A little bit about how Cerebral Palsy affects my life
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- Опубліковано 9 вер 2024
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Facebook: Jake Olver
Twitter: / jake_olver
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This video is kinda short (compared to my previous videos) because I didn't really have much to say. But these are just a few ways that CP affects me. Because of CP, I am nearsighted and my leg muscles are very tight. There is a little bit of CP in my hands but it doesn't really make a difference and you would never be able to tell. I have a pretty gnarly startle reflex and my hands will sometimes shake but you would only notice if I were nervous. Keep up the comments, suggestions, and questions, as I never get tired of hearing from you guys! Let me know how you're doing! I still plan on doing more Q & A stuff so keep sending me your questions, CP related or not, doesn't matter, I'll still try my absolute best to give you the answers!
I have CP, too. Totally can relate with the startle reflex. I hate it when people tell me 'Don't get scare'.
as a 47 year old man with almost exactly the same issues with my CP as yours, I've found that stretching really helps a lot as well as good nutrition and all the exercise you can get in however you do it make it yours bro, god be with you! you have a great attitude..hold onto that no matter what!!
Thank you Laura, it makes me smile knowing that these videos have helped you and I'm glad that you're not sad anymore. Thanks again for leaving such a nice comment, have a wonderful day!
Ok
It is not boring. Some CP teens cannot communicate how they are feeling and what hurts. This was very helpful. Do you eyes ever water like you are having allergies.
Thanks for sharing your video. I have CP myself, too. I think it's great to know about more people who are just like me. But mine is considered mild, and is different from yours. But all in all, I really enjoyed this video. Living with CP really can be a struggle, and it sucks. Learning to accept yourself, is probably one of the hardest things anyone with CP can do.
Hannah TheWriter I have cp
I have cp also
I do too a mild form as well but just on my left side
I have cp
I have cp as well
It's good to see that people with CP are sharing they're story's. I have CP, fortunately it's mild. Yeah, it is hard at times and people won't know what it like unless they are you. But, don't let that stop you! Anything is possible, if you try. Some of the biggest heroes have different forms of CP, but they didn't let that stop them. 👍🏻💪🏻
I have cerebral palsy in my legs and I'm happy to hear I'm not the only person that I have spastic cerebral palsy it gets difficult sometimes but I've learned that it's not about what people think they know when they really have no idea how hard it is having this disabilities
Take a little magnesium citrate powder every day to help you with the muscle cramps. Every cell in your body loves magnesium and it is THE muscle relaxation mineral. Adding a bit of iodine daily can also help relax your nervous system as well. I am certified in nutrition from Cornell University and my little boy has CP. God bless you and heal you and keep you.
FYI everyone, seek a professional medic who you can meet and who belongs to a reputable institution for any advice on taking anything for medicinal purposes. Some people may think they're being kind, even if qualified, but never take medical advice from youtube, or any form of social media. Be aware of people who make bold claims, and suggest things like 'every cell in your body loves...' because they are patently exagerating from the get go, and people who exagerate in medical professional terms are known as liars, and dangerous ones too. Griff, in future, when offering advice, first suggest they find medical help locally, don't jump in with a shopping list of items that cant be easily vetted, no one should be making decisions that affect their bodies on the say so of unverifiable advice on social media, so don't do it, dont encourage it, and do a service to your profession by insisting on taking a professional route, leaving religion out of the picture too, its unprofessional.
@@2meroyn ✌
I have SDCP too, I use hand crutches to get around most of the time cause my balance kinda sucks 😅. Been feeling a bit down about it. The pain I'm in and the muscle spasms are a downer. And I recently had surgery. But I'm happy to find this video. Makes me feel less alone with this tweak. I don't get to see people that deal with the same things I do. So thank you so much for sharing 😊❤
Hi Jake. I'm from the UK and also have mild CP. with the jumpiness you are explaining, which I also used to be afraid of loud noises, it's funny cause my little brother takes advantage and scares me every day by making me jump. He finds it hilarious.
You are a Breath of fresh air in a polluted world. For ALL the people here that watched this tonight. Count your blessings as Jake does. You young man have touched many, many people today. Love, Health and happiness to you. Amazing and inspiring. Best wishes to you on your journey to beat this health issue. Johnny x
You are amazing for sharing your CP. My son is 2 years old and has mild Cerebral Palsy, and i was worried about his future. Watching your video has shown me that i know he will be fine and still be a pain lol. Thank you xx
Thanks for sharing Jake.
I also have mild spastic diplegia, I didn't realise that the startle reflex was part of cp - really good to find out! Thought it was just me! Although I haven't got over that fear of fireworks yet...
Hope you're still doing well.
I am 26 yr old mom of 3, with mild cerebral palsy. most people don't notice until they really watch me walk. I had a normal teen years. I have had pain though out the years as all CP people have. but the last 2 years my pain has increased. I never knew much about my cerebral palsy until recently. I have felt lately like my body has been fallen apart. my left knee (left is my good side lol) has a torn ligament. my right foot is z shaped. I try not to let it bother me. I grew up adjusting to life.
brandy 216 I love your positivity, and your determination! I just started my own channel and would love for you to check it out😍
Regan Brown I will do that! thank you!
Lukester Goldfish that is amazing! keep up the work, and you will be running in no time! so happy to hear that!!
I’m 67 and have CP! Some days are good others not so good! It’s awful but stay positive! You’re a young guy, keep working at it and never ever give up or feel sorry for yourself!
Hi Val. Nice to see senior CP ppl on here. Never talked to anyone else w it.
Bro I love your hair
Thank you so much for sharing such a private part of your life with us all! My 2 year old son was diagnosed with Moderate Spastic Diplegia CP a year ago. I'm always wondering whether he's in pain and how he's feeling just overall. I'm so glad to be able to imagine more accurately what he's feeling. I also would like to mention how happy it makes me to see your positivity, it makes me feel like my son can also be that happy and excited for life when he's your age! Don't ever lose it!
You've earned a new follower, can't wait to hear more about your journey!
Hi Jake! Thanks for your video. I have mild CP and I'm in my 50s. Keep your positive attitude...you're great! I'm still going strong and still have many things I want to do. I also have startle reflex so I'm not into loud noises. Keep educating people about CP. :)
I have mild CP in the Caribbean where people aren't aware.. I was bullied since I was a kid but now I'm kinda OK.. I shake and I'm a bit slow.. My left side is affected.. it's cool to know there's others like me cause most time idk where I stand
SmilexAwhilex I love your positivity, and your determination! I just started my own channel and would love for you to check it out😍
I feel you I do too have cerebral palsy on my left side and I spaz a lil and it does effect me cause this is one of my insecurities but I get threw it like you and I watch your videos for a lil inspiration thanks Jake olver
i have very mild CP too. My left arm cramps up. Thank you for sharing.
You could be a model! Thank you for sharing your story with everyone💛
Hi Jake, I am so glad I came across your channel. I am 41 and I have spastic Displegia Cp. Keep your head up and be who you are... CP Nation.. I am not sure why I just typed that. LOL It just came to me LOL
Priscilla Russell you're funny! LOL.I have a son that has spastic diplegia as well. do you have greater struggles now that you're this age?
Which type of CP is more common ? What percentage of the CP community walk without a wheelchair or crutches, or have clear speech ? I have several neurological conditions. DCD ADD Dyscalculia Auditory Processing Disorder.
As a teenager, Thank you so much for sharing about your CP. My 6 month old son is being looked at for CP and researching spastic diplasia is super scary. If he does have it it should be a milder form like yours. I keep coming back to this video and it gives me so much hope and comfort for my son. Again, THANK you for sharing, it's meant so much.
M Acres It depends. Any CP can be mild to sereve. It depends on the brain damage. I also have Spastic Diplegia and mine is why different from his.
Jake I'm an adult woman in my 50's. I have mild c.p. as well. I wanted to bring up something for you to look into for the spasms in your legs. I was given botox injections in my hamstrings prior to knee replacement surgery. It made a huge difference in my ability to walk and the painful tightening I get in my legs. Your spirit is infectious! I hope this helps you. My Doctor is wonderful. Look up Dr Joseph Dutkowski. He has a lot to do with the development of botox for c.p. patients.
Hi Jake :D just wanted to let you know that your videos really help me. We go through almost exactly all the same things (fatigue, spasticity, headaches/vision, reflex spasms, etc) and it's just really great to know that I'm not alone and someone else knows what I go through. I was a lot worse with stiffness and things like that when I was younger, and I would suggest daily stretching to help loosen your muscles a bit, and if you haven't already, I would also recommend getting orthotics/leg braces. They literally helped me so much and they made me feel like I could walk a lot straighter and I didn't get tired as soon. Let me know if you have any other methods for improving, I'd love to try them out :)
Found someone like me! :,) couldn't stop crying I have been teased my whole life and found out from my parents a year ago they told I was born with mild cp makes everything I've gone through so much sense
Hi Jake. you`re are a champion.
Thank you for your brilliant post, that I just came across by chance!!
My son Martin, has slight CP.
Looking at him, one wouldn`t know; but sadly, has his challenges, not unlike yourself.
He is 29 now, and is such a great fun bloke to be around. Always there to help out, no matter who it may be. He is totally independent, (has his own pad) cooks and takes care of himself; We catch up a couple of times a week over a coffee, sharing any news or views we may have. This post will get a positive mention for sure!!
I take my hat off to you Jake; for making a very interesting video; sharing a little of how your world revolves.
Good luck for the future mate !
Kindest regards to you and your family.
Brian. (NZ)
I’m 14 and I have mild cp I have it on my right side only and I’m actually very healthy and I’m doing pretty good but people don’t notice until they see me walk then they see Limp. I have no arm pain and no leg pain. Basically I just limp and I can’t control it
idk. My cp is the same way, i walk on my toes on my right side and i cant straighten out my knee but other than my right leg nothing else bothers me
I have very mild cp too and it's just great to know that people are in the same boat as me, thanks for making these videos
Your case of CP must be very mild. We cant even tell. You just look like the average, bright, young, healthy good looking guy..
Nik C hey friend we are normal☺️
You hit the nail on the head with this video I felt like you were describing my life !
hi i have cerebral palsy too, I'm 26 yrs old, I never had the opportunity to ask anyone else with cp anything concerning it but do you suffer from any emotional issues from it, like do you have unstable moods or do you ever get depressed?
Nice job, Jake. Appreciate the honesty. Rock on, dude!
Thank you for posting Jake. My son is being evaluated for the same kind of CP and having an understanding of CP and what is to come is very helpful. Thank you!
hes cute
I know right. And he knows The Beatles
Hi Jake! my name is Natalia and I have spastic diplegia too. I just wanted to tell you that i am incredibly grateful that you have the courage to put this out there and be in some way or another a support system. In all my life I hadn't had the opportunity to reach to someone else in the same position as I am and simply I hadn't had someone that relates to my day to day struggle. Thank you!
Natalia Luque your are so beautiful 😍 just wanted to let you know that. My name is Juan & I also have CP Spastic Diplegia.
Hi! Thanks for your video. I'm in my 40's and have mild cp-mostly affecting my left side. I have some chronic illnesses, too. I can't drive. I got a college degree in psychology, but I went much longer than 4 years.
I HAVE CP, AND I HAVE THE SAME KIND YOU DO,SO I UNDERSTAND
Thank you for sharing this awesome video, I have a very mild form of CP as well. It’s nice to see someone else who has it and understand the same difficulties and struggles you deal with. I’m very active as well, my CP only hinders me some when I’m active like you as well. I danced for about 17 years and that helped tremendously and it’s my passion as well. I know I’m super late in seeing this but I’m so glad I did!
I have a startle reflex that affects my whole body. People think I'm nervous but I'm not. Very annoying when people don't get that
thank you for the video, i have a mild case of cp as well same exact side effects as you
I have the same effects from cp, i use crutches for long distances. Its cool knowing someone out there understands life with spastic diplegia.
I have very mild cp too!
How mild is your CP ? Do you ever use a wheelchair or crutches ?
Haley Severn same I have a very mild form I just have a slight limp on my right leg that’s it
I have spastic diplegia and I'm knocked and I waddle one foot is outward. Whenever my achilles gets tight I'm stuck in excruciating pain. I trying to understand why my body is sensitive to heat and humidity cuz I have heat exhaustion and I wonder if anyone gas experienced it also. I have always had hip and back pain I'd hold my back or hip while walking sometime drag my foot.
Awesome video, I also have CP, it affects my entire right side of my body, I have to wear a huge right arm brace to avoid surgery, it sucks at my school people judge me almost everyday because I look and walk different. I'm sad almost everyday because of it
Mackenzie Zuk Don't let them get you down! They only judge you because they aren't you. In years to come, you could be the one that invents the cure to CP. and all those who judge you, who put you down will be ashamed for what they did! Don't listen to what they say. 👍🏻your the one that's stronger than them. 💪🏻
Mackenzie Zuk Don't let them get you down! They only judge you because they aren't you. In years to come, you could be the one that invents the cure to CP. and all those who judge you, who put you down will be ashamed for what they did! Don't listen to what they say. 👍🏻your the one that's stronger than them. 💪🏻
Mackenzie Zuk don't let them get to you. people are so cruel and inconsiderate! I am sorry to hear you're sad because of your cp and because people make fun of you. My son has spastic diplegia and I have to be strong for him. he's teased as well but he's more stronger than I. it's good that they are trying to prevent you from doing surgery by wearing the bra ce. just do you! and remember you're everything else thats great before cp! God bless my dear.
Mackenzie Zuk my sister has spastic diplegy and she had about 8 different operations on her legs that worked but her last one to move her knees down a bit fooled all the successful surgery’s up and now she can’t walk as much as she used to and now has to take her wheel chair if she goes anywhere that she’s going to be walking a lot but lately shes been getting fitted for braces which she hates because she had them before but she said at this point fuck it get them I’m thirty’s years old now and at this point idc why they dose with me so now she should be able to walk more
your a dead set legend bro! your inspiring man. keep up the great work.
Thanks for doing this video, it has helped me, to learn about cp. I am 47 years old, and was diagnosed with cp, when I was young.
Thank you so much for your videos. I just found out my daughter has Spastic Diplegic Cerebral Palsy and it's emotionally shaken me up a bit. And as a mother, I am in a deep search of any answers and hope for what's to come in my beautiful daughter's life. I want to be aware of all that I can do to support her through this challenging future she has ahead. Your videos have been informational as well as really insiring. You have no idea how much your positivity and great attitude has helped see this in a better light. So, thank you! My daughter is only 2 yrs old but, I figured I'd ask anyways.. any advice you'd have for how parents can help and be supportive? Thanks again!
Cecilia Dominguez Hi Cecilia, the best thing you can do as a parent is be supportive and encouraging just like you would with any other child! You will be utterly amazed at how your daughter will prove doctors wrong and grow to be strong in her own journey! Stay hopeful and encourage her in PT & any other activities! Make it fun and above all just keep loving on your daughter❤️ hope this helps
I found that my 20 months old boy is having mild spadtic diplegia
Thankx god he is having normal cognitive
I started him on extensive physiotherapy
Put on orthosis to correct his drop foot
Doing stretching and strengthening exercises at home by me several times aday
I heard about hperbaric ocygen so i will go for it
Nothing to loose
I wish he will walk soon with no aid
I wish ur daughter all the best and god bless her
@@jakeolver5380 "prove doctors wrong" as a PT studient that's sound very rude and ungratfull from somebody that is alive and indépendant due to modern medecine, Americans mindset is confusing to say the least.
Cecilia Day I have cp as well. Dr. told my parents I wouldn’t walk and I proved them wrong walked at the age of 4. I still remember my first steps and am 32. My parents always treated me like I had ni disability. Teachers tried putting me in Special Ed but I passed all the tests and they finally understood my disability was only physical. As I have gotten older I am facing problems with ny spine and will eventually need surgery. Try to keep your child from falling because that will take a toll over the years. Also PT is vital I wish I would have done more of it.
Thank you Jake for helping me understand CP.
I agree I have the same issues, walking too.. I can relate with all of the things you are saying.. I have mild CP
Hi I just watched a few of your videos and I have been down and stuff but I just want to say that you have helped me like how you have such a positive outlook and ensuring people not only me that happiness is a choice, I just hope you have a good day you deserve it. You're a great person
Thanks for sharing...I have C.P. as well and it's nice to know that someone has it in a similar way that I do. Typicality, people I know with C.P. have it worst and so I would feel bad to express how my C.P. affected me, but sometimes it really can be a struggles so really, thanks for sharing.
Stay blessed bro and take care
I have mild cp on my left side too :) it's nice to see others like me
hey dude, I met your friend dominique while in LA. She said you are a fan of the show. I am so honored. You are putting me to shame my friend all of your videos have way more views than Cerebral Conversations. Well my friend, you have made me a friend.
When I first got my contacts, I couldn't even get them in my eyes! My eyes kept closing when they saw my finger coming my eye but it also had to do with some hyperactive reflex thingy that was most likely CP related. Honestly it was so bad I thought I should just give up but I kept practicing and know its so easy I pretty much wear them everyday and have no trouble at all putting them on or taking them off it just takes a little while longer for people with CP to learn how to put on contacts
That's an awesome question dude! I'll have to think about that one! I'll try to incorporate the answer in my next video for sure
Great video. Very informative. Thank you for sharing.
Thanks for sharing! It was very interesting to hear your point of view!!! I hope you're doing well, hun!
Hey Katie thanks I'm glad you liked it! And I love the White Album too! It's so hard to choose my favorite song off the album because they're all great but I'd have to go with Helter Skelter! And I've let my CP get mess with my head every once in awhile too but it's not really happening as much nowadays! And it feels great knowing I've made new friends on here that have my back!
Thanks for the great video! Very aspiring! Keep up the good work!
your so good looking
*you’re
@@lucasm4299 Congratulations I’m dyslexic and now I feel embarrassed thank you ,,,That was sarcasm
I have a mild case of CP and I too walk with a limp. Thanks for sharing.
Hey Jake, Have you ever had the feeling that your CP was insignificant in a certain situation only to realize it was more significant than you first though.
Thanks for the video. My daughter is 2 and has spastic CP, so I am hoping to understand what she is going through better so I can help her out.
I just came across your channel. Good stuff. Keep sharing! You are doing important work.
earlybirdiesCP I love your positivity, and your determination! I just started my own channel and would love for you to check it out😍
Hey Jake I have the same type of CP... And I can relate to so many of your cp issues
I have the same issues with my CP.. Thanks for sharing.
Yeah but with just don't give up, it'll get easier over time with more practice! I've gotten so used to it I don't even think about it when I'm putting my contacts on.
Just saw Ur video love it, it's very inspirational nice hearing what your points of view are, my daughter has mild cp, she's only 5 nw so we're going through it, just wanted u know to I appreciate your videos keep it up
Love Ur jamaica shirt lol
Man I have spastic hemiplegia... so the whole left side of my body is screwed up. Most of the time I’m okay, but aging sucks. I’m 30 and have the back pains of a 60 year old.
Hey Jake! I found your video with any intention... I was typing "cerebral palsy" and randomly found you! I loved your video. And guess what? I have CP too! I'd love to say in touch with you and talk but I don't have twitter. Can we chat throw e-mail or other platform?
It's so nice to see people like us standing up and going out of the "cp zone of confort", you know? I think we need to talk more about it. Of course the acceptance and respect is getting better but i feel that we - as a community - has a lot more to gain and show the world.. Just my thoughts
I have CP and my brother, love the video. Thanks for sharing this video I have the same CP as you too but a little more mild
Hello Jake Oliver! just ran into your video, (Feb 24, 2021), and find it very interesting. You seem to be a rather strong individual. You seem to have a handle on dealing with life as you have to. As I guess that goes for most everyone. You never know what others are going through. But you, you are impressive, and a lot of that, in MHO, is you age, maturity, and your energy. This particular video is dated Aug, 2013. some eight (8) years ago. Oy vey. Please update us, (well, at least me), on what you are doing in 2021. I wish you the best that you can wrangle out of time in this life. Enjoy! Don.
Dude i have mild cp as well
So do I
I have the same CP I can totally relate to relate to your video thanks for posting
Thanks for the video. I have spastic quad CP and hydrocephalus. I'm in a powerchair. I'm 34 years old.
I too have CP mine is mild. Thank you for the video!! You are super encouraging!
I limp too...my friends always ask why I can't walk normal. Kind of frustrating..
Macayla andela gonzales same I just have a mild limp
Our son has CP signs sound similar it's crazy thanks for your information
this video gave me the answers why I have leg pains its my cp i didn't know that. though I have mild cp I get bad leg pains it sucks.
Right though. Them leg spasms aint no fuckin joke. The side effects man. But ay God gave us cerebral palsy for a reason. We souljahs fam. On everything. God bless you.
Thanks for sharing your story I have cp too my right side is affected its mid case
My little girl is 3 years old and doctor says hemiplagic cp in left leg. I am very worried. She walks but sometime stumble and fall. As cp is no more curable, what should i do?
I happen to have mild cerebral palsy too as well as epilepsy
God bless you! Thank you for making this video :)
My little boy has cp. Thank you For your videos. :)
Hey Jake! Thanks so much for sharing! :) This was great! Did you ever get OT?
I understand what you are saying I got cp I can walk a little bit as long as I am holding on to something.
HELLO, I have CP on my left side. I am interested in meeting adults who have this, so that we can help one another.Great video.
My name is Mohamed. Its not boring to me, but I have myself CP too. Thanks for your video.
Extremely good looking.
I have the same type of C.P. Your speech isn't affected at all though.
I have cp as well same as yours. I can totally relate to you. I get tired really quickly as well. After a long day of work I am exhausted. Lose my balance really easily and have fallen so many times. Now I have a lot of back problems herniated disks. Also I just found out I have a spinal deformity (flat back ) lack of curvature in the spine. I wonder if anyone else that has cp also has this condition. Would love to talk to you on direct message. Thanks for the video.
I have a son I’m trying to understand what he goes through. He says he gets cramps he is always tired eve though he works out. I feel hopeless because I don’t know how to help him. I know that people with CP use more energy then us. He tells me you don’t under I de with this every day. I tell him to push himself he says yes mom whatever.
Find a good PM&R physicians to help with cramps and symptoms, and dont be afraid of counceling if necessary. Concerning your worries, there is not much to understand, using his muscles requiere more energy just like people that have some type of disease, overweight, ect. just adapt his lifestyle for it, less school time, rest time during the afternoon. It can be caused by depression aswell. all the best
Skoualaf De Marksman Thank you. Yes I actually bought vitamin D and Magnesium it has been working fine he also has more energy now and sleeps good.
But I didn’t let that stop from doing most things
I have mild cerebral palsy effects my life like my mind go to fast and their times i think have twitch their time i useing restroom i do that and if we see each other we can talk
I have cp too. I have it on my right side and as of right now I'm having issues with my right hip. I have some of the issues that you are describing.
My boyfriend has ceberal palsy and he is going through the same thing you are and it is pretty hard for him to stand to
Thank you for making this video. How much water do you drink a day? Like the Beatles.
I'm 13 I have cp my name is h mine is mild , some teacher tried to put me in special classes I said I don't think that's the answer she was very supportive and took me out please don't be afraid to share your story disabilities or not
my name is cj