Just wanted to say I thought cilla saying she takes medication for such things that might cause her anxiety like new restaurants etc. was just fabulous-total honesty, love it
I actually did not know there was such a med that was not a narcotic. My daughter really could use something like this when going to the eye doctor and for job interviews. She has ASD and is 19.
@@paulalabbe-fahy4595i believe there are quite a few anxiety medicine options that aren't narcotics! just off the top of my head, hydroxyzine, gabapentin, buspirone, prozac, zoloft, and lexapro are all non-narcotic! luckily narcotic medications are getting prescribed less and less frequently as more people learn the dangers. i'm actually on hydroxyzine and gabapentin myself and i couldn't function without them!
My daughter is turning 17 next year so this is very helpful me and now i have a better understanding. Thank you so much. Your channel has helped my family so much.
Bravo for being so proactive getting the guardianship. I am glad you educated Isaiah on the guardianship also putting it in your will. So many parents do not do it until something happens .
I am not a parent of someone with autism but I love your family dynamics and the way you care for Abbie. You make her as independent as possible in her day to day choices. I learn so much about life, love and how to respect anyone that may not be as fully functioning as others through watching your channel. Thank you.
It’s great that you drilled down even further with more info and clarification. I am really glad you talked about how hard it is emotionally to make the decision seek guardianship. My child is verbal and absolutely hates that I make decisions for her, however having this document is literally the difference between life and death. Others constantly try to take advantage of her vulnerabilities. She has no ability to keep herself safe, understand her medical needs, take her meds, and can’t add double digits accurately. There is so much we take for granted with neurotypical children. Sharing your experiences benefits all. Tips: keep a copy of the judge’s orders in your purse, wallet, car etc. You never know when you will need them because an emergency happens & you are not home to grab them. Protect in plastic in case anything spills in your purse. Make sure your insurance company has a copy in their records and have all providers scan them into their portals & electronic records. Same with pharmacies. Have a scanned copy in your phone files. In case you are on vacation and child is not with you, you can text or email them to an ER to be able to speak to providers by phone.
I'm so proud of Ab! She is doing so great! Camp time! She is going to have so much fun at camp! We are going for guardianship and conservatorship over my son. It's both necessary and depressing. Thank you for all the information!🥰🥰 Have a great Friday everyone!!🧡🧡
I had to take over that kind of care for my dad. I took over that care for my dad as soon as I turned 18. I looked after my dad and made decisions for him for over 10 plus years before he passed away.
we just had a family situation with an unexpected death and it's been very helpful to have a coguardian because there is no laps in the childs healtcare, etc. with a loved one stepping in.
Oh the other side of it. I used to be a pharmacy tech and parents would get so upset when their kids turned 18 and we couldn’t talk to them about prescriptions anymore. You all will no doubt do the best you can for Abbie, as you always have. However a lot of people forget she is now an adult.
I have a beautiful, wonderful, and an oh so intelligent 4 year old princess with autism. When the docs started telling me something “may be wrong,” I found your channel, and your family gave me a lot of hope. Life goes on, family still loves each other. Also, things change, even if it happens slowly. My girl is growing and achieving constantly, just like Abby is! I want to send you validation and love! ❤❤
That’s great you see your child achieve goals and learn new things! That’s almost the best thing about raising a child is to see them with that lightbulb 💡 moment when they learn!! Sending u ❤️ My baby grandson is dealing with speech apraxia and I am so proud he can verbalize more clearly daily but without insurance for therapy it would be a nightmare.
I’ve been watching your channel forever and this is probably my favorite vlog to date. It’s happy but also very realistic and I applaud you for sharing this with us ❤
In our daughters case, she has signed a release of information forms for doctors and places that she needs my help doing stuff. She has full guardianship of herself , but with the caveat that they have to come through me to get information if she gets confused or lost so that’s also something you can do with doctors and lawyers and things that they might need help with.
Thank you for the answers to a lot of the questions including mine about how the guardianship works in your case. So many decisions to make and hoops to jump thru! Great job you two!
I have peripheral neuropathy and those slides were a lot like flip flops where you have to know to flex your toes to keep them on as you walk. Since i can't feel that sensation anymore, they slide off my feet while walking. I have better luck with something with a back strap, a swim shoe or croc, in case this helps her, she may not know about the toe clinch or might be have sensory issues with it. Hope that helps. ❤
I have MS and I find flip flops very difficult. Stairs for example, are a big no. I just have to take them off and use them barefeet because the danger of falling is too high. I always look for shoes thay can be properly attach and secured to the feet.. They really make a difference. If she's looking for something "flip floppy" she might would want to check for trecking sandals. Those are great, and there are plenty of options with nothing between the toes.
I'm so thankful that you guys provide content like this. My son is about to turn 6 and is non-verbal and autistic. I've been watching you for years and it helps so much to know we are not alone in this. videos like how you guys had to go and get guardianship for her help people like us to know what kind of things to expect as my son grows. Thank you, I know it's not always easy. ❤
I think what you are doing for Abbie is amazing, with you as her guardians you will give her the best opportunities she could have, I know it hasn't been easy, but everything you do is for your girl. I know she appreciates you both and will be grateful to have you as her guardians, she really is a credit to yous x💛
I am so proud of Abby how she is learning more and more how to deal with things. I am 77 years old and my niece is 61 years old and we both will put our carts in the cart holders no matter how far from them we are but I have seen people in their 20 and 30's that will not even put them away if they are parked two parking places away from the cart holders.
The Bartlings talked extensively about guardianship in their sixblindkids videos. It’s great in that it protects the one being guarded. It protects them from being taken advantage of.
When it came to my grandpa last year in life, my uncle took over the money/legal aspect and my dad took over the medical aspect. Since we lived two houses down it was easier to take over medical paperwork (while still caring for my two brothers)
Some of those hoops that must me jumped through are to ensure that a person or people are not trying to take guardianship over someone who does not need it. For example, parents couldn't go in and petition for guardianship because their 18 year old is not making decisions that they would make, or the parents believe their 18 year old is misbehaving. It helps me to think of it in terms of "Rules on Rollercoasters are there for a reason'. Somebody, somewhere has tried to gain guardianship for maybe not the right reasons, or to have power over and 18 year old's inheritance. Rules are set on rollercoasters because someone stuck their arms and/or legs outside of the car and was injured. Rules are in place because someone on the rollercoaster stood up. Legal hoops and/or precedents are in place because someone tried to do something not in the 18 year old's best interest.
I had to di a Court of protection for my Grandparents. They hadn't done a will or lasting power of attorney. The COP allowed me as a deputy to look after their health and financial care. Annually I would have to provide full financial records, medical updates as well as visiting etc. Incredibly daunting, but also rewarding. I had to do it all myself, I couldn't afford legal assistance! I learnt so much!❤
I'm in Iowa and myself at 18 my folks still made some decisions on my behalf and some appointments and stuff for me but they never had to do all the stuff that y'all are for/with Abbie so that was why I was a bit confused so thank you for explaining I may not FULLY understand but I now have a better idea
We live in California and having guardianship is called conservatorship. So, that also differs from state to state. It was so crazy to me that we had to be basically investigated to continue being our daughters caregivers after she turned 18. But, I’m happy it protects her and us.
even here in Canada there is a medical decision-maker and a financial one for people who are unable to make their own. When my dad's dementia got really bad I took over the medical decisions while my uncle on my mom's side took over the financial ones.
I love Cava because I can make my own bowl. I have sensory and GI sensitivities and I love that I can pick out exactly what I want on my mom’s phone (she’s the one with the app) because I can’t see well enough to read the wall. I struggle with scraping chairs still. I’m glad the hydroxyzine is so helpful. For those unaware, it’s an antihistamine so it can help with allergies and sleep in addition to anxiety.
I'm so proud of Abi. She's a wonderful kid, and is blossoming into a wonderful young woman. While the process of getting guardianship of her was interesting to me, it wasn't a surprise, but that may be due to me working in the medical field (specifically with the elderly) and understanding how the NZ legal system has provisions for them. It did take a bit of a push from me to get my dad to put the paperwork through for his parents, which worried me because my grandmother has dementia, and I was worried that she'd lose her decision making ability before the paperwork got signed. However, he now has full legal decision making powers for her (both medical and financial), and we have paperwork for his dad too, though that hasn't been enacted because he's still mentally capable. I'm now worried what'll happen when my parents get to that point because I'm an only child, and haven't started a family of my own
Hi there to Abbie and her wonderful family ❣️ Thank you for the awesome content. I'm watching the latest vlog and you're answering some questions submitted by viewers regarding Abbie's "guardianship". You mentioned that you have guardianship in the state of Florida and that you'd need to go in front of a judge for authorization to move out of state. My question is: What about vacations? Do you need permission to cross state lines with her?" What about international travel? Please let me know if this has been covered already. Sorry if I missed it but, is it something that you've thought about? Help me out please cuz ya got me thinking! 🤔 Thanks again 👍
My son is 4 years old and in May he was diagnosed with autism. He's starting at a school on August 10th and they have an autism program that can help him. It's constantly in the back of my mind on how well he's going to do in school and how he's going to develop as he gets older and if he's going to need me close by for the rest of my life. I didn't know guardianship was a thing you had to do. I'm really glad you guys put this video out. You are helping so many people
I remember the first time I tried to talked to someone at my oldest’s college about a class or something and my daughter had to give them permission to discuss it with me. I was like but I’m paying for this class. Lol. They do not care. Once you’re 18 boom. So happy to see Abbie be able to enjoy lunch at a new place. 🥰
Thank you for sharing more information about guardianship . I didn’t realize their was a partial guardianship . I have some research to do. Thank you so much.
I never thought about that, about Abi’s rights, I assumed bc you’re her parents/caregivers that you can do those things for her, but now that you’ve explained it, I get it, the Florida issue, oh there’s that to deal with. Camp sounds great for her social skills and fun activities, it took work on your part to get her to that comfortable place where you can feel assured that she’ll be able to handle camp and the new surroundings! It’s awesome to see Abbi go out to eat with no issues and see her picking out treats and her own lunch, her own shoes or colors, is so cool that your whole family lets her be herself and within reason, you let her make choices of her preferences which I’m sure let’s her feel comfortable and confident and loved! You’re awesome parents, I do wish that every child had such great parenting. ❤
Hi Asa, you might want to consider crocs for shower shoes. They are made of the same material of typical shower shoes but have the supportive strap. They can be worn in water. They can be worn without socks and are perfect for this (I wear them on the boat).
Once guardianship is approved, be sure to file with insurance company and healthcare providers you will probably need to file a proxy to communicate with insurance company and access electronic health record.
As an autistic adult who happens to be own guardian, but fully aware of so many different cases, I can see from what I observed in some of the videos, why Abby is in need of a guardian. A lot of people fail to realize that one becomes own guardian at 18, unless a court has ruled otherwise and I have before looked through to see if guardianship did get filed on people I know or heard about that are on the spectrum. Case in point, I remember an article on a family of 4 girls all autistic and while the 1st 3 were like myself, capable of taking care of self, the youngest was indeed classified as severe and guardianship absolutely did end up having to be filed on her for sure. On occassion, I have even explained my own parents don't have power to do this or that because I am an adult and my own guardian. But yeah it seems a lot of people don't understand guardian of adult laws, including when guardians got appointed over adults with dementia type conditions (such as a former Mayor of Detroit ending up guardian of famous Rosa Parks when she developed dementia before her passing away). Anyways I do hope for the best for Abby of course and have to remind myself that mot all autistic individuals are like myself since each autistic individual is different, and I've seen numerous different functioning levels.
With elderly people you get a power of attorney. And you get that power of attorney before they are so elderly that they can’t make a decision as to who they want to have their power of attorney. Also, it can be the whole power of attorney where you’re in charge of their medical and their finances or they can split it, and have one person in charge of their medical and one person in charge of their financial.
I have neighbors that going through the same thing that you are Going through with. Abby, it is very hard to deal with. But you have to go through this. Unfortunately, their son passed away before that happened.
I think guardianship is only appropriate when a person can't properly express their thoughts and wishes in a permanent capacity. For example, an elderly person with advanced dementia, or like Abbie an autistic person with severe intellectual disability leading to severe communication deficits. If someone has enough skill to understand a situation (even if they need accommodations) and clearly communicate their thoughts and wishes (either through speech, communication devices, sign language, etc.), then less restrictive methods should be attempted first
Some less restrictive means can be: 1) If someone has an episodic psychiatric condition that makes than unable to make decisions during an episode (like Schizophrenia, bipolar, etc.) the person can set up a psychiatric advanced directive and nominate a medical power of attorney/medical proxy for when they have an episode 2) If the person has a disability that affects their intellectual abilities but can still communicate their wishes (Down Syndrome, autism, intellectual diability, etc) they can set up a supported decision-making agreement and give permission for someone they trust to help them deal with financial or medical decisions (for example)
Yes it's used for several things. My dad takes it fir his hives and calls it his "itch pill" while my dog takes it for allergies and anxiety. I was prescribed it years ago for my Anxiety b/c it comes in liquid form and it was easier while I was on a feeding tube.
In California many counties give you the option of a “limited conservatorship” when developmental delay/cognitive impairment is an issue. It limits the conservators abilities/decision making powers. Also if the person you’re seeking conservatorship over gets aide, SSI etc the court will waive their fees and you can hire a paralegal/LDA for $500 or less. Always check reviews get references or ask your local regional center for references
Would Abbie wear crocs or jellies? When I was a kid in the 80s jellies were all the rage. Since they are plastic and have back and are a slip on. I didn’t know if that would be a shower option over a slide that will fall off or may cause her to trip. Just an idea.
I have to comment on you being Abbie's guardians, I'm very sad lately what no one talks about when it comes to guardianship is that eventually older adults(elderly grandmother) had to give up the guardianship of my twin who has autism because last year my grandmother was very ill. Now my twin is a ward of the state and my grandmother has no control of anything that has to do with my twin's life.
hi! so if you were to go on vacation OUT OF FL, and something were to happen to Abbey and you needed medical help, would the hospital/doctor honor your guardianship if your "type" is only for the state of FL? Also, do you have to go back in every few years to get re-evaluated wit the judge/Abbey's lawyer? Will you have to pay this 5.6k every year? I love this video "series" it's so informative.
They’re her guardian, so if they took her out of the state of Florida on vacation, they can still get her medical treatment. Someone somewhere I had suggested caring the paper and that’s what my friend is with his brother he just carry the papers with you.
I take Diazepam as and when to manage new or difficult situations. I have CPTSD, the anxiety is so all consuming it prevents and pleasure being achieved!
Here in Canada once they turn 16 kids must sign a waver, so parents can contact medical or school i have power of attorney on my 3 spectrum kids so i can make all other decisions on their behalf when my youngest turns 18 (not on the spectrum ) we will include her as guardian if something should happened to my hubby and i and my adult niece will be co guardian
Abbie looks like she enjoyed her meal at the New Restaurant. She has come along ways . She does alot by herself. My daughter was prescribed hydroxacine it works sometimes. At times is makes her more emotional. Can you still get guardianship if your daughter or son it older than 22?
My son will be 47 soon, when he turned 18 I had to fight issues that he could make his own decisions, take care of his money, medical etc he is legally blind which to others his mind was damaged which is far from the truth. He can't drive, needs enlarged print, might need someone to help him walk in unfamiliar places and for sure traffic those type of things. He has a very sound brain, has a bachelor's in criminal justice and in physiology.
I was thinking the same thing. All adults should have a state ID even if they don’t drive. My dad is 82 and doesn’t drive anymore but still keeps a state ID.
Abby I totally get u there.....when i go to a new place if its to much i will painc as well its florcent lights and sounds for me...and yes mess help hudgly
Hi Asa, Q…….wouldn’t that also be referred to as “power of attorney”? Because when my mom was diagnosed with stage 4 ovarian cancer, we had gone to an attorney and I then became “power of attorney” for her with Medical & Financial needs!
Power of attorney and guardianship accomplish a lot of the same things, but aren't the same, at least where I live. With POA the person keeps their rights, you just also can make decisions for them. With guardianship you become their legal guardian. Also with POA the person needs to grant that themselves, and Abby does not have the understanding to do that. There's also medical proxy, but that only takes effect when the person is not able to make medical decisions, like if they are unconscious.
It was recommended to us for our 17 yo to be evaluated for financial conservatorship. He is high functioning, but has been swindled out of his money from people pretending to be his "friends".
Wonder what Abbie thinks when she is able to go somewhere and the ceilings don’t bother her and she does not have so much anxiety. Must be a relief. HIPPA is horrible, in my experience. What do people do if there denied guardianship? What a stressful situation. Prayers
Just wanted to say I thought cilla saying she takes medication for such things that might cause her anxiety like new restaurants etc. was just fabulous-total honesty, love it
I actually did not know there was such a med that was not a narcotic. My daughter really could use something like this when going to the eye doctor and for job interviews. She has ASD and is 19.
@@paulalabbe-fahy4595i believe there are quite a few anxiety medicine options that aren't narcotics! just off the top of my head, hydroxyzine, gabapentin, buspirone, prozac, zoloft, and lexapro are all non-narcotic! luckily narcotic medications are getting prescribed less and less frequently as more people learn the dangers. i'm actually on hydroxyzine and gabapentin myself and i couldn't function without them!
My daughter is turning 17 next year so this is very helpful me and now i have a better understanding. Thank you so much. Your channel has helped my family so much.
Y'all give me chills when you say "when Priscilla and I won't be here anymore". I love your family!!!!
Bravo for being so proactive getting the guardianship. I am glad you educated Isaiah on the guardianship also putting it in your will. So many parents do not do it until something happens .
I am not a parent of someone with autism but I love your family dynamics and the way you care for Abbie. You make her as independent as possible in her day to day choices. I learn so much about life, love and how to respect anyone that may not be as fully functioning as others through watching your channel. Thank you.
I’m going to be a guardian for my friends son if something happens to her. She put me in her will. Her son is autistic.
Lol Abbie had no hesitation on picking the biggest cookie out of the three options. Blessings to you all.
It’s great that you drilled down even further with more info and clarification. I am really glad you talked about how hard it is emotionally to make the decision seek guardianship. My child is verbal and absolutely hates that I make decisions for her, however having this document is literally the difference between life and death. Others constantly try to take advantage of her vulnerabilities. She has no ability to keep herself safe, understand her medical needs, take her meds, and can’t add double digits accurately. There is so much we take for granted with neurotypical children. Sharing your experiences benefits all.
Tips: keep a copy of the judge’s orders in your purse, wallet, car etc. You never know when you will need them because an emergency happens & you are not home to grab them. Protect in plastic in case anything spills in your purse. Make sure your insurance company has a copy in their records and have all providers scan them into their portals & electronic records. Same with pharmacies. Have a scanned copy in your phone files. In case you are on vacation and child is not with you, you can text or email them to an ER to be able to speak to providers by phone.
I'm so proud of Ab! She is doing so great! Camp time! She is going to have so much fun at camp! We are going for guardianship and conservatorship over my son. It's both necessary and depressing. Thank you for all the information!🥰🥰 Have a great Friday everyone!!🧡🧡
I had to take over that kind of care for my dad. I took over that care for my dad as soon as I turned 18. I looked after my dad and made decisions for him for over 10 plus years before he passed away.
we just had a family situation with an unexpected death and it's been very helpful to have a coguardian because there is no laps in the childs healtcare, etc. with a loved one stepping in.
Oh the other side of it. I used to be a pharmacy tech and parents would get so upset when their kids turned 18 and we couldn’t talk to them about prescriptions anymore. You all will no doubt do the best you can for Abbie, as you always have. However a lot of people forget she is now an adult.
I smiled when Abbie chose the largest cookie! Abbies does love her cookies!! 😊
I’ve watched your family for many years. Abby is doing wonderful!!! Your educational choices are right on point.
I have a beautiful, wonderful, and an oh so intelligent 4 year old princess with autism. When the docs started telling me something “may be wrong,” I found your channel, and your family gave me a lot of hope. Life goes on, family still loves each other. Also, things change, even if it happens slowly. My girl is growing and achieving constantly, just like Abby is! I want to send you validation and love! ❤❤
That’s great you see your child achieve goals and learn new things! That’s almost the best thing about raising a child is to see them with that lightbulb 💡 moment when they learn!! Sending u ❤️
My baby grandson is dealing with speech apraxia and I am so proud he can verbalize more clearly daily but without insurance for therapy it would be a nightmare.
I’ve been watching your channel forever and this is probably my favorite vlog to date. It’s happy but also very realistic and I applaud you for sharing this with us ❤
In our daughters case, she has signed a release of information forms for doctors and places that she needs my help doing stuff. She has full guardianship of herself , but with the caveat that they have to come through me to get information if she gets confused or lost so that’s also something you can do with doctors and lawyers and things that they might need help with.
You guys always amaze me - not only do you do your utmost as parents but you take time to educate others as well...
Thank you for the answers to a lot of the questions including mine about how the guardianship works in your case. So many decisions to make and hoops to jump thru! Great job you two!
I have peripheral neuropathy and those slides were a lot like flip flops where you have to know to flex your toes to keep them on as you walk. Since i can't feel that sensation anymore, they slide off my feet while walking. I have better luck with something with a back strap, a swim shoe or croc, in case this helps her, she may not know about the toe clinch or might be have sensory issues with it. Hope that helps. ❤
I have MS and I find flip flops very difficult. Stairs for example, are a big no. I just have to take them off and use them barefeet because the danger of falling is too high. I always look for shoes thay can be properly attach and secured to the feet.. They really make a difference.
If she's looking for something "flip floppy" she might would want to check for trecking sandals. Those are great, and there are plenty of options with nothing between the toes.
I'm so thankful that you guys provide content like this. My son is about to turn 6 and is non-verbal and autistic. I've been watching you for years and it helps so much to know we are not alone in this. videos like how you guys had to go and get guardianship for her help people like us to know what kind of things to expect as my son grows. Thank you, I know it's not always easy. ❤
Abbie is doing so well. The progress she’s made is astounding. She (and her family) are inspirational ❤
Thank you! The information you are providing is so helpful to me. Take care!
I think what you are doing for Abbie is amazing, with you as her guardians you will give her the best opportunities she could have, I know it hasn't been easy, but everything you do is for your girl. I know she appreciates you both and will be grateful to have you as her guardians, she really is a credit to yous x💛
I am so proud of Abby how she is learning more and more how to deal with things.
I am 77 years old and my niece is 61 years old and we both will put our carts in the cart holders no matter how far from them we are but I have seen people in their 20 and 30's that will not even put them away if they are parked two parking places away from the cart holders.
The Bartlings talked extensively about guardianship in their sixblindkids videos. It’s great in that it protects the one being guarded. It protects them from being taken advantage of.
When it came to my grandpa last year in life, my uncle took over the money/legal aspect and my dad took over the medical aspect. Since we lived two houses down it was easier to take over medical paperwork (while still caring for my two brothers)
Some of those hoops that must me jumped through are to ensure that a person or people are not trying to take guardianship over someone who does not need it. For example, parents couldn't go in and petition for guardianship because their 18 year old is not making decisions that they would make, or the parents believe their 18 year old is misbehaving.
It helps me to think of it in terms of "Rules on Rollercoasters are there for a reason'. Somebody, somewhere has tried to gain guardianship for maybe not the right reasons, or to have power over and 18 year old's inheritance.
Rules are set on rollercoasters because someone stuck their arms and/or legs outside of the car and was injured. Rules are in place because someone on the rollercoaster stood up. Legal hoops and/or precedents are in place because someone tried to do something not in the 18 year old's best interest.
I had to di a Court of protection for my Grandparents. They hadn't done a will or lasting power of attorney. The COP allowed me as a deputy to look after their health and financial care. Annually I would have to provide full financial records, medical updates as well as visiting etc. Incredibly daunting, but also rewarding. I had to do it all myself, I couldn't afford legal assistance! I learnt so much!❤
Asa you and Cilla are great parents. Very patient,loving and kind.😊
I'm in Iowa and myself at 18 my folks still made some decisions on my behalf and some appointments and stuff for me but they never had to do all the stuff that y'all are for/with Abbie so that was why I was a bit confused so thank you for explaining I may not FULLY understand but I now have a better idea
We live in California and having guardianship is called conservatorship. So, that also differs from state to state. It was so crazy to me that we had to be basically investigated to continue being our daughters caregivers after she turned 18. But, I’m happy it protects her and us.
even here in Canada there is a medical decision-maker and a financial one for people who are unable to make their own. When my dad's dementia got really bad I took over the medical decisions while my uncle on my mom's side took over the financial ones.
In Canada you can EUTHANIZE anyone now. That's how your government get rid of the old, and people with disabilities. Such a sick thing to do.
you are the best parents, I love your videos
I love Cava because I can make my own bowl. I have sensory and GI sensitivities and I love that I can pick out exactly what I want on my mom’s phone (she’s the one with the app) because I can’t see well enough to read the wall. I struggle with scraping chairs still. I’m glad the hydroxyzine is so helpful. For those unaware, it’s an antihistamine so it can help with allergies and sleep in addition to anxiety.
Bless y’all hearts!
Well done Abbie you have come so far sweetheart ❤️
She is doing amazing 👏 😍 💕
I'm so proud of Abi. She's a wonderful kid, and is blossoming into a wonderful young woman. While the process of getting guardianship of her was interesting to me, it wasn't a surprise, but that may be due to me working in the medical field (specifically with the elderly) and understanding how the NZ legal system has provisions for them. It did take a bit of a push from me to get my dad to put the paperwork through for his parents, which worried me because my grandmother has dementia, and I was worried that she'd lose her decision making ability before the paperwork got signed. However, he now has full legal decision making powers for her (both medical and financial), and we have paperwork for his dad too, though that hasn't been enacted because he's still mentally capable. I'm now worried what'll happen when my parents get to that point because I'm an only child, and haven't started a family of my own
Amazing ab! I remember old vids of how she was with restaurants. She has come along way. YES GURL!!!!
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Hi there to Abbie and her wonderful family ❣️ Thank you for the awesome content.
I'm watching the latest vlog and you're answering some questions submitted by viewers regarding Abbie's "guardianship".
You mentioned that you have guardianship in the state of Florida and that you'd need to go in front of a judge for authorization to move out of state.
My question is: What about vacations? Do you need permission to cross state lines with her?" What about international travel?
Please let me know if this has been covered already. Sorry if I missed it but, is it something that you've thought about?
Help me out please cuz ya got me thinking! 🤔
Thanks again 👍
I'm glad Abbie enjoyed her burrito bowl and chocolate chip cookie.❤😊
So proud of how your handling lifes big changes
She is a rockstar
she is doing great i'm so pround of ab and she is going to have fun at camp love your videos and she is awsome❤😊
My son is 4 years old and in May he was diagnosed with autism. He's starting at a school on August 10th and they have an autism program that can help him. It's constantly in the back of my mind on how well he's going to do in school and how he's going to develop as he gets older and if he's going to need me close by for the rest of my life. I didn't know guardianship was a thing you had to do. I'm really glad you guys put this video out. You are helping so many people
I remember the first time I tried to talked to someone at my oldest’s college about a class or something and my daughter had to give them permission to discuss it with me. I was like but I’m paying for this class. Lol. They do not care. Once you’re 18 boom.
So happy to see Abbie be able to enjoy lunch at a new place. 🥰
Thank you for sharing more information about guardianship . I didn’t realize their was a partial guardianship . I have some research to do. Thank you so much.
Cava is my favorite better then there place so glad to see Abbie doing a little better love you guys thanks for everything you do 🥲🤩🥳🥰
She did fantastic
She’s Getting Better
Love this again Abbie picking her sheets
Cilla, where did you get that shirt? Red's your color!!! Love you all!!🥰
Like I said last video
I work for a lawyer that works with adults with disabilities
And I understand this terminology 100%
I never thought about that, about Abi’s rights, I assumed bc you’re her parents/caregivers that you can do those things for her, but now that you’ve explained it, I get it, the Florida issue, oh there’s that to deal with.
Camp sounds great for her social skills and fun activities, it took work on your part to get her to that comfortable place where you can feel assured that she’ll be able to handle camp and the new surroundings! It’s awesome to see Abbi go out to eat with no issues and see her picking out treats and her own lunch, her own shoes or colors, is so cool that your whole family lets her be herself and within reason, you let her make choices of her preferences which I’m sure let’s her feel comfortable and confident and loved! You’re awesome parents, I do wish that every child had such great parenting. ❤
Hi Asa, you might want to consider crocs for shower shoes. They are made of the same material of typical shower shoes but have the supportive strap. They can be worn in water. They can be worn without socks and are perfect for this (I wear them on the boat).
There is also water shoes which would work, and fit more like sneakers.
Yep. I had Crocs for shower shoes in uni. Way better than the sandals I had before.
Once guardianship is approved, be sure to file with insurance company and healthcare providers you will probably need to file a proxy to communicate with insurance company and access electronic health record.
😂 Abbie saying to herself, dad i got the garbage done without a mess! Lol 😂
As an autistic adult who happens to be own guardian, but fully aware of so many different cases, I can see from what I observed in some of the videos, why Abby is in need of a guardian.
A lot of people fail to realize that one becomes own guardian at 18, unless a court has ruled otherwise and I have before looked through to see if guardianship did get filed on people I know or heard about that are on the spectrum.
Case in point, I remember an article on a family of 4 girls all autistic and while the 1st 3 were like myself, capable of taking care of self, the youngest was indeed classified as severe and guardianship absolutely did end up having to be filed on her for sure.
On occassion, I have even explained my own parents don't have power to do this or that because I am an adult and my own guardian.
But yeah it seems a lot of people don't understand guardian of adult laws, including when guardians got appointed over adults with dementia type conditions (such as a former Mayor of Detroit ending up guardian of famous Rosa Parks when she developed dementia before her passing away).
Anyways I do hope for the best for Abby of course and have to remind myself that mot all autistic individuals are like myself since each autistic individual is different, and I've seen numerous different functioning levels.
With elderly people you get a power of attorney. And you get that power of attorney before they are so elderly that they can’t make a decision as to who they want to have their power of attorney. Also, it can be the whole power of attorney where you’re in charge of their medical and their finances or they can split it, and have one person in charge of their medical and one person in charge of their financial.
I have neighbors that going through the same thing that you are Going through with. Abby, it is very hard to deal with. But you have to go through this. Unfortunately, their son passed away before that happened.
You two are the best parents she could ever have. I think you are awesome.
Hey y'all ❤ I love y'all
I’m really vibing with the new cover graphics! Love.
I think guardianship is only appropriate when a person can't properly express their thoughts and wishes in a permanent capacity. For example, an elderly person with advanced dementia, or like Abbie an autistic person with severe intellectual disability leading to severe communication deficits.
If someone has enough skill to understand a situation (even if they need accommodations) and clearly communicate their thoughts and wishes (either through speech, communication devices, sign language, etc.), then less restrictive methods should be attempted first
Some less restrictive means can be:
1) If someone has an episodic psychiatric condition that makes than unable to make decisions during an episode (like Schizophrenia, bipolar, etc.) the person can set up a psychiatric advanced directive and nominate a medical power of attorney/medical proxy for when they have an episode
2) If the person has a disability that affects their intellectual abilities but can still communicate their wishes (Down Syndrome, autism, intellectual diability, etc) they can set up a supported decision-making agreement and give permission for someone they trust to help them deal with financial or medical decisions (for example)
It’s obvious that Asa and Pricilla have been doing a great job making decisions for Abbie, and making sure all her needs and wants are met.
Ceilings are weird Abbie! Great job sweet girl. You have come so far.
I take the same anxiety pill 💊 Abbie takes. ( it’s also a sinus pill) hydroxyzine the pill makes me sleepy
Yes it's used for several things. My dad takes it fir his hives and calls it his "itch pill" while my dog takes it for allergies and anxiety. I was prescribed it years ago for my Anxiety b/c it comes in liquid form and it was easier while I was on a feeding tube.
I wish it worked for me, I took a pediatric dose as an adult and slept through the entire weekend. Thankfully I found something else.
In California many counties give you the option of a “limited conservatorship” when developmental delay/cognitive impairment is an issue. It limits the conservators abilities/decision making powers. Also if the person you’re seeking conservatorship over gets aide, SSI etc the court will waive their fees and you can hire a paralegal/LDA for $500 or less. Always check reviews get references or ask your local regional center for references
Abbie is the cutest ever!!
Cava is great place. The food is organic and fresh, but Mediterranean. Hummus and Taboule is amazing. Great choice.
Super informative video--thank you!
It makes sense even though you guys are Amazing Parents
My aunt got power of attorney over my grandparents and stole every asset they had
@@deassfgh7807
I have no clue what protections there are or were
It was about 30 years ago and my grandparents were dying when she took from them
Did Abbie display any of the “ compulsive “ behaviors as discussed on a recent video when her behavioral therapist accompanied you all?
Gabapentin and Lexapro are not anti anxiety meds those are prescribed for nerve pain and the former is also used for seizures.
Would Abbie wear crocs or jellies? When I was a kid in the 80s jellies were all the rage. Since they are plastic and have back and are a slip on. I didn’t know if that would be a shower option over a slide that will fall off or may cause her to trip. Just an idea.
I have to comment on you being Abbie's guardians, I'm very sad lately what no one talks about when it comes to guardianship is that eventually older adults(elderly grandmother) had to give up the guardianship of my twin who has autism because last year my grandmother was very ill. Now my twin is a ward of the state and my grandmother has no control of anything that has to do with my twin's life.
Can you not be her guardian? Since you do not have one I assume your over 18.
Anxiety meds are just fine. I need them for uncomfortable situations.
hi! so if you were to go on vacation OUT OF FL, and something were to happen to Abbey and you needed medical help, would the hospital/doctor honor your guardianship if your "type" is only for the state of FL? Also, do you have to go back in every few years to get re-evaluated wit the judge/Abbey's lawyer? Will you have to pay this 5.6k every year? I love this video "series" it's so informative.
They’re her guardian, so if they took her out of the state of Florida on vacation, they can still get her medical treatment. Someone somewhere I had suggested caring the paper and that’s what my friend is with his brother he just carry the papers with you.
Abbie great, you got this day by day ..
..😊😊😊😊😊😊..
I take Diazepam as and when to manage new or difficult situations. I have CPTSD, the anxiety is so all consuming it prevents and pleasure being achieved!
We will have to reapply for guardianship of our grandchild as he ages. I am grateful for your videos discussing the process.
Here in Canada once they turn 16 kids must sign a waver, so parents can contact medical or school i have power of attorney on my 3 spectrum kids so i can make all other decisions on their behalf when my youngest turns 18 (not on the spectrum ) we will include her as guardian if something should happened to my hubby and i and my adult niece will be co guardian
You are rock star parents
Y’all had never been to Cava? I love Cava.
Abbie looks like she enjoyed her meal at the New Restaurant. She has come along ways . She does alot by herself. My daughter was prescribed hydroxacine it works sometimes. At times is makes her more emotional. Can you still get guardianship if your daughter or son it older than 22?
My son will be 47 soon, when he turned 18 I had to fight issues that he could make his own decisions, take care of his money, medical etc he is legally blind which to others his mind was damaged which is far from the truth. He can't drive, needs enlarged print, might need someone to help him walk in unfamiliar places and for sure traffic those type of things. He has a very sound brain, has a bachelor's in criminal justice and in physiology.
Will you be taking her to DMV to get an ID? Just asking because everywhere you go they ask for an ID.
I was thinking the same thing. All adults should have a state ID even if they don’t drive. My dad is 82 and doesn’t drive anymore but still keeps a state ID.
I think it would be different in Abbies case. She's non-verbal and doesn't know the meaning an ID!
@@ddinottia39But as an adult, certainly there will be circumstances when she has to prove her identity, even with guardians present
Asa: "Lemme show you a trick..." *Proceeds to dump soda and ice all over the counter*
Way to go Asa.
OK it was great up until 6:45 when I found out about “cart narcs“. Off to see what all that’s about.!! 😊😅❤❤❤
Abby I totally get u there.....when i go to a new place if its to much i will painc as well its florcent lights and sounds for me...and yes mess help hudgly
Yes Isaiah would have to go through the court for guardianship to be transferred in case of an emergency. It's probably like that in every state.
Hi Asa, Q…….wouldn’t that also be referred to as “power of attorney”? Because when my mom was diagnosed with stage 4 ovarian cancer, we had gone to an attorney and I then became “power of attorney” for her with Medical & Financial needs!
Power of attorney and guardianship accomplish a lot of the same things, but aren't the same, at least where I live. With POA the person keeps their rights, you just also can make decisions for them. With guardianship you become their legal guardian. Also with POA the person needs to grant that themselves, and Abby does not have the understanding to do that. There's also medical proxy, but that only takes effect when the person is not able to make medical decisions, like if they are unconscious.
Depends where you live, in Canada it’s called power of attorney but it’s the same thing.
Crocs makes a flat that is very similar to her usual shoes if you still need a shower shoe solution
I got guardianship of my daughter and it’s the best well worth it again Hyppa law couldn’t even recommend treatment unless I had guardianship
Amazing 😊
There are pull-on water shoes that will feel more like normal shoes to her, if she can't hang with those slides.
We had better luck with regular water shoes.
It was recommended to us for our 17 yo to be evaluated for financial conservatorship. He is high functioning, but has been swindled out of his money from people pretending to be his "friends".
Wonder what Abbie thinks when she is able to go somewhere and the ceilings don’t bother her and she does not have so much anxiety. Must be a relief. HIPPA is horrible, in my experience. What do people do if there denied guardianship? What a stressful situation. Prayers
Nice place to eat food looked Amazing 😍 I knew Abbie would pick the biggest cookie 🍪 😂 you go Abbie 😊 Awesome video 🥰🤩
Cava is delicious and I highly recommend if you live near one!