It's NOT Obesity, it's Lipedema [with Siobhan Huggins]
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- Опубліковано 14 січ 2024
- 18 million women in the U.S. have Lipedema most of which has been missed by their doctors. Millions of women think they are obese but they really have Lipedema!
Siobhan Huggins has been part of the keto/low carb community for over seven years, having used a ketogenic diet to reverse her obesity, and hypertension, along with other physical health issues, and to manage chronic depression. She currently volunteers as the Research Specialist for The Lipedema Project, a non-profit organization focused on advocacy, and awareness of lipedema, and furthering research efforts. Siobhan is dedicated to raising awareness of lipedema and highlighting the important role of nutrition in lipedema management.
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Disclaimer: Nothing in this video is Medical Advice. Dr. Berry does not diagnose, treat, or prevent any medical conditions online; instead, he helps people better understand their health and ways to avoid health problems and promote wellbeing. Make sure you are working with YOUR provider to monitor your health and medications. These posts and videos are not designed to, and do not provide medical advice, professional diagnosis, opinion, treatment, or services to you or to any other individual. As an Amazon Affiliate, I earn from purchases.
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Lipodema needs to be brought to public awareness.
As well as the fascia and other connective tissues that can get inflamed and disoriented.
Yes!
As a dietitian I can't help but ask the question, what is the lean muscle mass ratio in people with this? In my experience of physically assessing patients, this fat distribution is accompanied with low muscle mass. Losing wt with diets like keto is a great strategy but without incorporating muscle building, circulation, lymphatic, & bone health health will all be impacted. Inability to build muscle could have other causes, but often its inadequate protein intake.
Duh? Lol. Geezus, ur insufferable
@@msabo31why are you asking that tart?
I've been an RN x 37 years. I had never heard of this until a couple of years ago. I've taken care of patients with this, but they were just called "obese." Thank you for bringing awareness.
Me too, RN for 40+ years.
As well as the fascia and other connective tissues that can get inflamed and disoriented.
Same here; RN for 28 years and Siobhan is the first person I learned about this from. Crazy
I think both conditions normally come together I haven’t seen an active person with it as a medic just sedentary people. I just think it’s both the majority of the time . Not always but probably 90 percent of the bariatric patients we get have it . I’m sure there is a lot to learn about it but that’s just what I’ve seen in my 25 years as a flight medic
@@godloveskaren nice to meet you!
Omg me too the blood pressure cuff hurts me sooooo bad tears
Me too
This is 100% me. My doctor said lose weight and the pains in your head. I have felt hopeless for years. My brain is going so fast right now. Thank-you Thank-you Thank-you 😢
I have Lipedema. If your legs hurt, please think of buying a vibration platform. It really helps me.
I’m so happy for you to find this information.I pray this information can help you 🙏💪
I have found that Diosimin and Heperidin supplements help with the pain. There is also something called L1000 for Lymphedema. I take both. I agree with Paper Mario that a vibration platform helps with pain
Shame on your doctor
Keto will reduce the lipedema fat and pain. I have done this.
I had lipodema but I’ve had surgery in Cologne Germany on my legs. It was like liposuction but they used a special technique to not harm the lymphatic systems. It required two surgeries, the first on the inner legs and the second on the outer legs. I had to wear surgical tights for months and have lymphatic drainage massages. Today I wear normal trousers and I can even wear boots. My legs no longer hurt. They no longer swell and throb at night. I look normal. My legs aren’t slim but normal. I am so grateful.
Yes we didn't have time to get into it, but surgery is definitely a useful option for some -- it's an individual choice, of course, as not everyone feels it's appropriate for their situation, but I do know plenty of people where it really did improve their life. I'm glad to hear it was helpful for you!
Your discussions were very helpful and informative. I didn’t know that I had lipedema till a masseuse asked me what I was doing about it. I just thought it was my bad luck, in a way it was, but I didn’t know it was an actual diagnosis. I was 60 years old and stage 2. So I started researching. It got worse as you said, with puberty, pregnancy and menopause. I’ve also learned that it is more prevalent among women with Irish or German ancestry but I haven’t seen a study about that.
It upsets me so much that I can't afford this. I continue to hide my legs in shame.
If I had insurance, I would gladly have this surgery. Congrats! 🎉🎉🎉
😮
Dr. Berry, your dedication to confessing your past medical sins is enormous and that kind of critical self-analysis is so needed in the medical arts. Thank you. Siobhan, I was already so grateful to you for your hard work on the cholesterol issue. And now I see that you're working hard on educating regarding lipedema, too. You're an international treasure. Thank you.
I was impressed with his honesty
I have always had that problem that it pains terribly when my blood pressure gets taken. Then they tell me: "Calm down!" Nobody believes that it actually pains like hell. After watching this video I examined that area and found lots of moving nodules under my skin. I resonate so much with what Siobhan said, that I sometimes will eat only meat at night and after a whole week still didn't lose any weight. Everybody thinks that I must be cheating! For me it is normal to weigh up to 2 kg more in the evening than in the morning.
Needs to be research into angiomyolipomas, lipomas and angiolipomas and their connection with lipoedema or lipolymphoedema. I started off with one angiomyolipoma in 2008 and now in 2024 have 4 of them; I have lipomas on my body externally too. Got wrongly diagnosed with lymphoedema by my doctor in May 2023. Due to lack of awareness, information or advice, I self-referred to lymphoedema clinic at local hospice where nurse correctly diagnosed me with lipoedema since puberty and mild secondary lymphoedema. I'm 75 now and in the uk.
I cried watching this. It’s about me!! Been told I’m chronically obese, had lap band 22 years ago, didn’t work. Had it removed. As diagnosed with lymphoedema after hysterectomy at 28, from endometriosis complications, grew huge arms and legs. Told to get compression stockings to ease pain I would need a doplar test yearly, but , I cried during the pressure during the test and they said as my legs were so thick , the blood vessels couldn’t give a proper reading. I had bruises on legs, and pain for weeks. So, no pressure garments for me. I buy tube dressing in smaller size and use them to ease my pain. No other treatment is offered. I’m going to tell my doctor that I think I have this condition, and hope I get some help. I’m 72 and fed up of nasty comments that I’m fat , my arms are so embarrassing, but I also can’t stand the heat, I can’t cover up, even in winter. So my arms hang down and are ugly. I am keto, lost 30 kilos and then no more. But have cured non alcoholic chirrosis of the liver and insulin resistance, which is good. Thankyou to both of you for this enlightening video. Bless you both from Perth Western Australia.
Oh Darling! I hear you on the testing. Doppler, ultrasound, nerve testing, so many things and all incredibly painful. From me having a high pain tolerance yet everything hurting it is such a rollercoaster.
I am so glad you have found some solutions and made some gains. It is terrible it is later in life. I use tubigrip with the continuous rubber elastic.
Severe endometriosis and adenomyosis among several other auto immune disorders and thyroid problems. We are all such a mess to sort out and the system, in general, is sadly little help 💗
❤
I am so glad you finally have some answers! It's such an awful disease and it's just shocking (but not really) that this predominantly female condition has been left to run rampant :(
You said you buy tube dressings? I'm not sure what that refers to. Just from my experience I have found that taking anti-inflammatories (different things, can elaborate if you want) has helped as well as doing keto. I just thought I would mention that inflammation might be what stopping your progress
You need to find a lymphodema specialist. There are other things you can do besides compression. Compression just happens to be the fastest and best way to get the lymph fluid moving. You can do lymph manage and pump, exercise and diet all help.
I live in a midwestern state in a town with a LARGE healthcare system-- around 700 providers. I have tried, but am unable to find one single provider within the system who has the slightest clue what lipidema is. Videos like this are so necessary to educate and bring to light so many of us who have suffered in silence. Thank you.
Dr. Thomas Wright near St. Louis doagnoses and treats lipedema. I travelled too see him, he does video appointments sometimes...
I love the fact that she's speaking to inform us. She's not speaking high-pitched, laughing excitedly but speaking. I could listen to this young lady speak all day. Thank you Dr. Berry for having her come on as a guest. Lots of good information
Haha, I do tend to have fun talking about issues I find interesting (and lipedema is definitely interesting) but I am aware this is an important topic so I'm glad that came across.
What are you talking about what does " high-pitched speaking " have to do with anything? Just say the name whom you're referring to clown.
I agree. I found the conversation ended far too soon for me😁
@@ShipCreek Me too
@siobhanhuggins5522 You are the first one that I didn't fast forward through. Thank you for all the information. I am sound or pitch sensitive, so you were an absolute joy. Continued success ❤️
I CRIED when I saw you were discussing this topic! I lost an enormous amount of weight eating a ketogenic diet and walking 30+ miles a week, and my legs barely changed. I was lucky enough to discover that I had lipedema on my own (because I also have another connective tissue disorder, which is VERY commonly associated with lipedema). But I am SO THRILLED you are discussing this and shedding light on this extraordinarily under diagnosed problem!
May I ask what the other connective tissue disorder is that is associated with lipedema? Is it EDS?
What other problem if you don’t mind sharing, women suffer so much and think they just have to put up with it.
What is your other connective tissue disorder? I have lipedema in thighs and upper arms. Also have autoimmune hepatitis.
@smooth_pursuit Yes, it is! EDS, for me, the hypermobility type. If you suspect you have it, look up The Beighton Scale and ask your doctor to go through it with you. It is a diagnostic tool. Additionally, this type of EDS is also closely associated with a form of dysautonomia called POTS which causes low blood volume and pooling of blood in lower extremities, and a very high heart rate when standing (that can result in syncope, aka fainting). There are dozens more symptoms related to POTS as well. If you suspect you have POTS, please ask your doc to perform a "poor man's tilt table test" which can be a very accurate assessment to see if you need an actual tilt table test at a hospital. Best of luck to you!
@@megbeller7981Please see below for my response. Best of luck to you!!!
This is a very well spoken woman. I believe she is helping women everywhere.
I am stunned. The description, the pictures, all of it pointed directly to lipodema. Never has a physician ever mentioned this as a possibility for me. I’m going to advocate for myself with my doctor.
I've learned all this a few years ago, had to get over 50 until I knew I had an actual condition. Told my doctor and he said such a thing doesn't exist. He went on the computer to prove me wrong and went...Oh... But he never treated me, didn't know what to do.
I know I have this, I bruise easily, have pain in specific areas of my arms and legs and gain unreasonably large amounts of weight there compared to the rest of my body, insane pain from blood pressure, been told my whole life I have “tree trunk legs.” I can’t lose weight no matter what I do. I’ve been diagnosed with fibromyalgia. But I know it’s THIS. And I’ve never found a doctor who would listen.
You legit just made me want to hug you. I’ve gotten to the point where I will walk straight out of an appointment if I’m not being taken seriously by any medical “professional”
Go carnivore ?
I also suffer from this. Carnivore and sea salt water flushing is helping more than I could ever tell you.
@@johannaj2009 I’m interested in trying it for sure, but reluctant about it because the only treatment I’ve heard of that works is liposuction. Also, I gained weight on keto every time. I followed his guidelines exactly. Like copious amounts, 5-6lbs in a month. It does not work for me. I had some labs done and learned that genetically I am a rare type who does best on high protein low fat.
I also had that, but since on carnivore it seems to have gone smaller
Dr Berry you mentioned this condition in passing a year ago and it caught my attention because I thought that sounded like me. It turns out I have stage 3. Going carnivore 10 months ago has dramatically changed my life. I've been able to lose 70 pounds and the bruising and pain is so much better. I've gone from a tight size 16 to a size 2 jeans. My upper arms, thighs and calves are still noticeably larger than the rest of me, but in clothes I now look like a normal person! Carnivore is the key. I had done dirty Adkins and dirty keto religiously in the past. In my opinion that's not enough for those of us with Lipedema. Not only did I gain the weight back, but I wasn't able to lose the amount of weight I now have. I'm now down to my high school weight. A year ago, the lipedema was so bad that the nodule pockets in my upper arms and upper thighs were starting to twist. I still have the nodules all over, and the pockets, but the fact that I was able to lose weight on carnivore and make all my symptoms better is nothing short of a miracle. Thank you for talking about this condition and bringing us such a well-respected expert on the subject. So many women have this condition and don't know it! I now see it everywhere I go.
And I forgot to mention in my post above that I didn't learn about this until I was 63 years old! I can go back through old photos and trace the development to when I was 13 in puberty. I attributed my abnormally large legs to being an equestrian. Then I developed abnormally large upper arms in my late 30s early 40s. I started getting the cuffing in my ankles around age 50. This can be tracked through photos. The ankle cuffing started in my late 50s. And in the photo they showed today with the twisting I see I was clearly late stage 2 early stage 3 a year ago before I started carnivore.
@@SharrellKline Fascinating!
@@SharrellKline Thanks for sharing.
Thank you for sharing, couple questions. Did you have any issues with dairy or eggs? I suspect I do and have taken myself down to beef only. I find chicken actually brings back pain also and pork makes me tired.
@@gathercreatelivewithleslie8340 Smart! LIsten to your body!
It was airport security that led me to learning about Lipedema. I’ve had it since puberty but was diagnosed in 2017. I spent most of my life dieting and feeling embarrassed by my arms and legs, and having trouble finding clothes that fit my disproportionate body. The reason I started researching my legs is because I kept being pulled aside at TSA while traveling. It didn’t matter what I wore or how I prepared for TSA, they would still pull me aside. A few times I was asked if I had any metal rods. Another time I taken to a back from and searched under my clothes. I was in tears. When I got home, I googled, “fat legs TSA” and found a woman’s blog about Lipedema and she described my entire life. No matter how much weight I lost, my legs and arms would stay several sizes bigger. Sadly, I started getting pain around this time as well. My advice to any woman who is experiencing pain in their legs is to buy a vibration plate. It really does help the pain for me.
Amen to the vibration plate!
@@phoebeintheforest what’s a vibration plate please
After being misdiagnosed with fibromyalgia and cellulite for decades, I was recently diagnosed with lipedema. I always wondered why every time I would eat a healthy well formulated keto diet, I could not lose what I called "ugly legs." I would be "fit" everywhere else but never in my hips and legs. I am so grateful not only to learn that I was not as obese as everyone thought but I now have a way to understand the ailment, the pain, and overcome the depression! BTW thanks to Dr. E. Westman for just taking a quick look at my body and saying, "I think you have lipedema."
Would love to see a follow up video about treatment options for lipedema.
Agree, more about treatment is sorely needed. I don't have easy access to massage therapy but I could make an exception and take the 2 hour round trip weekly if it would make a significant difference.
Me too
Yes. Absolutely.
Siobhan Huggins - YOU are a blessing! Thank you Dr. Berry, from the bottom of my heart, for having this discussion on lipodema.
Yes! Siobhan 🙏.
I am a massage therapist and always see so many sick people on my table. I took Lymphatic Drainage massage training and it is extreeemely light touch!! People with this condition should be getting proper lymph massage and hopefully do infrared saunas and infared light therapy to help with the swelling and inflammation. Im grateful you did this interview 🙏 massage therapy is gaining in modality for healing. Lymphatic is so light and there are medical grade Lymphatic therapists who are better skilled to work on patients with actual lipedema.
I've definitely found it helpful! Manual lymph drainage is often recommended for those with lipedema due to the swelling component, but yes we usually recommend people verify the lymphatic therapist is used to lipedema because if they have pain then an even more gentle touch and a lot of communication can be helpful.
There is a huge tie to Lipedema and Ehlers Danlos Syndrome. Can you please look into Ehlers Danlos Syndrome, specifically the hypermobile type. It is overwhelming painful and overwhelming. We desperately need doctors to talk about it.
O!M!G! 😱 I've needed this info for 60 years! I thought I was wimpy like Dr. Berry thought his patients were. I was astonished that others were astonished at how easily I was hurt by contact that others could endure. I may have to go cry for a while. 😢
Women suffer so much and think it’s just “life”.
🫂. Have your cry, but come back and find any links to research and links you might want to have handy for planned and unplanned conversations. Especially the conversations with doctors, or see if you can get a few of Ms. Huggins' cards she mentioned.
❤️
Omg me tooo😭😭😭
I got on Palative care ,was told I have lung cancer but dr couldn’t get no biopsy,pet scan didn’t light up,,,NO more drs they have hurt me so bad all my life😭 tired round n round with stupid drs who didn’t care about me
I have lipodema, my dr didn’t have a clue what I was talking about when I told him I had “ painful fat syndrome”, it sucks, but carnivore is so helpful!
I have mentioned having Lipedema to a couple of Dr's and they just looked at me like I was nuts for diagnosing myself and ignored it. This conversation has made my day. 2024 will be my year to get a Dr to help me...I hope
I had a Dr. tell me it was all in my mind.
Good luck.
@bcar1962,
Tell the Docs "you want testing to rule out Lipedema".
😉😉😉
Three decades in healthcare.
It also wouldn't hurt to bring a Pub Med article on Lipedema, with your symptoms highlighted.
😊
I have had this for a very long time . I had severe liver cancer, which I was not told about until 8 years after the MRI that showed it. A specialist said it was stage 4, Luckily it wasn’t treated, so I am still here. I got the lesions on my liver from birth control pills. I believe most cases are caused by the same thing. That is why they won’t diagnose it, because they would lose their most profitable drug. I’ve used Atkins diet and have lost 160 pounds so far. It is similar to keto. The reason these diets work so well is because we are cutting out the carbs that are full of chemicals, mostly from glyphosate (roundup)spray. I’ve found the best is to mostly eat meat that is locally sourced, especially bison and your own garden vegetables. Do not eat anything with soy or canola oil. Butter and coconut oil are best, but again you need to watch the source. They say to cut out dairy. This is because of the pasteurization and processing. If you have your own cow or a neighbor’s cow, or some organic stores. I believe the Lipoedema is caused by the lymph system dumping water and toxins into the arms, legs, belly and butt. The reason is usually because of the state of the liver. Healing your liver is a big key to healing and losing the water and toxins in the body. Jan. 16, 2024.
Thank you for your explanation. It clarifies things about dairy and chemicals …
After reading this it has occurred to me that perhaps infant formula ( full of seed oils) gets this horrific condition started! Breastfeeding is best!
Yes! I think this is why there are so many puffy people in the US as compared to other countries. I have been thinking on this issue for literally decades and have just recently come to the same conclusion - it's our food and the damage caused in the body - mainly the liver and later kidney and also the digestive system. But what can one do when all our food is like this? Buying organic is very expensive if you are on a tight budget. Myself, I try to buy organic for butter and meat, but can't always get it as I have to depend solely on delivery shopping service. I am allergic to the herbs that really help the liver and also estrogen issues. My mother was very alcoholic during pg and am convinced I have weak liver and my sister has bad kidneys. Both of us cannot tolerate black cohosh. Unable to go carnivore due to intestinal reactions. It seems whatever problem I have, the solution is also harmful. But I definitely relate to the EXTREME pain caused by blood pressure cuffs. I don't go to dr because they have no comprehension of how nutrition affects the body, ditto chemicals (since they promote chemical drugs as a "cure").
Thanks for the explanation! How do you suggest healing the liver?
Milk thistle@@MEF7
I’m 51 years old and most definitely have it! I’ve never been diagnosed but the description fits me. One of the things I noticed after being keto for about a year (I’m 6 years keto now), was that my fat cells shrunk and no longer hurt as much. My legs and arms were extremely sensitive to touch and my husband teases me and calls me fragile still, but it is a lot less. I have never been obese , but I was about 30 pounds overweight. I’ll never have beautiful legs but I accept I know now that working out is not going to completely fix it. Diet is so important.
Get a rebounder and/or vibra plate
@@modelsuppliesA rebounder may not work for someone with lipedema. I have pain in my thighs with any kind of bouncing/jumping.
I wonder if Darko Velcek's Self-Healers Protocol would be helpful? I started to get swelling in my calves down to my ankles, and I can normalize them within a few days, to a week, Drinking lots of water with salt (sea salt), using a Chi machine that wags my legs left to right and back again, eating carnivore, taking whole body enzymes that digest scar tissue, and using far infrared (mat, dome or traditional). The SHP uses salt water in a concentration similar to blood plasma, and Darko says that it helps the body detoxify via osmosis. I can get results with just that, but when I add the components that help dissolve fibrinogen/old scar tissue, Keep out the sugars that form those problems, utilize my skin to sweat things out, as I flush all of my circulatory systems (blood, lymph, electrical/energetic), The effect is faster and my joints behave better and I have less discomfort. Maybe you can Progress to the point where a rebounder or vibrating plate is doable as well.
This old iPad is unpredictable. It looks like my answer was posted five times or something like that. But I wanted to add for others here that my favorite brands, After doing lots of research and using them for years, Cellerciser for the rebounder, and Becky Chambers products for the whole body vibration. Check weight limits of your product, whatever you buy. if you need some thing that is safe across the lifespan, look at that as well because you might have a wide range of ages in your family that you want to accommodate. Maintenance free is a big deal and that’s why I didn’t go for the bungee products. and of course, the footprint of the product is important when you have to navigate the square footage… And the whole body vibration products need an electrical outlet, while the rebounder does not. Oh, and if you have Any kind of implanted device, like an artificial lens after cataract surgery, plates etc., you'll want to check in with an expert before choosing a vibration product, and whether it’s even appropriate for you in the first place.
@@bitrudder3792 Actually, it posted 10 times!
I looked up the Cellerciser, having no idea what it was. I’m shocked at the price they are charging for these, from $550-$750. Then, another $150 if you want to track your progress. They look just like the old mini trampoline we used to have. What’s the difference, except for the price?
I had breast cancer surgery and removed some lymph nodes, started getting swollen arm. Got a rebounder - mini trampoline and it’s been magical! Honestly changed my body composition in a few days! It’s fun, effortless and takes about 10 minutes a day to gently bounce like a baby in the crib. Strongly recommend trying this with or without these issues.
I’ve lost 133 lbs so far doing keto low carb and fasting. It’s crazy how easy this has been. I’ve lost over 100 lbs before the hard way - counting calories and massive exercise. This is absolutely sustainable.
Awesome job !
Excellent. It can help with constipation really nice
are you saying that it reduced the appearance of lumpiness?
What diet do you eat?
youtube channel; AVANTI WELLNESS is about rebounding...inspiring for anyone who wants to learn more about the amazing benefits of rebounding
Just wanted to share dot I met Siobhan Huggins and Leslyn at Low Carb Denver, 2023… I watched their presentation at Low Carb Denver It was not until I met both of them, did I ever hear of Lipedema. We had a hallway conversation after their presentation (by that point, I had been on Keto for a year and a half and lost 130 pounds )..
I had an extensive conversation with Leslyn and Siobhan after their presentation at Low Carb Denver, only to find out (via old pictures of myself before I lost the weight that I showed them), that I had/have most of the traditional signs of lipedema. It was good for me to find out that Keto/Keto-vore/Carnivore is the best nutritional way to lose excess weight, as well as other methods to work on the lipedema situation… A BIG THANK YOU TO SIOBHAN AND LESLYN FOR THEIR BEAUTIFUL INFORMATION & SUPPORT OF PEOPLE WITH THIS DISEASE THAT I HAD NEVER HEARD OF UNTIL LOW CARB DENVER. I feel that I have had this situation since I was a teenager…
When white go-go boots were in style (very big fashion statement in the early 70s…Lol), I never could wear them because my calves (as well as other parts of my body from the waist down) were too big, at least now I know why.
I could never buy clothes that were the same size on top and bottom… I always had to buy 2 to 4 sizes bigger for my bottom half… Again, at least now I know why… We need to support this amazing work in anyway we can.
I was diagnosed with both Lipedema & Lymphedema in 2019. I too always thought that I was just fat. After having RNY and losing 150lbs and still having large thighs, calves, upper arms & a belly it really made a lot of sense
I have known I have lipedema for about 6 years now. I had/have pain since childhood. I thought pain with having my blood pressure taken was normal. Women need to know this is not our fault. We are born with it. As I understand it, it “blossoms” either in puberty, pregnancy or menopause. Mine occurred in pregnancy. It’s a sad condition to have. Mine is mild, been on carnivore for 2 1/2 years, and feel pretty good at around 165 pounds but I’ll never have pretty legs. Carnivore has not solved this issue for me.
Really , that’s awful .. terrible condition I wish carnivore helped for you
Start lifting weights.
There are surgical options specifically developed for stubborn areas of Lipedema. It’s a gentler form of liposuction.
Did you lose any weight on carnivore?
@@MEF7 Yes, I did! And so thankful for that! I had lost about 45 pounds doing keto, but would always gain it back. I had just lost down to about that 45-pound weight (again 🤦♀️) for my daughter’s wedding, but still not where I wanted to be. Found out about carnivore just after the wedding (no chance to put much back on - yay!). I then proceeded to lose about another 50 pounds…so down about 94 pounds. MY 3-year carniversary will be in August 2024 and I’ve been able to keep it all off! I just have lumps around that I know are lipedema and they don’t seem to be going anywhere. It’s just the surrounding “visceral?” fat that I lose. I’m still much better off. Liposuction is, I think, the only solution but it’s not safe, high rate of infection, I guess. I won’t go off carnivore. It’s still the best way of eating for me. Good luck to you!
I am a CLT and I teach patients to chronically manage this disease! Thank you for addressing this very difficult disease.
Thank you!! A good CLT is so important :)
I have learned a lot from mine
Where do you live??
@@zamis21 LA
How do I find a doctor that takes my insurance to help me. To listen to me. My new doctor does not even believe in vitamins. So I am looking for a different one. I am in Northern Idaho.
@@zamis21 this is a not well understood disease and many providers are not well informed on the diagnosis. Find a local CLT - they will probably be able to help you find a knowledgeable physician in your area.
So excited and encouraged to see you discussing this in depth with such a well informed guest. Someone suggested to me I might have lipoedema a couple of years ago. I was 56 at the time and had never heard this word. I have had this ever since puberty - always freezing cold, legs, hips and butt a size to two sizes larger than my torso, legs and arms are always painful and heavy and bruise at the slightest touch. I went carnivore Oct 13 2023. Amazingly I have lost 9 cms off my waist, 7 cms off my hips, 4 cms off my thighs and 3 cms off my calves and still going. On the scales I have only lost 3 kilograms! Major body recomposition is underway. So intrigued to see where I can be in six months, one year etc. on carnivore. A major reason I decided to try carnivore was I used to follow you in 2017 when I did keto, but you look soooo much healthier and leaner on carnivore which motivated me to try it.❤
Thankyou Dr Berry for addressing this disease. I received my diagnosis 5 years ago. It took me almost 40 years of asking questions to finally find a doctor who would listen and could diagnose. For most of those 40 years I was told I was just fat and needed to not eat so much and do more exercise. At one point I was consuming 1000calories a day and exercising 2hours a day 5x a week. My top half looked gaunt my bottom half stayed the same. Doctors still didn’t pick up on it. I think it’s also important to acknowledge the invisible psychological impact that comes with this disease. Feeling like a failure even though you try so hard to manage yourself, depriving yourself knowing you can’t eat certain foods without it impacting this disease while watching your regular sized friends eat whatever they want. Doctors telling you you need to be more honest with yourself about what is going into your mouth and your activity levels (true story). My hope is that interviews like this will bring more awareness so that younger suffers can be helped earlier and that doctors will truly listen with out dismiss them. Thank you for raising awareness.
Yes, I relate to every word you've said! We Lipedema women are some of the most disciplined and hard working and yet as you said feeling like a failure because of the lack of success despite all that we've been doing.
Thank you so much for bringing this further into the light. I'm a lifelong Lipedema and now lymphedema (legs & Upper arms). started gaining at 9 years old. Extremely painful in BP cuffs etc. Gastric sleeve surgery could only lose so much never touched lipedema areas. Keto has helped improve my limbs but doesn't take it down far enough. Doctors have never used the term "lipedema" for my condition. I literally studied online to find it several years ago and example pics and knew I must have it. I even asked my bariatric surgeon if I had it and he was clueless. Had never heard of the condition and that was in 2018. I had to tell him there were Stanford studies being done on it. I asked if he thought the surgery would allow me to lose on my legs he assured me I would lose. Since then my GP didn't know about it and I have asked that they look into it further for different treatments. Appreciate all your work Dr. Berry and Ms. Huggins!
Hi Kelley, you might want to try looking into the carnivore diet for a while and see if you have any benefit. I’ve felt those nodules in my legs and they would be very painful to the touch. And I started gaining weight and I was worried that this was going to be a bigger issue as I got through menopause. But, since being on the carnivore diet this summer, I’ve seen a huge improvement. I don’t have those painful spots in my legs anymore. I still have some little nodules, that I’m working out hopefully. The little nodules are much tinier than before and they’re not painful anymore. I can just sort of feel them still. But they have dramatically reduced. Give it a try. At least try it for a week or two. You’ll be surprised at how much inflammation is reduced. It’s amazing. The inflammation is what really hurts the most. And I think it really Makes the fat hurt.
@@nancyj5490 Thank you for sharing your story. I'll have to give that a try . Happy it has helped and relieved your pain.
I'm so excited to hear Siobhan's story. I'm a psychiatric nurse practitioner for the past 4 years. I just started my keto/carnivore journey a couple of months ago and have noted significant lifting of my mood and energy. Also lost a bit of weight but like Siobhan the improvement in my mood is enough to keep going. Looking to get a certification in nutritional psychiatry at some time in the near future. So many patients just don't get better with the psych meds we have today. I want to be able to offer a better solution without all the horrible side effects. Thanks Dr Berry. Finished reading Lies My Doctor Told Me not long ago and keep learning every free minute I have.
Good for you!!! Have you come across Julia Ross who wrote "The Mood Cure" years ago. Many drug and alcohol rehab centers are using amino acids to recover deficiencies common in addictions. Best wishes to you!
Georgia Ede's new book Change Your Diet Change Your Mind may be of interest!!! It releases this month and Georgia is amazing so I have no doubt it will be too.
@@curiouscat3384 I will definitely check this out. Our facility also treats a large number of patient with both mental health and addiction issues
@@siobhanhuggins5522 I looked this up and was able to pre-order on Amazon. Will be looking forward to diving in when I get it. Thanks again for all your information. I will try to be mindful and aware of the possibility of lipedema in the patients I take care of.
And Brain Energy by Dr Chris Palmer 😊
I am 62. After complaining to my doctor the last couple of years about the pain that I have in my lower calves when anything presses against them, about six months ago, I brought it up again and I was told “it’s lipdema, which means you are holding too much water in your legs and that is where the pain comes from”. I have had this pain in my legs for at least 20 years, but the older I get the more it has bothered me. I’ve not finished listening to the recording, but I already appreciate this video. I’ve already sent it to my sister and told her to watch it, because she has it too. 😊
Lipodema is not WATER in the legs, it's expanded and inflamed fat cells. Water retention is lymphodema. Most doctors have no idea what
lipodema is or that it exists.
Yeah if you are holding water thats lymphedema and its NOT lipedema which is what the doctor is talking about.
This was an absolutely amazing interview!! I have never commented on any UA-cam interviews before. Excellent information and content. Thank you so much!!
Arrogance in doctors destroys so many lives.
So true! I had a doctor fat SHAME me at 137 lbs at 5'2". Here's the thing. I was 3 weeks post partum from delivering my 2nd son. I was having thyroid issues that almost killed me. To no surprise the doctor was a prior military doctor who would have killed me should I have given into his arrogance of him just telling me I'm sick because im overweight. I gave him my symptoms and all he wanted to talk about as an ENT, was my weight. He considered me overweighr 3 weeks postpartum, just unbelievable!!! Well I didn't give up and saw another doctor. Luckily, I found out through another doctor, that i had a Spot on my thyroid that u could feel and see on catscan or MRI (can't remember which test) but had to undergo radiation treatments. I had massive headaches and was vomiting blood. My kidneys were shutting down. But arrogant doctors can kill others. So if u ever know something isn't right with your body, keep seeking someone until u find the help. There are reasons for 2nd opinions!
Thank you doctor for sharing this video! So informative and may help save some womens lives. ❤
I can easily recognize this. It's common and i can only imagine the personal shame and trauma this disease has created. There was a really heavy girl at my school 30 years ago and she had this, and it was brutal for her in high school.
I’ve had lipodema for almost 40 years…it started before I ever had visible symptoms (the pain) but really exploded with my first pregnancy at 23. I’ve learned to live with the pain, with keeping my legs covered, and dealing with doctors and others always saying "oh that can’t be hurting you!" While I’m sitting there crying from the excruciating pain. I did lose over 100 pounds about 10 years ago, and I do feel better in so many ways, but my lower body and upper arms still look the same. And the fat still hurts…bad. I started carnivore recently and am hoping for some more improvements. I love that this condition is finally being talked about.
Como sugerencia, no olviden poner subtitulos. Es muy importante para la gente que queremos reforzar sobre estos temas
Tu puedes seleccionar en el close caption en que idioma lo quieres leer. hay esa opción.🙂
@@ozzyrenderos3310 no no los hay en españok
@@reneperez2126entonces solo.hay una salida: el 85% de la información útil de internet está en inglés.
No te queda otra que aprender inglés o buscar médicos funcionales en ES. Hay varios.
No pidas imposibles, es contenido gratuito, da gracias que existe.
What a brilliant, well-spoken woman. Thank you for this topic.
I have been strict carnivore since April of 2023. Lost 50 lbs. I feel great but my legs look like stage 1 on the thigh, not the lower leg. The arms have always been troubling.I will definitely look into this. Unfortunately I am pretty sure my Dr. will not acknowledge it.
Time to up grade doctors, you pay him, he isn't doing you a favor showing up uniformed. I was a hair stylist before retirement. If I didn't know how to cut hair clients would go elsewhere. That is the reason for continuing education. You certainly do not need a too lazy to stay current in education, arrogant doctor.
@@latterrain09 very good point!
Find another doctor !!
This is me! I will admit I could stand to lose 20-30lbs. BUT all my life even when I was super thin - like ribs and sternum showing - I still always had thick thighs, like all the way to my knees, and then normal calves. And I've always had thick arms. Like I couldn't wear buttoned cap sleeves, because my arms were so thick. Like even at my elbows, I had thick fleshy elbows. I've always hated my arms and legs.
I'm so glad you are talking about this! My mother was diagnosed with lipedema at the Mayo clinic a few years ago when she was getting treated for cancer. I'm sure I have it as well at a stage 1 but no one has ever diagnosed me. It's so hard for me to lose weight. I do carnivore and still have to do prolonged fasting to lose weight. My mother has also struggled with weight loss her whole life.
Interesting to me. I have been a patient at mayo for decades. They diagnosed me with lymphedema over 20 years ago but not lipedema. Lipedema is not even listed as a condition on their site. The search engine makes suggestions as to other terms that might help 😂
I am exhausted with educating doctors and physical and occupational therapists. I come crying to them for help and they are excited to see me and can't wait to see what I'll teach them.
Been like this since I was a girl and at this point I am sooooooo angry that they put it on me to educate them.....while I pay their bills for taking up their time asking them for their expertise and help.
I’ve told my drs so many times how painful and sensitive I am, and they just said it’s probably nothing or fibromyalgia.
Literally yesterday I came across a video on lipedema, and I wanted to cry becusee I have the answer to what I have been struggling with since I went into puberty!
I am 41 now. All these years is struggle and not one medical Dr helped me figure out what it was.
I am learning now more, thank you for video! I can have my life back!
Painful BP cuffs and blood draws are a real thing. Thank you for shedding light on this so that those of us that are dealing with this can seek a solution!
And I thought I was over sensitive and crazy all these years.
One of my closest friends struggled with this her whole life. Even when she was finally diagnosed in her 50's they still didn't know how to help her. I'm so glad the word is finally getting out about this difficult disease. I pass people on the street who have obvious symptoms and have to wonder if they know what is happening to them and that it's not their fault.
Yeah I defiantly have seen this a lot in the past 20 years
I ❤️ Siobhan!
She’s very intelligent and interesting to listen to.
She often talks about her mother being one the smartest people she knows…..considering the company Siobahn keeps…..that’s saying a lot.
I’d love to hear what her Mom has experienced in her own health journey.
My mom is pretty shy... but maybe I can convince her to let me interview her ;)
@@siobhanhuggins5522you are truly a blessing!! I’d love more information about lipedema!
Wow, this was so informative! I never even heard of lipidema before and I'm an RN. Siobhan is an excellent speaker too! Thank you again!
When my cat walks on my lap it hurts so much! Also when someone gives me a side hug and their fingers squeeze my upper arm 😩 I thought BP checks hurt everybody. If I have Lipodema, it’s mild, stage 1 or 2. Thank you so very much for shedding light on this condition! I’m heading down the carnivore road and so grateful for Dr Berry’s videos.
Hello, follow Up Right Health.. off you tube.. All my chronic pain is gone.. 🇨🇦
Same here. It's more common than we knew. We are not alone.❤🙏
I have lipedema, recently diagnosed. Looking back, Ive probably had this since puberty, but it became much, much worse after menopause and I am now 59. My bruising is absolutely horrific and people stare. BP on my upper arms is painful, like a 9/10 and bruises me. My 6 lb cat stepping on my leg is painful.
I am doing rebounding, aqua physical therapy/PT, lymphatic massage, and wearing compression stockings and sleeves. Goal is to keep it from progressing and even turning into lymphedema.
THANK YOU THANK YOU THANK YOU, Dr. Berry for having and airing this interview. Awareness is crucial and so many doctors have no idea what it even is. In all of Kansas City, there is only one vascular cardiology doctor who knows anything about lipedema, and I was fortunate enough to find her.
If you haven’t tried incorporating the carnivore diet, I would highly recommend you do so. Just read the comments on some of the other carnivore videos about how many people are benefiting. It reduces your inflammation dramatically. Which helps reduce the pain in the fat. That’s what it’s done for me. All the weight loss is a huge bonus, of course.
I love your screen name! I was born in KC! I love that town!
@@littleone31917 Thanks! I wasn't born here, but landed here over a decade ago and decided to stay. I like it here overall.
I have been carnivore for 2+ years & this is 100% me! I have lost 80Lbs- but any little spice or chicken makes the tops of my feet hurt like crazy- like unable to walk.
Is there anything that helps/eliminates all the little lumps bumps all over under my skin- arms/thighs/buttocks?
Thank you so much for this! I have asked my doctor many times about the lump in my legs and never been told about Lipedema! This explains a lot! The pain is what has made me think I'm crazy!! Thank you for this!
So glad to hear you talk about this . Thank you so much.❤
So glad that you did this interview! I was diagnosed in the late spring of 2011 by a vascular surgeon I went to see for an unrelated issue. I had never heard of it, he took one look at my legs and told me immediately I had lipedema. I was a size 4 at the time of my diagnosis. My upper half was an extra small and my ribs showed because I had a tendency to starve myself due to about 16 years of trying to lose excess weight in my legs, but never being successful. But like I said, I was a size 4 and still small at 5’ 6.5” and 130lbs. I could hide it from everyone until I was bare legged. I haven’t worn shorts since I was 17, maybe 18. I’m 46 now. Mine came in around puberty and got worse after pregnancy, but keto is helping me keep it under control. I only have my legs and arms affected by it. I will mention that even as a child the blood pressure cuff hurt like a mofo! It wasn’t until I was speaking with a well versed doctor in lipedema that I was told the blood pressure cuff should never cause pain 🤯 You are so awesome for spreading awareness Dr. Berry!!! God bless you and your beautiful family❤ Hugs from Texas!
WOW!
Finally a diagnosis!
I have such pain with dynamap b/p machines. My arms have lipedema. The fat cells are the size of a peanut m&m's, fused together nodules...Easly palpable.
I also carry weight like the stage 2 photo. I have pain and bruising when my blood pressure is taken, or with excessive weight or pressure on my thighs. The lipedema began when I was 9 and started my period. It continued to worsen wth each pregnancy. However, I started strict carnivore 6 weeks ago. I am amazed at the changes in my body. I have lost 10 inches off my arms to date! I am totally amazed, Dr Berry!
Thank you soooo much!
That is phenomenal 🌸🌸🌸
I was diagnosed about 5 years ago. Even my 12 lb dog and cats cause me pain on my lap and bruises on my thighs. My children have always known not to poke me for attention or fun. Dont pretend even to punch me gently because it hurts! BP cuffs are excruciating as well as the constricitng bands for blood draws. I'm only mildly overweight today, with a BMI around 26 at 5'4" and 150 lbs, but the remaining fat nodules are still numerous & painful. The damage to my lymphatic system & blood vessels is lasting. I'm glad so many more people & medical professionals are becoming aware.
Thank you and Siobhan for bringing so much light to this condition. I've been talking about this since 2018 to help Black people across the world become aware of the condition. I was diagnosed when I was 38 years old. I have used storytelling to help people understand the myriad of symptoms and physical attributes of Lipedema. There are so many. I don't have the "typical" Lipedema body proportions and that prevented me from being diagnosed when I sought it out. Dr. Amron eventually diagnosed me and I will never forget the feeling of being validated by a doctor. So many of us need MDs to catch up. Thank you!
I have been diagnosed with Lipedema. I find Keto very helpful.
I was 12 and a competitive swimmer. I felt my legs/hips/butt getting larger but I was trying to just swim harder, edit my diet. I saw a photo of myself at a competition on the blocks ready to dive for a race. I couldn’t believe what I saw. I looked like an exaggerated pear. I finished that season and stopped swimming out of self body shame. Found out in my late 30’s I have lipedema. I’ve been following Dr. Berry for about 5 years now and am eating a proper human diet. Thank you for covering this, Doc B.
Did the diet help?
@@darlatobin2240 Immensely. I still have fibrotic scar tissue but I’m significantly smaller. Game changer for inflammation, mental health, even my skin.
What an incredible young lady, thoroughly enjoyed watching this, thank you, both ❤
Thank you for spreading this information! I've shown signs since puberty and dealt with all the shame and self blame till 20 years later when I finally found lipedema photos on Google. In my young 30s, my pcp diagnosed me with lymphedema. Well, apon further research, I found out she was mistaken but a blessing none the less because it caused me to research and accidently stumble apon lipedema! All the pictures looked like ME! Was like a whole new world opened up once I realized I wasn't alone and it wasn't my fault.
I was diagnosed with Lipedema in November of 2020 after I saw a youtube video of a woman explaining her Lipedema! Thank you so much for your video! It will help so many sufferers! God Bless You!🙏🏻❤️
This is a real eye opener. I'm familiar with lymphedema, but in all my 69+ years I don't think I've heard of lipedema. Thinking back I'm certain I've seen numerous women with this condition. Thanks for educatiing me!
I've had 3 surguries in legs, which reduced it but it comes back and it is now in my arms too. The best things I've found to manage pain/discomfort are daily walking, wearing compression (stockings or leggings), and I use a lymphatic pump for an hour when watching tv every few days.
Lipedema sucks but you got to push through. Search for a doctor that can properly diagnose you and one that understands this disease. More than anything, spread the word to others. There are so many suffering and lost about what is happening to their body.
Did you do liposuction?
Excellent Interview!
I definitely have Lipedema, not diagnosed, but suspected this about 6months ago. Had my arms reduced(brachioplasty)2 Years ago and then the plastic surgeon said it almost felt like little worms(like little filled pockets) in my arms. I had 5kg total removed. I struggle with excessive pain in my arms and legs, calves and swelling. Been strickt carnivore since October and only lost 10kg. Now suddenly gaining. Wish I can find a dr Berry in South Africa. Love your guest😢❤
When I was in labor with my 8th natural birth, the little Doogie Houser MD student doctor came in to take my BP and I about came off that bed when he started pumping that damn thing up. He was like, “ well, if you thinks this hurts, you probably arent even in true labor- you have way more pain in store for you”. I birthed a 9 lb 6 oz baby 5 minutes later. I never saw his smug cocky self again.
Thank you both!
Oh MY! You hit on one that sounds EXACTLY what I have been dealing with! I am in my mid 60's. I've suspected for a long time that I had something wrong even as a teen with the lumps on the inside of my knees that hurt and even some near the elbows even when I was a size 9 and thin as would be. Then the progression... even down to being hypermobile, it got WAY worse after I fell and had a hip replacement is when the legs started getting really big! I did have some swelling in my ankles because I also have failing kidneys so there is that. AND hyperthyroid!! But when anyone tries to put a needle in my arm, I get very swollen in that arm to the point I could not stand them to take my BP as I was in the hospital for over a week last Thanksgiving. You are a Godsend the both of you!! I have been trying to tell all the Drs that after I did Keto and intermittent fasting that is when all of this showed up for certain. Thin but have these painful areas that I've had since a teen! My body looks horrible! And getting worse. I can barely get in and out of my car my legs are so heavy. Thank you for all you do!
Thank you Thank you Thank you for BELIEVING this exists!!! The shame and confusion over not being able to control this body of mine all these years has been devastating to my heart and soul. I felt so alone and like a weirdo all my life. Keto is a game changer for sure!!! I'm 69 and just coming out of my depressed"fat shell" now! I hope the future will be brighter for my daughters as medical research and patient support catch up.
I am 52 and have not been diagnosed but I am confident I do have this. I am very puffy and the pain thing is so real. I heard all the time "you're too sensitive". Thank you for sharing this.
Thank you so much for this discussion and bringing awareness to Lipedema. More doctors/nurses need to be aware of this condition. I’ve developed lipedema at puberty. Diagnosed in 2019 by a vascular doctor but all other physicians I’ve seen aren’t familiar with it.
Great video Dr. Baker! Keep them coming! ☺️👌🏻
Bless you both! I have an answer for many of my questions as to why I can't lose weight in certain areas and why I've had swelling and cuffing for most of my adult life. You guys are awesome.
I'm so glad we could help you on your journey! One thing to take away for anyone with lipedema or who suspects they have is that you are NOT alone.
I started watching your videos March '23 because I follow another UA-camr who mentioned your name and the carnivore diet. I am very happy to say I'm losing weight, BP has gone down, my cholesterol is also down. My doctor is happy and wants me to continue. My next visit with my cardiologist, I have arrhythmia and high blood pressure, is this May and I'm hoping I can finally get off the medications.
I'm 65 and feel like I'm in better health than when I was younger.
I thank God for you every day for spreading the word. I've watched other videos of people with other health issues and especially the young man that was on last week about his colon being removed. It just breaks my heart. If their doctors had them at least try the carnivore diet they would have added to the quality of their lives a lot earlier.
I remember when Dr Atkins first started talking about the low carb diet; which I did go on. How the medical community treated him.
Thank you again. Blessings.😊
Do more research into bp, Dr john Bergman might offer a different perspective.
What a great interview 🙌🏻
Thank you for doing this very informative interview, Dr. Berry!
Yes--i was diagnosed several years ago. There is a strong hereditary component to this disease as well. My mother obviously had it too, and I see signs of it in one of my daughters. 😢
This can be so distressing.
Will they listen…
Will they believe they can help themselves ..
We often feel so helpless with our kids and grandchildren.
Still watching, she is great! Love her.
I have been suffering with lymph and lipodeama since puberty, I have recently had a lipodeama diagnosis in my 60s. Congratulations for recognising these conditions. I was an athlete, always the heaviest in the squad. So much prejudice surrounding weight, not to mention a lifetime of dieting. Thankyou for bringing this to the public and professional awareness.
Learning every single day following this channel-it’s amazing!
I believe I have this. Mine seemed to start right after I had mononucleosis. I was about 22 years old. I am now 60 and it's been an embarrassment all my life.
Interesting comment. I had a case of chronic EBV in 2021. I've been had increasing sensitivity in my hips, thighs, and glutes since that same time. Wonder if there's something to it. I read 90% of us have had this virus, many like me never knew it.
I had suspected that I have lipedema and have been researching all about it this past week. I recently went through menopause and noticed my lower half simply exploded in size, with even more hard lumps, not just cellulite, despite wearing a small size top. To click on Dr. Berry's video and see this....wow! Thank you, Dr Berry for always researching and bringing attention to things like this!
I have lipedema. And it sucks. So glad you’re bringing light to this.
Such an interesting conversation! Thank you!
I saw a picture of lipedema and immediately recognized myself. Growing up, I always thought I didn't want to be like my mom. I'm exactly like my mom. In 4th grade, a teacher told me I needed to go on a diet if I wanted a boyfriend. On top of that, there was a lot of friction at home between my mom and dad about money. My twin sister and I went around our neighborhood picking up dog poop to help out. I suppressed a lot of my emotions, and by twelve, my allergy doctor had me on Xanax for stress. Siobhan talked about stress affecting the hormones, food sensitivity, and health genetics ties to lipedema. I brought up this topic with my doctor, and she told me she did not know anything about lipedema. I explained the symptoms and showed her pictures of the different stages of lipedema, and she referred me to weight management and said I might need to go through treatment with ozempic. This was in October 2023, and my appointment with weight management is in October 2024. She immediately listed me as morbidly obese. I AM NOT GOING TO TAKE OZEMPIC. I'm not even sure weight management is the right place to seek answers. I'm 60 and have undergone 20+ surgeries, including a vertical sleeve gastraectomy and suffer chronic pain. It is very difficult for me to exercise to lose weight however everyday is a new day. Thank you for saying you were wrong about calling women like my mom and me cry babies and telling us to eat less and exercise more. I cried just thinking what my mom went through and how demoralizing it was.
Thank you for this. I think telling our stories helps build a picture of the possible causes of this horrible disease. Personally I believe reducing inflamation is key to helping lipedema, and we know Keto and Carnivore are extremely anti inflamatory. Simply reducing the amount of food whilst still eating the standard American diet certainly doesn't work in my opinion. And it's interesting that you mention stress especially when growing up, as I believe this could be a huge factor as well.
The more you look into Lipedema you discover that it is really a connective tissue disorder and many people who suffer from it also suffer gastrointestinal problems, myself included. You sound like a smart lady I'm sure you'll find what works for you. Take care :)
I concur, better to stay away from Ozempic. Decided to get myself a rebounder ASAP to help me to reactivate my lymphatic system and maybe to help with stress management as well.
@Maddy-qd8eg Thank you for your kind words. It's nice not to feel so alone in this. I have noticed a reduction of swelling in my thighs above both knees with keto. Also, it seems to be helping with my arthritis in my entire spine and neck. In addition, I stopped taking gabapentin and the peripheral neuropathy in my feet has less swelling as well. I just downloaded Dr. BERRY'S PHD e-booklet and will give that a try. I wish you the very best.
@rethap3612 I'm curious: What is a rebounder?
@@HugsXO It's a small trampoline :)
This was a VERY valuable segment! I daresay that nearly EVERYONE (at least in urban areas) knows one person with this condition, and most people, most doctors, and even the sufferers themselves, just think of it as some weird kind of obesity, and are clueless regarding a solution. Dr Berry, thank you fir having Siobhan on; I learned so much from this episode!
Thank you. Thank you for raising awareness! Thank you for sharing your successes and struggles and for all the tips!
Oh my goodness. Thank you for being so informative. You have answered so many questions
I self-diagnosed my lipodema in my late 40’s after stumbling upon a Facebook group about it. I sent my doctor UA-cam videos about it and she diagnosed me with it after watching them. Prior to that, she never heard about lipodema. I gained 30 pounds after the onset of puberty. I gained weight after my pregnancy and then I went into early menopause at age 40. It was only after menopause that I developed a lot of fat in my stomach. I was in the military for 24 years and always struggled with meeting the weight requirements. I also gain muscle weight very quickly. Even when I was in shape, my bottom half was always bigger than my top half.
Found out I had it when I was 60 😕 from a guy who worked in the spa I went to on the cruise I was on ! ! I was so relieved when I looked into it. Finally ! I knew why I looked the way I did.
Thank you. I’m sharing this with a friend of mine who’s really suffering.
Great interview! I love both of you!
I’m glad you were talking about this, because so many women are unaware of this diagnosis. I actually had to go to an endocrinologist out of town in order to get my diagnosis. While getting a diagnosis, I was told that there is not enough research and there’s really nothing that can be done for me. Well, that’s not true because I’ve been able to help myself by changing my diet. But then, of course medical doctors don’t understand nutrition. Thank you for talking about this important topic.
I practiced massage therapy for over 20 + years and I had countless clients like that. Mostly all female too. One lady had it from upper arms to elbow and it looked so bizarre I knew in my gut it was not normal fat distribution. That was many years ago but now I’m sure that’s what she had.
Thank you, I always wondered why it hurts too much to have a massage. Mostly on my legs and arms. Interesting. 😊
I was hoping massage would be brought up in comments. It's why I've kept reading honestly. I've had very few massages because I feel beat up and bruised for days after. Initially I feel relief of tight muscles I presumed but after it's as if I had overexercised every muscle in my body. Got me wondering.
Oh my goodness ❤ this makes So much sense! Thank you so incredibly much for sharing this ❤️
Thanks for spreading the word. It frustrates me how mean people can be especially when they don’t know about this.
I feel you. The more people learn about this, and the better they understand it, hopefully the more empathetic they will be. It is not easy to deal with, especially when there are still people who don't believe it's anything other than "fat".
Siobhan, you have the loveliest face. You are a pleasure to listen to.. I bet your Mum is so proud of you. Very intelligent girl Xx Another Mum
Thank you! As long as I'm happy my mom is happy, so currently we're both happy :)
Agree! Your a beauty and smart articulate doing great work! Bless you for sharing - it’s caring
Ive never been diagnosed but have gone from stage 2 to stage 1 with a keto diet and weight loss of 50kg. This explains the persisting fat pads medially above and below my knees
Thank you for sharing your story, Siobhan. Very informative and inspiring.
Finally! Thank you for discussing lipedema 👏🏻 I was diagnosed in 2019 and it finally gave me the answers I was looking for my whole life