I had to diagnose myself with epilepsy and NESD because the doctor did not want to admit he was wrong... its deplorable behaviour and it almost killed me 🤷♀️
If they knew she had high cortisol why didn’t a doctor pick that up? She shouldn’t have had to diagnose herself. That’s awful on the doctors part. I know it’s rare but she still had high cortisol levels.
Right? I'm 3rd year medical student and thought of Cushing right away when I heard sudden weight gain. Could've also been hypothyroidism at that point but quickly it became a textbook Cushing case. I hope she didn't develop insulin resistance or osteoporosis in those 7 years she went untreated.
@@blackwood5851 This was 25-30-ish years ago. And don't forget that sometimes are students who are clearly closer to books and paying more attention to the patients.
Researching diagnoses could be a real business field for unemployed people with a certain medical understanding/interest. Doctors often seem to me to be too busy with other things.
I had my own little medical mystery just before Christmas 2022. On the 11th of December I developed a sore throat which started to get worse by day until the pain was intolerable. After 1 week I went to the doctors with negative covid tests. They prescribed me an antibiotic (I’m allergic to penicillin) and co-codamol for the pain and sent home. After 3 days when the pain didn’t improve I knew something was seriously wrong. I couldn’t swallow fluids and so laid in bed becoming weaker and weaker. I’m also diabetic and just didn’t have the energy to administer my insulin and medications. I went to the doctors again and at this point they noticed my blood pressure was dropping, my heart rate climbing and I was very dizzy, weak and lethargic. So they said that hospital would be a waste of time as there are no beds and the average wait time is 8+ hours at the minimum so she re prescribes another course of antibiotics and tramadol. The tramadol didn’t even touch the pain. I started to go unconscious, and at around 7pm later that night I managed to come round, with blurred eyes I fumbled for my phone and sent an SOS to a friend. The message was a garbled mess but they understood and I quickly passed out afterwards. I remember waking up to them and a family member in my flat bedroom and they took me straight to the hospital. At this point I had to be carried and put in wheel chairs. Every time I moved, I apparently groaned out in pain so loudly it scared others. I was barely conscious. At hospital after 15 minuets I was triaged and my vitals were taken. My BP was dangerously low, my heart rate was 192bpm and I was in ketoacidosis. Obviously at this point I was taken to the resuscitation ward and hooked up to monitors. Doctors worked quickly to administer fluids, insulin, steroids and after careful consideration the strongest penicillin they could find administered over 4 hours to prevent the chance of a reaction. When I woke up 8 hours later I was finally feeling a bit better. The ENT surgeons came and looked at my throat but were confused as my symptoms were atypical of the tonsillitis diagnosis. After more pain meds and steriods, so the swelling in my throat allowed for a camera exploration we finally came up with the diagnosis of anoidosis. I recovered at home for the next few weeks. Going to the gym for the first time after was awful. My body had deteriorated so much. I lost 12lbs. I am now working on making my other conditions (heart and nuero) to stabilise enough to get surgery of a full removal of my tonsils and anoids.
It seems unreal that a man had been suffering for 5 years (!) because doctors couldn't diagnose him with sleep apnea. I understand that it's 1995-2000 we're talking about but still it seems so weird.
The most recent information I can find on Alex on the web is a news article from 2017 about an innovative form of vr rehab after he lost the ability to walk.
I hope the doctors who are so rude about someone’s medical weight gain remember and learn from that when treating patients in the future. I have a friend who runs a Cushings support group and this is a pretty common story on the way to diagnosis.
It’s sad that it’s a rarity to see doctors refer a kid to a specialist quite quickly here. I know he was referred to a neurologist first but that’s what you’d expect what’s wrong.
I had one of those nerve conduction test that the little lad had and it felt like a little buzz under the skin, not unpleasant or painful at all. Don't know how a small child handle that test tho, brave little chap. 👍😊
What I find despicable about these so called doctors who are so confident that they know everrything that they don't 'need' to listen to patients. They assume they know everything just by looking at them.
Wow the person gains weight and endocrinologist never checked anything . I mean when i had checked my eyes 15 eyers ago my doctor though theres something wrong with my blood vessels there and said i need to go check my thyroid gland, levels of hormones, make a brain scan of blood vessels and common brain scan of all segments to see if everything is fine, and to check in with cardiologist . And here is a woman gaining lots of kilos how so they dont check her hormones and thyroid gland ?😮😮 Its first thing you do if have weight problems 😢
I have sleep apnoea it’s not a very nice condition I also have cerebral but when it comes to sleep Apnoea you have to be very careful because it can be very dangerous and it can cause strokes because the oxygen does not get round to your brain
🤭The 👀 😧any way the point I wanted to make is Doctors not listening 👂🏽again and again. Sue all this idiots... doctors should learn to say I honestly don’t know what is wrong with you but I will send you to some other specialists
That is because 9 times out of 10 it IS nothing. If they tested for everything that COULD be wrong, the healthcare system would shrivel up it's funds, resources and time, and it would decrease the average level of care. It's not that the doctors aren't listening, it's just that they don't have much experience with rarer conditions, (due to their rarity) and so they treat the symptoms as best they can to see if it helps. As for blaming the patient, here's a statistic: 10% of the NHS's funds go to type 2 diabetics. Patients are biased. This is not to say doctors are always right. All I'm saying is that we only blame them when they don't spot the rare conditions. Here's an example: You hear hooves. What's your first thought? It's a horse. But what if it's a zebra? You'll still react as if it were a horse.
Drs get taught 'if you hear hooves, think horses not zebras', horses being a person with a common illness, and zebras being a person with a rare illness.. 🦓 which is annoying asf for actual zebras lol
Neftali Elijah Zerachiel Ekander Schwepman-Whiting I totally understand but If a patient comes several times and is concerned you just can’t dismiss it because out of 10 cases only one can have something
@@misspamba1 Yes, but doctors always have the patient's best interests in mind. If they send them away with a basic treatment plan, it's because they are hoping it will work and they won't have to take drastic action over something that isn't serious. And that basic treatment plan also separates the 9 times from the 1 time.
How could the doctors not know she had cushing tho😏😏😏😏 as she started from the beginning i knew it but then I was like it can ve because she went by a million ppl
not true, everything is bad if you eat a lot of it. Fat is also bad for you as sugar is if you eat a lot of it. The key to a proper diet is going to a nutritionist because every body is different a keto diets don't work for anyone, it's a really risky diet if you do it without any supervision
Really, most Asians eat rice three times a day, they are now developing diabetes, obesity, heart diseases etc because they’re converting to a western diet.🧐
Alex's mom is so sweet🥺
"It's not hard. It's for Alex!"
I'm so glad he has parents that care about him so much
She’s right, when the choice is a different diet or losing your child, it’s not a hard choice.
@@hannahviolinbusker oh she absolutely is!!
That made me smile too, what a sweet, loving mother ❤
Poor Charmaine. Who dumps their supposed friend when they get sick and stop looking hot? That's just cruel.
0
Well… she lived in a dysfunctional environment😕
that s the way friends are nowadays , with you only when you're fine
These were just show-off frends, not real friends
I had to diagnose myself with epilepsy and NESD because the doctor did not want to admit he was wrong... its deplorable behaviour and it almost killed me 🤷♀️
My dad got diagnosed with sleep apnea, and got a CPAP. He said that within 24 hours he felt 10 years younger.
If they knew she had high cortisol why didn’t a doctor pick that up? She shouldn’t have had to diagnose herself. That’s awful on the doctors part. I know it’s rare but she still had high cortisol levels.
Bad healt care in usa. If you had money then you have care
Right? I'm 3rd year medical student and thought of Cushing right away when I heard sudden weight gain. Could've also been hypothyroidism at that point but quickly it became a textbook Cushing case. I hope she didn't develop insulin resistance or osteoporosis in those 7 years she went untreated.
@@blackwood5851
This was 25-30-ish years ago. And don't forget that sometimes are students who are clearly closer to books and paying more attention to the patients.
Researching diagnoses could be a real business field for unemployed people with a certain medical understanding/interest. Doctors often seem to me to be too busy with other things.
I had my own little medical mystery just before Christmas 2022. On the 11th of December I developed a sore throat which started to get worse by day until the pain was intolerable. After 1 week I went to the doctors with negative covid tests. They prescribed me an antibiotic (I’m allergic to penicillin) and co-codamol for the pain and sent home. After 3 days when the pain didn’t improve I knew something was seriously wrong. I couldn’t swallow fluids and so laid in bed becoming weaker and weaker. I’m also diabetic and just didn’t have the energy to administer my insulin and medications. I went to the doctors again and at this point they noticed my blood pressure was dropping, my heart rate climbing and I was very dizzy, weak and lethargic. So they said that hospital would be a waste of time as there are no beds and the average wait time is 8+ hours at the minimum so she re prescribes another course of antibiotics and tramadol. The tramadol didn’t even touch the pain. I started to go unconscious, and at around 7pm later that night I managed to come round, with blurred eyes I fumbled for my phone and sent an SOS to a friend. The message was a garbled mess but they understood and I quickly passed out afterwards. I remember waking up to them and a family member in my flat bedroom and they took me straight to the hospital. At this point I had to be carried and put in wheel chairs. Every time I moved, I apparently groaned out in pain so loudly it scared others. I was barely conscious. At hospital after 15 minuets I was triaged and my vitals were taken. My BP was dangerously low, my heart rate was 192bpm and I was in ketoacidosis. Obviously at this point I was taken to the resuscitation ward and hooked up to monitors. Doctors worked quickly to administer fluids, insulin, steroids and after careful consideration the strongest penicillin they could find administered over 4 hours to prevent the chance of a reaction. When I woke up 8 hours later I was finally feeling a bit better. The ENT surgeons came and looked at my throat but were confused as my symptoms were atypical of the tonsillitis diagnosis. After more pain meds and steriods, so the swelling in my throat allowed for a camera exploration we finally came up with the diagnosis of anoidosis. I recovered at home for the next few weeks. Going to the gym for the first time after was awful. My body had deteriorated so much. I lost 12lbs. I am now working on making my other conditions (heart and nuero) to stabilise enough to get surgery of a full removal of my tonsils and anoids.
I hope she doesn't have anything more to do with those people who only care about looks
She was a shallow person too
@@beverlyanne5192 This is probably payback for all the times they were mean to fat people who weren't perfect.
It seems unreal that a man had been suffering for 5 years (!) because doctors couldn't diagnose him with sleep apnea. I understand that it's 1995-2000 we're talking about but still it seems so weird.
If Doctors aren't sure, why can't they send a referral for them to see another doctor that may be able to help?
Ego is too big
Too scared of losing their own billing potential, pure greed !
What an amazing doctor, you returned life to Alex
Ramps up her activity. *Shows closeup of a treadmill ramp getting higher
I see what you did there, editors.
What wonderful doctors in the first episode! Alex is alive!😊😊
The most recent information I can find on Alex on the web is a news article from 2017 about an innovative form of vr rehab after he lost the ability to walk.
😞
I hope the doctors who are so rude about someone’s medical weight gain remember and learn from that when treating patients in the future. I have a friend who runs a Cushings support group and this is a pretty common story on the way to diagnosis.
It’s sad that it’s a rarity to see doctors refer a kid to a specialist quite quickly here. I know he was referred to a neurologist first but that’s what you’d expect what’s wrong.
The people that you thought were friends were not .friends help each other no matter what !!!
I'm not a doctor but i guessed Cushings straight away
Fabulous! A new MD. yay!
Alex's dad has snoop dog's voice
Wonderful parents
8:3 the doc looks like house!
I had one of those nerve conduction test that the little lad had and it felt like a little buzz under the skin, not unpleasant or painful at all.
Don't know how a small child handle that test tho, brave little chap. 👍😊
“first thing i said was hook me up”😂😂
Thanks MD for keeping me alive..Hope you keep it up 😍😍😍
Hey reel truth thanks for uploading all these mystery diagnosis could you try to find the episode implant for tourettes thanks
Why do you think they pan-and-blink so much?
@@nekolalia3389 dramatic effect
I hate cortisol hormones...
The moment I heard sudden weight gain, central obesity and sleeping issues I knew it has to be cortisol. Mark my words
What I find despicable about these so called doctors who are so confident that they know everrything that they don't 'need' to listen to patients. They assume they know everything just by looking at them.
Any food that says fat free is loaded with sugar, look at your labels !!!!
It, not a nice feeling having that heart ratecan get super high 150+ due to my spinal cord injury autonomic . his lucky
But why Harley has his first episode while driving, when he was awake?
It’s the strain that it puts on the heart if you have sleep apnea, you don’t necessarily have to be asleep, to then have heart problems !!
*Alex should undergo 80 sessions of medical hyperbaric oxygen therapy...*
I knew he had sleep apnea straight away. I have it too but mine is mild.
I also knew it right away 👍
why do none of these pple call an ambulance, instead rushing the patients to er themselves?
Cost maybe, I don’t know if it costs in the US but it’s free here in the UK.
@@fikent5252 could be right, here you can either have free(1 are only) or pay $100 to have a years free calls
Chairmaine is a truly a great woman!😊😊
Wow the person gains weight and endocrinologist never checked anything . I mean when i had checked my eyes 15 eyers ago my doctor though theres something wrong with my blood vessels there and said i need to go check my thyroid gland, levels of hormones, make a brain scan of blood vessels and common brain scan of all segments to see if everything is fine, and to check in with cardiologist .
And here is a woman gaining lots of kilos how so they dont check her hormones and thyroid gland ?😮😮 Its first thing you do if have weight problems 😢
The music is absolutely awful!
I have sleep apnoea it’s not a very nice condition I also have cerebral but when it comes to sleep Apnoea you have to be very careful because it can be very dangerous and it can cause strokes because the oxygen does not get round to your brain
B L I N K
Were these documentaries sponsored by Nike?
Or Adidas perhaps?
Just curious because they all seem to "love playing sports".
🤭The 👀 😧any way the point I wanted to make is Doctors not listening 👂🏽again and again. Sue all this idiots... doctors should learn to say I honestly don’t know what is wrong with you but I will send you to some other specialists
That is because 9 times out of 10 it IS nothing. If they tested for everything that COULD be wrong, the healthcare system would shrivel up it's funds, resources and time, and it would decrease the average level of care. It's not that the doctors aren't listening, it's just that they don't have much experience with rarer conditions, (due to their rarity) and so they treat the symptoms as best they can to see if it helps. As for blaming the patient, here's a statistic: 10% of the NHS's funds go to type 2 diabetics. Patients are biased.
This is not to say doctors are always right. All I'm saying is that we only blame them when they don't spot the rare conditions. Here's an example: You hear hooves. What's your first thought? It's a horse. But what if it's a zebra? You'll still react as if it were a horse.
Drs get taught 'if you hear hooves, think horses not zebras', horses being a person with a common illness, and zebras being a person with a rare illness..
🦓 which is annoying asf for actual zebras lol
Neftali Elijah Zerachiel Ekander Schwepman-Whiting I totally understand but If a patient comes several times and is concerned you just can’t dismiss it because out of 10 cases only one can have something
@@misspamba1 Yes, but doctors always have the patient's best interests in mind. If they send them away with a basic treatment plan, it's because they are hoping it will work and they won't have to take drastic action over something that isn't serious. And that basic treatment plan also separates the 9 times from the 1 time.
Neftali Elijah Zerachiel Ekander Schwepman-Whiting not in so many cases I have witnessed
HOOK ME UP 😂😂😂
Puts a child on a ketogenic diet to save his life... Is soy based and adds vegetable oil 😒
eh
Only in American over the top
How could the doctors not know she had cushing tho😏😏😏😏 as she started from the beginning i knew it but then I was like it can ve because she went by a million ppl
Eye fetish
I doiubt that Alex had recurrent sinus infecdtions...the sinuses don't develop until 4-5 and aren't fully formed until much later
Ah yes the internet expert.
@@zorls Medical professional snowflake
T H E D R A M A T I C B L I N K I N G 👀
Americans alway go over the top
Ketogenic Diet is the Life! Carbs/Sugar is Bad for us, everyone should know this by now.
not true, everything is bad if you eat a lot of it. Fat is also bad for you as sugar is if you eat a lot of it. The key to a proper diet is going to a nutritionist because every body is different a keto diets don't work for anyone, it's a really risky diet if you do it without any supervision
Really, most Asians eat rice three times a day, they are now developing diabetes, obesity, heart diseases etc because they’re converting to a western diet.🧐
Keto isn’t the be all & end all of everything !!!!