I F*****G GIVE UP!!! (Life With Stage 4 Cancer)

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  • Опубліковано 30 вер 2024
  • 🎦 About This Video:
    I F*****G GIVE UP!!!
    ▶️ About This Channel:
    I've always been a storyteller. I've written hundreds of short stories and multiple books, but I always sensed I was meant to share a different story.
    MY story.
    I wasn't sure what that was until I was diagnosed with STAGE 4 Alveolar Soft Part Sarcoma (a SUPER rare type of cancer for which there is NO CURE).
    I decided to embrace my motto of Living Out Loud and started sharing my journey in vlog format.
    This is my story. Real. Raw. Unfiltered.
    ✅ How To Help:
    If you got value (motivation or entertainment) from this video and want to support me, there are a few ways you can do that:
    1️⃣ Subscribe, comment, and share this video! That ALWAYS helps!
    2️⃣ Donate to the FoGundMe my friend created for me when I was first diagnosed: gofund.me/d0e8...
    3️⃣ Visit my author website and buy one (or all) of my books: gsauve.ca/
    #cancer #cancervlog #stage4cancer #cancerjourney #cancerstories #cancerrecovery #incurablecancer #sarcoma #tumor

КОМЕНТАРІ • 750

  • @helikahe
    @helikahe 3 місяці тому +114

    Dear Guillaume, I’m sorry you feel so poorly lately. I work with cancer patients every day and I know that cancer pain is one of the worse pains known to human kind. Unfortunately, popping occasional Tylenol won’t cut it, definitely not in stage 4. You need proper pain management agents and schedule to be worked out by palliative care team. Please request this as otherwise your quality of life will suffer immensely. I agree with other people here that you should admit yourself to the hospital ASAP (if not done yet) as cumulative dehydration, malnutrition and pain will only make your overall health worse. Please don’t wait 🙏 Gentle hugs 🤗 ❤

  • @entronetcalitz6567
    @entronetcalitz6567 3 місяці тому +192

    Please go to the hospital where you can get stronger pain meds and oxygen to breathe. It literally breaks my heart to see you like this!😢

    • @musiccapricorn918
      @musiccapricorn918 Місяць тому

      😢

    • @saskiacopeland7316
      @saskiacopeland7316 Місяць тому

      I've just come across your video. I'm really sorry you are going through this, just terrible for you 😔 I hope tomorrow is better for you ❤ much love from Australia 🌺🌺

  • @emilys1743
    @emilys1743 3 місяці тому +206

    My thought: you might need a few days in hospital to get your symptoms under control so you can feel better at home. If you go to Emergency and tell them what you've told us, I'm confident they will admit you. They WILL help you.

    • @SmilingBeaver-ou7nc
      @SmilingBeaver-ou7nc 3 місяці тому +27

      I'm thinking the same thing, especially with being home by himself.

    • @bluesmoke8826
      @bluesmoke8826 3 місяці тому +11

      Best comment by you. He needs assistance

    • @antonygikonyo7914
      @antonygikonyo7914 3 місяці тому +10

      Am sure he has already done that previously,...it's now about riding the storm with medication running in the system, until the negative symptoms subside....!!

    • @lnewbury1
      @lnewbury1 3 місяці тому +5

      I agree.

    • @debrahanko3978
      @debrahanko3978 3 місяці тому +14

      Don't feel like you're complaining. We all care and are here for you. Please take care of you. Let your doctor know where you're at. I pray for your comfort.

  • @Noodles.FreeUkraine
    @Noodles.FreeUkraine 3 місяці тому +102

    Guillaume, when the pain never goes away, your treatment is insufficient. One pill per day isn't a law of nature, you need what you need. I don't advise to just pop in whatever you get your hands on, but rather talk to your doc and explain the situation. In this day and age, there is absolutely _no_ reason to suffer from pain. Also ask for anti-emetics to get a grip on that puking sensation.
    Another thing most people don't have on their radar: In your situation, pain isn't medicated when it rears its head, but _before._ That means, you need a medication plan that allows you to stay pain-free in the first place. This is not a headache where you take a pill if it happens once in a blue moon.

    • @penneynadalini216
      @penneynadalini216 3 місяці тому +4

      Take pain meds it will help your body heal! You do not have to suffer.

    • @JerseyLynne
      @JerseyLynne 3 місяці тому +3

      Maybe it's time to go to the hospital to get pain management straightened up. Do you have O2 at home. Do you need to have a humidifier? I'm so sorry to hear.

    • @JerseyLynne
      @JerseyLynne 3 місяці тому +3

      You should have narcotics. Like a patch. Go to the hospital. You said it yourself, you can't handle it right now

    • @mmmmlllljohn
      @mmmmlllljohn 3 місяці тому +2

      Yes, a humidifier would help you. Many drug stores carry them and also have free delivery.

    • @modom11
      @modom11 3 місяці тому +7

      As someone who had a very bad accident with massive injuries and ended up being so dependent on pain meds that i was taking 30 oxys a day, now sober for 3.5yrs… and will never ever go back on them… you need them… your body can’t rest/relax/heal when you are this bad off… your leg is acting up bc of all of the symptoms above and NO PAIN CONTROL/NO CALORIC INTAKE/ETC… this is why opiate pain meds were created.. stage 4 cancer patients… its not giving up- it waving the white flag and allowing your body to relax while the pain is ‘alleviated’… please please please go to the ER and demand a pain ,management consult and start some TPN or something for calories. Much love.

  • @deannsmith8903
    @deannsmith8903 3 місяці тому +77

    You are venting to us and it’s ok. You need to vent. We are listening.

    • @naomijones8564
      @naomijones8564 3 місяці тому +7

      💯 x

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +13

      @@deannsmith8903 Thanks 🙏. It definitely felt good to vent.

    • @Rapunzeljones78
      @Rapunzeljones78 2 місяці тому +2

      ​​@@LivingOutLoud-LWS4C 😢 Vent away. Praying 🙏 🤲 for relief for you.

  • @tiffanys9493
    @tiffanys9493 3 місяці тому +71

    Rn here. Please go to the ER or contact your doctor. You don’t need to be suffering like this. You need better pain control and better control of the nausea so you can eat. You are in a bad cycle of most likely dehydration which is creating even more dehydration.

    • @IRAM_rehman
      @IRAM_rehman 3 місяці тому +5

      These are normal side affects. My mum had the same...

    • @kathygillman5450
      @kathygillman5450 2 місяці тому +2

      I hope you went to ER although I don't go so not fair of me. I am stage 4 colon_liver cancer. I am blessed to have a wonderful pain management group. Palative care was almost none existent. I just did the 2 nd chemo, it's been constant for 2nyears. You dont need to suffer, but you have to tell Dr. I hope they have a good palative care team wherever you are. That cough, pain? You need to go in. I am about to give up but won't, so I get it. I hope by now you've gotten much needed help.

  • @b.abrackus6403
    @b.abrackus6403 3 місяці тому +49

    Don't apologize for making this video, this is REAL and if the viewers can't handle feeling uncomfortable while you grapple with everything, they need to watch another channel! Best wishes Sir❤

  • @Dublin1008
    @Dublin1008 3 місяці тому +37

    The doctors should admit you to hospital. They can give you infusions when you cannot eat at least. I'm so sorry for you❤ I really hope that you feel better soon! Are you alone at home? Is there someone from your family.? Sending you much healing love and hugs❤

  • @dawnhaynes8090
    @dawnhaynes8090 3 місяці тому +40

    I’m very worried about you, please go to the hospital ❤

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +4

      Sorry I worried you, but I assure you everything is fine. Things are gradually getting better.

    • @SUMILAHBINTIMUHAMMADJAMIL
      @SUMILAHBINTIMUHAMMADJAMIL 2 місяці тому +1

      Yes, pls do go to see doctor in ER to get help fr the doctors! Your cough is really bad that affects your breathing.

  • @Arthur-hg7ny
    @Arthur-hg7ny 3 місяці тому +38

    You need a pain management team to oversee your cancer pain.

  • @kathygrech6739
    @kathygrech6739 3 місяці тому +34

    You need to be admitted to hospital; you are not meant to suffer like this alone in your apartment. You can be given meds for nausea, hydration & food via IV if necessary & strong pain medicine. Tylanol won’t cut it. I pray you will go to the ED asap & get the urgent help you need. 🥺🙏🏼🙏🏼🙏🏼🙏🏼❤️

  • @amaliachirino5135
    @amaliachirino5135 2 місяці тому +26

    You just made me cry. I understand your feeling, I get the same way, I’m 63, this is my third cancer, third chemo out of 6. I leave in Florida and my cancer center is wonderful, the other day I was in so much pain, called my oncologist and she send me to the hospital, they have to give morphine bc i thought I was going to die. She gives me fluids every week and change nausea medicine to a stronger one. I have never take so many painkillers like this time, my back is on fire. I just want you to know that every cancer patient, we’re in this together, we’re fighting this battle. You’re too young, hang in there, try to be positive and talk to your Dr. about managing pain. My heart goes out for everyone is suffering this terrible decease. You’re on my prayers. Really hope you’re feel better.

  • @dragoncult666
    @dragoncult666 3 місяці тому +26

    I'm concerned, please go to hospital. 🦋

  • @angeladee8789
    @angeladee8789 3 місяці тому +27

    This is where pain management shines. Because you're stage 4 you should get decent assistance. One thing that won't be helping is taking half doses of the Tylenol. It's using up your daily limit in an ineffective way and contributing to you not getting a break. A pain management appt will help you plan to cover your pain and stay ahead of it. Also you need to get your breathing assessed and you might get relief from portable oxygen. One thing that helps with breathing is a fan blowing in your face. There's many strategies that can help reign in your symptoms and improve the way you feel each day but you do need to speak to pain management via your oncology team. It is crucial you do this.

  • @trendachristensen4859
    @trendachristensen4859 3 місяці тому +58

    You should start palliative care. They will help,with pain and you can still continue treatment. Palliative and hospice are not giving up but gives you a much better quality of life.

    • @Catlady52000
      @Catlady52000 3 місяці тому +3

      I agree!

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      Are those services for people who are on their deathbed?

    • @Catlady52000
      @Catlady52000 3 місяці тому +5

      @@LivingOutLoud-LWS4C it’s just pain management …. You don’t have to be on your deathbed….i wish you strength and comfort 💜

    • @Julzkai
      @Julzkai 3 місяці тому

      Just found your channel. I'm sorry u are suffering. It's really not fair. Take care. Xxx

    • @Wulfe156
      @Wulfe156 2 місяці тому

      Palliative is not hospice care. They're there to help support those living with illnesses by showing them how to live more comfortably with it going forward. The goal is to help us live a better life with it. I highly recommend you check into it.
      s​@@LivingOutLoud-LWS4C

  • @deannsmith8903
    @deannsmith8903 3 місяці тому +89

    I wish you had someone with you right now. I’m asking the lord to help you even though you don’t believe in him. You are still his child.

    • @jdmmg4904
      @jdmmg4904 3 місяці тому +6

      pls don't annoy ppl with beliefs they don't have. The majority of the world believes in something different than you. Why do you think you are more right than all of them? Just send your good wishes and leave it like that.

    • @deannsmith8903
      @deannsmith8903 3 місяці тому

      @@jdmmg4904 Good morning and mind your own business!! Don’t worry about what I say to the man ok because I’m not talking to you!

    • @caroltardif5999
      @caroltardif5999 3 місяці тому +15

      Nobody is annoyed. Everyone has different beliefs and they can express them as they want to

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +9

      @@deannsmith8903 Thanks 🙏. Much appreciated.

    • @cheshirecat4802
      @cheshirecat4802 3 місяці тому

      🙏 to whatever God you believe in, the more the merrier❤❤!! It doesn't hurt to cover all of your bases😂​@@jdmmg4904

  • @NiechZyjePolska48
    @NiechZyjePolska48 3 місяці тому +46

    Just relax and don’t make videos when you are struggling. We will wait until you feel better

    • @naomijones8564
      @naomijones8564 3 місяці тому +6

      I think he is finding it cathartic to have a rant, to empty his head bless him x

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +4

      @@NiechZyjePolska48 This was more about than catharsis than storytelling. Sometimes you just need to relieve the pressure.

  • @leeann7777
    @leeann7777 Місяць тому +5

    He suffered way more on the cross for your sins , turn to him , he loves your his mercy endures forever. ❤

  • @adamhughes4442
    @adamhughes4442 2 місяці тому +9

    I complain about life, then I watch this video! I'm ashamed. God bless you sir, my heart goes out to you!

  • @lanebashford3982
    @lanebashford3982 3 місяці тому +17

    Can you get put on hospice? They will come daily and check on you and make sure you are comfortable. Praying for you daily and hope you find some comfort.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      Thanks for the prayers 🙏 and kind words. Much appreciated.

    • @linehempel162
      @linehempel162 2 місяці тому

      Get help please,you don't have to suffer...

  • @nancymcquaide8867
    @nancymcquaide8867 3 місяці тому +15

    Please reach out to your team. I think you need more care for a short time. I know it is hard to ask for help but you deserve it.

  • @rosemarys2465
    @rosemarys2465 3 місяці тому +13

    You have reached your limit of tolerance for this situation. You said you are broken...I agree. Please get admitted into hospital where you can get better controlled pain meds and help breathing.....it will give your body a chance to recover so that you feel better. Sending love and hugs for healing.

  • @Sunshine-zi4nq
    @Sunshine-zi4nq 3 місяці тому +14

    This has been going on for a few days and doesnt look like it is going to go away on its own. Please go to the hospital. Insist on being admitted . If the leg pain gets worse you may have difficulty taking public transport. Please do something about this before that happens.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@Sunshine-zi4nq Thanks for caring, but I don't WANT to be admitted. That is the last thing I want. And things have been getting better these last few days, so we're definitely moving in the right direction.

  • @thecraziestcatladyyouknow
    @thecraziestcatladyyouknow 3 місяці тому +16

    I am so sorry you’re going through all of this. SCREAMING IT ON THE MOUNTAIN!! You have every right to feel what you feel and to say what you need to say. That’s what most of us are here for. We are here to listen and to support you through the good days and bad. I been fighting cancer for 12 years but I was never a stage 4 so I cannot put myself in your shoes but know this, there are people who care and people who pray for you and I am one of them. I am so sorry your hurting

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      Thanks 🙏. And you're absolutely right. I am incredibly lucky to be surrounded by so many caring and supportive people.

  • @TheWondabar
    @TheWondabar 3 місяці тому +3

    You need a new doctor with a new method of treatment! Please.

  • @queenbuzybee4074
    @queenbuzybee4074 3 місяці тому +3

    I don’t understand why you’re not on a pain management regimen. You shouldn’t have to deal with pain like that. You should definitely talk to your health care team.
    You also need opioids for the pain and not Tylenol. WTF? Get some help.

  • @TheWondabar
    @TheWondabar 3 місяці тому +5

    I can’t believe you’re just on Tylenol with 4th stage cancer! Please get some stronger meds…I can’t believe your doctors would let you live like this!

    • @travels129
      @travels129 3 місяці тому

      That's right some doctors have no idea!

  • @Sandra-jv4fk
    @Sandra-jv4fk 3 місяці тому +15

    There are no words to describe how badly I feel watching you struggle and be in so much pain G. I know you're super strong,smart and independent but please ask for help. We are worried.😔😓

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +2

      Don't worry. I'm not suffering in silence. I always keep my doctors informed of everything that happens.

  • @bellawinfield8577
    @bellawinfield8577 3 місяці тому +10

    So very sorry! I also have stage 4 lung cancer that I know how hard this is for you. I Pray and the Lord gives me relief for a while. Prayer 🙏 for you

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      Sorry to hear that. I hope it's not too painful for you. How long have you had it?

    • @kathleenmcbride1471
      @kathleenmcbride1471 2 місяці тому

      3B for me... inoperable tons of lymph node involvement. So afraid of what is coming. So sorry others are also going through this awful disease. It is the worst.
      I hope somehow you are doing better.

  • @GregForgette
    @GregForgette 3 місяці тому +3

    May Jesus Christ himself touch you with his grace and see you through I need not know you to love you and I do

  • @darlenepietzak9847
    @darlenepietzak9847 3 місяці тому +3

    You should go to the hospital or even an urgent care. You shouldn't be in pain. Tylenol is a joke. I can't believe you haven't been given a prescription pain med and something for anxiety. They have to do better for you.! You need help. 🙏😢🙏

    • @suesmith3744
      @suesmith3744 3 місяці тому

      @darlenepietzak9847. For a stage 4 cancer patient his pain medication is absolutely woeful ‼️People take bloody Tylenol for a headache ‼️‼️

  • @dwightmckay2036
    @dwightmckay2036 3 місяці тому +3

    Geez bro . Theres no way you have to be suffering needlessly like this .get to ER asap and you shoukd be in hospital to get your symptoms inder control.demand stronger pain meds
    Morphine etc.
    You should have a palliative care team responding immediately asap
    Your dehydration malnutrition have to be addressed too
    Many Prayers and Blessings for you bro❤

  • @JilSpangenberg-ys7fz
    @JilSpangenberg-ys7fz 3 місяці тому +4

    Hospice has access the😊 things for you that your doctors CANNOT provide.

  • @danajonesnolan2547
    @danajonesnolan2547 3 місяці тому +4

    Sounds like you need to get a new f****** doctor if you're in that much pain and he's allowing you to be

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@danajonesnolan2547 I appreciate the thought, but doctors are limited by what they can do to help. It's not a lack of desire but rather a lack of means to help.

  • @JoyceP1958
    @JoyceP1958 3 місяці тому +9

    I agree with others that you need to go to the emergency room and let them help you get stabilized, please🙏. It's not weakness to go ask for help 🤗🙏. You need some rest and don't worry about making videos, we're still praying for you and we'll be right here... Never ever ever give up 🙏🤗

  • @suesmith3744
    @suesmith3744 3 місяці тому +8

    I am heartbroken and SO worried about you , if I were with you now I would call an ambulance and give you a ( motherly ) hug . You are like me stoic , too much for your own good sometimes , hate complaining and making a ‘ fuss’ . Well you need to make a bloody fuss on this occasion , you need HELP ‼️. You cannot be expected to cope with this level of pain and discomfort on your own , please please for us if not yourself pick up the phone and ask for help …. Never worry about venting in front of us , this is REAL life not some fairy tale and people don’t have to watch …. Please @G ask for the help you need and deserve , post whenever you are able , I wish I could be with you right now , take care darling , you are in my thoughts and prayers 💙

    • @Sunshine-zi4nq
      @Sunshine-zi4nq 3 місяці тому +4

      Agreed. He should call an ambulance that way they will have to admit him. I hope a neighbour, friend or family member can help if he is too weak. I fear if he collapses when alone, nobody will know.

    • @suesmith3744
      @suesmith3744 3 місяці тому +4

      @@Sunshine-zi4nq SO worried about him , amazing guy who deserves SO much better 💔

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      I appreciate your concern and your kind words (as usual). However I assure you that I am doing what is necessary. Not only do I keep my doctors up to date on everything that happens, but I have never chosen to not go to the ER and regretted it. I always do whatever is best for me and feels right, even if some people misinterpret it as me "trying to be brave" or "ignoring reality".

  • @janelleabbott2227
    @janelleabbott2227 3 місяці тому +2

    Er trip you need to be prescribed some strong pain pills and help you to get your breathing under control!!!!❤❤❤❤ plz seek help do not suffer.

  • @JilSpangenberg-ys7fz
    @JilSpangenberg-ys7fz 3 місяці тому +3

    I agree with everyone else - go to ER

  • @amiller2352
    @amiller2352 3 місяці тому +3

    Can you not get hospice care? They will control your pain

  • @carolinemccabe8297
    @carolinemccabe8297 3 місяці тому +3

    Please go to hospital please. You need help and oxygen. You cant do this on your own. Dont torture yourself just get help. You clearly need it now 😢😢❤❤❤❤

  • @bmdjk
    @bmdjk 3 місяці тому +2

    OMG! Listen! You need a stronger painregimen. And you need to take it before pain strikes. This is something that should have been managed with "healthcare",what is WRONG with them? Tylenol for this!! You must take hold of this - otherwise pain will take over you. Believe me,I know.

  • @fixinfkinsandwiches6183
    @fixinfkinsandwiches6183 3 місяці тому +5

    You don’t have to live like this, your pain can be better controlled. Please let your Dr. know what’s going on. They may be able to send a home health nurse to help you a lot. Or go to the ER, sorry to have to suggest that because it sucks, but so does suffering. I hope you are feeling much better soon.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      I know you're trying to help and I appreciate it. What I don't understand is why some people assume I'm doing nothing. I keep my pivot nurse up to date on everything that happens and she is in contact with all my doctors. It's not like I'm suffering needlessly in silence.

  • @okallie
    @okallie 3 місяці тому +7

    This sounds really hard. I think it’s important you are sharing this side too. Perhaps ask for stronger meds at least for a bit of relief so you can sleep well. Tylenol might not be enough right now. Just something to think about. You absolutely do not suck at everything btw. Sending love your way.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@okallie Thanks 🙏. And you're right. I just suck as SOME things 🤣.

  • @Melly4real
    @Melly4real 3 місяці тому +2

    your supposed team should not have you in this state tell them its unacceptable!

  • @greensage395
    @greensage395 3 місяці тому +3

    What about THC infused Edibles? They should stimulate your appetite and reduce nausea!

  • @KathySong1
    @KathySong1 3 місяці тому +3

    Chronic pain is a prison. Team that with sickness, it’s no wonder you are at the end of your tether.
    Please get to your team/ hospital soon where they can give you anti-nausea meds, and stronger pain relief until this passes.
    These symptoms can be better controlled with the support of your oncology team.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      @@KathySong1 Yeah. I keep my doctors up to date on everything that happens.

  • @carolinemccabe8297
    @carolinemccabe8297 3 місяці тому +3

    You look exhausted. Get strong pain meds just dont suffer unnecessarily

  • @lindc1070
    @lindc1070 3 місяці тому +2

    Take time off from making videos if you need to. Perhaps just update us via the community page. This isnt a time to be stoic or hopeful things will get better if you do nothing. Please get the help you need at the hospital. Have you checked your oxygen levels? If they are low that is enough reason to be admitted. Sounds like your body isnt digesting food.😢

  • @susansimon5105
    @susansimon5105 3 місяці тому +7

    As a chronic pain patient (13 major spinal surgeries) no one should have to be in constant pain! Over the years I have had various doses of pain medication depending on the stage of my recovery from surgery. I know that many doctors currently don’t want to prescribe pain medication sufficient to alleviate the pain. The pendulum has swung way too far from treating pain patients with copious amounts of pain medication to insufficient amounts of pain medication for fear that they will lose their medical license! I hope you can find the help you deserve! ❤

  • @daviddownie5594
    @daviddownie5594 3 місяці тому +5

    Please get something stronger than Tylenol. There’s no virtue in suffering so much. I understand the desire to “take it”, I’m in my last 6 months of life and I want to be with it as much as possible, but I came to realize I don’t get a prize for being “strong”.

    • @maggietaylor9475
      @maggietaylor9475 3 місяці тому +2

      Sending you peace and calm on your journey ❤

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +2

      Sorry you're going through that. Congratulations on choosing to go through it in the way that makes the most sense to you.

  • @lindashur8986
    @lindashur8986 3 місяці тому +9

    Please do not worry about providing more videos right now! Bless your sweet heart! I feel the grandmother in me coming out strongly right now! I wish I could just reach out and put a cool cloth to your forehead and bring you a big soft pillow and sing you to sleep😢 I agree with others that you need to reach out very soon to your hospital and Oncologist if possible, please.
    Keeping you in prayer always!!❤

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      Thanks 🙏. You're very kind.

    • @lindashur8986
      @lindashur8986 3 місяці тому +1

      @@LivingOutLoud-LWS4C You are very, very lovable and so inspiring!❤

  • @pm2886
    @pm2886 3 місяці тому +2

    Please go to the ER. You're too unwell to be at home alone. Your oxygen saturation alone, will get you admitted. You're also sure to be dehydrated.
    Don't take chances with this. You CAN be helped. And you're not "complaining", you're seriously ill.

  • @MARINES1282
    @MARINES1282 2 місяці тому +2

    Brother ive had cancer twice plz go to the hospital. You seem very stessed plz just go. Your bad ass and you know it. But your human plz just go beother

  • @JilSpangenberg-ys7fz
    @JilSpangenberg-ys7fz 3 місяці тому +4

    Hospice has meds that control pain; also helps with breathing; and even coughing. Call your local hospice. They will come see you- probably same day or next. They will provide you with meds, and things to help.

  • @marciajones2993
    @marciajones2993 3 місяці тому +5

    They can do something to help you with the pain. Constant pain will affect your ability to cope as will lack of sleep. Call this a fuckit day, tomorrow’s a new one, it’s okay to have a bad day. Lots of love and light. 💙💙💙💙💙

  • @Zee-ob1pe
    @Zee-ob1pe 3 місяці тому +10

    Poor guy ❤ wish you could be cured of this horrible cancer

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      Thanks 🙏, but I like to think that everything happy for a reason, so I'm trying to make the most of this experience.

    • @RozatorulchelHahaha
      @RozatorulchelHahaha 2 місяці тому

      @@LivingOutLoud-LWS4C 🫂❤️

  • @maggietaylor9475
    @maggietaylor9475 3 місяці тому +3

    Please go to the hospital or at least contact your oncology team. Sending a huge hug x

  • @calmrestored6031
    @calmrestored6031 3 місяці тому +2

    Swear away lovey. This sucks. Please speak to your medical team again to see if they can help at all or have any advice. In the meantime, continue to swear and letting it all out!

  • @JilSpangenberg-ys7fz
    @JilSpangenberg-ys7fz 3 місяці тому +4

    Hospice has meds that control pain; also helps with breathing; and even coughing. Call your local hospice. They will come see you- probably same day or next. They will provide you with meds, and things to help.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@JilSpangenberg-ys7fz Isn't hospice for people who are on their deathbed?

    • @JilSpangenberg-ys7fz
      @JilSpangenberg-ys7fz 3 місяці тому +1

      @@LivingOutLoud-LWS4C it's for those who have a terminal illness that may take their life in 6 months. But many people go on Hospice a year or more before. There is a lot more help from hospice than other palliative care options s,

  • @majcherj1
    @majcherj1 3 місяці тому +2

    You need something stronger than Tylenol. And Zofran for the nausea. Or have you tried marijuana? Go to the ER. You need a reevaluation of your meds overall. The leg pain isn’t going to get better. You’re not going to get less nauseous. What are you waiting for? Seriously. What’s stopping you from getting help? .

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@majcherj1 Actually, the leg pain IS getting better. So are the other symptoms. Crazy how that works, huh?
      To answer your questions, I'm waiting for the self-proclaimed experts who leave comments telling people going through difficult times what they should do. How else could I possibly figure out what is the right thing to do?

    • @majcherj1
      @majcherj1 3 місяці тому

      @@LivingOutLoud-LWS4C Yay!!!!!!! So glad to hear it.

  • @angelaf5040
    @angelaf5040 3 місяці тому +2

    They can change your pain meds and help the nausea. Honey please, call your doctor.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@angelaf5040 I ALWAYS keep my doctors up to o date on everything that happens.

  • @jillfoster760
    @jillfoster760 2 місяці тому +4

    I don't know much about your story, but I've been through Stage 3C Breast Cancer. Listening to this has all the alarm bells going off inside my head. Your pain IS NOT being controlled the way it should be! You are going to have to advocate for yourself and let your doctor know what's going on. You need to have enough pain meds on hand so you can stay on top of the pain. I'm not talking about Tylenol either! You should be given meds that are scheduled and others for the breakthrough pain. There is no reason you should be suffering this much. Also, there are antinausea meds that dissolve under the tongue in a matter of seconds and help so much. Please reach out to your doctor. One last thing, sleeping with a wedge pillow might make the breathing a bit easier during your long nights. Try to take care of yourself.

  • @joanbeach644
    @joanbeach644 3 місяці тому +6

    My friend I agree with a few people here. You may need some hospital time to sort things out. Praying for you. I wish you had help with you.
    ❤️🙏🏻🇺🇸

  • @mmmmlllljohn
    @mmmmlllljohn 3 місяці тому +6

    Hi Guillaume, I feel so badly for you. Instead of going to ER and waiting, call the specialist’s office and ask that he call you. Tell him that you can’t get a break between the pain, coughing, and throwing up. He can have a prescription sent to your pharmacy or I think he may want to admit you to hospital so they can give you oxygen and monitor pain meds to see what you need. This is craziness that you are going through all this. You need a break from the pain as this is not acceptable when it can be managed. I’m praying for better days ahead and I hope you will say a prayer too. May God bless and heal you my friend. ❤️🇨🇦🙏

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      Thanks 🙏. And don't worry, I keep my doctors up to date on everything that happens.

  • @ThomasMckain
    @ThomasMckain 3 місяці тому +3

    I know you are not going to like this but you need some professional help....
    You sound like you are teetering on the edge, dangerous place to be.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      What kind of professional help are you referring to?

    • @ThomasMckain
      @ThomasMckain 3 місяці тому

      What I saw on you video was someone in need of psychological counseling. I was happy to see you better on subsequent videos.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@ThomasMckain Things are definitely getting better.

  • @panmigacz3121
    @panmigacz3121 3 місяці тому +2

    You need some sort of hospice care from this point

  • @clarkbrady2786
    @clarkbrady2786 3 місяці тому +5

    I'm sorry it's so bad right now. I'm praying for you. Tylenol never works for me.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      Thanks for the prayers 🙏. And sorry to hear Tylenol doesn't work for you. It's worked quite well for me thus far.

  • @EmmaBakesCakes
    @EmmaBakesCakes 3 місяці тому +3

    Oh Guillaume this is the first time I’ve seen and heard you truly so poorly 😢it’s time to get some better pain medicine and nutrition through intravenous drip. Oh goodness I send you sincere thoughts of healing and love ❤

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      @@EmmaBakesCakes Thanks 🙏, but this was more therapeutic (a way to relieve pressure) than anything else. Things are better now. Not back to normal, but heading in the right direction.

    • @EmmaBakesCakes
      @EmmaBakesCakes 3 місяці тому

      @@LivingOutLoud-LWS4C glad to hear it. Take care xx

  • @blesseddc5093
    @blesseddc5093 3 місяці тому +3

    My friend, I hope you have put in place a plan for emergency help. Living alone, you might need someone to call for help or bring you to the hospital. Toughing it out will only weaken you. I think given your diagnosis they should give you something stronger for pain. Also , why is the leg that previously not in pain now ache? I would ask to have that checked.
    Waiting and hoping to see you better.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      @@blesseddc5093 Don't worry, I keep my doctors up to date on everything that goes on.

  • @aparrado
    @aparrado 3 місяці тому +2

    You should inquire with your doctors re dilaudid, I know people with this condition who find great comfort with it. They say it gave them the best sleep ever.

  • @JamesCaldecott
    @JamesCaldecott 3 місяці тому +6

    Keep fighting mate, I know you must be feeling terrible with this going on for 2 weeks, however just know you had a TON of people cheering you. Having a bad day is absolutely fine, like you said give up, get up and go again. Huge love brother.

  • @fawnnahh7438
    @fawnnahh7438 3 місяці тому +2

    I'm not good with words, so I won't use a vapid cliché phrase that you've probably heard a million times before and are (rightfully) tired of hearing. Life sucks. Here's some cash.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      I hope you don't take offense to this, but what you said made me laugh: "Lif sucks. Here's some cash." 🤣
      I want you to know how much I appreciate your kind gesture and equally kind words. Thanks 🙏.

  • @sandymclean9630
    @sandymclean9630 3 місяці тому +2

    pardon me if youre not interested in this 🙏🏾
    but some people some ppl sign onto palliative .. thru dr or medical .. because - they - can give a level of pain relief ya ? and its not the end its just a decent amount of relief and help id think ? in the circumstances ?
    who is it helping if youre in agony and choking & crying .. and im sincerely sorry that you feel so rotten 🙏🏾🙏🏾 it sucks ---
    caring from
    new zealand 🌵🌵

    • @sandymclean9630
      @sandymclean9630 3 місяці тому +1

      RESPECT YOUR STRENGTH SO MUCH

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      I appreciate your suggestion. You're definitely not the first person to mention it. I just have no idea how it works.

  • @patriciajoyner9871
    @patriciajoyner9871 3 місяці тому +2

    You can be on hospice and always discharge or graduate off.

  • @sassykatg4112
    @sassykatg4112 3 місяці тому +2

    Try Jared baby food. The fruit ones are pretty yummy,especially the banana. Hopefully you can keep those down.

  • @eugene54547
    @eugene54547 3 місяці тому +2

    Guillaume, you need palliative care. Even if you live the next 20 years, you need help now. That’s what it’s there for. You should be a lot more comfortable to be able to focus on healing. You won’t heal doing this.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@eugene54547 Isn't palliative care for people who are on their deathbed?

    • @eugene54547
      @eugene54547 3 місяці тому +2

      @@LivingOutLoud-LWS4C no Guillaume. You have a chronic, serious disease . Palliative care is there to minimise pain and anxiety.

    • @mandyauger1035
      @mandyauger1035 3 місяці тому +1

      @LivingOutLoud-LWS4C palliative is not deathbed. It's for anyone living with a chronic health problem. There are services to help you live a more comfortable and better life based on your needs. People really mix palliative and hospice up. My mom is palliative, but she doesn't have cancer. I take care of her, and she suffers from chronic health problems. I have services that come into help. It's to make your life better , not for dying. She has meals delivered, PSW, physio coming in, nurse to check on her blood pressure. It's so she doesn't have to go to the hospital. Its like at home care for people with any disabilities that interrupt their regular activities or quality of life. They even come to take her blood. Talk to a palliative care team. There is usually a pain management team attached to that as well. Here in Ontario, it's called Champlain. Due to you already having a diagnosis and cancer, you qualify 100%. Save your energy and get meals sent. We even saw a free nutritionalist. Heart to homes is even free meals . Also, ask your doctor about Para transpo... yes , I'm giving advice because I really really care. Xxx💙

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@mandyauger1035 Thanks for the detailed explanation 🙏. I appreciate it.

  • @rhondadesrochers4679
    @rhondadesrochers4679 3 місяці тому +2

    Go to hospital for pain control and stabilize your cough and shortness of breathe. Plus they can tx your nausea. Prayrrs to you.

  • @stefanhortell4046
    @stefanhortell4046 3 місяці тому +3

    Opiates helps with pain,coffing,sleep and are a bit moodlifting. Just take em!

    • @travels129
      @travels129 3 місяці тому

      Not sure if ENDONE HELP THIS KIND OF PAIN???

    • @stefanhortell4046
      @stefanhortell4046 3 місяці тому

      @@travels129 dont know what ”endone” is.

  • @frankjamesbonarrigo7162
    @frankjamesbonarrigo7162 3 місяці тому +3

    Tylenol? Are they so opiate phobic now that they don't give proper pain meds to cancer victims?

    • @bmdjk
      @bmdjk 3 місяці тому +1

      It seems so. How horrible is that ?

    • @KoalaBeer.
      @KoalaBeer. 3 місяці тому +1

      No they do ..well here they do

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      It's not that. It's that a lot of pain meds interference with treatments or other meds I'm taking. Tylenol is one of my only options.

    • @bmdjk
      @bmdjk 3 місяці тому

      @@LivingOutLoud-LWS4C Tylenol is one of the worst for your liver,and not to take too many. You need opidoids or Oxynorm as first solution they are less dangerous than Tylenol in your situation.

  • @janevanreenen8768
    @janevanreenen8768 3 місяці тому +5

    Where is your wife?

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      @@janevanreenen8768 In Nicaragua. We're still waiting for things to open up on the immigration front. Hopefully it will be soon.

    • @janevanreenen8768
      @janevanreenen8768 3 місяці тому

      @@LivingOutLoud-LWS4C I hope and pray it happens soon✨

  • @hyper_on_rr8623
    @hyper_on_rr8623 3 місяці тому +2

    Benedryl can help with that "nausea" feeling. I have a nausea condition and it helps me. Maybe it's something you can try. I take 50mg (two pills)

  • @angelaf5040
    @angelaf5040 3 місяці тому +2

    Please go to ER.

  • @nesadcruz7840
    @nesadcruz7840 3 місяці тому +4

    Am really 😢 for you. Do you have any appointments in the coming week? If you do , tell them it is too hard to manage. That you need help with the symptoms. A short hospital stay might be in order to give you some relief. It isnt about pushing yourself to your limit. That isnt going to help you, it will only wear you down.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      @@nesadcruz7840 Thanks 🙏, but this video was more about catharsis. Things are better now.

  • @Marilynharrismills
    @Marilynharrismills 3 місяці тому +2

    Why won't you go to the hospital?

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      Because I will have to spend the entire day in the ER for them to tell me "Go home and take pain pills as needed."

    • @travels129
      @travels129 3 місяці тому +1

      ​@@LivingOutLoud-LWS4Cyea iv lied in ER all night just laying there lights on causes anxiety makes things worse and nobody paying attention but your in pain they would attend to it immediately

  • @julieseattle
    @julieseattle 3 місяці тому +4

    Please get that pain under control- a pain management team can really assist! Not tolerating food is a reason to be admitted to the hospital.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      Oh, I have plenty of "good" reasons to be admitted. It's just not something I'm interested in. I've spent enough time in hospitals to know when it's best to be home and whan it's best to be in the hospital.

  • @ericahalmai8490
    @ericahalmai8490 3 місяці тому +2

    Please go to ER & get some help 😢 , I wish you all the best 🙏🍀🇦🇺

  • @JilSpangenberg-ys7fz
    @JilSpangenberg-ys7fz 3 місяці тому +3

    I get where you are coming from- for whatever it's worth. I told my home healthcare social worker that I wish AZ had passed that death with dignity law so I could end this sooner. I get it. Every day brings even more. You just throw your hands up and holler "STOP IT!!!

  • @maryann823
    @maryann823 3 місяці тому +2

    Take pain meds, there is no reason not to and all the reasons why you should.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      Who said I wasn't?

    • @maryann823
      @maryann823 3 місяці тому

      For some reason I thought you were against taking meds. My bad. I’m glad to hear you are. I hope for better days ahead for you. I pray for healing. I pray for your wife to be by your side.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@maryann823 Medication definitely isn't my first choice, but I do what I have to do. Thanks for your kind words 🙏.

  • @pierrettehebert3044
    @pierrettehebert3044 3 місяці тому +4

    I know how you feel. I too have cancer. Last night my back pain was unbearable. It’s been that way for 2 months. I also have constant low grade nausea. I too am due for a break. Today I ‘gave up’ & resigned myself to doing nothing but coping. Tomorrow is a new day and hopefully a reprieve for us. Recommend relax, try not thinking too much, pain meds & rest. If nothing else, I’ll be in better shape emotionally tomorrow to deal with it. You’re hopefully not giving up…just taking a much needed rest

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      @@pierrettehebert3044 I'm sorry you're going through that. I hope things get better for you soon. You deserve a break.

  • @Sandra-pm3it
    @Sandra-pm3it 3 місяці тому +2

    Please ask your dr about Palliative Care. They will help you with pain.

  • @isaacnewt8771
    @isaacnewt8771 3 місяці тому +2

    Have you ever heard of Wim Hoff breathing technique? It would help me in times of lung restriction. Have you heard of the Budwig protocol? I feel like it oxygenated my body and helped me get my weight up. Best of luck to you.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +1

      I LOVE Wim Hoff. Unfortunately, the coughing gets triggered whenever I take deep breaths, so that currently prohibits me from using the Wim Hoff Method. But I really appreciate the suggestion 🙏.

  • @positivelastaction3957
    @positivelastaction3957 3 місяці тому +6

    I am so sorry to see you in this much pain. We are all with you brother. 💌

  • @bettybernier9703
    @bettybernier9703 3 місяці тому +2

    You need better pain management!!
    Talk to your doc about that ASAP! Maybe he can refer you to a pain management team.
    I'm sure there are better ways to deal with this. Stop being a tough guy!!

  • @DirlingSwervish
    @DirlingSwervish 3 місяці тому +4

    I don't know enough about cancer to know if you need a hospital right now, but what I do know is that when we feel poorly we don't always know what we need. It's hard to see the forest for the trees kind of thing. It would be worth it to consider the advice you've gotten here. Also, I'm proud of you for posting this vulnerable video.

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      I appreciate it, but I will always do what feels right no matter what others say. If I listened to what others say, I would be in the hospital right now... but I would also have given up and I'd be waiting for death. So, although I really appreciate your concern, I don't regret not going to the ER.

  • @laural1165
    @laural1165 2 місяці тому +1

    Get pain management! I hope you’ve gotten help. I know this video is old. I hope you’re better. Get your Dr to manage your symptoms!!!!!!!!!

  • @jillmiller1705
    @jillmiller1705 Місяць тому +1

    Roman’s 10:9 💗
    If you profess by mouth Jesus is Lord and believe God raised Jesus from the dead, you will be saved ❤

  • @Nope-NotToday
    @Nope-NotToday 2 місяці тому +1

    I just found your channel. Please please please to the ER, that breathing is serious, you need oxigen and maybe antibiotics. You could have a massive phenomia. Going on like that you will become terrible weak. Just my 2 cents❤

  • @donnalee1986
    @donnalee1986 3 місяці тому +7

    Please, reach out to “God”. You have nothing to lose but everything to gain.

    • @kathleenmoore9534
      @kathleenmoore9534 3 місяці тому +4

      donnalee1986. I told him about the Lord. He didn't want to hear it, so I respected his wishes and don't comment anymore. BUT....... I planted a seed, and still pray for him. You do the same. I ask God to take it up.

    • @suesmith3744
      @suesmith3744 3 місяці тому +3

      @@kathleenmoore9534. Thank you Kathleen 🙏🏻

    • @kathleenmoore9534
      @kathleenmoore9534 3 місяці тому

      @@suesmith3744 ♥️

  • @Luvlacegrl
    @Luvlacegrl 3 місяці тому +2

    Please contact Hospice. If you have cancer that has no cure, you qualify. They will provide pain relief, oxygen, comfort care. Please, please, please call them! No one should live this way! I’m so sorry to see you go through this. 😞

    • @Luvlacegrl
      @Luvlacegrl 3 місяці тому +1

      @@KS-yp1jl I did not know this. He needs to start seeing a pain specialist then. Poor guy. 😞

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому

      I have no idea how that works, but I always assumed it was for people who were on their deathbed.

  • @DeeDee-co3lx
    @DeeDee-co3lx 3 місяці тому +6

    Never give up fight life my dad had stage 4lung cancer its five years since we found out and hes still here please go to the hospital and get help you got this stay strong

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +3

      Sorry to hear about your dad, but in glad to hear he's still here 5 years later. That's awesome!

    • @DeeDee-co3lx
      @DeeDee-co3lx 3 місяці тому

      @@LivingOutLoud-LWS4C glad that your hear too so how are you

    • @DeeDee-co3lx
      @DeeDee-co3lx 3 місяці тому +1

      I'm fine how are you how have you been feeling

    • @LivingOutLoud-LWS4C
      @LivingOutLoud-LWS4C  3 місяці тому +2

      @@DeeDee-co3lx Better. Things are slowly getting better. Thanks for asking 🙏.

    • @DeeDee-co3lx
      @DeeDee-co3lx 3 місяці тому +2

      @@LivingOutLoud-LWS4C your welcome I was touched by. Your video and I know how you feel cause I've been there with my dad I have twin daughters and two years ago my family got the worst news ever she has a pulitary hormone tumor it's no cancerous but still so horrible and hurtful for our family and with medicine and her Dr taking care of her she'll be ok so I also surport and donate to help out do you accept any donations please let me know I'll send something to help you out I do it for a lot of ppl well stay blessed and thanks for texting back have a good day