I Met Someone with Fibromyalgia
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- Опубліковано 9 чер 2023
- I live with chronic illnesses such as fibromyalgia, pots, dysautonomia, autoimmune diseases, chronic fatigue and chronic pain.
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This proves the point that, what works for one person, may not work for someone else.
Long covid. Costochondritis and Fibromyalgia.
Fibro never goes away so she just did not have it.
Yup, the woman in her story did not have fibro. It never goes away.
Sorry to say because I'm a people pleaser and would love nothing more than to agree with everyone ¯\(°_o)/¯ but sometimes there can be something in her life that allows her Fibro to shift into low gear for awhile which could absolutely help to make her life more manageable. It could be any number of things, diet, exercise, or any number of positive life changes she's made that just happened to coincide with the exercise routine she started.
It doesn't always happen to everyone because each of us are so different and each key is unique to each person....but if you can find the key to what works for you and your body you can get relief as well!! And, if you've been lucky enough to find your "Magic 🗝️ Key" so many people would be so incredibly happy for you ƪ(˘⌣˘)ʃ After all I'm certainly not a doctor and would never dare to say that you must not have ever had fibro to begin with. I mean if cancer patients can go remission why can't Fibro patients too? 😊
Sending peace ✌️, love 💕 and happiness \(๑╹◡╹๑)ﾉ♬ always!
@@RokinRobinTweet fibromyalgia can go into remission but that doesn’t mean it goes away, it just means it’s in remission, just like people that have it but it doesn’t manifest until an event pulls it out of dormancy.
True, even doing everything for me its
goes worse
@@Ingles_comAlineI guess we just have to live with it
I am so frustrated with it, I was always active and on the go, now I can hardly get down the stairs. I hate fibromyalgia. So sorry your struggling too. If you have any ideas to try I'm all ears. Keep strong we got this x
Ignorance to the appropriate natural herbal cure as well made me to suffer fibromyalgia for so long not until I come across Dr emuakhe on UA-cam from Africa
As someone with severe endometriosis I FEEL YOU! It's really ironic because the year I spent improving my health was the year my disease progressed extensively. Living with an incurable illness is tough. It just is. ❤
Thank you for validating my fibro struggles!
Been diagnosed since ‘95. It never goes away. There are less flares but that’s the best it’ll get. I do water exercises & walking (low impact) & yes the exercises decrease the flares but there are times I’ve overdone them & resulted in a flare. I had to find that healthy balance & it is a fine line. I think it’s different for everyone. For me, there are other triggers: weather change, stress, low / no sleep, etc but you learn what your triggers are. I had to learn to manage it & not let it manage me. Gentle hugs my friend.❤
Ignorance to the appropriate natural herbal cure as well made me to suffer for so long not until I come across Dr emuakhe on UA-cam from Africa
I started working out every day. And I am not going to lie I do feel happy with energy & much lighter. But once the clock hits 2pm or 3pm. I am very exhausted I am ready for a nap. I did change my lifestyle of eating. I have done zero sugar & low carb eating. I do about once a week juicing. But I still feel tired & weak some days. I have Lupus, Fibromialgia, migraines since i was 14 years old, orthostatic hypotension. i have osteoarthritis in my lower back, hips, knees & neck. I have sciatica & osteoarthritis in my spine. I do take vitamins and drink teas mornings and nights. But this is my life everyday one day I am well & another day I am not. So I know how you feel. But thank you for your videos
I am sorry to hear all of this. Find joy and strengh withing yourself...there's still a lot of joy around us.
What's juicing?
Praying for your healing you're so brave and strong 💪 🙏🏽
I hate the mega exhaustion that hits mid day. I know everyone sometimes gets sleeping in the afternoon but this is different. I remember before I had fibro I would get tired in the afternoon especially after lunch but if i get up and move around it would go away. Now I literally can hardly keep my eyes open even when up and moving. If I sit I immediately fall asleep. There are times when I sit and try and fight it and I will actually start to dream with my eyes open and I will start talk nonsense. It's so bizarre. The thoughts are completely nothing to do with anything real either. Stuff that truly doesn't make sense. When I shake it off I forget a minute later what the thought was unless I work to remember it just like a dream too. Do you get that?
Sooo true.... I tried endless list of things. here i am 30 years later, truly feel like I can't go on most days as pain etc are off the chart😣. Thank you for your posts.
Blessings for far better days to all who suffer. 🌹🙏✨
I feel like the older am getting the worse it’s getting like yourself I’ve had fibromyalgia for decades and now I’m older everything is just naturally aging as well and hurting and the two of them are not mixing well together ❤❤
Thank you for your comment! I feel like a lazy failure who is just being a wimp. The guilt is terrible. My poor husband takes care of me, our 3 cats and the house right now. If others feel the same way, I feel more validated! 🙏🏻❤️🙏🏻
I am so thankful I found you just a few days ago. The struggle has been real, I have Sjogrens, and then here comes POTS at full force. Which I do believe I have had for many years. I am getting all your must haves. ❤❤❤
I’m SO thankful for you😊!!!
Aweeee. Thank you! You made my day!
I've tried EVERYTHING. Every thing. I have taken the worst amount of pain...and then I came out of my 4th emergency surgery and it was like someone set my skin on fire underneath my skin. I had postoperative pneumonia too but I literally woke up from the surgery and everything had been set to the highest setting. And I just recently watched a video on Fibromyalgia and realized I should get checked out for ADHD...because apparently, it's super common. And uh, it would explain why I have felt so insane with the way my thinking has been going. I have felt like I was in someone else's mind for about 5 years. The Fibromyalgia has been here for almost 20 years now. The brain studies on it is interesting. I do stretching every single morning, deep dancers stretching...and at night.
She exercised and it went away?? Good for her but mmmm I would have thought that that wasn’t really fibro! It’s a long hard haul to recover all your body systems when conventional medicine doesn’t cut it isn’t it.
True. Good point
I just found your account and your are so validating, thank you ♡ I have chronic migraine/pain, pots, and narcolepsy, and this summer has been harder than I could have evert imagined. It's really beginning to affect me mentally, even more than usual, and I keep feeling discouraged every time different holistic approaches don't work for me. You're doing great. I see you and hear you and I really appreciate your videos ❤thank you so much
I’ve had fibromyalgia for 20 years.
I still walk, try to keep house. Church is as often as I can go.
People mean well. I have potions and vitamins and lotsa advice. 😊
Coupled with Lupus, it’s crazy. You need to take care of yourself. Rest, sleep, and do what you can. Good days will come along. I hope you find a good balance and can feel better more days than not! God Bless!
It seems to me that in ME/CFS/Fibromyalgia that the Krebs cycle is not fully functional and mitochondria inside cells do not work efficiently to release energy. In that case, aerobic exercise would leave a lot of lactic acid in the cells and damage them further. Maybe weight training along with ketogenic foods would do better, but I don’t think it would work without sports supplements to boost the health of the mitochondria. Marty Ross has a couple of essays you should read about how to fix fatigue and boost energy by supporting the mitochondria and the Krebs cycle. By the way, he doesn’t have the cure for ME/CFS, but if you could get even 15% more energy each day, then that’s a good benefit. Cheers.
Thank you for sharing!
But the question always begs to differ...Why... why is the mitochondria not functioning correctly? If one can figure out the root cause, then I'm sure we'll find the cure
@@Josue-xd5ru I think Rich Van Konyenberg was close to discovering the cause of mitochondrial damage and disruption of the Methylation cycle and Krebs cycle, but he died suddenly before he could share it completely. He did share enough for patients to learn how to supplement their diet in ways that support the enzymes in those cycles.
Been diagnosed since 2011, quit my job, tried another one,at last I changed my nutrition, exchanged my badest pills to nature substitution and less dangerous things and meanwhile look forward to get a job again.
Blessings 🙌
Aimee bless you Fibro Sister!! Ain't that sumthin'!? Excercise daily I'll take it. Great diet I'll do it. But yeah.... something's missing
Fibromyalgia is a disease not what you can stop with exercise,I was a victim of fibromyalgia for so many years not until I come across the appropriate natural herbal cure by Dr emuakhe on UA-cam from Africa
That's true what you said, everyone feels different and experienced different.
I’ve got it an it’s no fun an does not go away. Thank God I waited until I’m in my 70’s to get it
I walk twice a day and do resistance training once a day and it is the only thing that has improved my functioning (not my pain). My fibro pain is worse but other symptoms, my PoTS and other autoimmune diseases are better. The walks are just slow short walks with my dog and they have to be close to home because otherwise when I hit my energy wall I might not be able to get home. In saying that, for 4 years everytime I tried to do this I crashed and spent months in bed. Every body is different and on its own timeline. This is working for me now, in a month it might not. Something else might. I hope everyone finds something that helps them but is kind to themselves no matter what.
I have had fibromyalgia for years the struggle is real.
I was also diagnosed with fibromyalgia 3 years back the same as you after having a good poisoning attack......all my family members recovered but me got fibromyalgia....I also got recovered with exercise but now again it came back....and this time it feels like rheumatoid arthritis
It has over stay in your blood system,I was a victim of fibromyalgia for so many years not until I come across the appropriate natural herbal cure by Dr emuakhe on UA-cam from Africa
Say it louder! Thank you for sharing your thoughts. For us, we get so much negativity and “miracle cures” that it’s exhausting hearing the same things like that over and over.
Thank you so much ❤🎉
I am with you....really struggling. Get the book what your doctor may not tell you about fibromialgya by R. Paul ST.Amand. I just got it, we might find light at the end of this tunnel. Sending love to you girl!
Kudos to Dr emuakhe on UA-cam from Africa for curing my 16 yrs old fibromyalgia without any reoccurrence for about a year now, keep it up sir
Keep on keepin on. ❤ it’s a very hard struggle, but try to make the best out of every day.
I have it too, I feel your pain ❤
I have fibro and I always felt like exercising would make the flares worse. I'm going through physical therapy for the 100th time and I have no hopes at all for it
A colleague was also diagnosed with fibro. She was able to wear heels, look impeccable, have children, take care of her children, have a social life, drive a car, come to work every day, while I was a total mess - inside and out, I had to quit that job a few months later. Fibro can be different for everyone ...
Exactly based on differences in the blood system, I was a victim of fibromyalgia for so many years not until I come across the appropriate natural herbal cure by Dr emuakhe on UA-cam from Africa
Swimming helps me so much
This biggest problem I face is that I want to lead a normal life just like any other normal guy and to lead a normal life, I have to bring out the best of my potential but Fibromyalgia is a big hindrance.
I know it is difficult for people to understand the depth of this desease as a person with fibromyalgia mostly does things normally but the symptoms are always there and we do not share our problems openly coz people won't be able to feel our pain.
Even if they start acknowledging how severely painful fibromyalgia is and even if they start treating us that way, it will make us weaker because at the end of the day, happiness asks for good health.
I have it, it's very hard to deal with. Still looking for my magic pill to help. ❤
Never give up, I highly recommend reading the 'salt fix'
It can’t be cured at this point unfortunately. It can go into remission forever if you’re lucky. I think that’s what I have but I’m going to a million doctors to try and get properly diagnosed. I got sick in my mid twenties, most of my symptoms then went away for 25 years. 5 years ago strange things started happening and now I’m sick again. I want to know so badly what I have so I can get help. I can’t exercise because I hurt too much, particularly in my right hip. I got a cane which has helped a lot so I may be able to do some walking with my husband. I pray for all of us to get better each day. The depression and anxiety are really difficult. Tough to get motivated but I am able to get to my appointments and family events which is good. Otherwise, I’m in bed or downstairs with my husband watching television (actually a big step!). I try to use our stairs now too. It has helped with my energy. It’s a shame so many doctors don’t have a clue about diseases or syndromes like this. They don’t even know if fibromyalgia is autoimmune or not! Oy vey! I keep saying I need a support group but I need to actually look for one. Sorry for rambling. Sending love and prayers 🙏🏻❤️🙏🏻😻
She didn't have fibro...hate it when people say they have it when they don't. I don't leave my home, apart from going to the doctor's a few times a year to get my bloods done...after my docs appointment (my doctor surgery is near to my home)...the sheer effort of getting ready..being sociable to the nurse, getting home and back into my pj's...l'm completely floored for at least 48 hours...l have a stoma on top of that (crohn's disease)....only took them 60 years for the correct diagnosis....😘
You make a juice of 2 green apples 2 stick of celery, carrots, beets andbso on you can look up recipes
I think I might have Fibromyalgia that is clearly connected to my gut problems.
Symptoms: muscle stiffness and soarness mostly in left hip and shoulder area which I can't get rid off no matter how much physio work I do on them, it keeps coming back. Along with feeling the temperature differences much more, mind fog, tired and missing energy to do stuff, numbness in hands & feet, also depression kicked in but that might be just because the symptoms I mentioned came back and also gut issues. So ye the gut issues I've been having for a long time (5 years already) and progressing with that, resolving each and every thing I diagnosed (leaky gut, gut dysbiosis, candida, gastritis, SIBO, histamine intolerance). But finally I managed to heal SIBO and diagnose the last reason of it keep getting back - the histamine intolerance. So I started treating the histamine intolerance while not longer having SIBO and the Fibromyalgia symptoms just disappeared. I could start exercising harder without the muscle pains (left side muscles were weaker than the right side), but it was so much different and feeling normal again. The numbness went away, temperatures no longer were the problem and I could think clearly, quickly without any effort.
After about 1 month it all came back now, together with bloating and inflammation even though I eat the same thing and in normal portions.
Most probably SIBO is back, I got my ideas why - because I was overeating and going hard on high fiber foods, hoping to feed the microbiome and get back to great balance there. But it was creating bloating and troubles with digestion sometimes and probably few of those inflammations were enough to start building SIBO again. I just went to hard on the recovery plan.
Anyway, for me the fibromyalgia symptoms are clearly related to gut issues no matter if it is SIBO or histamine intolerance, they provoke gut issues - which give me the Fibromyalgia symptoms.
Hope this helps someone, who might have the same connection.
I also have psoriasis - which is a great marker of overall gut inflammation. Whenever I get better with gut, the psoriasis get's instantly better as well. It all relate to the gut for me.
Some people benefit from a carnivore or keto diet. Mitochondria in nerves are damaged by chronic inflammation. Many fruits and vegetables have defense toxins to protect themselves from being eaten. I've had fibromyalgia, insulin resistance even longer, pcos since my first child, for decades. Im breaking into carnivore. Many other patients have had improvements and remission under keto or carnivore diets. The USDA came up with the food pyramid. It's worth a try... don't give up hope. I believe in you and believe hope fuels us on the worst days.
Okay to all the people who’ve been diagnosed a long time and it never goes away so the lady in the story “doesn’t really have it” firstly, would YOU guys like to be so invalidated? Because you’re doing that in reverse. I suspect most of you know how hard it was to get a useful diagnosis (even if that diagnosis changes) and secondly how invalidating people are which is literally what this short is about. So instead of passing judgement on someone you didn’t know and what was not the point of the short, learn the point which I think is that everyone is different! Some people DO find things that help, some people DO actually find exercise works! Wow!!! And others do not. Some people find diet changes are helpful, some do not and some simply cannot afford them! So on and so forth. So please stop judging people in all directions and accept everyone is different with different circumstances. If you pass judgement on a diagnosis then you’re “just as bad” and wouldn’t you, yourselves fair better with support and understanding not a complete annihilation of your experience. Thanks!
I feel exactly the same. Nothing really works.
I got fibro when I was 18. I am now 66. The only thing that 'worked' was and is courage.
Try eliminating Salicylates from your diet. It’s working for me ☺️
Can you clarify what that means? Is that one of those diets that says you can only eat salad without tomatoes and that’s it?
I had been diagnosed with Fibromyalgia and I went to physical therapy and water therapy and it just didn't help, it felt like it made it worse and I would be so exhausted and in pain after every session even though I could physically do the tasks at the time.
Turns out that I had been misdiagnosed for years! I actually have a hyper mobility connective tissue disorder called Ehlers Danlos Syndrome (EDS).
I started seeing a PT who has EDS herself and finally got the validation that the way PT is set up for the majority of patients is actually the opposite of what you want to do with EDS because it strains your connective tissue and escalates nerve pain.
Now I just do some gentle exercises for my supporting muscles at home every day and I do a lot better than before.
It's nice not to be gaslit that I'm just not trying hard enough to push through the pain.
I worked out 6 days a week before fibromyalgia. Now I can barely do anything. Working out is not gonna fix it.
I’ve had it after the birth of my child 30 years ago. I has been disabling
I have fibromyalgia, osteoarthritis, and Ankolysing spondylitis. Not even morphine patches take the pain away, so I know how you feel. I'm going to try EMS today. Let's see how that goes.
Perhaps she had the flu, perhaps she had some thing that caused muscle pain or something temporary that eventually cleared her system. It never goes away. And even if it is under control as best as it can be, you still get flareups, and sometimes it hibernates, but then it comes back with a vengeance. Pain is pain, and we shouldn’t compare ourselves to others. We are all unique and process things differently, because our bodies are all different. We could be happy for those that don’t have to suffer this nightmarish illness! No one should have to go through this. I’m glad you got a chance to express yourself. It’s just something that we have to live with. We keep attempting to try things because it never hurts but most of the time it doesn’t work or causes worse side effects. Hang in there. Talking about it helps, especially with those who can relate and are compassionate and sympathetic to your situation.
I have Fibro and it makes life very difficult. I have alot of the symptons that you are all describing in the comments. I'm in pain mostly everyday.
I suffer fibromyalgia for so many years not until I come across Dr emuakhe on UA-cam from Africa
Totally truth!!!
Ya, I hate when people just say to exercise.
Yes I’m that person who hasn’t found my happy pill & it’s been years of going to doctors with no relief, although cymbalta has helped tremendously with pain I’m scared of being addicted now and what will happen if i don’t have a prescription for it 😔
I do wonder if it was a misdiagnosis.
I also had severe nerve ending pain with fibro. Showers were too painful. I started wearing tight sports bras so they wouldnt move on my skin, tight tank tops under my shirts. Then a year ago my dr tried a medication on me that blocked the nerve endings.
It worked!! I still have the other issues but this was a major breakthrough for me.
God Bless you for these videos.
👉 You cannot exercise fibromyalgia away. She was misdiagnosed.
Wishing you well ❤
My friends and family still don't understand.. after 23 years! 😢
has anyone found the magic wand, i haven't, only rest and more rest.
If only the pain is real, it's our brains sending signals telling us that we are in pain if only we could switch it off permanently healing chronic pain the way out is a good book x
Yeah...fee!s like I'm sleeping my life away
found a possible cure, B1 thiamine @@rsw808
study the B1 thiamine protocol@@adayinthelifeofmypets3897
💜💜💜
Maam is this nerve pain? Or muscle related
Geez if I exercise it gives me flares and I’m in more pain
True I have fibro :(
Treat sacral and brachial plexus radiculopathy =zero fibromyalgia pain. What fibromyalgia mystery simple adjustment? Did you try being gluten free ?
Oh my gosh, to see and hear you
I've had it for years I feel like I'm at
The end of my rope. The only thing
I have is gabapentin. I'm in bed
More then I'm awake I have fibromyalgia and neuropathy, the
Problem is we don't look sick, and
If they only new. I'm Mark can
Someone tell me symptoms and
Any special meds out there
Please let me know ❤
I have fibromyalgia and if I exercise I spend 3-4 days in bed not able to walk 😢
Maybe gry carnivore heard it reverses fibro
I guess she had myofacial pain syndrome.it's really to misdiagnose fibro as there isn't any certain test. those symptoms according what they diagnose could also mean something else as well
Adriaaaaaaaaannnnnn!!!!!
I dunno what was her case, but Some ppl think they had fibro.
You didn't try injections
So what did you want to do to that person if you could? Slap them, tell them to leave now, and never speak to you again. I see you mustering all your energy to be polite, all the while expending the rest of your energy to function as a human being. For the male population must feel robbed, because you’re one of the most beautiful women on the planet. So your social life must truly be crushing your soul not to have a normal one. Yeah, I know I’m not helping. As much as your life s less than stellar, this is what you’re providing. Your able to share your experience through social media, because those before didn’t have it to allow them to make an income while staying at home. Which I hope you are able to. Granted it’s not what you wish to be doing with you life. I hope you have someone to help you out during those time it becomes to much to bare at times alone.
Yeah... That's not how it works. At all
i exercise everyday and eat healthy ,lost weight ...nothing helps
It's so hard! :/
The Root Cause Atlas Subluxation Research : NUCCA , Blair Correction , Advanced Atlas Orthogonal , Upper Cervical Correction. And Remove The Nerve Interference Once And For All.
You already know you have c1 c2 misalignments. But did you stick with the chiro?
Yet you didn’t exercise. Hmm I wonder
try stem cells