I get the same reactions from people when I still eat something. I even had a nurse say I was crazy, knowing how sick it makes me. But I LOVE food! I MISS food! And as crazy as it sounds, I still CRAVE food! It's so hard to explain or understand, even for gastroparesis sufferers.
I have a different condition but can't eat much food either. Sometimes I'm on just fluids for months and other times I can manage things like custards etc. I do really miss food sometimes.
@@bkornytoo51 Same. My family always warns me to not eat so much or becareful of what I'm eating and I snap at them only to become violently sick and apologize to them for being bitchy when they were right, only to repeat it all over again next time my appetite finally comes back and I get so painfully hungry. I love food too much and also am literally starving so it is hard to not overdo it eating.
@@_epic_dyslexic_ While I'm actively ill, I am very careful . . . now anyway. The first couple of years were a harsh learning curve. Now, not to be gross, if I want to eat something, I chew it, taste it, but I spit it out. A lot of times I can't do even that, but when I can, lol, I do.
It wasn't gross. Your body is not gross. You aren't gross. You're just trying to survive. :) Your video may help lots of people know what's going on with their bodies and that's great.
Rest in peace Amy you are no longer suffering Enjoy all your favourite foods now there's no worry of not being able to eat or getting sick You were such a strong person
Im,14 and have gastroperes, type 1diabetes, and chronic pancreatitis. I am so thankful I do not have to have a full time tube. I had one once and I was the worst thing iv had to do.i understand how you feel. I'm sick so,much,that I have to be homeschooled. I'm actually up at 3:15 am not able to sleep right now. You might not ever see this since you posted this over a year ago but I felt commenting.
My biggest fear is vomit - like I’m a huge emetophobe but this video helped me get through my fear. You’re so strong to deal with this on a daily basis!
I think when you have a chronic disease like that, not that you get used to it, but you expect it. Like I used to hate needles, but when I got diagnosed with Diabete type 1, I kinda just had to deal with it.
Rest in peace Amy it’s sad that you can’t see this but tens of thousands of people even millions miss you and you are out of pain now and resting peace fully R.I.P Amy
So much respect for you and your ability to carry on through all that pain, and for sharing what you go through. Vloggers like you really do help others with chronic illness feel less alone and educate healthy folks so they can have more empathy. And don't worry about showing stuff that's graphic--if you can be brave enough to live it, to film it, and to share it, then we can all be brave enough to watch it.
I'm prepping for my colonoscopy tomorrow, dx'd with gastroparesis a couple months ago. My belly hurts so bad, I appreciate the candid approach you take in your videos. Thank you!
I think this is a fantastic awareness video. It is what it is, if I want to understand something I want to see the good, bad and ugly of it otherwise what's the point. Thankyou for posting this, you're a star.
people with Chronic Illnesses/pain are the strongest people I know. I’m a part time carer for my mum (I’m 13) as she suffers with Fibromyalgia, Osteopetrosis, Nerve Damage, Hip Dysplasia and many more unknown conditions. She’s only 31. She’ll be in a wheelchair in a couple years time. All of her conditions are incurable. The only thing doctors are doing is giving her pain relief which her system is already used to and so she is constantly in unbearable pain and can’t even walk properly. It’s so so sad hearing other people’s struggles and stories and we all need to stick together and support eachother ❤️
Katelyn x Your mother is extremely lucky to have a daughter like you that is willing to give up part of her life in order to help her with her illnesses.
I’m a part time cater of my mum as well. I’m 22, and she’s 45. You are so strong. I get what you are going through. It’s really hard, but I know that we both can probably appreciate how strong our bonds are with our mum and that is such a lovely thing. Keep her safe during this time, sending love and and smiles ❤️
Katelyn x hi, my mum is like yours and has fibromyalgia arthritis tinitis ME and etc, if you wanna talk give me your Instagram and we can talk about it :)
I feel for her... I had bone cancer in my right leg and 30 surgeries on it. I have had two bad car wrecks, one damaged most of the left side of my body, dislocating my knee, hip, broken ribs, broken collarbone. Got stabbed and ten surgeries on my stomach and my bowels quit working so now I only shit once every 4-6 weeks when I am hospitalized for an enema.
Hi I'm sam. I was just diagnosed with GP and I have a feeding tube now and I'm really glad I found your UA-cam channel its helped me out a lot and its given me so much comfort knowing I'm not alone. So ThankYou
I am sorry yours started so early. I was in my 30's before mine started and went 10 yrs undiagnosed. So lucky 10 yrs ago had a gastric pacer placed and changed my life. I still have nausea and limited food amounts I can eat but I can LIVE! I CAN EAT SMALL AMTS WITHOUT THROWING UP! I am now 61 yrs old and live an almost normal life. Gastroparesis does NOT run me!
well i'll never again complain about running out of milk for my coffee, you have shown just how entitled we tend to feel how ignorant we get, thank you for bringing me back down to earth you are an inspiration.
I have the stomach flu currently, and I’m just amazed at how you are able to feel this way all the time... I’m a big baby right now because I absolutely hate vomiting... I admire your strength, truly!!
brain: you have a phobia of vomit me: yes and an interest in medical videos brain: just don’t me: clicks video (it’s fine i’m actually using this as an exposure for my phobia. i’m really getting better every day! lovely video)
At first I thought, do you really feel like you want to continue living like this in constant pain and suffering and not being able to have a normal life? But then, I think that what you do you is so hard to achieve for many and they, even me, I would give up on this. You have the will to survive, you feel power in yourself despite it all and you deseve all the best.
I have IBS and find that sometimes that in itself is hard enough to deal with (comes and goes), but man, what you go through is just beyond. I can't even fathom my symptoms times like 100 and every single day. You are strong, girlfriend, and that you still find reason to smile! Glad I came across your channel! Keep it up
Karis Hallson I also have ibs and I’m only 9 years old and I’ve suffered so much and sometimes I feel like I’m gonna puke but I never do and I have a fear of vomiting and vomit
@@ALPHADARKFANG you're obviously very uneducated. You're just as disgusting as turds of shit. Why? Cause u don't understand that IBS isn't always shitting yourself. Plenty of people experience IBS completely differently. Symptoms range from nausea, vomiting after eating or drinking, spastic colon, constipation, diarrhea, bloating...etc. Just cause you have IBS doesn't necessarily mean you instantly suffer of bowel incontinence. Stop shaming people for having medical issues just cause you find it gross 😃 now how about you shut the fuck up cause you can't handle being corrected nor being an educated respectful person.
You are one of the bravest person I’ve seen I UA-cam...you are so beautiful 😍 Thank you very much for sharing and bringing awareness about this condition. May God give you the strength to carry on...✨🙏🏻✨
You are an amazing young woman. As a mother, my heart goes out to you. I don't know what your personal beliefs are, but I hope it won't offend you that I want to pray for you, and pray for a cure, or much more helpful treatments.
Those were some kind, respectful words, Moss Lady. As an agnostic who's rarely enjoyed the respect of others for my beliefs, though I'm always thoughtful of theirs, it's very much appreciated.
Wish my mom was still here to care- I've been diagnosed with gastroparesis and barrett's esophagus and I suffer every day! But it does help to know that other people have this problem and I'm not alone! We all suffer in different ways but with the same outcome!
I was diagnosed with gastroparesis when i was 11, and this made me really emotional to watch because ive gone through so many of the same things. there are days where i'm bloated and vomiting and in so much pain i don't want to move, but I go to work or school anyway, because this is my normal. I've never been on a feeding tube but I can't count how many times i've been on a completely liquid diet. It's hard, because I know so many with gastroparesis have it worse than I do, but that doesn't mean i'm not sick, that i'm not suffering. thanks for sharing some of your story, it makes me feel a little less alone.
Hi! I have gastroparesis too and couldn’t keep anything at all down. Then, I started taking the medicine zofran five years ago. It has helped me so much.
What are the symtoms? I'm 35 and have been sick for years. Medications don't digest properly unless I eat a 2 week diet of curtain foods and drinks. I suffer every day. I feel like it is my hormones but then again I don't know. I have done a few test that I'm sure you are aware of... Just not the ultra sound yet
Amy, I feel for you, I see these almost exact same things everyday for almost the last 10 years with my wife. People who don't have gastroparesis or who aren't directly involved in their lives really don't understand how debilitating this disease is. I just came across your UA-cam channel last night as I am always looking for something or someone to help my wife and to ease her pain with this mess and I was shocked at the similarities you both have. I have witnessed doctors berate my wife, call her a drug seeker, have openly had her removed from their offices because they say she is faking her illness. The facts are there is absolutely no research being done here in the US for this disease but millions suffer. My wife has spent at times almost half of every year in and out of the hospitals, mostly due to line infections and feeding tubes becoming infected causing sepsis. I can't count the times I have come to the realization that she may not be coming home this time. You are a true warrior Amy, and thank you for spreading the word about this disease as it needs to be put out there for all to see and hear. I will keep you and all others suffering from this in my prayers. Fight and never give up!
@@nzkiwiange thank you, my wife is my world. I was dead serious about my wedding vows, and no matter what I'm staying by her side. Have a great day and wishing you a Merry Christmas!
Well done Amy. I think you showed real courage and inspiration posting this. I think as a vlogger people see what 10-15 minutes of your life in snippets each day. They think that as you are up, talking, with a bit of make up on that things are much better than maybe what you make out on IG etc. The thing is in these vlogs YOU decide what YOU want us to see each day. No one knows how hard it can get the other 23 hours 45 minutes of your day. People don't see the constant pain, the tears, the vomiting, and just in general feeling poorly. The bit I love is when someone who's outside of family/friends/professionals says 'how are you' my immediate answer 'I'm fine' being chronically ill we tend to play down our symptoms to others as unless they have been there, or had a loved one go through they just don't get it! I wonder at times if I turned round and said in reply 'things are hard' my ileostomy leaked twice in the night so I had to change it twice, I had a hypo of 1.8mmol/l on my continuous glucose monitor alarm wake my sister and I up on mine and her receivers to a Urgent Low so we had to correct that. My sats monitor alarmed several times during the night in the mid 70's despite having my oxygen and non invasive ventilator on so had to again wake my sis up to do some chest physio on me to get the gunk off my chest which made me cough till I puked up..... by that time my feed needed changed by then it was morning and I'm exhausted and worn out! HOWEVER INSTEAD OF ALL THAT I POLITELY FAKE A SMILE AND SAY ***I AM FINE*** THANK YOU!! You should be really proud of yourself for this I'm sure it's going to open up people's eyes to what really goes on with GASTROPARESIS behind closed doors and when the cameras not recording! You did amazing big thumbs up🖒 Gilly x ♡ x ❣ 📷✔➿💯☤⭐❣
Just Gil x ahhhh omg! This is so accurate! Like what you said about being a daily vlogger I choose what I want to post and people only see like 10-15 mins of my life that's nothing! I wanted this to be real and raw and I know some people may find it too much but this is life for us, we have to go through this everyday 💚
Amy Lee Fisher the people who will find it 'too much' are the people who are ignorant to illness and have probably never had to deal with anything close to what a day in our shoes is like & as one of my fav snippet of a quote from Marilyn Monroe "if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.” I'm so glad you made this video as it shows how everything might look okay in front of the camera but when it's off it's a different story. It would be interesting to do a 24 hours in the life of kinda video. A few of us could get together and do it. Mine would consist of bed and sleep but it would be a cool concept. Keep up the good work lovely 🐼🌟
Last Monday I was diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer and the beginning stages of Diverticulitis. They also reconfirmed my previous diagnoses of IBS and GERD. Thank you for showing what gastroparesis is like for so many people!!
Brooke TheFam, not necessarily. I had IBS for almost 30 years before having any problems with or being diagnosed with Gastroparesis. But if you're having symptoms like that I'd definitely talk to your doctor about it. The way they diagnose GP is with a simple test called a gastric emptying study.
amethystviolet dreams, I also have Endometriosis, Polycystic Ovarian Syndrome, Interstitial Cystitis, Hashimotos Thyroiditis, Hypothyroidism, Chronic Fatigue Syndrome and chronic migraines. Along with Degenerative Disk Disease.
I totally understand what you are going through. Over the last year I have been in and out of dr appointments, given medication, in and out of hospital with left sided abdominal pain, vomiting, feeling like my stomach has gone through a meat grinder, I cant eat much without being nauseous, I take days off work for the pain to reduce to be able to anything. Your video has helped alot. Thankyou
I'm sorry you have this condition. My fiance used to test for gastroparesis as a nuclear medicine tech for about 26 years (he specialized in PET scans though) and he's wondering why you use a nasogastric/nasodoudenal tube instead of a P.E.G. for nutrition and/or medication. If you've covered this in another video sorry for my ignorance; I just stumbled across this video and it piqued my fiancés medical curiosity.
I have an NG for drainage and an NJ for feeding and i will be getting a PEG-J tube inserted but I'm seeing a specialist about a gastric pacemaker before we go ahead with the surgical tube x
My mom was diagnosed with it about 1-2 weeks before she passed away. She had it so bad that she couldn't even hold down a small 3 oz bottle of water. Thank you for helping bring awareness
I was diagnosed with gastroparesis, was diagnosed right after my hyperemesis gravidarum. I'll never forget the doctor that last saw me accused me of just wanting pain meds. The embarrassment of being yelled at and labeled was so heartbreaking. Hugs to you from California.
Please never be nervous about posting about the reality of your condition, I had never heard of this before and you are truly an inspiration and make me realise how lucky some of us are. I honestly don't know how you do it but you should be so proud of yourself everyday, much love girl!
It says there's 937 comments and I'm not going to read them all, but I sincerely hope that there isn't a person out there that could "hate" on such a video. IF such a person exists, than they're far too messed up mentally for you to even have to worry about. Let that go in one ear and out the other, because that's not an opinion that even remotely matters. Ok, now with that said, I just wanted to take a moment to thank you so very much for your strength and courage to not only make this video, but to post it as well. I too have gastroparesis, but nowhere near as bad as you. I don't have a feeding tube or anything. Anyways I find that it's just completely knocked me on my ass, and there's no way that I could film during one of my REALLY bad moments... so mad props to you for that strength!!! Your video also gives me some hope... mine ISN'T as bad as it could be and for that I need to be grateful. So when I'm sad or pissed off that I'm too sick to live life, I'm going to remember this video and say if she can still smile so can I. I only wish others, INCLUDING DOCTORS, had a better understanding of just how much of a toll it takes on a person. CONSTANT nausea that has you popping over the counter and prescription anti nauseants like candy, and even then it only takes the edge off... mild nausea still remains. The not being able to sleep, or waking up suddenly and before you can make it to the bathroom, OR BEFORE YOU CAN EVEN REACH FOR YOUR EMERG BUCKET, you've spewed all over yourself, bed and in my case CARPET. Which is soooooo fun to clean when you're that sick, bloated and in pain. Having people congratulate or ask me how far along I am.... that's fun. Sometimes you wanna snap back and say well if you mean the 9lb turd stuck in my system somewhere, about a week now. The constant pain that has you rubbing your tummy like you're pregnant doesn't help I suppose lol. It's just such a toll... as you already know, and so many people who don't understand trivialize it... and that's my bother. Even in the healthcare field, like mentioned previously. Sorry for the novel comment... I just really wanted to thank you and empathize... I also wanted to say don't you ever worry about people "hating", they simply just don't get it or are too messed up in their own head to show sympathy, and like I said those aren't comments worth worrying about anyways in that case. Thanks again and try to take care always
I have so much respect for you right now. I don't have GP thankfully, I have chronic anxiety though and vomiting is a huge trigger for me.. This video really made me feel so grateful I don't have to go through what you do. You're so strong and really brave to put this out there on the Internet. Thank you for sharing x
KittyAphrodite me too. I live everyday hoping I don’t get sick. I have IBS too as well as anxiety so there are some days where I just don’t want to get up because I’m scared that I’ll get sick. It makes me feel better knowing I’m not the only one that feels this way. It interferes with everyday life.
I want to THANK YOU SO MUCH FOR BE WILLING TO SHOW ALL THE HORROR AND PAIN THAT GOES WITH HAVING GASTROPARESIS. I was diagnosed with gastroparesis 8 years ago. I have never had a feeding tube but it is still hard to eat because of the pain, nausea, and vomiting. I stay nausea most of the time. I wake up in the middle of the night because I have already threw up in my mouth and I am in so much pain. I THOUGHT I WAS THE ONLY ONE TO HAVE THIS CONDITION AND THAT I WAS ALL ALONE. THANK YOU SO MUCH FOR LETTING ME KNOW I AM NOT ALONE. I APPRECIATE IT VERY MUCH!!
One thing I've found about severe chronic pain and illness is how lonely it is. At least for me. When you can't escape it and no one can help you and everyone is going on with their normal life around you it makes me feel so alone. My chronic pain and illness started as an adult and worsened after having a child which means I'm a caretaker of a child and there's no one to take care of me. It might have been easier in some ways to deal with this kind of thing when I was younger but I don't know. I wonder if sharing helps you in those moments. I hope it does bc it sounds like a nightmare. I can never decide which is worse, migraines or severe nausea (although a migraine with nausea is def the worst.) Fortunately for me the acute severe pain only happens occasionally and I've had some ability to recover and it's been a year since my last severe acute state. I have so much sympathy for ppl who suffer everyday. It takes such strength to keep going. And having to live with an ng tube sounds horrible. I've had a few ng tubes and they were torture everytime. I'd rather have needles stuck in me repeatedly.
Hi Zoey, I too appreciated this post... She is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain... Zoey, prayers going up for you... Please, watch a few of these videos, they are very encouraging! And comforting....It gives us Hope! So sorry for your pain, You are NOT alone, DO NOT GIVE UP, PLEASE! The Kingdom.. www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9 What did God Create The Earth.... tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO Sick ones, that have endured tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO .......... "Does God Have a Name" www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1 Psalms 83 18
I agree! In August 2016, I started getting sick. For the past year I've been in and out of hospitals missing out on so much at my high school. I finally got diagnosed with Gastroparesis a couple months ago but I'm always cooped up at home or the hospital, my best friends never visit me anymore and are all moving on with their lives while I'm here all alone and stuck. I have surgery with balloon dilation and botox in less than 2 weeks and that surgery alone is in a whole different state than what I live in.
Hey girl don’t feel bad your so strong I also had a feeding pump in my belly for 15 years I have short bowl syndrome and I finally learned how to eat and keep my weight up enough to finally get it removed , I feel for you I also had the nose feeding tube when I would get hospitalized for months at a time I spent years in the hospital, your such a strong girl for going through all this that is a tough road to walk every day you are brave and strong just keep hope and keep pushing through ☺️I’m also in the hospital now I been here 4 days I’ve been having stomach problems and throwing up every time I eat so after months of going to hospital to hospital I finally came across a doctor who finally found out what was wrong with me and i have to get gallbladder removed so I get surgery soon for that also I get released from the hospital tomorrow afternoon and I can’t wait I miss my dogs 🐕 so much and I have an appointment to get the surgery done soon yay finally after loosing 30 pounds in 3 weeks I’m only 4ft 5inch and I use to weigh 98 pounds and dropped to 65 in 3 weeks im really tiny and I’m 29 years old but everyone says I look 8 years old, I hope 🤞 you the best just hang in there girls are super strong 💪 take care ☺️
Omg, this makes me appreciate my life,and how all these symptoms I don't deal with. But this video made me understand how lucky I am. Thank you Amy for this very wonderful,challenging video; I hate seeing the way you go through; stay strong and I believe in you
you are so brave. i could never deal with this as well as you do - but i don't underestimate the amount of willpower, courage and bravery it takes to carry on with this, despite how easy/normal you make it seem. you're a fantastic amazing human being. i seriously admire you for this.
Such an amazing awareness video! I’m so sorry you have to deal with this on such a regular basis. Thankyou for sharing your experiences and for spreading awareness of this!
I have all 3 conditions you have. I got the gastric pacemaker fitted for mine! Then after my pacemaker was fitted i, who was always super bendy, developed the problems with this. Turns out like you i have EDS , POTS and gastroparesis whohoo and to top it all off took a bowel prolapse and had a partial bowel removal 2 months ago. Life hey!!! Nice to see your bloating look idential to mine. Its sooollleee distroying!!!! I havnt worn jeans in 3 years!!! Plus the pacemaker hurts sooo bad with bloating but allows me to drink now where b4 i was pretty much about to die of deyhration!! Love ur foggy brain stuff too btw!! Have u tried pepsi max i know.it sounds mad but it really helped me dizzy head by keeping my stomach active!! I keep it flat and sip the cans all day! It doesnt work with any other.fizzy type crappy drink only pepsi max lol not the best for u but stops my dizzys as much. I like to call them swetty sugar rushes lol. Keep it up 😃
Very informative video! I have been suffering with gp for 10 years. Every gi doctor I've seen tells me there is no pain with gp. Or pain meds slow your molitity. YES THERE IS PAIN AND I DON'T CARE WHAT YOU LEARNED IN SCHOOL, I'M THE ONE IN PAIN!!!! AND I DON'T CARE IF PAIN MEDS SLOW MY MOTILITY, THERE'S NOTHING IN MY STOMACH 95% OF THE TIME. SO JUST GIVE ME THE PAIN MEDS SO I CAN FEEL HALF WAY HUMAN! THE VOMITTING IS THE WORST. VEINS IN MY FACE ARE BLOWN OUT AND I HAVE TO SEE THE DENTIST AT LEAST 4 TIMES A YEAR SO I CAN KEEP THE TEETH I HAVE. ALMOST ALL OF MY UPPER TEETH ARE CROWNED. THIS DISEASE IS VERY EXPENSIVE! IT LEADS TO OTHER COMPLICATIONS SUCH AS PANCREATITIS AND DIABETES. AND LUCKY ME SUFFERS WITH THAT ALSO. GP WILL TAKE YOU COMPLETELY DOWN EMOTIONALLY, PHYSICALLY, AND MENTALLY. PLEASE SEE A THERAPIST IF YOU SUFFER FROM GP AND ALL IT'S SISTER ILLNESSES. YOU'RE GONNA NEED IT!
Ren if you live with chronic pain you would completely understand what she is saying. I have nerve damage in my stomach. The pain goes up my back down my legs and stops me walking sometimes. Without painkillers I’m rolling around in pain. With them I can stand up and get through a day. People with chronic conditions NEED painkillers.
I have type 1 diabetes which I know is absolutely NOTHING compared to your condition. But it just caught my eye that your condition can lead to type 1 diabetes. I can’t imagine what it’s like for people who have to live with t1d and this! That would be so hard.
@@normaurmon8756 take care of your diabetes. I am also a T1D and my lack of care of the disease has led to me having GP. Trying to balence food, insulin and puking, can really make blood sugars go whack.
I’m glad you’re bringing awareness to Gastroparesis. Nobody understands how bad it is unless they have it. The extreme pain, the constant nausea, and meals that sit in your stomach for weeks doesn’t even start to explain how much it affects people. I’ve been so close to death numerous times because flare ups. Hopefully more awareness will bring us closer to a cure.
I absolutely started to cry I was just recently diagnosed and I’ve had this for years and no one figured it out I’ve been called so many things by doctors and family that had no idea what was going on. Thank you for sharing
OMG, you are one brave woman! I'm so terribly sorry that this is your story, but grateful you have the guts to show yourself at your lowest moments and bring awareness to this disease. I've worked in the medical field for almost ten years and seen a lot of different chronic illnesses and all have their own weights to bare. I knew of your condition, but not the day-to-day struggle. I thank you for your insight and that it may help me treat patients in the future, but I wish I could take all your pain and suffering away. I wish you all the best in your efforts as you co-exist with gastroparesis. I will take your story and learn from it. XOXO ❤️
Holy shit girl, respect! I didn't even know this existed like dam. I feel so sorry for yal! I hate it when I get a stomach bug or period cramps or my little sister wakes me in the middle of the night but u have that constantly! I feel for u, I really do! x
It's great you posted this people just see the good on social media most of the time when in reality it's not like that your super brave for spreading awareness with the truth of what it's really like ☺️☺️
I am so sorry you have to go through this. I have go, too, and so did my one daughter. Unfortunately, five yrs ago she passed away from a combo of type 1 diabetes, hcm(hypertrophic cardiomyopathy) stomach cancer and other gi issues. She was ex’s with stage 4 stomach cancer so she couldn’t do chemo due to the diabetes(brittle diabetic who was a medical anomaly...wired backwards) and hcm. My go is a bit more under control now. That bloat is so painful and the dang nausea and vomiting that just hits, ugh...when it first started with me it took about a year and a half for them to finally dx me. My daughters was much easier bc of men I remember feeling so alone bc so many people thought it was all in my head. Thank you for bringing awareness out there bc even now, with dealing with it for over 15 yrs, people think it’s all in my head....
This makes me feel so guilty for my eating disorder because I should be grateful I can eat food physically because while you can’t eat because of an illness and I can’t eat because I have made myself this way I feel horrible , anyways your so so strong and a true inspiration thank you for this amazing awareness video !❤️❤️
We have all the same illnesses. I used to vlog about a different illness of mine but became too ill. I'm hoping to start making them again. Love your videos! :)
I am having issues... I was stabbed three years ago and I’ve had ten surgeries on my stomach. My bowels have completely quit working, I cannot shit on my own. I go 4-6 weeks in between bowel movements. I’ve lost seventy pounds in a year, I barely eat. I’m always nauseous and miserable and it gets worse daily. I feel for you... I miss food and normalcy too.
How do you get help with bowel movements? My bowel movements are damaged due to EDS, I was told my muscles don't do the job properly, but I don't know what can be done. Sounds like you're not getting support but I thought I'd ask..
straight up look up and appreciate people like you suffering everyday going through so much all the time and pull through for another day. we have no idea what everyone is going through and its just an eye opener to how you feel and what you have to do day by day. solute to you girl good on you sharing awareness us peoples gotta know the realism in it all and understand others xoxo
Hi Hun I have had gastropareisis for 4 years now and I'm really glad that you're making videos about it to educate others! It's been absolute hell for me too but I'm fortunate to where I don't need a feeding tube only because I went into remission when I had my daughter 11 months ago. Now I'm pregnant again and going thorough the morning sickness just hoping it stays in remission. Much love Hun! A lot of people don't understand what we go through. I've been told "you just have a tummy ache." It's so much more and i wish it was just a tummy ache!
I don’t have gaseropresosis (sos if I spelt wrong) I get nose bleeds quite regularly and I think you are amazing putting up with what you do I will try and share this to as many people as I can I love you
You are so beautiful, strong and rlly inspirational! Most dont know about gp like you said and the way you're using your channel to educate and so on is amazing! =) Ty so much for all you do and am glad I subscribed!
Thank u for your posts and videos. Ive bene struggling from.muscle weakness for 2 months docs dont knownbut i can hardly walk/eat. These give me hope. Ur such a sweet person. Rest in peace. 🙏
I have chronic abdominal pain (which is under investigation- they don’t know what’s causing it), and I struggle day to day. I couldn’t imagine living a day in your life, you’re so inspiring and I can’t believe how challenging your day to day activities must be. I’ve been on strong painkillers for a year straight, and on a waiting list for surgery so they can explore a bit better, and even taking my meds I struggle with, and you’re here doing the most challenging things. I experience naesea, bowel issues, obviously severe pain, fatigue and bloating, plus more but those are the more common symptoms. I’ve been experiencing this for years but has became an issue for about a year and a half, where I finally went to the doctors to see what’s up. Hopefully soon my surgery can be scheduled so they can find out what’s wrong with me! You’re an inspiration and I wish you good health for the future ❤️
I️ just started watching you and I️ am so happy you are showing the world the behind the scenes of gastroparisis I love this and I️ think you are drop dead gorgeous
Sweetheart- this was so brave of you to show- and we need to know what you go through. For those who don’t like- they don’t have to watch. I have such admiration for you. How do we access your other vlogs?
Hello, I am writing from Argentina. I am a nursing student and I love your videos. I wish you would not go through all this, but your videos explaining different things make me understand everything from the patient's point of view and it is very useful to understand them and be able to support them. I hope you get well soon :)
I normally don't comment on videos but I'm glad you did post this to raise awareness. I never knew about this but I will pray for you. I hope that your symptoms become more manageable because you definitely deserve a better quality of life than having to deal with all that you do everyday. I am glad that you have a positive mindset about this and I wish you nothing but the best xx
I think videos like this are so important for so many people. We're living on a society where all the stuff on social media only shows the bright and perfect side of life and not what it's really like. You don't have to feel gross or anything like this, that's just how it is, what you have to deal with everyday. You're a survivor, a fighter you can be so proud of yourself and you have all my appreciation! Keep on fighting girl, you're beautiful and a true inspiration for all of us💪🏻👏🏻👏🏻💖
Your body and face looks so beautiful even ur sick :( . you are really a strong girl to can handle this. Not everyone has a strong body as you. god bless you. Hope you feel better today
You are a Beautiful human.. Through your courage i now understand more about your life struggle every day.. You are a strong, smart woman and i have sp much respect for you.. Thank you so much.. I am sending you Love and Light.. LOVE to warm your heat LIGHT to lead the way..
When I was in middle school, I had an infection in my esophaguses that caused me extram nausea whenever I ate. It wasn’t until later doctors finally did a test that found the cause, but before that I was throwing up 2-3 times every day for around 3 months. I’m older now and haven’t had anything like it happen since then. Just a few months of it left me physically and emotionally exhausted. I can’t imagine what it must be like to have to go through that for your whole life. Thank you for raising awareness and telling your story. Wishing you well, and I hope you have much better days after this ♥️
Niel Moutou they couldn’t give me anything until they found out what was wrong with me. They did a few test before they finally found out that it was an infection. It took about 3 months before I was finally able to be put on medication.
I feel very lucky after watching this. I’ve had stomach issues for years and just got diagnosed with gastroperisis. Mine is mild and I hope it stays that way. I do have trouble losing weight and issues with eating but if I had to choose I would chose weight issues over what you are dealing with. Prayers and thank you for showing the reality of what this disorder is.
me too i have mild gastroparesis im very lucky too this illness dosent matter who u are what age u are and i hope that mine stays this way too but i feel myself going into another flare i was diagnosed at 16 im now almost 23
I'm a little scared watching this. I'm very used to hospital life. I've had kidney failure, dialysis, transplant, sepsis, pancreatitis, and transplant removal due to infection. I'm anemic (saw your video getting blood, been there too) and I've had issues with my stomach. I went 16 hours nothing by mouth, had the test scope.. endoscopy I think? And there was still food in my stomach. They said I had gastroparesis, yet I've heard nothing back on treatment. I throw up a lot but as I know it now, it's not bad enough to give me a feeding tube yet. Stay strong. If I am asked one more time about my eating disorder (that I clearly don't have) I may explode. I'm glad to see this, a raw explanation. 💖💖💖
My mom has gastroparesis, EDS and POTS. In your EDS video and this one your perfectly capture what it's like and I'm sorry for you and what you have to deal with. This gave me a new understanding of what she has to deal with so thank you.
Hi There, I too appreciated this post...Yes, your Mom is suffering along with us. How unselfish of you look into her disease and witness the things she deals with, so you have better understanding. You too, are courageous! The Sister that made the video, she is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain... Please, watch a few of these videos, they are very encouraging! And comforting.... The Kingdom.. www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9 What did God Create The Earth.... tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO Sick ones, that have endured tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO .......... "Does God Have a Name" www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1 Psalms 83 18
I have IBS and I am constantly throwing up and having diarrhea...often both at the same time so if I am not fast enough...you can imagine what happens... So I can't imagine going what she went through half her life.... I hope she can rest in peace now and her loved ones can find peace somehow too...
You are hella awesome ... I so appreciate this video. I have gastroparesis and I am severely terrified of vomit but its encouraging to see you this way cuz I know I'll be ok when it happens to me . I hope you consider posting more raw videos like this to educate people . You are so brave and strong and such an inspiration
It took me a second to identify the background sound while you were talking at first. Having been in the ICU listening to my husband's IV pump, I finally realized I was hearing yours. Miss your videos Amy. Rip ❤️
Amy you're so brave! You're so strong it's unreal! You go through so much but you always come out fighting & always cracking a smile for your viewers, I'll always keep supporting you!😁x
I've been ill for the past 4 months and I was diagnosed 3 days ago with gastroparesis. I'm absolutely miserable. I bleed like crazy and I have 0 appetite. My body strains so much that my esophagus spasms and I have 2 hemorrhoids at 14. At the moment i'm trying to remove the waste because food from 4 months ago hasn't digested.
Hello! I don't mean this to sound condescending in any way but you have really made me appreciate what I have in my life and in my body. I think you are an incredibly strong person. I watched this video a few days ago and came back to comment because it's been weighing on my mind, and I just didn't want to pass by without saying thank you for sharing something so personal. I'll keep you in my prayers xx
Going through testing,and im totally convinced i have gastroparesis. im sick so much and i've had it over two years. i completely understand you and how you're feeling, especially when you said that the worst part is vomitting, and vomitting in public, i've vomited so many times in public that i've come to accept my dignity is out the window when it comes down to being ill like that. I hope you and your doctors can find something that can bring you more comfort. x
Watching this in 2019....been watching you since your McDonald's sent me to hospital video, just watching some of your old videos....you're gorgeous and beautiful inside and out, stay strong ❤️ x
It must have taken some guts to post this but, I'm sure that it's going to raise awareness and now I know how crap it must be to live with Gastroparesis
Bryony Armstrong thank you! I was honestly petrified about posting it! I still am 🤦🏽♀️ Neevous about the kind of feed back it's going to get! But at the end of the day I'm here to show people what it's really like living with this and that's what I hope I've done! Thank you for your support 💖
I feel ur pain. I thought I was dieing before I was diagnosed. Over a year and a half of misdiagnosis after misdiagnosis. Multiple jobs lost sleepless nights chronic pain every day of my life. Relationships don't last because I'm always sick and people don't understand. I lost over 25% of my body weight people I haven't seen in a long time think I'm on drugs. My feelings get hurt all the time I don't get invited to things anymore I know I shouldn't care but I'm only 26. I was in the Military so I'm not weak mentally or physically. G.P has stripped me of financial freedom a social life and mental stability. I cry all the time everyday if I'm not feeling sorry for myself I have uncontrollable anger lashing out at everyone because no one understands I want to be normal. My G. I doctor said that if I keep losing weight then I have to get a feeding tube. Yesterday I seen him so I put ankle weights on and as much clothes as possible without looking out of the ordinary and still I lost weight. A lack of nutrition has started to destroy my body my hair is starting to fall out and is getting lighter. Holes in my teeth and finger nails my skin is horrible I'm on 11 different meds over 25 pills a day things are only getting worse I'm scared and feel alone I just want to be 'normal' my moms tells me a feeding tube will make my quality of life a lot better. I have shitty insurance that's making things difficult. I watch your videos and see I'm not alone. I can't thank you enough for putting up your most vulnerable moments sharing your struggles. I draw strength from you. Your videos and videos of others with G.P help me get through the really bad days when I feel hopeless and lost. Thank you for sharing your story. It really helped me today. I have extreme anxiety and get really sad when I don't feel good I want it all to go away. Seeing your struggles with G.P is helping me more than you can imagine. Seeing you stay positive and keep going on with life is inspiring. Thank you so much. I hope you have a wonderful new year filled with love happiness and support. G.P isn't defining you so I won't let it define me either. Take care and Thank you again
I am so sorry you go through all this dear. I pray for you and Christina and Mickie and all our UA-cam EDS’ers and all our EDS’ers we’ve lost too (like ChroniclyJackie) Hang in there dear I’m rooting for ya!
Hi Amy! I just came across your channel today. I do not suffer from gastroperesis but i do have crohns disease, a hiatal hernia, an ulcer, gerd and have had my gallbladder removed due to gall stones and my gallbladder not functioning, so i can relate to you to an axtent44on living with a gastrointestinal disease and how much of a struggle it really is. I also have thyroid cancer, rheumatoid arthritis, endometriosis, polycystic ovarian disease and fibromyalgia, so every day is a struggle and alot of days i have a hard time finding the motivation to get out of bed and face the day... Finding your channel and watching your videos has really inspired me, because there are days when i get up and i just want to crawl back in bed and say screw it because i feel so horrible and i have no energy and/or motivation to get up and do anything, but i force myself to get up for my two beautiful little girls who need their mommy. Many people dont understand GI disease so they think that people who have these GI diseases are just over reacting, they just dont know the truth of it and i hate people judging me because they already have this predetermined notion about GI problems when half the time they dont know anything about it... Thank you for posting these videos to show people what it really means to have a GI disease and for giving people like me the inspiration and motivation to live life to the fullest and to not let anything get in the way of that. Keep vlogging and stay strong! Hope you have a wonderful holiday!!! Much love Amanda Hawkins, Alton Illinois
When you said, "I love food. It's not my fault that this happened to me", my heart just broke. You are so strong.
Doina Neculcea I relate to that so well. Glad my brother is always willing to eat food I can't eat or finish. I miss food so much.
I get the same reactions from people when I still eat something. I even had a nurse say I was crazy, knowing how sick it makes me.
But I LOVE food! I MISS food! And as crazy as it sounds, I still CRAVE food!
It's so hard to explain or understand, even for gastroparesis sufferers.
I have a different condition but can't eat much food either. Sometimes I'm on just fluids for months and other times I can manage things like custards etc. I do really miss food sometimes.
@@bkornytoo51
Same. My family always warns me to not eat so much or becareful of what I'm eating and I snap at them only to become violently sick and apologize to them for being bitchy when they were right, only to repeat it all over again next time my appetite finally comes back and I get so painfully hungry. I love food too much and also am literally starving so it is hard to not overdo it eating.
@@_epic_dyslexic_ While I'm actively ill, I am very careful . . . now anyway. The first couple of years were a harsh learning curve. Now, not to be gross, if I want to eat something, I chew it, taste it, but I spit it out. A lot of times I can't do even that, but when I can, lol, I do.
It wasn't gross. Your body is not gross. You aren't gross. You're just trying to survive. :) Your video may help lots of people know what's going on with their bodies and that's great.
Michelle Everett I think she means like ppl will not like blood and stuff
I love blood and gore and medical dramas and also I want to be a firefighter
Not really good motivation for it.
Michelle Everett she clearly didn’t mean her body, she meant the throw up and blood. 🤦🏻♀️
sorry this is late but yasss preech she needs to know this
Rest in peace Amy you are no longer suffering Enjoy all your favourite foods now there's no worry of not being able to eat or getting sick You were such a strong person
Strong trooper this breaks my heart
She’s in better place now
What you mean?? Is she dead
@@einercolt9970 yes she passed away 😢 there is a video on her channel
@@einercolt9970 Her body is dead, not her.
Im,14 and have gastroperes, type 1diabetes, and chronic pancreatitis. I am so thankful I do not have to have a full time tube. I had one once and I was the worst thing iv had to do.i understand how you feel. I'm sick so,much,that I have to be homeschooled. I'm actually up at 3:15 am not able to sleep right now. You might not ever see this since you posted this over a year ago but I felt commenting.
X
Omg... breaks my heart to hear that people are so sick...
Hey I have type 1 diabetes and sometimes that’s hard for me so I respect you so much for all the other stuff you have to go through 😘
You go girl!!!
@Pugicorngirl Tdm stop
My biggest fear is vomit - like I’m a huge emetophobe but this video helped me get through my fear. You’re so strong to deal with this on a daily basis!
Same
Amanda Harris I have a serious phobia over sick n this is helping me aswell
Same
Same 🤒
I think when you have a chronic disease like that, not that you get used to it, but you expect it. Like I used to hate needles, but when I got diagnosed with Diabete type 1, I kinda just had to deal with it.
Rest in peace Amy it’s sad that you can’t see this but tens of thousands of people even millions miss you and you are out of pain now and resting peace fully R.I.P Amy
How did she pass??
So much respect for you and your ability to carry on through all that pain, and for sharing what you go through. Vloggers like you really do help others with chronic illness feel less alone and educate healthy folks so they can have more empathy. And don't worry about showing stuff that's graphic--if you can be brave enough to live it, to film it, and to share it, then we can all be brave enough to watch it.
DarkBlue Matter bless you! Thank you so much! 💜
Keep going strong beautiful❤
DarkBlue Matter well said ♡
I'm prepping for my colonoscopy tomorrow, dx'd with gastroparesis a couple months ago. My belly hurts so bad, I appreciate the candid approach you take in your videos. Thank you!
DarkBlue MatterAmen
I think this is a fantastic awareness video. It is what it is, if I want to understand something I want to see the good, bad and ugly of it otherwise what's the point. Thankyou for posting this, you're a star.
Forever Heath thank you!!💕💕💕
Forever Heath exactly
people with Chronic Illnesses/pain are the strongest people I know. I’m a part time carer for my mum (I’m 13) as she suffers with Fibromyalgia, Osteopetrosis, Nerve Damage, Hip Dysplasia and many more unknown conditions. She’s only 31. She’ll be in a wheelchair in a couple years time. All of her conditions are incurable. The only thing doctors are doing is giving her pain relief which her system is already used to and so she is constantly in unbearable pain and can’t even walk properly. It’s so so sad hearing other people’s struggles and stories and we all need to stick together and support eachother ❤️
Katelyn x Your mother is extremely lucky to have a daughter like you that is willing to give up part of her life in order to help her with her illnesses.
I’m a part time cater of my mum as well. I’m 22, and she’s 45. You are so strong. I get what you are going through. It’s really hard, but I know that we both can probably appreciate how strong our bonds are with our mum and that is such a lovely thing. Keep her safe during this time, sending love and and smiles ❤️
Katelyn x hi, my mum is like yours and has fibromyalgia arthritis tinitis ME and etc, if you wanna talk give me your Instagram and we can talk about it :)
I feel for her... I had bone cancer in my right leg and 30 surgeries on it. I have had two bad car wrecks, one damaged most of the left side of my body, dislocating my knee, hip, broken ribs, broken collarbone. Got stabbed and ten surgeries on my stomach and my bowels quit working so now I only shit once every 4-6 weeks when I am hospitalized for an enema.
Wolf Girl take care of yourself. You’re a strong girl and you will go far in this world
Hi I'm sam. I was just diagnosed with GP and I have a feeding tube now and I'm really glad I found your UA-cam channel its helped me out a lot and its given me so much comfort knowing I'm not alone. So ThankYou
I am sorry yours started so early. I was in my 30's before mine started and went 10 yrs undiagnosed. So lucky 10 yrs ago had a gastric pacer placed and changed my life. I still have nausea and limited food amounts I can eat but I can LIVE! I CAN EAT SMALL AMTS WITHOUT THROWING UP! I am now 61 yrs old and live an almost normal life. Gastroparesis does NOT run me!
You are a very strong young lady. Thank you sharing your story. I will be praying for you. God Bless you.
well i'll never again complain about running out of milk for my coffee, you have shown just how entitled we tend to feel how ignorant we get, thank you for bringing me back down to earth you are an inspiration.
I have the stomach flu currently, and I’m just amazed at how you are able to feel this way all the time... I’m a big baby right now because I absolutely hate vomiting... I admire your strength, truly!!
I have it now to i watched for the same reason
I vomited at horse back riding today because of my gastroparesis 😂
I'm dying pls help
When I was a kid I threw up alot for no reason
Carmen Osterlie Same 😂😂
katerina650 i had it on spring break it was horrible i thought i was dying
brain: you have a phobia of vomit
me: yes and an interest in medical videos
brain: just don’t
me: clicks video
(it’s fine i’m actually using this as an exposure for my phobia. i’m really getting better every day! lovely video)
I've never related to something so much! glad you are getting better I am not XD
I have such a severe phobia that I pause at the moment where she was by the toilet and I just can't watch further. I skipped.
Wow I'm doing the same thing as therapy I have very intense emetophobia so I'm trying this as new type of therapy
Uhh literally same.
Literally same
At first I thought, do you really feel like you want to continue living like this in constant pain and suffering and not being able to have a normal life? But then, I think that what you do you is so hard to achieve for many and they, even me, I would give up on this. You have the will to survive, you feel power in yourself despite it all and you deseve all the best.
I have gastroparesis because of years of an eating disorder and I relate to this so much. Even though the reasons are different.
System K bulimia?
Mina Wangberg No, anorexia.
Well I am glad you are doing better with your anorexia😊😊
caroline skinner They had me eat a “radioactive egg” and watched it digest (or not digest)
Hailey Hitchcock Thank you!!
I find this a bit scary but I feel like I have to watch it because thats the point of raising awareness
You are so brave n seeing u like this make me cry.
Wimsem - Tekenen & Knutselen
Your comment was what I first read(& saw) and you are so right.
p)
I've honestly never heard of this before. I don't know how you do it. You're an amazing, brave, beautiful person.
I’ve never heard about this eather
I wish so bad she got to have a pain free life. She was amazing 😞
I have IBS and find that sometimes that in itself is hard enough to deal with (comes and goes), but man, what you go through is just beyond. I can't even fathom my symptoms times like 100 and every single day. You are strong, girlfriend, and that you still find reason to smile! Glad I came across your channel! Keep it up
Karis Hallson I also have ibs and I’m only 9 years old and I’ve suffered so much and sometimes I feel like I’m gonna puke but I never do and I have a fear of vomiting and vomit
That condition is pretty gross
@@ALPHADARKFANG so are you.
@@cottoneyes566 ya ur obviously insane i don't shit myself like these people if u don't have anything useful to say stfu
@@ALPHADARKFANG you're obviously very uneducated. You're just as disgusting as turds of shit. Why? Cause u don't understand that IBS isn't always shitting yourself. Plenty of people experience IBS completely differently. Symptoms range from nausea, vomiting after eating or drinking, spastic colon, constipation, diarrhea, bloating...etc. Just cause you have IBS doesn't necessarily mean you instantly suffer of bowel incontinence.
Stop shaming people for having medical issues just cause you find it gross 😃 now how about you shut the fuck up cause you can't handle being corrected nor being an educated respectful person.
You are one of the bravest person I’ve seen I UA-cam...you are so beautiful 😍 Thank you very much for sharing and bringing awareness about this condition. May God give you the strength to carry on...✨🙏🏻✨
You are an amazing young woman. As a mother, my heart goes out to you. I don't know what your personal beliefs are, but I hope it won't offend you that I want to pray for you, and pray for a cure, or much more helpful treatments.
Those were some kind, respectful words, Moss Lady. As an agnostic who's rarely enjoyed the respect of others for my beliefs, though I'm always thoughtful of theirs, it's very much appreciated.
She is wearing a cross necklace
That's cute
I wish there WAS a cure - it's just awful what we go through ! One day maybe there will be a cure!
Wish my mom was still here to care- I've been diagnosed with gastroparesis and barrett's esophagus and I suffer every day! But it does help to know that other people have this problem and I'm not alone! We all suffer in different ways but with the same outcome!
I was diagnosed with gastroparesis when i was 11, and this made me really emotional to watch because ive gone through so many of the same things. there are days where i'm bloated and vomiting and in so much pain i don't want to move, but I go to work or school anyway, because this is my normal. I've never been on a feeding tube but I can't count how many times i've been on a completely liquid diet. It's hard, because I know so many with gastroparesis have it worse than I do, but that doesn't mean i'm not sick, that i'm not suffering. thanks for sharing some of your story, it makes me feel a little less alone.
Hi! I have gastroparesis too and couldn’t keep anything at all down. Then, I started taking the medicine zofran five years ago. It has helped me so much.
What are the symtoms? I'm 35 and have been sick for years. Medications don't digest properly unless I eat a 2 week diet of curtain foods and drinks. I suffer every day. I feel like it is my hormones but then again I don't know. I have done a few test that I'm sure you are aware of... Just not the ultra sound yet
I was diagnosed when I was 7..
You’re very brave for sharing such a personal aspect of your life. It was very informative. Thank you for sharing!
Can't imagine what you go through on a daily Basis. You are honest and strong.
Amy, I feel for you, I see these almost exact same things everyday for almost the last 10 years with my wife. People who don't have gastroparesis or who aren't directly involved in their lives really don't understand how debilitating this disease is. I just came across your UA-cam channel last night as I am always looking for something or someone to help my wife and to ease her pain with this mess and I was shocked at the similarities you both have.
I have witnessed doctors berate my wife, call her a drug seeker, have openly had her removed from their offices because they say she is faking her illness. The facts are there is absolutely no research being done here in the US for this disease but millions suffer. My wife has spent at times almost half of every year in and out of the hospitals, mostly due to line infections and feeding tubes becoming infected causing sepsis. I can't count the times I have come to the realization that she may not be coming home this time.
You are a true warrior Amy, and thank you for spreading the word about this disease as it needs to be put out there for all to see and hear.
I will keep you and all others suffering from this in my prayers.
Fight and never give up!
Wow Conrad, you sound like an amazing husband and your wife is so strong, I couldn't cope, just amazing! xo Love to your wife
@@nzkiwiange thank you, my wife is my world. I was dead serious about my wedding vows, and no matter what I'm staying by her side.
Have a great day and wishing you a Merry Christmas!
Conrad McDowell aww, you’re an amazing husband! How are things with her now?
She never gave up she is a strong person and now she passed away rest in peace 😭😭😭😭😭😭😭
Well done Amy. I think you showed real courage and inspiration posting this. I think as a vlogger people see what 10-15 minutes of your life in snippets each day. They think that as you are up, talking, with a bit of make up on that things are much better than maybe what you make out on IG etc. The thing is in these vlogs YOU decide what YOU want us to see each day. No one knows how hard it can get the other 23 hours 45 minutes of your day.
People don't see the constant pain, the tears, the vomiting, and just in general feeling poorly.
The bit I love is when someone who's outside of family/friends/professionals says 'how are you' my immediate answer 'I'm fine' being chronically ill we tend to play down our symptoms to others as unless they have been there, or had a loved one go through they just don't get it!
I wonder at times if I turned round and said in reply 'things are hard' my ileostomy leaked twice in the night so I had to change it twice, I had a hypo of 1.8mmol/l on my continuous glucose monitor alarm wake my sister and I up on mine and her receivers to a Urgent Low so we had to correct that. My sats monitor alarmed several times during the night in the mid 70's despite having my oxygen and non invasive ventilator on so had to again wake my sis up to do some chest physio on me to get the gunk off my chest which made me cough till I puked up..... by that time my feed needed changed by then it was morning and I'm exhausted and worn out! HOWEVER INSTEAD OF ALL THAT I POLITELY FAKE A SMILE AND SAY ***I AM FINE*** THANK YOU!!
You should be really proud of yourself for this I'm sure it's going to open up people's eyes to what really goes on with GASTROPARESIS behind closed doors and when the cameras not recording!
You did amazing big thumbs up🖒
Gilly x ♡ x
❣ 📷✔➿💯☤⭐❣
Just Gil x ahhhh omg! This is so accurate! Like what you said about being a daily vlogger I choose what I want to post and people only see like 10-15 mins of my life that's nothing! I wanted this to be real and raw and I know some people may find it too much but this is life for us, we have to go through this everyday 💚
Amy Lee Fisher the people who will find it 'too much' are the people who are ignorant to illness and have probably never had to deal with anything close to what a day in our shoes is like & as one of my fav snippet of a quote from
Marilyn Monroe "if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.”
I'm so glad you made this video as it shows how everything might look okay in front of the camera but when it's off it's a different story.
It would be interesting to do a 24 hours in the life of kinda video. A few of us could get together and do it. Mine would consist of bed and sleep but it would be a cool concept.
Keep up the good work lovely
🐼🌟
Thank you for the warning about vomit. I have emetophobia, Thank you for warning ❤
Last Monday I was diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer and the beginning stages of Diverticulitis. They also reconfirmed my previous diagnoses of IBS and GERD. Thank you for showing what gastroparesis is like for so many people!!
MissaLVT 💖
MissaLVT I lierally have all of that too
Is IBS related to gastroparesis?? I have IBS and lately have really bad stomach pains and feel nauseous after eating
Brooke TheFam, not necessarily. I had IBS for almost 30 years before having any problems with or being diagnosed with Gastroparesis. But if you're having symptoms like that I'd definitely talk to your doctor about it. The way they diagnose GP is with a simple test called a gastric emptying study.
amethystviolet dreams, I also have Endometriosis, Polycystic Ovarian Syndrome, Interstitial Cystitis, Hashimotos Thyroiditis, Hypothyroidism, Chronic Fatigue Syndrome and chronic migraines. Along with Degenerative Disk Disease.
Dont feel disgusting for vomiting or bleeding. I found that the video was perfectly fine. You are such a strong woman.
I totally understand what you are going through. Over the last year I have been in and out of dr appointments, given medication, in and out of hospital with left sided abdominal pain, vomiting, feeling like my stomach has gone through a meat grinder, I cant eat much without being nauseous, I take days off work for the pain to reduce to be able to anything.
Your video has helped alot. Thankyou
I'm sorry you have this condition. My fiance used to test for gastroparesis as a nuclear medicine tech for about 26 years (he specialized in PET scans though) and he's wondering why you use a nasogastric/nasodoudenal tube instead of a P.E.G. for nutrition and/or medication. If you've covered this in another video sorry for my ignorance; I just stumbled across this video and it piqued my fiancés medical curiosity.
I have an NG for drainage and an NJ for feeding and i will be getting a PEG-J tube inserted but I'm seeing a specialist about a gastric pacemaker before we go ahead with the surgical tube x
Amy Lee Fisher OK just curious. We wish you well ❤ my fiance says he knew some patients that got good results with the gastric pacemaker.
I've had an esphagectemy so unfortunately I can not have the gastric pacer. They basically put my stomach in my throat
How do you use the NG tube to drain?
@@snapesnappedsaidsiriusseriousl hi
My mom was diagnosed with it about 1-2 weeks before she passed away. She had it so bad that she couldn't even hold down a small 3 oz bottle of water. Thank you for helping bring awareness
I absolutely loved this awareness video! I don't think I've ever seen one so real & raw! Thank you so so sooo much for making & posting this video!
Amanda Rose I'm so glad I'm getting such positive feedback I'm so glad you liked it 💖💖💖
I was diagnosed with gastroparesis, was diagnosed right after my hyperemesis gravidarum. I'll never forget the doctor that last saw me accused me of just wanting pain meds. The embarrassment of being yelled at and labeled was so heartbreaking. Hugs to you from California.
Please never be nervous about posting about the reality of your condition, I had never heard of this before and you are truly an inspiration and make me realise how lucky some of us are. I honestly don't know how you do it but you should be so proud of yourself everyday, much love girl!
It says there's 937 comments and I'm not going to read them all, but I sincerely hope that there isn't a person out there that could "hate" on such a video. IF such a person exists, than they're far too messed up mentally for you to even have to worry about. Let that go in one ear and out the other, because that's not an opinion that even remotely matters.
Ok, now with that said, I just wanted to take a moment to thank you so very much for your strength and courage to not only make this video, but to post it as well. I too have gastroparesis, but nowhere near as bad as you. I don't have a feeding tube or anything. Anyways I find that it's just completely knocked me on my ass, and there's no way that I could film during one of my REALLY bad moments... so mad props to you for that strength!!! Your video also gives me some hope... mine ISN'T as bad as it could be and for that I need to be grateful. So when I'm sad or pissed off that I'm too sick to live life, I'm going to remember this video and say if she can still smile so can I. I only wish others, INCLUDING DOCTORS, had a better understanding of just how much of a toll it takes on a person. CONSTANT nausea that has you popping over the counter and prescription anti nauseants like candy, and even then it only takes the edge off... mild nausea still remains. The not being able to sleep, or waking up suddenly and before you can make it to the bathroom, OR BEFORE YOU CAN EVEN REACH FOR YOUR EMERG BUCKET, you've spewed all over yourself, bed and in my case CARPET. Which is soooooo fun to clean when you're that sick, bloated and in pain. Having people congratulate or ask me how far along I am.... that's fun. Sometimes you wanna snap back and say well if you mean the 9lb turd stuck in my system somewhere, about a week now. The constant pain that has you rubbing your tummy like you're pregnant doesn't help I suppose lol. It's just such a toll... as you already know, and so many people who don't understand trivialize it... and that's my bother. Even in the healthcare field, like mentioned previously.
Sorry for the novel comment... I just really wanted to thank you and empathize... I also wanted to say don't you ever worry about people "hating", they simply just don't get it or are too messed up in their own head to show sympathy, and like I said those aren't comments worth worrying about anyways in that case. Thanks again and try to take care always
I’m so sorry you have to deal with such a debilitating illness. Please hang in there and I wish you the best💖
I have so much respect for you right now. I don't have GP thankfully, I have chronic anxiety though and vomiting is a huge trigger for me.. This video really made me feel so grateful I don't have to go through what you do. You're so strong and really brave to put this out there on the Internet. Thank you for sharing x
MissMoo Me too. 😢
MissMoo vomiting is a huge trigger for me as well.
Brittany Crawford Illnesses are a HUGE phobia of mine. Like getting a cold, fever, stomach bug... 😲
KittyAphrodite me too. I live everyday hoping I don’t get sick. I have IBS too as well as anxiety so there are some days where I just don’t want to get up because I’m scared that I’ll get sick. It makes me feel better knowing I’m not the only one that feels this way. It interferes with everyday life.
KittyAphrodite stomach bugs and flus are my biggest fear
You're so strong. I dont know how you cope. i have emetophobia (fear of vomiting) I would literally want it to all end. Thinking of you x
Same !!
Same emetophobia is the worst
same its the worst😭
I know
I’ve had it for 1 and a bit years
I want to THANK YOU SO MUCH FOR BE WILLING TO SHOW ALL THE HORROR AND PAIN THAT GOES WITH HAVING GASTROPARESIS. I was diagnosed with gastroparesis 8 years ago. I have never had a feeding tube but it is still hard to eat because of the pain, nausea, and vomiting. I stay nausea most of the time. I wake up in the middle of the night because I have already threw up in my mouth and I am in so much pain. I THOUGHT I WAS THE ONLY ONE TO HAVE THIS CONDITION AND THAT I WAS ALL ALONE. THANK YOU SO MUCH FOR LETTING ME KNOW I AM NOT ALONE. I APPRECIATE IT VERY MUCH!!
RIP sweet girl💕💕 a true warrior on so many levels!!!!
One thing I've found about severe chronic pain and illness is how lonely it is. At least for me. When you can't escape it and no one can help you and everyone is going on with their normal life around you it makes me feel so alone. My chronic pain and illness started as an adult and worsened after having a child which means I'm a caretaker of a child and there's no one to take care of me. It might have been easier in some ways to deal with this kind of thing when I was younger but I don't know. I wonder if sharing helps you in those moments. I hope it does bc it sounds like a nightmare. I can never decide which is worse, migraines or severe nausea (although a migraine with nausea is def the worst.) Fortunately for me the acute severe pain only happens occasionally and I've had some ability to recover and it's been a year since my last severe acute state. I have so much sympathy for ppl who suffer everyday. It takes such strength to keep going. And having to live with an ng tube sounds horrible. I've had a few ng tubes and they were torture everytime. I'd rather have needles stuck in me repeatedly.
Hi Zoey, I too appreciated this post...
She is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain...
Zoey, prayers going up for you...
Please, watch a few of these videos, they are very encouraging!
And comforting....It gives us Hope!
So sorry for your pain, You are NOT alone, DO NOT GIVE UP, PLEASE!
The Kingdom..
www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9
What did God Create The Earth....
tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO
Sick ones, that have endured
tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO
..........
"Does God Have a Name"
www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1
Psalms 83 18
I agree! In August 2016, I started getting sick. For the past year I've been in and out of hospitals missing out on so much at my high school. I finally got diagnosed with Gastroparesis a couple months ago but I'm always cooped up at home or the hospital, my best friends never visit me anymore and are all moving on with their lives while I'm here all alone and stuck. I have surgery with balloon dilation and botox in less than 2 weeks and that surgery alone is in a whole different state than what I live in.
Zoey Zoey-Zoey
I'm so sorry sweety,just know your not alone
I definitely agree. I have celiac diease and IBD as well as chronic pain and i tottaly agree
How ironic is it that my name is Zoey too and I also have a chronic illness.
Gotta stick together 💪🏻
Hey girl don’t feel bad your so strong I also had a feeding pump in my belly for 15 years I have short bowl syndrome and I finally learned how to eat and keep my weight up enough to finally get it removed , I feel for you I also had the nose feeding tube when I would get hospitalized for months at a time I spent years in the hospital, your such a strong girl for going through all this that is a tough road to walk every day you are brave and strong just keep hope and keep pushing through ☺️I’m also in the hospital now I been here 4 days I’ve been having stomach problems and throwing up every time I eat so after months of going to hospital to hospital I finally came across a doctor who finally found out what was wrong with me and i have to get gallbladder removed so I get surgery soon for that also I get released from the hospital tomorrow afternoon and I can’t wait I miss my dogs 🐕 so much and I have an appointment to get the surgery done soon yay finally after loosing 30 pounds in 3 weeks I’m only 4ft 5inch and I use to weigh 98 pounds and dropped to 65 in 3 weeks im really tiny and I’m 29 years old but everyone says I look 8 years old, I hope 🤞 you the best just hang in there girls are super strong 💪 take care ☺️
Omg, this makes me appreciate my life,and how all these symptoms I don't deal with. But this video made me understand how lucky I am. Thank you Amy for this very wonderful,challenging video; I hate seeing the way you go through; stay strong and I believe in you
you are so brave. i could never deal with this as well as you do - but i don't underestimate the amount of willpower, courage and bravery it takes to carry on with this, despite how easy/normal you make it seem. you're a fantastic amazing human being. i seriously admire you for this.
Oh Love! I just want to hug you! Gently... Oh what a life to live... 😢😢 I am glad you're educating the population. Awareness is KEY!
Such an amazing awareness video! I’m so sorry you have to deal with this on such a regular basis. Thankyou for sharing your experiences and for spreading awareness of this!
I have all 3 conditions you have. I got the gastric pacemaker fitted for mine! Then after my pacemaker was fitted i, who was always super bendy, developed the problems with this. Turns out like you i have EDS , POTS and gastroparesis whohoo and to top it all off took a bowel prolapse and had a partial bowel removal 2 months ago. Life hey!!! Nice to see your bloating look idential to mine. Its sooollleee distroying!!!! I havnt worn jeans in 3 years!!! Plus the pacemaker hurts sooo bad with bloating but allows me to drink now where b4 i was pretty much about to die of deyhration!! Love ur foggy brain stuff too btw!! Have u tried pepsi max i know.it sounds mad but it really helped me dizzy head by keeping my stomach active!! I keep it flat and sip the cans all day! It doesnt work with any other.fizzy type crappy drink only pepsi max lol not the best for u but stops my dizzys as much. I like to call them swetty sugar rushes lol. Keep it up 😃
Very informative video! I have been suffering with gp for 10 years. Every gi doctor I've seen tells me there is no pain with gp. Or pain meds slow your molitity. YES THERE IS PAIN AND I DON'T CARE WHAT YOU LEARNED IN SCHOOL, I'M THE ONE IN PAIN!!!! AND I DON'T CARE IF PAIN MEDS SLOW MY MOTILITY, THERE'S NOTHING IN MY STOMACH 95% OF THE TIME. SO JUST GIVE ME THE PAIN MEDS SO I CAN FEEL HALF WAY HUMAN! THE VOMITTING IS THE WORST. VEINS IN MY FACE ARE BLOWN OUT AND I HAVE TO SEE THE DENTIST AT LEAST 4 TIMES A YEAR SO I CAN KEEP THE TEETH I HAVE. ALMOST ALL OF MY UPPER TEETH ARE CROWNED. THIS DISEASE IS VERY EXPENSIVE! IT LEADS TO OTHER COMPLICATIONS SUCH AS PANCREATITIS AND DIABETES. AND LUCKY ME SUFFERS WITH THAT ALSO. GP WILL TAKE YOU COMPLETELY DOWN EMOTIONALLY, PHYSICALLY, AND MENTALLY. PLEASE SEE A THERAPIST IF YOU SUFFER FROM GP AND ALL IT'S SISTER ILLNESSES. YOU'RE GONNA NEED IT!
Ren if you live with chronic pain you would completely understand what she is saying. I have nerve damage in my stomach. The pain goes up my back down my legs and stops me walking sometimes. Without painkillers I’m rolling around in pain. With them I can stand up and get through a day. People with chronic conditions NEED painkillers.
I have type 1 diabetes which I know is absolutely NOTHING compared to your condition. But it just caught my eye that your condition can lead to type 1 diabetes. I can’t imagine what it’s like for people who have to live with t1d and this! That would be so hard.
@@normaurmon8756 take care of your diabetes. I am also a T1D and my lack of care of the disease has led to me having GP. Trying to balence food, insulin and puking, can really make blood sugars go whack.
@@Elizabeth-ci8jm Amen to that! We DO need pain meds. I have an appointment for a pain clinic and hopefully they will be able to help me!
The raw truth is so informative. You are such a wonderful person Lee, I wish you all the best for many years to come. ❤️🐨🦘🦘
I’m glad you’re bringing awareness to Gastroparesis. Nobody understands how bad it is unless they have it. The extreme pain, the constant nausea, and meals that sit in your stomach for weeks doesn’t even start to explain how much it affects people. I’ve been so close to death numerous times because flare ups. Hopefully more awareness will bring us closer to a cure.
Rest in peace Amy ♥️
I absolutely started to cry I was just recently diagnosed and I’ve had this for years and no one figured it out I’ve been called so many things by doctors and family that had no idea what was going on. Thank you for sharing
Rest in peace, Amy ❤️ If it wasn't for your information, my parents wouldn't have understood what was going on and I still might have been undiagnosed
Same with me
I don't have any chronic illness but you are so inspiring! You are a strong woman and I will no longer take life for granted
OMG, you are one brave woman! I'm so terribly sorry that this is your story, but grateful you have the guts to show yourself at your lowest moments and bring awareness to this disease. I've worked in the medical field for almost ten years and seen a lot of different chronic illnesses and all have their own weights to bare. I knew of your condition, but not the day-to-day struggle. I thank you for your insight and that it may help me treat patients in the future, but I wish I could take all your pain and suffering away. I wish you all the best in your efforts as you co-exist with gastroparesis. I will take your story and learn from it. XOXO ❤️
i am truly in shock that you are so up beat and happy and positive i absolutely envy your courage and positivity god bless you and carry on girly ❤️
God bless no shit if I was God I would never let her suffer.
Holy shit girl, respect! I didn't even know this existed like dam. I feel so sorry for yal! I hate it when I get a stomach bug or period cramps or my little sister wakes me in the middle of the night but u have that constantly! I feel for u, I really do! x
It's great you posted this people just see the good on social media most of the time when in reality it's not like that your super brave for spreading awareness with the truth of what it's really like ☺️☺️
jade armstrong thank you beautiful girly ✨
I can’t even imagine what you are going through, but I think you are so freaking strong. God bless u ❤️
I am so sorry you have to go through this. I have go, too, and so did my one daughter. Unfortunately, five yrs ago she passed away from a combo of type 1 diabetes, hcm(hypertrophic cardiomyopathy) stomach cancer and other gi issues. She was ex’s with stage 4 stomach cancer so she couldn’t do chemo due to the diabetes(brittle diabetic who was a medical anomaly...wired backwards) and hcm. My go is a bit more under control now. That bloat is so painful and the dang nausea and vomiting that just hits, ugh...when it first started with me it took about a year and a half for them to finally dx me. My daughters was much easier bc of men I remember feeling so alone bc so many people thought it was all in my head. Thank you for bringing awareness out there bc even now, with dealing with it for over 15 yrs, people think it’s all in my head....
This makes me feel so guilty for my eating disorder because I should be grateful I can eat food physically because while you can’t eat because of an illness and I can’t eat because I have made myself this way I feel horrible , anyways your so so strong and a true inspiration thank you for this amazing awareness video !❤️❤️
Everyone is on a different path. Don't feel guilty. Both are terrible things.
How old is this video?
I hope you're better now
We have all the same illnesses. I used to vlog about a different illness of mine but became too ill. I'm hoping to start making them again.
Love your videos! :)
I am having issues... I was stabbed three years ago and I’ve had ten surgeries on my stomach. My bowels have completely quit working, I cannot shit on my own. I go 4-6 weeks in between bowel movements. I’ve lost seventy pounds in a year, I barely eat. I’m always nauseous and miserable and it gets worse daily. I feel for you... I miss food and normalcy too.
That is horrible, I'm so sorry! I hope you're doing okay!
I hope you're okay!
But who the hell stabbed you?!
❤🧡💛💚💙💜
(That were healing hearts :3)
@@super.radioactivity_ a man who also raped a little boy and stabbed two other women
How do you get help with bowel movements?
My bowel movements are damaged due to EDS, I was told my muscles don't do the job properly, but I don't know what can be done.
Sounds like you're not getting support but I thought I'd ask..
@@katlynmorford1231 I hope he who stabbed you was arrested and punished. I hope you find peace of mind
straight up look up and appreciate people like you suffering everyday going through so much all the time and pull through for another day. we have no idea what everyone is going through and its just an eye opener to how you feel and what you have to do day by day. solute to you girl good on you sharing awareness us peoples gotta know the realism in it all and understand others xoxo
Hi Hun I have had gastropareisis for 4 years now and I'm really glad that you're making videos about it to educate others! It's been absolute hell for me too but I'm fortunate to where I don't need a feeding tube only because I went into remission when I had my daughter 11 months ago. Now I'm pregnant again and going thorough the morning sickness just hoping it stays in remission. Much love Hun! A lot of people don't understand what we go through. I've been told "you just have a tummy ache." It's so much more and i wish it was just a tummy ache!
I don’t have gaseropresosis (sos if I spelt wrong) I get nose bleeds quite regularly and I think you are amazing putting up with what you do I will try and share this to as many people as I can
I love you
You are so beautiful, strong and rlly inspirational! Most dont know about gp like you said and the way you're using your channel to educate and so on is amazing! =) Ty so much for all you do and am glad I subscribed!
It’s so sad, her body has been slowly dying for many years. I’m so glad that she is no longer miserable. Finally she’s found peace.
Thank u for your posts and videos. Ive bene struggling from.muscle weakness for 2 months docs dont knownbut i can hardly walk/eat. These give me hope. Ur such a sweet person. Rest in peace. 🙏
I have chronic abdominal pain (which is under investigation- they don’t know what’s causing it), and I struggle day to day. I couldn’t imagine living a day in your life, you’re so inspiring and I can’t believe how challenging your day to day activities must be. I’ve been on strong painkillers for a year straight, and on a waiting list for surgery so they can explore a bit better, and even taking my meds I struggle with, and you’re here doing the most challenging things. I experience naesea, bowel issues, obviously severe pain, fatigue and bloating, plus more but those are the more common symptoms. I’ve been experiencing this for years but has became an issue for about a year and a half, where I finally went to the doctors to see what’s up. Hopefully soon my surgery can be scheduled so they can find out what’s wrong with me! You’re an inspiration and I wish you good health for the future ❤️
I️ just started watching you and I️ am so happy you are showing the world the behind the scenes of gastroparisis I love this and I️ think you are drop dead gorgeous
Sweetheart- this was so brave of you to show- and we need to know what you go through. For those who don’t like- they don’t have to watch. I have such admiration for you.
How do we access your other vlogs?
Hello, I am writing from Argentina. I am a nursing student and I love your videos. I wish you would not go through all this, but your videos explaining different things make me understand everything from the patient's point of view and it is very useful to understand them and be able to support them. I hope you get well soon :)
No es muy fácil encontrar argentinos por acá :')
I normally don't comment on videos but I'm glad you did post this to raise awareness. I never knew about this but I will pray for you. I hope that your symptoms become more manageable because you definitely deserve a better quality of life than having to deal with all that you do everyday. I am glad that you have a positive mindset about this and I wish you nothing but the best xx
I think videos like this are so important for so many people. We're living on a society where all the stuff on social media only shows the bright and perfect side of life and not what it's really like. You don't have to feel gross or anything like this, that's just how it is, what you have to deal with everyday. You're a survivor, a fighter you can be so proud of yourself and you have all my appreciation! Keep on fighting girl, you're beautiful and a true inspiration for all of us💪🏻👏🏻👏🏻💖
Your body and face looks so beautiful even ur sick :( . you are really a strong girl to can handle this. Not everyone has a strong body as you. god bless you. Hope you feel better today
You are a Beautiful human.. Through your courage i now understand more about your life struggle every day.. You are a strong, smart woman and i have sp much respect for you.. Thank you so much.. I am sending you Love and Light..
LOVE to warm your heat
LIGHT to lead the way..
When I was in middle school, I had an infection in my esophaguses that caused me extram nausea whenever I ate. It wasn’t until later doctors finally did a test that found the cause, but before that I was throwing up 2-3 times every day for around 3 months. I’m older now and haven’t had anything like it happen since then. Just a few months of it left me physically and emotionally exhausted. I can’t imagine what it must be like to have to go through that for your whole life. Thank you for raising awareness and telling your story. Wishing you well, and I hope you have much better days after this ♥️
what was the cause of your vomit and extreme nhausea
Niel Moutou it was from the infection. It basically got really irritated whenever I ate and caused me a lot of nausea
Brooke B did they give you medications?
Niel Moutou they couldn’t give me anything until they found out what was wrong with me. They did a few test before they finally found out that it was an infection. It took about 3 months before I was finally able to be put on medication.
I feel very lucky after watching this. I’ve had stomach issues for years and just got diagnosed with gastroperisis. Mine is mild and I hope it stays that way. I do have trouble losing weight and issues with eating but if I had to choose I would chose weight issues over what you are dealing with. Prayers and thank you for showing the reality of what this disorder is.
me too i have mild gastroparesis im very lucky too this illness dosent matter who u are what age u are and i hope that mine stays this way too but i feel myself going into another flare i was diagnosed at 16 im now almost 23
I'm a little scared watching this. I'm very used to hospital life. I've had kidney failure, dialysis, transplant, sepsis, pancreatitis, and transplant removal due to infection. I'm anemic (saw your video getting blood, been there too) and I've had issues with my stomach. I went 16 hours nothing by mouth, had the test scope.. endoscopy I think? And there was still food in my stomach. They said I had gastroparesis, yet I've heard nothing back on treatment. I throw up a lot but as I know it now, it's not bad enough to give me a feeding tube yet. Stay strong. If I am asked one more time about my eating disorder (that I clearly don't have) I may explode. I'm glad to see this, a raw explanation. 💖💖💖
this is not disgusting, this is life, you are amazing :) You are amazing person Amy Lee Fisher!
I can’t believe she’s no more 😢
Wdym 😥
@@aaxdark5075 she passed away on the 1st of april ❤️
@@McFlyfannia oh that’s such a shame 😞💕
My mom has gastroparesis, EDS and POTS. In your EDS video and this one your perfectly capture what it's like and I'm sorry for you and what you have to deal with. This gave me a new understanding of what she has to deal with so thank you.
ObjectiveMotive your so welcome and I’m so sorry about your mum x
Hi There, I too appreciated this post...Yes, your Mom is suffering along with us. How unselfish of you look into her disease and witness the things she deals with, so you have better understanding. You too, are courageous!
The Sister that made the video, she is so strong, what an encouragement. I too, have Gastropasis, Cilac disease, Endometriosis, Epilepsy, IC (Cystitis), and much more. I feel her pain...
Please, watch a few of these videos, they are very encouraging!
And comforting....
The Kingdom..
www.jw.org/en/publications/books/good-news-from-god/what-is-gods-kingdom/video-kingdom-come/#?insight[search_id]=1416e759-124d-4151-8379-e77e4ae5a342&insight[search_result_index]=9
What did God Create The Earth....
tv.jw.org/#en/mediaitems/VODBibleTeachings/docid-502017855_1_VIDEO
Sick ones, that have endured
tv.jw.org/#en/mediaitems/VODIntExpEndurance/pub-jwbls_201512_1_VIDEO
..........
"Does God Have a Name"
www.jw.org/en/publications/books/good-news-from-god/who-is-god/video-gods-name/#?insight[search_id]=b94814a0-9aba-4167-976e-4e82420eaa8b&insight[search_result_index]=1
Psalms 83 18
I have IBS and I am constantly throwing up and having diarrhea...often both at the same time so if I am not fast enough...you can imagine what happens...
So I can't imagine going what she went through half her life.... I hope she can rest in peace now and her loved ones can find peace somehow too...
You are hella awesome ... I so appreciate this video. I have gastroparesis and I am severely terrified of vomit but its encouraging to see you this way cuz I know I'll be ok when it happens to me . I hope you consider posting more raw videos like this to educate people . You are so brave and strong and such an inspiration
It took me a second to identify the background sound while you were talking at first. Having been in the ICU listening to my husband's IV pump, I finally realized I was hearing yours. Miss your videos Amy. Rip ❤️
Amy you're so brave! You're so strong it's unreal! You go through so much but you always come out fighting & always cracking a smile for your viewers, I'll always keep supporting you!😁x
ItsEthanHull omg! This comment thank you so so much Ethan! 💕💕
Amy Lee Fisher no worries😄xxx
So much respect! you're so strong!
I miss Amy so much. Such a beautiful person.
May you rest in peace angel 🙏🏻✌🏻
I've been ill for the past 4 months and I was diagnosed 3 days ago with gastroparesis. I'm absolutely miserable. I bleed like crazy and I have 0 appetite. My body strains so much that my esophagus spasms and I have 2 hemorrhoids at 14. At the moment i'm trying to remove the waste because food from 4 months ago hasn't digested.
Kenna Ragaller I hope you’re doing better
I am so sorry love
I have gastropersis since 1993. I thought I was alone. Your video video has given me hope! Thank you and God bless you...
Hello! I don't mean this to sound condescending in any way but you have really made me appreciate what I have in my life and in my body. I think you are an incredibly strong person. I watched this video a few days ago and came back to comment because it's been weighing on my mind, and I just didn't want to pass by without saying thank you for sharing something so personal. I'll keep you in my prayers xx
marissa vachon thank you so much 💖💖
Going through testing,and im totally convinced i have gastroparesis. im sick so much and i've had it over two years. i completely understand you and how you're feeling, especially when you said that the worst part is vomitting, and vomitting in public, i've vomited so many times in public that i've come to accept my dignity is out the window when it comes down to being ill like that. I hope you and your doctors can find something that can bring you more comfort. x
Wow I had never heard of gastroparesis before you. This was eye opening. You are a strong warrior. Sending love and strength your way.
Watching this in 2019....been watching you since your McDonald's sent me to hospital video, just watching some of your old videos....you're gorgeous and beautiful inside and out, stay strong ❤️ x
It must have taken some guts to post this but, I'm sure that it's going to raise awareness and now I know how crap it must be to live with Gastroparesis
Bryony Armstrong thank you! I was honestly petrified about posting it! I still am 🤦🏽♀️ Neevous about the kind of feed back it's going to get! But at the end of the day I'm here to show people what it's really like living with this and that's what I hope I've done! Thank you for your support 💖
I feel ur pain. I thought I was dieing before I was diagnosed. Over a year and a half of misdiagnosis after misdiagnosis. Multiple jobs lost sleepless nights chronic pain every day of my life. Relationships don't last because I'm always sick and people don't understand. I lost over 25% of my body weight people I haven't seen in a long time think I'm on drugs. My feelings get hurt all the time I don't get invited to things anymore I know I shouldn't care but I'm only 26. I was in the Military so I'm not weak mentally or physically. G.P has stripped me of financial freedom a social life and mental stability. I cry all the time everyday if I'm not feeling sorry for myself I have uncontrollable anger lashing out at everyone because no one understands I want to be normal. My G. I doctor said that if I keep losing weight then I have to get a feeding tube. Yesterday I seen him so I put ankle weights on and as much clothes as possible without looking out of the ordinary and still I lost weight. A lack of nutrition has started to destroy my body my hair is starting to fall out and is getting lighter. Holes in my teeth and finger nails my skin is horrible I'm on 11 different meds over 25 pills a day things are only getting worse I'm scared and feel alone I just want to be 'normal' my moms tells me a feeding tube will make my quality of life a lot better. I have shitty insurance that's making things difficult. I watch your videos and see I'm not alone. I can't thank you enough for putting up your most vulnerable moments sharing your struggles. I draw strength from you. Your videos and videos of others with G.P help me get through the really bad days when I feel hopeless and lost. Thank you for sharing your story. It really helped me today. I have extreme anxiety and get really sad when I don't feel good I want it all to go away. Seeing your struggles with G.P is helping me more than you can imagine. Seeing you stay positive and keep going on with life is inspiring. Thank you so much. I hope you have a wonderful new year filled with love happiness and support. G.P isn't defining you so I won't let it define me either. Take care and Thank you again
I am so sorry you go through all this dear. I pray for you and Christina and Mickie and all our UA-cam EDS’ers and all our EDS’ers we’ve lost too (like ChroniclyJackie)
Hang in there dear I’m rooting for ya!
Hi Amy! I just came across your channel today. I do not suffer from gastroperesis but i do have crohns disease, a hiatal hernia, an ulcer, gerd and have had my gallbladder removed due to gall stones and my gallbladder not functioning, so i can relate to you to an axtent44on living with a gastrointestinal disease and how much of a struggle it really is. I also have thyroid cancer, rheumatoid arthritis, endometriosis, polycystic ovarian disease and fibromyalgia, so every day is a struggle and alot of days i have a hard time finding the motivation to get out of bed and face the day... Finding your channel and watching your videos has really inspired me, because there are days when i get up and i just want to crawl back in bed and say screw it because i feel so horrible and i have no energy and/or motivation to get up and do anything, but i force myself to get up for my two beautiful little girls who need their mommy. Many people dont understand GI disease so they think that people who have these GI diseases are just over reacting, they just dont know the truth of it and i hate people judging me because they already have this predetermined notion about GI problems when half the time they dont know anything about it... Thank you for posting these videos to show people what it really means to have a GI disease and for giving people like me the inspiration and motivation to live life to the fullest and to not let anything get in the way of that. Keep vlogging and stay strong! Hope you have a wonderful holiday!!! Much love
Amanda Hawkins, Alton Illinois