My Horrible Back Pain Was STAGE 4 Cancer! - Rylie | Stage 4 Hodgkin Lymphoma | The Patient Story

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  • Опубліковано 20 гру 2024

КОМЕНТАРІ • 306

  • @Angela-zp2gy
    @Angela-zp2gy Місяць тому +76

    You're adorable. Sending a boatload of positive thoughts❤❤❤My nephew is 36 and just went through a summer of chemo afrer being diagnosed with lymphoma between his heart and lungs. All clear today...thank God. I wish you and your husband a long and happy life!!

    • @ThePatientStory
      @ThePatientStory  25 днів тому +7

      so glad he is doing well today! :)

    • @dianajames4717
      @dianajames4717 9 днів тому

      So happy hes okay now. Just got diagnosed with stage 3 ovarian cancer dont want chemo. Scared

    • @kathleenryan8545
      @kathleenryan8545 8 днів тому

      @@dianajames4717 Take the time to think and get well informed! It hopefully will make you less scared! You can do this!

  • @Stlgirl-t3i
    @Stlgirl-t3i Місяць тому +89

    I just was diagnosed stage 4 non small cell lung cancer which spread to several areas. I only had shoulder pain. And just finally sucked it up and went to be seen. Shoulder X-ray showed large lung mass. I am getting my port on Tuesday. Praying for all of you ..

    • @mallyboothe7
      @mallyboothe7 Місяць тому +6

      Hi. I don't know your full name, but I'll be praying with you through this experience. May God carry you through this and be your strength and foundation of Hope. All the best for this Tuesday! ❤

    • @DavidPate-i5e
      @DavidPate-i5e Місяць тому +8

      Prayers for complete healing we declare it so in Christ Jesus amen.

    • @KnewEyes1990
      @KnewEyes1990 Місяць тому +6

      Thinking of you ❤.. what type of Shoulder pain was it ?

    • @ThePatientStory
      @ThePatientStory  Місяць тому +7

      We are so sorry to hear this!!! We will be thinking of you!

    • @cristleheart4266
      @cristleheart4266 Місяць тому +1

      @@Stlgirl-t3i 🙏💜💕

  • @kvfrank
    @kvfrank Місяць тому +86

    I also had Stage 4 Non-Hodgkins Lymphoma with one mass on my spine, so I know your pain. I'm now fully recovered and very grateful. I'm glad to hear you're doing well.,

    • @theRylieGodoy
      @theRylieGodoy Місяць тому +8

      I’m so happy to hear you’re doing okay too! ❤❤

    • @ClareRowe-v5y
      @ClareRowe-v5y Місяць тому +7

      That's absolutely amazing so very happy for you. Unfortunately I lost my beautiful 27 year old son from excally the same non hogken lymphoma stage 4 he only lasted 6 months from start to finish. It's coming up to his 2 year passing 22.11.22.😞😞💔💔🩵💙🩵But I am TRULY SO HAPPY FOR YOU All the best my darling 🇬🇧🇬🇧

    • @barbshields9958
      @barbshields9958 29 днів тому +2

      @@ClareRowe-v5yso sorry for your loss. 🤗❤️

    • @ThePatientStory
      @ThePatientStory  25 днів тому +1

      wonderful news! ❤

  • @maudeboggins9834
    @maudeboggins9834 28 днів тому +43

    darling, when one is 27 one thinks they are going to live forever & stay healthy forever. You are charming & I wish you a happy long life.

  • @vh3475
    @vh3475 Місяць тому +52

    I started itching really bad a few years back. I was told I was allergic to food. I kept feeling off and they thought I had an autoimmune disease but the rheumatologist said I had fibromyalgia. I developed a cough that kept me op all night and then horrible night sweats they thought I had bronchitis. Finally I went in again because the cough wasn’t getting better. They thought I had a clot so they did a d dimer test and it showed something wasn’t right so they did a ct scan and saw a mass pushing my trachea. I did a biopsy that showed I had Hodgkin’s lymphoma. The PETscan showed it was near my trachea and one near my liver. Stage 3. It took 3-4 years to figure out what was wrong. I did treatment for 6 months. I didn’t feel sick but I was in pain. Done with treatment this past May. So far so good except now I have neuropathy and fast growing cataracts in both eyes.

    • @lacharmer441
      @lacharmer441 29 днів тому +4

      Read up on infrared light, it can help with eye site

    • @jahouser6273
      @jahouser6273 26 днів тому +4

      Your story reminds me of the auto mechanic’s I’m dealing with. They’re just throwing darts to see which one sticks, wasting our time and money.

    • @CookingwithRafaa
      @CookingwithRafaa 22 дні тому

      Wow your story , symptoms and your ct and pet scan are exactly like my mine . I’m starting the chemo next week . Did u loss all your hair ? Did u use cooling cap ?

    • @92sarahmarie
      @92sarahmarie 18 днів тому +2

      @@lacharmer441red light builds up collagen, which is technically “scar tissue” so I would be very wary with red light and cataracts. It could build them up potentially, instead of breaking them down?

    • @sandey42
      @sandey42 7 днів тому

      What brand of the Covid vaccine did you get?

  • @Paul-p9g3x
    @Paul-p9g3x Місяць тому +16

    My sister also had horrible back pain. That’s where her saga began really all I want to say is I’m glad you are still living. You look like you’re fully recovered to me. You have a very nice family. Good luck to you.

    • @ThePatientStory
      @ThePatientStory  25 днів тому +2

      sending positive thoughts your sister's way!

  • @CorinnaVillalobos
    @CorinnaVillalobos Місяць тому +10

    So beautiful that Felipe is with you through thick and thin. God bless you both.

    • @ThePatientStory
      @ThePatientStory  25 днів тому +2

      a supportive partner makes a huge difference!

  • @lauriemarvel
    @lauriemarvel 22 дні тому +5

    I love what you said at the end, “The more loving and exciting it will be!”
    Young lady, you have brought appreciation into my thoughts today. Thank you for that.
    I’m so glad that you and your family have been recovering so well, it’s definitely got to be something that is terribly difficult and painful to go through in so many ways.
    Bless you, you have such a beautiful little family, ❤

  • @chucitachirimoya1086
    @chucitachirimoya1086 9 днів тому +3

    You are very special person, the way you are facing this situation . Thank you for sharing your story.

  • @maryannebarry9123
    @maryannebarry9123 Місяць тому +21

    Such an honest and sweet woman. Wishing you the best ❤

  • @melissakorbe5216
    @melissakorbe5216 Місяць тому +80

    Just because there's no genetic test for lymphoma doesn't mean there's no genetic condition that causes it. New biomarkers are constantly being identified.

    • @PollyWood67
      @PollyWood67 Місяць тому

      There are some genetic mutations that make a person more likely to get cancer. I was tested for all of them. This family needs to be tested for all of them.

    • @jenniferw1595
      @jenniferw1595 Місяць тому +1

      My mom has CLL - there are genetic markers for it.

    • @KiraKixxx
      @KiraKixxx 28 днів тому +2

      @@jenniferw1595what are the genetic markers?

    • @ThePatientStory
      @ThePatientStory  25 днів тому +5

      very true- grateful for the researchers out there working on this!

    • @Trogdor1365
      @Trogdor1365 18 днів тому +2

      Not disagreeing about genetic causes, but biomarkers typically refers to proteins and carbohydrates on the outside of the cell membrane, not DNA. Cells "talk" to each other and "identify" each other with these protein "flags."

  • @larisajeffrey2312
    @larisajeffrey2312 Місяць тому +7

    You are such a beautiful soul…I feel it through this story. Grateful you are healthy. Your smile is contagious.

  • @jamiejones8508
    @jamiejones8508 Місяць тому +35

    I can’t imagine it was easy to do IVF under these circs, but I’m glad they gave you the option. My friend with Hodgkins wasn’t given the choice; he had to ask (& is now recovered with twins ❤)

    • @theRylieGodoy
      @theRylieGodoy Місяць тому +3

      How amazing is that 💕 send my congrats to him!

    • @ThePatientStory
      @ThePatientStory  25 днів тому

      wow- twins?? what a blessing!

    • @AllegedlyMaybe
      @AllegedlyMaybe 16 днів тому

      I so appreciate your use of "circs" felt like I met a kindred spirit!

  • @dcp7449
    @dcp7449 Місяць тому +13

    Thanks for sharing your story so important to help people struggling with symptoms and not knowing what is going on. Well done wishing you all the best ❤

  • @magdavanderlith925
    @magdavanderlith925 Місяць тому +75

    Unbelievable. Will we ever know why so many people get cancer nowadays. And, so many members of one family!! And, the cat. Wow. Rooting for you and your brother. All the best😊

    • @bethlewis8731
      @bethlewis8731 Місяць тому

      It’s coming from everywhere !!! 5G creates cancer microwave ovens emit cancerous radio waves frequencies our food has poison added you must research to find truth 😢💔🙏‼️🙏‼️

    • @wendys6438
      @wendys6438 Місяць тому +4

      Well, until fairly recently, getting health care was nearly impossible for most Americans. It's still pretty hard to get, but it is somewhat more accessible. Anyway, before that, a lot of people got sick and passed of "natural causes" which was either a heart attack or cancer complications. Now, at least some people have a chance....

    • @tocandycane19
      @tocandycane19 Місяць тому +9

      widespread environmental pollution is definitely a factor, the western diet too, and covid suppresses the immune system, making it harder for the body to fight off cancers

    • @RustyShakleford1
      @RustyShakleford1 Місяць тому +2

      All the comments are disappearing literally

    • @chingeling86
      @chingeling86 Місяць тому +6

      Wheres your statistic? BTW Monsanto was found guilty of causing a lymphoma in the past.

  • @brooks6348
    @brooks6348 Місяць тому +11

    Thanks for sharing! Have a wonderful cancer free life! Your children are darling!

  • @cynthiaporcaro9937
    @cynthiaporcaro9937 17 днів тому +4

    My daughter had HL at 17, lots if those symptoms for months and we didn't know what was wrong. She's 24 now and doing great 🙏🙏🙏

  • @lisamahoney7766
    @lisamahoney7766 Місяць тому +23

    1985 I was diagnosed with Hodgkin’s disease stage 3 which now is called Hodgkin’s lymphoma. I was 18 had 3 months ABVD and 6 months MOPP. Then 6 weeks of radiation.I then met my husband and had my son at 29. It was hard to get pregnant. After my son I never had another cycle. Dr said I went through menopause early probably from the chemotherapy. At age 42 I had DCIS and had to have a bilateral mastectomy. Dr said probably from the radiation. I have had genetic testing and everything was fine from that. I believe it’s the environment where I grew up because my neighbor behind me was diagnosed a few years after me with the same cancer. She was young also.

    • @shannzgab
      @shannzgab Місяць тому +4

      Cancer cluster? Worth investigating.

  • @madelinehonness8978
    @madelinehonness8978 19 днів тому +6

    When my husband had his PET scan to be declared cancer free at the five year mark, they found out that his lung cancer had spread to his other lung . Stage 4 now. 78 yrs old has been receiving quemo therapy and Keytruda. It’s been hard on him, his adult children and myself. We won’t know how the therapy has been working until three more cocktails. So very happy for all that have von the battle.

  • @lisakatz7887
    @lisakatz7887 Місяць тому +19

    What a beautiful spirit u have... along with the exterior beauty. Prayers to you for 100 years of clean scans!! ❤❤❤❤

  • @mariadln777
    @mariadln777 19 днів тому +3

    You are lucky to have support from friends and family🙏🏻Keep being bubbly 🤗

  • @debramilam.3123
    @debramilam.3123 Місяць тому +17

    You’re beautiful without hair!! Not everyone can pull that off! Bless your husband! He really loves you!

  • @ritazimmelman4769
    @ritazimmelman4769 27 днів тому +3

    Thanx for sharing such an amazing story! I hope you all remain cancer free and lead happy & healthy lives. You were so fortunate to not only have such a supportive family but also boyfriend! Hope all is well with all of you.

  • @kerritrouble3473
    @kerritrouble3473 28 днів тому +7

    Positive vibes for an amazing future filled with love and light!

  • @beth-annquave7217
    @beth-annquave7217 17 днів тому +2

    EMPATHY IS DEFINITELY RARE! Thank You for sharing here 🙏🏻❤️

  • @stephmartin1148
    @stephmartin1148 29 днів тому +5

    Bless you, your brother, your dad, I can’t believe all three of you have had the same cancer!! Also bless your mom too. Sorry you lost your cat to it too!! ♥️ I wish you and your family the best!!
    I have had Mono so I always like to hear these stories to keep track of symptoms. My body already has a form of Vasculitis.

  • @annagarza7299
    @annagarza7299 Місяць тому +21

    It makes you wonder 💭 how did our 7 yr old son get diagnosed with cancer osteosarcoma 💔😭 he started complaining that his right knee HURT 😫 he was playing football in a league so we never thought it was cancer our dr told daddy I DONT WANT TO GUESS so let’s get an X-ray and they did that day I stopped at the dr office after work and they took me to his office and I said to my self I have been with this dr since I was 4 yrs old and never in his office THIS IS BAD he walked in put the X-ray up and said THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I fell to my knees HYSTERICAL 😫😫😫😭💔 the next 3 yrs were full of chemo and operations 😫 it was a true test on our marriage we also had a 6 yr old daughter 💗 I am so happy that you are cancer free and your girls are beautiful 💕

    • @SarafinaSummers
      @SarafinaSummers 26 днів тому +2

      I hate to sound callous or rude, but doctor seemed to give a damn more about kids than they do adults. Once you turn 18, your life is apparently over, in the eyes of the medical system. Please do not get this twisted, I am extremely grateful for your son‘s recovery… And for the survival of your marriage. I am just extremely ill… Discombobulated, that children seem to get a lot more resources than adults when it comes to chronic care.

    • @annagarza7299
      @annagarza7299 26 днів тому

      @@SarafinaSummers that is true to a certain degree medically I don’t see a difference but financially there is in California they have CALIFORNIA CHILDREN SERVICES and they reimburse for parking and pay for anything your ins does not cover and if parent stays in hospital with child they get 3 meals paid for as long as you are in hospital and they also reimburse for gás used and after chemo and an operation to save the leg did not work he had to get his leg amputated and nothing worked the cancer kept coming back we took hm home and 9 months later he died in my arms at home 😩😩💔💔😭😭

    • @ThePatientStory
      @ThePatientStory  25 днів тому +2

      so sorry your family had to go through that awful experience

    • @lisastinyvanbigliving5261
      @lisastinyvanbigliving5261 22 дні тому

      Noo, I'm Soo sorry! I'm just sickened by the amount of cancers and auto immunes and people suffering at the hands of a medical system that is all Profits over people! Drs can't or don't follow the "Do no harm" and they are no longer healers, but symptom treaters! No One especially a (your) 7yr old child! My tears are for you tonight! And wishing, hoping, praying that something changes in the world of Medicine before it's too late to do any good.❤​@@annagarza7299

    • @RustyShakleford1
      @RustyShakleford1 19 днів тому

      ​@SarafinaSummers you need to go to the er with hot water in a thermos drink it to show a fever when they take your temperature tell them you have chest pains and make sure you breath quickly in and out. They will admit you for fever chest pain and scans I'm praying for you they didn't believe me untill I faked a fever and sprinted right before the er check in. I know most patients don't gave the energy to do that tho

  • @angelahoyle9136
    @angelahoyle9136 Місяць тому +4

    Thanks for sharing and congratulations for being cancer free!

  • @kathleenellison6869
    @kathleenellison6869 Місяць тому +16

    What a beautiful family

  • @MaryGibsonVanZandt
    @MaryGibsonVanZandt 27 днів тому +3

    Thank you for sharing your story. You are an amazing young lady!!

  • @ivanjones8144
    @ivanjones8144 7 годин тому

    Your remarkable and a blessing to humanity ❤️

  • @donnapiraino3323
    @donnapiraino3323 14 днів тому +1

    The water in the house…You are so adorable ♥️♥️aww sending you so much strength and positive vibes ♥️♥️

  • @debramilam.3123
    @debramilam.3123 Місяць тому +12

    I love you with the darker hair..so sorry you have to go through this!

  • @doodleacademy
    @doodleacademy Місяць тому +10

    Thank you for sharing your story 💛 Blessings to you 🙏

  • @helenmayberry6010
    @helenmayberry6010 6 днів тому +1

    You're in my prayers 🙏🏾🙏🏾🙏🏾

  • @catherinesusann5182
    @catherinesusann5182 Місяць тому +3

    I am so happy you are okay and you were able to have such a beautiful family.

  • @Lauren_1987
    @Lauren_1987 12 днів тому +1

    For people wondering what is Hodgkin's lymphoma it affects the lymphatic system which is part of the body that fights germ/disease systems. It includes the lymph nodes which are located in the abdomen, groin, pelvis, chest, under arms and neck. It can also affect other organs or parts of the body. Do Not ignore any symptoms that you know are not normal. Be your own healthcare advocate. Ask questions. Challenge your doctor. Get a 2nd and even 3rd opinion.

  • @dianejohnson7212
    @dianejohnson7212 Місяць тому +6

    You are truly amazing 🙏🙏🙏🙏

  • @mazzie9663
    @mazzie9663 Місяць тому +4

    Such a beautiful soul and lovely couple and gorgeous family. So very happy you had a great outcome and you’re a live and healthy. Much love and happiness wished for you all. ❤❤❤❤

  • @susancanning1760
    @susancanning1760 26 днів тому +4

    I believe is someone actually took the time to really listen & do some related tests you would have been diagnosed earlier. We seem-to be victims of drive through medical care! Wish you all the best!

  • @barbshields9958
    @barbshields9958 29 днів тому +3

    Thanks so much for sharing your story. You have a beautiful family. ❤🤗

  • @ZeroAlpha1173
    @ZeroAlpha1173 18 днів тому +1

    I had Hoskins lymphoma and recovered . Really praying for you

  • @trishemerald2487
    @trishemerald2487 Місяць тому +10

    Wishing you all the best from Stittsville!!!

  • @FuzzDogan-i3w
    @FuzzDogan-i3w 8 днів тому +1

    Hodgkin's Lymphoma is the easiest cancer to cure ,I too had Hodgkin's Lymphoma 17 years ago Went through the chemo and God has Blessed me !I never had back pain I had swollen lymph nodes in my neck,my groin ,under my arm pits ,behind my knees ,all of my chest ,I could not breath ,I had no pain but the itching was all over ,night sweats ,losing my eye sight ! I lost 40 lbs ,it was awful ! I really never heard of back pain with Hodgkin's Lymphoma !

  • @kaylee200210
    @kaylee200210 25 днів тому +2

    Omg your whole family had cancer, that’s crazy!!!! Glad you are doing ok!

  • @donnapiraino3323
    @donnapiraino3323 14 днів тому +1

    Aww you two make a beautiful couple and family ♥️♥️

  • @tinablair6262
    @tinablair6262 Місяць тому +9

    Your gorgeous with your dark hair...glad you are here❤

  • @Ceerads
    @Ceerads Місяць тому +1

    Wishing you all the best with your lovely family.

  • @tinaatwater2791
    @tinaatwater2791 25 днів тому +1

    Thank you for sharing your story. You are such a beautiful light in this world, and I wish you and your beautiful family a wonderful, cancer free life. My husband was diagnosed with a very aggressive stage 4 metastatic prostate cancer earlier this year. After multiple rounds of radiation, it continued to spread to multiple areas in his spine and hip. We are now weeks into chemo, and we do follow up testing December 9th. Things are not looking good, but all we can do is hope and pray that things will turn around. The hard part as his wife is that I love him so much and I'm scared. There is tons of support for the patient but not the spouse. I know he is the one with cancer, but I'm hurting too. Except for 1 sister I have not received a phone call from anyone else. My honey gets 8-10 calls a day so besides me he has an extremely strong support system, me not so much much. Am I wrong or selfish to feel this way?

    • @ThePatientStory
      @ThePatientStory  25 днів тому +1

      thinking of you and your husband during this time :(

    • @Melody-285
      @Melody-285 25 днів тому

      @tina No, you’re not wrong or selfish - I was totally involved in the caregiving of my parents & my late boyfriend & so I know it’s brutal, both physically & emotionally - and the stress is really intense - I’m so sorry you don’t have more of a support group for you - praying for your strength & courage to get through this - greetings & blessings from Florida 🙏

    • @megmodaff5989
      @megmodaff5989 24 дні тому

      You need to find support and help with the caretaking, start with a therapist, surely the cancer center has one. They should be able to find help and support for you. If you neglect your own well being you'll be the next one with cancer. Please take care of yourself ❤

    • @tinaatwater2791
      @tinaatwater2791 10 днів тому +1

      ​@@ThePatientStoryThank you for the kind words. It means a lot. From total strangers I get my happiness. Kinda sad when you think about it. 🥲😢😂😢
      Merry Christmas.

  • @JustEmmaAsmr
    @JustEmmaAsmr 21 день тому +1

    Wishing you the best and sending you lots of love ❤❤❤❤

  • @annieterminetschuppon7232
    @annieterminetschuppon7232 29 днів тому +2

    When I was physiotherapist, I was exercising extremely precaution with back pain or front shoulder pain.
    Always asking radio and scan then proceeding own testing before moving forward. If no better status and even worse after a week, I was sending back the patient to the doctor
    Usually, unusual back pain in lumbar region without specific sporty exercises or others, needs to be suspicious of uterus or cervical cancer or kidney/urinary system cancer. Shoulder front pain can be pulmonary cancer.
    She is saying kidney issue, practitioner got various testings tools like blood test, scan, irm....
    It's absolutely not excusable.

  • @Morr1264
    @Morr1264 Місяць тому +5

    Thank you for sharing your story. Being so vulnerable is something we all should not shy away from. You are a beautiful person inside and out! Prayers that you live a long cancer free life, enjoying your precious family🙏🏻

    • @ThePatientStory
      @ThePatientStory  25 днів тому

      very grateful for brave souls like hers willing to share their stories :)

  • @Jessiilou
    @Jessiilou 11 днів тому

    I’m from Ottawa!!! Sending you so many good vibes your way 🫶

  • @kerritrouble3473
    @kerritrouble3473 28 днів тому +1

    Thank you for sharing your experience

  • @HA-00
    @HA-00 Місяць тому +1

    Thank you for sharing your story.

  • @lisat9802
    @lisat9802 Місяць тому +7

    Rylie, I am so glad that you were able to get the care that you needed, that you have such an amazing husband and 2 beautiful kids. I was treated for stage 3 triple negative breast cancer in the yr just prior to covid. I finished treatment in Oct 2019. So yes I agree with you on the fact that neither one of us had to go through treatment during the pandemic. Sending you lots of love, light and healing energy.

  • @CarolCreates
    @CarolCreates Місяць тому +2

    Reminds me of Mel & Kim. An English pop duo, consisting of sisters.
    Mel suffered from back pain.
    Long story short, she passed at the age of 23 in 1990. It was cancer.

  • @gabrielapreininger7335
    @gabrielapreininger7335 Місяць тому +10

    Maybe there were certain chemicals in the water. 9 people got cancer in my street where i grew up in Lima, Peru.. Some got it younger like me at 45 and others a little bit older in their 60s. Only 2 of us are still alive. My father had pancreatic, my brother currently with tracheal and I had breast cancer in 2003.
    You are sweet and gorgeous. I wish you a long healthy life with your beautiful family. Thank you so much for sharing. It really helps knowing about the symptoms and treatments for different cancers.❤

    • @RustyShakleford1
      @RustyShakleford1 Місяць тому

      Did it happen all around the same time or when someone died of cancer did they all get infected with cancer?

    • @RustyShakleford1
      @RustyShakleford1 Місяць тому

      How far apart did everyone get cance? Thanks for sharing

  • @beasefcik2469
    @beasefcik2469 28 днів тому +1

    I'm glad you're doing better!

  • @marie-joseelanglois1333
    @marie-joseelanglois1333 10 днів тому +2

    Wow you explain it so well, shows that you are a Canadian i am also lol... ty

  • @debrakleid5752
    @debrakleid5752 Місяць тому +2

    My dad didn’t have lymphoma but he did have AML which is acute myeloid leukemia and they think he may have gotten his from Camp Lejeune when he was in the US Marine Corp or possibly from Agent Orange when he was overseas serving in the Vietnam War! He died in 2021 but he was also 84 years old but when he was admitted to the hospital to start treatment he got severely septic and his white count was either 0.2 or 0.3 however he did survive it and actually he was only on IV antibiotics for a few days and then he switched to oral antibiotics (I’ve had sepsis 4 times with the first being the worst and I was hospitalized for a month and spent 2 1/2 weeks on several IV antibiotics). He did really well on the oral antibiotics and that was until he got pneumonia about a week later. 3 1/2 weeks after he was admitted he passed away and it was less than 2 months after he started chemotherapy and less than 10 hours after I signed the hospice paperwork! Also this was his 2nd bout with cancer plus mom had breast cancer (survived), grandfather had colon cancer (died but he was also 96 years old), aunts and uncles have also had cancer. I have celiac disease and CVID and both increase risk for certain cancers!

  • @tntina420
    @tntina420 Місяць тому +8

    You’re a beautiful soul and I am so happy you were able to have a family after treatment. I was wondering if you had any swollen lymph nodes? I’m dealing with a lot of “strange” symptoms and the doctors keep brushing me off. I’m wondering if I might have lymphoma.

    • @claireashley427
      @claireashley427 Місяць тому +4

      What symptoms have you been dealing with? Have you had blood work done recently? Push for further testing if you feel like something isn't right. You know your body better than anyone. Advocate for yourself and don't be afraid to get a 2nd or 3rd opinion if you aren't satisfied!❤

    • @tntina420
      @tntina420 Місяць тому +5

      @ rashes, sweating profusely day and night, severe headaches, malaise, muscle cramps and a bunch of other little things that seem strange. I got bloodwork done and they didn’t see anything but I pushed for more testing and got a MRI and CT scan. The doctor said I had a “severe sinus infection” even though I didn’t have any of the usual symptoms of a sinus infection. 2 rounds of antibiotics and still have all of the symptoms. I have a new doctor so I’m being the squeaky wheel and getting more testing done, I have a bunch of appointments coming up so hopefully I’ll find something out soon. I have been sick for almost 4 years now, the last 2 years have been the worst.

    • @RustyShakleford1
      @RustyShakleford1 Місяць тому

      You have a mycobacterial infection please I promise you get a pet ct scan they will tell you it's cancer but it's mycobacterium​@@tntina420

    • @Stlgirl-t3i
      @Stlgirl-t3i 28 днів тому +3

      @@tntina420 do not go by blood work alone. My bloodwork has been normal it took. That’s why we were stunned that I actually had lung cancer

    • @tntina420
      @tntina420 24 дні тому +1

      @@Stlgirl-t3i definitely, I’m pushing for more testing, the bloodwork keeps coming back “normal” and didn’t detect a severe sinus infection so I know it’s not as accurate as the docs would have you believe.

  • @caroldenyer3948
    @caroldenyer3948 Місяць тому +5

    Love your vibe. Fellow cancer survivor 1 year NED. 4 to go.

  • @frazzledhaloz3184
    @frazzledhaloz3184 5 днів тому

    Good luck out there!❤

  • @staceyloke9872
    @staceyloke9872 Місяць тому +2

    i am also an HL survivor and my mother passed from it (misdiagnosed) about 25 years prior. while my oncologist said it’s not typically genetic, he said in his opinion there was very likely a genetic component bc environmental didn’t make sense. my daughters pediatrician has her on a plan to watch her

  • @patriciacornman
    @patriciacornman 19 днів тому

    Thank you for sharing. Beaverton Michigan

  • @dawnstraughen755
    @dawnstraughen755 29 днів тому +2

    Radon exposure can cause it. It is random from one house to another. Test for it. There is remediation steps for it. My Son passed from complications from being treated for lymphoma. We had radon in our basement.

    • @Stlgirl-t3i
      @Stlgirl-t3i 28 днів тому

      @@dawnstraughen755 yep we thought radon campuses mine. I’m in South Dakota and it’s the 2nd largest state to have high radon levels we ended up placing radon system

  • @FluxyMiniscus
    @FluxyMiniscus Місяць тому +7

    I really enjoyed hearing your perspective and story. Congratulations on your recovery and beautiful family ❤
    I’ve been dealing with similar symptoms for over a year now, ER docs said kidneys (totally bs) and spinal stenosis (do have, but it’s not responding to injections anymore), plus high white and platelets low B and Potassium . I finally got another MRI this week and see my Dr in a few days. Hopefully something is obvious, otherwise more testing…..

    • @VandaPietrantonio
      @VandaPietrantonio Місяць тому

      Everything shows up in an MRI. I hope everything goes well. The blood tests are abnormal. I had an MRI and it showed everything.

    • @Stlgirl-t3i
      @Stlgirl-t3i 28 днів тому

      @@VandaPietrantonio same labs were always great. It took a X-ray to see I had a mass on my lung.?

    • @VandaPietrantonio
      @VandaPietrantonio 27 днів тому +1

      ​@@Stlgirl-t3i You think the x-ray would have been the first thing done,.It reminds me of when my doctor wanted to inject my knee with out x raying it even examining it. It ended up I needed intense physio.

    • @Stlgirl-t3i
      @Stlgirl-t3i 25 днів тому

      @ yep you would think X-ray. But why X-ray when my labs are normal. It mind blowing..

  • @stacyjones2605
    @stacyjones2605 29 днів тому +5

    Have you tested the family home for radon levels ? Thank you for sharing your story.

  • @Lauren_1987
    @Lauren_1987 12 днів тому

    Prayers to you and your sweet, supportive family (your brother too). Thank you for sharing your story. Today, there are many options for treating various cancers. Technology is very advanced which helps for treating cancer patients.

  • @Chiclette-ld1xx
    @Chiclette-ld1xx 12 днів тому +1

    God bless you both and your family and thanks for sharing. Just a question did you take the safe n effective meds? Pray you have a wonderful long life.

  • @yvonnewardrichardson9191
    @yvonnewardrichardson9191 18 днів тому

    Beautiful Warrior Mama!!

  • @chelciewentzel8191
    @chelciewentzel8191 Місяць тому +1

    prayers always beautiful ❤

  • @tracymcgrath1192
    @tracymcgrath1192 Місяць тому +6

    Congratulations 🎉🎉🎉 enjoy that gorgeous fam of yours🫶🏻💪🏻🙏🌹

  • @JonGlead-p7d
    @JonGlead-p7d Місяць тому +2

    Hi,interesting testimonial, congratulations 🎉❤

  • @DPA373
    @DPA373 Місяць тому +4

    My mom had Non Hodgkins Lymphoma. They tested her for things back in her day when she had cancer what she had gotten it from a place that she had worked at some sort of chemical that she used in industrial washing machines. Unfortunely i worked in the same place my mother worked when i was a teenager for the last 2 years i have been experincing the same onset my mother had when she was first diagonosed. But the doctors are not doing anything to run tests to check me

    • @VandaPietrantonio
      @VandaPietrantonio Місяць тому

      Demand tests. Be clear with your symptoms, history and persist.

    • @wethenorth6437
      @wethenorth6437 Місяць тому +5

      @DPA373 Don't accept No as an answer please demand to be tested or find someone who will test you. They have nothing to lose and you have everything to lose. Good Luck and be your own advocate.

    • @dominiquehould8981
      @dominiquehould8981 Місяць тому +3

      Please continue to demand testing and perhaps bring someone with you . Continue to advocate for yourself .

  • @1beebles
    @1beebles 20 днів тому

    Thank you for sharing
    Your message about vulnerability 😂is inspiring
    My God bless you and you have a wonderful life from here on in❤

  • @starrynight2600
    @starrynight2600 19 днів тому +2

    Did your legs hurt really bad at night when you tried to sleep ? My back hurts so bad. And I sweat really bad at night. Sweating through my clothes one night I had to change my pjs three times. My legs hurt too. I’m waiting to get my mri

    • @lindaanderson3698
      @lindaanderson3698 11 днів тому

      The cancer sign videos note that kind of sweating at night and any very bad pain without relief or clear cause means you need to see someone. Something is up.

  • @victoriarice7467
    @victoriarice7467 Місяць тому +3

    My maternal aunt and maternal uncle both passed away from Lymphoma. Also have niece that completed treatment for it. Now I'm having some suspicious symptoms. Should I get checked?

    • @c.o8016
      @c.o8016 15 днів тому

      Definitely get checked.

  • @terrybunsey8015
    @terrybunsey8015 7 годин тому

    If you were in that much pain and then continue to drink alcohol. I can’t believe you weren’t peeping blood because I was diagnosed with kidney cancer ♋️ at 56 and lost my right kidney and my urologist couldn’t believe it grew in my kidney instead of out, but he would NOT let me leave his office until he looked at my dye procedure and I him my life and tell him to this day and I went through six weeks of chemotherapy but found cells in my ledder tube that runs from your kidney to your bladder and I just had bladder surgery and there were no cells this time, so I get to move to six months until my next bladder cell surgery. Cancer has come along way and just l can give you some advice, God Bless you but have ur oncologist, urologist and PC doctor all work together like mine do. Merry Christmas 🎄 and a Happy New Year’s to you and your husband and I sending you lots of prayers and hugs for gf. 🙏🙏🙏🙏♋️♋️♋️😇😇👍

  • @susansweat9125
    @susansweat9125 28 днів тому

    For years, they said there was no genetic link to cancer, period. I'm old, so I remember those days.
    So, I would look at it more as though they haven't identified one yet.
    When it comes to medicine, today's answers are always subject to change

  • @denalraab
    @denalraab Місяць тому +7

    There's much discussion about cancer not being hereditary at all. The genes in your DNA are obviously inherited. Certain genes have been found to be markers for certain cancers, but having a certain gene doesn't mean you will have that cancer, but it predisposes you to the possibility if that gene should happen to mutate. Research has found it difficult to find the exact reasons the gene mutations happen, but in some cases, they have determined that when certain genes DO mutate, it's commonly in certain decades of life. It looks as though you and your brother are relatively close in age. That could be a factor. Gene mutation is triggered by something; either in the environment or in your body when/if the conditions are right for it to do so. The newest research addresses the fact that scientists have always looked at cancers as heritable, but they've found that it's more likely to be metabolic dysfuction. Something to keep in mind for your children's sake.
    I discovered so much information regarding this when my mom was dx with an aggressive cancer in May of last year. I had her ask the doc if it was hereditary. He said no. My grandmother also died of (thyroid) cancer, and my mom didn't know what kind it was... or any details, really. I have spent the last 30 years being a career patient (crohns) and needed more answers.
    After her initial round of treatment was done, they did a PET scan in Sept '23. The cancer had exploded everywhere. She did choose to do some additional treatment, but we lost her on January 13th.
    Malignant Metastatic Mucosal Melanoma. Very rare. No therapies have been proven to work. I also question how/if the C19 shots may have altered the way the cancer behaved. Many things will always be a mystery.
    All of us have cancer 'insitu'. Tumor growth is triggered by 'something' - or many things. Genetically, our genes are similar to our immediate family members. So biologically, it would seem that our body's reaction to triggers is what is/can be hereditary. That's a deep rabbit hole, but it's worth following.
    Congratulations on your recovery. Wishing you decades of continued blessings. 😊

    • @Stlgirl-t3i
      @Stlgirl-t3i 28 днів тому

      @@denalraab I also wonder about that shot too.

  • @powerofloveism
    @powerofloveism 6 днів тому

    I know where your from Pierre"s neck of the Country, I have been there before nice town I thought. So sorry you had to go through all this.

  • @chrismason8398
    @chrismason8398 15 днів тому

    You're right about the five year mark. I was so happy to pass the five year mark but at six years it came back😮

    • @chrismason8398
      @chrismason8398 15 днів тому

      It's not lymphoma... It's breast cancer.

  • @AdrienneCarolCasteleijn
    @AdrienneCarolCasteleijn Місяць тому

    Beautiful family ❤

  • @ukingly
    @ukingly Місяць тому +6

    Did you live in a high Radon area?

  • @jodysterk8771
    @jodysterk8771 16 днів тому

    That’s crazy because I have to tell you that they told us that it’s really unkissed hard for family members to have different dads and have the alpha one disorder and I have daughters from different dads and I have alpha one and both of my daughters got alpha one even though they have different fathers, but because I have alpha one, I gave them the alpha one andalpha one for me, but they said that was statistically impossible for them to have alpha one. I have three children and two children have the same father one child has a different father, but all three of my kids have alpha one. And you are just a beautiful person and your has been and your children are absolutely gorgeous and oh my gosh your brother is so cute. Bless you bless your family and I hope you have a beautiful journey thank you for sharing your story

  • @tinagordon1299
    @tinagordon1299 13 днів тому

    Wen I found out I had lumps in my breast I went in to do the biopsy I was asking everyone questions too. It's normal I think ur nervous❤ prayers to you

  • @sstargaze333
    @sstargaze333 24 дні тому +4

    Has the water in your area been tested? Bc that's weird. That's a lot of cancer. Or maybe your house has mold. But theres something there.

  • @margaretneanover3385
    @margaretneanover3385 2 дні тому

    When you say extreme pain, do you mean sensitivity in as much or deeper pains as much? For instance, touching skin can actually hurt even if no pressure is applied ?

  • @bravoaddictAnn
    @bravoaddictAnn Місяць тому +22

    Father, brother, sister, even their cat has Lymphoma? It's definitely environmental..

    • @solangelalebron1348
      @solangelalebron1348 Місяць тому +2

      Maybe someone in there smokes.

    • @lorenpowell1606
      @lorenpowell1606 Місяць тому +8

      @@solangelalebron1348
      The cat

    • @RustyShakleford1
      @RustyShakleford1 Місяць тому

      It's a type of mycobacterium, they use antineoplastic chemotherapy that are literally antibiotics@@@ they slap us in the face like idiots

    • @alphaomega1351
      @alphaomega1351 Місяць тому +3

      Me tink hereditary. Cat 🐈 is also a family member. 😳

    • @VandaPietrantonio
      @VandaPietrantonio Місяць тому +5

      Maybe it is the big v...... e.

  • @senseiruthbuckner5407
    @senseiruthbuckner5407 28 днів тому +1

    I wonder what the outside air quality is or if they sprayed a lot of pesticides. Scary.

  • @bernsteinsmith5401
    @bernsteinsmith5401 3 дні тому

    Hi, I’m a big believer that the brain can tell us about our bodies and u listen to it

  • @toniauciello8333
    @toniauciello8333 23 дні тому

    God bless you. So brace ❤

  • @edswanerbury5859
    @edswanerbury5859 28 днів тому +1

    Wondering, Have you ever had the house tested for radon? Colorless, odorless gas that seeps up from the ground. Hope you are all well.. Kris

  • @starrystarrynight6281
    @starrystarrynight6281 Місяць тому +2

    Had you been exposed to heribicides, insecticides, cleaning products? Both our neighbors husband and wife had this too and they thought this was why.

  • @nv9070
    @nv9070 27 днів тому

    Question - when you have “lymphoma “ nights sweats are they consistent - or here and there?

  • @sandey42
    @sandey42 7 днів тому

    May I ask what brand of the Covid vaccine you got?

  • @jenniferharris7633
    @jenniferharris7633 Місяць тому +2

    Fifty years ago Hodgkins was an automatic death sentence, regardless of what stage it was in.

  • @sassysenior6116
    @sassysenior6116 Місяць тому +3

    hI THERE. ONE OF MY DAUGHTERS LIVES IN CARLETON PLACE. I LIVE IN KANATA. ITS THE FIRST TIME I HAVE EVER COME ACROSS SOMEONE FROM OTTAWA IN MY UA-cam EXPERIENCES.