I've had ET for approximately 7 years. I try to play golf (used to be pretty good, until ET) and a few beers does help with the swing. But take my word, I use to drink 6 to 7 days a week, years ago.........you don't want to take that path either. So far, I've been lucky. If you can drink it when you really need it and can stop until you need it.......this is great! I've been able to keep it at a bare minimum at home.......fortunately! So my lesson for the day.......keep the alcohol drinking to a bare minimum........VERY GOOD video, by the way!!
I was absolutely floored when I found this video. I had been trying to figure out what my shaking was related to when it started 20 years ago in my early I mid 20s. I started noticing gag alcohol would make them completely stop so i started drinking just to go out, to go to work, to function, cuz the head shaking was so embarrassing. My husband still thinks my shakes are only when I'm upset or have anxiety but he doesn't realize it happens while I'm doing my makeup or watching a movie. It's so random. Yes some emotions can make it worse but I also suffer from Borderline Personality Disorder and CPTSD so my emotions are very strong. Maybe that's why certain emotions can make it worse.
Thanks for this post it helps so much that my tremor has progressed since a small child and the only person that seems to understand is my neurologist. Knowing that there are people like yourself want to help raise awareness. I have all three elements and it’s upsetting when people blatantly stare and assume it’s drink or drug related.
My roommate who is 75 im pretty sure he has this too he’s had it since childhood and his mother had it . Can you tell me if there’s any treatment because he’s using alcohol to help it which really isn’t good because he’s does it excess. You are the only person I’ve heard that had this from childhood any advice?
💌 I just got a call from my 25 year old daughter tonight. She had 40 minutes of tremor today. She isn’t saying she may have ET, but with your informative talk I just listened to ...she may. She has made a virtual appointment with her physician and will begin this journey tomorrow. Thanks for offering your expertise to the public. Jennie from Muskoka, Canada.
I have had ET since I was a child (long before I ever had a drink). I remember being embarrassed by my tremors constantly. I started drinking to self medicate with my adulthood. Recently, I tried to detox, but I couldn't stop the shakes. I have tried this twice, but every time I tried I would get to the point where my shakes were low enough but then I would encounter insomnia and the shakes wouldn't stop. ET runs in my family and my cousin has it. My family doctor when I was little suggested to my mother that I had simply had too much caffeine, via pop (or soda, as you may). I really appreciated this video. Thank you, Dr.Sullivan. Not sure if I can recover from this because I've been self medicating my tremors for so long, but this was so very informative.
Thank you for saying that because I've had it since I was very very young and I believed I was born with it my nickname is shaky and I've tried every type of medication they've thrown at me and nothing helps but a beer first thing in the morning or for that matter anything I can get my hands on alcohol related so I connect with you totally and thank you for saying what you said it really means a lot and Dr Sullivan is amazing because I just learned a lot from this video as well God bless you and I hope we can get through this together!!
i feel your pain brother. I have had it since i was born, i was made fun of and treated like a freak growing up, even at 37, its hard to go out in public and meet people because as soon as they notice me shaking they start acting different like they feel weird being around me.. its effected my relationships, friendships and with family, because along with ET i have developed severe anxieties over my life due to it. Top it off, im also extrememly ADHD and pretty much have to force myself to constantly eat because i will literally go 48 hours before i feel hunger
Wow. Your video jest taught me more about my ET and relationship with alcohol than any literature, group (therapy/AA) or doctor ever had before. I feel like I have more agency over my alcohol use and am 1 step closer to getting it under control. I can't thank you enough!
3/9/2023 Approximately 1.5 years ago a I realized that when I stepped on the scale to weigh myself my legs were trembling/shaking on the inside (not visible to me) and my legs wouldn’t stay still enough for me to get a reading on the scale. This came on suddenly. I had been successfully weighing myself every morning for a couple of years. And then one morning it took me 20 - 12 attempts to get a reading. I kept trying for many mornings and then just gave up. And that was the beginning of my journey. I was diagnosed with dystonia and the most important thing I’ve learned - and practice daily is self care. I’ve seen a few of your videos and I am going to become one of your biggest fans. I crave reliable information. And I’m blessed with a PCP that has been leading me through my discovery period. And I have a neurologist who specializes in movement disorders. Thank you so much for sharing your expertise.
It makes me feel much better knowing im not alone. the shakes, the social anxiety, the depression... over the last few years, i have started having more and more frequent pin a needle feelings in feet and lower legs, eye lids twitching. Im about to go see a neurologist next week. Im tired of living like this. waiting til i was 36 to address this is my own fault
After watching this video I have discovered that a 7oz glass of wine about 1 hour before eating actually allows me to actually hold a fork steady and get food to my mouth without frustration, humiliation and embarrassment. I also suffer from low thyroid, pernicious anemia (B12 deficiency). Now I understand another piece of this puzzle about what is going on and put some kind of balanced approach to this horrible condition. Thank you so much! I’m so glad I found this. Even typing this on a phone… which I usually have a lot of trouble doing, is easier.
My doctor recommended I try wine (sensible amounts!) to see if it settled my ET. (Experiment still in progress. May not have found the right wine yet!)
Thank you so much for that I just watched your video for the first time and it really touched my heart I've had tremors my whole life and I've tried every medication under the sun and the only thing that helps me is alcohol and I have to drink a beer first thing in the morning and the last thing before I go to sleep so that was very inspirational and I'm looking forward to seeing more!! Thank you very much for what you do it certainly means a lot because I felt so alone in this world and thought I was the only one that had this condition!
@@Xanax1.0 lol my doctor says that they cause dementia, which I don’t believe. I was on them for awhile after a severe auto accident, which gave me PTS bc I was T boned and my truck rolled & I was ejected 65 feet.
Yes my roommate has to drink before he can even write a check and of course over time he’s become a full blown alcoholic but I really feel bad for all of you so there’s no medicine that can help this I take it?
For years I had a problem with tremors in my hands, I stopped smoking and drinking coffee and I drink fresh lemon juice while I want to get fast enough on the tremor
Very good information, I like the way you look the whole person in your diagnosis and recommendations. I have just recently been diagnosed with essential tremor, at this point it is very minor and only affecting my right hand. I have been a moderate/heavy drinker most of my life and will be following your recommendations to reduce my alcohol. Another method for people to reduce their alcohol consumption, is to buy and consume lower alcohol beverages. Their are many good beers available with alcohol levels as low as 3-4% and also some very good non alcohol beers available.
I randomly came across this and I learned so much about my et! My bf told me recently that I should pay attention to interrupting people. I have been paying attention and I do have difficulty stopping myself. Interesting to know this is related to et.
Thank you Dr Sullivan for talking about this issue in such an intelligent, sensible way. All I had from my GP is that alcohol stops tremors....I didn't realise it was causing more damage. Food for thought.
Good grief.. a very uninformed GP! Hope you tell GP this fact so to educate before others are harmed by such ignorance.. find a very good neurologist (and neuro psychologist as well.. if you’re lucky). All the best to you 🦋
Myself and others online have found that heavy strength training (e.g weighted squats), particularly stuff that hits the legs or back hard, helps ET hugely. For me there is a night and day difference between doing this or not. Other kinds of exercise don't really seem to have an effect. Can anyone speculate on how that could be possible in relation to the cell loss talked about here?
You are the first person to bring this up. I find that weight-bearing resistance in the arms and legs makes a vast improvement. Before I couldn't lift a plate in the cupboard without shaking and clattering and now it is a breeze. I no longer so much have the sensation I am going to trip over my own feet so much. You are on to something.
@@borrago out of interest, would that affect the tremor in other parts of the body? In my case, the tremor is most prominent in my face, but working out with my legs is the best thing for reducing that facial tremor (I feel the difference is much more dramatic than can be explained by other factors such as stress/sleep etc)
New subscriber here. I love the way you talk and I could listen to you all day. That was so straightforward and so non-judge mental. I am going to listen to some of your other videos.Thank you
I first noticed tremors when I was 20 while shooting competition...couldn't hold the rifle study/noticed minute shaking. Now 53 and tremors are visible to others. Never was a heavy drinker but certainly partied in college. But being an engineer my career always took precedent over alcohol. Started a very special medication in 2008 for narcolepsy. It doesn't mix with liquor at all. I primarily have action tremors if I understood your video. Overall my health is good except for narcolepsy. Definitely looking for answers.
I'm 52 and have been living with ET since high school. At some point in my 20's my neurologist told me alcohol would help. Worst advise I ever got. Yes, alcohol made it better while I was drinking, but the tremors got worse over time so I drank more, and the next thing I knew I wasn't drinking just for the tremors. The tremors were so bad when I was not drinking that I could barely write and it was messy. No problem, couple of drinks later and I was steady as anyone, but the next morning they were back. I finally decided to quit drinking for good 5 years ago and after a few days I realized that my tremors are NOT NEARLY as bad as they were when I drank. Not at all. I now choose to just live with it and take a couple of drugs that help (I was on those all along anyway). I know that if I drink, the detox shakes will be much worse than they are normally and that vicious cycle could start again. DO NOT use alcohol to control your ET. It is a very slippery slope.
Thank you for the post. My father had essential tremor, and quite a few of my father's side of the family have it too. The last years of his life he couldn't even sign his own name, or try to drink enjoy is coffee. The harder he tried to hold anything, the more pronounced his tremor. Much to his relief, having a beer lessened ET. He died of prostate cancer when he was 90. What you describe of the symptoms were exact symptoms he had. My 2 older sisters have it, but I don't.
Thank you for this informed real world video. Ive been looking for something like this for years. Im a woman, 48. I have multiple sclerosis. Dx 2008. I have problems with vision, vestibular stuff and tremor. Im on propanolol. I use alcohol. Im still drinking too much but i try to... Never drink on empty stomach. Stay under 4% ABV and dilute with water to dilute alcohol. C. 1-2 units/hr. If i drink its with the objective of achieving/doing something. Yes, people around me think im alcoholic. But im very very rarely drunk. But i do tend to have a drink in my hand, often diluted. Its difficult. Thank you for the information. Strength and prayers to all 💪🙏
Oh ! And could you please confirm or correct my understanding ... Alcohol processed through the stomach will go to brain and "release GABA" or do whatever that helps with ET. Alcohol consumed above the amount that can be processed through stomach ( 1. You need food in stomach 2. Your body can only process a small amount of alcohol at a time.) Consumption of alcohol above this level goes into blood and causes problems in organs etc... because it's basically a toxin? I know I should stay
Interesting video. I developed tremor late teens and never sought diag from doctor as in my 20s I noticed the temporary alcohol fix and was made aware of ET and alcohol connection. Now in early 40s working through migraines, sleep problems, intermittent pain/tingling, and tachycardia I was placed on beta blocker for successful treatment of tachycardia. Saw improvement in ET, but the best improvement occured after started taking GABA supplements. All my research says this shouldn't occur because GABA supplements don't cross blood brain, but it dramatically improved tremor and eliminated migraines. The only kicker is i can still have tremor flare ups that are more pronounced than in my 20s, but frequency has dropped using GABA.
I’ve been diagnosed with ET. I’ve had it since the age of 15 and got the diagnosis at the age of 35. One doctor previously dismissed it as a twitch, but now I’ve been prescribed propranolol which seems to help. I do drink, but not a lot. My GP did ask if I’d ever noticed if having a drink helps and I’ve never noticed that it does. Now, when I find myself having a drink, I’m monitoring how it affects my ET. On a few occasions, I’ve had relatively bad tremors even after a drink or two. Although, I don’t tremor constantly and it’s also possible that alcohol may have helped on other occasions when I wasn’t experiencing any tremor. I guess it’s possible the relatively bad tremors could have been more severe if it wasn’t for the alcohol I’d consumed. But, still very difficult for me to determine if it helps me at all and I’m not prepared to start drinking everyday to find out. This was a very interesting video though and thanks for sharing.
Since commenting on this a few months ago, I’ve noticed a vast improvement on my tremors. I was taking propranolol, but this seemed to interfere with my sleep. I saw a doctor who dismissed the idea that it was and if anything should help me sleep. But when I was on it, I noticed I was getting very little sleep. So, I ignored my doctor and I’ve now stopped using propranolol altogether, concentrating on getting better sleep. One sleep aid that I take most nights is a cup of cbd tea. Now I’ve no idea if this helps with tremors directly, but it certainly helps me sleep. And lack of sleep seems to make my tremors worse. My tremor is a head tremor and it’s very rare I get it these days, but in the past it has been quite severe
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I know its been a year, how have you been feeling since then? I've been talking with my doctor as I had just noticed small tremors in my hand about 3 weeks ago. He says it could most likely be ET, but not a concrete diagnosis. I haven't been more scared in my life and if DBS surgery works for ET then I will feel a lot better for my future.
I'm glad you cover issues with ET. I have ET and it's not covered enough. I'm 47 and have had it most of my life but as normal it's gotten worse the older I get. I wish more was known about it. My nuero wants my to have dbs surgery but I want to cover all bases before I even consider it. You cover way more than my Neuro covers. I do drink occasionally and you are so correct on the rebound. The rebound tremors are terrible. My Neuro has never covered this with me. I would love to be part of the zoom meeting. I don't have anyone to connect with that has tremors.
@@tylerpool5464 I've had it all of my life but with ET, the older you get the worse it gets. It's impossible for me to do most things that require intricate detail such as soldering or even just using a drill to take something apart or such. In my state (TN) ET is not considered a disability. I've also heard and read that it's very hard to get in about any state. How bad does yours effect your every day life?
@@PalmettoMoon my tremors just started really effecting my life in the past year. a year ago I went through a stressful 3 month period and now I shake a bit all over, head to toe. I do take propranolol 60mg ET daily. It pretty much stops my tremors but doesn't do much for my hand tremors. I'd like to not take anything but I'm pretty much past that point now, I'll be honest with you I do worry about getting older now, I'm already pretty effected at 24 and idk about you but mine started off so mild, compared to 4 years ago it's an extremely noticeable difference. My left hand is the worst, I've also got it in my voice. Do you take anything?
I appreciate you. I'm undiagnosed. My legs and voice, eyes are all affected. I don't have Parkinson's. All tests are negative. I have action tremors of legs, hands. Having no diagnosis is most exasperating 😢
I control my ET by practicing Taichi/chigong 3 hours daily over the past 30 years. I can eat with chopsticks/fork & spoon and write normally. My doctor initially misdiagnosed my ET and gave me medication to treat Parksonson. I discontinued the medicine after 1 week - that was more than 30 years ago.
i was on Depakote for 9 years for a seizure disorder This is how Depakote affected me it caused massive weight gain, memory loss, a hand tremor a one point i stoped eating i had no appitite i was severly depressed and suisidal . i was taken off but still had a small tremore this is my personal experience of the medication and i know that everyone will react diffrently to any kind of medication now i have a tremor in my left hand as it is my nondominante and my right hand also shakes not a big shake but i can feel it even if no one sees
Those of you that have tremors, have you always had them? If not, at what age was onset? I'll be 54 in Nov, and have just recently started having tremors. I have not been diagnosed with diabetes, nor have insulin issues, but at first I thought maybe I was "shaking" because I was hungry. But, it isn't just my hands, and eating doesn't make it stop. My head/neck also tremors. It is jittery feeling, and it actually makes me nauseous. Seems to be worse in the mornings. I also wondered if it had anything to do with the damage in my neck, affecting my spinal cord, causing it. I have Syringomyelia. I'm trying to dodge so many surgeries right now (ankle, both knees, neck, back). Severe osteoarthritis. Just trying to figure it out.
I am a nurse and developed ET around the age of 46 yr/old Went to neurologist lots of scans / MRI I was told they had no idea why or what has caused this. I experience hand and head tremors. Propranolol helps to control them but not completely It’s really embarrassing if someone doesn’t know me they think I can’t do my job. Just imagine getting your blood drawn from someone with ET. I have adapted to and adjusted the way I do things to accommodate ET . No family history of ET and not an alcoholic or drug addict. I also do not have any other diagnosis for diabetes, thyroid, etc
I've Had Tremors since I was a teenager, I remember I first noticed it on my fingers than it went to my whole hand. eventually I felt it on my foot as well, This was all before my senior year was over. I was in school sports and music programs, I really enjoyed music and sports. As soon as I graduated I went to college and started drinking to make my tremors not present while I was in class taking notes. I noticed I was drinking everyday on campus and I just quit college cause I though It would just be a waste of time. After that I realized that my life would be different than others forever. I started working construction because it fit around my issue better at the time, I could also drink around my work friends (after work hours). Eventually I started a business of my own in construction but every time I have to go meet with a new client it gives me anxiety to think that I have to be in front of them while my body shakes. I started drinking before meeting to ease the tremors and it did help but that means that I have to drink Every time I have to go on a meeting? Yes My drinking habit has been built up around my tremors. I am 37 now and Have serious problems because of this, They just divorced me because my Ex thinks I'm just an alcoholic, I have a 3 year old daughter. I have yet to see how the rest of my life is going to unfold from this point on. As I think back of why I have this tremors, I remember that I played with mercury. I would grab mercury place it on my hands thinking its was cool, as my dad was a dentist and had it at reach. I have yet to try to detoxify my body from heavy metals to see what happens. This disease has taken control over me more than I thought and I'm working to see if I can live a better life or if this is it. I dont think anyone wants to use alcohol as resource, You can also become an alcoholic and have more problems down the road such as liver problems. Just thought of sharing my life story because I know this is a hard condition to have. Thank You for listening.
Thank you for explaining the mechanism of essential tremor. I am a retired pharmacist, and am hungry for information about this disorder. I hate the name of it! Essential tremor doesn’t even make sense. It is not an essential item for anyone diagnosed with it! The involvement of GABA certainly makes sense as does the cerebellum. Thank you so much for all of the information you provided.
Fascinating, easy to listen too, easy to understand. I don't know about ET but the information about Gaba and Alcohol is useful. Gabapentin is very useful to help get alochal use down to its usefulness. Perhaps you can examine the brains of us that have been in high control relationships. I have both experiences. I was in a cult and basicly drank my way out. Looking back, the cult became an addiction. It's no wonder - from the beginning I told my family it was like being high without drugs. It was. I got out of both only with self education. Now I get high learning new things from people like you ❤️ Thank you for your (free 😀) help 🙏
Refreshing to see a practitioner with a global view of the condition. Most--almost all--physicians focus solely on the symptomatology and not the etiology; and if you treat just the symptom and not the cause, the best for what you can hope is management and not remedy. The condition is challenging, for even minor compression on the spinal cord or excessive use of a computer mouse can generate or exacerbate ET. Indeed, the therapist must also be a detective to sleuth factors contributing to the condition.
I have MS and ET. The MS seems dormant. Tremor at 73 is progressing. There is information on this video I’ve never heard before. Our whole family has ET that seemed to start with paternal grandmother. Now we’re seeing it with my nephews in their 30’s. Where does MS end and ET start?
Dr. Sullivan? That has a nice ring to it. Thank-you for focusing on this issue. I'm 69 years old. My ET kicked in about 5 years ago. I had no idea that there is an explanation for my left hand trembling whenever I am trying to use a pen. For me, there is some irony. 1) Only my left hand is afflicted and I happen to be left handed. 2) Alcohol supposedly gives temporary relief and I can't stand even the smell of alcohol. As a diabetic, I had assumed that the tremors and glucose were somehow related. Compared to many, my ET is very minor. Although, I'm assuming it will gradually get worse as I get older.
Switch to writing with your other hand at first you think that’s going to be difficult, but I can print beautifully with my right hand and I was a lefty. All my life did a lot of writing as a lawyer and now I just print with my right hand and get my pretty good.
Should I just detox? I am not sure I can be part of your June conference I am a dental hygienist and this is crippling my abilities to practice. I am now single after a nasty divorce and currently have NO income after the dentist hatrassing me to speak to my neurologist. I felt it was a hippa violation AND he cited that my co workers had seen my tremor. I’m scared and not sure what to do!
Thank you Doctor for the information. I have had ET for decades and I am 55 now and it is significantly noticeable in times of stress and anxiety. It is embarrassing for me when people notice... I definitely notice my tremor go away when I drink. But with this information... I’m stopping.... ❤️🙏☕️
Mine goes bad trying to solder on circuit boards, so I've pretty much given up on that. This week I went through 4 forms before I could fill it out and sign my name. My sister told me about alcohol so later today I'm going experiment and see what happens when I feel light. All in the name of science.. I have been on asthma medication for about 20 years. I miss electronic work. Tremor is fairly common in the family.
I'm back and after a large glass of Bailey's it held back the tremor and was able to solder a small joint with 3 components just touching. So yes alcohol does seem to work, but I feel crap and unable to function normally, apart from fine control.
I have essential tremer when I was 18 year old I am doing masters in mathematics but I am badly affected by this it's really embarassing when people asking what's happening to you
FYI: Just a suggestion, have a business card to hand certain others w a brief description about ET (or any condition people may be curious about so you don’t need to repeat over and over..). Include a reference to Dr. Sullivan’s (icfyb) UA-cam videos: and ET specifically
I’m sorry I missed your June workshop (Oct now). Is it on UA-cam now? Also - I smoke MUCH more marijuana than drink alcohol. (Have found in last couple yrs that alcohol tolerance is much lower than historically. ) My question is ET & marijuana combo. Am assuming that less information is available than the booze angle. Any thoughts on the subject would be appreciated. Thnx 😊
I can only say a big thank you to you for your video and your knowledge of ET and especially the connection between ET and alcohol ism. I am in my 70s and have had ET since my late 30s. Needless to say it has impacted my life enormously. My mother had ET and was also an alcoholic. I assume she drank during her four pregnancies. I am also an artist but the conflict with my tremor is overwhelming I am thankful that alcohol does not help my tremor, alcoholism will not be me. Looking forward to your upcoming videos and will look for the ones I’ve missed
Thank you. Husband (68) has had ET for decades, getting worse all the time.Uses mysoline (since propanolol dropped BP too much). The tremor is bothersome and embarrassing. His mom and our daughter also have it. He is also type 1 diabetic. Is there a higher incidence of ET with T1D?). Anyway, thank you for your expertise. Will be watching more of your lectures.
I have essential tremor in my arms and hands-being treated with meds. I also have an irregular essential tremor in my voice-had this for decades- docs told me there is nothing they can do-I have been trying to sing back-up harmony in the bands I have worked with-never worked out because of the vocal tremor-Is there any hope??
Hello, Thank you for making this information available. I have a quick question. I have a 40 year history with Migraine and I also have about a 10 year history with Diabetes. Is it possible or even likely that one of those could be the source of my ET. Thanks in advance.
I’ve had ET for nine years and for the last four years have experienced unsteadiness while walking and recently have choking episodes while asleep.I’m having swallowing problems due to ET but my neurologist never mentioned those type of symptoms. Mainly they consider it only a tremor problem. Do these symptoms occur with ET?
Great video!! I have ET (genetic), diagnosed at 30. I am curious as to why benzo’s aren’t just as bad as alcohol with damaging p-cells? They both attach to GABAa receptors and enhance GABA in the brain. I think it worsened my tremor in the long-term, especially when I was prescribed high doses of Xanax. I was also a heavy drinker for a few years after a divorce. I had no idea that I was on cross-tolerant drugs and my dad’s ET was genetic. I no longer drink any alcohol and haven’t for years. Looking back now, I know I had ET for years and didn’t recognize the symptoms because they weren’t severe enough. I assumed it was bad anxiety, that I suffered with my entire life, social anxiety being the worse. I wonder if my anxiety was so severe due to the fact that I had ET and my brain wasn’t producing enough GABA. I’m dependent on Valium now and wonder if it will continually make my tremors worse and cause more severe damage to my cerebellum. I can’t come off Valium because my tremors will be 100x worse and I can’t go through that, plus benzo withdrawal again. I tried Gabapentin, but it only worked for a short time. They raised my dose and I couldn’t handle the cognitive issues. I now take 250mg Lamictal, 15mg diazepam, and 40-80mg Propanol daily. I know this in an old video, but I just discovered your channel and am binge watching it. Thank you for sharing such valuable information!
I’m an old fart that has developed ET to a noticeable extent just over the last year. Mine is non- genetic. I’ve counted a couple of well replied to posts on the Facebook ET group where it’s asked when did everyone see ET first appear in their lives. Generally it’s three quarters of people who say it was genetic for them and a much smaller minority who saw it come on later in life with no connection to family.
This video has been t one of her most informative not because of alcohol I drink (generally one drink every three or four years!) but because of the fascinating explanation of where ET originates!
Can you please give us your opinion on the newest treatment for Essential Tremors, High Intensity Focused Ultrasound. I'm seriously considering undergoing this non-invasive treatment opposed to the Deep Brain Stimulation, which is the most invasive alternative. Please share your overall recommendation. Thank you so much.❤
My trimmers started at age 12. I'm 50 now and have learned to live with them but they have gotten worse over the years one or two shots of whiskey a month if I have something I really need to slow the trimmers for.
Hi Dr. I Have a friend that have ET and base on your knowledge… What can I do to help her to reduce those symptoms from my end so she can be relax and enjoy the time together?
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I've had ET for approximately 7 years. I try to play golf (used to be pretty good, until ET) and a few beers does help with the swing. But take my word, I use to drink 6 to 7 days a week, years ago.........you don't want to take that path either. So far, I've been lucky. If you can drink it when you really need it and can stop until you need it.......this is great! I've been able to keep it at a bare minimum at home.......fortunately! So my lesson for the day.......keep the alcohol drinking to a bare minimum........VERY GOOD video, by the way!!
I was absolutely floored when I found this video. I had been trying to figure out what my shaking was related to when it started 20 years ago in my early I mid 20s. I started noticing gag alcohol would make them completely stop so i started drinking just to go out, to go to work, to function, cuz the head shaking was so embarrassing. My husband still thinks my shakes are only when I'm upset or have anxiety but he doesn't realize it happens while I'm doing my makeup or watching a movie. It's so random. Yes some emotions can make it worse but I also suffer from Borderline Personality Disorder and CPTSD so my emotions are very strong. Maybe that's why certain emotions can make it worse.
same here
Thanks for this post it helps so much that my tremor has progressed since a small child and the only person that seems to understand is my neurologist. Knowing that there are people like yourself want to help raise awareness. I have all three elements and it’s upsetting when people blatantly stare and assume it’s drink or drug related.
I have dealt with my ET since I was was 26. I'm now 62. People definitely think that you are a drug addict or Alcoholic.
My roommate who is 75 im pretty sure he has this too he’s had it since childhood and his mother had it . Can you tell me if there’s any treatment because he’s using alcohol to help it which really isn’t good because he’s does it excess. You are the only person I’ve heard that had this from childhood any advice?
It is very touching to hear from a medical professional validate our suffering. All the blessings this world can give.
Not a medical professional. A psychologist.
@@08turboSS a board certified neuropsychologist is considered a medical professional. Merry Christmas!
💌 I just got a call from my 25 year old daughter tonight. She had 40 minutes of tremor today. She isn’t saying she may have ET, but with your informative talk I just listened to ...she may. She has made a virtual appointment with her physician and will begin this journey tomorrow. Thanks for offering your expertise to the public. Jennie from Muskoka, Canada.
I have had ET since I was a child (long before I ever had a drink). I remember being embarrassed by my tremors constantly. I started drinking to self medicate with my adulthood. Recently, I tried to detox, but I couldn't stop the shakes. I have tried this twice, but every time I tried I would get to the point where my shakes were low enough but then I would encounter insomnia and the shakes wouldn't stop.
ET runs in my family and my cousin has it. My family doctor when I was little suggested to my mother that I had simply had too much caffeine, via pop (or soda, as you may).
I really appreciated this video. Thank you, Dr.Sullivan. Not sure if I can recover from this because I've been self medicating my tremors for so long, but this was so very informative.
Thank you for saying that because I've had it since I was very very young and I believed I was born with it my nickname is shaky and I've tried every type of medication they've thrown at me and nothing helps but a beer first thing in the morning or for that matter anything I can get my hands on alcohol related so I connect with you totally and thank you for saying what you said it really means a lot and Dr Sullivan is amazing because I just learned a lot from this video as well God bless you and I hope we can get through this together!!
Ditto!
i feel your pain brother. I have had it since i was born, i was made fun of and treated like a freak growing up, even at 37, its hard to go out in public and meet people because as soon as they notice me shaking they start acting different like they feel weird being around me.. its effected my relationships, friendships and with family, because along with ET i have developed severe anxieties over my life due to it.
Top it off, im also extrememly ADHD and pretty much have to force myself to constantly eat because i will literally go 48 hours before i feel hunger
I don’t drink, but I’m going to try either a beer or glass of wine and see if it helps; it would so be worth it when I have to balance my budget.
Wow. Your video jest taught me more about my ET and relationship with alcohol than any literature, group (therapy/AA) or doctor ever had before. I feel like I have more agency over my alcohol use and am 1 step closer to getting it under control. I can't thank you enough!
That is the best! Awesome! I have a 4 hour webinar on ET you might benefit from as well. icfyb.com/webinaret/
😄 i feel like being validated! Finally !!!
This clicked on so many levels for me. Thank you!
Thanks for a very insightful video on the origins of ET. I keep coming back to this one.
Thanks so much! This helps us keep our commitment to free, high quality brain health education going!
3/9/2023
Approximately 1.5 years ago a I realized that when I stepped on the scale to weigh myself my legs were trembling/shaking on the inside (not visible to me) and my legs wouldn’t stay still enough for me to get a reading on the scale. This came on suddenly. I had been successfully weighing myself every morning for a couple of years. And then one morning it took me 20 - 12 attempts to get a reading. I kept trying for many mornings and then just gave up. And that was the beginning of my journey. I was diagnosed with dystonia and the most important thing I’ve learned - and practice daily is self care. I’ve seen a few of your videos and I am going to become one of your biggest fans. I crave reliable information. And I’m blessed with a PCP that has been leading me through my discovery period. And I have a neurologist who specializes in movement disorders. Thank you so much for sharing your expertise.
Thanks!
Thanks so much! This helps us keep our commitment to free, high quality brain health education going!
It makes me feel much better knowing im not alone. the shakes, the social anxiety, the depression... over the last few years, i have started having more and more frequent pin a needle feelings in feet and lower legs, eye lids twitching. Im about to go see a neurologist next week. Im tired of living like this. waiting til i was 36 to address this is my own fault
Focus on what you are doing now and be compassionate to yourself for not acting sooner!
@@icareforyourbrainwithdr.su7103 ❤ Thank you so much for doing what you do
After watching this video I have discovered that a 7oz glass of wine about 1 hour before eating actually allows me to actually hold a fork steady and get food to my mouth without frustration, humiliation and embarrassment. I also suffer from low thyroid, pernicious anemia (B12 deficiency). Now I understand another piece of this puzzle about what is going on and put some kind of balanced approach to this horrible condition. Thank you so much! I’m so glad I found this.
Even typing this on a phone… which I usually have a lot of trouble doing, is easier.
alcohol actually work better than anything had to quit thought
My doctor recommended I try wine (sensible amounts!) to see if it settled my ET. (Experiment still in progress. May not have found the right wine yet!)
Thank you so much for that I just watched your video for the first time and it really touched my heart I've had tremors my whole life and I've tried every medication under the sun and the only thing that helps me is alcohol and I have to drink a beer first thing in the morning and the last thing before I go to sleep so that was very inspirational and I'm looking forward to seeing more!! Thank you very much for what you do it certainly means a lot because I felt so alone in this world and thought I was the only one that had this condition!
What about benzos
Dr. Sullivan, Did you récord the virtual seminar? I would love to see it!
@@Xanax1.0 lol my doctor says that they cause dementia, which I don’t believe.
I was on them for awhile after a severe auto accident, which gave me PTS bc I was T boned and my truck rolled & I was ejected 65 feet.
@@dmariewalker6880 im so so sorry for you
Yes my roommate has to drink before he can even write a check and of course over time he’s become a full blown alcoholic but I really feel bad for all of you so there’s no medicine that can help this I take it?
For years I had a problem with tremors in my hands, I stopped smoking and drinking coffee and I drink fresh lemon juice while I want to get fast enough on the tremor
Very good information, I like the way you look the whole person in your diagnosis and recommendations. I have just recently been diagnosed with essential tremor, at this point it is very minor and only affecting my right hand. I have been a moderate/heavy drinker most of my life and will be following your recommendations to reduce my alcohol. Another method for people to reduce their alcohol consumption, is to buy and consume lower alcohol beverages. Their are many good beers available with alcohol levels as low as 3-4% and also some very good non alcohol beers available.
Thank you Dr. Sullivan for this very informative video on Essential Tremor and alcohol.
Just found you today! So grateful but sorry I missed the virtual conf. I hope I can find it on youtube. TY for all the info presented here.
I randomly came across this and I learned so much about my et! My bf told me recently that I should pay attention to interrupting people. I have been paying attention and I do have difficulty stopping myself. Interesting to know this is related to et.
Thank you so much for all you do. You have taught me so much about my ET and managing it. You are such a blessing.
You are so welcome!
Thank you Dr Sullivan for talking about this issue in such an intelligent, sensible way. All I had from my GP is that alcohol stops tremors....I didn't realise it was causing more damage. Food for thought.
Good grief.. a very uninformed GP! Hope you tell GP this fact so to educate before others are harmed by such ignorance.. find a very good neurologist (and neuro psychologist as well.. if you’re lucky). All the best to you 🦋
VERY helpful information. Thank you Dr. Sullivan.
Myself and others online have found that heavy strength training (e.g weighted squats), particularly stuff that hits the legs or back hard, helps ET hugely. For me there is a night and day difference between doing this or not. Other kinds of exercise don't really seem to have an effect. Can anyone speculate on how that could be possible in relation to the cell loss talked about here?
I find the same thing with me. It helps that I am a PT and was a bodybuilder. It makes all the difference lifting weights....for me.
You are the first person to bring this up. I find that weight-bearing resistance in the arms and legs makes a vast improvement. Before I couldn't lift a plate in the cupboard without shaking and clattering and now it is a breeze. I no longer so much have the sensation I am going to trip over my own feet so much.
You are on to something.
@ Ryan Pridgeon goin HEAVY ! Thankyou!
Tai chi can really help too.
@@borrago out of interest, would that affect the tremor in other parts of the body?
In my case, the tremor is most prominent in my face, but working out with my legs is the best thing for reducing that facial tremor (I feel the difference is much more dramatic than can be explained by other factors such as stress/sleep etc)
New subscriber here. I love the way you talk and I could listen to you all day. That was so straightforward and so non-judge mental. I am going to listen to some of your other videos.Thank you
Thank you. Great info and I look at it as self care and love. People that care about you would encourage and not gas light. Have a blessed day. :)
I first noticed tremors when I was 20 while shooting competition...couldn't hold the rifle study/noticed minute shaking. Now 53 and tremors are visible to others. Never was a heavy drinker but certainly partied in college. But being an engineer my career always took precedent over alcohol. Started a very special medication in 2008 for narcolepsy. It doesn't mix with liquor at all. I primarily have action tremors if I understood your video. Overall my health is good except for narcolepsy. Definitely looking for answers.
I'm 52 and have been living with ET since high school. At some point in my 20's my neurologist told me alcohol would help. Worst advise I ever got. Yes, alcohol made it better while I was drinking, but the tremors got worse over time so I drank more, and the next thing I knew I wasn't drinking just for the tremors. The tremors were so bad when I was not drinking that I could barely write and it was messy. No problem, couple of drinks later and I was steady as anyone, but the next morning they were back.
I finally decided to quit drinking for good 5 years ago and after a few days I realized that my tremors are NOT NEARLY as bad as they were when I drank. Not at all. I now choose to just live with it and take a couple of drugs that help (I was on those all along anyway). I know that if I drink, the detox shakes will be much worse than they are normally and that vicious cycle could start again.
DO NOT use alcohol to control your ET. It is a very slippery slope.
Join us for our I CARE FOR YOUR BRAIN ET WEBINAR: www.icfyb.com/webinaret/
Thank you that was very informative I never knew there was more to it.
Thank you for the post. My father had essential tremor, and quite a few of my father's side of the family have it too. The last years of his life he couldn't even sign his own name, or try to drink enjoy is coffee. The harder he tried to hold anything, the more pronounced his tremor. Much to his relief, having a beer lessened ET. He died of prostate cancer when he was 90. What you describe of the symptoms were exact symptoms he had. My 2 older sisters have it, but I don't.
That's because he had difficulty writing!
Excellent. I learn something new each time. Danke
I learned a lot,my husband is heavy drinker,he has tremors in his hands,ty for the information
It does the same for me. Absolutely!
Thank you for this informed real world video.
Ive been looking for something like this for years.
Im a woman, 48. I have multiple sclerosis. Dx 2008.
I have problems with vision, vestibular stuff and tremor.
Im on propanolol. I use alcohol.
Im still drinking too much but i try to...
Never drink on empty stomach.
Stay under 4% ABV and dilute with water to dilute alcohol. C. 1-2 units/hr.
If i drink its with the objective of achieving/doing something.
Yes, people around me think im alcoholic. But im very very rarely drunk. But i do tend to have a drink in my hand, often diluted.
Its difficult.
Thank you for the information.
Strength and prayers to all 💪🙏
Oh ! And could you please confirm or correct my understanding ...
Alcohol processed through the stomach will go to brain and "release GABA" or do whatever that helps with ET.
Alcohol consumed above the amount that can be processed through stomach ( 1. You need food in stomach 2. Your body can only process a small amount of alcohol at a time.)
Consumption of alcohol above this level goes into blood and causes problems in organs etc... because it's basically a toxin?
I know I should stay
Thank-you so much for posting these videos. They sure help me understand my symptoms better.
Interesting video. I developed tremor late teens and never sought diag from doctor as in my 20s I noticed the temporary alcohol fix and was made aware of ET and alcohol connection. Now in early 40s working through migraines, sleep problems, intermittent pain/tingling, and tachycardia I was placed on beta blocker for successful treatment of tachycardia. Saw improvement in ET, but the best improvement occured after started taking GABA supplements. All my research says this shouldn't occur because GABA supplements don't cross blood brain, but it dramatically improved tremor and eliminated migraines. The only kicker is i can still have tremor flare ups that are more pronounced than in my 20s, but frequency has dropped using GABA.
I’ve been diagnosed with ET. I’ve had it since the age of 15 and got the diagnosis at the age of 35. One doctor previously dismissed it as a twitch, but now I’ve been prescribed propranolol which seems to help. I do drink, but not a lot. My GP did ask if I’d ever noticed if having a drink helps and I’ve never noticed that it does. Now, when I find myself having a drink, I’m monitoring how it affects my ET. On a few occasions, I’ve had relatively bad tremors even after a drink or two. Although, I don’t tremor constantly and it’s also possible that alcohol may have helped on other occasions when I wasn’t experiencing any tremor. I guess it’s possible the relatively bad tremors could have been more severe if it wasn’t for the alcohol I’d consumed. But, still very difficult for me to determine if it helps me at all and I’m not prepared to start drinking everyday to find out. This was a very interesting video though and thanks for sharing.
Thanks. Ver interesting information.
Since commenting on this a few months ago, I’ve noticed a vast improvement on my tremors. I was taking propranolol, but this seemed to interfere with my sleep. I saw a doctor who dismissed the idea that it was and if anything should help me sleep. But when I was on it, I noticed I was getting very little sleep. So, I ignored my doctor and I’ve now stopped using propranolol altogether, concentrating on getting better sleep. One sleep aid that I take most nights is a cup of cbd tea. Now I’ve no idea if this helps with tremors directly, but it certainly helps me sleep. And lack of sleep seems to make my tremors worse. My tremor is a head tremor and it’s very rare I get it these days, but in the past it has been quite severe
Thank you for this. I truly needed it.
Very well explained....👌👌👌👌👌👌
This is a powerful discussion and it is scaring me. Thanks! I take mentioned drugs.
I have had ET since I was a teenager. I agree with other comments that it’s great to find factual information. Oct 20th I will have DBS surgery.
have you ever been tested for tick-borne diseases: lyme disease or any of other diseases TICKS carry? usa has 20 different types.
have you ever had an EMBEDDED TICK WITH BLOOD IN IT or a BULLS-EYE RASH?
yes, please read my detailed, lengthy note above.
best wishes to you for quality of life.
betty gordon, ames, iowa
Did the surgery help?
YES IT HELPED A LOT! SO MUCH SO I HAD THE OTHER SIDE DONE IN MAY. A FEW ISSUES TO RESOLVE BUT OVERALL VERY HAPPY I “WENT FOR IT”!
@@inthekitchenwithbubby7724 Nice! I'm glad it worked for you. This is the first I'm hearing of this DBS surgery.
I know its been a year, how have you been feeling since then? I've been talking with my doctor as I had just noticed small tremors in my hand about 3 weeks ago. He says it could most likely be ET, but not a concrete diagnosis. I haven't been more scared in my life and if DBS surgery works for ET then I will feel a lot better for my future.
Thank you so much! It's just the info I've been looking for.
I'm glad you cover issues with ET. I have ET and it's not covered enough. I'm 47 and have had it most of my life but as normal it's gotten worse the older I get. I wish more was known about it. My nuero wants my to have dbs surgery but I want to cover all bases before I even consider it. You cover way more than my Neuro covers. I do drink occasionally and you are so correct on the rebound. The rebound tremors are terrible. My Neuro has never covered this with me. I would love to be part of the zoom meeting. I don't have anyone to connect with that has tremors.
I'd be willing to chat if you're up for it . I'm 24 years old and have had this for 4 years now
@@tylerpool5464 Nice! It's good to meet someone with the same condition. Have you had it all of your life?
@@PalmettoMoon nice to meet you to! No I have not , I developed mine when I was 20. How about you?
@@tylerpool5464 I've had it all of my life but with ET, the older you get the worse it gets. It's impossible for me to do most things that require intricate detail such as soldering or even just using a drill to take something apart or such. In my state (TN) ET is not considered a disability. I've also heard and read that it's very hard to get in about any state. How bad does yours effect your every day life?
@@PalmettoMoon my tremors just started really effecting my life in the past year. a year ago I went through a stressful 3 month period and now I shake a bit all over, head to toe. I do take propranolol 60mg ET daily. It pretty much stops my tremors but doesn't do much for my hand tremors. I'd like to not take anything but I'm pretty much past that point now, I'll be honest with you I do worry about getting older now, I'm already pretty effected at 24 and idk about you but mine started off so mild, compared to 4 years ago it's an extremely noticeable difference. My left hand is the worst, I've also got it in my voice. Do you take anything?
Interesting. Glad to have accidentally stumbled on to it
I appreciate you. I'm undiagnosed. My legs and voice, eyes are all affected. I don't have Parkinson's. All tests are negative. I have action tremors of legs, hands. Having no diagnosis is most exasperating 😢
GRACIAS POR SU KNOWLEDGE AND TIME
how easy you was explaing difficult problem. was listening with pleasure.thank you for deep knowlidge you are share with us
Thanks and you are welcome.
I control my ET by practicing Taichi/chigong 3 hours daily over the past 30 years. I can eat with chopsticks/fork & spoon and write normally. My doctor initially misdiagnosed my ET and gave me medication to treat Parksonson. I discontinued the medicine after 1 week - that was more than 30 years ago.
thank you for your love !
i was on Depakote for 9 years for a seizure disorder This is how Depakote affected me it caused massive weight gain, memory loss, a hand tremor a one point i stoped eating i had no appitite i was severly depressed and suisidal . i was taken off but still had a small tremore this is my personal experience of the medication and i know that everyone will react diffrently to any kind of medication
now i have a tremor in my left hand as it is my nondominante and my right hand also shakes not a big shake but i can feel it even if no one sees
I wish I had found this in time to attend the virtual conference. I hope I can find the recording of the co Terence so I can replay it.
God help me, I have this. It’s life changing and reliving the worst day of my life, ever damn day
Those of you that have tremors, have you always had them? If not, at what age was onset? I'll be 54 in Nov, and have just recently started having tremors. I have not been diagnosed with diabetes, nor have insulin issues, but at first I thought maybe I was "shaking" because I was hungry. But, it isn't just my hands, and eating doesn't make it stop. My head/neck also tremors. It is jittery feeling, and it actually makes me nauseous. Seems to be worse in the mornings. I also wondered if it had anything to do with the damage in my neck, affecting my spinal cord, causing it. I have Syringomyelia. I'm trying to dodge so many surgeries right now (ankle, both knees, neck, back). Severe osteoarthritis. Just trying to figure it out.
I am a nurse and developed ET around the age of 46 yr/old
Went to neurologist lots of scans / MRI I was told they had no idea why or what has caused this. I experience hand and head tremors. Propranolol helps to control them but not completely It’s really embarrassing if someone doesn’t know me they think I can’t do my job. Just imagine getting your blood drawn from someone with ET. I have adapted to and adjusted the way I do things to accommodate ET . No family history of ET and not an alcoholic or drug addict. I also do not have any other diagnosis for diabetes, thyroid, etc
@@jacquedickson3981 I know it is terrible. No drug or alcohol use here either.
I take Bystolic, but not for this.
I've Had Tremors since I was a teenager, I remember I first noticed it on my fingers than it went to my whole hand. eventually I felt it on my foot as well, This was all before my senior year was over.
I was in school sports and music programs, I really enjoyed music and sports. As soon as I graduated I went to college and started drinking to make my tremors not present while I was in class taking notes. I noticed I was drinking everyday on campus and I just quit college cause I though It would just be a waste of time. After that I realized that my life would be different than others forever.
I started working construction because it fit around my issue better at the time, I could also drink around my work friends (after work hours). Eventually I started a business of my own in construction but every time I have to go meet with a new client it gives me anxiety to think that I have to be in front of them while my body shakes. I started drinking before meeting to ease the tremors and it did help but that means that I have to drink Every time I have to go on a meeting? Yes My drinking habit has been built up around my tremors. I am 37 now and Have serious problems because of this, They just divorced me because my Ex thinks I'm just an alcoholic, I have a 3 year old daughter. I have yet to see how the rest of my life is going to unfold from this point on.
As I think back of why I have this tremors, I remember that I played with mercury. I would grab mercury place it on my hands thinking its was cool, as my dad was a dentist and had it at reach.
I have yet to try to detoxify my body from heavy metals to see what happens.
This disease has taken control over me more than I thought and I'm working to see if I can live a better life or if this is it.
I dont think anyone wants to use alcohol as resource, You can also become an alcoholic and have more problems down the road such as liver problems.
Just thought of sharing my life story because I know this is a hard condition to have.
Thank You for listening.
Thank you for explaining the mechanism of essential tremor. I am a retired pharmacist, and am hungry for information about this disorder. I hate the name of it! Essential tremor doesn’t even make sense. It is not an essential item for anyone diagnosed with it! The involvement of GABA certainly makes sense as does the cerebellum. Thank you so much for all of the information you provided.
Fascinating, easy to listen too, easy to understand.
I don't know about ET but the information about Gaba and Alcohol is useful. Gabapentin is very useful to help get alochal use down to its usefulness.
Perhaps you can examine the brains of us that have been in high control relationships. I have both experiences. I was in a cult and basicly drank my way out.
Looking back, the cult became an addiction. It's no wonder - from the beginning I told my family it was like being high without drugs.
It was.
I got out of both only with self education. Now I get high learning new things from people like you ❤️
Thank you for your (free 😀)
help 🙏
Refreshing to see a practitioner with a global view of the condition. Most--almost all--physicians focus solely on the symptomatology and not the etiology; and if you treat just the symptom and not the cause, the best for what you can hope is management and not remedy. The condition is challenging, for even minor compression on the spinal cord or excessive use of a computer mouse can generate or exacerbate ET. Indeed, the therapist must also be a detective to sleuth factors contributing to the condition.
I have MS and ET. The MS seems dormant. Tremor at 73 is progressing. There is information on this video I’ve never heard before. Our whole family has ET that seemed to start with paternal grandmother. Now we’re seeing it with my nephews in their 30’s. Where does MS end and ET start?
This Dr. is a fabulous speaker ! This was like
Neurology 101. 😊😊
Dr. Sullivan? That has a nice ring to it.
Thank-you for focusing on this issue. I'm 69 years old. My ET kicked in about 5 years ago. I had no idea that there is an explanation for my left hand trembling whenever I am trying to use a pen. For me, there is some irony. 1) Only my left hand is afflicted and I happen to be left handed. 2) Alcohol supposedly gives temporary relief and I can't stand even the smell of alcohol. As a diabetic, I had assumed that the tremors and glucose were somehow related. Compared to many, my ET is very minor. Although, I'm assuming it will gradually get worse as I get older.
Switch to writing with your other hand at first you think that’s going to be difficult, but I can print beautifully with my right hand and I was a lefty. All my life did a lot of writing as a lawyer and now I just print with my right hand and get my pretty good.
did u mention ultrasound treatment? i like to know more about it. please
Should I just detox? I am not sure I can be part of your June conference I am a dental hygienist and this is crippling my abilities to practice. I am now single after a nasty divorce and currently have NO income after the dentist hatrassing me to speak to my neurologist. I felt it was a hippa violation AND he cited that my co workers had seen my tremor. I’m scared and not sure what to do!
Thank you. Extremely lucid and helpful. Best wishes. 👍🏻🇺🇸✌️🏴🇬🇧
Excellent educational content
Thanks so much
Sincerely
Babur Ejaz
Great video!
If alcohol can stop tremors why isn’t someone finding out what it is and use it in tablet form
Because drug companies can’t patent alcohol, so they can’t make any money on it.
Thank you Doctor for the information. I have had ET for decades and I am 55 now and it is significantly noticeable in times of stress and anxiety. It is embarrassing for me when people notice... I definitely notice my tremor go away when I drink. But with this information... I’m stopping....
❤️🙏☕️
Thank you Dr this is very informative
Mine goes bad trying to solder on circuit boards, so I've pretty much given up on that. This week I went through 4 forms before I could fill it out and sign my name.
My sister told me about alcohol so later today I'm going experiment and see what happens when I feel light. All in the name of science.. I have been on asthma medication for about 20 years. I miss electronic work. Tremor is fairly common in the family.
Anyone know of a relationship between ET and THC? I have ET and I feel like cannabis really helps sometimes...
I use it on occasion, to help with the Tremors. It does help a bit.
I'm back and after a large glass of Bailey's it held back the tremor and was able to solder a small joint with 3 components just touching. So yes alcohol does seem to work, but I feel crap and unable to function normally, apart from fine control.
Would this also be true in regards to chronic benzodiazepine use which also affect Gaba?
I have essential tremer when I was 18 year old I am doing masters in mathematics but I am badly affected by this it's really embarassing when people asking what's happening to you
FYI: Just a suggestion, have a business card to hand certain others w a brief description about ET (or any condition people may be curious about so you don’t need to repeat over and over..). Include a reference to Dr. Sullivan’s (icfyb) UA-cam videos: and ET specifically
I’m sorry I missed your June workshop (Oct now). Is it on UA-cam now? Also -
I smoke MUCH more marijuana than drink alcohol. (Have found in last couple yrs that alcohol tolerance is much lower than historically. ) My question is ET & marijuana combo. Am assuming that less information is available than the booze angle. Any thoughts on the subject would be appreciated. Thnx 😊
I can only say a big thank you to you for your video and your knowledge of ET and especially the connection between ET and alcohol ism. I am in my 70s and have had ET since my late 30s. Needless to say it has impacted my life enormously. My mother had ET and was also an alcoholic. I assume she drank during her four pregnancies. I am also an artist but the conflict with my tremor is overwhelming I am thankful that alcohol does not help my tremor, alcoholism will not be me.
Looking forward to your upcoming videos and will look for the ones I’ve missed
Thank you. Husband (68) has had ET for decades, getting worse all the time.Uses mysoline (since propanolol dropped BP too much). The tremor is bothersome and embarrassing.
His mom and our daughter also have it. He is also type 1 diabetic. Is there a higher incidence of ET with T1D?).
Anyway, thank you for your expertise. Will be watching more of your lectures.
What is a neuropsychologist? Thank you.
I came across this video and informed on OT
by accident!
How can I see and hear every one of these please
I have essential tremor in my arms and hands-being treated with meds. I also have an irregular essential tremor in my voice-had this for decades- docs told me there is nothing they can do-I have been trying to sing back-up harmony in the bands I have worked with-never worked out because of the vocal tremor-Is there any hope??
Hello, Thank you for making this information available. I have a quick question. I have a 40 year history with Migraine and I also have about a 10 year history with Diabetes. Is it possible or even likely that one of those could be the source of my ET. Thanks in advance.
Well i either have this or parkinsons..i should see a vet
I’ve had ET for nine years and for the last four years have experienced unsteadiness while walking and recently have choking episodes while asleep.I’m having swallowing problems due to ET but my neurologist never mentioned those type of symptoms. Mainly they consider it only a tremor problem. Do these symptoms occur with ET?
What is your opinion about electronic brain intervention at age 85, for severe lower jow tremors?
Great video!! I have ET (genetic), diagnosed at 30. I am curious as to why benzo’s aren’t just as bad as alcohol with damaging p-cells? They both attach to GABAa receptors and enhance GABA in the brain. I think it worsened my tremor in the long-term, especially when I was prescribed high doses of Xanax. I was also a heavy drinker for a few years after a divorce. I had no idea that I was on cross-tolerant drugs and my dad’s ET was genetic. I no longer drink any alcohol and haven’t for years. Looking back now, I know I had ET for years and didn’t recognize the symptoms because they weren’t severe enough. I assumed it was bad anxiety, that I suffered with my entire life, social anxiety being the worse. I wonder if my anxiety was so severe due to the fact that I had ET and my brain wasn’t producing enough GABA. I’m dependent on Valium now and wonder if it will continually make my tremors worse and cause more severe damage to my cerebellum. I can’t come off Valium because my tremors will be 100x worse and I can’t go through that, plus benzo withdrawal again. I tried Gabapentin, but it only worked for a short time. They raised my dose and I couldn’t handle the cognitive issues. I now take 250mg Lamictal, 15mg diazepam, and 40-80mg Propanol daily. I know this in an old video, but I just discovered your channel and am binge watching it. Thank you for sharing such valuable information!
You have been binge watching Dr. Sullivan? LOL yup! Me too!
I’m an old fart that has developed ET to a noticeable extent just over the last year. Mine is non- genetic. I’ve counted a couple of well replied to posts on the Facebook ET group where it’s asked when did everyone see ET first appear in their lives. Generally it’s three quarters of people who say it was genetic for them and a much smaller minority who saw it come on later in life with no connection to family.
This video has been t one of her most informative not because of alcohol I drink (generally one drink every three or four years!) but because of the fascinating explanation of where ET originates!
Thank you so much for that information
Can you please give us your opinion on the newest treatment for Essential Tremors, High Intensity Focused Ultrasound. I'm seriously considering undergoing this non-invasive treatment opposed to the Deep Brain Stimulation, which is the most invasive alternative. Please share your overall recommendation. Thank you so much.❤
I am interested in your opinion of DEEP BRAIN STIMULATION and FOCUSED ULTRASOUND. Very enlightening video.
Do you have a rerun of your June 26 virtual program ?
Thank you for providing the program
Thanks 😊
good idea
I have had essential tremors since i was 15 years old . I am 63 now . My tremors are in both hands, but my left side is my worst one .
Alcohol is a relief.
Is that zoom conference in the past? If so is it available as a recording?
My tremors seem to have gotten worse since I stopped drinking alcohol 4 months ago.
My trimmers started at age 12. I'm 50 now and have learned to live with them but they have gotten worse over the years one or two shots of whiskey a month if I have something I really need to slow the trimmers for.
Hi Dr.
I Have a friend that have ET and base on your knowledge…
What can I do to help her to reduce those symptoms from my end so she can be relax and enjoy the time together?
Can you do a program on Deep Brain Stimulation - DBS vs Focused Ultrasound - FUS ?
I am interested in what the research shows with ET and use of THC, CBD, and CBN…
Positive and negative.
I developed benign essential tremor after a high epideral.
Thank u