Also, the issue isn't even getting dizzy when standing up or having the heart race. It's the inability to exercise like regular people, or carry things upstairs, move furniture, and basic physical things normal people can do that are nearly impossible to do without getting dizzy and a heart rate of 180bpm
@Tara King I developed pots from covid. I've been on two different beta blockers and will start Ivabradine next week,. My heart goes out to anyone who is going through this.
@@neverseenblue11 I can relate to what you're going through, as I have POTS from my Ehlers Danlos syndrome. Beta blockers made me worse, but I've heard great things about Ivabradine. Hoping it helps you. Mestinon is what worked wonders at eliminating my POTS, and I saw a good video about it from this York Cardiology channel. I also take a small nightly dose of Clonidine, which increases blood volume by preventing blood pooling and also prevents adrenaline surges.
Beyond water and salt the best things that happened to me is 1) understanding that PoTS won't kill me 2) Accepting I'm never going to love being vertical but learning to ignore that 3) As long as my heart rate is being monitored and I increase exercise at a slow steady pace, there really isn't any limit to how far I can go. 4) Stop being afraid. Regardless of what my nervous system is trying to tell me, I'm not really dying.
I agree with this only to a certain extent. My symptoms sometimes become severe enough that accepting it won’t kill me isn’t helpful as far as allowing me to do more, and learning to ignore symptoms also isn’t useful. I think this is more useful on the days POTS is fairly mild.
how people get pots what's the cause bec all of the symptoms of pots I saw it with my daughter and she's struggling a lot Wen standing. I try the tilt test in the house and her heart rate is more than 140 Wen she stand but Wen sit it goes back to normal she's 8yrs old
I thank u so much for saying this I found that pots caused anxiety to rise and start the fear and then that only makes the heart feel worse meditating and understanding that it can’t kill me has helped me
I spent 10 years asking doctors why I feel like absolute garbage every morning when I wake up. No one could figure it out until my mom told me to ask my cardiologist if it might be POTS. If it wasn’t for her, I probably never would’ve gotten a diagnosis. Nothing’s helped me so far except for getting away from stress and hot weather.
I believe I have POTs as I've had suspected M.E/cfs for 15 years and just had a HSD and Fibro Diagnosis too. Just come back from holiday and I could barely sit in the sun, it's just too excruciating and makes me feel too faint!
I wish all doctors were like you. The fact that you write letters for your patients, speaks volumes. Thank you for your kindness towards patients. You are the definition of what a medical doctor should be.
Exercise, now that I'm able to do it, has been the BEST thing for my POTS. It seems to be regulating my heart rate. It doesn't spike as much over every little adrenaline surge. And increasing my circulation and blood volume via exercise has helped more blood get up to my brain giving me less pre-syncope symptoms and a lower heart rate overall. As long as I stay hydrated and avoid heat and alcohol, my POTS is very well controlled now. I can even shower standing up again!
@@eddie8489 Exercise lying down, 90 percent of exercises have a lying down variation. I have POTS too and im just starting Midodrine and im yet to find out if it will benefit me. I weightlift and do cardio lying down because exercising standing up is almost impossible when u have POTS, and dont even risk it cos losing consciousness while ur holding barbells or dumbbells is NOT safe.
@@jasperp.5357 did the medicine ever help?? And I have no clue on how to workout laying down let alone doing cardio & such. Did you happen to find videos on it ?
I felt more understood and heard watching this video than I have with any of my myriad doctors and specialists. My doctors now are compassionate, but incompetent, they have such a gross undereducation of PoTS and broader dysautonomia. Most resort immediately to pharmaceuticals and send us on our way to slip into disability. This video should be required viewing for the medical community.
Or, they send you to a psychiatrist, because you must be anxious and/or making it up. And, of course, the first thing they all push is SSRIs/SNRIs, even though I have told them they cause me to have syncope. I have never understood how they think that me living alone and fainting is a good idea. I recently went to yet another doctor looking for a diagnosis so I could get appropriate treatment. I was hoping if I went to a younger, female doctor, I wouldn't be screamed at or dismissed. She referred me to a therapist instead of hearing me. I went home and started self-management techniques (salt/electrolytes) for PoTS, and I was free of palpitations (which they have been telling me are panic attacks, even though they last for up to 12 hours every day) for the first time in decades. I'm looking forward to becoming more active after not being able to walk to the store without knocking over displays and having to lie down on the ground, soaked in sweat, on the way home. I wish I hadn't lost so many years, opportunities, and relationships to this disorder, but I have hope now that my quality of life will improve.
@@mattparker3349 I have not heard of one patient being cured of POTS in my reading. I don't hold it against doctors because like this good doctor here, it's lifetstyle mainly and that is the best of the best treatment available. There may be some inexperienced doctors who could certainly spend 15 minutes on this video and be as good as Sanjay Gupta. I wonder what fresh air would do instead of being inside 24/7. Since oxygen is what this is really lacking.
I am a male who has battled POTS for most of my life, due to being born with hypermobile type Ehlers Danlos syndrome. Thankfully Mestinon and a small nightly dose of Clonidine has treated my POTS really well, but I had decades of it going untreated which was very debilitating and unpleasant.
I find swimming very helpful. You are horizontal in the water and the water exerts some compression throughout the body. I always feel better when I swim & POTS does not bother me while I do it.
Going carnivore was a game changer. And prior, I had what anyone would consider a healthy diet prior; tons of organic veggies! But I do so much better without plant foods. So glad I discovered carnivore. Wish I knew about this sooner.
Hula Hooping has changed my life its my go to Therapy, I was bedridden immobile with terrible deconditioning and following all the necessary lifestyle changes I needed a movement for core strength and short intervals so I learnt at 44 & it's been the best thing and I may never have came across or thought it even possible until I read of someone with pots using it as Therapy and rehabilitation with sucess 🙌🙌
You are the best pots doctor in the world. I am born and raised in New York City, and no one here has ever treated me the way you speak of the way you treat your patients, and from New York to Florida I have seen countless cardiologists and having gone through a really bad Potts flare post having Covid now after having pots for 11 years and not needing any medication being able to get back to my athletic job, getting Covid sent me back eight years and I found your UA-cam during that time and you truly are a leader and pots. Thank you for being a doctor to all of us who don’t get the care we deserve and need.
I love this guy too, he has mentioned another of the world's leading POTS experts who is living in the US, Dr. Blair Grubb (in Toledo OH) My daughter has been under Dr. Grubb's care. Try to get in to see him (although I know wait times get very long)
@@mommyboboI live in Tecumseh Michigan, about 30 miles from Toledo Ohio. I've JUST now been seen at the Cleveland Clinic, under Dr. Rob Wilson, ANOTHER preeminent doctor in the POTS field. After finishing all the diagnostic testing there, I will try to be seen by Dr. Grubbs! Thank you for the information! As an out of state patient at the Clinic, it's hard to commute back and forth. They either try to get your PCP on board (I THINK? -good luck with mine 🙄) but, WHAT a coup to be seen by another POTS warrior doctor! Wishing you all the best on your journey... 🙏
@@paulareid7478 i hope you are able to see Dr Grubb. He is so very caring, but his wonderful compassion is one of the reasons it takes so long to get in to see him. He takes his time with his patients. Something that is rare these days!
Also repleting thiamine (B1) with a high dose thiamine protocol can help. Eating, sleeping and waking on a regular schedule and getting morning sun in your eyes upon waking. Carnivore diet as well….
What a wonderfully empathetic Dr, who clearly has a huge understanding of the syndrome, with useful input for many of us out there struggling with gaslighting, and misinformed ideas. Thank you Dr Gupta
What a lovely human being- it's so good to be reminded that there are Doctors out there who truly care, and just want to help/heal their patients. The information in this video is also superb: Hippocrates would have been proud methinks!! Thank you Doctor :)
My downside of POTS- constant thirst, hunger & fatigue (also getting dizzy, sick to my tummy, etc etc). The things that have helped me tremendously- 1. Saline Therapy (IVs) 2. Exercise (when I can do it) 3. Salt tablets 4. Trying to cut out carbs as much as possible 5. Gabapentin 6. Compression socks!
Hey girl! So cool to see a fellow spiritual divine feminine on here :) your comment gave me so much relief as I too have the exact same symptoms as you and I do all the same methods as you that have also helped me a lot! Praying for you and hope you’re healing well namaste 🙏🏼✨🤍😌
I’ve had these experiences since I was a child. No one listened to me, they thought I was being dramatic. It’s a relief to understand what my body is doing. I figured out years ago that when my heart trips into racing, I have to lie flat on my back.
I’ve never felt more seen/validated after watching this video and reading everyone’s comments. I’ve had a lot of these symptoms for about a decade but they’ve worsened in the last 2 years and have been absolutely debilitating for the past 6 months. My doctor recommended this video and I see a POTS specialist to confirm in a few weeks. It’s crazy how you eventually convince yourself it’s just you, it’s in your head, it’s because you’re not eating perfect. It was really amazing to hear that not only are my symptoms valid and real, so many others suffer with the same!
Thank you so much for addressing this issue. POTS has taken my life as I knew it away from me. One issue that I don't hear very much about is the extreme brain fog that can come from standing up. When I had my tilt table test done, the doc asked me how I felt after the table went upright, and I literally couldn't answer because I was so confused. It's a huge problem for me. Yes, dizziness is unpleasant but not being able to think when you are standing up or even sitting up is a very difficult life situation to navigate. I also get Raynauds in my feet and hands. I take Adderall for brain fog and extreme fatigue even though it increases my heart rate. There are no easy answers.
I feel this in my soul. The brain fog was always just as debilitating for me as the more physical symptoms like dizziness and fatigue. It was so maddening and upsetting to go from really good grades at school to struggling to even read a single page as I just couldn't concentrate.
My POTS, Raynaud's and ADHD symptoms were resolved with ultra-high doses of injected methylcobalamin. Those symptoms turned out to all be related to my body not absorbing B12 properly. I suffered for years and saw so many doctors who never suggested B12 to me. I only discovered this solution because I was eventually diagnosed with pernicious anemia and chronic mycotoxin exposure, which can alter the metabolism of B12 in the body.
POTs is a nightmare. I’ve had it my entire life and was officially diagnosed in my early teens. I have a relatively severe case and I don’t think being 6’6 with long limbs helps at all. I’m currently in my third major flare up and it’s my first as an adult. Unfortunately, I’ve learned that it can be completely debilitating no matter what you do to take care of yourself. While it’s important to be mindful of the condition and make healthy choices, it can still flare up regardless. It’s equally important to not blame yourself for feeling terrible, given you’ve been responsible with your health and not done anything to aggravate the condition. For some reason,the physical sickness is accompanied by a lot of guilt, shame and stress from not being able to do normal things and having to adapt your lifestyle to those limitations. However, accepting your limitations and sticking to them firmly when recovering is the healthiest thing you can do for yourself. In my personal experience, sometimes it just takes time for the body to adjust itself back to normalcy. I really hope POTs is demystified soon and understood better by the medical field. It’s truly a life altering illness. I’m wishing the absolute best for others who suffer, you’re not alone
I began taking 350 mg b1 in Benfotiamine as well as walking 40 mins per day. 20 mins at a time. Also talking electrolytes. Also raw fruits & veggies. All have helped so much. If I eat any processed food or processed sugars, I go back to feeling bad.
Thank you so much for this!! I just got diagnosed with Pots after over 10 years of searching. I appreciate the work that you are doing so much. You are right on as far as how we feel! So validating and encouraging to be believed.
Thank you... I had no idea something like could even happen. I'm now mostly bedridden, unable to be up for very long or look at techie most of the time. I've lost my job and I thought this was it. Finally got a diagnosis by a Physiotherapist dealing with Long Covid. Thank you for sharing this information with us! It's given me something I can work towards. All the best to all of you going through this ❤️
I got diagnosed for POTS after i took the bloody vaccine. I had palpitations immediately after taking the shot and continued on and off for a month, ekg, echo troponin and what not. Then finally one cardiologist said its POTS. My life has never been the same.
Wow sorry to hear that. My niece seems to also has POTS symptoms butnis awaiting diagnosis. How are you feeling now? With her we are also suspecting its after the vaccine. Her issues started 3 days after getting the shot. How are you managing now?? All the very best!!
Same here but I don't yet have a diagnosis. Haven't been able to work or live well for nearly 15 months. Doctors think it's in my head. I have nerve pain and fasciculations too. Trying again with GP next week showing them a 10 minute stand test. Wish me luck! 🤞
Thank you so much for this! Wonderful that there ARE medical professionals out there who believe in, empathise with and most importantly support their patients! ☺
@@donnawilliamson277 they are a needle in a haystack in the u.s. A country where people with medical degrees are a dime a dozen but 95% are not educated, skilled nor true professionals.
Hi Dr. Gupta, It just ‘goes to show’ how some doctors really do listen to what their patients are saying to them. And trying to help them understand better and cope with their debilitating conditions, no matter how difficult it maybe, is a bonus. Good on you, all the best.
You seem to be such a kind and empathetic doctor! I wish I could find a doctor like you in Belgium. Thank you for this video to help us dealing with POTS.
Thank you so much for these videos it has been so helpful, I had COVID in Aug 21 and was making a slow recovery but then in Feb 22 I started to feel worse again and then I couldn’t get out of bed without my HR elevating, feeling dizziness , nausea, pins and needles, breathless and extreme need to sit or lay down, my Dr said they are hearing of a lot of POTS symptoms following COVID and so I am learning about it while I wait on a referral to a cardiologist for an official diagnosis and treatment.
Have zero expectations out of amERRORican doctors. They are worthless. I have the same issues as you and I have bad news - you are going to have to figure it out on your own because I guarantee you they won't correctly diagnosis you let alone treat it. When it comes to your health in the united states you're on your own.
oh my goodness. you just described my life.. writing from an exhausted prone condition from my bed.. just to see the diagnosis and validate my symptoms reduces sooooo much stress. blessings..
I have POTS and mild sensory neuropathy. It’s hard to get a diagnosis and find competent doctors. Thank you so much for learning about this condition to better serve your patients.
@@TheVintageBumbleBee It actually only took 6 months to get diagnosed, thankfully a neurologist was aware it existed. Unfortunately no one around here knows how to really treat it well or look for causes. Currently I'm using the levine protocol and some medications and I'm currently improving week by week thankfully.
Can you give me a link of the instructions of the Levine Protocol? Ive been trying to find one on the internet and couldnt, im looking forward to do it cos I have POTS and im just starting on Midodrine so im yet to find out if this medication will benefit me. Thanks.
@@jasperp.5357 Did the Midodrine help? I've steered clear of that one, as it can aggravate my Raynaud's. Mestinon and a small nightly dose of Clonidine is what fixed me. Other good POTS medication options are Ivabradine or Guanfacine.
You're a brilliant doctor, the way you just described things was really perfect, thank you🙏.I wished you were my cardiologist. I've had POTS like symptoms since having 2 stemi heart attacks/2stents at 30 & 32. It's been so debilitating, isolating & a living hell. I've had so many tests, but they can't figure it out. I'm so glad to come across your video, you might have saved me from having an unnecessary AFib ablation.
The posture change is the least of my problems. It's the night time adrenaline dumps, sweating, insomnia, intercranial pressure, aura migraines, weight gain without a change in diet, and dry eye.
*Drink more *Increase salt intake *Electrolyte tablets *Magnesium supplements * vitamin D- iron may be deficient * 6 small meals a day with protein * avoid big meals 4 hrs b4 bed * avoid caffeine-stimulants * compression stockings * Get good sleep -make a calming ritual b4 bed- no blue light, phone use b4 bed.
I have been dealing with this for 3 years and this is the best visual explanation I have found so far. Thank you! My mom is 79 and going through this and now I will have an easy way to explain it to her as well. She can’t wear compression socks because of how it squeezes the neuropathy in her feet causing pain, but vitamin B1 is starting to help so far. Thank you again for this! 🙏🏾
You're my hero! I think I developed PoTS from Covid. Since then, I can have a low heart rate (40bpm) but as soon as I stand up my heart rate goes up, above 30 bpm, I get dizzy.. And if I walk a lot my heart rate goes way up and struggles to come down. I've never experienced any of this. I've always been healthy and I worked out a lot prior to covid. Since then, I'm experiencing all these weird symptoms.
@@alperenylmaz1344 no vaccine! But it's been almost 4 months since having covid and it seems a lot of my POTS symptoms have cleared up this week for me, by making some changes, however now my heart rate is kind of low at resting (40ish bpm) but this is not frequent. Its at random, so I'm hoping it clears up. Here is what I've done to help with the POTS symptoms I drink a glass of Himalayan salt in the morning (some people need to do it more than one) I take B1 supplement, I started drinking mineral water a couple times a day, I exercise my vagus nerve I walk around the house or do super small workouts to try to help regulate my heartrate, now I'm able to go to the gym I sit in a sauna at my gym for 10 mins or so, my gym also offers Red Light Therapy, so I do that as well, it helps with internal inflammation and building new cells :) if the sauna and light therapy isn't available to you, the other stuff will do wonders, as these are things I added in later on. I take magnesium Glycinate, and zinc. I hope this helps you! Also, a can of coconut water, it's really high in electrolytes and helps keep you hydrated during the day
BEST video ever! I am a long time POTS sufferer. Knowing all the confusion and suffering I did in the first few years I have to say. Not all cardiologists have the time to explain WHY they are implementing these things for us. Knowing how and why these each works for the body I think helps big time in making these changes for good and not thinking pffft how is that going to help. Thank you for this video!! I think it will help a lot of people
gugz 102nd me too!! I think Knowledge is power. I have had pots for 4 years now. I am happy to say that I have a good control on it now where my quality of life has greatly improved. It didn’t happen over night but I am doing much much better. :) how about you?
@@smurfmobileh707 wonderful! I would love to hear about the steps you took to get a handle on it all. I do not have POTS, my daughter does. We traveled thousands of miles to many many doctors for 10 years before we finally got a diagnosis and that was purely by chance, although answer to prayer. The gastrologist we went to just happen to have a son with POTS, so he noticed her symptoms immediately and did a tilt test right then. I almost passed out, I was literally shaking. Most doctors thought I was crazy because "She doesnt look sick" . But all that is behi d us, her, now. No POTS for a year now!
gugz 102nd wow that’s sounds horrible :( I am sorry the time it took to get help. I’m glad to hear things are much better now :) For me what I eat and how MUCH I eat is a major one. A low carbohydrate diet is important, I have a big issue with my stomach and autonomic dysfunction. Staying on top of my electrolytes and hydration is So important. Strengthening my upper legs. I exercise 5 days a week now a mix of cardio and strength training. There was a point I couldn’t even walk very far. It took a long time to strengthen my legs but over time this had the biggest impact. If I get sick or anything were I go a week without at-least even going for a 45 min walk a day I am super symptomatic. I de condition very rapidly. I also wish I could handle taking anti depressants because that is effective at dampening the adrenaline. So when things are very bad I will try taking for a few weeks just to get over my hump. How did you and your daughter overcome this?
@@smurfmobileh707 I'm not sure if you will believe this,(We almost didn't and it's still amazing to share and think about) but this is exactly how our daughter overcame POTS. She went on a beach trip with a family friend and was gone a week. Towards the end of the trip she started to feel sick, sore throat, weak, headache. When she arrived home she was very sick. She had brown urine and other symptoms of MONO. We ended up in the ER and they agreed through blood tests that she had MONO. As you know any illness makes your POTS way worse. So she was sick. She owns an Echo friendly cleaning service and had a new built deep clean five days later. There was no way she could do it so my husband took off from work and he and I did it. It was while we were at that job that she called me and said "I think I'm healed" She had a friend call her and pray with her over the phone and talk about healing and believing in healing and believing in being healed in Jesus name, it was then standing in our hallway she felt a warm sensation all over her body. She was healed of the MONO which we all know lasts for weeks (she had it 6 days) and she was healed of POTS. Not one symptom of POTS remains after that incident. Thankfully her cardiologist is a believer and said he wasn't surprised, that God is still performing miracles if we open ourselves up to them. And that's how it left us. But we did many many many things during those 15 years. ❤
I've done well on Ivabradine, Low Carb Real Food food, swimming, cold water dipping. I'm much better. Had to go off ivabradine to have verapamil for SVT but managing okay. Still suffer with palpitations especially if bending over, using arms out from my body. I have improved so much over the years. 2015 viral myocarditis post chest infection. Tried many meds, many years, many cardiologists! Exercise physiology helped alot.
@FlyHigh Omg watching this video the tears just started only a short time in the video then by the end has me so emotional I feel like finally a doctor finally understand what people with pots have to go threw finally after 5 years I finally found a doctor that gets it 😭😭😭😭 I finally feel like I’m not alone in all this 🥰🙏🙏🙏🙏🙏🙏
You just described how I feel the first time my feet hit the floor in the morning and several times during the day! Thank you so much ... I will speak to my cardiologist the next time I see him.
Thank you for your help. I’m a big believer in helping ourselves and the only way we can do that is by educating ourselves and self discipline. Have a great day.
This is an excellent video for anyone dealing POTS and also with other kinds of of dysautonomia. This guy seems like a caring, thoughtful and knowledgeable doctor-- if only they all were so good. I'd add from my experience, that drinking a Gatorlyte packet in the morning really helps a ton. Also, Lexapro or some sort of SSRI has helped with depression but also with POTS-related stomach/gut issues as well.
Doc you are wonderful. I developed POTS after a vertebral artery dissection (I have Vascular EDS). It has made getting back to work very difficult but I am hopeful and following the advice here.
Thank you for your compassionately proposed and helpful advice. Did not know I was taking the wrong kind of Magnesium (Oxide). I will change next I buy. Always a relief to see a doctor talk compassionately to us POTS patients. We’ve been through it.
- body unable to squeeze blood vesels, too much heart rate to make up for it -body do squeeze but over do adrenaline Changes: 1- more blood drink least 3 liters don’t lose fluid increase salt, retain water vitamens tablets 2- squeeze legs, hands 3- heart rate not going way too fast - Avoid adrenaline rushes reduce stimulus, bad news sleep better, melatonin good convo with fave ppl supervised exercises
I felt seen watching this. Why aren’t more doctors educated on this? I’m 31 and started having symptoms in my early 20s. Doctors ran tests and thankfully everything came back negative so their next thing was you have panic disorder. Thankfully the low dose beta blocker they gave me also helps with pots. I wouldn’t wish this on anyone. Thanks Doc for all you do. I cried the first 5 mins of the video when you described how it feels. I also notice my symptoms come in waves. I can go months and be fine. I do agree on the adrenaline rush. I remember a primary doc told me maybe you just produce a lot of adrenaline and dismissed me. It good to have the medication AND the information on this.
What do your adrinline rushes feel like? Like hot or cold feet runs up your legs. A irration feeling. I also get burning in my chest especially laying on my back. It just burns away.
Thank you so much for taking the time out to help us POTS patients. It is definitely debilitating and everything you said was so on point. I have an issue with increasing my salt because it tends to raise my BP to numbers like 190’s/118. I do drink Powerade zero daily along with bottled water. No matter how much I drink, I still find that every other month, I have to get IV fluids. I understand the mechanism of POTS better now since you have broken it down. Thank you again
I am going to be trying to drink mineral water. Topo Chico. I don't like the fizziness and the flavor is going to take some time to get used to, but I am determined to make changes.
I'm in the same boat as you...in a strange place because on no meds, my BP tends to run higher, systolic in the 130s/140s, diastolic in the 90s, but the beta blocker brings it down to readings like 116/87 and then the doctor suggested fludrocortisone at the lowest dose, which is a salt steroid. That raises blood pressure and mine has gone higher, though not as high as yours...but it's weird because I feel like the extra salt or whatever the med does actually helps. Such a complicated illness POTS can be! But you're right, this video helps make sense of things and has some pretty good ideas for natural things to do as well
Hey Dani, I saw your response here and had the thought: I wonder if she knows about a condition called Pheochromocytoma and if she has had that ruled out as a possible cause of seriously high blood pressure spikes and POTS symptoms. I’m not a doctor, but I have POTS. Through my research into our condition, I came across this fact that doctors should first rule a pheochromocytoma out if there are both signs since its a TREATABLE mimic of POTS. Just felt like I needed to share this here for my fellow POTS sufferers. 💗
@@inexperiencedladywithagun7851 I gotta reiterate that I’m not a doctor, but a pheochromocytoma is a hormone-secreting tumor on the adrenal glands and can be removed with surgery.
You are simply marvelous: I have ME CFS after catching Glandular Fever 28 years ago. 3 years ago I said to my doctor could I have POTS and it was dismissed right out: U have complained several times of heart rate falling drastically when I sit, scary irregular heart rate if I'm standing and feeling pretty good if I lie down. I finally bought a BP monitor and did several NASA Orthostatic Tests and my HR increases when standing by between 32 to 50+ so hopefully the doctor will take my question seriously tomorrow.
have been misdiagnosed for yearsin cluding grrrr.... conversion disorder.. horrible horrible..affected my life with a complete turnaround from who I truly am.. finally found a wonderful neruologist who has sorted through with the correct bloodwork. now have hope but disappointed in the length for recovery.. thanks for talking about this.
I have been struggling with what my drs are just calling sinus tachycardia, but it doesn't just happen, it's always in response to getting up, rolling over in bed, or adrenaline triggers, which are very frequent for me because I live in a busy household currently and may also have undiagnosed autism. But now that I'm learning so much about POTS, I think this is my answer. I feel better when I exercise regularly and stay hydrated, but it takes so much for me to break a sweat so I struggle to keep it up, especially in the summer. Magnesium especially has been VERY helpful for my sleep, I have never gotten such good sleep before taking it regularly, and it also helps with my GI symptoms. Staying hydrated is the most difficult thing, I find it next to impossible to achieve 100oz in a day.
Thank you so much DR. for raising awareness about POTS... Very illustrative and clear video that helps putting together all the pieces of the puzzle in a simplified manner... POTS combines so many symptoms that could seem unrelated. POTS patients are usually misunderstood and need a lot of support around them... they struggle to keep on dealing with daily activities while their social circle ignore how much efforts it takes to "act normally"... Mainly because this syndrome is often misknown even amongst healthcare professionals
This was amazing!! I have had ME/CFS for 20 years, and now, at age 67, also have been diagnosed with mitral valve regurgitation (moderate to severe), so this is a recipe for POTS getting a foothold in my body. Thank you so much for this helpful video, Dr.!!
@@Dulcimerist Thanks for your response! I have had no imaging to detect connective tissue disorder. (I assume it's merely my age). But will look into that!!! Blessings!
@@elainesmusic473 Some of them are detected by clinical observation and a set of diagnostic criteria, such as hypermobile type Ehlers Danlos syndrome: www.ehlers-danlos.com/heds-diagnostic-checklist/
Hard as it is, avoiding caffeine can help me retain water. However, if I have just one shot of whiskey, I can much more easily get things done and focus on what I'm doing. I'm not sure why it helps, but it does. Trying to stay up as much as possible also trains my body to accept the conditions of orthostasis. Walking helps as well, but I have to watch my exertion very, very carefully to ensure that I don't overdo it. It's all a very sensitive condition that is much more complex than water and salt.
Drinking helps me as well!! The last 6 months while I've been waiting for tests to be done I was drinking about 4 days a week to help my symptoms at home. It only took half a tall boy to help me feel normal. Now I've been diagnosed and started taking Propranolol.
I stand all day on a cement floor. B4 this job...very good shape. I also work late... dinner/pass out. Until recently, i didnt understand WHAT was happening. Everything went off. Digestion, balance, morning anxiety, then heart... im now doing at least 15 to 30 to hour exercise...some sort of exercise. And there are now POTS floor exercise. Thats doing a lot for mental esteem too. 💕 thank you for this info.
Sanjay you are inspiring. It’s such a rewarding condition to treat isn’t it! When I’m better I’m going to learn from you. Fellow medic with Long COVID ME and PoTS
Thank you so much for this. Really helped in explaining the mechanism to my partner. I now can't unsee upright people as shaking squeezing waterbottles though
Just want to thank you for the magnesium suggestion. I really do believe it has helped with my extra heartbeats... When I get nervous, I pull up one of your videos!!
This is not neccesarily about deconditioning. I would point you to eds, chronic fatigue syndrome, long covid as being part of the picture if this kind if dysautonomia. Every single person with m.e has some wierd compensatory mechanism, where the blood blow us restricted to the brain. Pots is a compensatory mechanism. Also the low blood volume is a metabolic reaction to mitochondrial fragmentation caused by viral reactivation. The dehydration you mention has a cause. Follow the patterns and you'll find this comes back to s phenotype...a collage. Phenotype
thank you so much for every word !! I could help you enough!! for 14 years I struggle with symptoms like this. I even did Tilt test but no adequate therapy. i hope this changes in life stile would help. I wish you all the best!!
For so long i had so many symptoms without knowing what caused them. Feeling crazy like eating too much food makes me want to pass out...oh yeah yeah... no really, if i don't lie down i will faint. And o can't stand in line at the grocery store. Even sitting upright but still makes me light headed... I'm so glad my dr finally figured it out and put me on midodrine. It's not perfect but it helps so much
My heart rate will go up to 100 quickly when I stand and walk a few steps. I have bone on bone osteoarthritis in both knees and I’m in constant pain. When I walk or sometimes just sit down to eat I sweat profusely. I’m 73 female and I would love to stop sweating and hurting!
Thank you doctor this video is so helpful I've been dealing with all the symptoms you mentioned and I've been to multiple doctors and they told me different but watching your videos❤ really help me figure out what's going on God bless you for all that you do for your patience I will be following you for more advice thank you very much
I got Covid in Nov 2021. And once I recovered, got back my smell and taste, since Feb 2022 this year I have palpitations. They have increased since. Whenever I get up from my couch or from my bed, it's starts pounding reaching up-to 120-130pm. I don't know. I m just 27. This scares me
I had Covid in December 2021. I now have all POTS symptoms and going to see a specialist. I have been so sick with the heart rate (nausea, headache, dizziness, vomiting, feeling faint). You sound like you are going through what I am.
Thank you doctor. This explained all my syptoms so well. The doctors recognised my vitamin D deficiency, and IBS but no one could provide a ling term soultion
Positional headaches or wider neurological weirdness + POTS should be investigated for a spontaneous CSF leak and not necessarily automatically diagnosed with POTS. I'm in a group for spontaneous CSF leaks and POTS is very common in it. Dr Carroll at Stanford has also a river of patients from the POTS clinic there that he's diagnosed with spinal CSF leaks. I have developed POTS like symptoms from a CSF leak in my spine too.
Yes, I am just learning about this auto immune disease Pots. I hate it that I’m sweating all the time I get so hot so easily I can be in the snow and I’ll be sweating. I just came down with this stuff. I don’t know what I’m gonna do when it starts snowing this year. I’ve got COPD asthma and emphysema, and learning to deal with all of that in this stuff man it is rough, but you know what I still praise God every day and I’m alive no matter what I’m going through because Jesus died on the cross for my sins and your sins and I am grateful for that. If you ever find a cure for this stuff before I pass away, that would be awesome but I praise God anyway even if they don’t. God bless you all.
Thank you so much doctor for this video. You have shed a beam of light that has answered so many of my concerns and even brought explanations to symptoms I didn't even know were symptoms because I thought everyone experienced it and it was normal. I will be speaking to my doctors to see if they recommend your suggestions for me. God bless you.
Also, the issue isn't even getting dizzy when standing up or having the heart race. It's the inability to exercise like regular people, or carry things upstairs, move furniture, and basic physical things normal people can do that are nearly impossible to do without getting dizzy and a heart rate of 180bpm
I feel your pain. I go to the library and carry books and my heart skyrockets!! I miss my old self :(
@Tara King My heart rate goes up to 140 beats just walking up the stairs at home,
@Tara King I developed pots from covid. I've been on two different beta blockers and will start Ivabradine next week,. My heart goes out to anyone who is going through this.
@@neverseenblue11 I can relate to what you're going through, as I have POTS from my Ehlers Danlos syndrome. Beta blockers made me worse, but I've heard great things about Ivabradine. Hoping it helps you. Mestinon is what worked wonders at eliminating my POTS, and I saw a good video about it from this York Cardiology channel. I also take a small nightly dose of Clonidine, which increases blood volume by preventing blood pooling and also prevents adrenaline surges.
@@neverseenblue11 How do you feel now with Ivabradin? Have you side effects and does it help you? :)
Beyond water and salt the best things that happened to me is 1) understanding that PoTS won't kill me 2) Accepting I'm never going to love being vertical but learning to ignore that 3) As long as my heart rate is being monitored and I increase exercise at a slow steady pace, there really isn't any limit to how far I can go. 4) Stop being afraid. Regardless of what my nervous system is trying to tell me, I'm not really dying.
Thank you very much for this, I still struggle with the, it's not going to kill me Parr. I've had pots for 2 years after covid and it still scares me
I agree with this only to a certain extent. My symptoms sometimes become severe enough that accepting it won’t kill me isn’t helpful as far as allowing me to do more, and learning to ignore symptoms also isn’t useful. I think this is more useful on the days POTS is fairly mild.
How are you doing now?
how people get pots what's the cause bec all of the symptoms of pots I saw it with my daughter and she's struggling a lot Wen standing. I try the tilt test in the house and her heart rate is more than 140 Wen she stand but Wen sit it goes back to normal she's 8yrs old
I thank u so much for saying this I found that pots caused anxiety to rise and start the fear and then that only makes the heart feel worse meditating and understanding that it can’t kill me has helped me
I spent 10 years asking doctors why I feel like absolute garbage every morning when I wake up. No one could figure it out until my mom told me to ask my cardiologist if it might be POTS. If it wasn’t for her, I probably never would’ve gotten a diagnosis. Nothing’s helped me so far except for getting away from stress and hot weather.
Have they tried you on Mestinon, Ivabradine, Guanfacine, Clonidine, or beta blockers? Hoping they can find something that helps you feel better.
I am so sorry for what you've been through I want to connect with you do you have Instagram?
Kori, how are you doing now?
I believe I have POTs as I've had suspected M.E/cfs for 15 years and just had a HSD and Fibro Diagnosis too. Just come back from holiday and I could barely sit in the sun, it's just too excruciating and makes me feel too faint!
Same
This was extraordinarily helpful. Finally, a doctor who exhibits some compassion for the MANY of us with this syndrome.
Yes, I wanted to hug him. When my family gets home, they are going to watch this. Maybe they'll understand better.
I wish all doctors were like you. The fact that you write letters for your patients, speaks volumes. Thank you for your kindness towards patients. You are the definition of what a medical doctor should be.
Exercise, now that I'm able to do it, has been the BEST thing for my POTS. It seems to be regulating my heart rate. It doesn't spike as much over every little adrenaline surge. And increasing my circulation and blood volume via exercise has helped more blood get up to my brain giving me less pre-syncope symptoms and a lower heart rate overall. As long as I stay hydrated and avoid heat and alcohol, my POTS is very well controlled now. I can even shower standing up again!
Ja Ba No, Thankfully I've not needed any medicine to get to this point.
My main issue is being able to even exercise. How'd you exercise without getting lighheaded?
@@eddie8489 Exercise lying down, 90 percent of exercises have a lying down variation. I have POTS too and im just starting Midodrine and im yet to find out if it will benefit me.
I weightlift and do cardio lying down because exercising standing up is almost impossible when u have POTS, and dont even risk it cos losing consciousness while ur holding barbells or dumbbells is NOT safe.
@@jasperp.5357 great tips!
@@jasperp.5357 did the medicine ever help?? And I have no clue on how to workout laying down let alone doing cardio & such. Did you happen to find videos on it ?
I felt more understood and heard watching this video than I have with any of my myriad doctors and specialists. My doctors now are compassionate, but incompetent, they have such a gross undereducation of PoTS and broader dysautonomia. Most resort immediately to pharmaceuticals and send us on our way to slip into disability. This video should be required viewing for the medical community.
Thats cause doctors are bandaid specialists not healing specialists
Or, they send you to a psychiatrist, because you must be anxious and/or making it up. And, of course, the first thing they all push is SSRIs/SNRIs, even though I have told them they cause me to have syncope. I have never understood how they think that me living alone and fainting is a good idea.
I recently went to yet another doctor looking for a diagnosis so I could get appropriate treatment. I was hoping if I went to a younger, female doctor, I wouldn't be screamed at or dismissed. She referred me to a therapist instead of hearing me. I went home and started self-management techniques (salt/electrolytes) for PoTS, and I was free of palpitations (which they have been telling me are panic attacks, even though they last for up to 12 hours every day) for the first time in decades. I'm looking forward to becoming more active after not being able to walk to the store without knocking over displays and having to lie down on the ground, soaked in sweat, on the way home.
I wish I hadn't lost so many years, opportunities, and relationships to this disorder, but I have hope now that my quality of life will improve.
@@mattparker3349 I have not heard of one patient being cured of POTS in my reading. I don't hold it against doctors because like this good doctor here, it's lifetstyle mainly and that is the best of the best treatment available. There may be some inexperienced doctors who could certainly spend 15 minutes on this video and be as good as Sanjay Gupta. I wonder what fresh air would do instead of being inside 24/7. Since oxygen is what this is really lacking.
Such a relief when you find a Doctor who is highly knowledgable
Indeed. Just wish I could see such a doctor in person.
Please bring awareness that men get this too!
Yes!!! Everyone in my support group is woman. While it’s rare, us men get it also!
@@sadkfjasdkl4543 there is a FB group for men. Look up POTs men
Yessir!
I am a male who has battled POTS for most of my life, due to being born with hypermobile type Ehlers Danlos syndrome. Thankfully Mestinon and a small nightly dose of Clonidine has treated my POTS really well, but I had decades of it going untreated which was very debilitating and unpleasant.
@@IlIKRATOSIlI yeah and it less than 30 guys
I find swimming very helpful. You are horizontal in the water and the water exerts some compression throughout the body. I always feel better when I swim & POTS does not bother me while I do it.
That's good!
Me too. Just be careful getting out, and also hot showers afterwards can instigate symptoms
I figured things out on my own before finding these videos. Fluid in the morning is vital. Low carb. Good luck potsies
Going low carb was a game changer. Heavy carb meals and sugar makes my heart rate rise.
Going carnivore was a game changer. And prior, I had what anyone would consider a healthy diet prior; tons of organic veggies! But I do so much better without plant foods. So glad I discovered carnivore. Wish I knew about this sooner.
hello, is low carb really help? what did u guys do to manage this escp Wen standing or walking
Hey! Did carnivore heal your pots thinking of starting mine . scared of the reaction it might give with pots .
@@lr1732Hey how long did you do carnivore to notice an improvement ? snd scared of the reaction it might give ? also did you use any POTs medication?
You're level of compassion makes me want to cry 🥲
Hula Hooping has changed my life its my go to Therapy, I was bedridden immobile with terrible deconditioning and following all the necessary lifestyle changes I needed a movement for core strength and short intervals so I learnt at 44 & it's been the best thing and I may never have came across or thought it even possible until I read of someone with pots using it as Therapy and rehabilitation with sucess 🙌🙌
How high does your heart rate get when you hula hoop? How does it make you feel? How did you start doing it, like 5 mins Day then increase?
You are the best pots doctor in the world. I am born and raised in New York City, and no one here has ever treated me the way you speak of the way you treat your patients, and from New York to Florida I have seen countless cardiologists and having gone through a really bad Potts flare post having Covid now after having pots for 11 years and not needing any medication being able to get back to my athletic job, getting Covid sent me back eight years and I found your UA-cam during that time and you truly are a leader and pots. Thank you for being a doctor to all of us who don’t get the care we deserve and need.
I love this guy too, he has mentioned another of the world's leading POTS experts who is living in the US, Dr. Blair Grubb (in Toledo OH) My daughter has been under Dr. Grubb's care. Try to get in to see him (although I know wait times get very long)
@@mommyboboI live in Tecumseh Michigan, about 30 miles from Toledo Ohio. I've JUST now been seen at the Cleveland Clinic, under Dr. Rob Wilson, ANOTHER preeminent doctor in the POTS field. After finishing all the diagnostic testing there, I will try to be seen by Dr. Grubbs! Thank you for the information! As an out of state patient at the Clinic, it's hard to commute back and forth. They either try to get your PCP on board (I THINK? -good luck with mine 🙄) but, WHAT a coup to be seen by another POTS warrior doctor! Wishing you all the best on your journey... 🙏
@@paulareid7478 i hope you are able to see Dr Grubb. He is so very caring, but his wonderful compassion is one of the reasons it takes so long to get in to see him. He takes his time with his patients. Something that is rare these days!
Also repleting thiamine (B1) with a high dose thiamine protocol can help. Eating, sleeping and waking on a regular schedule and getting morning sun in your eyes upon waking. Carnivore diet as well….
How much benfotiamine do you take?
What a wonderfully empathetic Dr, who clearly has a huge understanding of the syndrome, with useful input for many of us out there struggling with gaslighting, and misinformed ideas.
Thank you Dr Gupta
What a lovely human being- it's so good to be reminded that there are Doctors out there who truly care, and just want to help/heal their patients. The information in this video is also superb: Hippocrates would have been proud methinks!! Thank you Doctor :)
My downside of POTS- constant thirst, hunger & fatigue (also getting dizzy, sick to my tummy, etc etc). The things that have helped me tremendously- 1. Saline Therapy (IVs) 2. Exercise (when I can do it) 3. Salt tablets 4. Trying to cut out carbs as much as possible 5. Gabapentin 6. Compression socks!
Hey girl! So cool to see a fellow spiritual divine feminine on here :) your comment gave me so much relief as I too have the exact same symptoms as you and I do all the same methods as you that have also helped me a lot! Praying for you and hope you’re healing well namaste 🙏🏼✨🤍😌
La gabapatina para que sintoma seria
Where do you go for saline therapy? What kind of salt tablets? I do take gabapentin at night and wear compression socks too. I always feel so off.
@@daniellatrueselfmeditationwhat are you doing please tell me
Compression socks make my symptoms twice as bad
I’ve had these experiences since I was a child. No one listened to me, they thought I was being dramatic. It’s a relief to understand what my body is doing. I figured out years ago that when my heart trips into racing, I have to lie flat on my back.
The only other people immediately dismissed when having symptoms beside women, are children
I’ve never felt more seen/validated after watching this video and reading everyone’s comments. I’ve had a lot of these symptoms for about a decade but they’ve worsened in the last 2 years and have been absolutely debilitating for the past 6 months. My doctor recommended this video and I see a POTS specialist to confirm in a few weeks. It’s crazy how you eventually convince yourself it’s just you, it’s in your head, it’s because you’re not eating perfect. It was really amazing to hear that not only are my symptoms valid and real, so many others suffer with the same!
Thank you so much for addressing this issue. POTS has taken my life as I knew it away from me. One issue that I don't hear very much about is the extreme brain fog that can come from standing up. When I had my tilt table test done, the doc asked me how I felt after the table went upright, and I literally couldn't answer because I was so confused. It's a huge problem for me. Yes, dizziness is unpleasant but not being able to think when you are standing up or even sitting up is a very difficult life situation to navigate. I also get Raynauds in my feet and hands. I take Adderall for brain fog and extreme fatigue even though it increases my heart rate. There are no easy answers.
I feel this in my soul. The brain fog was always just as debilitating for me as the more physical symptoms like dizziness and fatigue. It was so maddening and upsetting to go from really good grades at school to struggling to even read a single page as I just couldn't concentrate.
Please please look into the medical medium. You’ll find all of the answers you need.
I was just about to write the same thing
My POTS, Raynaud's and ADHD symptoms were resolved with ultra-high doses of injected methylcobalamin. Those symptoms turned out to all be related to my body not absorbing B12 properly. I suffered for years and saw so many doctors who never suggested B12 to me. I only discovered this solution because I was eventually diagnosed with pernicious anemia and chronic mycotoxin exposure, which can alter the metabolism of B12 in the body.
POTs is a nightmare. I’ve had it my entire life and was officially diagnosed in my early teens. I have a relatively severe case and I don’t think being 6’6 with long limbs helps at all. I’m currently in my third major flare up and it’s my first as an adult. Unfortunately, I’ve learned that it can be completely debilitating no matter what you do to take care of yourself.
While it’s important to be mindful of the condition and make healthy choices, it can still flare up regardless. It’s equally important to not blame yourself for feeling terrible, given you’ve been responsible with your health and not done anything to aggravate the condition.
For some reason,the physical sickness is accompanied by a lot of guilt, shame and stress from not being able to do normal things and having to adapt your lifestyle to those limitations. However, accepting your limitations and sticking to them firmly when recovering is the healthiest thing you can do for yourself. In my personal experience, sometimes it just takes time for the body to adjust itself back to normalcy.
I really hope POTs is demystified soon and understood better by the medical field. It’s truly a life altering illness.
I’m wishing the absolute best for others who suffer, you’re not alone
How did you cured, controllled, improved so far ???
Dr.Gupta. You are a true healer, with the education and compassion to back you up.Thank you very much for your loving heart.
I love his heart ♥
This is incredibly helpful. I’m going to share with all of my POTS patients!
I began taking 350 mg b1 in Benfotiamine as well as walking 40 mins per day. 20 mins at a time. Also talking electrolytes. Also raw fruits & veggies. All have helped so much. If I eat any processed food or processed sugars, I go back to feeling bad.
Thank you so much for this!! I just got diagnosed with Pots after over 10 years of searching. I appreciate the work that you are doing so much. You are right on as far as how we feel! So validating and encouraging to be believed.
I was just diagnosed after 10 years are you getting better?
Thank you... I had no idea something like could even happen. I'm now mostly bedridden, unable to be up for very long or look at techie most of the time. I've lost my job and I thought this was it. Finally got a diagnosis by a Physiotherapist dealing with Long Covid. Thank you for sharing this information with us! It's given me something I can work towards. All the best to all of you going through this ❤️
I got diagnosed for POTS after i took the bloody vaccine. I had palpitations immediately after taking the shot and continued on and off for a month, ekg, echo troponin and what not. Then finally one cardiologist said its POTS. My life has never been the same.
Same here.
Wow sorry to hear that. My niece seems to also has POTS symptoms butnis awaiting diagnosis. How are you feeling now? With her we are also suspecting its after the vaccine. Her issues started 3 days after getting the shot. How are you managing now?? All the very best!!
Same here but I don't yet have a diagnosis. Haven't been able to work or live well for nearly 15 months. Doctors think it's in my head. I have nerve pain and fasciculations too. Trying again with GP next week showing them a 10 minute stand test. Wish me luck! 🤞
You will recovery Mo eventually. The Prognosis for males and post viral pots is very good.
@@TheBushRanger. i hope so, thanks for your kind words.
I am so grateful to you for your thoughtful recommendations and I respect the way you acknowledged the psychological and sociological impact of POTS
Thank you so much for this! Wonderful that there ARE medical professionals out there who believe in, empathise with and most importantly support their patients! ☺
Yeah but good luck finding one for yourself
@@no_country_for_real_men sad but true... still nice to know they exist 🙂
@@donnawilliamson277 they are a needle in a haystack in the u.s. A country where people with medical degrees are a dime a dozen but 95% are not educated, skilled nor true professionals.
Hi Dr. Gupta, It just ‘goes to show’ how some doctors really do listen to what their patients are saying to them. And trying to help them understand better and cope with their debilitating conditions, no matter how difficult it maybe, is a bonus. Good on you, all the best.
This was the best overall information about pots that I've ever heard thank you for making it
Love the explanation with the water bottle. Thank you again Dr. Gupta for another excellent video. You taking the time to educate us is unmeasurable.
You seem to be such a kind and empathetic doctor! I wish I could find a doctor like you in Belgium. Thank you for this video to help us dealing with POTS.
I know what you mean I can't find one and I live in the u.s.
Thank you so much for these videos it has been so helpful, I had COVID in Aug 21 and was making a slow recovery but then in Feb 22 I started to feel worse again and then I couldn’t get out of bed without my HR elevating, feeling dizziness , nausea, pins and needles, breathless and extreme need to sit or lay down, my Dr said they are hearing of a lot of POTS symptoms following COVID and so I am learning about it while I wait on a referral to a cardiologist for an official diagnosis and treatment.
Have zero expectations out of amERRORican doctors. They are worthless. I have the same issues as you and I have bad news - you are going to have to figure it out on your own because I guarantee you they won't correctly diagnosis you let alone treat it. When it comes to your health in the united states you're on your own.
I'm so grateful for your passion to help us. So many providers dismiss us.
oh my goodness. you just described my life.. writing from an exhausted prone condition from my bed.. just to see the diagnosis and validate my symptoms reduces sooooo much stress. blessings..
I have POTS and mild sensory neuropathy. It’s hard to get a diagnosis and find competent doctors. Thank you so much for learning about this condition to better serve your patients.
Uuugghhhg, I feel you. We went 12 yrs for a diagnosis and finally found an excellent (not good) but excellent cardiologist. How are you?
@@TheVintageBumbleBee It actually only took 6 months to get diagnosed, thankfully a neurologist was aware it existed. Unfortunately no one around here knows how to really treat it well or look for causes. Currently I'm using the levine protocol and some medications and I'm currently improving week by week thankfully.
Can you give me a link of the instructions of the Levine Protocol? Ive been trying to find one on the internet and couldnt, im looking forward to do it cos I have POTS and im just starting on Midodrine so im yet to find out if this medication will benefit me. Thanks.
@@jasperp.5357 Did the Midodrine help? I've steered clear of that one, as it can aggravate my Raynaud's. Mestinon and a small nightly dose of Clonidine is what fixed me. Other good POTS medication options are Ivabradine or Guanfacine.
Your so understanding!! 😢 Wish everyone around me thought the way you do. Thank you so much for making videos!
You're a brilliant doctor, the way you just described things was really perfect, thank you🙏.I wished you were my cardiologist. I've had POTS like symptoms since having 2 stemi heart attacks/2stents at 30 & 32. It's been so debilitating, isolating & a living hell. I've had so many tests, but they can't figure it out. I'm so glad to come across your video, you might have saved me from having an unnecessary AFib ablation.
I LOVE this doctor. He actually gives us simple and clear suggestions on what to do.
The posture change is the least of my problems. It's the night time adrenaline dumps, sweating, insomnia, intercranial pressure, aura migraines, weight gain without a change in diet, and dry eye.
*Drink more
*Increase salt intake
*Electrolyte tablets
*Magnesium supplements
* vitamin D- iron may be deficient
* 6 small meals a day with protein
* avoid big meals 4 hrs b4 bed
* avoid caffeine-stimulants
* compression stockings
* Get good sleep -make a calming ritual b4 bed- no blue light, phone use b4 bed.
Thanks for the summary.
Fantastic, educational video presented in a professional and compassionate manner 🙏
I have been dealing with this for 3 years and this is the best visual explanation I have found so far. Thank you! My mom is 79 and going through this and now I will have an easy way to explain it to her as well. She can’t wear compression socks because of how it squeezes the neuropathy in her feet causing pain, but vitamin B1 is starting to help so far. Thank you again for this! 🙏🏾
Thank you so much for talking about this issue with compassion. It makes all the difference in the world
You're my hero! I think I developed PoTS from Covid. Since then, I can have a low heart rate (40bpm) but as soon as I stand up my heart rate goes up, above 30 bpm, I get dizzy..
And if I walk a lot my heart rate goes way up and struggles to come down.
I've never experienced any of this. I've always been healthy and I worked out a lot prior to covid.
Since then, I'm experiencing all these weird symptoms.
Hello. I developed pots from covid lie you. Almost 1.5 years past since covid but symptoms remains. Is it same for you?
And did u get vaccaine?
@@alperenylmaz1344 no vaccine! But it's been almost 4 months since having covid and it seems a lot of my POTS symptoms have cleared up this week for me, by making some changes, however now my heart rate is kind of low at resting (40ish bpm) but this is not frequent. Its at random, so I'm hoping it clears up.
Here is what I've done to help with the POTS symptoms
I drink a glass of Himalayan salt in the morning (some people need to do it more than one) I take B1 supplement, I started drinking mineral water a couple times a day, I exercise my vagus nerve
I walk around the house or do super small workouts to try to help regulate my heartrate, now I'm able to go to the gym
I sit in a sauna at my gym for 10 mins or so, my gym also offers Red Light Therapy, so I do that as well, it helps with internal inflammation and building new cells :) if the sauna and light therapy isn't available to you, the other stuff will do wonders, as these are things I added in later on.
I take magnesium Glycinate, and zinc.
I hope this helps you! Also, a can of coconut water, it's really high in electrolytes and helps keep you hydrated during the day
@@Thefroggang101 Thanks for response really. I felt so hopeless these last days feel like never fell better but u give me hope. THANKS!
Same hope we all get better soon and this is not a permanent condition x❤
BEST video ever! I am a long time POTS sufferer. Knowing all the confusion and suffering I did in the first few years I have to say. Not all cardiologists have the time to explain WHY they are implementing these things for us. Knowing how and why these each works for the body I think helps big time in making these changes for good and not thinking pffft how is that going to help.
Thank you for this video!! I think it will help a lot of people
Yes, finally! Would have loved to have this info 12 years ago. Are you currently still having POT symptoms?
gugz 102nd me too!! I think Knowledge is power. I have had pots for 4 years now. I am happy to say that I have a good control on it now where my quality of life has greatly improved. It didn’t happen over night but I am doing much much better. :) how about you?
@@smurfmobileh707 wonderful! I would love to hear about the steps you took to get a handle on it all. I do not have POTS, my daughter does. We traveled thousands of miles to many many doctors for 10 years before we finally got a diagnosis and that was purely by chance, although answer to prayer. The gastrologist we went to just happen to have a son with POTS, so he noticed her symptoms immediately and did a tilt test right then. I almost passed out, I was literally shaking. Most doctors thought I was crazy because "She doesnt look sick" . But all that is behi d us, her, now. No POTS for a year now!
gugz 102nd wow that’s sounds horrible :( I am sorry the time it took to get help. I’m glad to hear things are much better now :)
For me what I eat and how MUCH I eat is a major one. A low carbohydrate diet is important, I have a big issue with my stomach and autonomic dysfunction. Staying on top of my electrolytes and hydration is So important.
Strengthening my upper legs. I exercise 5 days a week now a mix of cardio and strength training. There was a point I couldn’t even walk very far. It took a long time to strengthen my legs but over time this had the biggest impact. If I get sick or anything were I go a week without at-least even going for a 45 min walk a day I am super symptomatic. I de condition very rapidly.
I also wish I could handle taking anti depressants because that is effective at dampening the adrenaline. So when things are very bad I will try taking for a few weeks just to get over my hump.
How did you and your daughter overcome this?
@@smurfmobileh707 I'm not sure if you will believe this,(We almost didn't and it's still amazing to share and think about) but this is exactly how our daughter overcame POTS. She went on a beach trip with a family friend and was gone a week. Towards the end of the trip she started to feel sick, sore throat, weak, headache. When she arrived home she was very sick. She had brown urine and other symptoms of MONO. We ended up in the ER and they agreed through blood tests that she had MONO. As you know any illness makes your POTS way worse. So she was sick. She owns an Echo friendly cleaning service and had a new built deep clean five days later. There was no way she could do it so my husband took off from work and he and I did it. It was while we were at that job that she called me and said "I think I'm healed" She had a friend call her and pray with her over the phone and talk about healing and believing in healing and believing in being healed in Jesus name, it was then standing in our hallway she felt a warm sensation all over her body. She was healed of the MONO which we all know lasts for weeks (she had it 6 days) and she was healed of POTS. Not one symptom of POTS remains after that incident. Thankfully her cardiologist is a believer and said he wasn't surprised, that God is still performing miracles if we open ourselves up to them. And that's how it left us. But we did many many many things during those 15 years. ❤
I've done well on Ivabradine, Low Carb Real Food food, swimming, cold water dipping. I'm much better. Had to go off ivabradine to have verapamil for SVT but managing okay. Still suffer with palpitations especially if bending over, using arms out from my body. I have improved so much over the years. 2015 viral myocarditis post chest infection. Tried many meds, many years, many cardiologists! Exercise physiology helped alot.
Thank you, thank you, thank you. I am crying just because you understand! Your explanations are so helpful and your suggestions too. Thank you!!!
@FlyHigh Omg watching this video the tears just started only a short time in the video then by the end has me so emotional I feel like finally a doctor finally understand what people with pots have to go threw finally after 5 years I finally found a doctor that gets it 😭😭😭😭 I finally feel like I’m not alone in all this 🥰🙏🙏🙏🙏🙏🙏
You just described how I feel the first time my feet hit the floor in the morning and several times during the day! Thank you so much ... I will speak to my cardiologist the next time I see him.
Does pots leads to heart failure?
My granddaughter is only 10 years and has just been diagnosed with pots what's the difference for care for children and adults
Me too. The nausea that comes with the fainting is horrible.
Thank you for your help. I’m a big believer in helping ourselves and the only way we can do that is by educating ourselves and self discipline. Have a great day.
This is an excellent video for anyone dealing POTS and also with other kinds of of dysautonomia. This guy seems like a caring, thoughtful and knowledgeable doctor-- if only they all were so good. I'd add from my experience, that drinking a Gatorlyte packet in the morning really helps a ton. Also, Lexapro or some sort of SSRI has helped with depression but also with POTS-related stomach/gut issues as well.
Doc you are wonderful. I developed POTS after a vertebral artery dissection (I have Vascular EDS). It has made getting back to work very difficult but I am hopeful and following the advice here.
Hi, did u recover from pots?
Any advice for improvement, i'd really appreciate.
Thank you for your compassionately proposed and helpful advice. Did not know I was taking the wrong kind of Magnesium (Oxide). I will change next I buy. Always a relief to see a doctor talk compassionately to us POTS patients. We’ve been through it.
This was probably one of the better videos I have seen on POTS. Thank you.
- body unable to squeeze blood vesels, too much heart rate to make up for it
-body do squeeze but over do adrenaline
Changes:
1- more blood
drink least 3 liters
don’t lose fluid
increase salt, retain water
vitamens tablets
2- squeeze legs, hands
3- heart rate not going way too fast
- Avoid adrenaline rushes
reduce stimulus, bad news
sleep better, melatonin
good convo with fave ppl
supervised exercises
This is the best explanation and tips on UA-cam that I have watched so far. Thank you dr.
Vitamin B1 is also extremely important. Its a cofactor of Magnesium. So magnesium is only effective if supplemented with vitamin b1
Thanking for giving a name to the adrenal surges!!
Sums up the off putting experience so well!
Thanks to Dr Gupta I had a major improvement in last nights sleep and and am encouraged to continue trying to improve my lifestyle habits 😃
I felt seen watching this. Why aren’t more doctors educated on this? I’m 31 and started having symptoms in my early 20s. Doctors ran tests and thankfully everything came back negative so their next thing was you have panic disorder. Thankfully the low dose beta blocker they gave me also helps with pots. I wouldn’t wish this on anyone. Thanks Doc for all you do. I cried the first 5 mins of the video when you described how it feels. I also notice my symptoms come in waves. I can go months and be fine. I do agree on the adrenaline rush. I remember a primary doc told me maybe you just produce a lot of adrenaline and dismissed me. It good to have the medication AND the information on this.
What do your adrinline rushes feel like? Like hot or cold feet runs up your legs. A irration feeling. I also get burning in my chest especially laying on my back. It just burns away.
Just seen this... one of my comorbidities. Super helpful. Thank you so much.
Thank you so much for taking the time out to help us POTS patients. It is definitely debilitating and everything you said was so on point. I have an issue with increasing my salt because it tends to raise my BP to numbers like 190’s/118. I do drink Powerade zero daily along with bottled water. No matter how much I drink, I still find that every other month, I have to get IV fluids. I understand the mechanism of POTS better now since you have broken it down. Thank you again
I am going to be trying to drink mineral water. Topo Chico. I don't like the fizziness and the flavor is going to take some time to get used to, but I am determined to make changes.
I'm in the same boat as you...in a strange place because on no meds, my BP tends to run higher, systolic in the 130s/140s, diastolic in the 90s, but the beta blocker brings it down to readings like 116/87 and then the doctor suggested fludrocortisone at the lowest dose, which is a salt steroid. That raises blood pressure and mine has gone higher, though not as high as yours...but it's weird because I feel like the extra salt or whatever the med does actually helps. Such a complicated illness POTS can be! But you're right, this video helps make sense of things and has some pretty good ideas for natural things to do as well
Hey Dani, I saw your response here and had the thought: I wonder if she knows about a condition called Pheochromocytoma and if she has had that ruled out as a possible cause of seriously high blood pressure spikes and POTS symptoms. I’m not a doctor, but I have POTS. Through my research into our condition, I came across this fact that doctors should first rule a pheochromocytoma out if there are both signs since its a TREATABLE mimic of POTS. Just felt like I needed to share this here for my fellow POTS sufferers. 💗
@@k.mcdonald1960 what is the remedy for that condition?
@@inexperiencedladywithagun7851 I gotta reiterate that I’m not a doctor, but a pheochromocytoma is a hormone-secreting tumor on the adrenal glands and can be removed with surgery.
You are simply marvelous: I have ME CFS after catching Glandular Fever 28 years ago. 3 years ago I said to my doctor could I have POTS and it was dismissed right out: U have complained several times of heart rate falling drastically when I sit, scary irregular heart rate if I'm standing and feeling pretty good if I lie down. I finally bought a BP monitor and did several NASA Orthostatic Tests and my HR increases when standing by between 32 to 50+ so hopefully the doctor will take my question seriously tomorrow.
have been misdiagnosed for yearsin cluding grrrr.... conversion disorder.. horrible horrible..affected my life with a complete turnaround from who I truly am.. finally found a wonderful neruologist who has sorted through with the correct bloodwork. now have hope but disappointed in the length for recovery.. thanks for talking about this.
Wow! Who knew anyone actually cared. I wish you were my doctor. I am just so thankful for your video.
FINALLY A DOCTOR WHO GETS IT!!!! 🔥🔥🔥🔥🔥🙏🙏🙏👏👏👏👏👏
I have been struggling with what my drs are just calling sinus tachycardia, but it doesn't just happen, it's always in response to getting up, rolling over in bed, or adrenaline triggers, which are very frequent for me because I live in a busy household currently and may also have undiagnosed autism. But now that I'm learning so much about POTS, I think this is my answer. I feel better when I exercise regularly and stay hydrated, but it takes so much for me to break a sweat so I struggle to keep it up, especially in the summer. Magnesium especially has been VERY helpful for my sleep, I have never gotten such good sleep before taking it regularly, and it also helps with my GI symptoms. Staying hydrated is the most difficult thing, I find it next to impossible to achieve 100oz in a day.
100 oz is alot
Which type of magnesium do you take
Yes girl my doctor told me too it was inappropriate sinus tachycardia!
Thank you so much DR. for raising awareness about POTS...
Very illustrative and clear video that helps putting together all the pieces of the puzzle in a simplified manner... POTS combines so many symptoms that could seem unrelated.
POTS patients are usually misunderstood and need a lot of support around them... they struggle to keep on dealing with daily activities while their social circle ignore how much efforts it takes to "act normally"... Mainly because this syndrome is often misknown even amongst healthcare professionals
خصوصا في الدول العربية ليس هناك تشخيص جيد
و لاكن الجيد هو اننا بعون الله سبحانه و تعالي و بفضله نستطيع مساعدة انفسنا ♥️♥️
This was amazing!! I have had ME/CFS for 20 years, and now, at age 67, also have been diagnosed with mitral valve regurgitation (moderate to severe), so this is a recipe for POTS getting a foothold in my body. Thank you so much for this helpful video, Dr.!!
I was also told I now have Mitral valve prolapse
@@bronskingilman4994 Goodness.....it's so hard, yes.
Do you have a connective tissue disorder that caused the valve issues?
@@Dulcimerist Thanks for your response!
I have had no imaging to detect connective tissue disorder. (I assume it's merely my age). But will look into that!!! Blessings!
@@elainesmusic473 Some of them are detected by clinical observation and a set of diagnostic criteria, such as hypermobile type Ehlers Danlos syndrome:
www.ehlers-danlos.com/heds-diagnostic-checklist/
Hard as it is, avoiding caffeine can help me retain water. However, if I have just one shot of whiskey, I can much more easily get things done and focus on what I'm doing. I'm not sure why it helps, but it does. Trying to stay up as much as possible also trains my body to accept the conditions of orthostasis. Walking helps as well, but I have to watch my exertion very, very carefully to ensure that I don't overdo it. It's all a very sensitive condition that is much more complex than water and salt.
Drinking helps me as well!! The last 6 months while I've been waiting for tests to be done I was drinking about 4 days a week to help my symptoms at home. It only took half a tall boy to help me feel normal.
Now I've been diagnosed and started taking Propranolol.
Thanks for posting this video. I have long-COVID and dizziness is making life very difficult. All these suggestions help.
you have empathy and you listen to your patients these are very rare qualitys today so yes thanks for giving your time and advice 🙏💕
thank you Doctor. This helped me to link all the dots and find out I have POTS , definitely.
I stand all day on a cement floor. B4 this job...very good shape. I also work late... dinner/pass out.
Until recently, i didnt understand WHAT was happening. Everything went off. Digestion, balance, morning anxiety, then heart... im now doing at least 15 to 30 to hour exercise...some sort of exercise. And there are now POTS floor exercise. Thats doing a lot for mental esteem too. 💕 thank you for this info.
The bottle visual is so helpful. Great video, thank you
my significant other has pots and iv been trying to learn about it and this video has helped alot thank you
Sanjay you are inspiring. It’s such a rewarding condition to treat isn’t it! When I’m better I’m going to learn from you. Fellow medic with Long COVID ME and PoTS
You good now Asad?
Thank you so much for this. Really helped in explaining the mechanism to my partner. I now can't unsee upright people as shaking squeezing waterbottles though
Brilliant and useful info! Such sanity for anyone who's spent decades seeing doctors and specialists and begging for help.
Just want to thank you for the magnesium suggestion. I really do believe it has helped with my extra heartbeats... When I get nervous, I pull up one of your videos!!
Same here about calming myself down with watching Dr. Sanjoys videos!☺ He has such a calming reassuring voice and easy to comprehend presentation.
Candyce Fillmore - Yes been using magnesium citrate for several months and it does help me be more calm and even tempered in general too.
Me too for extra heartbeats. Im scared too take magnesium. Citrate ok i bought diasporal
Transdermal application of Mg Chloride
This is not neccesarily about deconditioning.
I would point you to eds, chronic fatigue syndrome, long covid as being part of the picture if this kind if dysautonomia.
Every single person with m.e has some wierd compensatory mechanism, where the blood blow us restricted to the brain.
Pots is a compensatory mechanism.
Also the low blood volume is a metabolic reaction to mitochondrial fragmentation caused by viral reactivation. The dehydration you mention has a cause.
Follow the patterns and you'll find this comes back to s phenotype...a collage. Phenotype
Wow, this is good information. Thank you. The Mayo Clinic said compression stockings aren't as effective as a binder which compresses your core.
thank you so much for every word !! I could help you enough!!
for 14 years I struggle with symptoms like this. I even did Tilt test but no adequate therapy. i hope this changes in life stile would help. I wish you all the best!!
Have they tried you on Mestinon, Ivabradine, Guanfacine, Clonidine, or a beta blocker? Hoping they can find what works best to help you feel better.
For so long i had so many symptoms without knowing what caused them. Feeling crazy like eating too much food makes me want to pass out...oh yeah yeah... no really, if i don't lie down i will faint. And o can't stand in line at the grocery store. Even sitting upright but still makes me light headed... I'm so glad my dr finally figured it out and put me on midodrine. It's not perfect but it helps so much
Thank you so much for posting this video. It's so helpful!
My heart rate will go up to 100 quickly when I stand and walk a few steps. I have bone on bone osteoarthritis in both knees and I’m in constant pain. When I walk or sometimes just sit down to eat I sweat profusely. I’m 73 female and I would love to stop sweating and hurting!
Have they tried you on Clonidine to reduce the sweating and the spikes in pulse rate?
Thank you doctor this video is so helpful I've been dealing with all the symptoms you mentioned and I've been to multiple doctors and they told me different but watching your videos❤ really help me figure out what's going on God bless you for all that you do for your patience I will be following you for more advice thank you very much
Thank you for explaining this, Dr! I hadn’t heard of this until a few years ago.
I got Covid in Nov 2021. And once I recovered, got back my smell and taste, since Feb 2022 this year I have palpitations. They have increased since. Whenever I get up from my couch or from my bed, it's starts pounding reaching up-to 120-130pm. I don't know. I m just 27. This scares me
I had Covid in December 2021. I now have all POTS symptoms and going to see a specialist. I have been so sick with the heart rate (nausea, headache, dizziness, vomiting, feeling faint). You sound like you are going through what I am.
You’re not alone. I’m 28 and going through the same thing.
Awh thankyou Sanjay so much... your caring nature and demeanour always comes across every time. Thankyou . Xx 😘
Good video. I am glad he talked about the adrenaline surges.
Thank you doctor. This explained all my syptoms so well. The doctors recognised my vitamin D deficiency, and IBS but no one could provide a ling term soultion
Positional headaches or wider neurological weirdness + POTS should be investigated for a spontaneous CSF leak and not necessarily automatically diagnosed with POTS. I'm in a group for spontaneous CSF leaks and POTS is very common in it. Dr Carroll at Stanford has also a river of patients from the POTS clinic there that he's diagnosed with spinal CSF leaks. I have developed POTS like symptoms from a CSF leak in my spine too.
Yes, I am just learning about this auto immune disease Pots. I hate it that I’m sweating all the time I get so hot so easily I can be in the snow and I’ll be sweating. I just came down with this stuff. I don’t know what I’m gonna do when it starts snowing this year. I’ve got COPD asthma and emphysema, and learning to deal with all of that in this stuff man it is rough, but you know what I still praise God every day and I’m alive no matter what I’m going through because Jesus died on the cross for my sins and your sins and I am grateful for that. If you ever find a cure for this stuff before I pass away, that would be awesome but I praise God anyway even if they don’t. God bless you all.
OK!! All this talk about adrenaline in the system has really caught my ear! This connection is really IT for me. Its ALL about the adrenaline.
Great video! Easy to understand, and gave tips that a person can try right away.
Thanks very much.
What an immensely helpful video. Thank you so much.
Thank you so much doctor for this video. You have shed a beam of light that has answered so many of my concerns and even brought explanations to symptoms I didn't even know were symptoms because I thought everyone experienced it and it was normal. I will be speaking to my doctors to see if they recommend your suggestions for me. God bless you.