Hospice care trained me the unrecognizable daughter now untrained nurse aide in my livingroom. Hospice staff taught me how to do what I had no skills to do. I was a computer programmer not a nurse! Thank God for the support friendship and excellent care. Our family could not afford 6,500$ a month in OK for a nursing home. Hospice helpedme help mom to end of life and berievement counceling for me for a yr after. Thank you so much to hospice!!!
I was a Hospice RN in the 90s and the one thing I kept hearing was, "We just wished we had signed up much sooner!" Hospice can help with so much and save the family and the patient a lot of money and stress.
For me, Hospice care gave me the opportunity to be a daughter instead of a care giver. I just let the hospice team know of a health issue and they take care of it. I get to enjoy the time I have with my mother. Thank goodness for my team.
I was a hospice nurse for many years. It was the most rewarding of my 30 year nursing career. I had many dementia patients. Most of our patients were at home and only went inpatient at the very end though not always. Hospice is a wonderful provider for the patient and loved ones. I had patients on hospice for well over 3 years. They only need to be showing a decline.
My husband was on hospice for 3 1/2 years. I truly believe he lived that long because of the amazing people at hospice. They are there to make life as good as possible for the patient, and are so miuch help for the caregiver. I tell anyone who is caring for a loved one to get them on hospice as soon as they qualify.
We tried to get hospice care for our mother a few years ago. They said they couldn't help because she had dementia and only help people who had only 6 months to live. There is little help for people living in rural areas.
I live in a state that we pay the highest taxes in the country. I live in the suburbs. Nobody has any money, check to check. Fully supporting her, because instead of actually thinking about anything at all, she has nothing. And she absolutely could have. makes me weep. Believe you me. And we only get 4 months. I hope it worked out for you. The reason we don’t have any is because I married into the Borgia family.
Hospice care is a great for my husband and me. Being the caregiver, hospice care has helped to relieve a lot of pressure off me. I'm grateful to have for them.
Just last week I asked for hospice information from our local Council on Aging. This gives me a lot more information and confirms that I need to start with Mom's PCP. Thanks!
I was able to put my aunt in hospice after she fell and broke her upper femur. Her dementia did not respond well with the pain, morphine and anesthesia and she went down hill very fast. I wanted her in home hospice but they would only come once or twice a week. Being alone and having no help I was able to have her in one of their facilities. They gave her real good care and made her as comfortable as possible. She passed away on the 5th day. She went from walking well and doing things to her fall, surgery and passing in 12 days.
I used to help patients at home with other caregivers, and was concerned about Hospice also coming in to the home because their pprotocol seemed to be giving the patient morphine for pain relief, even when I never witnessed any pain that the patient might have had. Seen it many times...then the patient passed away shortly after the pain meds were given.
It seems to me that the family has a lot of control over the administration of the 'comfort kit meds' .... sometimes death comes quickly, other times not ..... 🤔
Sometimes the patient is in pain and the family doesn't think they are but the hospice nurses know what the patient is going through. I think in general is best to let them help guide you.
My husband was moved from the 'hospital' to a 'skilled nursing facility / veterans home' in 2020. After two weeks we brought him home to be on hospice care. Shortly thereafter many of the facility patients died 'of covid'. My husband graduated from hospice after one year! We were blessed with an Amazing Nurse! I don't have a lot of good things to say about the rest of the hospice team.... My husband is currently on 'VA Home Health' and has a wonderful female Nurse Practitioner...... and the beat goes on ....
My husband has been in assisted living memory care for about one month. During that time he has stopped eating even though they have tried everything to interest him in food and he has lost over 10 pounds. He will be seen by Hospice to support his care and the facility explained he could get help and stabilize and be off of Hospice care.
My husband was in Hospice for 11 months. They kept his PCP and his neurologist since he had a condition they never heard of. He kept slowly deteriorating over time.
Thank you-lots of good info- sharing these videos with my family so we can all be informed and start having the big conversations. Question: In your experience, if a patient graduates off hospice care but needs the hospice care again at a later time do insurance companies/Medicare usually cover the cost of the 2nd or additional hospice care? Also if you’re not already planning on it, would u be able to give us some red flags to look out for when choosing a hospice or palliative care company? The good and bad things to check out maybe? ...I guess that’s assuming the patient/family get to choose the company they work with? Is that something usually assigned by the primary care doctor or insurance company or..?
Mom's doctor referred her for hospice care. But after the hospice nurse assessed her and said she did not qualify because she was not completely bedridden, she had a vocabulary greater than a few words, and she was not completely incontinent. I had hoped to get some help, but no.
My mom has late stage dementia and was turned away by hospice because she uses the lowest possible dose of Imbruvica) chemo 1x/every 3 days to control night sweats from her CLL leukemia (strictly palliative) so she can sleep at night. We would have to discontinue Imbruvica to get hospice care.
I did not receive the first class, couldn’t get in on the website, I live in eastern time zone so I tried to. Tune in at 5 pm and couldn’t get in. Do you have a link that I can see the first class?
Hi, I speak from India I am studying a course on dementia care the in it is very hard for me so I wish I could ask you personally how to approach you please help me with this.
Do you have a link for the first class, I am in eastern time zone and tuned in at 5 pm and couldn’t get into the website for some reason, my sister is in a group home
Isn’t hospice for end of life care? Hers gives four months. Of course, I know they can extend it, but when I read 3 1/2 years? None of us have any money. 🤷♀️
Hospice care trained me the unrecognizable daughter now untrained nurse aide in my livingroom. Hospice staff taught me how to do what I had no skills to do. I was a computer programmer not a nurse! Thank God for the support friendship and excellent care. Our family could not afford 6,500$ a month in OK for a nursing home. Hospice helpedme help mom to end of life and berievement counceling for me for a yr after. Thank you so much to hospice!!!
I was a Hospice RN in the 90s and the one thing I kept hearing was, "We just wished we had signed up much sooner!" Hospice can help with so much and save the family and the patient a lot of money and stress.
For me, Hospice care gave me the opportunity to be a daughter instead of a care giver. I just let the hospice team know of a health issue and they take care of it. I get to enjoy the time I have with my mother. Thank goodness for my team.
Beautiful. Thank you for sharing your experience
❤️
I was a hospice nurse for many years. It was the most rewarding of my 30 year nursing career. I had many dementia patients. Most of our patients were at home and only went inpatient at the very end though not always. Hospice is a wonderful provider for the patient and loved ones. I had patients on hospice for well over 3 years. They only need to be showing a decline.
My husband was on hospice for 3 1/2 years. I truly believe he lived that long because of the amazing people at hospice. They are there to make life as good as possible for the patient, and are so miuch help for the caregiver. I tell anyone who is caring for a loved one to get them on hospice as soon as they qualify.
My brother died with he had lewey body dementia and hospice was great with him, thanks for the video
Thank you for sharing your experience.💖
We tried to get hospice care for our mother a few years ago. They said they couldn't help because she had dementia and only help people who had only 6 months to live. There is little help for people living in rural areas.
I live in a state that we pay the highest taxes in the country. I live in the suburbs. Nobody has any money, check to check. Fully supporting her, because instead of actually thinking about anything at all, she has nothing. And she absolutely could have. makes me weep. Believe you me. And we only get 4 months. I hope it worked out for you. The reason we don’t have any is because I married into the Borgia family.
Hospice care is a great for my husband and me. Being the caregiver, hospice care has helped to relieve a lot of pressure off me. I'm grateful to have for them.
Just last week I asked for hospice information from our local Council on Aging. This gives me a lot more information and confirms that I need to start with Mom's PCP. Thanks!
Hospice is amazing not always a death sentence. My mom was on hospice 2 1/2 years here at home they where a godsend.
Yes! This has been my experience as well. Thank you for sharing your experience with others. 💖
Thank you for explaining that. I had to break that down to people numerous of times.
I was able to put my aunt in hospice after she fell and broke her upper femur. Her dementia did not respond well with the pain, morphine and anesthesia and she went down hill very fast. I wanted her in home hospice but they would only come once or twice a week. Being alone and having no help I was able to have her in one of their facilities. They gave her real good care and made her as comfortable as possible. She passed away on the 5th day. She went from walking well and doing things to her fall, surgery and passing in 12 days.
So sorry you're in my prayers
You are mesmerizing. I could watch you giving a dissertation on photosynthesis and still be captivated!
Thank you for clearing this up for me as a caregiver
I used to help patients at home with other caregivers, and was concerned about Hospice also coming in to the home because their pprotocol seemed to be giving the patient morphine for pain relief, even when I never witnessed any pain that the patient might have had. Seen it many times...then the patient passed away shortly after the pain meds were given.
It seems to me that the family has a lot of control over the administration of the 'comfort kit meds' .... sometimes death comes quickly, other times not ..... 🤔
Sometimes the patient is in pain and the family doesn't think they are but the hospice nurses know what the patient is going through. I think in general is best to let them help guide you.
Thank you for this video and dispelling hospice myths!
My husband was moved from the 'hospital' to a 'skilled nursing facility / veterans home' in 2020. After two weeks we brought him home to be on hospice care. Shortly thereafter many of the facility patients died 'of covid'. My husband graduated from hospice after one year! We were blessed with an Amazing Nurse! I don't have a lot of good things to say about the rest of the hospice team.... My husband is currently on 'VA Home Health' and has a wonderful female Nurse Practitioner...... and the beat goes on ....
I'm so glad to hear your husband graduated from hospice and has a wonderful nurse practioner 💖
You are so correct on this issue. Really, what you tell us is critical as we find our loved ones lose more and more.
My husband has been in assisted living memory care for about one month. During that time he has stopped eating even though they have tried everything to interest him in food and he has lost over 10 pounds. He will be seen by Hospice to support his care and the facility explained he could get help and stabilize and be off of Hospice care.
Thank you for explaining hospice care.
Great informative video and all true information
My husband was in Hospice for 11 months. They kept his PCP and his neurologist since he had a condition they never heard of. He kept slowly deteriorating over time.
Thank you-lots of good info- sharing these videos with my family so we can all be informed and start having the big conversations.
Question: In your experience, if a patient graduates off hospice care but needs the hospice care again at a later time do insurance companies/Medicare usually cover the cost of the 2nd or additional hospice care?
Also if you’re not already planning on it, would u be able to give us some red flags to look out for when choosing a hospice or palliative care company? The good and bad things to check out maybe? ...I guess that’s assuming the patient/family get to choose the company they work with? Is that something usually assigned by the primary care doctor or insurance company or..?
Also, you might want to find out if the hospice organization that you are looking at is a for-profit or non-profit, it could make a difference.
Mom's doctor referred her for hospice care. But after the hospice nurse assessed her and said she did not qualify because she was not completely bedridden, she had a vocabulary greater than a few words, and she was not completely incontinent. I had hoped to get some help, but no.
Try another hospice provider. That made a huge difference for us
Thank you, can you talk about Palliative care at home
Here is a video that you may find helpfull: ua-cam.com/video/1reTDGfBy78/v-deo.html
My mom has late stage dementia and was turned away by hospice because she uses the lowest possible dose of Imbruvica) chemo 1x/every 3 days to control night sweats from her CLL leukemia (strictly palliative) so she can sleep at night. We would have to discontinue Imbruvica to get hospice care.
I did not receive the first class, couldn’t get in on the website, I live in eastern time zone so I tried to. Tune in at 5 pm and couldn’t get in. Do you have a link that I can see the first class?
Hi, I speak from India I am studying a course on dementia care the in it is very hard for me so I wish I could ask you personally how to approach you please help me with this.
Do you have a link for the first class, I am in eastern time zone and tuned in at 5 pm and couldn’t get into the website for some reason, my sister is in a group home
Here is the link: go.careblazers.com/class
Good morning
Isn’t hospice for end of life care? Hers gives four months. Of course, I know they can extend it, but when I read 3 1/2 years? None of us have any money. 🤷♀️