Raedyn's Unique and Fun Life (Pfeiffer Syndrome)
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- Опубліковано 23 чер 2024
- Raedyn lives with a facial difference that is caused by Pfeiffer syndrome. His brother, Julian, is his best friend. Julian believes that Raedyn is "just perfect in every way". Together the two are growing up while learning the value of having a brother who will always be there for you.
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Follow Raedyn and his family at risewithrae...
Julian's a great kid.
He sure is!
Julian is such a hero.
Makes me tear up 😢❤
Such a great kid; so loving and kind!
But he is a super kind kid usual.
Julian is already more mature than a lot of adults. Amazing people, wonderful channel.
Isn't he? What an amazing young little guy. His mom definitely raised him right 🙌
Who asked if he was?
“ Julian is already more mature than a lot of adults” oh really like who 🤨
I was curious because of the trach can you take him many places or is that machine not very mobil
Julian is so eloquent! Everything he says is so intelligent and well put 💕 not too mention he has such deep love for his brother! Lovely family
Agreed ❤
It’s obvious that Raedyn is very aware of his environment; non verbal is not the same as unaware. Beautiful family.
I noticed that when Chris moved the toy car towards the camera to show how it moves, Brayden looked at the camera too, following what Chris was doing!
He's unbelievably intelligent, he's completely aware of everything. Amazing child.
Yes, he is very observant! He watches what others are doing very closely!
Ooohhh. That looks so fun! How do you want to be normal if you could be like Raedyn, right? 😀 Adoooooorable. And that kid is SO, SO smart!
Its Pfeiffer syndrome type I he has, which fortunately dont cause any cognitive challenges. Good for him.
The mom looks so young but she has done a fantastic job with these boys. We need more humans like Julian for sure.
As a former hospice nurse I was very familiar with death….& all that that entails! What I see when I view your channel….is life! Thank you!
Life... With a lot of pain. 😢
@@gloriabarberi1292I see the opposite. We tend to think of people with disabilities as having a painful life. But the purpose of this channel is to teach us that that's not true, by showing the joy, laughter, love in the lives of the people we meet here.
@@gloriabarberi1292 All life have some form of Pain in it. It’s when things go well an you have family around that makes things great. I enjoy life even with my problems
@@Yooperskepticzexactly, I think there is so many examples of having fulfilling lives, the world is beautiful, you just need to know the right people for you.
Thank you for all your commitment and I wish you nothing but the best. Bless you, life is so beautiful.
Raedyn’s mom said the most BEAUTIFUL profound words of wisdom at the end… “It’s important to remember that beneath someone’s appearance is a heart that loves, a brain that understands and thinks. So much underlies somebody’s appearance.” ❤❤❤
This reminds me of my cousin brother(we lived in a joint family, and I accepted him as my only blood-related brother). He is everything for me along with my mother. Now we live separated , and meet like once in a blue moon. This video makes me feel for Julian, I can connect with him and his bro. May my bro be happy always.
I'm speechless. Readyn is unique as well as his brother. The amount of love and emphaty his brother has is astonishing. Mum is clearly doing an amazing job. All the best for all of you. ❤
Mom, you are remarkable. You exude, love. You were sad when you talked about society and yourself, not understanding yourself, what it is to have a child with the diagnosis Raedyn has. Of course you didn't, until he came into your life. I see a mom, a woman, who has given such love and understanding, likely throughout your entire life. You mentioned that it comes down to parents to teach their children that everyone should be included. Yet, here you are with a big brother who instantly connected to his little brother. And you advocate for Raedyn and all children. You are a gift to your children as they are to you. You are a gift to society. And...Julian for president! He has my vote. What a better world we would live in.
You should be a poet
@RM-nm4lb Just a special education teacher feeling all sorts of what I wish everyone could experience. What we can learn from the people with unique circumstances and adverse circumstances is beyond words. ❤️
@@lizzroth8134 I like to think that they are magical and that they hold such peace from which society can only learn.
❤❤❤❤
Such a young mother, she sure has raised her boys well.
Julian is such an amazing big brother i was in tears when he said disabilities make us more perfect that really means alot to hear that from him that really had a huge impact on me i have willams syndrome and all brothers should be an example like julian is
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Julian is mature beyond his age, so intelligent,sweet and caring
Readynnis absolutely precious and their mum is fabulous
I wish them all the best and success ❤❤❤
Chris, you’re the best. I’m so lucky to have found your channel, and all of us are lucky to have you advocating for the disability community. 🎉
❤❤❤❤❤❤
Es usted todo un ejemplo , míster Chris
❤
This reminds me, there was a girl with Pfeiffer syndrome at my elementary school. I remember the family gave a video about her to the teachers to show us kids at the beginning of the school year. It explained a bit about her condition then showed her siblings singing and playing with her, then hugging her. I believe we also had an opportunity to ask our teachers additional questions. I think this was a great way to spare a nine year old so many questions and stares when just starting a new school year. I especially remember the sisters dancing and hugging her in the video. Showing how the siblings accepted her with unconditional love set a fantastic example for us (we were 8-9 year olds at this time).
I was never in the same class as her but we shared hallways for three years and I didn't witness bullying. The one negative comment I heard about her was "she's too sassy" which is not completely atypical for a preteen girl 😅 also we hated how our least favorite teacher criticized us by pointing out how the girl with fused arm bones had better penmanship than the rest of us.
That’s awesome I hope she’s doing well.
@@mrmoviemanic1 Unfortunately I saw through social media that she passed away suddenly in her home a few months ago, at the age of 36. I kind of want to send the family in the SBSK video her celebration of life video.... On the one hand it's a bit morbid since she just passed away at a relatively young age (though still older than the initial life expectancy she was given). On the other hand, I'd love to show them that she absolutely lived her best life and was thriving with a big smile on her face despite all her health challenges. At the time of death she was living with roommates and had her own independent job. It seemed she was very much surrounded by love and joy.
@@UmSalman-xp1wqI’m so sory she’s in Heaven with God and Jesus
I'm so completely blown away by Julian. Not only is he smart and extremely intelligent, but is also an incredibly understanding and empathetic for someone so young. He's just so kind and caring and simply perfect. Raedyn is so very lucky to have him. 🥰❤
What a smart and curious kid! He imitates funny sounds, he fist bumps Chris, he copies the toy opening its mouth... I'm glad he has a family that loves him so much, his relationship with his brother was especially heartwarming 💕
Raedyn is adorable and Julian is an angel - what an amazing brother! They are both angels. Love your channel - thank you for all you do and for showing the world all these beautiful people.
What an awesome big brother. Good for momma too. Stay strong always❤
What a beautiful family. Was happy to meet Raedyn! Julian is so well-spoken and mature for 11, what an amazing friend and advocate for his brother.
I honestly cannot believe just how intelligent and compassionate Julien is.
Mom, you are doing EVERYTHING right. And it shows with both your boys ♥️
Raedyn is lucky to have such an awesome big brother. Julian is a very smart boy, wanting to learn everything he can alongside his mom.
I'm surprised all that personality has enough room to grow. What a cutie. Big bro is golden, too. That is so important. It's funny when Chris plays with these kids and he automatically goes into his teaching mode within the play, in this case making all the different sounds for the car, for Raedyn to imitate.
I have Pfeiffer syndrome too! I love this channel and seeing other kids and adults who also have various conditions and syndromes. I’ve never met anyone else who has Pfeiffer syndrome and it’s cool to be able to get to know them through social media. Though I’m wondering why Raedyn is unable to speak. That’s not a symptom of Pfeiffer.
It seems from this video that he can speak, but it is delayed and unclear. It is probably related to his breathing problems.
Something I’ve always noticed about syndromes or, anything in general, is that things just come in different forms for different people. He’s only 2 years old so I suppose he just needs slightly more time to adapt to speech and the shape of his mouth and tongue (because it looks like there isn’t enough room for his tongue?). But it’s looking very good, lots of potential for his development I feel like.
Julian: "He Ain’t Heavy - He’s My Brother." Your expressive devotion and unconditional love to your little brother are truly amazing and viewed as an exemplary role model.
“He loves like any other kid”.
That just about says it all, Julian! ❤
Min 0,44 Chris claps his hands and you can notice how Raedyn immediately raises the tempo with his rattle.
He loves music probably he's so good at it!
Jillian is the sweetest kid I’ve ever. He so compassionate towards his brother.
Raedyn and Julian are the cutest siblings! I love their bond and relationship!
What a beautiful family. Julian is more mature and accepting than most adults. He's an amazing big brother.
Very Smart
Mom, you’re doing a great job with your kids ❤
It is obvious that she puts a lot of good thought into it, as well.
Julian is an incredibly compassionate and empathetic brother and amazing human! Raedyn is such a lucky little brother!
What a great brother Julian is! He seems so kind, loving, smart. Clearly he's learned that from his mother, who includes him in Raedyn's journey. Raedyn is adorable and happy, his sense of humor is obvious. It made me so happy to hear from this beautiful family, thank you!
Julian is an amazing big brother. So full of love, gentleness, wise beyond his years and a tremendous blessing to his family! I love how much Raedyn enjoyed Chris and his brothers company. What a special family!
Julian is exceptionally intelligent and mature. It’s a shame that he has had to grow up so quickly but it’s beautiful that he has stepped up to the plate and looks after his little brother and his mother.
He will grow into a great man.
Raedyn is so precious. He’s a special gift from God. God bless Raedyn, his handsome brother, and the rest of the family. 🙏 ❤ 🫂 😊
Raedyn is such a happy contented child and very lucky to have a big brother like Julian and Julian is very lucky to have a little brother like Raedyn and they're both very lucky to have a very loving mum. Seeing the brothers interact really made me feel happy. ❤
Everyone needs to learn a lesson from Julian! This little boy is incredible!!! What a loving, loyal boy!!! He's going to be an amazing man someday! The love he has for his brother is just beautiful!!! I see people way older that can learn from this little boy!!! Raedyn will be well taken care of!❤❤❤🙏🙏🙏❤❤❤
hey i have hydrocephalus as well. thank God i am now 39 and have a shunt that was revised 2 x's before this final new one. God Bless Raedyn!
What an amazing older brother. Oh my god! So so caring.
Raeyden really has the best brother in Julian. 🥰
You're doing a wonderful job, Mom! Julian is a testament to how well you raised by him. 👏🏻👏🏻
What a sweet family. I love Rraedyn's spirit. He's so fun. And Julian is precious. So sweet and loving of Raedyn. Their mom is also precious. This can't be easy, but she shows such grace and love.
Watched this with my 2-year-old.❤ We laughed so hard together with you when you played the "you're so strong!" game.😄❤️
God Bless both these precious babies. Precious ❤️
I'm happy Raedyn gets to have fun and Julian has a bright future with how loving he is.
If only more kids could be like Julian. Wow, what a great young man! You can tell he will go far in life and do good things, and always be there for his little brother ❤😁
Raedyn is so cute and his brother is mature about him and everyone just loves him
it brings me such joy to see so many loving and caring siblings and families on this channel. what a beautiful family!! julian and raedyn are so sweet!
I looooove this child! Natural born teacher! So sweet and so many abilities! Wish you were closer, and we were lucky enough to spend more time with you, and your incredible Mom and brother 😊
What a beautiful family. If more people were like Julian, the world would be such a nicer place. It’s so easy to be nice to people and accept them for who they are because everyone is unique and special.
Cute baby. Raedyn's big personality and sense of humor shines through. He is blessed to have a wonderful big brother.
Thank you Mom and Grandpa and Big Brother for sharing your story and educating us all about Raedyn's condition. Much love to you all!
Such I sweet and caring brother❤💪🏻
"when people stare, he smiles and waves at them" i think we all could learn from that. love that. :)
Kids and people stared at my brother also. I spent a lot of time with my brother too. I’m still his best friend sister.
These kids are amazing. They remind me of my daughter and son. My son has special needs and his older sister is amazing with him. Same relationship like these kids have with each other. This family has beautiful souls.
I was 9 1/2 when my sister was born with multiple disabilities and medically fragile. I adored her. It's a great age. I liked being able to help. Wonderful, loving family
Hey Raedyn! Hey Julian! Yo, your video was really awesome. I learned a lot about Raedyn and it left me wanting to know even more-he seems like a pretty rad little brother lol. And I just know he is especially fond of you, Julian. You’re perfect big brother material 💪
Truly the best
Raedyn is the best...
Big Brother is the MAN!
LOVE THEM
What an incredible family! Way to foster love and emotional intelligence in your boys :)
It's just amazing to see one more time that life, any life, blossoms when there's love. Raedyn, despite all his medical challenges, is one lucky little guy. He's smart, engaged, funny, and he's swimming in love... That's all what we humans are after, and he got plenty of that. Beautiful video, beautiful family.
Julian made me cry. He’s such a beautiful soul and so mature for his age. He is his brother’s keeper 🩵 💙 their mother has so much strength. Their grandfather, their entire family is just so kind and so beautiful. I wish you all the best ❤
Dang, Raedyn has to be the coolest name I've ever heard Wonderful family.
Awe, this family is just too sweet! I love their outlook and Julian's love for his baby brother. They'll have an incredible bond for life ❤ rockstar mom!
Julian is wise beyond his years. What a amazing boy. Good job mom! We need more of your family in the world. Raedyn is adorable and so happy and smart!
These are the sweetest brothers I have ever seen. You can see the true love and kindness within this little family ❤
This kid’s got rhythm!! Keep the music going with him, for sure!
This channel gives me so much hope in humanity! I’ve been stuck in my head and focused too much on the negative the past few days and this is just what I needed ❤
I never comment on videos …it is AMAZING to see Julian interact with his brother. He is so freaking mature and caring.
I can definitely see Julian going into the medical field when he’s older because of this
What a lovely family! Thank you so much to all of these families for telling their stories and helping us all learn. We are all so similar and want the same things.
Thank you so much for posting these videos
What a beautiful and sweet little boy. His brother is blessed to have Raedyn for a brother. I love when Raedyn did knuckles ❤
It fill my heart when I see siblings that are so supportive and at such a young age ❤
So much love and support in this family, among all the members. This is the kind of family we should all be striving for!
The love this family has as a unit is immeasurable ❤ thank you
All I can say is that I love Raedyn and I do not even know him. He is beautiful just the way he is. 💙💙
These videos are need to raise awareness of this condition. That little boy is A Champion. Love him so much. His brother will be a upstanding Adult. Love to the family.
Julian's heart is so kind! What an amazing young man! It says a lot about how his mom is raising him. This video really warmed my heart.
Amazing family members 😂😂 bless you 🙏🏼🙏🏼
More awesome people! I love this channel. He is teaching us all.
You're amazing Chris!
Raedyn is a lucky kid to have such a wonderful mom and brother! I wish we all could be so valued!
This channel inspires me and gives me joy!
💗super clever and loving boy brother mum .... they are brighter than the Sun.
Oh my goodness. I just absolutely love this videos. Thank you for sharing this beautiful family! ❤
This family is so beautiful. What wonderful brothers they are and a special mother that loves her boys more than anything.
You guys are so sweet. Beautiful family. Thank you for inviting us in.
What a beautiful family ❤ those little boys are so lucky to be so loved and cared for, and that has got to be one of the best big brothers a kid could have ❤ thanks for another wonderful video, Chris-you teach the world so much about people who otherwise can often be misunderstood, undervalued, or excluded. Videos like yours genuinely make the world a better place, every day.
What an amazing relationship these 2 brothers have ❤ A truly wonderful big brother Julian is. Blessings to these 3 young men and their mum😊
This family is amazing!!! Saying HI and cheering you guys on from Vancouver Canada! 🇨🇦
I’m so impressed with all the families that you interview, especially the siblings. They live and support their brother or sister and seem so generous. It can’t be easy when mom and dad are stressed about money and doctors visits and creating a life to accommodate the differently-abled child, and yet, these kids are so generous and loving. ❤
Raedyn has such a sweet loving laugh! Beautiful family, all very blessed. Thank you Chris!
What beautiful boy's! Julian is so smart & compassionate. And his brother speaks well for a 2-year old. And as always your interaction with him is so amazing & inspiring. ❤️❤️
What a lovely family, such a loving mum, such a kind brother, raedyn is incredibly lucky
Raedyn is an adorable little boy, he brings happiness and joy to his mummy and big brother. I wish this beautiful family health wealth and happiness. We all need to be grateful for what we have in life because sometimes I forget what I have. It's the small things like breathing without aid, we forget. Thanks for reminding us that life can be amazing ❤
Beautiful family! Great kids, and wonderful mother. Julian appears to be gifted. A slightly older, very smart friend, if you can find one, might help him blossom even more.
The older brother is so intelligent so loving and caring, blesses my heart. The little one is so precious and he’s very smart to beautiful family. God bless you all much love
Thank you so much for these shows. You have such a gift of communicating with all you interview. And I so appreciate the ability to know how to better understand and possibly help those who face these special challenges. Thank you 😊
Rayden and his brother are truly nice people! They truly are amazing!
Thank you for sharing Raedyn's story. Julian is the best brother! What a great advocate for your brother! And great job, mom, for being such a great mom . ❤
Lovely story and people! Thanks Chris for giving people like this a voice