MY FAVORITE POTS THINGS | Postural Orthostatic Tachycardia Syndrome Must Haves | Dysautonomia
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- Опубліковано 4 чер 2024
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These are my postural orthostatic tachycardia syndrome (POTS) must have things!
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This video is sponsored by SaltStick. Thank you!
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Some product links are affiliate links which means if you buy something I may receive a small commission. However, I only share products I truly love!
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Products Mentioned:
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For more info on POTS:
POTS (Postural Orthostatic Tachycardia Syndrome)/ Dysautonomia: • LETS TALK ABOUT POTS! ...
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Having POTS and being a parent...makes you a superhero on my book...
Amen!!
Wow! Thank you so much . I’m one of the small percentage of POtS folks that are men. This thing has greatly impacted my life and I need help.
Thanks for this video, Dr's keep saying my issues are anxiety, NOPE! I'm 100% certain I'm dealing with POTS
Hi, I finally figured it out that I have Pots when I bought my Fitbit and I was able to see the differences to Heart beat in postural position ! I managed to persuade the doctor who referred me to cardiologist. The tilt table confirmed it.
@@RJCBosman my confirmation Is the symptoms every morning, I can feel my heart race and experience the Dizziness. Are you getting any relief?
You just described everything that’s been happening to me for the past 5 years, it’s just been missed by my doctors very emotional rn
Same.
I have a giant wedge pillow instead of an adjustable bed, and it’s awesome! It’s a great option if you’re looking to save $$
7:09 I think Apple Watch and possibly other smart watches do monitor your heart rate as well.
Omg the sunglasses! Is this why I tear up like a weirdo in the sun and when I go into darker places sometimes there’s like a slight lag in one else adjusting???
I wished there were videos out like this a few years ago...
PS... if you need a 'travel' adjustable bed, check at truck stops and they have like air bag things that go under truck mattresses. They are about $200 apiece.
This video has saved me Aimee! Just saw an immunologist about my P.O.T.S and MCAS and salt pills are going to be my go to
Compression socks make a world of difference for me
Same!
Great video thank you! I was just diagnosed with POTS and my doctor didn’t give me any beta blockers or anything so these tips are what I’m gonna be relying on
I been struggling with symptoms for a year and no one could find what was going on with me, I ended up in the ER for more than 20 times this year and had all kinds of doctors told me it was all in my head and I was just stressed/depressed. Yesterday I was finally diagnosed with POTS by my new PCP and even though I wish i didn’t have to go through this, I’m relieved I can now seek treatment and therapy to get better. This past months have been tremendously exhausting and emotionally draining. I was told there’s several types of POTS and more tests are required to find which type I have, I was referred to a specialized clinic and I’m looking forward to start a treatment and get better. Is the first video I watch about someone sharing their experience and it really gives me hope to keep fighting and get to much better place as right now feels like I’m only surviving due to all the symptoms. Even doing everyday simple things becomes almost impossible. I’m not sure what you have done as far as treatment but it clearly works. From now on I will start watching your content, people need to learn more tips and tricks about POTS, keep up the good work!
I like the new editing! Very engaging and fun. 😊 Also, you raise an excellent point on how we view spending on medical expenses vs. spending on simple or more natural solutions. Definitely something to helpful think about!
Right? We just pay medical bills no matter what they are... But we have a hard time to purchasing things that are home solutions.
I got a light cordless vacuum after watching your “how to get through a sick day with a toddler video”. Life changer my friend!
Yay! So happy for you! I can't talk about it enough. I LOOOOOVE my vacuum. I will never go back. I thought it would be a waste of money but it was worth every penny. It's made my life 100 times easier!
Hi Aimee please do a video on how to deal with pots and the symptoms before that time of the month if you can. My symptoms get much more severe the days before. Please help! Lol ❤️❤️❤️ or if anyone has any tips pls share! :)
Compression stocking of 15-20 or 40 mm hg would work, (do 100 reps of sit down and stand up, lay down and stand up, bending etc use compression stocks or you may feel dizzy vary pressure based on symptoms, this will create alternate neuron pathway in brain.
Great tips. Another thing that's been helping a lot is a tall folding stool. I use it when I cook or wash dishes in case I need to sit, also dyed my hair sitting in front of the bathroom sink!
Yes I use bar stool while cooking too. And have small stool in front of washing machine
For my heart rate, I switched to an Apple Watch after my last Fitbit broke. I went through 3 Fitbits in 2 years, compared to just one Apple Watch (Model 4) that still works like knew after 4+ years. And the Apple Watch can do Electrocardiograms (ECGs) so I can see my heart's electrical signal. PEACE OF MIND.
Good stuff❤️
I and my daughter have pots!! Ufta I'm try some!
I have pots too, I did the test he said it was borderline but he was treating it as pots, I go back to my heart doctor on the 24
What test?
@@MucaroBoricuaits called a tilt table test!
It would be awesome if you made a separate video with only the stuff that regular / average income people can afford. When most of us see stuff like a Dyson that we would literally never be able to afford in a million years, because pots makes holding down a job incredibly difficult and most of us aren’t lucky enough to have a partner or family to help out, then we tend to shut down and not be able to absorb the rest of the video. However, I felt the more practical suggestions at the end like sunglasses and a water bottle were helpful, and I think it would reach a lot of folks who might never be able to afford luxury items like a Dyson or special vitamins to see the more practical tips 😊
Anyone know how to deal with a sensitive tongue when having to eat more salt?
I don't do compression socks because well.. I can't wear them due to huge amounts of swelling randomly
I have a Eufy Robovac - total life saver, clean house no matter how bad my day is 😁
I haven't been diagnosed , I'm pretty sure I have it. What do I do
go to a cardiologist! talk about your symptoms and ask how you can get tested. some doctors diagnose by just symptoms and some do tests like a Holter monitor or a tilt table test. i’ve been diagnosed with pots for a while now and i went a while without being diagnosed too. just know your not alone and if you have any questions, feel free to ask!
❤️❤️❤️
Hi ive recently been diagnosed with pots and im struggling with it really bad you seem like you know alot about it :) is there any way we could talk?
Hi friend! :) I don't respond very well to all emails because it's difficult for me to keep up as my channel has grown. So i am going to start doing more live calls to talk to you. I occasionally do Q+A's live on UA-cam you can talk to me on (turn on the bell notification so you don't miss those) and plan to start doing private live calls for my email subscribers in the near future. (www.aimeeesther.com to join my email list). I do life coaching and do a free zoom consultation if you are interested in getting coached by me. I would love to help you if i can! :)
My daughter has been dealing with something for a few years now. And we can not get help. We just get told oh it's probably your period. Or drink more water. And she is prob the only one in my family that drinks water lol. And lots of it and power aide ECT. She has passed fully out once in the shower having a gnarly black eye. In the living room. Giving her a light concussion bc she hit the desk. She blanks out after running up the stairs ECT. Her eyes just go blank. And she goes pale and disoriented looking. Always dizzy. The urgent care did the easy short blood pressure test and swore she'd have pots if she got the table test. No one children hospital the heart Dr in town no one does the table test. The heart Dr we seen kept comparing my daughter to his and her period symptoms. Than told us don't u want to drive. (meaning if she was diagnosed she may not be able to). Like I was done after that. They tried making another apt and I said no thank you. And drove right to her primary care and demanded to go to children's. But they don't have the table either I guess. And she just felt let down after so we havnt went else where. And sees been dealing with the nonstop dizzy spells and so on.
I take meds to manage low BP!
Those of us with peripheral neuropathy can’t deal with the compression.
How often throughout the day do you take the salt pills? Once a day or multiple times a day?
depends. I listen to my body. I always take 2 with breakfast and then if I start to feel "POTSie" and dizzy then I will take another 1-2 later in the day too
compression socks are to tight and they hurt so I wear athletic arch support socks and breathable cool wicking fitness leggings or fitted jeggings
I can't have salt because of my high blood pressure
Your husband bought you a vacuum for a birthday present?
compression has to be to waist xx
I can't do compression to the waist but for some people it works really well!
The bed is so much cheaper from Amazon
Unfortunately... Im not a housewife. I'm a guy, working diagnosis of POTS. I need to think about a job that's going to work well with me, that's going to pay fir all this shit! 🤣
Do you work? :O
I don’t like salt!
Then you must like compression stocking of legs and waist