Alcohol & Essential Tremor

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  • Опубліковано 9 тра 2020
  • In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board certified neuropsychologist Dr. Karen D. Sullivan discusses the relationship between alcohol and essential tremor. Learn more at www.ICFYB.com or follow us on Facebook at icareforyourbrain

КОМЕНТАРІ • 268

  • @space_cadet04
    @space_cadet04 9 місяців тому +9

    I was absolutely floored when I found this video. I had been trying to figure out what my shaking was related to when it started 20 years ago in my early I mid 20s. I started noticing gag alcohol would make them completely stop so i started drinking just to go out, to go to work, to function, cuz the head shaking was so embarrassing. My husband still thinks my shakes are only when I'm upset or have anxiety but he doesn't realize it happens while I'm doing my makeup or watching a movie. It's so random. Yes some emotions can make it worse but I also suffer from Borderline Personality Disorder and CPTSD so my emotions are very strong. Maybe that's why certain emotions can make it worse.

    • @sasavoj
      @sasavoj Місяць тому

      same here

  • @googlesucks4859
    @googlesucks4859 2 роки тому +9

    I've had ET for approximately 7 years. I try to play golf (used to be pretty good, until ET) and a few beers does help with the swing. But take my word, I use to drink 6 to 7 days a week, years ago.........you don't want to take that path either. So far, I've been lucky. If you can drink it when you really need it and can stop until you need it.......this is great! I've been able to keep it at a bare minimum at home.......fortunately! So my lesson for the day.......keep the alcohol drinking to a bare minimum........VERY GOOD video, by the way!!

  • @Micro41
    @Micro41 Рік тому +12

    It is very touching to hear from a medical professional validate our suffering. All the blessings this world can give.

  • @nikkm6480
    @nikkm6480 Рік тому +21

    Thanks for this post it helps so much that my tremor has progressed since a small child and the only person that seems to understand is my neurologist. Knowing that there are people like yourself want to help raise awareness. I have all three elements and it’s upsetting when people blatantly stare and assume it’s drink or drug related.

    • @JM-nm5hh
      @JM-nm5hh 8 місяців тому +1

      I have dealt with my ET since I was was 26. I'm now 62. People definitely think that you are a drug addict or Alcoholic.

    • @user-yr2dj9ej7x
      @user-yr2dj9ej7x 29 днів тому

      My roommate who is 75 im pretty sure he has this too he’s had it since childhood and his mother had it . Can you tell me if there’s any treatment because he’s using alcohol to help it which really isn’t good because he’s does it excess. You are the only person I’ve heard that had this from childhood any advice?

  • @LoveTheElectro
    @LoveTheElectro 3 роки тому +7

    This clicked on so many levels for me. Thank you!

  • @jennifermilligan4327
    @jennifermilligan4327 3 роки тому +12

    💌 I just got a call from my 25 year old daughter tonight. She had 40 minutes of tremor today. She isn’t saying she may have ET, but with your informative talk I just listened to ...she may. She has made a virtual appointment with her physician and will begin this journey tomorrow. Thanks for offering your expertise to the public. Jennie from Muskoka, Canada.

  • @jakeeasterwood9317
    @jakeeasterwood9317 2 роки тому +24

    After watching this video I have discovered that a 7oz glass of wine about 1 hour before eating actually allows me to actually hold a fork steady and get food to my mouth without frustration, humiliation and embarrassment. I also suffer from low thyroid, pernicious anemia (B12 deficiency). Now I understand another piece of this puzzle about what is going on and put some kind of balanced approach to this horrible condition. Thank you so much! I’m so glad I found this.
    Even typing this on a phone… which I usually have a lot of trouble doing, is easier.

    • @chiledoug
      @chiledoug Рік тому +1

      alcohol actually work better than anything had to quit thought

    • @pmichael73
      @pmichael73 5 місяців тому

      My doctor recommended I try wine (sensible amounts!) to see if it settled my ET. (Experiment still in progress. May not have found the right wine yet!)

  • @AnthonyClimo
    @AnthonyClimo 3 роки тому +11

    This is very educational. I have an allergic disease to alcohol. Addiction and abuse which I am now 1month 20days sober and have gone through a lot to get to finally work the program with help from my doctor and outpatient programs. But one of the best reasons I used and felt the need for alcohol is it stop all the shaking and other then the negative effects I never felt a better relaxation and ability to get relief from any shakes.

  • @debrawitte8391
    @debrawitte8391 Рік тому

    thank you for your love !

  • @KendraW8
    @KendraW8 3 роки тому +3

    Thank you for this. I truly needed it.

  • @eileencarman9752
    @eileencarman9752 3 роки тому +10

    Interesting. Glad to have accidentally stumbled on to it

  • @ShawnBelaire
    @ShawnBelaire 3 роки тому +5

    Thank you that was very informative I never knew there was more to it.

  • @RyanPridgeon
    @RyanPridgeon 3 роки тому +52

    Myself and others online have found that heavy strength training (e.g weighted squats), particularly stuff that hits the legs or back hard, helps ET hugely. For me there is a night and day difference between doing this or not. Other kinds of exercise don't really seem to have an effect. Can anyone speculate on how that could be possible in relation to the cell loss talked about here?

    • @ladydy2831
      @ladydy2831 3 роки тому +4

      I find the same thing with me. It helps that I am a PT and was a bodybuilder. It makes all the difference lifting weights....for me.

    • @breckandy
      @breckandy 3 роки тому +8

      You are the first person to bring this up. I find that weight-bearing resistance in the arms and legs makes a vast improvement. Before I couldn't lift a plate in the cupboard without shaking and clattering and now it is a breeze. I no longer so much have the sensation I am going to trip over my own feet so much.
      You are on to something.

    • @rattmotor9865
      @rattmotor9865 3 роки тому +3

      @ Ryan Pridgeon goin HEAVY ! Thankyou!

    • @Kjell777Iverson
      @Kjell777Iverson 2 роки тому +6

      Tai chi can really help too.

    • @RyanPridgeon
      @RyanPridgeon 2 роки тому

      @@borrago out of interest, would that affect the tremor in other parts of the body?
      In my case, the tremor is most prominent in my face, but working out with my legs is the best thing for reducing that facial tremor (I feel the difference is much more dramatic than can be explained by other factors such as stress/sleep etc)

  • @jaktoy8885
    @jaktoy8885 3 роки тому +7

    For years I had a problem with tremors in my hands, I stopped smoking and drinking coffee and I drink fresh lemon juice while I want to get fast enough on the tremor

  • @tberrardy
    @tberrardy 4 роки тому +2

    Great video!

  • @Kjell777Iverson
    @Kjell777Iverson 2 роки тому +17

    I have had ET since I was a child (long before I ever had a drink). I remember being embarrassed by my tremors constantly. I started drinking to self medicate with my adulthood. Recently, I tried to detox, but I couldn't stop the shakes. I have tried this twice, but every time I tried I would get to the point where my shakes were low enough but then I would encounter insomnia and the shakes wouldn't stop.
    ET runs in my family and my cousin has it. My family doctor when I was little suggested to my mother that I had simply had too much caffeine, via pop (or soda, as you may).
    I really appreciated this video. Thank you, Dr.Sullivan. Not sure if I can recover from this because I've been self medicating my tremors for so long, but this was so very informative.

    • @nicholasmendelsohn6779
      @nicholasmendelsohn6779 2 роки тому +2

      Thank you for saying that because I've had it since I was very very young and I believed I was born with it my nickname is shaky and I've tried every type of medication they've thrown at me and nothing helps but a beer first thing in the morning or for that matter anything I can get my hands on alcohol related so I connect with you totally and thank you for saying what you said it really means a lot and Dr Sullivan is amazing because I just learned a lot from this video as well God bless you and I hope we can get through this together!!

    • @normedwards5305
      @normedwards5305 Рік тому

      Ditto!

    • @TexasScratchMan
      @TexasScratchMan Рік тому +1

      i feel your pain brother. I have had it since i was born, i was made fun of and treated like a freak growing up, even at 37, its hard to go out in public and meet people because as soon as they notice me shaking they start acting different like they feel weird being around me.. its effected my relationships, friendships and with family, because along with ET i have developed severe anxieties over my life due to it.
      Top it off, im also extrememly ADHD and pretty much have to force myself to constantly eat because i will literally go 48 hours before i feel hunger

    • @dmariewalker6880
      @dmariewalker6880 Місяць тому +1

      I don’t drink, but I’m going to try either a beer or glass of wine and see if it helps; it would so be worth it when I have to balance my budget.

  • @frenchustube
    @frenchustube Рік тому +2

    New subscriber here. I love the way you talk and I could listen to you all day. That was so straightforward and so non-judge mental. I am going to listen to some of your other videos.Thank you

  • @royking7298
    @royking7298 2 роки тому +3

    Thank you so much! It's just the info I've been looking for.

  • @celesteinman56
    @celesteinman56 2 роки тому +4

    Thank you. Great info and I look at it as self care and love. People that care about you would encourage and not gas light. Have a blessed day. :)

  • @TexasScratchMan
    @TexasScratchMan Рік тому +6

    It makes me feel much better knowing im not alone. the shakes, the social anxiety, the depression... over the last few years, i have started having more and more frequent pin a needle feelings in feet and lower legs, eye lids twitching. Im about to go see a neurologist next week. Im tired of living like this. waiting til i was 36 to address this is my own fault

    • @icareforyourbrainwithdr.su7103
      @icareforyourbrainwithdr.su7103  Рік тому +2

      Focus on what you are doing now and be compassionate to yourself for not acting sooner!

    • @TexasScratchMan
      @TexasScratchMan Рік тому +1

      @@icareforyourbrainwithdr.su7103 ❤ Thank you so much for doing what you do

  • @littlelauraanne61
    @littlelauraanne61 2 роки тому +4

    VERY helpful information. Thank you Dr. Sullivan.

  • @pete_surgeon
    @pete_surgeon Рік тому +1

    Excellent. I learn something new each time. Danke

  • @kvzaruiz
    @kvzaruiz Рік тому

    GRACIAS POR SU KNOWLEDGE AND TIME

  • @mileakin2689
    @mileakin2689 2 роки тому

    Thank you so much for that information

  • @krc5210
    @krc5210 Рік тому +1

    Just found you today! So grateful but sorry I missed the virtual conf. I hope I can find it on youtube. TY for all the info presented here.

  • @blackseabrew
    @blackseabrew 2 роки тому +8

    I first noticed tremors when I was 20 while shooting competition...couldn't hold the rifle study/noticed minute shaking. Now 53 and tremors are visible to others. Never was a heavy drinker but certainly partied in college. But being an engineer my career always took precedent over alcohol. Started a very special medication in 2008 for narcolepsy. It doesn't mix with liquor at all. I primarily have action tremors if I understood your video. Overall my health is good except for narcolepsy. Definitely looking for answers.

  • @user-yr2dj9ej7x
    @user-yr2dj9ej7x 29 днів тому

    Thank you Dr this is very informative

  • @cindyr6702
    @cindyr6702 Рік тому +1

    3/9/2023
    Approximately 1.5 years ago a I realized that when I stepped on the scale to weigh myself my legs were trembling/shaking on the inside (not visible to me) and my legs wouldn’t stay still enough for me to get a reading on the scale. This came on suddenly. I had been successfully weighing myself every morning for a couple of years. And then one morning it took me 20 - 12 attempts to get a reading. I kept trying for many mornings and then just gave up. And that was the beginning of my journey. I was diagnosed with dystonia and the most important thing I’ve learned - and practice daily is self care. I’ve seen a few of your videos and I am going to become one of your biggest fans. I crave reliable information. And I’m blessed with a PCP that has been leading me through my discovery period. And I have a neurologist who specializes in movement disorders. Thank you so much for sharing your expertise.

  • @kimdessaix586
    @kimdessaix586 6 місяців тому

    Thank you Dr. Sullivan for this very informative video on Essential Tremor and alcohol.

  • @neelam507
    @neelam507 4 роки тому +6

    Very well explained....👌👌👌👌👌👌

  • @SolKnopfMusic
    @SolKnopfMusic 2 роки тому +1

    It does the same for me. Absolutely!

  • @brendacollinsdeeks7268
    @brendacollinsdeeks7268 10 днів тому

    I wish I had found this in time to attend the virtual conference. I hope I can find the recording of the co Terence so I can replay it.

  • @ronn773
    @ronn773 2 роки тому +8

    Thank-you so much for posting these videos. They sure help me understand my symptoms better.

  • @rachaelsmith1114
    @rachaelsmith1114 Рік тому

    good idea

  • @tammyfujihara5152
    @tammyfujihara5152 6 місяців тому

    I randomly came across this and I learned so much about my et! My bf told me recently that I should pay attention to interrupting people. I have been paying attention and I do have difficulty stopping myself. Interesting to know this is related to et.

  • @MrWordcat
    @MrWordcat 4 місяці тому +2

    Wow. Your video jest taught me more about my ET and relationship with alcohol than any literature, group (therapy/AA) or doctor ever had before. I feel like I have more agency over my alcohol use and am 1 step closer to getting it under control. I can't thank you enough!

    • @icareforyourbrainwithdr.su7103
      @icareforyourbrainwithdr.su7103  4 місяці тому

      That is the best! Awesome! I have a 4 hour webinar on ET you might benefit from as well. icfyb.com/webinaret/

  • @bobwalk2002
    @bobwalk2002 11 місяців тому +1

    Very good information, I like the way you look the whole person in your diagnosis and recommendations. I have just recently been diagnosed with essential tremor, at this point it is very minor and only affecting my right hand. I have been a moderate/heavy drinker most of my life and will be following your recommendations to reduce my alcohol. Another method for people to reduce their alcohol consumption, is to buy and consume lower alcohol beverages. Their are many good beers available with alcohol levels as low as 3-4% and also some very good non alcohol beers available.

  • @marsharodgers3654
    @marsharodgers3654 8 днів тому

    Thank you so much for all you do. You have taught me so much about my ET and managing it. You are such a blessing.

  • @ultramegasuper11
    @ultramegasuper11 9 місяців тому

    Thanks 😊

  • @robelestifanos1227
    @robelestifanos1227 2 роки тому +1

    Thank u

  • @sheshe6724
    @sheshe6724 2 місяці тому +1

    I learned a lot,my husband is heavy drinker,he has tremors in his hands,ty for the information

  • @Backwardlooking
    @Backwardlooking 12 днів тому

    Thank you. Extremely lucid and helpful. Best wishes. 👍🏻🇺🇸✌️🏴󠁧󠁢󠁥󠁮󠁧󠁿🇬🇧

  • @angelayan8712
    @angelayan8712 Рік тому +2

    This is a powerful discussion and it is scaring me. Thanks! I take mentioned drugs.

  • @wdnick
    @wdnick 10 днів тому

    I'm 52 and have been living with ET since high school. At some point in my 20's my neurologist told me alcohol would help. Worst advise I ever got. Yes, alcohol made it better while I was drinking, but the tremors got worse over time so I drank more, and the next thing I knew I wasn't drinking just for the tremors. The tremors were so bad when I was not drinking that I could barely write and it was messy. No problem, couple of drinks later and I was steady as anyone, but the next morning they were back.
    I finally decided to quit drinking for good 5 years ago and after a few days I realized that my tremors are NOT NEARLY as bad as they were when I drank. Not at all. I now choose to just live with it and take a couple of drugs that help (I was on those all along anyway). I know that if I drink, the detox shakes will be much worse than they are normally and that vicious cycle could start again.
    DO NOT use alcohol to control your ET. It is a very slippery slope.

  • @cranberry63
    @cranberry63 11 місяців тому +1

    Thanks for a very insightful video on the origins of ET. I keep coming back to this one.

  • @nicholasmendelsohn6779
    @nicholasmendelsohn6779 2 роки тому +17

    Thank you so much for that I just watched your video for the first time and it really touched my heart I've had tremors my whole life and I've tried every medication under the sun and the only thing that helps me is alcohol and I have to drink a beer first thing in the morning and the last thing before I go to sleep so that was very inspirational and I'm looking forward to seeing more!! Thank you very much for what you do it certainly means a lot because I felt so alone in this world and thought I was the only one that had this condition!

    • @Xanax1.0
      @Xanax1.0 Рік тому +1

      What about benzos

    • @annatapl
      @annatapl Рік тому +1

      Dr. Sullivan, Did you récord the virtual seminar? I would love to see it!

    • @dmariewalker6880
      @dmariewalker6880 Місяць тому

      @@Xanax1.0 lol my doctor says that they cause dementia, which I don’t believe.
      I was on them for awhile after a severe auto accident, which gave me PTS bc I was T boned and my truck rolled & I was ejected 65 feet.

    • @Xanax1.0
      @Xanax1.0 Місяць тому

      @@dmariewalker6880 im so so sorry for you

    • @user-yr2dj9ej7x
      @user-yr2dj9ej7x 29 днів тому

      Yes my roommate has to drink before he can even write a check and of course over time he’s become a full blown alcoholic but I really feel bad for all of you so there’s no medicine that can help this I take it?

  • @dianadougan6871
    @dianadougan6871 3 роки тому +1

    I am so glad I also, stumbled on to your utube topic.

    • @iowabettyg
      @iowabettyg 3 роки тому

      have you ever been tested for tick-borne diseases: lyme disease or any of other diseases TICKS carry? usa has 20 different types.
      have you ever had an EMBEDDED TICK WITH BLOOD IN IT or a BULLS-EYE RASH?
      yes, please read my detailed, lengthy note above.
      best wishes to you for quality of life.
      betty gordon, ames, iowa

  • @vikramadityajha8924
    @vikramadityajha8924 2 роки тому

    thanks

  • @DF-zp1os
    @DF-zp1os Рік тому +3

    Interesting video. I developed tremor late teens and never sought diag from doctor as in my 20s I noticed the temporary alcohol fix and was made aware of ET and alcohol connection. Now in early 40s working through migraines, sleep problems, intermittent pain/tingling, and tachycardia I was placed on beta blocker for successful treatment of tachycardia. Saw improvement in ET, but the best improvement occured after started taking GABA supplements. All my research says this shouldn't occur because GABA supplements don't cross blood brain, but it dramatically improved tremor and eliminated migraines. The only kicker is i can still have tremor flare ups that are more pronounced than in my 20s, but frequency has dropped using GABA.

  • @sophiepalmer-doran344
    @sophiepalmer-doran344 3 роки тому +1

    i was on Depakote for 9 years for a seizure disorder This is how Depakote affected me it caused massive weight gain, memory loss, a hand tremor a one point i stoped eating i had no appitite i was severly depressed and suisidal . i was taken off but still had a small tremore this is my personal experience of the medication and i know that everyone will react diffrently to any kind of medication
    now i have a tremor in my left hand as it is my nondominante and my right hand also shakes not a big shake but i can feel it even if no one sees

  • @Tubecheerio
    @Tubecheerio 2 роки тому +16

    I control my ET by practicing Taichi/chigong 3 hours daily over the past 30 years. I can eat with chopsticks/fork & spoon and write normally. My doctor initially misdiagnosed my ET and gave me medication to treat Parksonson. I discontinued the medicine after 1 week - that was more than 30 years ago.

  • @dorisniss2105
    @dorisniss2105 3 роки тому +2

    did u mention ultrasound treatment? i like to know more about it. please

  • @gailshari25
    @gailshari25 2 роки тому +3

    Alcohol is a relief.

  • @brownco41
    @brownco41 4 роки тому +2

    Great explanation I would like to join your zoon virtual conference

  • @LissaAus
    @LissaAus 2 роки тому +6

    Thank you Dr Sullivan for talking about this issue in such an intelligent, sensible way. All I had from my GP is that alcohol stops tremors....I didn't realise it was causing more damage. Food for thought.

    • @dianegraber9333
      @dianegraber9333 Рік тому

      Good grief.. a very uninformed GP! Hope you tell GP this fact so to educate before others are harmed by such ignorance.. find a very good neurologist (and neuro psychologist as well.. if you’re lucky). All the best to you 🦋

  • @dancahill8199
    @dancahill8199 2 роки тому +4

    This Dr. is a fabulous speaker ! This was like
    Neurology 101. 😊😊

  • @davidosman657
    @davidosman657 Рік тому

    Do you have a rerun of your June 26 virtual program ?
    Thank you for providing the program

  • @CeceKruchkoSmith
    @CeceKruchkoSmith Рік тому +1

    Fascinating, easy to listen too, easy to understand.
    I don't know about ET but the information about Gaba and Alcohol is useful. Gabapentin is very useful to help get alochal use down to its usefulness.
    Perhaps you can examine the brains of us that have been in high control relationships. I have both experiences. I was in a cult and basicly drank my way out.
    Looking back, the cult became an addiction. It's no wonder - from the beginning I told my family it was like being high without drugs.
    It was.
    I got out of both only with self education. Now I get high learning new things from people like you ❤️
    Thank you for your (free 😀)
    help 🙏

  • @joshuaslokum36
    @joshuaslokum36 2 роки тому +1

    Thank you Doctor for the information. I have had ET for decades and I am 55 now and it is significantly noticeable in times of stress and anxiety. It is embarrassing for me when people notice... I definitely notice my tremor go away when I drink. But with this information... I’m stopping....
    ❤️🙏☕️

  • @stephaniesecher6725
    @stephaniesecher6725 Рік тому

    Having been recently diagnosed with ET this video is very informative, thank you. Did you do the Zoom conference to talk about "None motor symptoms in ET"? If so, is it available to watch somewhere? Thank you again...

  • @karensholts4937
    @karensholts4937 2 роки тому +1

    Would this also be true in regards to chronic benzodiazepine use which also affect Gaba?

  • @johnhaugen8319
    @johnhaugen8319 3 роки тому

    I may be interested in your virtual meeting

  • @chuckmaddison2924
    @chuckmaddison2924 Рік тому

    Mine goes bad trying to solder on circuit boards, so I've pretty much given up on that. This week I went through 4 forms before I could fill it out and sign my name.
    My sister told me about alcohol so later today I'm going experiment and see what happens when I feel light. All in the name of science.. I have been on asthma medication for about 20 years. I miss electronic work. Tremor is fairly common in the family.

  • @ladyg0726
    @ladyg0726 2 місяці тому

    I appreciate you. I'm undiagnosed. My legs and voice, eyes are all affected. I don't have Parkinson's. All tests are negative. I have action tremors of legs, hands. Having no diagnosis is most exasperating 😢

  • @karenhiller9189
    @karenhiller9189 Рік тому +1

    Thanks!

  • @johnclerk1195
    @johnclerk1195 4 місяці тому

    Thank you for the post. My father had essential tremor, and quite a few of my father's side of the family have it too. The last years of his life he couldn't even sign his own name, or try to drink enjoy is coffee. The harder he tried to hold anything, the more pronounced his tremor. Much to his relief, having a beer lessened ET. He died of prostate cancer when he was 90. What you describe of the symptoms were exact symptoms he had. My 2 older sisters have it, but I don't.

    • @pattykauth2431
      @pattykauth2431 2 місяці тому

      That's because he had difficulty writing!

  • @carolwatts944
    @carolwatts944 Рік тому +1

    I’m sorry I missed your June workshop (Oct now). Is it on UA-cam now? Also -
    I smoke MUCH more marijuana than drink alcohol. (Have found in last couple yrs that alcohol tolerance is much lower than historically. ) My question is ET & marijuana combo. Am assuming that less information is available than the booze angle. Any thoughts on the subject would be appreciated. Thnx 😊

  • @abrahamenav8026
    @abrahamenav8026 Рік тому

    What is your opinion about electronic brain intervention at age 85, for severe lower jow tremors?

  • @TheBinaryWolf
    @TheBinaryWolf 11 місяців тому

    Refreshing to see a practitioner with a global view of the condition. Most--almost all--physicians focus solely on the symptomatology and not the etiology; and if you treat just the symptom and not the cause, the best for what you can hope is management and not remedy. The condition is challenging, for even minor compression on the spinal cord or excessive use of a computer mouse can generate or exacerbate ET. Indeed, the therapist must also be a detective to sleuth factors contributing to the condition.

  • @DSTADAV
    @DSTADAV Рік тому

    Thank you. Husband (68) has had ET for decades, getting worse all the time.Uses mysoline (since propanolol dropped BP too much). The tremor is bothersome and embarrassing.
    His mom and our daughter also have it. He is also type 1 diabetic. Is there a higher incidence of ET with T1D?).
    Anyway, thank you for your expertise. Will be watching more of your lectures.

  • @olddirtbikerider
    @olddirtbikerider Місяць тому

    I am interested in your opinion of DEEP BRAIN STIMULATION and FOCUSED ULTRASOUND. Very enlightening video.

  • @michaelfuria4257
    @michaelfuria4257 2 роки тому +1

    I have essential tremor in my arms and hands-being treated with meds. I also have an irregular essential tremor in my voice-had this for decades- docs told me there is nothing they can do-I have been trying to sing back-up harmony in the bands I have worked with-never worked out because of the vocal tremor-Is there any hope??

  • @michellebaker8994
    @michellebaker8994 Рік тому +1

    God help me, I have this. It’s life changing and reliving the worst day of my life, ever damn day

  • @PalmettoMoon
    @PalmettoMoon 4 роки тому +7

    I'm glad you cover issues with ET. I have ET and it's not covered enough. I'm 47 and have had it most of my life but as normal it's gotten worse the older I get. I wish more was known about it. My nuero wants my to have dbs surgery but I want to cover all bases before I even consider it. You cover way more than my Neuro covers. I do drink occasionally and you are so correct on the rebound. The rebound tremors are terrible. My Neuro has never covered this with me. I would love to be part of the zoom meeting. I don't have anyone to connect with that has tremors.

    • @tylerpool5464
      @tylerpool5464 3 роки тому +3

      I'd be willing to chat if you're up for it . I'm 24 years old and have had this for 4 years now

    • @PalmettoMoon
      @PalmettoMoon 3 роки тому +2

      @@tylerpool5464 Nice! It's good to meet someone with the same condition. Have you had it all of your life?

    • @tylerpool5464
      @tylerpool5464 3 роки тому +1

      @@PalmettoMoon nice to meet you to! No I have not , I developed mine when I was 20. How about you?

    • @PalmettoMoon
      @PalmettoMoon 3 роки тому +1

      @@tylerpool5464 I've had it all of my life but with ET, the older you get the worse it gets. It's impossible for me to do most things that require intricate detail such as soldering or even just using a drill to take something apart or such. In my state (TN) ET is not considered a disability. I've also heard and read that it's very hard to get in about any state. How bad does yours effect your every day life?

    • @tylerpool5464
      @tylerpool5464 3 роки тому +2

      @@PalmettoMoon my tremors just started really effecting my life in the past year. a year ago I went through a stressful 3 month period and now I shake a bit all over, head to toe. I do take propranolol 60mg ET daily. It pretty much stops my tremors but doesn't do much for my hand tremors. I'd like to not take anything but I'm pretty much past that point now, I'll be honest with you I do worry about getting older now, I'm already pretty effected at 24 and idk about you but mine started off so mild, compared to 4 years ago it's an extremely noticeable difference. My left hand is the worst, I've also got it in my voice. Do you take anything?

  • @rlb3255
    @rlb3255 7 місяців тому

    Has there been any discussion and / or research regarding the use of cannabis to treat ET?

  • @inthekitchenwithbubby7724
    @inthekitchenwithbubby7724 3 роки тому +6

    I have had ET since I was a teenager. I agree with other comments that it’s great to find factual information. Oct 20th I will have DBS surgery.

    • @iowabettyg
      @iowabettyg 3 роки тому

      have you ever been tested for tick-borne diseases: lyme disease or any of other diseases TICKS carry? usa has 20 different types.
      have you ever had an EMBEDDED TICK WITH BLOOD IN IT or a BULLS-EYE RASH?
      yes, please read my detailed, lengthy note above.
      best wishes to you for quality of life.
      betty gordon, ames, iowa

    • @adamfrazier9429
      @adamfrazier9429 2 роки тому +1

      Did the surgery help?

    • @inthekitchenwithbubby7724
      @inthekitchenwithbubby7724 2 роки тому +2

      YES IT HELPED A LOT! SO MUCH SO I HAD THE OTHER SIDE DONE IN MAY. A FEW ISSUES TO RESOLVE BUT OVERALL VERY HAPPY I “WENT FOR IT”!

    • @adamfrazier9429
      @adamfrazier9429 2 роки тому

      @@inthekitchenwithbubby7724 Nice! I'm glad it worked for you. This is the first I'm hearing of this DBS surgery.

    • @henrytorres9855
      @henrytorres9855 Рік тому

      I know its been a year, how have you been feeling since then? I've been talking with my doctor as I had just noticed small tremors in my hand about 3 weeks ago. He says it could most likely be ET, but not a concrete diagnosis. I haven't been more scared in my life and if DBS surgery works for ET then I will feel a lot better for my future.

  • @Jonathan-hu3lk
    @Jonathan-hu3lk 2 роки тому +3

    I’ve been diagnosed with ET. I’ve had it since the age of 15 and got the diagnosis at the age of 35. One doctor previously dismissed it as a twitch, but now I’ve been prescribed propranolol which seems to help. I do drink, but not a lot. My GP did ask if I’d ever noticed if having a drink helps and I’ve never noticed that it does. Now, when I find myself having a drink, I’m monitoring how it affects my ET. On a few occasions, I’ve had relatively bad tremors even after a drink or two. Although, I don’t tremor constantly and it’s also possible that alcohol may have helped on other occasions when I wasn’t experiencing any tremor. I guess it’s possible the relatively bad tremors could have been more severe if it wasn’t for the alcohol I’d consumed. But, still very difficult for me to determine if it helps me at all and I’m not prepared to start drinking everyday to find out. This was a very interesting video though and thanks for sharing.

    • @susanjones5592
      @susanjones5592 Рік тому +1

      Thanks. Ver interesting information.

    • @Jonathan-hu3lk
      @Jonathan-hu3lk Рік тому +1

      Since commenting on this a few months ago, I’ve noticed a vast improvement on my tremors. I was taking propranolol, but this seemed to interfere with my sleep. I saw a doctor who dismissed the idea that it was and if anything should help me sleep. But when I was on it, I noticed I was getting very little sleep. So, I ignored my doctor and I’ve now stopped using propranolol altogether, concentrating on getting better sleep. One sleep aid that I take most nights is a cup of cbd tea. Now I’ve no idea if this helps with tremors directly, but it certainly helps me sleep. And lack of sleep seems to make my tremors worse. My tremor is a head tremor and it’s very rare I get it these days, but in the past it has been quite severe

  • @chuckmaddison2924
    @chuckmaddison2924 Рік тому

    I'm back and after a large glass of Bailey's it held back the tremor and was able to solder a small joint with 3 components just touching. So yes alcohol does seem to work, but I feel crap and unable to function normally, apart from fine control.

  • @karenhiller9189
    @karenhiller9189 Рік тому

    Is that zoom conference in the past? If so is it available as a recording?

  • @christopherskipp1525
    @christopherskipp1525 Рік тому

    What is a neuropsychologist? Thank you.

  • @darlaramey5818
    @darlaramey5818 Рік тому

    I just wonder if the dbs would help with my headaches too

  • @douglassmith2460
    @douglassmith2460 3 місяці тому

    Hello, Thank you for making this information available. I have a quick question. I have a 40 year history with Migraine and I also have about a 10 year history with Diabetes. Is it possible or even likely that one of those could be the source of my ET. Thanks in advance.

  • @GregSr
    @GregSr Рік тому +2

    Dr. Sullivan? That has a nice ring to it.
    Thank-you for focusing on this issue. I'm 69 years old. My ET kicked in about 5 years ago. I had no idea that there is an explanation for my left hand trembling whenever I am trying to use a pen. For me, there is some irony. 1) Only my left hand is afflicted and I happen to be left handed. 2) Alcohol supposedly gives temporary relief and I can't stand even the smell of alcohol. As a diabetic, I had assumed that the tremors and glucose were somehow related. Compared to many, my ET is very minor. Although, I'm assuming it will gradually get worse as I get older.

    • @Gelovan682
      @Gelovan682 Рік тому +2

      Switch to writing with your other hand at first you think that’s going to be difficult, but I can print beautifully with my right hand and I was a lefty. All my life did a lot of writing as a lawyer and now I just print with my right hand and get my pretty good.

  • @terrywright3359
    @terrywright3359 Рік тому

    My trimmers started at age 12. I'm 50 now and have learned to live with them but they have gotten worse over the years one or two shots of whiskey a month if I have something I really need to slow the trimmers for.

  • @sartajsingh24
    @sartajsingh24 4 місяці тому

    very helpful :)

  • @pattykauth2431
    @pattykauth2431 2 місяці тому +1

    The most frustrating thing is that I can't write or type

  • @christineschnell4155
    @christineschnell4155 Рік тому +1

    I can only say a big thank you to you for your video and your knowledge of ET and especially the connection between ET and alcohol ism. I am in my 70s and have had ET since my late 30s. Needless to say it has impacted my life enormously. My mother had ET and was also an alcoholic. I assume she drank during her four pregnancies. I am also an artist but the conflict with my tremor is overwhelming I am thankful that alcohol does not help my tremor, alcoholism will not be me.
    Looking forward to your upcoming videos and will look for the ones I’ve missed

  • @antoniovalenzuela8379
    @antoniovalenzuela8379 Рік тому +5

    I've Had Tremors since I was a teenager, I remember I first noticed it on my fingers than it went to my whole hand. eventually I felt it on my foot as well, This was all before my senior year was over.
    I was in school sports and music programs, I really enjoyed music and sports. As soon as I graduated I went to college and started drinking to make my tremors not present while I was in class taking notes. I noticed I was drinking everyday on campus and I just quit college cause I though It would just be a waste of time. After that I realized that my life would be different than others forever.
    I started working construction because it fit around my issue better at the time, I could also drink around my work friends (after work hours). Eventually I started a business of my own in construction but every time I have to go meet with a new client it gives me anxiety to think that I have to be in front of them while my body shakes. I started drinking before meeting to ease the tremors and it did help but that means that I have to drink Every time I have to go on a meeting? Yes My drinking habit has been built up around my tremors. I am 37 now and Have serious problems because of this, They just divorced me because my Ex thinks I'm just an alcoholic, I have a 3 year old daughter. I have yet to see how the rest of my life is going to unfold from this point on.
    As I think back of why I have this tremors, I remember that I played with mercury. I would grab mercury place it on my hands thinking its was cool, as my dad was a dentist and had it at reach.
    I have yet to try to detoxify my body from heavy metals to see what happens.
    This disease has taken control over me more than I thought and I'm working to see if I can live a better life or if this is it.
    I dont think anyone wants to use alcohol as resource, You can also become an alcoholic and have more problems down the road such as liver problems.
    Just thought of sharing my life story because I know this is a hard condition to have.
    Thank You for listening.

  • @agbobier2657
    @agbobier2657 Рік тому

    I developed benign essential tremor after a high epideral.

  • @susanmatthewsscott799
    @susanmatthewsscott799 Рік тому

    I am interested in what the research shows with ET and use of THC, CBD, and CBN…
    Positive and negative.

  • @kvzaruiz
    @kvzaruiz Рік тому

    Hi Dr.
    I Have a friend that have ET and base on your knowledge…
    What can I do to help her to reduce those symptoms from my end so she can be relax and enjoy the time together?

  • @heididegrow4735
    @heididegrow4735 8 місяців тому

    What about a natural Gaba supplement..I take them. Will they have rebound effect?

  • @tariq9808
    @tariq9808 Рік тому

    Madam we need some advice, how to treat the tremor

  • @cc34945
    @cc34945 Рік тому +1

    I have MS and ET. The MS seems dormant. Tremor at 73 is progressing. There is information on this video I’ve never heard before. Our whole family has ET that seemed to start with paternal grandmother. Now we’re seeing it with my nephews in their 30’s. Where does MS end and ET start?

  • @kareemahmed7028
    @kareemahmed7028 Рік тому

    Hello..Is there an alternative to Propranolol ..because I suffer from bronchiectasis and sputum discharge..and I use Propranolol to treat essential tremors

  • @tinajenkins8410
    @tinajenkins8410 Рік тому +2

    Those of you that have tremors, have you always had them? If not, at what age was onset? I'll be 54 in Nov, and have just recently started having tremors. I have not been diagnosed with diabetes, nor have insulin issues, but at first I thought maybe I was "shaking" because I was hungry. But, it isn't just my hands, and eating doesn't make it stop. My head/neck also tremors. It is jittery feeling, and it actually makes me nauseous. Seems to be worse in the mornings. I also wondered if it had anything to do with the damage in my neck, affecting my spinal cord, causing it. I have Syringomyelia. I'm trying to dodge so many surgeries right now (ankle, both knees, neck, back). Severe osteoarthritis. Just trying to figure it out.

    • @jacquedickson3981
      @jacquedickson3981 Рік тому +1

      I am a nurse and developed ET around the age of 46 yr/old
      Went to neurologist lots of scans / MRI I was told they had no idea why or what has caused this. I experience hand and head tremors. Propranolol helps to control them but not completely It’s really embarrassing if someone doesn’t know me they think I can’t do my job. Just imagine getting your blood drawn from someone with ET. I have adapted to and adjusted the way I do things to accommodate ET . No family history of ET and not an alcoholic or drug addict. I also do not have any other diagnosis for diabetes, thyroid, etc

    • @tinajenkins8410
      @tinajenkins8410 Рік тому

      @@jacquedickson3981 I know it is terrible. No drug or alcohol use here either.
      I take Bystolic, but not for this.

  • @scottpoitras9289
    @scottpoitras9289 2 місяці тому +1

    I am really stuggling with.this I am a mechanical designer I have tremors all the time...

  • @davidosman657
    @davidosman657 Рік тому

    Can you do a program on Deep Brain Stimulation - DBS vs Focused Ultrasound - FUS ?

  • @evonne315
    @evonne315 Рік тому

    Does this have a connection to body dysregulation ? I get that from CFS/ME (Long COVID), trauma and CPTSD. Its lessened since removing myself from trauma and stress but if triggered I will have this trauma release with tremors, cold sweats, ect and then need to sleep. Like for 15 hours at a time.

  • @christinelyons9544
    @christinelyons9544 Рік тому +1

    Should I just detox? I am not sure I can be part of your June conference I am a dental hygienist and this is crippling my abilities to practice. I am now single after a nasty divorce and currently have NO income after the dentist hatrassing me to speak to my neurologist. I felt it was a hippa violation AND he cited that my co workers had seen my tremor. I’m scared and not sure what to do!