♡ My Journey with Hip Dysplasia & Surgery! | Amy Lee Fisher ♡

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  • Опубліковано 2 жов 2024
  • ♡ My Journey with Hip Dysplasia & Surgery! ♡
    Hip Dysplasia Surgery Video: • Periacetabular osteoto...
    More info about Hip Dysplasia: www.cincinnati...
    My Website: www.amyleefish...
    CHECK OUT MY MERCH & Help Support My Channel!
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    Australia
    6955
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    ♡ MORE INFO ABOUT MY HEALTH ♡
    • HKPP: medlineplus.go....
    • POTS: www.nhs.uk/cond....
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    • FIBRO: www.nhs.uk/Cond... Fibromyalgia/Pages/Introduction.aspx
    • EDS: www.nhs.uk/Cond....
    • GASTROPARESIS: www.nhs.uk/cond....
    • MCAD: www.ukmasto.org....
    --------------­­------------------------­--

КОМЕНТАРІ • 280

  • @victoria9148
    @victoria9148 5 років тому +435

    Darling, you seem a bit shaky in this vid. Is everything alright? Take care 💕

    • @amyleefisher52
      @amyleefisher52  5 років тому +259

      Victoria my blood sugar was low & I couldn’t get it stable, I’m alright! Thank you for checking up on me though ❤️❤️

    • @itsyourqueenxxx6505
      @itsyourqueenxxx6505 5 років тому +35

      @@amyleefisher52 hope everything goes well in this surgery and future ones to I am always thinking about u and don't like the pain u can be in I don't have anything as bad as u but I have speech problems and despraxia and also get bullied a lot so I watch u to make me feel better because you are so inspiring

    • @emilyjames3110
      @emilyjames3110 3 роки тому

      @@amyleefisher52 my hips sometimes pop in and out for some reason?

  • @jaymerssvin4566
    @jaymerssvin4566 5 років тому +156

    I just love your makeup, especially your eyebrows!

  • @mysticalanimallover5741
    @mysticalanimallover5741 5 років тому +59

    i was diagnosed with severe Hyper-mobile EDS today, he thinks i have POTS to and it looks like i have gastroperisis as well as mass cell activation.
    your videos have helped me so so soooo much! thank u amy! u have actually helped me work out what’s wrong and the consultant was like you deffo have h EDS. so thank u!
    after years of being told i was faking, or attention seeking or it was cause of my mental health, i was validated today and you helped me get to that point! i hope u r feeling better to after your recent hospital admission! love and hugs xxxx

    • @lilshot727
      @lilshot727 5 років тому +2

      henry doggo prayers nigga

    • @hannahkaur3761
      @hannahkaur3761 5 років тому +3

      Hey, I watched a podcast (by an MD) who had a MD guest speaker on. She also has EDS, and was able to do a lot of significant healing not just for herself but her daughter too. It's definitely worth checking out, bc that same podcast hosted another person on migraines (my health issue) in a different video, and I've implemented the protocol to such a degree of success that I can't even believe it. Give it a shot if you'd like, you have nothing left to lose (I certainly didn't with the migraines- I was so desperate). Here's the vid- ua-cam.com/video/i7BM5Zk940I/v-deo.html

  • @saigedion7753
    @saigedion7753 5 років тому +24

    I love watching your videos because they post awareness, and show you don't have to be a victim, you are a survivor

  • @elizabethmion4595
    @elizabethmion4595 5 років тому +60

    We NEED a tutorial on this makeup look!!

  • @gojobaeeeughhhhh9251
    @gojobaeeeughhhhh9251 5 років тому

    I am a cipa patient ,and it is an autosomal recessive disorder of the nervous system which prevents me from feeling pain,temperature and sweatinh.i saw your videos,sometimes i feel jealous people can feel pain while i cant.i saw your vids and u are in pain but you still smile.you are a wonderful person.thank you.

  • @Jessica226.
    @Jessica226. 3 роки тому +10

    Sleep in peace beautiful soul

  • @lifewithcysticfibrosis4521
    @lifewithcysticfibrosis4521 5 років тому +4

    Get better soon beautiful! You got this warrior 💪🏻

  • @summerairsaltyhair
    @summerairsaltyhair 5 років тому +1

    I’d love to see a video all about your bullet journal! I started one a year or so ago and then didn’t have the motivation to keep it up even though I know it could be super beneficial for me to track all the little tasks and medical related things too. I’m so glad to have come across your channel and just love your spirit! ❤️

  • @laraleen6381
    @laraleen6381 5 років тому +5

    Hugs Amy ❤️! Despite of what your going through, you are very beautiful..Be strong 🤗🤗

  • @xxjustpastelxx3079
    @xxjustpastelxx3079 5 років тому +32

    My nephew had hip dysplasia we found out when he was nearly 1 i believe 2 weeks after we found out he had hip braces put on till he was 2 and a half hes now three and has no major problems but you can see he has it a bit when he runs xxxxxxxx
    Nobody will see this but just wanted to share that :D

    • @shannonphipps938
      @shannonphipps938 3 роки тому

      I had a similar experience I was in casts most of my childhood. Thanks for sharing

  • @paiged6550
    @paiged6550 5 років тому +2

    You are so strong, we love you and support you! 🖤

  • @janemaas4225
    @janemaas4225 5 років тому +1

    Oh my goodness, when I saw the three pictures of you in the hospital, I thought you had gone back in for more surgery. I’m so, so glad that this was an update of your progress. Keep all the positive videos coming, and you look beautiful ❤️💜

  • @crystalmcmurray9181
    @crystalmcmurray9181 5 років тому

    You are so strong and such a fighter. You give me such hope and strength to just keep looking forward with all my medical issues. You are such an inspiration to me. I can't tell you how much your videos get me through each and every step of the doctors finding out more and more about what is going on with me. The 14th i go in for more testing to find out more on my digestive issues. Because of your videos I finally fought to get more testing on that because I noticed that some of the things you were describing in your videos were symptoms I have had for years and have just continued to get worse. Everything I eat makes me sick. I literally do not hold anything down anymore. Since July 4th I have lost nearly 30 pounds. Doctors are finally taking notice and decided it was time to do more testing.

  • @shadieejj3023
    @shadieejj3023 5 років тому +1

    Its so sad to know a person can go through such a big ordeal having gastroparesis then hip dysphoria its so,,im a glad to see how well your doing your really pretty keep going strong babes💕x

  • @aryannewilcox1194
    @aryannewilcox1194 4 роки тому

    I have hip dysplasia too, I’m so sorry you had to deal with this terrible condition. In my experience I wasn’t diagnosed until it was at the worst stage. I couldn’t walk and had to have surgery a couple days later. I have screws and a metal rod down my femur because my bone doesn’t have the calcium to make it strong so it’s very weak and thin. I still deal with pain everyday, but I’m so happy to have found your channel to finally know someone else you deals with what I have as well. Hope your recovery went well 💗

  • @ellagrace5623
    @ellagrace5623 5 років тому +7

    You looked so pretty in this video! That red lip suits you!

  • @norajung4513
    @norajung4513 5 років тому +1

    Thank you for the update. So glad you are well and starting to heal.

  • @boohound24
    @boohound24 5 років тому +10

    I have bilateral hip dysplasia and got my hips replaced 11 years (right hip) and 10 years (left hip) ago. Mine is so severe that I've had almost 50 surgeries starting when I was a year old. I admire anyone who has any degree of hip dysplasia and you even more for sharing this and your medical journey of your life! You are a bright light to others!

  • @kimberlytippen4436
    @kimberlytippen4436 5 років тому +34

    Yes she is alive and doing great 🙏🙏 always check her twitter and insta..
    Praying for u Amy ❤️💙

  • @knuffelbeer193
    @knuffelbeer193 5 років тому +20

    DO NOT SHAVE YOUR LEG WITH A RAZORBLADE THE DAY OF THE SURGERY! The razor can make tiny little wounds that can get infected in the dirty environment of a hospital. You don’t want that anywhere near a surgical wound. Surgeons never shave with a razorblade, they use cream or an electric razor when necessary.

  • @kiyamcqueen3764
    @kiyamcqueen3764 5 років тому +1

    we’re on the same post op week! i had surgery recently also but i hope all is well and you’re recovering 💓

  • @blakekemp9248
    @blakekemp9248 5 років тому +61

    I am not even a teenager ager yet and my life this year has been hectic with hospital, you really don’t understand how much you inspire me. You are really amazing 🤩

  • @Mt2w
    @Mt2w 5 років тому

    I have had this same surgery in my both hipjoints. Didnt get better at my left side so i got hip replacement 3 months ago. This is so rare surgery in my country surgeon said he makes these few in year. So nice se hear other patients stories🙂

  • @TeethHoarderr
    @TeethHoarderr 5 років тому +17

    I have someone with a eating tube at my school and everyone stares at her and I feel bad because she always seems so down

    • @morteparla6926
      @morteparla6926 5 років тому +12

      Do her AND yourself a favor, and go talk to her. You'll make her day, you'll probably make a very good friend, and you'll clear your mind knowing you're not contributing to the pain everyone may be causing her.

    • @TeethHoarderr
      @TeethHoarderr 5 років тому +2

      @@morteparla6926 I will

  • @dreeanna7858
    @dreeanna7858 4 роки тому

    I as well have hip dysplasia. I had four hip surgeries, where they put pins in my hip like you described. They reconstructed my hip and pinned it together. Well I had an accident while healing on crutches, and I fell down some stairs and broke the pins they placed in my hip. So I had surgery to remove the broken pins and they had complications removing them, they put a few screws in. Then when that didn't work they finally gave me a FULL HIP REPLACEMENT!! I had my first surgery when I was 14 years old. I had my hip replacement when I was 19 years old. I am now 28 years old and am starting to experience issues with my hip on the bad side. It was ALOT of SEVERE PAIN!! I as well had a doctor tell me nothing was wrong then had a second opinion. So we have ALOT in common my dear!! We are tough cookies to go thru what we have!! Much LOVE!! 💕💞💓

  • @chelsiemt2356
    @chelsiemt2356 4 роки тому

    I want to say that my hip was popping and hurting.. well it was pooping for a few years getting worse over time and pain increasing..to find out I have fmi.... and this video brought awareness to it to make me seek medical help thank you!

  • @TheMartinSan
    @TheMartinSan 5 років тому +12

    As someone who has spent many years with an ostomy bag and catheters, I can totally feel with you. I really admire your openness about it. I felt sooo unattractive during that time, which makes me feel bad since it saved my life. Fight the good fight!

  • @whospatrii
    @whospatrii 5 років тому +17

    I’ve been watching your videos all day and I really admire you!💗

  • @Julia-mx8nf
    @Julia-mx8nf 5 років тому +12

    Hii!! I hope you are doing ok💕 When I was a baby I had hip dysplasia aswell!! Your the first person who I know who has this issue!! I also had the surgery but I had it pretty early in my life but I was is a half body cast and half body brace for a good amount of time! Love you!!

  • @vigilfamily7320
    @vigilfamily7320 5 років тому +16

    Girl you’ve been though everything. Your so brave ❤️

  • @sarahbrown9182
    @sarahbrown9182 5 років тому +2

    I enjoy your videos. I don't have EDS, but have two autoimmune diseases. Im living with fibromyalgia, Lupus and RA. It sucks so bad and I'm in a lot of pain daily. However, I work through the pain. I have always said fake it till you make it. I have a motto to give everyone a smile because you never know if it's the only one they will get.

    • @sophiehobley828
      @sophiehobley828 5 років тому

      Is fibromyalgia an autoimmune condition? I've never heard that before - any sources?

    • @sarahbrown9182
      @sarahbrown9182 5 років тому

      I forgot to mention the second disorder is I have Lupus as my second autoimmune disorder. I got ahead of my thoughts while typing last night

  • @alyssawssinging4039
    @alyssawssinging4039 5 років тому +13

    Hey Amy u are amazing thank you for sharing with us❤️

  • @linamsd8134
    @linamsd8134 5 років тому +3

    God bless u i wish u get well soon stay strong ❤❤❤❤

  • @claireyfairey07
    @claireyfairey07 5 років тому

    I just had a total hip replacement for hip dysplasia last month and hopefully its the start of a pain free life!

  • @TattedMunchkin69
    @TattedMunchkin69 5 років тому +13

    I hope you start feeling better soon. God bless♥

  • @13mcr4life
    @13mcr4life 5 років тому +8

    My mum just had her hip replaced and the NHS gave so many add ons to help her at home. The toliet chair, something to help with putting on socks, a grabber devise, and chair for sitting up right and crutches

  • @kyliegray2397
    @kyliegray2397 5 років тому

    I love how you know your going through this but never give up your always positive about everything and don’t listen to people with bad comments cause your amazing and I love you soooo much I know you can get through this and I am 12 and I have asthma but I never give up and I know you won’t ❤️❤️❤️
    Love you ❤️❤️❤️❤️❤️❤️

  • @honeylavilla9222
    @honeylavilla9222 5 років тому

    Be strong girl!! Im praying for your health.. i just subscribed to your channel and i am binge watching your videos. Love love love

  • @kt_.9999
    @kt_.9999 5 років тому +1

    My sweetheart I really don't know what to say but you are amazing I hope you get better soon and take care ♥️

  • @veevee306
    @veevee306 5 років тому +5

    What you have are called forearm crutches, and are more common in the US for people who use crutches long-term for the exact reason you listed--to avoid chronic underarm pain. So glad you're recovering okay!

  • @coconutshells
    @coconutshells 5 років тому

    Im so sorry to hear it was that horrible for you! Im 3 weeks post op from this surgery. While everyone's recovery is different, my initial recovery and hospital stay was a walk in the park compared to yours. I had severe left hip dysplasia and had my surgery July 19. Just so people dont get so afraid of the pain, id just like people to know my surgeon does these with NO epidural and ONLY oral pain meds after recovery in the PACU. I did wake up in some pretty bad pain but it was so much less awful than I imagined it would be and the staff quickly took care of it. I needed breakthrough IV meds twice during my 3 day hospital say and I was well enough to FLY HOME on the 3rd day as well. Dont get me wrong, this is pretty painful and miserable for a few weeks but I think it will be totally worth it! I put off having this surgery for about 2 years just because I was so scared! Im still in pain 3 weeks out but only on Tylenol a few times a day. Obviously, you have a much more complicated health history and I am SOOO happy to see you looking and feeing so well! Congrats on making and following through with a big decision for your health and happiness! You are so brave. Wishing you the best in your recovery.

  • @Victory.In.Jesus95
    @Victory.In.Jesus95 5 років тому +6

    I’ve had 2 epidurals in the past 2 weeks. The first one was the exact same experience as the one you described. So I feel you 😐

  • @damio2327
    @damio2327 5 років тому +6

    I never knew you had hip dysplasia

  • @jamybray-cook7691
    @jamybray-cook7691 5 років тому +1

    The people that came in before the doctor did to explain the procedure are the residents.(: they actually have their MD and they’re doing their years of residency.

  • @KikoyASMR
    @KikoyASMR 5 років тому +7

    I have hip dysplasia in my left hip, I spent so much time at the hospital when I was born until 2 years old, even I had 7 surgeries and a lot of treatment I still feel pain (sometimes I cry a lot because the pain is insane) in my left leg and hip when the temperature is cold or when I walk too much, and I had two long scars around my hip and pelvis, it makes me feel a little bit uncomfortable and when I was a teenager I really hate my body for that, but you really inspire me and see your videos with the best attitude is such a inspiration, love u

    • @shannonphipps938
      @shannonphipps938 3 роки тому +1

      Me too! My left is the worst but I have bilateral hip dysplasia. I've had around 16 surgeries and I'm getting my left hip replaced in 4 days!!! I'm so excited 😁

  • @dinosaurfun5965
    @dinosaurfun5965 5 років тому

    Blimey, that's some journey! For others who haven't used crutches before (when you have one good leg) my physio told me, when going up stairs, good leg up to heaven (going up) bad leg first down to hell!! . But Amy I hope you continue to get better and enjoy life just a bit better every day. Your explanation was wonderful, full of description but at the same time easy to understand . Love and hugs xx 🧓🇬🇧😊🦖

    • @sophiehobley828
      @sophiehobley828 5 років тому +1

      My mum's a physio and she taught me that too :) also to get in cars it's usually much easier to sit down first and swivel rather than try and get in the normal way. But that's not got a catchy name so we just yell "bum first" instead lol!

    • @dinosaurfun5965
      @dinosaurfun5965 5 років тому

      @@sophiehobley828 physio's have a lot of little sayings like " use it or lose it"
      A side note did you know that every movement a human can make is the result of a muscle contracting ? X

  • @alysonjade2461
    @alysonjade2461 5 років тому +5

    So glad you’re starting to feel better. Thanks for sharing!!!

  • @joycewyatt2550
    @joycewyatt2550 5 років тому +17

    Love your makeup in this video. I imagine you have a lot of pain with hip dysplasia and eds makes it worse. Take care

  • @loveforbirds8793
    @loveforbirds8793 5 років тому +8

    Incredibly beautiful and strong woman you are..hope you are fine you haven't uploaded video for so long💔

    • @amereaz
      @amereaz 5 років тому

      yes, Amy, we hope you are OK! we miss you 💔

    • @loveforbirds8793
      @loveforbirds8793 5 років тому

      @@amereaz💔

    • @loveforbirds8793
      @loveforbirds8793 5 років тому

      Now I'm really getting worried about her..plz someone tel me she is oky

  • @nancymoran9422
    @nancymoran9422 5 років тому +5

    I follow you from Mexico, puebla. 💕

  • @emilyrose1381
    @emilyrose1381 5 років тому +5

    I was born with DDH (hip dysplasia) and luckily went through surgery when I was between 1 and 2 years old. My hip socket hadn't formed properly and luckily I went through most of the struggles when I was younger but I've still been left with a huge surgical scar from 2 surgeries as well as near constant hip aches. I've genuinely never met someone who's had the same condition so it's so interesting to hear about someone else's experience, especially since I barely remember mine.

    • @emmab.9279
      @emmab.9279 5 років тому +1

      I was born with really severe DDH, my hip was entirely out of my socket and they didn't catch it until I was almost three years old. By the time they caught it my hip joint had completely disintegrated. I went through surgery as soon as they caught it, and they had to use the bone from my ilium to rebuild my entire joint (as a result of that I only have a visible hip on one side). I still have a giant scar as well, going from where my hip bone would be to the inside of my leg, and another one where they had to cut my tendon to keep it from yanking my leg back out. I have chronic hip pain, arthritis, and mild osteoporosis, as well as knee and foot problems as a result of them catching it so late :((. But it's so cool to finally see people who went through the same thing!! Everyone always says its a common problem but this is the first time I've ever met people who also had the condition!!

    • @lilycunningham3227
      @lilycunningham3227 3 роки тому +1

      Hi did you know that hip dysplasia can come back if you’ve had the operation such a long time ago, you should get it checked out you shouldn’t still be in that much pain, I hope you’re okay xx

  • @IzzyKDNA
    @IzzyKDNA 5 років тому +1

    Hey! I had knee surgery 8 weeks ago, and I was told I would need to be awake for the epidural. I was in the room terrified of the epidural and the next thing i knew, I woke up from surgery and they had done the epidural while I was under anesthesia! lol I hope you're recovering well!

  • @willieobermann5305
    @willieobermann5305 5 років тому +3

    We are interested in everything you share with us!!!
    You are brave, courageous, tough, pretty we are so glad you share your amazing life with us!!
    AND.....your make up looks LOVELY today!!
    🌹🌹🌹🌹🌹🌹
    🌹🌹🌹🌹🌹🌹

  • @NurseMickiLea
    @NurseMickiLea 5 років тому +5

    Excited to hear how you are doing.♥️♥️

  • @clairemercier3969
    @clairemercier3969 5 років тому +3

    Hello dear Amy! Thank you for this video. You are SO brave and inspiring. (Love your make-up and your green sweater (jumper)).

  • @Amnion
    @Amnion 5 років тому +1

    You will always be awesome and beautiful don't let no one tell you different!

  • @buloydonaadventures4737
    @buloydonaadventures4737 5 років тому +6

    You are a strong woman. I love how you are positive all the time! keep it up! 😊

  • @kaitlynrinke5235
    @kaitlynrinke5235 5 років тому +4

    Makeup looks amazing!!! Thank you for the informative video! Such an inspiration! You go girl!!

  • @annmarie9163
    @annmarie9163 5 років тому

    amazing video Amy. you looked beautiful. great recount of you surgery and recovery

  • @sophiat.8712
    @sophiat.8712 5 років тому

    Hiya miss 👋 I’m so sorry that this stuff is happening to you ☹️ you seem to be taking it well, and way better than most ppl would. I know I wouldn’t 😭, I was recently diagnosed with EDS as well after being misdiagnosed for many years and I still don’t even really know what it is besides the basics. I was searching on the web for information and here on UA-cam for documentaries and stuff that could give me more insight when I found your channel by chance and I started watching some of your videos documenting your experiences with it but in a way that is more trustworthy than watching these documentaries meant to shock people. I’ve already had to have a nuss procedure done for a severe form of pectus excavatum (having a hard time healing bc I slipped a few ribs by accident 😭)and will be seeing a neurologist soon about some troubling issues like syncope and tremors and such. I’m kinda learning that not all EDS cases are the same, like at all. This is a very versatile disease with a multitude of possible symptoms and I learned that that’s ok bc no matter what happens everything will be ok, we can totally handle it ✌️ have a great day miss and thanks for the educational videos, I’ve learned a lot about my disease 👋

  • @wombats5754
    @wombats5754 5 років тому +4

    “You can’t really carry anything when you’re on crutches”. Preach girl! That’s the story of my life lol

  • @AntonioGonzalez-tz8rx
    @AntonioGonzalez-tz8rx 5 років тому +3

    Have watched a few of your vids, and I always feel uplifted after watching. I have a chronic illness, and I thank you for sharing openly, being genuine, and for teaching us to enjoy the moment and make the best of our situation as you do. You’ve helped me realize I CAN live life with a chronic illness, and all the extra stuff we have to do to survive is just part of our daily routine, nothing more and nothing less. And I totally recommend (as you mentioned in one of your videos) for people with chronic illnesses to speak to a therapist/psychologist to help maintain mental wellness because chronic illness does affect our mental health. And it’s nothing to be ashamed of!!! God bless you and wishing you the best!

  • @elliewaters997
    @elliewaters997 5 років тому +2

    Serious question :P what happens if you need a poo? After surgery? That is literally my biggest fear xxx

  • @rainataylor5805
    @rainataylor5805 5 років тому

    Could you pleasee do a video and list and describe your medical issues? That'd be really interesting and helpful to have all in one video? 💕

  • @alexalvarado8324
    @alexalvarado8324 5 років тому +1

    You are an inspiration 😍

  • @babygirl5452
    @babygirl5452 4 роки тому

    I have severe hip dysplasia 😭 and yes its very painful, thanks for the information.

  • @chemasbang2445
    @chemasbang2445 5 років тому

    You are so brave. I admire you so much! Get well soon ❤️

  • @Whenurmissioncalls
    @Whenurmissioncalls 2 роки тому +3

    RIP AMY! I JUST FOUND YOUR VIDEOS AND YOUR INSPIRING PEOPLE EVEN FROM THE GRAVE!

    • @darrahh8885
      @darrahh8885 2 роки тому

      Did she pass?!?!

    • @hqgirl567
      @hqgirl567 Рік тому

      @@darrahh8885 apparently she’s dead I thought she was alive

  • @brandipaez9595
    @brandipaez9595 5 років тому +2

    I genuinely love your videos because you are inspiring and we get educated by your videos... also you bring the wall down on many stereotypes about illness etc. thanks beutiful 😊

  • @atmaprakash5651
    @atmaprakash5651 5 років тому +2

    Maam how strong ur!😲😲..u r inspiration for people who have the bad time..take care god bless u

  • @youreviewer
    @youreviewer 3 роки тому

    You've earned every bit of good that you're feeling -- a tremendous accomplishment. I follow you because many years ago my wife had complete intestinal paralysis which was called Ileus here in the U.S. She was in hospital for a month, and the doctors told us it would be permanent and she would have reduced life expectancy with only TPN for food. But we snuck an exceptionally adventurous acupuncturist into the office of a very special doctor who knew both my wife and me as well as the acupuncturist. With daily acupuncture her paralysis began to improve, and after 4 weeks she took her first sips of tea that she could keep down. Within a week she could swallow and keep the dense Ensure food supplements, and her naso-gastric tube was removed. I know your history is very different from hers, but I just wanted to put in an anecdote of hope that things could change for the better. It has happened and could one day happen to you. Thanks for sharing and for putting in the huge effort to make this video. I'm sure it will help many, many people as time goes by.

  • @sarahw7718
    @sarahw7718 5 років тому +2

    I had an exploratory surgery a week ago and only had 2 small incisions but when I woke up i was in a lot of pain and needed something for it. I can’t imagine the amount of pain that surgery caused, you’re so strong for going through that

  • @DieAlteistwiederda
    @DieAlteistwiederda 5 років тому

    I have a different variant of hip dysplasia where my leg bones are completely fine and even the socket isn't that bad it's just too small for my leg.
    Hip dysplasia is really a lot of different things and I also wasn't diagnosed until I was already 23.
    If I could get sockets that are about one size bigger I probably would be fine.
    You can clearly see it in my xray, it's just all way too tight and the spaces aren't enough for normal painless movement. Grinding bone against bone definitely isn't a good feeling that's for sure and while my hips joints can't really dislocate because they are stuck that tight they kind of jump and get slightly stuck in a position which is extremely painful.
    So far they definitely won't operate on me because I can still walk good and surgery could do more harm than good right now.
    Just turned 27 today so we will see how long my joints will work.

  • @globulas1
    @globulas1 5 років тому +2

    I have stumbled upon your channel and watched many of them. You are an inspiration to young people and everyone with chronic illness! .. Keep going Amy!

  • @andrewcaldwell6483
    @andrewcaldwell6483 5 років тому

    Hey Amy!!
    Can you do a video on the kind and type of clothes you wear on a day to day basis. Things that you find are comfy for someone with EDS, especially with MCAS and the stupid skin sensitivity and reactions that can happen. What clothes are comfy or best for someone that has the tubes you have. Also best bedwear...random, but it’d be really helpful!
    Flick xx

  • @exolbtsarmyforever4689
    @exolbtsarmyforever4689 5 років тому +2

    When i get a little cut I feel like I'm going to die and she has this problem but still she is so positive...

  • @salhaahmed9187
    @salhaahmed9187 5 років тому +3

    So brave

  • @PheonixStarsx
    @PheonixStarsx 5 років тому +2

    Whenever I watch these videos I get horrified that one day I go to the doctor and the next I have a tube in my nose and has to have stuff on me just so I can stay alive..can I talk to someone in the comments please ?

    • @kirstenornelas881
      @kirstenornelas881 5 років тому

      It caught me you said that you are afraid of the tube feeds, I have had gastrointestinal issues my entire life. I have fought the line between trying to eat enough to keep my weight up and keep myself alive and the fact that no matter what I eat I'm sick and in a lot of pain within a few bites. It is so frustrating to be starving and have to hand by plate to the hubby to finish after the second or third bite because I'm already in too much pain and nauseated to the point I just can't take another bite. I almost pray they put me on tube feeds and or tpn soon for at least awhile so my stomach can have some time to just rest (if that makes since). I have developed hypoglycemia due to my inability to eat. I also have a hard time swallowing food and liquids, esp with liquids if something is room temp I choke every single time and have for many years but it's gotten worse lately. Used to be that it only happened when things were not either very hot or very cold, anything middle temp, but for the past oh I'de say 6 months I'm now choking (things go down the breathing tube instead of the esophagus) on everything! It's getting difficult because then I am coughing for the next 20 min and feel like my lungs are going to explode. I'm sick and tired of being sick and tired but still here and still fighting. My gastrointestinal issues (symptoms) began around 6 out 7 years old that I remember but my parents say I suffered from what they thought was colic as an infant as well as consistent tummy aches as a toddler. I couldn't eat burger when I was growing up or I'de vomit, I remember on spaghetti nights eating just noodles with butter and salt because I couldn't eat the sauce due to the burger. I also remember not having milk other than on cereal and I was allowed to dump out any left milk in the bowl after the cereal was gone but my brother was not. Just little things I remember from childhood that we connected later in life. Now I'm reaching 36yrs old and the things I've been doing with watching what I eat and such aren't working anymore so I am to the point myself where I'de give anything to be on a tube just to get the nutrition I need and have some time to not have the stress and pain and fight of keeping my blood sugars up and not being in so much pain and not feeling like shit because my sugars have tanked. Also past week my sugars are very unstable and I have been waking in the middle of the night and my fasting sugar is HIGH which I've never ever had high sugars before and then after eating my sugar drops and drops until by the end of the day I'm low again I'm so frustrated. Also recently found out for a work drug test that while I passed the test they noticed my creatinine levels were high and apparently high enough they got a note to tell me about the finding and that I need to check it with a doc. Anyhow hun I think if you're still worrying about it you are prob still in the I'll say well enough stage you're not in the need it state yet but I could be wrong lol. Cuz in my case I'm ready for the extra help and not having to try to keep shit down long enough to get something from it and I hate vomiting. I realize these things may still happen but I do think it will be a bit better in that I'll finally be actually getting nutrition because I know 4 bites of foods a day if that isn't going to sustain me for looking. Good luck luv, talk with your doctor openly about your fears your doc may be able to help you feel much less anxiety about that possibility and may be ableto say oh you're a long way off from that and give suggestions to help you avoid that longer.

  • @jenpower1876
    @jenpower1876 5 років тому +2

    Do you ever worry about becoming addicted to the pain medication? I am just curious because opioid addiction is a big problem here in the U.S.

    • @sophiehobley828
      @sophiehobley828 5 років тому +3

      addiction is such a complex thing - and in the USA I feel like they handle pain meds in such a weird way, they give out SUCH strong pain meds for tiny things for a few weeks, so people are bound to get high on them and then enjoy that feeling and want more. In most countries they start at the bottom and work up, and yes that means that sometimes you're in pain for a while before they get you to a dose that works, but it means you take the weakest medication that controls your symptoms - and then, as long as you take it as prescribed by your Dr you shouldn't ever actually get high! What can happen is your body can develop dependancy, which means you'd have to taper off pain meds really slowly if you ever were able to stop them, but a physical dependancy is different to a mental addiction. PLUS in the USA I know so many people who live in constant, debilitating pain, who can't get access to painkillers because of the "opioid crisis" which is just cruel as far as I can tell.

  • @SuperToadie
    @SuperToadie 5 років тому +2

    Amy I think that you are awesome. I love your courage, strength and upbeat attitude.. 💖

  • @thedisabledpenguin9826
    @thedisabledpenguin9826 4 роки тому +1

    This video hit too close to home... you're very brave. Hope I'll be to when I get my surgery. Love you 😘😘

  • @rachelnewman2820
    @rachelnewman2820 5 років тому +1

    Normally they don’t like you to shave before surgery since it opens ur pores up which makes u prone to more infections.

  • @theoconnorfam9097
    @theoconnorfam9097 5 років тому +1

    Yup the same thing happened to me with the first doctor, he told me the pain was in my head! Second doctor was like yeah you need surgery! Like major surgery, I had my pelvis done and my femur was cut and turned as it was in the wrong position too!

  • @amydeakin4149
    @amydeakin4149 5 років тому +1

    My little boy was breech throughout my whole pregnancy, thank god he turned last minute, but he had to have an ultrasound scan to see if he had hip dysplasia which he didn't.

  • @brigettedupnik7611
    @brigettedupnik7611 5 років тому +1

    You can hear somethings not oki in your voice and this is only your second video I’ve watched. Thanks for making all of these!

  • @aysaaas.9005
    @aysaaas.9005 5 років тому

    U are beautiful. Stay strong dear

  • @kc-xb1zu
    @kc-xb1zu 5 років тому +1

    I recently found out I have a slight case of hip dysplasia on my right hip. I found out on accident when I got a pretty bad pelvic/abdominal surgery at a specialty surgeon. He found it during the MRI/X-rays but since I’m only 13 I have to wait to get my hip fixed because he didn’t want to make the surgery more painful then it was. This video really helps because I’ve started feeling hip pain when I play my sports so I have a feeling it’s getting a tad bit worse. So one day I’ll have to get the surgery. Thank you for your videos and I’m glad you’re feeling better 💕

  • @jessicagula5833
    @jessicagula5833 5 років тому +1

    Hope you haven’t already answered this, but since you have a central line (Hickman) why don’t they do your bloods thru that? Why do they still take them from your arm? When your in the hospital do you have an IV in your arm for fluids still?

    • @heyitssarah7545
      @heyitssarah7545 5 років тому

      Jessica Gula Taking them from her arm reduces the risk of infection, I believe

  • @animepabu5526
    @animepabu5526 4 роки тому

    I kinda have hip dysplasia only gets fucked when i move my leg weird and hurts. But thats all nothing sever but like it happens so randomly and its never expected so like im always like fuckkkkk

  • @didi7462
    @didi7462 5 років тому +1

    Omg now I know who you remind me. Of Ava Michelle form the movie "Tall Girl". You are so beautiful!! 🤗

  • @livingwithhope235
    @livingwithhope235 5 років тому +1

    You are so inspiring! Thank you for always being so real and doing these! I have Gastroparesis and POTs and just had a feeding tube put in and you definitely inspire me and you inspired me to start YouTubing my own journey through this. Keep inspiring and keep fighting! You’re an amazing soul! ❤️❤️❤️

  • @michellelee611
    @michellelee611 5 років тому +1

    When i got IV on my right arm i am really sad and wouldnt want to move coz i am scared that the blood will clog the pipe. But seeing you really struggle with your illness make me felt so grateful. Goodluck on your medication!!

  • @toodlesbookworm
    @toodlesbookworm 5 років тому +9

    How did you know that your stomach stopped working? Or did it ever work? I have EDS, and have always had trouble eating in the mornings, but recently I’ve been throwing up and unable to eat for a couple of days now.

    • @hannahkaur3761
      @hannahkaur3761 5 років тому

      Hey there! I've posted this a few times to those that have mentioned they have EDS, so I wanted to the the same for you. I watched a podcast (by an MD) who had a MD guest speaker on. She also has EDS, and was able to do a lot of significant healing not just for herself but her daughter too. It's definitely worth checking out, bc that same podcast hosted another person on migraines (my health issue) in a different video, and I've implemented the protocol to such a degree of success that I can't even believe it. Give it a shot if you'd like, you have nothing left to lose (I certainly didn't with the migraines- I was so desperate). Here's the vid- ua-cam.com/video/i7BM5Zk940I/v-deo.html

  • @aprilmaree1942
    @aprilmaree1942 5 років тому +2

    I have severe hip dysplasia, though is not fixed through my multiple surgeries from 2 to onwards (17 now). I actually need a complete hip replacement around 30 and just have to cope with the pain until. :(( Thank you for opening up about this i don't see many people with it. Xx

    • @xelisha2139
      @xelisha2139 5 років тому +1

      April Maree I hope you get your surgery soon and get it all fixed and free from pain (or somewhat). Until then you’ll be in my prayers. Hope you get better soon. So sorry to hear about this, thank you for sharing with us. xx

    • @aprilmaree1942
      @aprilmaree1942 5 років тому +1

      @@xelisha2139 aww you're too sweet xx

  • @donkafacciolo4638
    @donkafacciolo4638 5 років тому +1

    So glad that you’re getting better after your surgery!!! ❤️ Thinking of you... and hoping for the best for you!!! Stay strong and positive!!!

  • @kacieowens5114
    @kacieowens5114 5 років тому +6

    I can’t keep up with every illness/medical problem she has. Wow

  • @eduardopadilla5505
    @eduardopadilla5505 5 років тому +1

    You are doing a great job Amy keep doing your best and enjoying life to the fullest! :D

  • @frankrodrigues5742
    @frankrodrigues5742 5 років тому +1

    Muitas pessoas te amam e eu também te amo,sou diabético insulino e não é fácil, continue firme,sei que é difícil,mas você tem que continuar, você é muito bonita abraço e beijos moça bonita.

  • @nancymoran9422
    @nancymoran9422 5 років тому +2

    Hi!!!?💖