Tourette's syndrome -- why it doesn’t define me | TEDxAlbertopolis
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- Опубліковано 1 жов 2013
- Find out how Jess Thom is "changing the world one tic at a time" in this inspiring TEDx talk.
Thom has Tourette's Syndrome and says 'biscuit' sixteen times a minute. A visual artist and a graduate of the Royal College of Art, she founded Touretteshero to celebrate the humour that can emerge from Tourette's, challenge misconceptions about the syndrome and encourage people to familiarise themselves with the creative opportunities it presents.
In the spirit of ideas worth spreading, TEDx is a program of local, self-organized events that bring people together to share a TED-like experience. At a TEDx event, TEDTalks video and live speakers combine to spark deep discussion and connection in a small group. These local, self-organized events are branded TEDx, where x = independently organized TED event. The TED Conference provides general guidance for the TEDx program, but individual TEDx events are self-organized.* (*Subject to certain rules and regulations)
328 biscuits
Thank you :)
+lordliffty Guess this is what happens when someone with OCD meets a person with Tourettes lmao
(PS: Thanks for counting for us.)
what about head shock
You mean hedgehog?
How many chest hits?
It's interesting that after 5 minutes you start to ignore the usual ticks and they phase out like background music.
TheTechnoLocker I thought the same thing.
TheTechnoLocker exactly!
Nope, not me, towards the end it pissed me off actually more than anything, and I stopped watching.
yeah me either. i could barely follow what she was saying toward the end.
TheTechnoLocker I had to like this comment to get it to 666
My favorite part is when she says biscuit
What have you got against hedgehogs? Racist.
Carson Da man when did she say that? I don't remember?
Steven Pam dead😂😂
Time?
Carson Da man which is the majority of the time
I love that she is as surprised at her tics as we are, and finds them just as hilarious.
snakebarber as do i
instaBlaster
Alladdin died.. Don't worry he didn't really had me in stitches.
Anti Reddit 🔌🔌
But did he have you in Biscuits??
Anti Reddit XD
"I'm imagining you all in bikinis" had to be a favourite of mine. Respect to you my friend
Alex Graham my favourite was cat sex
Cat sex pajamas
Joe's batman's cousin
When was that
and Aladdin!
100 bpm
biscuits per minute
Abigail Mills it's actually 29.2 biscuits per minute
Abigail Mills it's actually 16 bpm
Abigail Mills Why do we have the same pics LOL
Abigail Mills i literally cropped that video as well for arts exam
Sam Khan I found it online!
i could think of a really dangerous drinking game involving this video
John K when she says biscuit 1 shot when she says hedgehog 2 shot
John K Good Lord. Those better be shots of beer. Otherwise you'd be dead.
I have Tourette's my self and for me it's very vocal I can still remember my friends in tear of laughter the day I shouted in class "I slap a window so hard it broke your grandads sound barrier"
TRONIC-DISTRUPT 😂😂 but you'll get through this ❤️❤️
I favorited this so hard...
What she calls "fits" are absolutely the worst thing I experience with tourettes. She is so amazing to raise awareness like that so people know it exists.
Wonderful personality. A real tourettes hero.
***** Do you notice your tics, or are they just like blinking and breathing in which they go unnoticed until referenced? I know I have a tic where I constantly clear my throat, but I nearly never notice it.
Thomas Katz Thomas, my name is Rocco Savilla and I have had TS for nearly 40 years. I have learned over a lifetime how to "master" my own TS and I want to share my knowledge and information with everyone who has TS. Check out my channel "Mastering Tourette's Syndrome" and tune in weekly for great information and updates. Thanks and God bless!
***** My name is Rocco Savilla and I have had TSfor nearly 40 years. I have learned over a lifetime how to "master"
my own TS and I want to share my knowledge and information with everyone who
has TS. Check out my channel "Mastering Tourette's Syndrome" and tune
in weekly for great information and updates. Thanks and God bless!
+Thomas Katz Sorry im so late to respond. I didnt get a notice for your comment.
My tics are very noticeable. Both my motor and vocal tics are very pronounced. I also curse and have echolalia. And Like I mentioned in the comment above I have The same kind of epileptic like looking episodes that Jess described in the video. Full body tics that look like epilepsy but are tourettes.
idranktheseaw
I suffer from very mild Tourettes. It wasn't until I saw this TED Talk that I discovered just how debilitating it can be. Still, what a brave woman.
Rikki Glasgow I have almost the same thing. I want fully diagnosed with Tourette's but I do have tics. I don't have coprolalia, but I have twitch like movements that I can hold back every once in a while but it comes out eventually. I will roll my eyebrows, flick my right hand pinky finger forward, and blink. The first tic I ever had was snapping. I was soon told that the tics would wear off when I was 12-13 years old, but I'm now 14 and they have just gotten worse. It used to just be one tic at a time, like snapping. As of now I have a combination of shaking my head, blinking, stretching my thumbs, raining my eyebrows, crinkling my nose, and making rhythms out of breathing. If that makes sense. My tics will get worse with stress, anxiety, and tiredness. It's sometimes hard to fall asleep when I'm stressed because I can sometimes wake myself up with a shake of my head.. it's amazing to find people who have the same experience as me, so I know I'm not alone.
I deal with this too, I also have two vocal tics, but only one which comes out often.
I have a diagnosis of Chronic Tic Disorder, no Tourettes, this is because my vocal and motor tics are not always present like 24/7, but also because I can go through stages of having no vocal tics, (I always have motor tics).
So I do understand.
Kei Hill it's really nice knowing there is other people out there that understand what each of us are going through.. once you say Tourette's people automatically assume that you can't control your body and are prone to saying uncontrollably ridiculous things, but really it's very different (depending on your type of case..) my vocal tics aren't words, more like a soft grunting sound.. but still to people I have to tell people I have a neurological disorder rather than tics, because they think the insects and then it's really awkward.
Yes! my vocal tics are a grunt/gulping noise, and I make an f or k noise with my mouth a lot.
I also pop my lips.
A lot of my tics I have managed to almost turn into "normal" movements, but obviously not all. And my friends got used to it.
I do experience what I call tic attacks, (liken to the seizure but less violent), and my friends have learned how to help me when those happen.
I have taken to explaining it is neurological also, and then say I make odd or strange noises and do odd or strange movements.
This sounds so similar to me. My first tic was in first grade when I couldn't stop raising my eyebrows and looking up. For the most part my tics have only been very mild since then such as muscle twitches in my legs and very small vocalizations, kind of like tiny hums. For the past 5 or so years its been rubbing my lips against a protruding tooth of mine. Even after getting braces to make my teeth straight I still rub my lips across my teeth, causing jaw pains sometimes. I always knew I had tics but never got diagnosed with Tourettes. I totally understand the rhythmic breathing thing! Sometimes my muscle twitches will be in "circular" rhythms too.
I was there, she was amazing and made us all laugh several times :) Brilliant
I just commented on the video phuong :p
Lucky!
Savvas Dalkitsis I lost it when she said Allston died that was almost as funny as Louie ck
3:28 "expliscuit" explosive and biscuit... I'm sorry I lost it
XD
I love that she can laugh at her own tics. She seems so down to earth and is making the most out of what she was given.
I am so hungry for biscuits now.
i dont hav3 buiscuits
American or English biscuits? That's the real question....
Saaame!!
lol I want American ones 😂
Ashley E English. Bourbons, specifically. I'll take an American one if you have one though.
She's adorable and funny :) She's my inspiration
Carlos Afif I do not but she's so happy and content with her life that I can't help but be inspired by here
Carlos Afif biscuit?
RawrKannibal mine too💖
RawrKannibal She is!!!
thank god she says 'clean' words such as biscuits..
she once said "cumberbatch fucked a chicken"
ferblerhp I saw that lol
ferblerhp Wasn't that when a kid named Adam Ladell said something like that? And their tics were like going back and forth?
Yaoi is my soul fuel yeah, he has major cursing ticks and they essentially set each other off and so her brain said that
yes
7:04 was the best one.
her poor dog "am i getting a fucking biscuit or not????"
🤣
7:13 she killed that dab
Rk Williams *7:11
You're fucked up
omg. I am a bitch for dying at this comment. Dude.... 😂😂😂
Great Titan Okay... not getting it.... wdym?
"Aladdin died. He didn't really". She's LOVELY.
I have so much admiration for this woman and how she's turning her condition into a positive.
It's pretty inspiring.
I have Tourettes too. I'm cool with having it. Doesn't make me feel any less than I should. I just wish everyone was ok about having it. Nobody should feel stigmatized
IAMSYMPHONY I don't have tourrettes but I have autism so understand what it's like I understand but some people don't some disorders don't need to be cured like autism or tourrettes syndrome
Iamsymphony; I too have Tourettes; and I know it can be very hard sometimes to be in public with the Tic's. I REALLY respect you my friend.
IAMSYMPHONY only time you are stigmatized is when you attempt to join the military
IAMSYMPHONY same I also have it I used to be insecure but now I just don’t care anymore
Hi, KUKULI, I also suffer from Tourettes KUKULI, I feel like any other regular KUKULI person, sometimes it's hard but I've learned to KUKULI live with it. KUKULI
*Tic*:"Aladin died!" *Jess*: "Don't worry, he didn't really.
my chest now feels bruised
when she said "I'm imagining you all in bikinis" killed me, she handles it so well and is funny too and just great
Now I'm hungry for Red Lobster Biscuits. But seriously this room a lot of courage, I tip my hat to you lady.
Jake Gofner no she clearly means British biscuits (COOKIES)
Emily Gilbey that doesn't mean the word biscuit won't still make an American crave our version of them even though she obviously doesn't mean those. Both are delicious though I'll take either lol
agreed
"I'm imagining you all in bikkinniisss...*laughs*...I'm not really." OH MY GOSH I LOVE HER
I know a couple people with Tourette's syndrome both barely noticeable and very noticeable. there both really nice and thoughtful people and I personally cant imagine how difficult it would be to have tourette's..
My biggest inspiration, she's amazing and I absolutely love her
+Sam Doiron your not getting my like
+Egg Yolkmen what?
+Egg Yolkmen No one wants your like.
her ticks were in time with the sound extract aswell thats so fascinating
Anna Mack I noticed that too, it's was very interesting
They shoulda gave her a standing ovation. That was absolutely EXCELLENT!
"Cat sex pajamas"
See, even Tourette's still maintains a spark of uncontrollable creativity :)
I've heard her say 'biscuit' so much that I have actually come to ignore it. She sounds like a completely normal talking person when you ignore it too. Now I'm just worried I'll completely ignore the word whenever it is being used without Tourette's.
It's fine, my friends have learned to be able to tell my "woohoo" tic apart from when I actually say "woohoo."
When people are able to ignore my tics when I'm talking is one of my fave things. It helps me stay focused on what I'm saying and not get side tracked by my tics if someone points it out. Usually when someone points it out I tic more. It can be hard for some people to ignore it but it's very humanizing when it is ignored. I don't mind a laugh or two about it though if it's not while I'm talking and it doesn't take over the topic of what I'm saying. If ppl didn't laugh or have a small chuckle it'd feel like I'm just being obnoxious lol as I laugh at my tics all the time.
Wouldn't it be perfect if her doctor really was called Dr Thomas Biscuit.
Dr. Alladin Biscuit
Try to think of Tourette's as like hiccups that never stop. That's how I put it.
Not tryna be funny or anything here but seriously she must have a constant bruise on her chest like holy... feel sorry for her. Inspirational though and I also believe it's important to look at the funny of it, kinda brings light to their situation.
he said in a separate documentary that it stopped bruising a long time ago, but she wears those protective gloves to keep her knuckles from cracking and bruising
UrAllDonks yes you're right. I remember seeing that video
I think she wears a chest guard too so it will protect her chest a little more? Correct me if I'm wrong but I think that's it 🤔
The gloves soften the blow
My favourite part is when she says "And Joe's batman's cousin!" and is just as surprised as us about it and laughs about it.
LancelotGraal lol what minute is that??
the way she says hedgehog is really cute every time it's so different from her normal pattern of speech
My tics make me very socially anxious so this is my worst nightmare, I have so much respect for her. I’m so glad she talked about tic episodes, although mine are different (I punch myself in the head and jaw and I often have to be restrained) it’s such an incredibly important thing to talk about because a lot people don’t know the darker side to the disorder. Im also really glad she talked about coprolalia (I myself have it) and how it’s only a small percent of people with Tourettes that have it, even though when most people think of Tourettes the associate it with swearing.
I have tourette syndrome and was diagnosed in L.A. by the leading doctor on the subject (i forget his name - im 30 and i was diagnosed at around age 6) I had verbal tics, humming and whistling but that subsided with age. I however have motor tics where i nod my head, pop my wrists and ankles and blink a lot and twitch my muscles in my neck and clinch my jaw, everything has to be even - sometimes it takes a while to realize im doing it, usually when it hurts or someone stares at me. I havnt watched the video yet but I searched tourette syndrome art because I was interested in why I am such a visual artistic person. I am a pro photographer and everyone I talk to always says that my eye for photography is amazing. I'm not very social and I'm a self learner. It's a curse sometimes because I'll stay up for days sometimes learning something like photography, photoshop, ect. It is very hard to do something that I'm not interested in, it's like it's imposible to concentrate. I failed through all of high school then went to job corps and got my ged in 3 days and went to a tech school for graphic communications. While in school again, I took a photography class and have been into it and doing it ever since for the last 4 1/2 years. I can visualize everything and post process in my mind the entire process of what im going to do in photoshop to see a final result before even taking a shot. I am street smart and book smart but my social skills lack. I was a loner growing up because I got made fun of a lot. If you have tourette syndrome, USE IT and think of it as a GIFT and not a Desiese. :) look up AEON Artistry on facebook :)
2 years later - Photography is still my life - and I still am happy that I am different. Still a loner, but I've been working on that!
Nicholas Brown good for you bro keep your head up and make sure you surround yourself with good people
Nicholas Brown Dude, awesome, keep taking it further!
Nicholas Brown will definitely look up Aeon artistry
"Aladdin died! - He didn't really, don't worry" I love her.
So confident and strong. And she's taught me a lot today! I didn't know much about Tourette's, now I do.
I don't know how she does it, it's impressive; if I had tics like that I would get so frustrated it would destroy me. I'm so glad she's found it in her to laugh about it, and act as if it was all normal. Because it is normal. She is normal.
I'm autistic and this got me repeating "biscuit" as well because echolalia is one of my dominant symptoms (I'm quite enjoying it, though echolalia is not always enjoyable). I love seeing other neurodivergent people talk about their experiences because neurotypical people spend so much time talking for us and over us. 💖
My name is Joseph also have the same condition Tourette syndrome. I'm looking for friends on here who have the same condition. thanks for this video it was very uplifting. this condition is very challenging but I deal with it it's a part of me and I can't change it. one thing I can do is share positive message in the world. I'm sure this video is very uplifting.
I have it to. My worst is my breathing tourette where k have to take very deep breathes even though it's not necessary. It never feels like I have enough air, but I also have this tic where I have to throw my arm out. Everyone asks me why I do it, and I always reply with, "I can't help it..." anyone else with tourettes is a real hero
+Kazer Limestone i have that breathing one to!it f**kin sucks
JOSEPH FALCONE I'm waiting for the 12 month period to end (at the end of the month) to be formally diagnosed with Tourettes. The worst bit is at school you have to explain to people what it is and why, but you can't say 'I have Tourettes' because you don't. People come up to me and ask me to tic for them, which I explain cannot be done on command but people do not like listening. I do MMA which is a mix of martial arts like kickboxing, sparring, ju jitsu and weapons and if helps occupy my mind and stop tics.
KazerIRL Wow I used to feel like that. I felt like I didn't have enough air and I needed deep breaths but I don't have tourettes?
2:10 Biscuit hedgeHOG biscuit CAT SUCKS PAJAMAS biscuit biscuit ALLADDIN biscuit ALLADDIN DIED...
Her courage to be open and actually laugh at her condition and be okay with others laughing (even though I know she wishes she could rip that condition out of her sometimes because it must be incredibly annoying) shows what kind of personality and character she has.
I really want to give her a hug
Cristal Lugo me to she has such a good attitude to it she deserves the best
She’ll whisper biscuit in your ear
@@mrswry3086 Or accidentally punch you! I wonder if things like hugs are difficult? And how does she brush her teeth or use a toilet? No wonder she needs support workers, this must affect so many aspects of her life.
I have TS, although not to this severity. Although I know I have way more than five tics a minute, if I calculate that it's an average of 80 million over a lifetime. I think this is what triggers anxiety and stress that I feel over time. This has become very overwhelming recently. It's comforting to read other stories of it and non sufferers willing to be educated.
I want to pet a hedgehog, eat a biscuit and watch Aladdin at the same time. She's amazing. I might have Tourette's but not as noticeable as hers.
Aladdin dies! Not really.
I'm proud to be able to call her my friend. What an inspirational woman!
Matthew Biscuit Hedgehog.
This is quite possibly the best speech on Tourette Syndrome I have ever heard! Thank you Tourette's Hero!
I watch this when I’m sad. It feels good to know that Jess is supporting tourretts.
As much as it is funny i do understand its hard and everyone joking about it should know she is an inspiration
This video is better with subtitles.
It’s heart breaking to know that people go through this. It has to be one of the most hardest things ever to deal with. People judge a lot so that’s one of the reasons why it’s hard. And they can’t help what they say,and even some of the things are very inappropriate but it’s ok because that’s one of the effects. I just really wish I could see most of the people with this illness and talk to them about it. I know I’m gonna cry because it breaks my heart soo much and if I could I would take it all away for all of them truly!😭💔💔
I still think of this Ted talk a decade later and just LOVE Jess. She is an absolute shining example of working with a condition rather than demanding that all others change for her. That is serious strength, humility, and frankly the BEST of humanity.
I am so proud to have met Jess! :D
CallumSk8rBoy 👍
OBE waiting for you, you wonderful inspiration to us all.
i had a tic once because I was given haldol at a psychiatric hospital and it caused a day-long tic where my neck would twitch I couldnt control it. From my eyes(my POV) it looked like the world shook quickly in a circular motion clockwise and counterclockwise in a twitch like fashion. It was very stressful and any stress made them so much worse. It is hard to explain but this is what it feels like: YOU THINK YOU CAN CONTROL BUT YOU REALLY CANT. WHEN YOU FIRST GET IT, YOU THINK ITS WITHIN YOUR CONTORL BUT AFTER A WHILE YOU REALIZE YOU ARE NOT IN CONTROL. THESE THINGS ARE INVOLUNTARY SEIZURE-LIKE MOMENTS WHERE EVERY TIC IS LIKE A BLUR IN YOUR MIND.
How could you thumbs down this?? I think what she is doing is so inspirational! Well done!!
Humor and creativity is indeed the answer! I have Tourettes aswell, but in a much lighter form. Don't worry I still get pointed and laughed at quite frequently. I have lived my life with humor being my key to being able to communicate and be among "normal" people. Humor is the only thing that helps me get away from the freak I am...fml
What triggers tics? Is it anxiety? Or do they happen without any triggers?
Nothing triggers is, it is always there. It does sometimes increase when under stress or anxious.
Fascinating. This just shows that our brains are basically complex circuits, which sometimes get wired incorrectly.
i also have tourettes syndrome and i heard that it will not go away. when i was 6 it was very bad and i couldnt control it, but now (im 14) its almost gone but sometimes comes back
not just anxiety or stress, anything that gest me excited, makes my tourettes worse.
Is it just me or does anyone also start to not notice her ticks after a while!?
She is so adorable! I just love how she has fun with her tics too..
I love this lady. She's adorable and so brave for speaking out about the disability. She is quite amazing for her unique way of thinking about the tics creatively and amazing.
Such a brave women. Hopefully I can help people in the future. Cuz I have it to
As long as people in music and football industry are earning millions of dollars per month and PhD students and researchers as much to pay for rent and food and nothing more, this is going to be the condition = no cure for many many diseases. People should change the way they think and spend money.
I also have Tourette Syndrome and I really appreciate this talk. It helps me feel better about my disability, thank you.
I think she is an incredibly brave, smart young lady, I admire her very much for raising awareness. Keep it going, you are making a difference!
Boy if I had a dollar for every time she said biscuit. I'd be ok for a long time. Lol.
You'd have 328 dollars
I had several tics in my youth and adolescence. I didn't understand what it was and was told by an adult that I looked retarded. It frightened me and made me and hurt me. I still have some minor tics, however, God helps ease them.
You are awesome for doing this, and you are a really good speaker even with your condition, honestly if I went up on stage I would be a stuttering mess and wouldn’t sound as clear and descriptive with my wording as you. It’s cool to see people have to push themselves harder than the average person and yet still be able to accomplish more than one.
I love her voice. She has one of those beautiful voices I could listen to for hours.
Biscuits and hedgehogs two of my favorite things!
Waiter:"What may I get You?"
Jess:"Biscit, a Biscit, no a crossa- Biscit."
Waiter:"Uh anything el-"
Jess:"Biscut"
Waiter:"I know do you want anything to drink?"
Jess:"Nope I have tourettes can I have a hedgehog, I mean croissant, please?"
Waiter:"Oh, Of course."
Jess:"Thanks hedgehog biscut."
Waiter:"Lol, another one?"
Jess:"That wasn't a tick."
twenty one killjoys l-/
Uh..
thank you so much for sharing this. my brother has physical, non verbal tics and this was super helpful to show him.
I REMEMBER SEEING THIS WOMAN A COUPLE OF YEARS AGO OMG IM SO HAPPY THAT SHES GIVING THIS TALK
"I'm imagining you all in bikinis" 😂😂😂😂 omg
Nabisco stock just went through the roof
SHES SOOO AMAZING! POWER TO YOU JESS❤
Brilliant work. I hope you're so proud. speaking out about tourettes is difficult but you have really hit the nail on the head. looking forward to seeing tourettes hero
I want biscuits now
I was recently diougnoused with Tourette syndrome my tics weren't so bad before but after watching this I had such bad tics 😂 it's ok though my tics are only making sounds and rolling my eyes around
I have chronic tic disorder (not Tourette's because I don't have vocal tics) and watching this made me tic loads too 🙈 It's funny how thinking about tics makes us tic more. It's definitely so important to see the humour, despite all the negative stuff.
yeah thats why i dont like talking to people about my tics and such. I just cant concentrate cause im trying to hold back a tic so i can finish a sentence but then all im doing is thinking about my tic so it just get worse :P
Same!!! And then I feel almost as if they think I'm putting it on cos we're talking about it which is rubbish haha! I totally lose my train of thought when I tic mid sentence
***** Eek that's awful! Tics are the worst :(
+sTaTiiC BlaDeZ i kick myself on a good day but when i am bad i slap and punch my face and also scream as loud as possible.
i recognise her from the tourettes syndrome documentary and i still think she is so brave and strong i hope she's doing well
She's so lovely and a great inspirational woman, well done Thom xx
8:04 everyone in the audience is bald omg😂😂😂😂
if I had a biscuit for every time she said biscuit...
Maximum respect to Jess. What a true, honest and humours woman.
Watching her on Russel Howard made me love her so much, the whole thing with lampposts. I find it amazing how she can go on a stage and be so proud of her tics, tbh I'm proud of them too
Drinking game: take a shot every time she says biscuit
How big is the bruise on her chest?
So much love for this!!!!
I’ve seen Jess before and I love her!
She is so inspiring!
And joes batmans cousin 😂dying
Seems exhausting...
it's nice to see her laugh at her own tics. I have the same problem except my tics are usually super hero based. I laugh at my own tics and sometimes make jokes. it really helps.
I love herrr. She's probably one of the most influential people I've ever seen. She's so confident and not afraid to speak up about this condition that really no one but the people with it are able to fully understand.
My brother has Tourette's his tick is blinking hard and twitching his nose and yelling "Mufasa" (from lion king) but my cousin also has it but he falls down and lays on the floor for about a minute and he can't move at all he also bangs on his chest like she dose, and his vocal tick is making the noise of a Machine gun
Want a drinking game? Take a shot after every time she says "biscuit".
I adore this woman! She is so intelligent, and strong 💖
Thank you for telling us your amazing story!