I was diagnosed at 7 and I'm 24 now. It came out of nowhere. My mom thought that I had pink eye (my eyes were bloodshot). When the doctor saw me all he had to do was smell my breath and he knew what was wrong. I was immediately taken to the hospital. My blood glucose was over 900. It was terrifying for my mom. I had to grow up very quickly after I was diagnosed. But even with all the scariness of it all, type 1 is manageable. I live by myself, go out with friends,exercise, and work. It's possible to have a normal lifestyle with Type 1 as long as you manage it correctly.I won't lie, It is scary to think that I could go to sleep and not wake up. All I can do is check my blood glucose regularly, take insulin when I need it, check my infusion sites, and just be very aware of how I am feeling physically. Hopefully in time Grace's diabetes will be in better control and she can venture out on her own.I don't mean this in a mean way ,but she can't let her parents manage her disease for her indefinitely. She needs to learn early on how to manage her disease in order for her to live her life to the fullest. Acknowledge the fact that you have a disease and that it can take your life if you don't manage it ,but don't let it dictate the things you can or cannot do. You can do anything you want, it just takes a bit more planning.
Totally off the topic of her diabetes, but I appreciate how many clips in this documentary are focused on the cat. If you have to have filler footage... might as well film the cat.
I loved this min-documentary. I've been type 1 for 21 years, I can remember doctors telling my parents that a cure was right around the corner when I was a kid... I really hope that it comes one day but in the meantime we've got to live with this and through this.
Man I cant even begin to imagine what her mom is going through.To be always on edge like this all day everyday.Not to mention the cost.The things we do for the ones we love .I really wish them both the best in life.
As a dad, fulltime single dad, of a child with t1d, this made my tear canals working. I sleep uncomfortable on a couch so I can check on my daughter on daily and I do-it every 2 hours to be sure. Then you have people ask you, " but why you look so tired" ?
@@roscopico cgms aren’t always possible. They’re expensive, some doctors may not want to prescribe them, your hospital might not even have the training to provide a cgm. Some people might not want to take on the effort. They might not even have cgms in their country.
I've read many comments stating that this documentary doesn't reflect the life of the average type 1 diabetic, and many more claiming that those who are trying to explain why this is not representative are invalidating the experience of this girl, this family, other diabetics who suffer; and that even if the documentary is not disclosing the rarity of the girl's condition, it's still raising awareness and not doing any harm. As a type 1 diabetic who went through hospitalization a couple of years ago because when I was first diagnosed no one bothered to explain to me things as they actually were, I have to say this: imagine that you have just been diagnosed with type 1 diabetes and you're already pretty bummed because it is a life changing disease and at first the adjustment you have to make to your daily life seem overwhelming; you do some internet research, because that is what people do, and you stumble into this; no one tells you, in the documentary, that this is not typical; you'll probably feel like you've been lied to by your doctor, who painted a pretty different image of the disease, and that sense of impotence that you already felt might take hold of yourself completely. I have the luxury of living in a country that considers the health of its citizens paramount, and so provides completely free healthcare to people with lifelong diseases; so I will not pretend to understand what it's like, not knowing if you will be able to get your life saving medicine or devices on a regular basis. But if any newly diagnosed diabetics are reading this, please know this: I don't need a dog to tell me when my sugar is high or low, and I don't need to check my blood sugar constantly, because IN MOST CASES your body is able to tell you if something is wrong. I've traveled alone and with friends, I have a degree and a job I really like, and though of course I had to make adjustments to my lifestyle, those adjustments quickly became ordinary routines, even though I could not believe that at first. Take care of yourself and be safe, but also be knowledgeable.
Dude u dont check ur levels???!! I did that for years and was fine but a1c was usuallt around 9, then one day I woke up screaming covered in sweat and couldn't move any of my limbs, I couldn't call anyone for help bevauseni lost all control of my muscles, I managed to roll off my bed and drag myself (like a snail) down the hall and knock a drink off a counter and drink it all while have lost 95% of my mobility, at first I thought I was having a stroke but turns out my blood sugar was dangerously low and I just barley risked a coma.. ever since then I've had dexcom to monitor it but seriosuly don't make the same mistake I made im lucky yhere wad a drink I could get , the ones in my room were in a drawer I couldn't open and I couldn't even use my hands to call for help and none of my neighbors called for help, i would love to know what ur a1c is tho? Chances r ur usually closer to high than the range ur suppose to be
Beautiful documentary. Kudos to the filmmaker. I especially appreciated the quiet footage, with little or no narration. It is so rare in modern filmmaking. 👏👏👏
How could anyone dislike this??! I didn't even read the "nonsense" replies, but I found this super helpful! Maybe in a "perfect" world "all" type 1 diabetics have access to the meds they need, but we know that's not true! Each day is a struggle and as we complete another day...we live to fight another one :) I had a stroke a year ago due to type 1 diabetes and believe me I'm extremely grateful to still be here!
Poor girl :( I had two kids in my school with this, they managed it really well but it was clearly really hard for them.. they're both at uni now, living away from home and doing really well, I hope this girl is able to experience that too
Being type one diabetic is different for everyone. What they don’t show is so much. Like the many health issues that can go along/come from/or complicate diabetes, or battles with insurance. I’m 16 and starting to worry about college but I also have to worry about a career that can support my type one diabetes.
You are great parents she is very lucky to have your support i understand the nights & early mornings are the worst hopefully they will find a way to help type 1 diabetics i had never heard of a dog being able to sense when she is low
I see a lot of fellow T1 diabetics here giving their own experiences of the disease. I agree, for a lot of t1d's life barely changed. Diabetes didn't effect their routines that much and they've been able to achieve normal lives. But I'm a T1 diabetic too. I was diagnosed when I was 10. My life is just like this girls and I know a lot of other T1 diabetics who live the same. It's not obsessive, it's our diabetes is so hard to control. People don't understand that T1 diabetes is such an individual disease. I also have friends who have never experienced a low blood sugar, and rarely go high. His diabetes barely annoys him. Meanwhile, I'm having a countless low blood sugars right beside him. Diabetes T1, when it is rarely shown in media is often portrayed as simple and easy. A blood stick here, a shot there and you're all good to go. I think we deserve to have our efforts acknowledged. How hard it can be to live with such an invisible disease. It doesn't mean I can't live my life, have a degree, work in a company. It just means I had to work harder than everyone else to be there.
How is this disturbing? They never said it was 4 out of 5 of her friends. There are people who go to diabetes camp and know hundreds of other diabetics and it is very likely that 4 of them could die. Also, some people may not be able to afford a CGM and I know when I was younger my parents did this exact same thing for me. This video was not made specifically for people with T1D but for the people that don't realize how depressing it is and all the things that go wrong and even the fact that you can die from T1D. I'm confused why anyone is criticizing this little documentary considering is does portray some people's lives very well which is what we want considering no one seems to understand what T1D is. The video you just called disturbing is someones life.
Rachel Hinkle Yes, at 10:15 of the video, the mom tells about 4 of her daughter's friends passing away from diabetes - 3 in the night and one in the morning. Check it out.
I am so very very thankful for Germany's health system. You get anything that's helpful to you with minimal costs. A friend and I are actually tracking the blood sugar over an app on smartphone and smartwatch. If it runs low you automatically get an alarm. Basically you live a very normal life
A D alert dog is a wiser decision than a CGM given the precarious nature of insurance coverage for those of us who are not members of the predator class. I survive this condition, T1, through monitoring and pay out of pocket to see an endocrinologist. She is worth every cent but costs more than I pay for rent. I wholeheartedly support this woman's right to speak about the full experience she has, and it wholeheartedly support her right to differ from my experience. All T1 represent this condition as a whole when commenting on videos like this. The vindictive commentary is a disgrace. To those who are so very hateful, face your negative emotions and stop preying on others. Not everyone has your money or access to resources. Not everyone has your body. Before you maliciously attack others for having an incorrect attitude, reflect on the words and the attitude you are using to correct them. T1 33 years. New parents of T1, and new T1, you have the right to a full range of emotion. Deny your anger, frustration, and fear, and you will end up like the people who despise anyone who is honest,some so uncomfortable with themselves that they reject these feelings by abusing others online. There is no similar behavior in other communities because there is more emotional intelligence and unity in other communities. Here, there is a broad range of privilege and need. And stunning ignorance.
I'm reading the comments and no one understands or heard that her mom just said she doesn't have a pancreas. That's why it's so severe in her case. Pancreas=Diabetes, type 1: The body’s immune system attacks and destroys the pancreas’ insulin-producing cells. Lifelong insulin injections are required to control blood sugar Also not every disease is the same for everyone. Just like when I have a cold and my brother has a cold. He'll end up with a nose bleed from blowing his nose and I'll be over here with a migraine from the fever but we both have a cold.
Sabrina Marie - exactly! I have a different rare disease, CRPS type II, which is an extremely painful, degenerative neurological disorder. CRPS is caused by trauma and for some patients, it can be triggered by a stubbed toe (which falls under type I) and for some patients, it’s a shattered hip and massive surgery (my case). And for some patients, it stays in a single limb for their entire life and they can work, go to school, have kids, etc. Then there are cases like mine that progress to the entire body and leave you wheelchair bound or even home bound. It’s tough to explain to most people the extreme range of problems that can come with some diseases. They just can’t understand that it’s all the same disease in name but so very different in daily life.
There are quite a few Type 1 diabetics (like Mary Tyler Moore and Halle Berry) who didn't seem to go through this much. But while everyone's illness and symptoms are different, the ones shown in this video seem especially severe.
There are many jokes about those 2- I don't know the truth about their illness. But I have been to many camps with my child. N no miracles anywhere. This video is not candy coated. Sorry. Just truth.
Halle berry had type 2 which can be cured, Mary Tyler Moore was severely effected by her t1d and died of diabetic complicatioms from pneumonia... the thing with t1s is.. they arent focal about how absoutly horrible the disease is because the drs always go "yea yea its easy to manage" so when you realize how much it sucks (few months sometimes few years) you're not gonna complain bevause everyone has been syaikg how easy it is so obviously if u don't find it easy it's ur fault? Which obviously it isn't but u see what I'm saying? Ppl don't take the disease serioauly, imagine the mental toll of constantly monitoring ur blood sugars thst are effected by not only food but everything that goes on and how u could go to sleep and just die at any point? It's exhausting and hard for all t1s
Thank u so much for this story. My heart goes out to grace and the family. I do have one question tho, if anyone kbows pleaee answer. How is the service dog able to detect when her levels are off or dropping? Ive always wondered that, or how is the dog able to detect an oncoming seizure? Thx
If your sugar is much too high it starts to smell so intensively that even humans can smell it (its a quite disgusting smell, like aceton (or nail polish remover)), i guess the dog smells it way earlier :)
Like they said, diabetic alert dogs work off of scent. Seizure alert dogs, however- they have no clue. Seriously. And not all dogs can alert to all people. Programs that work with seizure alert dogs train them to be canine good citizens (CGC certification can be gained by any dog, though it is a lot of work for the average person) and they cover the basics of regular service dogs, like retrieval. Then when the dogs are paired up to a human, they hope for the best and have plans in place to swap dogs if needed.
You guys should look into a Dexcom G6 it had saved my life so many times. I have hypo unawareness ( I have type one diabetes) and it alerts me when I go low. In fact just last night I was 44 going straight down and it alerted me. I had no idea I was low.
For those of you who say CGM, etc, those are grossly inaccurate, as well. I have a pump, and a CGM, and more often than not my CGM is vastly different than my actual BG readings. I have better success waking up frequently checking than rely on that. Jus sayin, sit back and stop hating on this family for putting in their efforts.
Hey!! Been 7 years but if u gave up on cgm in that time, u shoild gwt it again dexcom is hella accurate and depending where u live is covered by the gov. I spent momths comparing blood readings to dexcom and to libre and dexcom was wrong once but was my fault cause I screwed up applying it , I found libre to be 30% wrong
I don't know nor will I pretend to know the specific circumstances of her diabetes (maybe her blood sugars are especially volatile), but as a type 1 diabetic her circumstances are NOT representative of me nor anybody I know. Watching this, I felt as if she had a different disease than me. The control that her parents kept seemed extreme to say the very least. Again, I'm not pretending I know everything; maybe her circumstances justified it; I don't know. However, while I'm not judging her, I am judging the filmmakers favoring the drama of the fact that she could die at any moment, over actually representing the reality that her circumstances are probably extreme and rare and/or her parents are overreacting. For people like me, the disease has very little impact on daily life. Just like people judging people with T1 like they have T2, I think it's important that peoples' only exposure to the disease not be an over-dramatized portrait of what seems to be an extreme case with possibly overprotective parents.
This is the most accurate real right up front portrayal. This is the grim reality. T1 is very rarely portrayed accurately this video is right there like it or not this is T1D.
***** I'm not saying that her situation or your situation isn't like this, but mine is nothing remotely like it. To make a generalized statement that THIS IS T1D, isn't accurate because I and many people who have T1 aren't like this. This is just one person, whose situation, at least to me, seems extreme.
It is not. This is not very common but she has this syndrom (can't remember in english)- she can't feel the symptoms of hypoglycemia so she has severe hypoglycemia... which can lead to coma and death.
Matt Sezer agreed. I know people with type 1 and 2 and this is very dramatic. I'm glad it has little impact on your life and you can bring a different respective to it.
Agreed! A family member has T1 and she takes care of it herself. She was diagnosed young and as a teenager she changes her own pump, checks her levels, has never been in the hospital. She had a friend whose parents hovered on their diabetic child. When they went off college the kid had a terrible time taking care of their T1.
i wish you all the luck and long life.you are a great wonder as a person and a pretty girl.our love and good wishes for ever to you and family.you are truly a Grace to the world.
I can understand what you all go through ... My sister's diabetes is like Graces'. It is hard to control. She had it since age 25 and now she is 45 and mom of 10 year old twins. We have the same hope that you do ....
Before I go back to surgery they would check my blood sugar and when I spent the night in the hospital through out the night they would check my blood sugar
I do not have T-1, but I am hypoglycemic. Thankfully I've only had three major lows in the past 6 years. It's a terrifying experience each and every time!
While I know every type one diabetic is different, this case is not very representative of type one diabetics, and I say this as a type one diabetic. I think this is more of a case of overparenting and overmanagement of the disease- it really does not require extreme involvement to be healthy.
As a mother of a T1D daughter, who is 16 years old, I find this clip disturbing. There is something very wrong if 4 out of 5 of her friends have passed away. This is a certainly an extremely serious disease and with insulin and fast acting sugar being life support. But, there are so many tools for survival available. A GCM for one. This little gal has a pump, why not a CGM? The bionic pancreas will be released soon. JDRF is working tirelessly to make sure that patients survive as comfortably as possible until a cure is realized. The Viacyte implant is being tested right now, with the first 3 test patients implanted successfully. Within 3 to 5 years, options for T1D patients will improve. My daughter is my only child and I pray for a cure for her. I will be the first to say that T1D sucks. It sucks big time. But the way this video is edited, it does not show the many people that have lived long lives managing their diabetes. How about a video that shows medical advancements? How about making a video that gives T1D patients hope? Having this condition is depressing enough. Let's see what is being done to bring these patients a better quality of life.
She doesn't say 4 out of 5. Maybe they don't have insurance or money to live well. Besides I'm sure the point is clear. ---I'm sure you don't have a type1 diabetic child. It just doesn't seem relatable to you .. Right?
A CGM?? lol. Who is paying?? They are not so accurate. Most moms I know stop using the cheaper ones? Team girls already have multiple other issues. Other then a pump. Now you think she should put that pain full thing on??? Holy crap!! Be nice! Empathy!! Empathy!!
Something I've been wondering. Is there not a way to connect a continuous blood glucose monitor to a port or something so that it could give you a warning when glucose spikes or plummets? That may not be possible or practical. I was just wondering. It seems I read that Google had a contact lens that could continuously monitor glucose in tears. Maybe that's not available yet?
If she is very high or low, she literally won’t be able to wake up. Someone needs to check on her in case she has fallen fully unconscious in her sleep.
She didn't really have to bring out ALL her supplies.....one test strip would have sufficed. Yes ppl ask dumb questions like diabetics can never eat sugar, and such.....ppl always freak out when diabetics are eating cake or cookies. Its almost laughable
you look into getting a DEXCOMG5CGM with the SHARE app so your parents can check your blood sugar 24/7 without finger sticks all viewable on your phone
Things are possibly going to become easier for this cute girl and her family. Sounds like there is something new (an artificial pancreas) in development! The management of this condition looks like a hassle. But, it is manageable. My friend's dad had this. Every few hours his mom swooped in with a syringe and swab and gave him a quick shot. It was as if she were giving him a kiss on the cheek, only it was a nudge with a syringe on the arm. It was so quick. Way easier than, say, lighting up a cigarette and smoking the entire thing, to slightly alter the chemistry of the body. The cost of having a chronic condition is a problem. Hopefully these supplies are not extremely expensive.
Way easier than smoking dude what???? U miss an injection and u risk damage to ur organs (usually eyes first) and screwing up the rest of ur day because ur now high and feel like absoitly garbage and ur body doesn't even have the energy supply to do anyhting. Like imagine ur driving and u need to get gas but instead u don't and u run out of gas now u have to either walk to a gas station getl gas and walk back then hope ur car.starts or wsit for someone to bring u gas, but this is an hourly occurrence because ur cars gas meter is broken (ovbiosuly not the exact same but as a t1 diabetic I feel that hopefully gets my point across)
I'm not happy with this clip at all. WTH?? Why wouldn't she have a CGM? Save the trouble of getting up 3 times in the night. 4 out of 5 friends dying too? That is terrible. Are there no knowledgeable endocrinologists in their area? Who pulls out an entire month of diabetic supplies for a quick site change? What exactly is the purpose of this little documentary anyway? Yes diabetes is a difficult disease, it sucks. I've had it 44 years. I know. I've also had 2 heathy children who are now in college and I married a Marine who often was deployed. The disease is VERY manageable!! I also know a film like this would have made me want to give up. I don't mean to go off on a tangent here but this is the worst thing on diabetes I have ever seen. I was raised to believe I could do ANYTHING and that diabetes would never get in my way. EVER. The only thing I couldn't do was join the military and perhaps be an astronaut. This girl is obviously brittle, but there is hope. Something I didn't see or hear at all in this piece. Shame on you for posting this. Does Mom plan to go to college with her too? A CGM would be a great solution here.
why the judgement Lisa Long? the doc is showing the life of a typical T1D kid and her parents fears. It's real. the doc is an education for those that don't understand the disease (or as she says thinks it's like Type 2). She might not have a CGM but her parents have a dog for her. honestly, as a diabetic yourself, seems you would have a little more compassion.
This is not true I am a type one diabetic of 10 years and I feel as if 90% of this is over dramatic, but just my opinion. In 10 years I have never gone that low(hypoglycemic) and most diabetics will never need a glucagon.
Are you still there ...single....?i will marry you in less than a heartbeat ...i am also diabetic....your age...it’s not so bad....I mean...I can do everything n everything......that no one else can do ....no problem boss ....it’s just me myself and I
I never new how dangerous type I diabetis was. This is so horrifying. The dog is really amazing (the whole family is, actually).
I was diagnosed at 7 and I'm 24 now. It came out of nowhere. My mom thought that I had pink eye (my eyes were bloodshot). When the doctor saw me all he had to do was smell my breath and he knew what was wrong. I was immediately taken to the hospital. My blood glucose was over 900.
It was terrifying for my mom. I had to grow up very quickly after I was diagnosed.
But even with all the scariness of it all, type 1 is manageable. I live by myself, go out with friends,exercise, and work. It's possible to have a normal lifestyle with Type 1 as long as you manage it correctly.I won't lie, It is scary to think that I could go to sleep and not wake up. All I can do is check my blood glucose regularly, take insulin when I need it, check my infusion sites, and just be very aware of how I am feeling physically.
Hopefully in time Grace's diabetes will be in better control and she can venture out on her own.I don't mean this in a mean way ,but she can't let her parents manage her disease for her indefinitely. She needs to learn early on how to manage her disease in order for her to live her life to the fullest.
Acknowledge the fact that you have a disease and that it can take your life if you don't manage it ,but don't let it dictate the things you can or cannot do. You can do anything you want, it just takes a bit more planning.
Totally off the topic of her diabetes, but I appreciate how many clips in this documentary are focused on the cat. If you have to have filler footage... might as well film the cat.
Thank You !
One of the strongest mother's I've seen. God will bless you
I loved this min-documentary. I've been type 1 for 21 years, I can remember doctors telling my parents that a cure was right around the corner when I was a kid... I really hope that it comes one day but in the meantime we've got to live with this and through this.
Extremely saddening and informative at the same time. My prayers go out to her and her family .
I'm a T1 and I've never even heard of a 'Diabetic Alert Dog',. that dogs amazing!
They do exist and in most cases insurance covers them. They can smell your breathe and detect high and low sugars
Man I cant even begin to imagine what her mom is going through.To be always on edge like this all day everyday.Not to mention the cost.The things we do for the ones we love .I really wish them both the best in life.
As a dad, fulltime single dad, of a child with t1d, this made my tear canals working. I sleep uncomfortable on a couch so I can check on my daughter on daily and I do-it every 2 hours to be sure. Then you have people ask you, " but why you look so tired" ?
What about a continuous glucose monitor?
@@roscopico cgms aren’t always possible. They’re expensive, some doctors may not want to prescribe them, your hospital might not even have the training to provide a cgm. Some people might not want to take on the effort. They might not even have cgms in their country.
No one's commenting on the kick butt picture frame table? Oh ok...
-Was just about to when I I saw your comment. It’s Very cool! I love how casually she dropped it down and plunked her mug on it. 😃
Thank you so much for sharing. Grace is a very lucky girl to have such "strong and loving" parents.
I've read many comments stating that this documentary doesn't reflect the life of the average type 1 diabetic, and many more claiming that those who are trying to explain why this is not representative are invalidating the experience of this girl, this family, other diabetics who suffer; and that even if the documentary is not disclosing the rarity of the girl's condition, it's still raising awareness and not doing any harm.
As a type 1 diabetic who went through hospitalization a couple of years ago because when I was first diagnosed no one bothered to explain to me things as they actually were, I have to say this: imagine that you have just been diagnosed with type 1 diabetes and you're already pretty bummed because it is a life changing disease and at first the adjustment you have to make to your daily life seem overwhelming; you do some internet research, because that is what people do, and you stumble into this; no one tells you, in the documentary, that this is not typical; you'll probably feel like you've been lied to by your doctor, who painted a pretty different image of the disease, and that sense of impotence that you already felt might take hold of yourself completely.
I have the luxury of living in a country that considers the health of its citizens paramount, and so provides completely free healthcare to people with lifelong diseases; so I will not pretend to understand what it's like, not knowing if you will be able to get your life saving medicine or devices on a regular basis.
But if any newly diagnosed diabetics are reading this, please know this: I don't need a dog to tell me when my sugar is high or low, and I don't need to check my blood sugar constantly, because IN MOST CASES your body is able to tell you if something is wrong. I've traveled alone and with friends, I have a degree and a job I really like, and though of course I had to make adjustments to my lifestyle, those adjustments quickly became ordinary routines, even though I could not believe that at first.
Take care of yourself and be safe, but also be knowledgeable.
Dude u dont check ur levels???!! I did that for years and was fine but a1c was usuallt around 9, then one day I woke up screaming covered in sweat and couldn't move any of my limbs, I couldn't call anyone for help bevauseni lost all control of my muscles, I managed to roll off my bed and drag myself (like a snail) down the hall and knock a drink off a counter and drink it all while have lost 95% of my mobility, at first I thought I was having a stroke but turns out my blood sugar was dangerously low and I just barley risked a coma.. ever since then I've had dexcom to monitor it but seriosuly don't make the same mistake I made im lucky yhere wad a drink I could get , the ones in my room were in a drawer I couldn't open and I couldn't even use my hands to call for help and none of my neighbors called for help, i would love to know what ur a1c is tho? Chances r ur usually closer to high than the range ur suppose to be
Beautiful documentary. Kudos to the filmmaker. I especially appreciated the quiet footage, with little or no narration. It is so rare in modern filmmaking. 👏👏👏
How could anyone dislike this??! I didn't even read the "nonsense" replies, but I found this super helpful! Maybe in a "perfect" world "all" type 1 diabetics have access to the meds they need, but we know that's not true! Each day is a struggle and as we complete another day...we live to fight another one :) I had a stroke a year ago due to type 1 diabetes and believe me I'm extremely grateful to still be here!
Poor girl :( I had two kids in my school with this, they managed it really well but it was clearly really hard for them.. they're both at uni now, living away from home and doing really well, I hope this girl is able to experience that too
What a brave and amazing family. Very artistically and emotionally presented piece.
That’s a hard life for a family to live. Thank goodness for her dog and medical care and parents that care for her.
Being type one diabetic is different for everyone. What they don’t show is so much. Like the many health issues that can go along/come from/or complicate diabetes, or battles with insurance. I’m 16 and starting to worry about college but I also have to worry about a career that can support my type one diabetes.
Wow, this video was very moving. I did not know how many children suffer from childhood diabetes. Thank you for making it.
wow the dedication of a mom! Indisputable.
You are great parents she is very lucky to have your support i understand the nights & early mornings are the worst hopefully they will find a way to help type 1 diabetics i had never heard of a dog being able to sense when she is low
What a lovely last sentence. I wish them all the best.
We love you Grace.
the daughter of my friend died of Type-1 related causes last month. she was only 15 years old. Type-1 is terrible.
God Bless this family!
This is why I am a subscriber to this channel, YOU ROCK NYT
Thanks for showing it. It's short, but very informative.
It's good to see that there is such a strong support system at home. I'm hoping that this will awaken family members and friends of other T1's.
I see a lot of fellow T1 diabetics here giving their own experiences of the disease. I agree, for a lot of t1d's life barely changed. Diabetes didn't effect their routines that much and they've been able to achieve normal lives.
But I'm a T1 diabetic too. I was diagnosed when I was 10. My life is just like this girls and I know a lot of other T1 diabetics who live the same. It's not obsessive, it's our diabetes is so hard to control. People don't understand that T1 diabetes is such an individual disease.
I also have friends who have never experienced a low blood sugar, and rarely go high. His diabetes barely annoys him. Meanwhile, I'm having a countless low blood sugars right beside him.
Diabetes T1, when it is rarely shown in media is often portrayed as simple and easy. A blood stick here, a shot there and you're all good to go. I think we deserve to have our efforts acknowledged. How hard it can be to live with such an invisible disease. It doesn't mean I can't live my life, have a degree, work in a company. It just means I had to work harder than everyone else to be there.
How is this disturbing? They never said it was 4 out of 5 of her friends. There are people who go to diabetes camp and know hundreds of other diabetics and it is very likely that 4 of them could die. Also, some people may not be able to afford a CGM and I know when I was younger my parents did this exact same thing for me. This video was not made specifically for people with T1D but for the people that don't realize how depressing it is and all the things that go wrong and even the fact that you can die from T1D. I'm confused why anyone is criticizing this little documentary considering is does portray some people's lives very well which is what we want considering no one seems to understand what T1D is. The video you just called disturbing is someones life.
Rachel Hinkle Yes, at 10:15 of the video, the mom tells about 4 of her daughter's friends passing away from diabetes - 3 in the night and one in the morning. Check it out.
really beautiful piece.
I am so very very thankful for Germany's health system. You get anything that's helpful to you with minimal costs. A friend and I are actually tracking the blood sugar over an app on smartphone and smartwatch. If it runs low you automatically get an alarm. Basically you live a very normal life
this is a great video , bravo!
A D alert dog is a wiser decision than a CGM given the precarious nature of insurance coverage for those of us who are not members of the predator class. I survive this condition, T1, through monitoring and pay out of pocket to see an endocrinologist. She is worth every cent but costs more than I pay for rent. I wholeheartedly support this woman's right to speak about the full experience she has, and it wholeheartedly support her right to differ from my experience. All T1 represent this condition as a whole when commenting on videos like this. The vindictive commentary is a disgrace. To those who are so very hateful, face your negative emotions and stop preying on others. Not everyone has your money or access to resources. Not everyone has your body. Before you maliciously attack others for having an incorrect attitude, reflect on the words and the attitude you are using to correct them. T1 33 years. New parents of T1, and new T1, you have the right to a full range of emotion. Deny your anger, frustration, and fear, and you will end up like the people who despise anyone who is honest,some so uncomfortable with themselves that they reject these feelings by abusing others online. There is no similar behavior in other communities because there is more emotional intelligence and unity in other communities. Here, there is a broad range of privilege and need. And stunning ignorance.
I'm reading the comments and no one understands or heard that her mom just said she doesn't have a pancreas. That's why it's so severe in her case.
Pancreas=Diabetes, type 1: The body’s immune system attacks and destroys the pancreas’ insulin-producing cells. Lifelong insulin injections are required to control blood sugar
Also not every disease is the same for everyone. Just like when I have a cold and my brother has a cold. He'll end up with a nose bleed from blowing his nose and I'll be over here with a migraine from the fever but we both have a cold.
Sabrina Marie - exactly! I have a different rare disease, CRPS type II, which is an extremely painful, degenerative neurological disorder. CRPS is caused by trauma and for some patients, it can be triggered by a stubbed toe (which falls under type I) and for some patients, it’s a shattered hip and massive surgery (my case). And for some patients, it stays in a single limb for their entire life and they can work, go to school, have kids, etc. Then there are cases like mine that progress to the entire body and leave you wheelchair bound or even home bound.
It’s tough to explain to most people the extreme range of problems that can come with some diseases. They just can’t understand that it’s all the same disease in name but so very different in daily life.
There are quite a few Type 1 diabetics (like Mary Tyler Moore and Halle Berry) who didn't seem to go through this much. But while everyone's illness and symptoms are different, the ones shown in this video seem especially severe.
There are many jokes about those 2- I don't know the truth about their illness. But I have been to many camps with my child. N no miracles anywhere. This video is not candy coated. Sorry. Just truth.
Halle berry had type 2 which can be cured, Mary Tyler Moore was severely effected by her t1d and died of diabetic complicatioms from pneumonia... the thing with t1s is.. they arent focal about how absoutly horrible the disease is because the drs always go "yea yea its easy to manage" so when you realize how much it sucks (few months sometimes few years) you're not gonna complain bevause everyone has been syaikg how easy it is so obviously if u don't find it easy it's ur fault? Which obviously it isn't but u see what I'm saying? Ppl don't take the disease serioauly, imagine the mental toll of constantly monitoring ur blood sugars thst are effected by not only food but everything that goes on and how u could go to sleep and just die at any point? It's exhausting and hard for all t1s
That is an amazing dog.
*I felt bad for the other dog; she should've given her a treat too! So mean!*
Thank u so much for this story. My heart goes out to grace and the family. I do have one question tho, if anyone kbows pleaee answer. How is the service dog able to detect when her levels are off or dropping? Ive always wondered that, or how is the dog able to detect an oncoming seizure? Thx
its simple he smell it really like tnt or drugs its just conditional training . cuase the sweat is changing and the dog notice that .
Bjoern Drewes oh okay....thx....its still interesting to me. Animals are pretty smart
If your sugar is much too high it starts to smell so intensively that even humans can smell it (its a quite disgusting smell, like aceton (or nail polish remover)), i guess the dog smells it way earlier :)
Like they said, diabetic alert dogs work off of scent.
Seizure alert dogs, however- they have no clue. Seriously. And not all dogs can alert to all people. Programs that work with seizure alert dogs train them to be canine good citizens (CGC certification can be gained by any dog, though it is a lot of work for the average person) and they cover the basics of regular service dogs, like retrieval. Then when the dogs are paired up to a human, they hope for the best and have plans in place to swap dogs if needed.
Love ya Grace!
Why doesn't she have a cgm? (continuous glucose monitor)
Bella Daylight they are pretty expensive, not everyone can afford them
God the american health system sucks. I am sorry for everyone who is severely ill there. :(
They don't work very well you have to calibrate them every few hours by testing your blood sugar so I think they're pointless (I'm a type 1 diabetic)
@@cashcurtis look up the freestyle libre or the dexcom G6, there is no calibration needed for them.
I didn't know that, thanks
You guys should look into a Dexcom G6 it had saved my life so many times. I have hypo unawareness ( I have type one diabetes) and it alerts me when I go low. In fact just last night I was 44 going straight down and it alerted me. I had no idea I was low.
Such a good representation of the terror of type 1 diabetes.
Loyal dog loyal mom
For those of you who say CGM, etc, those are grossly inaccurate, as well. I have a pump, and a CGM, and more often than not my CGM is vastly different than my actual BG readings. I have better success waking up frequently checking than rely on that. Jus sayin, sit back and stop hating on this family for putting in their efforts.
Hey!! Been 7 years but if u gave up on cgm in that time, u shoild gwt it again dexcom is hella accurate and depending where u live is covered by the gov. I spent momths comparing blood readings to dexcom and to libre and dexcom was wrong once but was my fault cause I screwed up applying it , I found libre to be 30% wrong
I don't know nor will I pretend to know the specific circumstances of her diabetes (maybe her blood sugars are especially volatile), but as a type 1 diabetic her circumstances are NOT representative of me nor anybody I know. Watching this, I felt as if she had a different disease than me. The control that her parents kept seemed extreme to say the very least. Again, I'm not pretending I know everything; maybe her circumstances justified it; I don't know. However, while I'm not judging her, I am judging the filmmakers favoring the drama of the fact that she could die at any moment, over actually representing the reality that her circumstances are probably extreme and rare and/or her parents are overreacting. For people like me, the disease has very little impact on daily life. Just like people judging people with T1 like they have T2, I think it's important that peoples' only exposure to the disease not be an over-dramatized portrait of what seems to be an extreme case with possibly overprotective parents.
This is the most accurate real right up front portrayal. This is the grim reality. T1 is very rarely portrayed accurately this video is right there like it or not this is T1D.
*****
I'm not saying that her situation or your situation isn't like this, but mine is nothing remotely like it. To make a generalized statement that THIS IS T1D, isn't accurate because I and many people who have T1 aren't like this. This is just one person, whose situation, at least to me, seems extreme.
It is not. This is not very common but she has this syndrom (can't remember in english)- she can't feel the symptoms of hypoglycemia so she has severe hypoglycemia... which can lead to coma and death.
Matt Sezer agreed. I know people with type 1 and 2 and this is very dramatic. I'm glad it has little impact on your life and you can bring a different respective to it.
Agreed! A family member has T1 and she takes care of it herself. She was diagnosed young and as a teenager she changes her own pump, checks her levels, has never been in the hospital. She had a friend whose parents hovered on their diabetic child. When they went off college the kid had a terrible time taking care of their T1.
Prep wipes are the shiz! Love those things!
Crafty Cyborg
i wish you all the luck and long life.you are a great wonder as a person and a pretty girl.our love and good wishes for ever to you and family.you are truly a Grace to the world.
I can understand what you all go through ... My sister's diabetes is like Graces'. It is hard to control. She had it since age 25 and now she is 45 and mom of 10 year old twins. We have the same hope that you do ....
Why does she not have a CGMS? It would check her blood sugar every 5 minutes
What if she WANTS to go to college? Honestly at this point in our world it’s not even a choice
Before I go back to surgery they would check my blood sugar and when I spent the night in the hospital through out the night they would check my blood sugar
Weird fact Bret Michaels of poison is T1 since he was a child
I do not have T-1, but I am hypoglycemic. Thankfully I've only had three major lows in the past 6 years. It's a terrifying experience each and every time!
While I know every type one diabetic is different, this case is not very representative of type one diabetics, and I say this as a type one diabetic. I think this is more of a case of overparenting and overmanagement of the disease- it really does not require extreme involvement to be healthy.
As a mother of a T1D daughter, who is 16 years old, I find this clip disturbing. There is something very wrong if 4 out of 5 of her friends have passed away. This is a certainly an extremely serious disease and with insulin and fast acting sugar being life support. But, there are so many tools for survival available. A GCM for one. This little gal has a pump, why not a CGM? The bionic pancreas will be released soon. JDRF is working tirelessly to make sure that patients survive as comfortably as possible until a cure is realized. The Viacyte implant is being tested right now, with the first 3 test patients implanted successfully. Within 3 to 5 years, options for T1D patients will improve. My daughter is my only child and I pray for a cure for her. I will be the first to say that T1D sucks. It sucks big time. But the way this video is edited, it does not show the many people that have lived long lives managing their diabetes. How about a video that shows medical advancements? How about making a video that gives T1D patients hope? Having this condition is depressing enough. Let's see what is being done to bring these patients a better quality of life.
She doesn't say 4 out of 5. Maybe they don't have insurance or money to live well. Besides I'm sure the point is clear. ---I'm sure you don't have a type1 diabetic child. It just doesn't seem relatable to you .. Right?
A CGM?? lol. Who is paying?? They are not so accurate. Most moms I know stop using the cheaper ones? Team girls already have multiple other issues. Other then a pump. Now you think she should put that pain full thing on??? Holy crap!! Be nice! Empathy!! Empathy!!
Teen*
3-5 years. What is this lady talking about. They have been saying that for years. Bdbdhdjdj!!! Go for some more walks. Ugh.
And no 4 friends passing. Is not a lot. Considering. She may know a lot from going to camps. !? Diabetic parent?
hi grace
Something I've been wondering. Is there not a way to connect a continuous blood glucose monitor to a port or something so that it could give you a warning when glucose spikes or plummets? That may not be possible or practical. I was just wondering. It seems I read that Google had a contact lens that could continuously monitor glucose in tears. Maybe that's not available yet?
No there isn't.
Aside from warnings, sometimes a person in a hypoglycemic condition requires assistance if they become disoriented, which is not uncommon.
You'd think she'd be old enough to check herself at night...
As you see she sleeps through it... they probably don't want to disturb her sleep for school.
If she is very high or low, she literally won’t be able to wake up. Someone needs to check on her in case she has fallen fully unconscious in her sleep.
I have novolog flexpen
She didn't really have to bring out ALL her supplies.....one test strip would have sufficed. Yes ppl ask dumb questions like diabetics can never eat sugar, and such.....ppl always freak out when diabetics are eating cake or cookies. Its almost laughable
They need to do a better story everybody doesn't have this experience
you look into getting a DEXCOMG5CGM with the SHARE app so your parents can check your blood sugar 24/7 without finger sticks all viewable on your phone
You're not teaching her independence. If anything you're imprinting your neurosis on her.
look at dexcom.com a true life savor
Things are possibly going to become easier for this cute girl and her family. Sounds like there is something new (an artificial pancreas) in development! The management of this condition looks like a hassle. But, it is manageable. My friend's dad had this. Every few hours his mom swooped in with a syringe and swab and gave him a quick shot. It was as if she were giving him a kiss on the cheek, only it was a nudge with a syringe on the arm. It was so quick. Way easier than, say, lighting up a cigarette and smoking the entire thing, to slightly alter the chemistry of the body. The cost of having a chronic condition is a problem. Hopefully these supplies are not extremely expensive.
Way easier than smoking dude what???? U miss an injection and u risk damage to ur organs (usually eyes first) and screwing up the rest of ur day because ur now high and feel like absoitly garbage and ur body doesn't even have the energy supply to do anyhting. Like imagine ur driving and u need to get gas but instead u don't and u run out of gas now u have to either walk to a gas station getl gas and walk back then hope ur car.starts or wsit for someone to bring u gas, but this is an hourly occurrence because ur cars gas meter is broken (ovbiosuly not the exact same but as a t1 diabetic I feel that hopefully gets my point across)
Omg this is way over dramatized
Diabetes life ami right dudes
Also shots are worse btw
I'm not happy with this clip at all. WTH?? Why wouldn't she have a CGM? Save the trouble of getting up 3 times in the night. 4 out of 5 friends dying too? That is terrible. Are there no knowledgeable endocrinologists in their area? Who pulls out an entire month of diabetic supplies for a quick site change? What exactly is the purpose of this little documentary anyway? Yes diabetes is a difficult disease, it sucks. I've had it 44 years. I know. I've also had 2 heathy children who are now in college and I married a Marine who often was deployed. The disease is VERY manageable!! I also know a film like this would have made me want to give up. I don't mean to go off on a tangent here but this is the worst thing on diabetes I have ever seen. I was raised to believe I could do ANYTHING and that diabetes would never get in my way. EVER. The only thing I couldn't do was join the military and perhaps be an astronaut. This girl is obviously brittle, but there is hope. Something I didn't see or hear at all in this piece. Shame on you for posting this. Does Mom plan to go to college with her too? A CGM would be a great solution here.
Not 4 out of 5, just 4. ;). Still weird though...
ya, but did you have type 1 D?? apparently not.. and the way you went loose in this comment, your type 2 probably has taken a toll on you!
Actually the very last thing the mom says is, "There really is hope"
me and international space station history,facebook my account-chanhit, freedom usa [usa constitution], global warming
why the judgement Lisa Long? the doc is showing the life of a typical T1D kid and her parents fears. It's real. the doc is an education for those that don't understand the disease (or as she says thinks it's like Type 2). She might not have a CGM but her parents have a dog for her. honestly, as a diabetic yourself, seems you would have a little more compassion.
This is not true I am a type one diabetic of 10 years and I feel as if 90% of this is over dramatic, but just my opinion. In 10 years I have never gone that low(hypoglycemic) and most diabetics will never need a glucagon.
Are you still there ...single....?i will marry you in less than a heartbeat ...i am also diabetic....your age...it’s not so bad....I mean...I can do everything n everything......that no one else can do ....no problem boss ....it’s just me myself and I