How I Got Sarcoma - Brandie | Stage 4 Leiomyosarcoma | The Patient Story

Поділитися
Вставка
  • Опубліковано 6 лют 2025
  • Brandie always had painful menstrual periods and a family history of fibroids and endometriosis, but her symptoms eventually got must worse! She then underwent ovary removal surgery and an elective hysterectomy. She then learned she had leiomyosarcoma, a rare cancer of the smooth muscle.
    Leiomyosarcoma is a rare, aggressive cancer that grows in the smooth muscles, like those found in your stomach, bladder, uterus, intestines and blood vessels.
    #cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #leiomyosarcomadiagnosis #rarecancer #stage4cancer #radiationtreatment #cancersymptoms #sarcoma #cancervlog
    The Patient Story:
    The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
    Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
    Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
    Full story & transcript → thepatientstor...
    The interview has only been edited for clarity.
    Join Our Community:
    Sign up for our FREE website: thepatientstor...
    Facebook: / thepatientstory
    Instagram: / thepatientstory
    Twitter: / patient_story
    Tik Tok: / patientstory
    How I Got Sarcoma - Brandie | Stage 4 Leiomyosarcoma | The Patient Story
    • How I Got Sarcoma - Br...

КОМЕНТАРІ • 620

  • @markg1531
    @markg1531 11 місяців тому +66

    You are a brave kid. God bless you! I had a sarcoma tumor removed from my armpit in 1988 and I’m still here: ) My life changed completely. I appreciate God and my wife and my life and the smallest things so much more. Life is a miracle and a wonderful gift from God. Enjoy!

    • @andrathomas9728
      @andrathomas9728 11 місяців тому +5

      ❤🙏🏿🙏🏿🙏🏿

    • @purpleviolet2058
      @purpleviolet2058 10 місяців тому +3

      💜

    • @PatriciaAShelton-no6cq
      @PatriciaAShelton-no6cq 4 місяці тому +1

      Amen; I am post 3weeks amputation due to leiomyosarcoma on ankle. I'm thru with it all. This year nothing but Dr's. Hopefully I can get fitted with a prosthetic. But as far as cancer goes. Not going back. If it comes back somewhere so be it. There was nothing anywhere in my body right before surgery. Gonna live my life until I can't.

    • @markg1531
      @markg1531 3 місяці тому

      @@PatriciaAShelton-no6cq Please consider listening to Thomas Seyfried yt videos about cancer as a metabolic disease. His approach and a carnivore diet could prevent it from recurring. This is serious science, not some miracle cure.

  • @dabawenya25
    @dabawenya25 11 місяців тому +124

    Hi Brandie, I am a Nurse from Australia and was also diagnosed with a rare Sarcoma last November year of 2023.
    I am still going through Chemo sessions. ( Doxu) I am Inoperable as it metastasized to my lungs. I only had 1 Radiation. I surrender all to God as I find this cancer overwhelming. Your story inspired me to keep fighting. I know you have too much on your plate but would love to keep in touch once in a while to see where you're at. Let's continue to fight this Brandie😘🥰😍

    • @lesleymaclennan7899
      @lesleymaclennan7899 11 місяців тому +4

      🙏🤍🙏

    • @fifilafleur5555
      @fifilafleur5555 10 місяців тому +2

      Sending good wishes & prayers… 🙏🏻🙏🏻🙏🏻

    • @manmansikla
      @manmansikla 10 місяців тому +2

      🙏🏻🙏🏻🙏🏻

    • @TrishaPoeta
      @TrishaPoeta 10 місяців тому +1

      🙏🙏🙏

    • @TrishaPoeta
      @TrishaPoeta 10 місяців тому +1

      Keep me posted I'm a heme/ONC nurse

  • @ae2948
    @ae2948 Рік тому +262

    All that shit happened to you in just ONE year. And already you're reaching out and helping strangers with this kick ass talk? You're amazing. And THANK YOU. May you find welcome at every place you travel.

    • @KenIvywood
      @KenIvywood 11 місяців тому +8

      You are an amazing person. You are so special to share this with others. Thank you.❤

    • @ingeborgswieten3710
      @ingeborgswieten3710 10 місяців тому +3

      Yes indeed!💪

    • @tompainter4507
      @tompainter4507 7 місяців тому

      N n. N q n. N n nNn n. Nvb bv b b be. B b. B b b. B N. Nn n n. N nn. N n b N BEV v. N n b nbvbbbn vvvbnnvvvñ vnvbnnvvvvn n. N non n n. Nn. Nn. N n. Nn. Nn. Nn n. N n man m n kn' n; Nn n. No Nn. Nn n

  • @cindyingram4072
    @cindyingram4072 10 місяців тому +142

    My sister would be 68 now. She was diagnosed with this and a second form of cancer at 36. She was told six weeks, six months maybe one year. She lived cancer free for 22 more years!!! ❤

    • @lesleymaclennan7899
      @lesleymaclennan7899 10 місяців тому +9

      So delighted to hear that 🤍🙏🤍

    • @taopaille-paille4992
      @taopaille-paille4992 8 місяців тому +2

      how come go from one year to 22 ? you provide no detail

    • @Bujji0423
      @Bujji0423 6 місяців тому +4

      Can you please provide her treatment plan and what helped her to keep going? I am sure this information would help lot of us..thanks

    • @loveSparklesonU
      @loveSparklesonU 6 місяців тому

      ​@@Bujji0423 I used 10% iodine on mine nightly before bed. This is like my 3 rd cancer the 1st was nail cancer was so scared I kept pouring iodine over my whole hand for 3 months. Last time I was to confident for symptoms of ovarian cancer scan was in one month so I went 7 days on 7 days off then another 3 days and stopped before scan all symptoms were gone scan came back clean.that was 9 months ago. Symptoms are back bleeding at age 54 bloating pain. My insurance was dropped so having a hard time just getting a diagnosis. But once I do I will start with applying iodine into my V. Nightly before bed doing a enema with some in water and applying from breast down to groin,also doing a oral dose of potassium iodine. There's research on the NIH website about molecular iodine kills cancer but I have talked to others and myself have to use different types of iodine so I would say all iodine cures cancer just has to be strong enough and long enough on you. I slow taking it if I get a racing heart. Lay off a few days and start again. This time I will go the 3 months. And then I will start keeping 500mcg iodine in my body daily. They lowered the recommended amount from 500 micrograms to 150 micrograms daily and they took most of it out of salt. So we are all getting cancer. Their plan is to end us. Even our children. So eggs eggs eggs seaweed anything we can to get in the recommended amount from 1924. And salt lots of salt we need it.

    • @taopaille-paille4992
      @taopaille-paille4992 6 місяців тому +2

      @@Bujji0423 She is likely trolling, like lots of people claiming miracle healings by typing 5 lines on UA-cam's comment sections ,with an heart or flower emoji at the end. The common pattern is no information at all. That's manipulation

  • @michelles9897
    @michelles9897 Рік тому +194

    💟 Brandie you are a natural at public speaking . Thank you for sharing.

    • @WeezerPort
      @WeezerPort 11 місяців тому +3

      Sounds like you have had good care, all in all! I have entered into this mad race to survive! My Leiomyosarcoma is attached to the top of my left femoral artery! Inoperable, because of all of the veins, arteries, and other vital organs in the area! I had radiation first! I did get a second opinion at MD Anderson, hoping they could recommend or have someone on board who would know how to treat this beast! My current worry is the metastasis to the liver! Did not shrink with radiation or chemo? So, I guess we go back to the drawing board to look at other options? Take care my dear, I will keep you in my prayers! Keep in touch if you can rest is best! Keep hydrated! Be good to yourself!

  • @dv3498
    @dv3498 Рік тому +245

    Brandi, I’m praying for you. 23 years ago my mother fought this. They had no idea what to do other than surgery. Hers started on the uterus too. Back then everything was experimental. I hope in some way her treatments gave doctors new insight of what to do. She had been exposed to chemicals that are banned now. We lived on a farm and our fields were sprayed with different herbicides. I’m sure that had something to do with it. I’m praying that your cancer is kept at bay and new treatments become available. May God watch over you and your life.

    • @Amandaaaaaa123
      @Amandaaaaaa123 Рік тому +4

      Sorry to hear this. My condolences. If I may ask, what are the harmful substances? Is it still present in non-organic food nowadays?❤

    • @angelbasham6631
      @angelbasham6631 Рік тому

      🙏

    • @michellefrench6617
      @michellefrench6617 11 місяців тому +7

      My mother fought this 5 years ago. For our moms💜💜and for Brandi 💜

    • @Bsra8691
      @Bsra8691 11 місяців тому +8

      My grandmother also had leiomyosarcoma (spelling ?).Hers was found on stomach. She lived in Oakridge, Tennessee for some time. My mother and her sister also had rare cancers as well. ❤️🙏 for you! Stay positive and strong!

    • @michellefrench6617
      @michellefrench6617 11 місяців тому

      @@Bsra8691 My mom had Retroperotoneal Leiomyosarcoma

  • @Lionforaday
    @Lionforaday 11 місяців тому +28

    Brandi's story is so sadly common - we want to believe the person in charge of our care is giving the best advice possible, and it may not be true. You know who saved Brandi's life? She did. Here she is, recovering from surgery and multiple rounds of chemotherapy - and she's also having to research better options. And no one wants to hear that - because it's terrifying.
    I'm not sure I would have had the strength to go through all this extraordinary woman has. And many people would have stopped long before she did, and died, never knowing there were better options. This woman's ability to smile & laugh and look forward to "girls' trips" while still acknowledging the many disabilities she has - and addressing the reality of check-up anxiety - is truly inspiring.

  • @lovespirit888
    @lovespirit888 10 місяців тому +12

    I lost my Mom to this cancer 13 years ago. She lived 1 year fr diagnosis. Miss her. You are beautiful and strong. Keep fighting ❤️🌺🙏

  • @adelehagen7684
    @adelehagen7684 Рік тому +93

    Dear precious lady, you are a courageous warrior. My heart and prayers are with you.

    • @sandradalessandro2935
      @sandradalessandro2935 10 місяців тому +2

      Yes. I. Agree. A. True warrior. Cancer. Has no chance. She will win!!!♥️🌷🌺🌺🙏🏻. Amen

  • @LadyS3268
    @LadyS3268 11 місяців тому +45

    I was scrolling through you tube and your video showed up. Thank you for sharing your story. I was diagnosed with stage 2a Leiomyosarmo in 2013. I had a 5 centimeter mass in my ascending colon. I was blessed to have an amazing colorectal surgeon who removed it along with the entire length of my ascending colon. I did 5 weeks of radiation. I did not have to do chemo, my oncologist said it was not responsive to it. I just passed my 10 yr mark of being cancer free last October.

    • @ThePatientStory
      @ThePatientStory  11 місяців тому +2

      Thank you so much for sharing. Would you be interested in sharing your story on our platform? If so, are you able to fill out our intro survey: thepatientstory.com/share-your-story/

    • @PatriciaAShelton-no6cq
      @PatriciaAShelton-no6cq 8 місяців тому

      Great to hear thar people do survive this cancer. I have leiomyosarcoma in my left ankle. Amputation was recommended but I just couldn't knowing thar would not guarantee anything. So I chose limb sparing surgery instead. Radiation I took for almost 5 weeks, the last 4 I couldn't take anymore. The pain was unbearable. Third degree radiation burns. I talk to the oncologist Friday. Of they wanted me to continue they could have helped with the pain but I was told go to ER. I feel a failure, but that area is so thin I probably got more than enough. The tumor is right below the surface. After surgery to remove the tumor,trying to get a clear margin, I will have a plastic surgeon to reconstruct my ankle right after. Don't know how long this surgery will take. 😢

    • @yellowrose1222
      @yellowrose1222 2 місяці тому

      They put her through chemo knowing that sarcoma doesn't respond to it just to double in size everything. Lord help those patients who trust their doctors so easily.

  • @dlennington8187
    @dlennington8187 11 місяців тому +56

    My sarcoma was treated at Northwestern Medicine in Chicago. I was first told the tumor was too large to remove. My surgeon, Dr. Chawla was a sarcoma specialist. I was treated with proton radiation in order to shrink the tumor for surgical removal and it was successful. It made hash of my bladder too. In fact, in many ways the radiation damage has lasted almost a year. I'm thankful that you made it through your journey. I just celebrated my one year after surgery and tests showed no more cancer so far.

  • @richardsimms251
    @richardsimms251 11 місяців тому +12

    She is a very optimistic personality. She is an excellent health care consumer. She is so positive too.
    RS, MD FRCS

  • @janeb305
    @janeb305 11 місяців тому +26

    Fascinating. Humane. Inspirational. What a brilliant communicator she is. ❤❤❤❤❤

  • @mamacampbell
    @mamacampbell 11 місяців тому +60

    Brandie, thank you for this video - raising awareness for this very rare and aggressive sarcoma cancer. I am currently fighting stage IV non-uterine pelvic Leiomyosarcoma. I was diagnosed in November 2022, 8 months after my then-husband left our kids and I. Had surgery, did 33 radiation sessions and am currently a part of the doxorubicin/lurbectedin trial at the Sarcoma Oncology Center in Santa Monica with Dr. Chawla. Due to disease progression I am no longer able to be a part of the trial and am meeting with my medical team next week to discuss next steps. Prayers to you, Brandie! 🙏🏼

    • @lovesJesus448
      @lovesJesus448 11 місяців тому +11

      Many people getting cancer from the shot...it lowered our immune system...praying for you❤hey everybody please ask Jesus into your heart today while you still have time ❤

    • @Rayman30
      @Rayman30 11 місяців тому

      ​@@lovesJesus448 🤡

    • @Nanna-Lesley
      @Nanna-Lesley 11 місяців тому +4

      Praying 🙏 for you ❤

    • @Rayman30
      @Rayman30 11 місяців тому

      @@lovesJesus448🤡

    • @Rayman30
      @Rayman30 11 місяців тому +1

      @@lovesJesus448 Many people getting cancer from Jesus, please ask the shot into your heart amen 🙏 ❤️ 🤡

  • @jude4247
    @jude4247 11 місяців тому +39

    I was diagnosed with leiomyosarcoma in Sept. 2019. I had a lump in my leg for 5 years prior. My PCP told me it was a fatty cyst and not worry about it. When I switched PCPs she took me more seriously and turns out it was cancer. Thankfully it was low grade. Surgery was the only treatment it needed. My heart goes out to you. I am always afraid it will reappear. Stay strong and great that you are your own advocate. It pays to knows your own body and when something isn't normal.

    • @crystaljackson0120
      @crystaljackson0120 11 місяців тому +4

      Hi! I too have this lump on my calf, have had ultrasounds for this and nothing shows up. The area has decreased sensation. May I ask if u had any symptoms other than the lump and how it was diagnosed?

    • @jude4247
      @jude4247 11 місяців тому +7

      @@crystaljackson0120 Of course. I had no symptoms other than the lump prior to all the testing. From the initial xray thru to ultra sound to MRI mine was showing on testing and odd enough I guess for them to want further testing. They finally did a biopsy after the MRI and that is when they said it was a low grade sarcoma. It was surgically removed and that has caused loss of sensation somewhat. The scary part is that my initial PCP told me it was nothing to worry about. I went for like 5 years before getting a 2nd opinion. My mom died at 60 from non Hodgkins lymphoma which started as a lump on her neck. So of course that makes me somewhat hyper vigilant. But I trusted my PcP at the time. Besides just wanting to believe it was nothing. Luckily mine was low grade and surgery got it all. I have to go yearly and get checked though for reoccurence. My advise would be you know your body best and if something doesn't feel right or normal, be an advocate and seek to find closure if you can. Your life may depend on it. Take care!

  • @kathyarnusch7614
    @kathyarnusch7614 7 місяців тому +9

    Our neighbour growing up had colon cancer operation in late 1950’s. She ended up with a colostomy bag, which she successfully lived with for over thirty years. She lived to be late 70’s. Long life.

  • @TaraRutledge-n3f
    @TaraRutledge-n3f Рік тому +53

    Brandie, thank you for sharing. I just completed 18 months of treatment for a large metastatic leiomyosarcoma on my spine and a large Chianti carcinoma in my liver. I too have a femoral nerve injury. You have been so much more than I have. You have an amazing attitude. I noticed a BD logo behind you in one of your photos. I worked for BD for several years. We have a lot in common. Take care Brandie…I’ll be thinking of you!

  • @BC1984-f7m
    @BC1984-f7m 6 місяців тому +19

    You’re doing great work. Thank you for being an inspiration. I turned 40 and got clear scans the same day. I’ve been telling folks I lost the thigh to a shark…cancers just too scary of a story.
    UCSF Sarcoma Center, Stage 2 LMS, grade 3. Spent my life as a commercial fisherman in AK then a wildland firefighter in CO. Turns out I never met a real bad asses until now.
    Thank you for being a nurse. Thank you for leading by example. Thank you for trying to help the rest of us get through the confusing mess. With any luck our paths will cross.

    • @PatriciaAShelton-no6cq
      @PatriciaAShelton-no6cq 4 місяці тому +2

      Lost my leg 3 weeks ago after several months of radiation and tests. Had a tumor in my ankle. It was LMS. Tried reconstruction surgery but it failed. But all is good. Getting around in my wheelchair already got a ramp. Not going back for any more scans . I'm thru. Maybe a prosthetic in a few months. Gonna live my life until I can't. Life being cut on,and in treatment centers, more surgery. No! I'm too old. I want to live the best life I can for now. It's hard when you have to depend on others for everything. A month of that did it for me. I had no one but my son who tried he really did. Still takes me to Dr appointments, until I can drive. I just can't get wheelchair in an out of car. But I can cook. Thank God I can make my own coffee and cook.

  • @casperasthebest
    @casperasthebest 8 місяців тому +12

    I had Leiomyasarcomas in my blather when i was twenty seven years old. Back than they had no treatment for it, i was lucky that they could remove them. Im fifty six now, so do t give up!

  • @badge2045
    @badge2045 11 місяців тому +10

    Hi honey. I've been following a girl from UK who had,a very radical cancer surgery. Her name is Tiffany thinks. She's on you tube. Many similarities. I pray for her and I will have u in my prayers also. God bless u. I am also a 3x cancer survivor. God is great

  • @jacccaro
    @jacccaro 11 місяців тому +19

    Brandie, you are a warrior and a survivor. May God continue to watch over you. 🕊🙏🏻💫💞

  • @Stanley_Furley
    @Stanley_Furley 11 місяців тому +10

    Wow! What a strong, honest and articulate woman.❤

  • @carolbradley4845
    @carolbradley4845 Рік тому +27

    Bless your heart! I know it’s hard. My husband was diagnosed with Chondro sarcoma. It attacks cartridge. His was in his larynx and you are right it doesn’t respond to chemo or radiation. He was at MD Anderson and his cancer kept coming back and they kept doing surgery but finally had to remove his larynx. So he breathes through a hole in his neck. It still came back (they assured him it wouldn’t). So he had radiation and, as you well know, that’s the gift that keeps on giving. My complaint would be they just don’t tell you everything. You have to find out later that there will always be a repercussion for that procedure. The good news is he is still with us and he has a great attitude toward life. His journey started in 2016. I wish you the very best. Hang in there! Love from Texas ❤

  • @blueraven2345
    @blueraven2345 11 місяців тому +14

    Omg, what a nightmare, but I am so happy for you that you came through it and are now clear. I know exactly what you’re talking about when you describe your anxiety waiting for your scan results, it is excruciating .You look amazing, by the way, super healthy.

  • @brooks6348
    @brooks6348 Рік тому +37

    I’m so sorry that you have to go through all this! My take away is that you must go to someone who specializes in your cancer. Also, get several opinions. Praying that you stay well and continue to get wonderful care.

  • @randivester6949
    @randivester6949 Рік тому +15

    You, my dear, are a gladiator. What a strong, beautiful person you are. Your laughter in between the painful explanation of what you lived through made me smile. But it's your spirit that makes you phenomenal. Take good care, and thank you for showing us what grace and courage look like in real-time.

  • @Bennyeca
    @Bennyeca Рік тому +128

    I heard City of Hope and immediately thought of Jenny Apple❤

  • @tayway639
    @tayway639 7 місяців тому +9

    Thank you for sharing your story. I was diagnosed with Stage 4 leiomyosarcoma. Still navigating the stages of getting second opinions. This was very reassuring.

    • @bonamline59
      @bonamline59 Місяць тому +1

      I’m praying for you and would like to know more about your story

  • @yeahsooo
    @yeahsooo 3 місяці тому +5

    Your story is an incredible story. I for one could not go through the treatments as you have once. I did one bout of radiation and my cancer didn't change because sarcoma is a buzzard of a cancer. I decided I would prefer. Do not be sick going through treatments that were never going to work. The cancers on my bonesit's in my spine. I have 7 lesions in my lungs. This is very hard. I'm struggling this week. It hit me like a freight train and I felt I was losing my mind. But then on the 4th day I was able to breathe again. My family is lacking. I don't think they fully understandpartly denial. Partly uneducated I can't beg people to be here with me. I think because I put on a brave face. They don't see the cancerbecause I don't want to walk around sad and crying all the time. I keep that part to myself. Cause I don't wanna be a burdenbut like I said, 3 days ago I lost it. But I am back ontract. I don't want this cancer to take my smile. My happy-go-lucky attitude.
    I am going to stay happy. Go lucky.
    I don't want. To be down
    Trodden, Put mostly I don't wanna die alone

    • @bonamline59
      @bonamline59 Місяць тому

      God is always with you you’re never alone

  • @ny_njtrailrunnert926
    @ny_njtrailrunnert926 Рік тому +60

    If someone has a rare or difficult to treat cancer, it is absolutely critical that they go to a cancer center . Surgical oncologists and medical oncologists will not turn away Business and will try to treat you. I am an oncology nurse at a cancer hospital and it’s so difficult to try to clean up another hospitals failed treatments. it seems that a person is in their best position to go into remission when they have not been previously treated because their body is in the best shape to fight, the kidneys, liver function lungs and heart are performing at their best.

    • @deva190
      @deva190 11 місяців тому +6

      I started off at a well known cancer center and experienced the following: (1) Doctor never ordered the follow up biopsy so that he could create a custom chemo for me. (2) Doctor never wrote a scrip for necessary lab work need before a biopsy and never told me I needed a script. (3) Navigation nurse never returned an important call. I went for a second opinion. The new oncologist obtained my records and said she would give the same treatment as he indicated in his records. (4) By the time the first center called me for treatment ...6 weeks later...I had already had two treatments with the new oncologist. I'm sure cancer centers do good work but for some reason it was not for me.

    • @ny_njtrailrunnert926
      @ny_njtrailrunnert926 11 місяців тому +9

      @@deva190 so sorry to hear that. I have been an oncology nurse at a cancer center for 15 years, and worked in cancer care at regular hospitals also. Mistakes are happening everywhere because insurance reimbursements and payment for pharmaceutical treatments are driving care. Both are requiring doctors and hospitals to see as many patients as possible and turn them over as quickly as possible. When people tell me how much they love being treated at my cancer hospital., I thank them but also say mistakes can and will be made, and I hope it doesn’t happen here, but we try our best and our heart is in the care we give. People who work at my hospital select cancer as their specialty and want to take care of these types of patients. I feel like That makes a positive impact. This broken healthcare system does not allow us (Drs, Pa’s, Np’s, nurses, etc) to succeed to the best of our ability. We are frustrated and exhausted by having more patients than we can properly take care of. This sounds like what you experienced. Likely not intentional neglect, just a result of a terrible system We are trying to navigate.

    • @B6east
      @B6east 11 місяців тому +11

      You are quite the amazing young woman, Brandi : Beautiful, courageous, resilient, and SO rational ! I am a retired RN and recognize all these diagnoses and treatments but wasn’t an oncology nurse and have never known anyone with leiomyosarcoma. What a journey you’re still on. You have a beautiful outlook - we just have to live each day with appreciation and take nothing for granted.
      Thank you for helping me understand what my husband goes through each time he gets the tumor markers drawn (he has a very aggressive type of prostate CA) - the cycle of relief, then limbo for a bit until the fear and uncertainty of the next draw.
      Brandi you have my best wishes, my admiration and respect. You are a fierce warrior!

    • @SheemaSengupta
      @SheemaSengupta 27 днів тому +1

      I m in Canada. I have same cancer. But all doctor together told I m only six months lives. I pray for God and my oncologist try his best. I m now almost two year. My chemo still running and one time radiation. Chemo now 14 months. I hope one-day I will be ok. Just pray for me

    • @SheemaSengupta
      @SheemaSengupta 27 днів тому

      I hope you will be ok soon.

  • @CarolePronti-dy1hs
    @CarolePronti-dy1hs 11 місяців тому +10

    I am so impressed with you. I am much older than you and have lived a good life but developed a uterine sarcoma in 2017. MSK was my hospital and I had a wonderful team. 3 tumors, so stage 3 I think, although my dr didn’t want to tell me that. Chemo. Red devil and olaratomab, surgery and then radiation. But I’m more than 5 yrs out now. So if an old gal like me can get through this. you sure can too. You are so optimistic and you should be. Stay strong young lady.

    • @Bujji0423
      @Bujji0423 6 місяців тому

      What were your symptoms? Did you have hysterectomy?

  • @yvonnepeirce1467
    @yvonnepeirce1467 11 місяців тому +14

    You are such a strong, positive person. Totally amazing. Keep up the fight. Prayers for you. May God bless you.

  • @Beepinsqueekin
    @Beepinsqueekin Рік тому +32

    I'm so grateful that you kept looking for the right doctors. Wishing you the very best! My 22 year old grandson had mediastinal sarcoma.

  • @melissapoole8580
    @melissapoole8580 Рік тому +19

    Wow, you have been through so much. I pray you stay cured and every scan remains all clear. You have endured and are enduring more than one person ever should. You speak with such grace and have a lovely spirit, thank you for sharing this and helping others. This is a great video to teach people to advocate for themselves!

  • @juliej5917
    @juliej5917 8 днів тому

    To have this cancer story explained by the RN patient was a treat. You are upbeat and beautiful!! Best to you!

  • @somewhereinthemidwest9827
    @somewhereinthemidwest9827 Рік тому +19

    I pray that you will continue to be cured. 🙏🏼❤

  • @Laura-hy6bu
    @Laura-hy6bu Рік тому +19

    I really admire how you have handled this. I know you had no choice but you are so very brave. You are an inspiration to others struggling with this.

  • @eyelutalulu7266
    @eyelutalulu7266 2 місяці тому +1

    Brandie, i am in awe of your strength and resilience. Your so open and honest, and i want to thank you for your bravery. You are a bright bright star my dear.

  • @HeidiM-pf1lv
    @HeidiM-pf1lv 11 місяців тому +7

    I was diagnosed with ulms in October 21. I am happy to see you doing well. I have had some of the same things that you went through. I too am now clear.
    Very important to go to a cancer center to see a sarcomaspecialist, other oncologist don't have the same knowledge on this cancer.

  • @mariannemcguff1296
    @mariannemcguff1296 11 місяців тому +4

    Brandi your attitude is so amazing! May God continue to give you clean scans! Keep taking life one day at a time! ❤

  • @graceotoole2467
    @graceotoole2467 11 місяців тому +4

    Praying for you ,all the way from Australia 🇦🇺, 🙏

  • @TattedTara
    @TattedTara 11 місяців тому +10

    I am so sorry for what you have gone through. What a special and positive person you are ❤️. I truly wish you nothing but the absolute best.

  • @JOHNHMATTHEWS1
    @JOHNHMATTHEWS1 10 місяців тому +3

    Brandie great story and positive outlook to survive and conquer your life and fears. Prayers and healing this day and keep traveling. Jimmy the Juiceman 27 years LMS surviver NJ born/bred

  • @orscrub3161
    @orscrub3161 11 місяців тому +7

    what a wild ride you have been on. may God continue to watch over you. ❤️

  • @kathylambert3334
    @kathylambert3334 Місяць тому

    Your sense of humor is remarkable. To be "MacGyvered" on your insides, you are such a delightful storyteller!
    What a winner to describe your experience this way.

  • @rae672
    @rae672 7 місяців тому +2

    I pray that you're cancer free for the rest of your life. My husband has been in remission for 15 months from stage 4 colorectal adenocarcinoma metastasized to his liver and lung. His neuropathy is pretty terrible but gabapentin helps. Your attitude is amazing! God bless you!

  • @carolbraswell4488
    @carolbraswell4488 Рік тому +15

    Thank you for sharing Brandi. I have been battling breast cancer for a year now and getting towards the end of all my treatments. I have never heard of your type of cancer before. I'm very happy that you are bringing awareness to your cancer, so we can all learn and so folks won't feel so alone that get diagnosed with this. You are a very strong and beautiful lady!! Thanks again ❤

  • @mesenteria
    @mesenteria 10 місяців тому +14

    I lost my 69 year old mom to leiomyosarcoma. The first clue was that she would gag on food and couldn't swallow properly. A biopsy showed she had a large tumor growing near and around her esophagus. She couldn't retain weight and wasted away. She was gone in five months. Love you, Mum.

    • @eyelutalulu7266
      @eyelutalulu7266 2 місяці тому

      So sorry for your loss. It's a dreadful illness.

  • @jodiewilcox6772
    @jodiewilcox6772 8 місяців тому +2

    Just wow! You are a fighter!! Cancer tried its best to beat you, and you WON!
    I love your spirit! Thank you for sharing your journey. YOU HAVE MADE A POSITIVE MARK FOR CANCER PATIENTS!

  • @suzukigirl950
    @suzukigirl950 6 місяців тому +2

    what a brave, articulate woman. Wishing you a complete recovery and long, fun life.

  • @ceciliamoris5152
    @ceciliamoris5152 5 місяців тому +2

    I'm jealous of your strength in dealing with your cancer. God bless you.

  • @ART-vp2zw
    @ART-vp2zw 8 місяців тому +6

    Hi Brandi, I am a nurse RN and APRN. I was diagnosed with leiomyosarcoma on March 7th 2024. I had a large cyst on my right ovary. It was removed and they found a nodule. Pet Scan later showed mets to the spleen. I am on chemo now. Getting a Pet Scan next week after three treatments. We will see.

  • @EJavierPaniaguaLaconich
    @EJavierPaniaguaLaconich 11 місяців тому +3

    Brandie is a true fighter. Mad respect and all the best to her!

  • @sandilobianco6734
    @sandilobianco6734 Рік тому +15

    Thank you for sharing your cancer journey, Brandie.

  • @carolbruno7731
    @carolbruno7731 Рік тому +37

    Some of these cancers are genetic, many from HPV - but on the FB support pages there are 5+ new woman a week of all ages joining. There is so much awareness for Breast Cancer and not enough for Uterine/Endometrial "Below The Belt" cancers. You look beautiful through it all Brandi! Sending Love Prayers Support 💐💐🙏🏻🙏🏻💗💗💗💗🙏🏻🙏🏻💐💐

    • @chavlicek92
      @chavlicek92 6 місяців тому +1

      Sarcoma isn’t specific to below the belt. It can be anywhere in the body. It’s a whole other beast than ovarian or uterine cancer…

  • @sandra4710
    @sandra4710 11 місяців тому +2

    Cheering for you!! What a brave, beautiful young woman!

  • @alexisw28586
    @alexisw28586 11 місяців тому +4

    DC vaginal adenoscaroma in 2021 tumor excision immediate recurrence 6 weeks later. Radical hysterectomy, external rads followed by internal brachy. Rad side effects were brutal but at least I was done... or so I thought... now the from the hormone blocker I take is damaging by bones in addition to neuropathy and joint pain and I'm currently being monitored for a small brain cyst. But am technically NED and for that I am greatful.
    Sending 💛 💙 💜 Sarcoma, Gyno cancer and Survivor love to you.

  • @AviyahAbides
    @AviyahAbides Рік тому +46

    It amazes me how everyone is wearing a smile in these thumbnails for such a serious matter.

  • @Ceerads
    @Ceerads Рік тому +12

    I’d read that one should always go to a sarcoma specialist/center for treatment if diagnosed with a sarcoma. Thank you for this interview. I wish you good health and happiness.

    • @sallymccoy6286
      @sallymccoy6286 Рік тому +7

      Brandie this is the best advise to share with those fighting cancer. See the Oncologist that specializes in your type of cancer. And make sure its in a cancer hospital. Hope your doing well.

    • @Serenitynow958
      @Serenitynow958 10 місяців тому +1

      Definitely sarcoma specialist!

    • @Ceerads
      @Ceerads 10 місяців тому

      @@sallymccoy6286 It’s especially true with sarcoma.

    • @Ceerads
      @Ceerads 10 місяців тому

      @@Serenitynow958 Yes!

  • @patriciasmith8501
    @patriciasmith8501 11 місяців тому +4

    Girl!! What you have done for me today! Thank you and Bless you!❤

  • @justdoit7303
    @justdoit7303 10 місяців тому +1

    You have such a unbelievable upbeat and positive attitude! You can still laugh and talk like this is no big deal. God bless you, I hope you completely recover.

  • @saraseelig6390
    @saraseelig6390 11 місяців тому +4

    Brandie, thank you for this very informative, necessary video. You present it in such an intelligent, direct way that's easy to understand. You are helping many people, really doing a service here.
    I'm sending you strength, peace and healing, positive energy from NYC. ❤

  • @Cyndy101
    @Cyndy101 11 місяців тому +5

    Thank you for sharing and I'm so happy I found you! I'm a breast cancer warrior of 5 years but recently the same breast changed quite substantially. I'm waiting on testing & scans to be done so I can move on or go to war. I was feeling defeated but seeing your fight and drive and then overcome so many setbacks, I know I can do this too! 💪🏼 I'm sending you all the best wishes and my prayers 🙏🏼 for you to live the life you love until you are elderly and you're living an amazing full life! ❤❤❤

  • @joanswanson5508
    @joanswanson5508 Рік тому +10

    Thankyou Brandie for sharing your story. I had similar symptoms back when I was 32, but alot of clots. My surgeon told me the entire fibroid was atypical and a leiomyosarcoma. I had a guiding force tell me to have the surgery right away and I am so grateful I did!! Sending you lots of hugs and wishes for successful surgery!!

  • @dianemiller6440
    @dianemiller6440 10 місяців тому +1

    Brandie, you are absolutely an impressive lady! Strong, courageous, optimistic, beautiful….an angel. Thank you for sharing your story. You have had a tough road. Love your spirit💕.

  • @ClaudiaRusso-tr2qg
    @ClaudiaRusso-tr2qg 7 місяців тому +1

    ❤Brandie, sending you my prayers and love. I work in a hospital and I see my nurses as angels. You will be OK. Thank you for being a part of helping all of us and sharing your story. 🙏❤️

  • @dawnontiveros8773
    @dawnontiveros8773 26 днів тому

    Thank you so much for sharing your story . My mom is having surgery asap for large sarcoma on her leg . Im still numb from the news but we will all push through . God will provide . Needless to say learning as much as possible about this . Im so apperciative that you posted .

  • @beataspinda6144
    @beataspinda6144 Рік тому +22

    My sister passedaway in 2022,she had liomasarcoma. Miss her very much😢.Good bless you Brandi 😊

    • @giuliachiarella4055
      @giuliachiarella4055 11 місяців тому

      Ho paura che siano questi vaccini che abbiamo fatto

    • @janetheteach
      @janetheteach 11 місяців тому +2

      I'm so sorry for your loss. ❤

    • @virgierutledge3004
      @virgierutledge3004 11 місяців тому +3

      So sorry , sisters are precious.

    • @panda_bean7
      @panda_bean7 9 місяців тому +1

      I’m so sorry. My sister is fighting this now. She just got sent home with hospice just to see if we can get her stronger and round the corner to keep going. She’s still fighting so hard to stay here with me. 😢

    • @beataspinda6144
      @beataspinda6144 9 місяців тому +1

      @@panda_bean7 I'm very sorry,IT must be so hard,Your sister is a Big Faighter.God bless You and your belover Sister 😪

  • @bettyconnearney7943
    @bettyconnearney7943 11 місяців тому +6

    You are a Real Warrior!!❤ i will still keep you in my prayer list🙏🙏

  • @jillkivioja7638
    @jillkivioja7638 Рік тому +14

    God Bless you and Keep You!

  • @deborahclarke6700
    @deborahclarke6700 6 місяців тому +5

    My Mum passed away with this in 1969 she was 39. She always had terrible periods lost a lot of blood and fibroids. She had an hysterectomy but it had spread. Leiomyosarcoma. She never got any treatment as they told her she only had months to live. I was 10 years old. 😢 Sorry you’re going through this.

    • @eyelutalulu7266
      @eyelutalulu7266 2 місяці тому +1

      So sad to read that you lost your mum at 10 years old.

  • @sbee985
    @sbee985 Рік тому +12

    Thank you for sharing your very difficult journey! Praying for healing and blessings!

  • @mistyrhodes1033
    @mistyrhodes1033 11 місяців тому +3

    Brandi, you are a warrior and my hero. Hearing your journey has given me the strength to make a decision regarding my vulva cancer. You are an inspiration and an incredibly strong woman. 💪 Thank you for sharing your journey. You will be in my prayers, beautiful. Hugs to you. ❤

  • @beckymunro2071
    @beckymunro2071 11 місяців тому +1

    I just found your video. You are such a strong lady. No one deserves to have to go through that, but you are so positive. I'm sure you have helped so many with your positivity.

  • @青竹-s9o
    @青竹-s9o 2 місяці тому

    Hi Brandie, thank you for sharing your story. I was diagnosed the high grade unditterentiated Pleomorphic sarcoma Aug 2023. I went through the misdiagnosed for 7 months. Couldn't get my biopsy results for another month. I did online reacherch, found a hospital where they have sarcoma center and had surgery removed the sarcoma. B and had 33 radiation s,badly burned,but there are many unanswered the questions. I felt I was left in a dark hole without help. After every day research, I found Dr. Tseng from City Of Hope. I flew cross the country to see him. He is a wonderful doctor. He took one hour to answer my questions and explained my situation. I decided to move to CA near City of Hope for future care. I am so glad we both are Dr. Tseng' patients. You are right about sarcoma does not respond the chemotherapy well.

  • @mdr1833
    @mdr1833 11 місяців тому +4

    You are amazing! I could never be as strong and upbeat like you! I pray you have a long healthy life!! God bless you and your support system!!🙌🙌🙌🙌🙌

  • @karentassin9911
    @karentassin9911 11 місяців тому +3

    Prayers for your journey You are a lovely person who deserves Gods blessings 🙏🙏🙏

  • @nohandle62
    @nohandle62 5 місяців тому +4

    I had surgery for this cancer in January. Mine was 14cm at its widest. I declined chemo/radiation because I researched and read that both were ineffective for this cancer.
    Two, 4-month followups so far. Both clear.

    • @rkcjk21
      @rkcjk21 3 місяці тому

      My mom got 10 cm initially and had surgery but it grew to 20 cm in 2-3months. Got multiple chemos but nothing worked so we thought she must get surgery again but after one month from surgery she lost her all senses and couldn't see her children in her last moment. May God bless me again with she as my mother

    • @El-di4sx
      @El-di4sx 21 день тому

      I'm sorry to hear that. My mom also just got diagnosed for sarcoma stage 4 with bone metastase yesterday after we had a CT Scan. The result showed that It has destroyed her right pelvic bone and started on her right thigh too. The doctor said he needs a biopsy to see find out more about the type of her cancer and there will no surgery for this just chemo or radiation. But, now I'm still re searching about what's the best treatment for my mom. She can't move properly now and she got severe pain everyday. It hurts my heart to see her in pain 😢

  • @Mark_Ocain
    @Mark_Ocain 10 місяців тому

    This is an inspiring story. If I were confronted with this, I have no idea how hard I would fight it. This lady is so tough and brave.

  • @lorifoy5268
    @lorifoy5268 11 місяців тому +34

    I was diagnosed with high grade pleomorphic sarcoma in January of 2023. It was in my left forearm. A hospital in my city has a sarcoma center so I got good care. In February I had surgery with clean margins and 30 fractions of radiation. I had a lot of PT for my hand and regained a good amount of function. Your attitude after all you’ve been through is inspiring. ❤

    • @chayamiriamweisman3733
      @chayamiriamweisman3733 7 місяців тому

      I worked for the top upper extremity orthopedic surgeon at Sloan-Kettering. I loved him and our patients!

    • @domseyboi
      @domseyboi 2 місяці тому

      What kind of symptoms did you get?

  • @darrellhicks360
    @darrellhicks360 8 місяців тому +1

    “We got this….” You’re my hero ❤❤❤❤

  • @ralphiesmom2
    @ralphiesmom2 2 місяці тому

    What a smile! Live that life you've worked so hard for!

  • @dustyjones9874
    @dustyjones9874 Рік тому +8

    Wishing you the best, focus on the important things.

  • @christinec7892
    @christinec7892 6 місяців тому +3

    Just diagnosed with carincosarcoma 2 weeks ago. Thank you for sharing this.

  • @kitfranzman4860
    @kitfranzman4860 11 місяців тому +2

    A huge heartfelt thank you for sharing your adventure. The more we know the more lives can be saved. I'm sure you saved many lives. Our prayers are with you.

  • @dslivelocalrockstarsmactmu3529
    @dslivelocalrockstarsmactmu3529 11 місяців тому +1

    You are a champion Brandi 👏🏻👏🏻👏🏻👏🏻⭐️

  • @karynmoore5094
    @karynmoore5094 10 місяців тому +1

    So good of you to share your story in such a relatable, articulate manner. It’s awesome to hear from someone who so fearlessly accepts these hard facts and continues down whatever road is ahead with so much inner strength. God bless you. You deserve a break. May all your future scans come back clean🙏

  • @denisedouglas7498
    @denisedouglas7498 6 місяців тому

    How brave and articulate you are! I had Hodgkins 39 yrs ago, became an oncology nurse. When I was diagnosed I just graduated from nursing school. My kids were young and I just took care of a patient with end stage Hodgkins. I was not a particularly strong patient and was kinda neurotic. Look at you educating others. You have a beautiful smile. I wish you-the best. Thank you!

  • @1Rdby
    @1Rdby 11 місяців тому +2

    All the love and light in the world to you Brandie. You’re amazingly strong to have endured what you did and stay so positive.
    I find it so distressing that I’m constantly hearing stories about seriously ill patients having to muster the strength to become their own advocates during the most challenging time of their life. Even so much for you being a medical professional.
    All the best,,,,❤️❤️

  • @carolapostolos8929
    @carolapostolos8929 11 місяців тому +2

    You are such a strong person. Thank you for sharing your story. If this saves only one person, you are the hero that's responsible for that. I'm praying you have better health and live a long joy-filled life. God bless you. 🙏

  • @gregwilvert
    @gregwilvert Рік тому +4

    Thanks for sharing your story, Brandie. I admire your strength and courage. I have a high risk prostate cancer and surgery scheduled for late March. Listening to you has given me a little bit more courage to face this thing. I’ll be thinking about you and hope you’re doing well.

  • @michelegawrys7286
    @michelegawrys7286 Рік тому +4

    I dont know what to say but you are a truly amazing woman! Wish you the best!!

  • @barbsmith500
    @barbsmith500 Рік тому +2

    You have gone through an awful lot to be here. But like you said, you’re alive. Wishing for continued good health!

  • @whitsax
    @whitsax Рік тому +11

    Bless you for sharing your story to make a positive difference for others. Your straight talk with laughter interspersed was serious AND hopeful and I am sending my prayers and good vibes and light and love to you for your best life forward. 💗

  • @derricksmoothy4392
    @derricksmoothy4392 3 місяці тому

    You are a blessing. My wife was just diagnosed and this video has really helped both of us. Bless you and your family ❤❤❤❤🙏🏿🙏🏿🙏🏿

  • @maureenfitzgerald1895
    @maureenfitzgerald1895 Рік тому +3

    Wishing you all the best. I lost sis to uterine fibroid with leiomyosarcoma and mets to lungs, spine, etc. it is such a cruel brand of cancer. Blood borne, loves smooth muscles…. She fought over 3 years and her light faded at 56. I want you to be an exception and live a long life.

  • @rhondaseitz2634
    @rhondaseitz2634 Рік тому +5

    I am just so impressed by your strength. I’m sure you had your days, but you really are such an inspiration. I will keep you in my heart and pray for a life of good health moving forward ❤️

  • @tool-nh8mk
    @tool-nh8mk 8 місяців тому +1

    Bless you girlie. You have been through hell and back. Prayers for a healthy life from here on out ❤

  • @opalfishsparklequasar8663
    @opalfishsparklequasar8663 4 місяці тому

    💖🕊️ What a fabulous person you are, Brandie! So glad you're with us!
    You continue to make such a lovely difference in this world.

  • @shelix222
    @shelix222 2 місяці тому

    So fortunate to have coverage or funds for this