Відео

Thank you.

Thank you Ted for a very insightful video. I have noticed a lot of these in myself in the last couple years and it scares the hell out of me. I am only 43. I would go and get checked up but sadly I have no funds and am currently unemployed. I lost my last job due to poor performance and that really destroyed my self-confidence which was at an all time low already. I live in South Africa and medical is extremely expensive. I occasionally will be walking around my suburb and notice houses that I don't recognize or recall ever being there, and it sparks a sensation of confusion. There are also times when I would get home from work and wonder if I was at the right house (I live with my parents now). Doing something as simple as copying a cell number is a task as I have to copy it a digit at a time because I can look at it and by the time I look at the page or wherever I am writing it, I have forgotten most of the number already. It is incredibly frustrating. Especially since the small circle of people I have do not take it seriously at all, and say that I am lazy, irresponsible and just making excuses for forgetting stuff or putting things in the wrong places. I am really at my wits end.

As I begin this journey with my Mom and my husband I'm very grateful for the information you have shared and continue to share. I have lots of worries but am learning to change how I speak to include tone and body language. My husband does not have a doctors diagnosis yet as I'm having difficulty getting him to go in. He hates doctors. I took early retirement 6 months ago as I knew something was going on. He was not telling me everything and continues to hide things from me. I think he thinks he is doing me a favor and doesn't want me to worry but no matter how hard I try to tell him how important it is for me to know he randomly lets information slip. I can't lie, it's frustrating. I'm learning to kind of just go with the flow. However it would be helpful to know for sure exactly what's going on and what to expect. Your video's have helped with some of the worry alas well as the do's and don'ts. Thank you. 😊

Thank you for sharing as it helps me as I help parents with dementia. God bless you

@Dementia Talks I know this video is old, but is it possible to put timestamps on this video? Nothing like a long video with lots of bullet points to try to follow when you're cognitively impaired. 😬

How does early onset dementia get diagnosed, not from these types of behaviours but via brain scans or other medical tests?

This gives me much comfort knowing you had eventually come to terms with the dementia and the loss of cognition, focus, and memory. At the moment I am gripped by this fear everyday now, but each day I do a little bit better letting go and facing the truth, instead of hiding from it. Although, I don't do too good of a job and I feel am not made for this. Even as ugly as my mind is, I can still find beauty in knowing that this too is part of life and when contrasted with the beauty of the natural world that I once held in my mind's eye, it tears my heart to pieces. Now the anguish from the loss I think is the point, to let it teach me one last lesson. Since, "Naked came I out of my mother’s womb, and naked shall I return thither: the Lord gave, and the Lord hath taken away; blessed be the name of the Lord.” I appreciate what I had lost with a new degree of understanding, although I feel incapable of it. Also, I am not a religious person, but find great strength in these words and humanity, since it is so fragile and worth saving. Take care Ted.

Thank you. im 52. last year i was diagnosed with white matter disease. its really advanced. im preparing for vascular dementia. you described exactly what ive been going through and i just recently figuring out why. i havent gotten over the depression. i do what i can to be positive and to keep learning to build new neuropathways. the way you described what it feels like it was almost like i made the video. i always find videos on how to care for people with dementia. first one ive found that describes how it feels. i dont feel so alone now.

Myself friend diagnosed mild dementia. Im his girlfriend I diagnose it so I took him to the doctor the neurologist they gave him medicine

Thank you, sir! You are awesome

Thank you so much for putting this together and sharing it. Your communication is fabulous and respectful to each other and we all need examples of this in this world. This helps us to all understand ourselves and others better no matter if there is some form of dementia going on or not. You having a new passion and purpose to engage in and share with ( this podcast) I think is so important and I am so happy you have found it and are being so devoted to it. It is important to you and us too! I have had cancer for the last 7 years I I can relate to so many of these things myself. I think my dad does too. We will keep learning and navigating through to the best of our ability too. Thank you for sharing.

It’s so good to see you up and about! Wishing you many more good days ❤❤

For anyone experiencing dementia-like symptoms keep in mind as Ted mentioned there are conditions that are not neurodegenerative dementias. They include: "Infections and immune disorders, Metabolic or endocrine problems, Low levels of certain nutrients, Medicine side effects, Subdural bleeding, Brain tumors, Normal-pressure hydrocephalus." Source: Mayo Clinic list of diseases, dementias and symptoms. U.S. News & World Report Best Hospitals Rankings Ranked Mayo Clinic number four for neurology. You can have dementia, but it doesn't mean it is a progressive neurodegenerative disease like Lewy Body, Frontotemporal, Vascular, Alzheimer's, CTE, or Mixed. Another term to be aware of is 'encephalopathy' which can lead to dementia called 'stable dementia' meaning it won't progress. For layman: "Dementia refers to a change in how your brain functions. It can make you feel confused, agitated, or not like yourself. Imagine feeling mentally foggy or disoriented. It can be a temporary disturbance or, in more severe cases, it could permanently damage your brain. There are different types of encephalopathy, each with various causes. These causes range from infections and toxin exposure to underlying medical conditions. Encephalopathy can be life-threatening if left untreated or may result in permanent brain damage. This is not medical advice, it is from AI and a comment on YT.

US Navy sailor here to help translate: "All sailors, from the 'old salts' to the newly initiated are familiar with the following terms: Chit: A chit in the Navy refers to any piece of paper from a form to a pass and even currency. According to the Navy history museum, the word chit was carried over from the days of Hindu traders when they used slips of paper called “citthi” for money." I am 38 and I'm currently on the path to diagnosing my dementia, which is suspected to be Vascular Dementia, since I have CSVD but who knows most dementia are a mix of them. Thank you Ted this has been the light I was searching for on the horizon. I wish you fair winds and following seas!

Loved Ted's joke even if it didn't land well with the wife, "if your husband isn't listening to you, it doesn't necessarily mean he has dementia."

Thank you so much, Ted. I’m a thirty three year old blind woman, and my Grandma broke her femur a month ago. She had a small stroke while in the hospital as well. This caused her dementia symptoms to progress so rapidly that when she came home, she could no longer drive, use her iPhone, or even go to the bathroom by herself. Thank you for your bravery and selflessness in documenting your story. I think these talks will be invaluable to me as I get through this final stage of life with my Grandma.

What an encouraging video. Ted sounds really good.

Hey! thanks for your amazing videos. My partner has been dealing with Dementia, Alhzeimers, and Parkenson's...:-( I just subscribed to your lovely channel. God Bless!

Hard to listen to him. I hope that doesn't mean I''m developing dementia. I've had brain damage since I was 16, so is it brain damage or dementia? Hah! A friend who's a psychologist thinks at 73, if I have dementia, it should have started by now. My problem lately is getting kicked out of a police station for demanding a police report after being hit on a bicycle by the police's favorite waitress. And getting angry at the management at the apartments where I'm staying. They claimed 3 times that police were coming to evict me. Knocking on my door telling me to leave. They want me to leave because I was injured. They didn't use deicer. It may have been natural to get angry in those circumstances. Getting angry is not good for the brain.

I am in the process of being evaluated for Cognitive problems and possible dementia. I am scared to death

I CAN'T LISTEN TO THIS GUY, WITH THE AHH, UMM, AH, UM GOODBYE DUDE

I believe early onset dementia is dementia that occurs before age 60? What you are describing, I believe, is the early signs of dementia.

Christy, please help me as a wife to understand this

My Dad had Parkinson’s with Lewy body and passed cognitive tests for along time I took him to a psychiatrist with great results in delusional and behavioral problems please seek help early on for best treatment!!!

Thank you for your update. So courageous and beautiful to film your journey as an individual, and as a family. Hope your days would be filled with moments of happiness and fulfillment.

Thank you for being up front with us. You both are wonderful people. May God bless you both.

Thank you so much, this really helps

Thank you, so happy to see you both, and that things are better. ❤

Lots of things here are also caused my neurodivergence, lots of this I was like “why is this me?” I’m severely dyslexic and have inattentive ADHD. With gross motor skill dyspraxia.

Taking my HWD off of Memantine he tried taking for his Sundowner syndrome but it made him worse. He takes meds for thyroid (can’t remember if it’s hypo or hyper; med for BP. .

Best wishes and thank you for sharing! It’s so helpful!

Thank you for sharing your life, your struggles and your successes. You are a help to so many .❤

How were you diagnosed?

Hey guys, happy to see an update. I’m a personal support worker in Canada and I came upon dementia on social media as a way to help the people I work with. Hope that you know you both are not alone in how you are feeling and that this information is so important to be out there! Thanks a bunch

You guys are a blessing, thankyou for your experience and knowledge. ❤

Thank you so much for posting this. VERY helpful

Part of the problem with chores is ability to concentrate.

Dear Ted, this gives me concrete strateigies to create happiness and comfort for loved ones. Thank you.

Scanning the comments for dietary suggestions that may influence progression. Any thoughts?

How do I get my husband to see a neurologist's hes 73 he shows signs I think: keeps lists in his phone all the time, was unable to identify his truck at the detailer, burned a pot pie in the oven, forgot he made air line reservations for a trip,

Inspirational.

Thank you, what a beautiful mission you are on to help us all

Thank you, Ted.

Thank you, Ted.

I am 54 and had an ulcer and intestinal surgery in August. I woke up forgetting names thinking i saw my dad etc. I was fine before. Can anesthesia do this

Metroprolol will make you crazy and have deluisions and hallucinations

Thank you for the decluttering advice. I wouldn’t have thought of that.

Thank you so much for doing this. It's very lnformative. You both are super. 😇

Came across your What does it feel like to have dementia because my mom has Alzheimer's Dementia- But in listening to you I have some other concerns. What or why was the trigger for you to be tested & found out you had lewy body dementia- What were you experiencing to cause you to get tested? If you could share as I have concerns for another loved one in that you raised my awareness on. God Bless you and Thank you for using your energy for others!

Did you have a Lumbar puncture at the beginning of this to find out what kind of dementia? Were You diagnosed with MCI first? If so how many years before Lewy body dementia? Thank You!!