 25 sessions of Radiotherapy in Belfast, tumour shrunk, had operation in London to remove my rectum (12 hours) a dangerous operation but my attitude was if I die on the table I would know nothing about it, if I refused the op I would be dead in 18 months, here I am 13 years later.

    • @Raggedy-Ann
      @Raggedy-Ann 2 місяці тому +2

      Oh my goodness you must have went thru literal Hell on earth..so glad you are here🤗

    • @ελευθερία-ε2ο
      @ελευθερία-ε2ο 2 місяці тому +1

      So happy you got through it

    • @CMoore8539
      @CMoore8539 2 місяці тому +1

      They don’t know everything!! I’m so happy that you’re still with us.💞

    • @daniellemoran6215
      @daniellemoran6215 2 місяці тому +1

      Bravely done

    • @PooleSilly
      @PooleSilly Місяць тому +1

      well praise God you are still here with us!!!!! oh lord please be with this person and by all means according to your perfect will please prevent their cancer from returning and keep them well full of unimaginable peace comfort happiness and joy to the fullest extent and keep their faith strong each and everyday is my prayer in Jesus name amen and amen!!!!!

  • @carrierobinson4206
    @carrierobinson4206 4 місяці тому +18

    Prayers for you. Keep fighting I have a friend also a non smoker got the same cancer over 8 years ago and she is still doing well at 68 .

  • @violetg7315
    @violetg7315 4 місяці тому +16

    Your strengths and positive attitude are going to be the best things you have for your children!

  • @marykr41
    @marykr41 3 місяці тому +5

    Hugs to you !! I was stage 3 with in my nodes(Armpit)a large amt.. Survivor of breast cancer. My docs didn't listen to me. I told my doc something was wrong. He said trust me you don't have cancer. It wouldn't hurt if it was!! I think patients know themselves better than anyone. The docs need to start listening to their patients

  • @Kayleesmom
    @Kayleesmom 4 місяці тому +17

    What a beautiful soul you are! God bless you and your family.

  • @mommyogden
    @mommyogden 2 місяці тому +6

    I love when you said that we are ALL terminal. ❤ It is the ultimate statistic. 10 out of 10 of us will die. We need to choose life, choose joy, choose happiness now! While we have breath!
    I pray that God blesses you.

  • @janisdeitsch2985
    @janisdeitsch2985 4 місяці тому +26

    Thanks for sharing your story, Leah.
    You are quite correct. Someone is in that 5%. I hope and pray it can be you.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      Leah is a force. She is bringing so much hope and awareness to young lung cancer patients. She is one of our co founders. We are trying to change the narrative of lung cancer.

    • @Sgracer857
      @Sgracer857 4 місяці тому

      @@janisdeitsch2985 leah gives our community so much hope. You should check out young lung cancer initiatives socials.. she is co founder .. her story is making such a difference in our community and raising so much awarensss

    • @ScottsdaleSushi
      @ScottsdaleSushi 3 місяці тому +1

      Leah - you have to be in the 5% so those future grandchildren get to me loved by you! Being a grandparent is wonderful - one of the best things that has ever happened to me.

    • @YoungLungCancer
      @YoungLungCancer 3 місяці тому

      @@ScottsdaleSushi 🤍🤍🤍

  • @Zeesboy
    @Zeesboy 4 місяці тому +14

    Thanks for your post. Glad you're maintaining well.Tagrisso's been working for me for 2 years. And yes, being/having a strong, informed advocate is essential.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      I hope you get many more years out of tagrisso! Leah is one of our co founders and we have been spreading the word about lung cancer in those without traditional risk factors.

  • @susanlumley5547
    @susanlumley5547 3 місяці тому +24

    Why oh why don't doctors listen to us!!!! We know our own bodies!!! Dors my head in! All the best to you and anyone suffering through cancer.

    • @taraconway1029
      @taraconway1029 3 місяці тому +3

      I couldnt agree more! In 2009 I experienced severe pain in my lower abdomen. They insisted I go home but I refused. Just as well because my bowel had perforated (peritonitis). I had bowel cancer which metastasised to my liver. Had I gone home I would not have survived. I am still here 15 years later.

    • @teriliebmann3491
      @teriliebmann3491 3 місяці тому +1

      💯

    • @teriliebmann3491
      @teriliebmann3491 3 місяці тому +1

      💯

  • @WeallneedJesus3
    @WeallneedJesus3 3 місяці тому +7

    Shocking you have had to go through this, may God strengthen and Bless you 💕🙏

  • @angelabordack
    @angelabordack 4 місяці тому +38

    I’m stage 2 oropharyngeal carcinoma. I’m half way through chemotherapy and radiation. The only reason they found my cancer was I demanded a scope down my throat. Then I demanded a CT scan with dye. Two days later I was in same day surgery getting a biopsy. Advocate for yourself!

    • @kathleenmcbride1471
      @kathleenmcbride1471 4 місяці тому +4

      Exactly. I was treated for bronchitis repeatedly until I got the CT scan. Xrays were useless until it was huge - 5cm lump and 7cm lymph node (largest one). Surgery not possible. Prognosis pathetic.

    • @angelabordack
      @angelabordack 4 місяці тому +4

      @@kathleenmcbride1471 I had a never ending sinus infection and what I thought was an inflamed tonsil. They wanted to put me on another antibiotic (I had already been on 4). I wasn’t playing that game. I wish you the best of luck! Fight like a Pitbull and MAKE them do what’s necessary. Most people die from these cancers because doctors brush them off and when it is found, it’s too late. We need change!

    • @kathleenmcbride1471
      @kathleenmcbride1471 4 місяці тому +3

      @@angelabordack I have done all the treatments that are applicable to my case so far. I read everything and got an excellent 2nd opinion at Moffitt. No mutations or markers so no targeted or immunotherapy is appropriate which is very unfortunate. That left the old chemo and radiation - exact same treatment as they have had for many years with historically dismal results. However, I did it all - fought through all that and now just having periodic scans. There is nothing left to do. A terrible waiting game. Trying to keep my mind on other things and enjoy the little things I can still do - limited by shortness of breath. I am OK. I get a lot of encouragement from others fighting cancer (example Dr. Dan and Shannen Dougherty among many) so it has been very hard recently as both are passed in the last week. Stay strong!

    • @FrannyNan
      @FrannyNan 3 місяці тому

      💗

    • @marykr41
      @marykr41 3 місяці тому

      Hugs!!

  • @margaretmcmanamon2615
    @margaretmcmanamon2615 Місяць тому +2

    I had the same diagnosis as yours, told six months, egfr exon 19, the mets followed the same pathway on the same medication. going on 4 1/2 years. I have fought this alone, all I have is my faith. Continued health for you, thanks for your story.

  • @lesleagordon
    @lesleagordon 4 місяці тому +16

    You are inspiring and a good example of how people are dismissed. Gods bless you and you will be in my thoughts and prayers. Live your best day girl and continue making memories your family will cherish. You are a hero for telling your story. Well done and hugs girl. You are a hero to all that hear your story. Sending you positive and healing vibes.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      Leah is so inspiring. She is one of our co founders- we are trying to spread awareness that lung cancer can happen to anyone!!

  • @seanr2157
    @seanr2157 4 місяці тому +46

    These freaking doctors and their cavalier attitudes! 😡 They should be sued for malpractice.

  • @catwanderer1509
    @catwanderer1509 4 місяці тому +23

    So much of what you have to say regarding being dismissed and having multiple diagnoses before the actual diagnosis of cancer was found is exactly what my 38-year-old daughter-in-law is going through right now. She just found out she has stage three lung cancer non-small cell and she’s been in and out of the hospital. Currently, she’s back in the hospital because of a collapsed lung. Sadly, she’s only had one chemo treatment. We are hoping that her lung will reinflate and she can get some treatment. She’s very strong like you.

    • @vickyessay8899
      @vickyessay8899 3 місяці тому +1

      Search Joe Tippens protocol for cancer cure.

  • @mairamichel2499
    @mairamichel2499 4 місяці тому +31

    My mom went through this, her doctors didn’t believe her or take her seriously. By the time they diagnosed her it was to late. Her body was already shutting down she passed 2 weeks after being diagnosed. 59 years old. Non small cell lung cancer, never smoked.

    • @mairamichel2499
      @mairamichel2499 4 місяці тому +6

      My mom‘s lung cancer spread to her brain had a stroke, the doctors blamed it on an AFib heart. She had migraines daily. Every time she went to the doctor or ER they would just give her a migraine cocktail and send her away. Turned out to be lung cancer when someone finally listened she was no longer eating and her body was shutting down. Cancer had spread to spine and brain. 😢 I wish I would have asked more questions, I believed the doctors every time they told me she was fine.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      I am so so sorry for the loss of your mom. It is so unfair. We are trying to create awareness and change the narrative about lung cancer. Leah is one of our co founders.

    • @FrannyNan
      @FrannyNan 3 місяці тому

      💗

    • @FrannyNan
      @FrannyNan 3 місяці тому

      @@mairamichel2499 💗

  • @jennifer6897
    @jennifer6897 3 місяці тому +5

    I was diagnosed with Multiple Myeloma in December of 2019 at the age of 40 which was very unusual! We are both survivors!

  • @lanebashford3982
    @lanebashford3982 4 місяці тому +11

    Praying for you, Leah. I'm stage 4 meta breast cancer and 3 years out from diagnosis. You can live a long time with the Big C so keep on doing what you're doing and take care of yourself. Praying for you and your family.

  • @Ceerads
    @Ceerads 4 місяці тому +8

    Thank you for making this video. I especially appreciate your mentioning those people who might not have the educational and financial resources that you had who are faced with a situation similar to yours: doctors misdiagnosing you or discouraging you, etc. I wish you all the best and many, many more years in which to love your family and life itself.

    • @vickyessay8899
      @vickyessay8899 3 місяці тому +1

      Search Joe Tippens protocol for cancer cure.

  • @CarolBender-s6p
    @CarolBender-s6p 2 місяці тому +3

    I am so very sorry. I do understand fighting for your health. I have been sent home from the hospital twice in my life to die. Im still here but the fight is hard. Dont give up, keep fighting. Eat well on a good anti-cancer diet. It's so important. I will pray for you. Stay close to God. ❤

  • @MyFavoriteColorIsBLUE
    @MyFavoriteColorIsBLUE 4 місяці тому +7

    Leah, im glad that you are still with us. Keep advocating for yourself ❤

    • @Rachel_Ryder
      @Rachel_Ryder 4 місяці тому

      Is she? I thought she had sadly passed?

    • @kezzokav5905
      @kezzokav5905 13 днів тому

      Why? ​@@Rachel_Ryder

    • @Rachel_Ryder
      @Rachel_Ryder 13 днів тому

      @@kezzokav5905 someone was weirdly spreading that rumor in the comments evidently. Stupid me believed it!

  • @LindaCimino-mf6cb
    @LindaCimino-mf6cb 2 місяці тому +3

    Self advocacy is THE most important thing you can do . Yes you made a good point what about people who don’t have any advocacy of some knowledge it’s sad . As a Nurse practitioner and a lung cancer survivor myself I listen to my patients . I too was diagnosed during Covid and given the run around until I persisted on a ct scan then Bronchoscopy and was stage 3 . The healthcare professionals need to be more aware that age and smoking is no longer a factor in lung cancer

  • @MC-do4dw
    @MC-do4dw 3 місяці тому +18

    It’s insane that you coughed blood and yet the doctors did not take you seriously! That’s the number 1 and classic symptom of lung cancer! They should have right away sent you to have a biopsy. I wish you well, and yes, we need to always advocate for our own good.

  • @tiffanylindfield9157
    @tiffanylindfield9157 4 місяці тому +14

    This is a true girl boss. 🎉❤

  • @rachscallywag7610
    @rachscallywag7610 4 місяці тому +19

    Yesterday I was diagnosed with stage 4 non-smoking lung cancer. I thought I had asthma, thankfully my GP sent me for a routine x-ray. My advice is - if you haven't had an x-ray - always insist on getting one. It is inspiring to hear Leah's wisdom, and thank you for sharing your thoughts on statistics. Statistics are hideous and just frighten you. Thank you for illuminating a realistic and positive path ahead. Wishing you and everyone going through this strength, positivity, and love. xxx

    • @anglophils645
      @anglophils645 3 місяці тому +1

      There is no such thing as "non-smoking lung cancer". Non-small cell lung cancer affects both smokers and non-smokers. There are no types of lung cancer that affect only non-smokers. Lung cancer is the number one cancer killer of both men and women, and kills both smokers and non-smokers.

    • @FrannyNan
      @FrannyNan 3 місяці тому +1

      💗

    • @annelbeab8124
      @annelbeab8124 3 місяці тому +2

      Much energy & joy in life to you to deal with this issue ! All the luck in the world!

    • @showbuzz5238
      @showbuzz5238 3 місяці тому

      How are you

  • @astock5794
    @astock5794 4 місяці тому +43

    My dad was diagnosed with mycoplasma pneumonia. It wouldn't go away. He even ASKED about lung cancer because he was 80 and had been a smoker. BUT since he hadn't been a smoker for more than 40 years, they dismissed him. Yup. Stage 4 lung cancer.😢

    • @Veronica-tn2xc
      @Veronica-tn2xc 4 місяці тому +3

      😢 I'm so sorry. I hope your dad heals.

    • @shermac246
      @shermac246 4 місяці тому +2

      I’m so sorry about your dad, I hope they find a treatment that gives him more time with you and other loved ones.

    • @FrannyNan
      @FrannyNan 3 місяці тому +2

      💗

    • @marykr41
      @marykr41 3 місяці тому

      I am so sorry!!

  • @danabishop5506
    @danabishop5506 3 місяці тому +2

    You really did the right thing, never let them dismiss you . Thank God it was not SCLC, it took my friend in 2 mos.. .as an RN, in critical care, I have had to stand up to physicians for my patients well being, family members also, and friends..you really can be in uncharted waters w/o some knowledgeable at your side! Hope you live a long life and a happy one! ❤

  • @lesleynyborg7643
    @lesleynyborg7643 4 місяці тому +5

    Leah, thank you for your story. I was diagnosed stage 2B breast cancer last year and then during scans found kidney cancer. I'm Ok for now but worry I'm going to miss signs telling me that my cancer has returned. However, at 65 I'm going to keep on and see what this life has in store for me. I wish you the best and with each year there are advances in treatment!

    • @FrannyNan
      @FrannyNan 3 місяці тому

      💗

    • @vickyessay8899
      @vickyessay8899 3 місяці тому +1

      Search Joe Tippens protocol for cancer cure.

  • @rebeccahylant7695
    @rebeccahylant7695 3 місяці тому +1

    Wow. Not only articulate but so inspirational. Glad that she took the initiative to care for herself.

  • @sandradalessandro2935
    @sandradalessandro2935 4 місяці тому +12

    You. Are. Amazing. So. Strong. Totally inspirational!! Fighting NH lymphoma two years it keeps coming back !! I. Do. Online reiki. I do meditation. Prayers. I. Do keto diet. Supplements. Vitamins. I. Absolutely agree. Get second third opinion. And definitely go to a major cancer center. I am at fox chase in Philly with access to clinical trials. Immune therapy. Etc. But. Hearing your story. Just made me feel empowered!! Thank you. And. God. Bless you. 🎀💖⭐️🌸🎀💖🌸🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

  • @carolorsini6049
    @carolorsini6049 6 днів тому +1

    I love your spirit! I hope you continue to progress daily. I currently am being monitored for Multiple Myeloma and listening to you made me think more positive.❤️

  • @saundralunsford4870
    @saundralunsford4870 2 місяці тому +8

    My Dad was diagnosed at age 65 with Non Squamous Small Cell Lung Cancer, and by the GRACE & MERCY of God, Dad lived 18 years! He passed away at age 83, almost 7 years ago. His diagnosis was in the year 2000, before we had genetic markers testing. I applaud your tenacity and determination to get the care you needed and deserved. Put your faith in God and your hand in His hand, and He will never leave you or forsake you. My prayers are with you and your family.

    • @saundralunsford4870
      @saundralunsford4870 6 днів тому

      @elavarasirajendran5760 It was stage four, but the surgeons did not find that out until after they opened Dad up! None of the testing showed that the cancer had spread to his heart, and to his larynx specifically his voice box. God did a miracle in my dad's life, and he's still in the miracle business, you just have to have faith! Prayers for you or whoever is suffering with this disease.

  • @Bcco1968
    @Bcco1968 20 днів тому

    Wow a powerful story. I am so thankful you persevered and so grateful you shared your story. I was a drug rep for 17 years and know how different medical professionals are in care. I am praying for you and your beautiful family. Your strength is contagious. Thank you!

  • @valeriegood8427
    @valeriegood8427 4 місяці тому +46

    This is all too common being fobbed off as 'not a candidate for lung cancer '.
    Not only Jenny Appleford, look at all the other, mostly women in their prime, stories on here. There's no shortage. I am nearly 65 & it would be devastating for me to learn I had terminal cancer but if I was young like so many of the women who's stories are on here & had young children I'd fall apart. It would be the most traumatic thing ever to think my kids would be without their Mother. I remember thinking about my mortality as a Mom to young children actually & I knew I had to try my best to be healthy bcos my kids need me. My heart truly goes out to all people who may be terminal, especially young Mom's.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      Yes!1 Leah is one of our co founders - young lung cancer initiative. We hear stories every day of young people that were BRUSHED OFF FOR MONTHS!!! Lung cancer is on the rise in young people with no smoking history/tobacco exposure. YLC is trying to change the narrative!!

    • @gildawhitner6962
      @gildawhitner6962 4 місяці тому

      Please inspire people, especially when they're bravely fighting life's struggles. Words to grasp to help them hold on.
      Thank you so very much 🌺

    • @Official-Comments
      @Official-Comments 2 місяці тому

      Radon exposure is a massive cause of lung cancer that few people know anything about. You can be living in a house with high radon levels that are the equivalent of smoking hundreds of cigarettes every single week and not know about it.

  • @rockqueen2010
    @rockqueen2010 Місяць тому

    You are amazing and I pray 🙏 that you fully recover from this cancer.

  • @stacyeroussel3458
    @stacyeroussel3458 3 місяці тому +4

    I don't know you, and I am So Very Proud of You!
    You are a survivor and an inspiration. God Bless You and your Beautiful Family!🩷🙌

  • @marci.0222
    @marci.0222 3 місяці тому +1

    We all live day today with no guarantee of another day to come. Thank you for speaking up and speaking out, advocating, and talking about doctors and hospitals doing their job.
    And most importantly about being listened to, and trusted.

  • @ja398
    @ja398 4 місяці тому +3

    I'm so inspired. I admire you like you can't imagine. I see a strong, beautiful, intelligent human being with an amazing will to beat this. Your children must be so proud to have you as their mom. Much love, prayers and health to you and your family. You've really touched my heart.

  • @WalkingontheEdge
    @WalkingontheEdge 3 місяці тому +3

    I'm so happy to see you doing well! I was diagnosed at 48 years old with stage 4 ALK+ lung cancer in 2018. Best of luck to you!

  • @NicksHEAT1995
    @NicksHEAT1995 3 місяці тому +5

    Strong woman. Not sure what made her think people are somehow exonerated from cancer because they didn't smoke. Cancer is not selective. Anybody can get anything, even a heart attack or stroke or aneurysm. Anything. Whatever time we get is luck. Enjoy life before it's over.

  • @lindaknight1025
    @lindaknight1025 3 місяці тому +6

    Thank you.i have stage 4 lung cancer it took ages to get a Dr to find I had it. I've been on immunotherapy for 2 years I am having a good result, I feel blessed.i am in Australia 🇦🇺 God bless

    • @FrannyNan
      @FrannyNan 3 місяці тому

      💖

    • @annelbeab8124
      @annelbeab8124 3 місяці тому

      All the best & enjoy life ❤

    • @vickyessay8899
      @vickyessay8899 3 місяці тому +1

      Search Joe Tippens protocol for cancer cure.

  • @JR-kz2xn
    @JR-kz2xn 4 місяці тому +9

    Thank you for sharing your story to help others. I wish you all the very, very best.

  • @Limbobaby-x9v
    @Limbobaby-x9v 4 місяці тому +2

    I hope to be half the woman that Leah is one day. What an inspiration. Keep advocating

  • @nancycurtis488
    @nancycurtis488 3 місяці тому +6

    You are truly an inspiration….tell your mom and dad that this mother of 7, Nona of 21, great-grandmother of 1 said they did a great job of rearing you. Hang in there!

  • @mattf5207
    @mattf5207 4 місяці тому +17

    Sending you blessings. I was going through similar issues. Not related to lungs, but my pancreas. I literally had my CT Scan cancelled the evening before I was going, because some insurance administrator said, “as a non smoker, it’s unlikely this test is needed.” I went into a rage. If I were a smoker, I’d have been welcome with no questions asked. Insanity.

    • @helentaylor7132
      @helentaylor7132 4 місяці тому +3

      Hopefully the doctor appealed and figured out "what to say" on the request so it was later approved! A doctor may need a brain CT scan or MRI for some reason (to check for metastasis from a separate cancer site). They think it will likely be rejected for approval, they may ask if you have headaches. If so, say yes! I didn't have brain metastasis, but did have a rather large unruptured brain aneurysm. After breast cancer treatment, an endoscopic neurosurgeon placed a stent in the brain aneurysm to prevent future rupture. Also, the breast cancer that was initially thought to be stage IV (because lung CT scan looked much worse than it actually was) turned out to be stage I. God works in mysterious ways.

    • @leahphillips2933
      @leahphillips2933 4 місяці тому

      So frustrating!!!

    • @cynthiameszaros2156
      @cynthiameszaros2156 4 місяці тому

      ​@@helentaylor7132oo

    • @mickirish7080
      @mickirish7080 3 місяці тому

      This is why the medical doctors are mostly useless. We need more AI in medicine now and less DEI doctors

  • @luzsandoval3937
    @luzsandoval3937 4 місяці тому +5

    I am proud of you. Thanks for representing women well. God bless you and heal you.

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      LEAH IS A FORCE WE LOVE HER

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      @@Ceerads why are all of our comments being deleted? We are trying to support Leah and let people know where they can learn more about her story. We share updates about her regularly as she is our co founder.

    • @Sgracer857
      @Sgracer857 4 місяці тому

      @@Ceeradswow seems like patient story only cares about sharing the story for their own views .. saw Leah’s organization suggesting people follow for more updates on Leah.. and they deleted all the comments. Ha pathetic . Will be unsubscribing. Are you trying to bring awareness and empower patients or you just trying to gatekeep for your own views ?!! This is what is wrong with the world of advocacy. Shameful

    • @Ceerads
      @Ceerads 4 місяці тому

      @@Sgracer857 I saw that replies had been deleted, but I thought the replies had been in response to those who mentioned God healing someone (I thought the replies had been on the atheistic side, and I agreed with what I imagined had been written and deleted). I didn’t know that the deleted replies were inquiring about finding updates on Leah! I’m deleting my comment.

    • @Sgracer857
      @Sgracer857 4 місяці тому

      @@Ceerads yes Leah is a co founder of young lung cancer initiative and she shares updates about her lung cancer on their social medial platforms .. YT, IG, TikTok.. it’s great and really making a difference.

  • @berthagreen1620
    @berthagreen1620 18 днів тому

    I have stage two lung cancer, I was lucky that my primary doctor was on the ball and sent me to specialist right away. I’ve finished chemotherapy and waiting to start the same pill you are on. I thank my doctor for keeping an eye on a small nodule on my lung. They removed the top part of my right lung , then chemo.

  • @OfficeSpaceRedStapler
    @OfficeSpaceRedStapler 4 місяці тому +42

    Amazing story. FWIW, my wife had advanced stage 4 met breast cancer (bones/lymph/liver/lungs/brain). Super long story short, after trying everything (conventional and alternative) we combined an immune checkpoint inhibitor (low single digit success rate used standalone) with fasting, very high dose melatonin, whole plant based diet and attention to gut/microbiota health and in 5 months she was completely cancer free per CT/PET/MRI and 2 Signaterra genetic tests for the first time in 10 years. All the above mentioned adjuncts have lots of science behind them and are very synergistic. If your Dr's are not able to offer additional options you may want to investigate what we did. Best of luck.

    • @OfficeSpaceRedStapler
      @OfficeSpaceRedStapler 4 місяці тому +13

      To add a little detail. Again, long, long story short. After 10 years of research (pubmed/NIH) my wife and I came to the realization that cancer is not about the cancer cell but about the immune system and gut microbiota. Everyone has cancer cells present in them. The immune system and microbiota are the systems that keep cancer in check. When they fail cancer can grow uncontrolled. AIDS (broken immune system) patients who die as a consequence of AIDS most often die of cancer. Someone with cancer is not much different than someone with AIDS. It's just not called AIDS. There is now ample evidence (both mainstream and alternative) of how completely effective the immune system can be as compared to chemo in eradicating cancer if it can be sensitized to the cancer and the cancer defense mechanisms can be degraded enough to facilitate immune involvement which is what happend with my wife. Chemo unfortunately impairs immune function and degrades the microbiome making a full resolution more difficult to achieve.

    • @crystalgarry5873
      @crystalgarry5873 4 місяці тому

      Thank you for spreading this info. Many will tell me off of certain sites for sharing serious science backed natural alternatives to killer disease including cancer. But the science is there. My daughter knows I’m not doing chemo. Unfortunately the $$$ involved in doing serious protocol with nutrition, supplements, therapies etc, is not for broke, bedridden, unemployed people w no medical insurance- so, don’t get cancer in America, without family, spouse or inheritance to chip in💰😢

    • @shantishanti1949
      @shantishanti1949 4 місяці тому +2

      Thank you for posting this. I will certainly look into it further for my own health. Was the Hugh dose melatonin to ensure good sleep ? How long was the fasting - intermittent (16 hrs plus ) or long term 4 days + etc
      So very sad this lady did not make it - deserved to do so. 🙏🙏

    • @pm2886
      @pm2886 4 місяці тому +1

      ​@@OfficeSpaceRedStapler That's what immunotherapy is for.

    • @OfficeSpaceRedStapler
      @OfficeSpaceRedStapler 4 місяці тому

      @@pm2886 Yes, but it unfortunately does not have a high success rate when used standalone. The body has to be in the proper biochemical state to give it the best chance of working. The scientific lit bares this out but few oncologists are aware of this. Ultimately it is the immune system that is the best answer to a full and long lasting recovery.

  • @kristinh9140
    @kristinh9140 3 місяці тому

    Thank you for changing your doctors! All of us need to be our own advocate.

  • @TrishErwin-hu4jo
    @TrishErwin-hu4jo 4 місяці тому +13

    Welcome to the world of modern medicine. So sorry to hear this has happened to you & your family. Gaslighting, being dismissive, not believing their patients & lack of coordination of care.

    • @Ceerads
      @Ceerads 4 місяці тому +1

      Yet modern medicine is helping people who’d never have survived had they had the same cancers many decades ago. Yes, doctors are harried and some dismiss their patients’ fears when the doctors shouldn’t dismiss them. And this happens to women more than men. But there’re a lot of great doctors, too. And nurses and techs. And medical researchers!

  • @livingwell7308
    @livingwell7308 Місяць тому

    You are your greatest advocate. We need to be super persistent. Only you know your own body. ❤❤❤

  • @ruzicaakarose2605
    @ruzicaakarose2605 3 місяці тому

    Strong minded woman. I wish her the very best..

  • @kendallansell4884
    @kendallansell4884 4 місяці тому +3

    You are amazing Leah. Such a role model.

  • @FTFFF
    @FTFFF 2 місяці тому

    This video is packed with so much and Leah is such an amazing and inspiring woman. As a cancer patient myself, i've learned that doctors never seem to get the diagnosis right the first time. Leah's journey is especially disturbing, since it took so long and involved so many different doctors and interventions. Can't help but wonder if her gender played a role in how doctors approached her symptoms. Her medical and life advice is so smart and valuable. And I especially appreciate her empathy for those who may not have the same education, resources and access to care. This is the power of this channel and community. And hats off to those like Leah who share their stories so that others can benefit. Sending love & healing.

  • @larie71
    @larie71 4 місяці тому +4

    Amen! You are a testimony, and you have a story to share. I thank you for your bravery, honesty and just being normal and relatable. I will share your journey- keep going and spread your message. Many prayers for you and your family.

  • @verep1653
    @verep1653 3 місяці тому +1

    May God bless you with the time that you want and the life you deserve. My heart goes out to you and your family.

  • @nataliemadrigal899
    @nataliemadrigal899 4 місяці тому +3

    God bless you. People need to hear you. Im getting a chest MRI.

  • @JillDuffield-v2h
    @JillDuffield-v2h Місяць тому

    You’re an inspiration to many. God bless you and your husband!!

  • @anneb5603
    @anneb5603 3 місяці тому +3

    Such an inspirational lady. I've been suffering for 4 months with breathlessness and tender chest pain in the ribs, total exhaustion. Ive aged 20 years in 16 weeks! The doctors won't listen when I tell them I'm usually fit and work out etc. You feel like you are banging your head against a wall. I'm 55 non smoker. In the UK. You have to be almost on your last legs to get a CT scan, unless you have money of course... I'm scared I have lung cancer as my brother died a couple years ago of cancer. My poor mum couldn't cope with losing me as well.

    • @vickyessay8899
      @vickyessay8899 3 місяці тому +1

      Search Joe Tippens protocol for cancer cure.

  • @margaretmartin-utley3400
    @margaretmartin-utley3400 25 днів тому

    My sister was treated and supported by Ingram Cancer Center at Vanderbilt-Nashville. Wonderful team of lung cancer specialists ❤

  • @ntandosekay
    @ntandosekay 4 місяці тому +9

    GREAT VIDEO
    Thank you for sharing your story with us. Sending you ❤& light 🌹

  • @renataloren2384
    @renataloren2384 4 місяці тому +4

    You are very strong lady and that something to be proud of. I am wishing you good health and a long life and I hope one day they find a cure for this cancer. It seems to be all too common lately, especially in the younger generation. May God bless and God you and your family always.❤❤❤❤❤

  • @anyaroz8619
    @anyaroz8619 3 місяці тому

    Oh I am so happy that people like you exist! Thank you so much for standing up for yourself! Have a happy and very long life!

  • @Katwinser1958
    @Katwinser1958 4 місяці тому +30

    I look at the thought of death like this. I have heart problems and the doc told me I am going to die. I look at it like this. If today is the day for me to die. It is a good day. I will embrace death and go.

    • @Gingergirl098
      @Gingergirl098 4 місяці тому +4

      With the Lord by our side its doable.

  • @norlavine
    @norlavine 4 місяці тому +1

    This lady has a great mind and will master her treatment and be a granny one day.♥

  • @paige6028
    @paige6028 29 днів тому +7

    I REALLY needed to hear this. After going to the doctor every other week for the past month with no answers, I am on the brink of feeling like I'm crazy. I'm only 50 yrs old! I just turned 50 & I have ALWAYS been one to get up & DO! WHATEVER needs to be done & whatever doesn't need to be done, I'll find something to do but as of the past couple of months I just don't have the energy & I now have pain so severe in my left shoulder that I can't even lift a frying pan! Some of my blood work has come back borderline like my anemia & vitamin D but I know something is wrong! My bones literally hurt! Idk what else to do. I'm not one to stand down but I'm also not confrontational either. However I watched my Dad pass away from liver cancer 6yrs ago & I refuse to go out like that. I won't stop until someone tells me why I'm feeling like this & what we can do about it. Thank YOU for speaking up! This encourages people like myself. Keeping you in my thoughts & prayers.

    • @Ioncandi
      @Ioncandi День тому +1

      Have you gone through menopause? Some of the things you mentioned can be related to menopause. But the best way to get help I have learned is the ER. Your regular doctor may dismiss your symptoms. If you feel you need someone to get you help go right away.

    • @paige6028
      @paige6028 День тому +1

      @@Ioncandi That's EXACTLY what is happening & exactly how I feel. Dismissed! I have also heard that the best way is to go to the ER. I still have a period every month. Thank you so much for taking the time to respond. That means a lot.

    • @paige6028
      @paige6028 День тому +2

      @@Ioncandi I have also had episodes of waking up drenched in sweat! That's only happened about a dozen times. My mother also had ovarian cancer when I was 14. My platelets came back elevated also. About 2yrs ago I noticed a "pea size lump" in my left armpit. I went to the doctor & they dismissed it as "fatty tissue". Well, it has tripled in size since & that is the same arm that this excruciating pain is in. The pain that I have in that armpit is so bad that I haven't slept on that side in over 2yrs. The pain between that armpit & elbow is so much worse & nonstop. Whenever I stand up it takes me a minute to get acclimated because my bones literally ache all over. The "all over" pain isn't as severe as the arm pain but it's there! I'm have a high pain tolerance but this is something that I just cannot take much longer. I have broken down crying twice to my husband. I need someone to do a scan ASAP! You know when you "just know" something isn't right? That's how I feel & I've rarely felt this way in my life. I PRAY that I'm wrong.

    • @Ioncandi
      @Ioncandi День тому

      @@paige6028 Maybe your lymph nodes are off? I would get a scan. A friend of my bf's at his work his wife ended up having cancer under her arm in that area. Please get it checked out. No one should have you wait until it's too late. Good luck.

    • @paige6028
      @paige6028 21 годину тому

      @@Ioncandi Thank you so much for responding. It's comforting just having someone to talk to about it. We love 45 minutes from a "world renowned hospital" & I've been contemplating on making the drive the vs going to our local hospital. If I said we live near the "city of medicine" you could easily Google it & know where I'm talking about. We do have many great, well-known hospitals & schools of medicine around us however they've all seemed to really decline since covid. I will definitely be going soon for a scan though! My family deserves answers. They've seen me sick long enough & I'm actually sick & tired of being sick & tired! Thank you so very much. God bless you! ❤️ 🙏 ❤️

  • @debbieblair3329
    @debbieblair3329 2 місяці тому

    Goodness. What a story! We have to continue to advocate for ourselves. We KNOW our bodies. Thank you for sharing your story!

  • @lydiakinnaman3679
    @lydiakinnaman3679 4 місяці тому +3

    Praying for God's healing touch.

  • @DaisyandJesus116
    @DaisyandJesus116 2 місяці тому +3

    My matérnal grandmother died of lung cancer. She never smoked. I always question doctors. Trust your intuition and God, of course.

  • @mbhike
    @mbhike 3 місяці тому +1

    Thankful you advocated for yourself, as did your husband. Shameful to be dismissed when a human life is on the line. Yes, everyday can be your best day. ❤

  • @melissacicio4688
    @melissacicio4688 4 місяці тому +3

    I am sooo damn proud of you. I kno EXACTLY how u feel about being dismissed. Blessings baby girl. ❤

    • @YoungLungCancer
      @YoungLungCancer 4 місяці тому

      We are so proud of Leah too.. She is an amazing advocate. She is one of our co-founders. Young Lung cancer Initiative.

  • @marieormerod596
    @marieormerod596 3 місяці тому +1

    Thank you for such an amazing example of strength. May God bless you and your beautiful family.

  • @ukelilly
    @ukelilly 4 місяці тому +4

    Thank you. I know someone who should watch this :) Best of everything for you