Deep Brain Stimulation for the Treatment of Tourette's Syndrome: Andrew's Story
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- Опубліковано 19 жов 2024
- Tourette's Syndrome is a neurological disorder characterized by involuntary tics. While there is no cure for Tourette's Syndrome, a handful of centers around the world are using Deep Brain Stimulation to treat the most severe, chronic Tourette's Syndrome. This is Andrew Joannou's story. For more information please visit bit.ly/1sTQNXe
Hey there friends.
I thought it was time I sent out a reply since you have all sent me your great wishes since watching my DBS video.
It's been 6 and a half years since my surgery.
And am pleased to say that since the surgery my symptoms are reduced by 95 %
So truthfully life couldn't be better.
Thank you all for your kind words.
Andrew.
Good luck brother
So wonderful. Praise God. How long has this treatment been around? And how risky is it?
@@Rich72James please instant message me and I will speak with you directly,
Thank
@@andrewjoannou6610 how do I do that. Never done private messages on UA-cam before!
@@Rich72James if you can e-msil me at
Usakebab@gmail.com
I can contact you much easier,
Kind regards
Andrew,
I would just like to say how wonderful it is to see the video concerning Andrew. I live in England in a small village in Hampshire called Grayshott. My church, St Luke's have been praying in earnest for Andrew, for the surgeons and his wife. It is wonderful to see how blessed he has been - it encourages us in our prayer life. So pleased for you Andrew and Amy, God bless.
How did you know about Andrew? Is he local to you or part of your church? It's wonderful to see this treatment.
@@Rich72James
Sorry can you please e-mail me at usakebab@gmail.com
As I don't know how to repay on you tube,
And will respond as soon as I recieve your e-mail message,
Please add your name,
Thank you,
Andrew,
The church & ‘god’ have absolutely nothing to do with a documented medical problem, and a scientifically documented surgical solution to control the condition as much as possible.
No ‘god’ gave him a medical condition, and no ‘god’ had anything to do with his improvement either. It’s biology & chemistry, nothing to do with the ‘tooth fairy’ or ‘Santa Claus’, or any of the other religions which all claim to be ‘correct’ and your religion ‘incorrect.’
While wasting your life following a religion, do you have any idea how disgustingly rich that the heads of these religions are? The Church of England have enormous sums of money, but far more value by way of all the land & buildings it owns. The Vatican Bank is well documented how massively rich it is. Mormons & Scientologists are forced to ‘donate’ (essentially taxed) on their earnings which have to go to the church.
Not only is it just made up stories written before society & the human race was so advanced to know any better, but people/organisations get appallingly rich from it.
If you add up the total value of all the money & property from all the religions, it is the richest industry in the world, *even more than the oil industry* but somehow there’s still gullible people who lap it up.
I just turned 36. I was diagnosed with Tourette's syndrome in June of 2018. It took over 7 years for me to get my diagnosis. I'm still currently on clonazepam to try and control it, because they've had me on it since February of 2012. This video gave me a little hope. I'm really happy for Andrew. God Bless. 😊
Andrew the PA Tourette Syndrome Alliance has been following you through this entire process and are elated with how success it has been for you! We can't wait for your Post- DBS Workshop at camp this June! We look forward to seeing you both again! ~Sabrina~ PA-TSA
I went to school with Andrew, (downlands college haywards Heath) I'm sorry for him that things got worse but glad he's now much better due to theDBS. Well done to Amy his wife and I'm thrilled they have got 2 kids. Hey waggy I'm happy for you, you deserve it buddy!XX Tracey.XX
Congratulations Andrew and Amy on getting your life back!!!! The two have you have been an inspiration to all of our family since we first met you!
Kuddos to the team at Mount Sinai for pushing the envelope!
Oh wow saw documentry on this guy. Seems so nice. Hope this improved his life. All the best to him
Awww bless you Andrew!!! Much love from Plymouth UK. ❤️❤️❤️
Congrats on the sìb and combating Tourettes so well.
I dont have have Tourette’s but my heart goes out to anyone who has this condition I pray that there will be cure one day 🙏🏽 love you all
0:29 I jumped and that scared me so bad
I have Tourettes as well and I wave my hand on my face and it'll cause me to twitch if it gets bad and my face goes numb and it will tingle but for some reason it only happens around light and sun
When I am walking alone and my hands are free a will rub my finger tips on my face my back head or fold and unfold my sleeves continuancely when I am on bed I will start to feel very itchy is it.
me too 😂😭
I had tics related to light as well - I looked at bright lights to slightly sting my retinas. Was one of the most problematic tics I've had, but my tics are always changing so I'm glad it isn't worse.
Great video but, the back ground music made it hard to get through it till the end.
Andrews my friends brother and a real nice fella he came on holiday to Spain in the late 90s rideing bikes thru the mountains was awesome .
It must be so awful to suffer from this, exhausting, it's so brilliant that it worked for him! But why is the NHS not doing this in the UK - or is it?
It does but it's case by case. DBS is a very experimental procedure and there's a lot of risks to it. There could be various reasons why he didn't have it done in the UK. I couldn't help but notice his wife sounds American. His place of living might be one factor?
Jenny,
they had done DBS in the uk however the NHS only did it on a clinical trial.
i had a friend whom.had it done on an NHS trial.however when his batteries went flat they removed it all.
so.his symptoms returned.
this is why I refuse to return back to the uk to live.
because I woud'nt get this treatment in the uk.
I hope he’s doing okay.
yes I'm doing great thank you
yes I'm doing really well. my tics are at an 95 % reduction. so I'm truly greatful
He has a very nice smile so real.
Bless his soul.
My god. Haldol ruined my life. 9 yrs on it. Now I have to, fibromyalgia, ra, tardive dyskinesia, median nerve damage and horrible sensory processing disorder. It's to the point where at nighttime, I'll fight to breathe, be able to sleep at all for 6 hours or more. Cbd and meds do nothing
Great
the music makes me tic oh my god. im not kidding, certain rhythms set me off and this song is like the worst.
Ikr...
Lol 😆
This music is so bad for us with tourettes wtf..
Hahahaha
For me it's relaxing, and I have tourrettes
i Feel for you Andrew i go through the same crap i to have the form of tick that makes you self abusive however ive learned 1 other thing through years of living with it i finds it may also be connected with your Emotions i noticed the Angrier i got the more abusive i was to my self and also the less i had control over what i said when i turned 18 i started self Medicating with Cannabis now i dont get as angry and when i do its mostly verbal ticks now its only self abusive ones on rare occasions now.
Use paroxetine or fluoxetine and solian and some benzos didn't dat work
This bloody music man wtf
Whats with the jungle music
Don't try deep brain stimulation at home. Go to a doctor!
Lol this comment had me laughing my ass off. 👌🏻
I hate how the staff at Mt senai sit and stair. Makes you feel as if you are living in the 1800s but other that. Great hospitalit
What a great video that is full of information. actually, my friend has suffered from this problem. During this time he was very upset. Then Someone told him about Planet Ayurveda, he went there and took treatment. Now he is fine. So, if anyone is facing such kind of problem or any other health-related problem. You should go to Planet Ayurveda
To whom should I contact for the treatment in Maharashtra
I would cut caffeine and go gluten free as well and go on a low sugar diet that may help
And why is that? Does it actually helps? I have TS my self
All right Andrew you go Boy
We at the United States Post Office wish you luck
I thought Amy was American. I had no idea she was British as well...
Amy is American.
Yoo that was haaaaaa helbppspssspful thank haaaaaAa you for haaaaaaaa the information
You going to get it for ur self for this kind of joke :) just wait until it kicks in:) enjoy
💜💜💜
i saw this guy on a doco
Lol
0:59 "the exact cause for tourette's is unknown, but it is well established that both genetic and environmental factors are involved" please, don't mention environmental, it doesn't matter where you grew up, if you have tourette's, you have tourette's and genetics.... i mean what are you on about? People with tourette's may be the only one in the entire family who have it, which would make sense considering only about 8-10% of humans have it, depending on the type of course. One more thing, you say that "the exact cause for tourette's is unknown" you don't suppose it's the brain that could be causing tourette's? or are you doing that on purpose, saying you don't know the cause when you do? Everything about us is all because of our brains, and yes it is, if you don't believe me, than I suggest you shut down your brain and see what happens, stop lying to us, the brain is the reason why people have tourette's
I know the exactly cause - vaccines with mercury in it. Your welcome, I'm victim also
I know the exactly cause - vaccines with mercury in it. Your welcome, I'm victim also