What does it feel like to have dementia
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- Опубліковано 20 чер 2021
- Today's topic gets right to the core of living with dementia. What does it feel like? Along with discussing what it feels like we will cover Positive Living, Coping Mechanisms, and things that people do to people with dementia that creates a problem.
This just breaks my heart all over again. God help us all. With Alzheimer's it's starting to happen to younger and younger people. It's all horrible.
This is profound advice to those of us in our senior years. Thank you for doing this.
More and more, younger people are being diagnosed with dementia.
Dear Ted, this gives me concrete strateigies to create happiness and comfort for loved ones. Thank you.
I do not have dementia, but I am 74, and I find that simplifying my life has helped me to cope in general. I get peace of mind from a neat and ordered home and fewer possessions. I think you are amazing! Wonderful information! Thank you so much for your wisdom!💓
God Bless your journey, Ted. Thank you for being so brave and sharing so we can better understand.
Thank you Ted. It has started with me too … it is horrible to realise and to know the outcome 😢
I like your attitude. I battled depression for many years and made ONE decision to keep going and change my thinking about life! That was over 30 years ago. I am having memory concerns. Fog and no crisp vivid memories. THANK YOU FOR WHAT YOU ARE DOING.
I love your attitude, first signs of dementia can feel like what you describe. There are specific medications that can help, but you need to take the step to get tested. Keep living a positive life, we can adjust and make changes to how our brain works. Best of all it’s positive effect is shared with others. Please feel free to contact me if you like. Ted
Thank you Ted. God bless you 🙏 You have helped me today. I am going to organise things in my home to make it easier for me. It's becoming difficult now as my illness has had a bit of a jump in the last six months or so. I live alone, the more I can do now to help myself the better for my emotional health ,as you will know 💜
My father had Alzheimer’s, he was saying God bless you even at the end of his life. He had such a beautiful, positive personality.
US Navy sailor here to help translate: "All sailors, from the 'old salts' to the newly initiated are familiar with the following terms: Chit: A chit in the Navy refers to any piece of paper from a form to a pass and even currency. According to the Navy history museum, the word chit was carried over from the days of Hindu traders when they used slips of paper called “citthi” for money." I am 38 and I'm currently on the path to diagnosing my dementia, which is suspected to be Vascular Dementia, since I have CSVD but who knows most dementia are a mix of them. Thank you Ted this has been the light I was searching for on the horizon. I wish you fair winds and following seas!
Thank you! The world definitely needs educated on these dementia types!🙏
You are an amazing person to document your situation.
Thank you. im 52. last year i was diagnosed with white matter disease. its really advanced. im preparing for vascular dementia. you described exactly what ive been going through and i just recently figuring out why. i havent gotten over the depression. i do what i can to be positive and to keep learning to build new neuropathways. the way you described what it feels like it was almost like i made the video. i always find videos on how to care for people with dementia. first one ive found that describes how it feels. i dont feel so alone now.
Amazing! Thank you so much. My mom is going through it, and most of my work is to avoid people making her life harder because they don’t see the disease.
Thank you. One of our greatest challenge is the lack of knowledge of what dementia really is.
I like the analogy of Cerebral palsy and stairs.
- "Invisible" diseases are difficult for others to accept or even believe.
-- People will even say we are faking it.
Thank you so much, Ted. I’m a thirty three year old blind woman, and my Grandma broke her femur a month ago. She had a small stroke while in the hospital as well. This caused her dementia symptoms to progress so rapidly that when she came home, she could no longer drive, use her iPhone, or even go to the bathroom by herself.
Thank you for your bravery and selflessness in documenting your story. I think these talks will be invaluable to me as I get through this final stage of life with my Grandma.
Thank you for being so brave, and through your pain being willing to share your perceptions and experience. Your podcast has been so helpful, and I can understand why you believe God has put you on this path. Thank you for being compliant to his wishes. My mother has Lewy Bodies so I have been on that journey with her, and strangely it has brought us closer together, stripping us down to the essence of who we are and filling us with love for each other. May the Spirit of Truth be with you and in you.
Amazing that something as terrible as Lewy Body can change our perspective to what is important, but thank God we have the time to refocus our attention… thank you God bless both of you.
Thank you, I have early onset vascular dementia. Thank you and the day activity center at our University. Thank you, because I often feel invisible in my family I live with. Angry bc I still have all my feelings in tact. Diagnosed in 2019. I need to identify with you and other patients on UA-cam. I like the cash chips idea. I will watch the rest of your videos. I don’t like long busy days either. Naps are paramount. Family doesn’t understand, but I must be proactive. I am a retired middle school teacher. Bless you!
My spouse passed from that. She had it for about 4.5 years. Sadly one of the spouses almost always checks on atta here first. I lost her about 4 years ago now. She weighed 69 pounds forgot how to eat. I had to lock her in the residence & throw all the breakers on washer, dryer, range to protect the residence. She didn't know the difference between a water closet and bathtub (WTF were they for?).. no clue. I do not envy what you're gonna be facing Leslee but if its any consolation YOU won't know it. Middle school teacher thank you for your service to our children and humanities future! That is a very tough age for all of us I remember going through that miserable era like yesterday. I'm 80yo. BTW check out "quantum entanglement of Soul" you may find the subject interesting.
THank you for this, so valuable. I have a TBI for more than 40 years and it shows similar symptoms. Similar frustrations. Similar depression. Siimilar anger ... :-)
Thank you so much for sharing your journey. I lead a support group for the caregivers of loved ones with dementia. You are making a difference. God bless your ministry.
You are awesome for doing this. Thank you so much. This has been so helpful for me who is on the otherside, aka caregiver. No one knows what's going on inside and you providing this is emensly helpful.
Thank You.
Thank you Ted. ❤️ What you’re providing is so valuable.
Ted, you are blessed by God to be doing this. My husband has dementia and also trust God and wakes up calm and pleasant each day. Keeping us all in 🙏 God Bless
Your husband feels safe in your care. Avoiding arguments falls to the caregiver, but love is at the heart of it.. Thanks Elaine for your understanding and care.
Thank you! You are such a blessing by sharing your personal journey and helpful advice. As my husband has MCI progressing, this is very helpful for us both. God has a plan for each of us, and I've seen Him make beauty out of many things I thought were terrible. He gives us wisdom and strength when we keep our eyes on Him! I'm praying for you on your journey🙏🙏🙏
Thank you so much Ted .I have just lost my husband John after 10 years of dementia. He never once complained but also never spoke about it,so I always wondered what he was thinking.
Sorry for your loss, and thank you for being an advocate of dementia education
Thank you so mucho for this talk. My husband was just diagnosed with lbd, and i just didnt understand what i could do to help. I didn't understand. This helped me alot, and I pray I will be a greater help to him. I'm praying for you Ted.
Thanks for your great feed back, yesterday Christy and I just posted a new video together, I think you’ll find great information there for both the caregiver and receiver. Please subscribe and of course please share. Ted & Christy
I’m listening to what you are saying and I get flashbacks to my MIL on the past few years and more recently, the past 5 weeks.
She has some form of dementia and is running from a diagnosis. I almost had her to the point of a diagnosis and she left my home.
And listening to how you said any form of clutter can impact a person with dementia, my fridge and home would have stressed her out so much.
I just hope she remains safe
You are brave and loved! Thank you for sharing! ♥️
My father has Alzheimer's, he is still my dad I love unconditionally...your family will see you too. 🤗
Thank you for sharing, my mom has dementia, we see it but how she feel... I worry she feels scared. You are amazing. ! Huge insights, things that I never even accured to me. ! Sooo helpful. Great advice. God bless you. This is a blessing to so many and for the care givers as well. And thank you soooo much.
Yes it is normal to be scared. I think that two things help me from being scared of the future…. Having a loving family and trust in God. But it is still hard to not look forward
What she said. 😀
Ok then she knows she has something (she's scared). This author can't process incoming at a normal pace and that's why he doesn't drive. He says he could still drive in familiar areas but prefers not to as its a matter of safety. I'm 80yo and my Great Granddaughter loves riding with me because she just started driving. She says I see things and do things and she cannot believe how relaxed she feels. She says I can see WHY you've never had an accident, Pappy. One day she put her coke on the dash that was in a 20 oz bottle and it never tipped over in the 60 miles that we drove. she says if she did not witness that she would not believe it. She says when I ride with my BF we wouldn't get two blocks before that bottle was either on the floor or up against the windshield!
@@Tador50715 Trust in a Deity, huh? I'm scared of heights. And as you age out you start losing family & friends and there ain't NOTHIN' you can do about it. Well.. until YOUR # comes up, of course. So try this. Learn from the past. Live for the present. Plan for the future. The past becomes longer, the present stays the same. The future becomes shorter and once again they're ain't nothing you can do about it. BTW I do not believe in a Deity but I do believe in quantum entanglement of Soul.
So inspiring to listen to, God has blessed you with courage to share your story,in the joys and sorrows on this rather unpredictable time. Yes ,all one can do is trust and take His hand.....just knowing how you have helped me today is a blessing....Thank you....xx
It is much worse on the people around them, especially their loved ones,.
I’m not sure it’s worse, especially for people with Lewy body dementia because you retain the cognitive understanding of what’s happening to you, and watch your body and mind deteriorate day by day.
Have you looked up Dr Michael Berg? Intermittent fasting and certain foods can slow the progress of dementia....it wouldn't hurt to try.
Yes, there is much here..........alzheimers documentaries Jonathan Otto and Jonathan Landsman and many more.........NO SUGAR NO FLOUR NO DAIRY NO Salt NO oil Diets ................they work...............
There are books out on Ending and Reversing Alzheimers Dementia. It does not have to keep getting worse......The MD doctors do not know the truth. Many naturapathic doctors do.
The focus of my work is on helping people to understand dementia, and for people with early onset to learn how to live positively with dementia. Diet theories about effects on causing dementia are unproven except for people with diabetes or excessive alcohol can cause dementia like symptoms, i.e. cognitive problems.
Thank you. Hope you are doing OK. Your spirit lives giving those struggling like me with an energy to get through
Excellent video!! Very generous of you to be willing to share your experience. This channel is likely to help many people.
Thank you so much Ted. You are sharing valuable information which is so much needed by those with and families dealing with dementia.
Thank you. We send our love to you ❤
Thank you for sharing as it helps me as I help parents with dementia. God bless you
Thank you very much for making this video.
Such insight......thankyou for sharing !
Thank you for this video!
Bless you for doing this.
Thank you for sharing
Thank you so much for your generosity and kindness,🙏🙏🙏🙏🙏🙏🙏
So brave! So compassionate! Thank you!
You are incredibly brave.
God Bless you sir..
You are inspiring!!! God bless you Ted
Thank you for presenting this session in a clear and preside manner. Easy to understand.
Great show Ted. My 1st time watching.
Thank you , your videos help and will help so many people.
Thank you!
Thank you Sir! I wish you all the best! This will help so many! 🥰
So glad I found your channel! Look forward to watching all the videos and checking out your website…. Thank you so much and God bless!
Thank you so much for posting this. VERY helpful
Very useful. Thank you. Hugs
Thank you for the decluttering advice. I wouldn’t have thought of that.
Blessing all about you.✨✨✨✨✨✨✨✨🙏
Thank you for your advise and it is a great share of your perception and experience. We are learning from you while we are working and supporting the community in this kind of environment and situation. Thank you.
Thank you so much God bless you!
Hi Ted, thank you
You are very brave sir and Thank you for sharing your story . Very informative.
Thank you so much Ted! This was really wonderful insight and advice to help us understand what our family member with dementia must feel like and be experiencing.
May the Lord bless you and your family for sharing this information.
Thank you Ted so much for sharing this information. Very helpful in my current situation
Please subscibe
I like the analogy about the chips and using them up. This is the most helpful video I have seen.
Thank you, we all can use this no mater our condition
Thank you appreciate you
You are amazing! Doing this is helping your brain. My spouse has FTD some speech & memory. He doesn’t believe he has any issues except speech, argumentative. Major learning curve for us both. Let us all be well. “One Day At A Time’.
It's definitely different for everyone. But u are right most dementia people have same affect
Thank you . I do have loved ones with this brain disorder , but I also found it helpful to me as I struggle with an I visible illness called fibromyalgia ..it effects the way my brain works because of the extreme pain and fatigue. ❤ many blessings to you
Thanks
Thanks for the information. With my friend who has been diagnosed with Alzheimer's, I've noticed a marked improvement in lack of confusion and movement when the doctor mentioned her to take 100mg of B1 vitamin daily. Previously, the Donepezil that was prescribed caused confusion and dizziness on its own and there is none of that with the B1 which is sold over the counter. She still has the paranoia and the belief that her relatives are taking things from her and I know that's not the case since I'm always over at her place anyway. But at least part of the issues seem to be gone, maybe temporarily, but we'll see.
Really good video. I hope your channel gets lots of support. I found the idea of the chips memory really helpful. I can even use it for myself to make sure I keep mental energy, focus and memory for more important tasks than games or television or youtube
Thank you.very much
@@deniserogerswolf6184 t
I love u man your an inspiration
Thank you very much for this. You are a brave man and it is very kind of you to face your fears in the interest of educating others.
EDIT My next door neighbour has dementia, she is behaving strangely and aggressively, and she is having delusions. Very sad. I do wonder if she is aware of her problems or not.
Wow, this is an amazing video, I admire your courage and desire to help us understand dementia from the inside.
Thanks please subscribe and please please share
Very interesting 😢😊❤
I was diagnosed with auditory neuropothy. And i am still waiting for my dementia test. I cant keep up with the days. I think its a different day of the week. Several months ago. I couldnt figure out the year. I was certain it was 2024. I bacame aggitated angry and scared because i couldnt figure it out. Then i went to look at the calendar my dad has dementia and my grandpa had alzteimers. I am always exhausted. Groups of people conversatio s i cant keep up. I call things. Thingys or thingamajiger. I struggle for the name. I know it. But i cant remember. Not until later on. I was told i needed hearing aids from the ENT which i cannot afford. Unsure what the future holds 46 y o. In virginia
I am watching you one year after you did this talk. I wonder how you are doing by now. I might discover after subscribing. Very interesting, I wish you the best.
Hey! thanks for your amazing videos. My partner has been dealing with Dementia, Alhzeimers, and Parkenson's...:-( I just subscribed to your lovely channel. God Bless!
🙏
I came here because I watched my Grandmother live to 94 with Alzheimer’s disease, and my Dad live to 77 with Lewy Body Dementia, and connected with them in their lucid moments almost to their end of life. I lived next door to both. After listening and reading your transcript I am questioning if I also could have the beginnings of Lewy Body Dementia. I have other physical issues brought on by neurological chronic inflammatory demylinating polyneuropathy (CIDP) that my Dad also had CIDP which causes early aging, but I am 61 and am experiencing all of the things you are describing except depression, and working to declutter and organize my life to make things easier. I also have ADHD so I wonder if some of my adaptation is actually due to ADHD. I will be going through your videos and looking to see if I need to see my neurologist for further information. I and my Dad and Grandma were also Born Again Believers and they taught school and Bible Studies for years until the dementia overwhelmed them. Many prayers for you.
Thanks, i have large fiber poly neuropathy as well that effect all my nerves, so I understand. Seems like these things come in pairs the pain with confusion.
Hi Karen. After reading your history my best advice is to see a Doctor at a well know clinic like Mayo or Cleveland Clinic. Determining early onset requires multiple testing and experienced Doctors
Well here's the thing. I believe its largely hereditary. I'm 80yo but it does not run on either side of my family and as yet I've no signs of it. however, I'm not 90yo either. In fact my PCP enjoys chatting with me as he appreciates my wisdom & opinions because I give him reasons that makes sense. For example we recently discussed the ramifications of EV to ICE vehicles. I told him that EV's will never work and why they will never work. he was fascinated.
Came across your What does it feel like to have dementia because my mom has Alzheimer's Dementia- But in listening to you I have some other concerns. What or why was the trigger for you to be tested & found out you had lewy body dementia- What were you experiencing to cause you to get tested? If you could share as I have concerns for another loved one in that you raised my awareness on. God Bless you and Thank you for using your energy for others!
TRintellix ( an antidepressant ) claims to help cognition too. Has a bit of everything so it may be the most balanced med in its category
Antidepressants are a normal part of the mix of drugs that are used to help people with dementia. It takes a while to get the right drug combination that works, it is quite specific to the individual
Ted , God
Knows best , He knows best,
💜💜💜💜💜💜
My grandad has dementia very hard time of.my life im a mum.of 6 as well trying to take care of him not sure right things to say to him 😢
Did you have a Lumbar puncture at the beginning of this to find out what kind of dementia? Were You diagnosed with MCI first? If so how many years before Lewy body dementia? Thank You!!
Scanning the comments for dietary suggestions that may influence progression. Any thoughts?
I am in the process of being evaluated for Cognitive problems and possible dementia. I am scared to death
How were you diagnosed?
The website is not working.
Is that a temporary issue, or will it be permanently closed?
can't hear
I thought Lewy Body Dementia could only be diagnosed after death, such as in Robin Williams case. Was there any particular test or what to figure out this was your diagnosis?
There are a number of thing that trigger the diagnosis. MRI results show damage, plus hallucinations, and sleep apnea, plus Parkinson’s type behavior, but you right the final diagnosis does not come until after death with a brain biopsy.
🙏🏼 May the Lord hold you and keep you through every step of your difficult journey.
I think we are killing ourselves and w don't even knowing, i am so tired
I don't think they know they have it... however I'm 80yo and have noticed some difficulty coming up with words at times of late. for example past actors. I sometimes need to look up the cast of the movie I knew they played in to come up with them, stuff like that. I find stuff by association. but other times the name or thing "pops in" of its own accord out of the "blue". but no issues with memory other than that and no cognitive decline. I think those beginning with dementia will notice that grasping for words though at least at first. I'm sure Willis noticed it on his own. he probably got stuff like "Hey Bruce WTF?". Anyhow this presenter has issues with driving. He feels that he can't process unfamiliar surroundings quickly enough. He becomes confused. Yep unable to process at normal rates. that could be an issue for sure especially when driving.
Blimey, I’ve got those symptoms at age 65 and I don’t have dementia. There’s nothing wrong with you. Please stop worrying . Best wishes x
i forgot ehat he was saying,can you please reliteralte?
Tunnel vision like the keys example, is a hormonal thing, not dementia. ALL men are like that, at all ages, in my experience. As a post menopausal women I’m starting to get that now. But it’s not dementia. It’s a lack of oestrogen.
EDIT. As for depression, people can have that all their lives because they haven’t got something that they want. The video is nearly over snd I’m still waiting for this guy to mention a symptom specific to dementia!
Go away
I think like a lot of mental illnesses dementia is over diagnosed, ok, your older, sure you will forget things,sure you need naps, I do not agree doctors should decide you have dement's based on those symptoms. If you drive your car somewhere and completely forget how to get home , then you have a mental medical problem. otherwise it's part of the aging process..
Martin you are correct dementia is over diagnosed on older people. But early onset is something quite different and has defined criteria for diagnosis. One is the presence of physical evidence of damage, ie through an MRI or vascular study, ie mini strokes or brain shrinkage in the case of Alzheimer’s.
@@Tador50715 I forgot I made this comment ... Lol.
I did not know this diagnosis was based on a scan, I know from experience too many times mental illness is mis diagnosed, especially in slow learning kids, when all they need is a little more time to figure things out.
Metal electrolysis rust, premeditated targeted, tortured victim.
? Please keep comments positive
do or have you felt like gravity is pushing you down? especially your face