What Makes Essential Tremor Progress?

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  • Опубліковано 26 вер 2024

КОМЕНТАРІ • 165

  • @jimmcconnell7328
    @jimmcconnell7328 Рік тому +21

    The doctors can treat the symptoms of essential tremor but like most conditions the progression of the disease cannot be halted. We can take medications that reduce the tremor however it does not treat other problems that crop up with this condition. Then even more medications are added to treat those. Often neurologists have no idea how much this condition affects our lives on a daily basis. I’m so glad your channel is bringing the issue forward.

  • @Tammy-wu1xb
    @Tammy-wu1xb Рік тому +10

    I developed essential tremors in my teens. I wasn't diagnosed until I was 24. I'm now 50, and my tremors have progressed so much that my neurologist has told me I need to consider surgery because adding more medicine would do more harm. I've been on many different medicines over the years, but most of the time the side effects were worse than the tremors. I'm currently taking Propranolol 40mg 2 x a day, Amantdine 50mg 2 x a day, and Alaprazm 50mg 2 x a day. The worst part of having tremors is other people's reactions, especially when I was young because some people would make assumptions as to why my hands were shaking.

    • @carolynstine3465
      @carolynstine3465 2 місяці тому +1

      Many times they think we have Parkinson’s Disease. I had DBS and have to highly recommend it.

  • @crankyreviews9308
    @crankyreviews9308 Рік тому +15

    Since GABA plays a crucial role in ET, I will like you to educate us on the use of GABA enhancing supplements to treat ET.

  • @renee3922
    @renee3922 5 років тому +22

    wold love to learn more on the balance and gait issue

  • @marydeniseappio6611
    @marydeniseappio6611 4 роки тому +23

    This is sad to hear as my 18 year old daughter who was finally diagnosed after many years of doctors and therapists. She just started college and studies art. I am not sure what her future holds knowing it will most likely get worse. My heart hurts for her. I wish I could take it from her!

    • @virginiaperez7102
      @virginiaperez7102 Рік тому +3

      I am 64. I started having tremors (hands) at 18. I didn’t study art but literature nevertheless I have always drawn and have been doing pottery full time for more than 20 years. I have a hard time holding a spoon mostly when I’m nervous or tired …

    • @kath3611
      @kath3611 Рік тому

      she may create beautiful art spider trimmers I used to decorate wedding cakes oh this voice recognition is really funny I meant to say despite her tremors

    • @kathyhanners3165
      @kathyhanners3165 11 місяців тому

      Has her Dr. told here about the Cala kiq??

    • @debbievaughn177
      @debbievaughn177 4 місяці тому

      ⁠what is that?

  • @donnacarney4252
    @donnacarney4252 4 роки тому +5

    Talking about it and understanding it better does lessen the
    Stress which helps

  • @markanderson2350
    @markanderson2350 Рік тому +4

    Very helpful lecture, but it would be much better if you turned your phone sideways to give us a horizontal (full screen) image. Keep up the good work!

  • @Christine__D
    @Christine__D 5 років тому +9

    Thank you so much for your continued support of the Essential Tremor community!

  • @Christine__D
    @Christine__D 5 років тому +15

    The 7 percent estimate is interesting! My ET has progressed to other parts of my body, and probably has increased in magnitude. However I would say my ET-related symptoms have increased more than anything (reaction to stress, extreme temperatures, gait and balance, psychological issues). And frankly, those are the most troubling effects of ET for me.

  • @FlowersfromNan
    @FlowersfromNan Рік тому +6

    I am 64 years old. I noticed the onset of Essential tremor in my late thirties. It is progressively worse now. Although studies determined alcohol use is a factor in the depletion of these cells in the Cerebellum, it can by no means be a cause. I am not a drinker. I had a few drinks at age 18 and 19 , yet at age 20 did not drink at all. For more than 30 years, I chose not to drink wine, beer or any type of adult beverage with alcohol. The only exception was on a vacation cruise where rum punch was being served on a small excursion vessel. Through out my life, I drank only on rare occasions. So, how can alcohol be a factor at all?

    • @jenniferwilliams545
      @jenniferwilliams545 11 місяців тому +1

      Same here with drinking . I was also told I was born with ET, so that makes no sense.

  • @nightowl6260
    @nightowl6260 6 місяців тому +3

    It is pretty difficult to use a smart phone or a keyboard...necessities in modern life.

    • @jennytrim522
      @jennytrim522 3 місяці тому

      Yes, I am finding an increasing issue with that also. Frustrating

  • @MonicaYearwoodResilientForLife

    Alcohol definitely makes my tremor go away in the short term but the next morning it’s worse. Mucona also completely gets rid of my tremor but it gives me painful like cramps in my gut. Sometimes I still take it though. I noticed it in my teens and it’s gotten a lot worse in the past few years. I’m 45. It’s in my hands. Very annoying at times.

  • @christopherrobles2952
    @christopherrobles2952 Рік тому +1

    I will just repeat to watch your seminar until to make it clear for those things I need to know thanks and God bless till next

  • @suzannekesler-kl2dp
    @suzannekesler-kl2dp Рік тому +6

    It would be nice to know if there is a link between ET and menopause. Many people in the ET group I am in have said their tremors increased during menopause, as mine seem to have.

  • @LP-pd8ve
    @LP-pd8ve 3 роки тому +5

    My father was an alcoholic; My mother’s aunt had tremors, both parents smoked, I was born premature. I have had hypothyroid since late 80’s. I traveled and worked outside of US working with chemicals and insecticides, I had a mild spinal injury in 2005, and noticed my tremors in 1999 at the age of 35 when working in extreme cold weather for long periods of time. I have spinal bone spurs in my neck and mid back. I was diagnosed with ET in 2011. My head tremors are worse with stress. I drink little caffeine due to high acid content. I drink alcohol moderately but did drink a lot in my 20/ 30’s. My neck and shoulder muscles are constantly sore. I would like to find a doctor knowledgeable in gut health/ detox that knows about tremors.

    • @maryperry7944
      @maryperry7944 3 роки тому

      Lorie, if you are on Facebook join Martin Clinic. Excellent information on gut health.

    • @maryperry7944
      @maryperry7944 3 роки тому

      Lorie, it is Martin Clinic Club on Facebook. You can join.

  • @denisemay3996
    @denisemay3996 4 місяці тому +1

    Great video and very helpful!!!

  • @katherinecharles717
    @katherinecharles717 5 років тому +9

    Really interesting / i’ve Progressed over about 5 years - I think a little less than 5% but I have a cavernoma and its a little more complicated as it is near The cerebellum. I find meditation helps and co ordination body movement exercises

  • @steveneldridge5332
    @steveneldridge5332 11 місяців тому +1

    Thank-you, Dr. Sullivan. You have enlightened me as to what my girlfriend is going through. There. Given than she's also got depression, I don't think there's a lot her doctor can do for mitigation.

  • @mdzierzbicki
    @mdzierzbicki 5 років тому +9

    Would love to learn more on progression and how this relates to other injuries. you have helped me with your videos tremendously and your office gave me a list I am working on combing through to find someone with your level of expertise near Chicago. I have a large issue with "friend or foe" identification, short term memory, word finding, sense of smell, sense of taste, and hearing among other things. my ET started around 19 (29 now) and has moved to tremors in my head, neck, chest, arms, hands, and legs. I believe the reason i was unable to heal well from shoulder surgery and back and neck trauma is due to the constant tremors pulling my joints and other parts away from a " natural rest" . would love to hear if any studies have been done in relation to any of the above, and truly thank you so much for helping me start to understand what has been happening to me the past few years.

    • @simplyme798
      @simplyme798 2 роки тому

      Can you explain a little more about the Friend or Foe identification

  • @carolynstine3465
    @carolynstine3465 7 місяців тому +1

    I had deep brain stimulation in October 2019 and have had one battery change since then. When I am relaxed I am quite fine and have minimal tremor. Sometimes when I get nervous it can get worse. I read about a man who, years after having DBS, had something implanted in his spine that controlled the rest of his tremors. I feel this, spinal cord injury, will be the next step in controlling et. I had scoliosis as a child and then was in three car accidents with whiplash which I believe is involved in et.

  • @mizmaggiejones
    @mizmaggiejones 3 роки тому +13

    I'm interested in the use of medical marijuana for essential tremors

    • @TheBinaryWolf
      @TheBinaryWolf Рік тому +1

      CBD is immunosuppressive, and your immune system works daily to control neoplastic activity in the body; so before taking the agent, weigh the risk of trading ET for a cancer.

  • @darcandelaria
    @darcandelaria 2 роки тому +1

    Thanks for the info but please limit the ads there's too many! so I can actually watch the whole vid. I appreciate the info I got though.

  • @MichaelKeating-xq7gn
    @MichaelKeating-xq7gn Рік тому

    A great video that explains the key issues very clearly. Thankyou so much !

  • @inthekitchenwithbubby7724
    @inthekitchenwithbubby7724 4 роки тому +8

    This is my way of blowing off stress and at the same time thanking you for the info. In about 3 hours I will undergo a Datscan study to see if my ET is possibly Parkinson’s. I’ve learned so much from your lectures and you always point me off in another direction for more info but sometimes I just need to “tell” someone. I am in the middle of the process of screening for DBS.. I’ve had ET for as long as I can remember (late teens), my brother had it, my niece has it and my two daughters have it. Strange thing is ALL of us have it ONLY on the right side! My neurologist said that is very unusual. This past year has brought some other health challenges and since then I have noticed my ET progressing much more quickly.......as well as my frustration level. I’m waiting for them to schedule my neuropsych eval (wish it was with you!) and then I will have completed all the evaluation. At that point, I no longer will have any control of whether I’m approved or not. Unfortunately, I have been totally unable to tolerate any of the medications so DBS is my only hope. Keep up the flow of good info! Would love more!

    • @mindboard8203
      @mindboard8203 4 роки тому +1

      Hello, i'm 34 and feel my head shaking a little bit when i turn it to the side, at what age do you think it'll become severe? primidone helps a little, but i'm afraid to develop tolerance and doesn't work anymore

    • @inthekitchenwithbubby7724
      @inthekitchenwithbubby7724 4 роки тому +3

      Update. DBS surgery is Oct 20th. Covid slowed things to a crawl in late spring but happy to know I’ve come out the other side and look forward to moving on!

    • @inthekitchenwithbubby7724
      @inthekitchenwithbubby7724 3 роки тому +3

      Surgery went fantastic. When the leads were tested during the surgery the tremor completely stopped! I have now undergone the placement of the battery/neuro transmitter and the lead wires have been run down the side of my head under my skin. Everything is healing and Tuesday I get the first set if staples removed. Programming is scheduled for the 16th of November!

    • @RyanPridgeon
      @RyanPridgeon 3 роки тому +2

      @@inthekitchenwithbubby7724 How are you now?

    • @inthekitchenwithbubby7724
      @inthekitchenwithbubby7724 3 роки тому +3

      @@RyanPridgeon I’m doing well! The DBS was done on the left side of my brain (for the tremor on the right side of my body) and has worked miracles! For the most part the tremor is gone. Sadly though as soon as the right side was done, the left side started up and has been getting progressively worse. The DBS for that side is scheduled for 4/22! Thanks for asking!

  • @laggerb4680
    @laggerb4680 Рік тому

    78 yr old female. Diagnosed with PD & ET. Started 15 yrs ago with slight tremors, progressed slowly til 2 yrs ago. Has escalated greatly along with extreme discomfort in arms. Right foot is very painful, tingling, feeling like it’s in a vise, extending into the ankle & tight leg muscles…mysterious & growing worse

  • @LividTomatoes
    @LividTomatoes 4 роки тому +13

    I play music, bass guitar, as a way to lower the intensity of the tremor. It works remarkably well and is the only thing I've found that come close to alcohol. I've been toying with the idea of making a video to explain the techniques I employ and what I think might be going on, but honestly I'm now incredibly curious if anyone else has found benefit in playing music.

    • @hitikkalra7483
      @hitikkalra7483 4 роки тому +2

      LividTomatoes please make such videos for all of us :)

    • @mindboard8203
      @mindboard8203 4 роки тому +2

      i have essential tremor and have been playing bass guitar for the last 2 years.... i've never noticed but maybe it really helps

    • @johnhariis250
      @johnhariis250 3 роки тому

      Music is the Power 🎼💯%

    • @TheBassplayah
      @TheBassplayah 2 роки тому

      I find the tremors take away my guitar playing and I recently had to give up playing live bass because it was a struggle..

    • @fragilefleur
      @fragilefleur Рік тому +2

      @@TheBassplayah that’s a bummer. I had to give up my life of being an artist bc I stopped being able to draw and paint. It was a sad feeling and still is. This tremor crap is miserable. It takes away so much.

  • @MEOHara
    @MEOHara Рік тому +1

    I am almost 80 years old & throughout my life have worn many hats. One of them was in a job with a very stressful time period.
    In that time I coped by drinking lots of coffee.
    I got it from our office machine & drank it in paper cups.
    I had to hold the cup with both hands because they
    shook so much.
    I was in my late 40s & early 50s. Over the years the tremors were not noticeable - it was in a happy time of my life.
    Now,almost 80 I am experiencing them again noticeable. Shaking in my right hand when writing, carrying something, & otherwise when trying to do something.
    I also have been diagnosed with MMD. Take antidepressants & Gabapentin.

    • @MEOHara
      @MEOHara Рік тому +1

      I would like to have a definition of Essential Tremor.

  • @yasminemn2311
    @yasminemn2311 4 роки тому +2

    Thank you, we really need information about this topic :) and I am glad that I found this video because it brought me new things. Also it is different from the articles that I found via internet research.
    I can't tell the percentage of progressing in my ET but it definitely progressed. I say this because I have had the tremors since as far as I can rememer (I am 24 y.o), if not since I was born, I can't tell. But I didn't care about them at all because they were super mild. But about two years ago I focused on them a little more. I felt maybe my hands are shivering a little more but wasn't sure. I tried to get to doctors but they didn't take me serioulsy especially when they know that I have been shiverng for a long time and it has never bothered me -_-
    Last year finally I could get a good medical progression step by step until I was sent to a neurologist, and he told me that I have essential tremor. But he didn't give me a lot of information. He said it causes only tremors, it is usually progressive but luckily in my case the progression is slow. He gave me a medicine and told me to use it only if I really need (I used it only once) and then told me to come back only if there is a big change in my tremors or if somthing new happens like tingling or anything.
    That's why I was looking a lot on internet for more information to know more about ET.

    • @happylife3541
      @happylife3541 Рік тому

      How do you prevent not to progress and live with these tremors

    • @yasminemn2311
      @yasminemn2311 Рік тому +1

      @@happylife3541 The tremors are progressive in the total majority of the cases if not all. But the progress can be slow which is good!
      To prevent accelerating the progress or making the tremors worse it's up to living style (In severe cases a doctor gives medicine in addition to help). In general good life style with eating well and healthy, doing sport, and all, is great, but I would mention the following points as very important:
      Avoid stress!! Stress is so bad for Essential Tremor.
      Same avoid other triggers, for example in my case the internal tremors become bad only when something emotional happens, like anger, or even high happiness. So if this happens (not every time they get triggered in my case), stop , breath slowly and relax, and never come back to the topic or the situation unless the tremors calm down (And this if you know it won't affect you again or such).
      Avoid consuming caffeine
      Sleep enough and well

  • @icareforyourbrainwithdr.su7103
    @icareforyourbrainwithdr.su7103  4 роки тому +1

    Check out our upcoming ET Webinar at www.icfyb.com/webinaret/

  • @kareylientz6929
    @kareylientz6929 2 роки тому +3

    Dr.-I was born with this tremor with my mother noticing when I was a toddler. Inherited from my father's side of the family. My tremor has gotten progressively worse but has really picked up in intensity in the past 7 years( I am now 57) with my head and voice now tremoring along with my hands. My right vocal cord stopped working about two years ago. Is there a possible connection with my ET? The only thing that stops the tremor is alcohol. With millions of people that need a drug, why hasn't big pharma narrowed down the active ingredient in alcohol that stops the tremor and sell it in pill form. It will be big money! Thank you so much for your videos! Very helpful!

    • @fragilefleur
      @fragilefleur Рік тому +2

      I have to wonder how hormones play into ET and for women if it gets worse by a lot after menopause.

  • @kathyhanners3165
    @kathyhanners3165 11 місяців тому +2

    You are right ET in my case has progressed faster after 65. I have had ET as long as I can remember, probably 6 yrs. old. I feel it really affected my muscle strength a lot around 60.

  • @garymurphy7990
    @garymurphy7990 4 роки тому +2

    Hi Dr. Sullivan,
    Thanks for your lecture it was very interesting and I will be subscribing.
    I have lived with ET in my right hand for a few years now and so now have learned to write with my left. In the last few weeks my right hand has started to mimic the movement of my left. I now have to grasp the table leg so I can write. My neurologist said that is very unusual.
    Do you have any information on focused ultra sound?
    Gary

  • @generalposter4792
    @generalposter4792 Рік тому +2

    Why does CBD pretty much stop essential tremor without side affects. Why cant medicine figure out why that works to try and figure out what is causing ET in the first place?

  • @debbyleung8035
    @debbyleung8035 3 роки тому +2

    I am just beginning my journey in being diagnosed. My new Dr., a Kaiser Neurologist. My hand tremors started in June, 2021, and just started discerning a head tremor in July. This new Dr. Has ordered a Brain MRI and a DaTScan…he wants to determine if I have had any small strokes…or whether I may have any Parkensonial issues. I love your series, and listen whenever I can. Thank you.

    • @chetanrs
      @chetanrs Рік тому +3

      How are you nowadays ? Did you get your scans done ?

  • @leeboerner3901
    @leeboerner3901 Місяць тому

    Thanks!

  • @vineyardsailing1923
    @vineyardsailing1923 Місяць тому

    Can you speak about post ECT deficiencies?
    Thank you.

  • @MonicaYearwoodResilientForLife

    I think essential tremor is a gut health issue…I’m going to do gut healing work. If it helps I will post about it on my channel with confirmation of a diagnosis…I don’t know if it will work but I’m going to try

    • @marklopez4762
      @marklopez4762 4 місяці тому

      Doing the same thing. Sibo and leaky gut. Fixing gut dysbiosis and add good bugs

  • @kelleenstubblefield878
    @kelleenstubblefield878 4 роки тому +2

    Love you to talk about head tremors. Thanks. Also does Botox help with head tremors?

  • @carolynstine3465
    @carolynstine3465 2 місяці тому

    My neighbor who has et like me says that alcohol helped him but now his tremor is getting worse. He is going for deep brain stimulation surgery just like I had. He said he is tired of the tremors and likes the way I am not shaking. For me with DBS I would say since 2019 when I had the surgery I have only had a problem recently with my left hand shaking that improves with taking Primidone. I am going to make an appointment with my neurologist to discuss it.

  • @eddiefox1984
    @eddiefox1984 3 роки тому +4

    I have just found you, I have severe rest tremor, I was wondering about this Gaba issue, I have been hyper and insomniac for years, do you think there are links to major sleep disorders such as night terrors and sleep paralysis???

  • @valeriemartini6315
    @valeriemartini6315 2 роки тому +2

    I wonder if ET has anything to do with mineral imbalance?

  • @MEOHara
    @MEOHara Рік тому

    I have just discovered your postings.Thank you for them
    Being new to this I would like to know what essential tremor IS.

  • @christopherrobles2952
    @christopherrobles2952 Рік тому

    That's was really helpful for me to be more focus in daily routine , how

  • @charlottestandage2765
    @charlottestandage2765 5 місяців тому

    I have cervical dystonia snd Tremors. My tremors were diagnosed after dystonia. Initially the tremors were only in my hands, but recently i get them in my head/ neck.

  • @boshrasedghi
    @boshrasedghi Рік тому

    my ET is sensitive to lots of things. High temperature, hunger (even mild), thirst or overhydrating, having full bladder, moving or walking fast, some foods (gluten, dairy, aspartame..), swimming!!!! never know why! ... I also have Temporal lobe epilepsy, and my tremors suddenly progressed so much in a short time while I was put on anticonvulsant meds. lacosamide( antiepileptic. Vimpat) at first helped my ET. i haven't had problem with eating. but after a few months I couldn't eat and drink! but after i came off of anticonvulsant meds It has gotten better. now I can at least eat in private. I'm 37 female. head injury history in childhood

  • @valeriemartini6315
    @valeriemartini6315 2 роки тому +3

    Yes I believe short term alcohol makes it better but the next day is worse.

  • @nightowl6260
    @nightowl6260 6 місяців тому +1

    Is there any data that suggests a relationship between Covid infection and onset of ET?

    • @areguapiri
      @areguapiri 2 місяці тому

      Stop the covid 19 dumbness.

  • @rongotcher
    @rongotcher 2 місяці тому

    I've had DBS surgery on both sides without much improvement.

  • @kimwright8795
    @kimwright8795 Рік тому +1

    I have it in my hands when i am stress my whole body start to shake

  • @royking7298
    @royking7298 2 роки тому +1

    Since I'm not really even sure when my tremor started. So therefore I can't even say if it's gotten worse, or it just started out at this current level of tremor. It's in my left hand and unfortunately I am left dominant. I susect some day I will need to learn to eat with my right hand. I wonder how much gut health, and diet could possibly have an effect on this condition.

  • @audjunemom6217
    @audjunemom6217 4 роки тому +2

    need to learn about head temors

  • @richardcarroll9864
    @richardcarroll9864 3 місяці тому

    I had encephalitis as a young man. Any possible connection with et later in life??

  • @christopherrobles2952
    @christopherrobles2952 Рік тому

    All in all it was really nice

  • @karenhiller9189
    @karenhiller9189 Рік тому +1

    What about the non invasive ET laser “surgery”. They are doing it in Oregon at OHSU. Apparently they can only do one Side of the brain but are trying to figure out how to do both sides. I am not sure what potential surgery side effects might be.

  • @patriciatarrant9587
    @patriciatarrant9587 2 роки тому +1

    I am a 71 year old woman with epilepsy since 15. Been taking depakote & Dilantin since then. I’m very aware of the results of caffeine too, but I really want coffee. Do you know of a coffee substitute that I can take?

  • @danaconn6130
    @danaconn6130 Рік тому +4

    I just had DBS SURGERY and it really helped me. I have regained many functions I didn't have.

  • @donnabeaty4760
    @donnabeaty4760 2 роки тому +1

    My Tremor was in my jaw first, then my left thumb, then my index and middle finger. I took some prednisone and it ramped up my tremors to involve my voice and my head. It was devastating to me. I would advise against taking prednisone. I wish I had never gone to the doctor who prescribed it.

    • @fragilefleur
      @fragilefleur Рік тому

      Interesting to know that steroids make it worse. I have asthma and use inhalers sometimes. I try to avoid the steroid one bc I just feel like taking it long term is a bad idea. If mommy asthma flares up only during colds and environmental impact like smoke, cold air or pollution.

  • @alexandrawhitelock6195
    @alexandrawhitelock6195 Рік тому +1

    I am on primidone. Started using Nature Made Stress Relief..Costco/Amazon. L-Thiamine and gaba. Wow🙌. Have been able to reduce the med and the gummies are easy to grab later in the day when my tremors increase.

    • @chetanrs
      @chetanrs Рік тому

      Have they reduced the tremors ?

    • @suekay5353
      @suekay5353 3 місяці тому

      I just stumbled on to this video and see your comment. I hope you don’t mind a few questions. Is it still working for you? How many do you take a day?

    • @alexandrawhitelock6195
      @alexandrawhitelock6195 3 місяці тому

      @@suekay5353 sooo I am now on 250mg primidone…the limit. It's not controlling tremors very well. Supplemental th8ngs help a wee bit. The Vilim ball works great for @1/2 hr. At some point I will likely undergo DBS surgery…🙄

  • @MonicaYearwoodResilientForLife

    You should ask for more than $5! That is so generous

  • @marcydobbs1653
    @marcydobbs1653 Рік тому +1

    I have had ET for almost 70 years. 5 to 7% increase per year is not logical, with 350 to 490% worse by now. I didn't perceive an increase until my 60s, with slow progression since then. Guess I'm not the norm.

  • @debbievaughn177
    @debbievaughn177 4 місяці тому

    I would like more info about comorbidities or non-motor manifestations of essential tremor.

  • @condewit93
    @condewit93 3 роки тому +2

    Short term worsening of tremors 16:45

  • @anthonypope8429
    @anthonypope8429 7 місяців тому

    Good video I went to see my GP 27/2/2024 she told me I have ET I have not started and medication yet because I have COPD and one of the medications my GP was going to put me on I could not have because I have breathing problems can ET effect the thalamus and can it. Make you voice hoase my voice as been hoase since last November when I get up in the morning I can't speak right even when I am on my home phone talking to someone I live in the United Kingdom and being told by your GP you have ET it gets a little scary I found your video very informative and interesting and I want to get a better understanding of my condition is ET a disease I know there is no cure for it as it's all new to me you are doing a great job in getting the message across wherever you are in the world

  • @donnacarney4252
    @donnacarney4252 Рік тому

    Headaches are overwhelming at times and my memory is not good my body is always tense hard time resting

  • @valeriehills71
    @valeriehills71 Рік тому

    I appear to be a little bit late on getting on board. I would be more than willing to pay 5 bucks for everyone of your lectures. I have had ET since childhood now 59 progressing quite nicely 🤪 Inderal since 14 no longer working..onto Topiramate..no noticeable affect yet.

  • @cynthiasmith4966
    @cynthiasmith4966 Рік тому

    Greetings!
    Have you or could you talk about brain scar tissue post surgery for tumor removal?
    Also "chemo brain"?
    Thank you!

  • @davidrogers9925
    @davidrogers9925 Рік тому

    I bought that melatonin you suggest.
    I notice it is 0.5 mg.
    How much should I take for very disturbed sleep?

  • @virginiacopeland-vq1cf
    @virginiacopeland-vq1cf 7 місяців тому

    My neurologist started me on Clonazepam .05mg over 25 yrs ago and has increased it to 1mg - 4 times/day. My tremor progress is only worse. There have been 12 neurologist during this time. Does this sound over the top to you. Propranolol 5mg/day. Cold temp effects also, making it worse. I also have an irregular heart beat. I a 86 yrs old - cannot write, no control either hand and at times my whole body, head and neck give the appearance of doing a dance. My sister 2 yrs younger also had ET. She passed away 11 yrs ago.
    Any suggestions?

  • @steveneldridge5332
    @steveneldridge5332 11 місяців тому +2

    Huh. . .voice tremors, huh? Brings to mind Katherine Hepburn.

  • @christopherrobles2952
    @christopherrobles2952 Рік тому

    How can start again to have changes to move forward

  • @Christine__D
    @Christine__D 5 років тому +1

    Do you know if Effexor is on the list for making ET worse?

  • @abhijeetsinhavlog3580
    @abhijeetsinhavlog3580 4 роки тому +2

    U r awesome

  • @stevenarcher9824
    @stevenarcher9824 7 місяців тому

    How can you tell if my Et is caused by mercury in the diet (tuna)

  • @andorandor5462
    @andorandor5462 17 днів тому

    Marijuana?

  • @mbpinder
    @mbpinder 2 роки тому +2

    The 7% progression cannot be right, it seems far too high. I am now 70 & have had essential tremor since the age of 8 years. Though it has got worse over the years, If the 7% progression rate was right I should now be totally incapable, but I'm not, I can still cope with everyday life. I suppose the figure of 7% is an average & it is less for some people & more for others.

  • @happylife3541
    @happylife3541 Рік тому

    How do i live with these tremors not progress it anymore??It is really embarrassing

  • @stevenarcher9824
    @stevenarcher9824 7 місяців тому

    What do you think of high intensity ultrasound?

  • @audjunemom6217
    @audjunemom6217 4 роки тому +3

    Is head essential tremors normal?

  • @donnacarney4252
    @donnacarney4252 Рік тому

    Have et head tremors say yes to everything at times it got better for a time but has come back mildly from time yo tome therapy helped and ive done lots of chiropractic visits

  • @kath3611
    @kath3611 Рік тому

    I've had ET for 60+ years. Hasprogressed to worse on left side and voice but not much till 50's on.

  • @gingergarcia2312
    @gingergarcia2312 2 роки тому

    I watch you on UA-cam, so I am unable to see the links you refer to in your lecture. I am interested in your lecture series. Also, I want to thank you for helping me better understand what is happening in my brain and how it affects my daily living.

  • @stevenarcher9824
    @stevenarcher9824 7 місяців тому

    Is there any evidence that et could be caused by lead poisoning?

  • @rosebutler9586
    @rosebutler9586 4 роки тому

    Would chemo cause ET or large dosages of prednisone? I’ve had both.

    • @donnabeaty4760
      @donnabeaty4760 Рік тому

      I’ve had chemo for cancer and prednisone shots to my back. I had chemo in 1996 and my tremors started in 2008. I had ET in my chin first in 2008 then it moved to my hands a few years ago. The prednisone started my voice and head tremors in 2020. They said after the prednisone left my body, maybe the voice would get back to normal. It didn’t, so yes, prednisone, in my opinion should not be given to ET patients.

  • @stevenarcher9824
    @stevenarcher9824 7 місяців тому

    Can I get “gaba” in food?

  • @cathyarcher2684
    @cathyarcher2684 3 роки тому

    Thank you so much. I for a long time thought I had MS. I would get symptoms that would last for months then disappear. The tremors never went away and are getting a little worse now. I'm 72 and the neurologist says I'm too old to have MS. Can these other symptoms, like tingling & burning in my legs, vertigo, balance, double vision be connected to ET?

    • @DF-zp1os
      @DF-zp1os Рік тому

      For what it is worth your symptoms sound similar to my experience.40 year old male with ET since teenager. In late 30s I developed tingling and burning in legs, twice double vision for 30 minutes, migraines, tachycardia. No answers, brain imaging looked good. I supplement at night before bed with super b complex, GABA, Magnesium, occasionally melatonin. I need 9-10hrs of sleep, any less especially back to back nights causes "flare-ups" of above symptoms. If I fast and limit carb intake I can really eliminate my ET, but tingling and burning becomes more pronounced. my takeaway is we are all different in operation some run like a Toyota, others like a British automobile.

    • @donnabeaty4760
      @donnabeaty4760 Рік тому +1

      I am 71 and my doctor says neuropathy is the cause of my burning in my feet. My Essential Tremor is a neurological disease which involves nerves and they run all over the body including the feet and legs, so entirely possible, I think. I have a relative who has it too. She is older than me but she has double vision. Not sure if it’s related because two of my cousins have double vision and they don’t have ET. Could be age related instead, possibly.

    • @chetanrs
      @chetanrs Рік тому

      @@DF-zp1os " eliminate my ET" as in put it in remission? Does low carb work for you with your ET condition?

    • @chetanrs
      @chetanrs Рік тому

      It could be vit B12 deficiency, especially the tinling and the rest you have mentioned

  • @patlarose1038
    @patlarose1038 4 роки тому +1

    I am 71 years old and started noticing my hands shaking when I was 18. I was diagnosed with ET at 50 by a neurologist. My question is this. Since I write with my left hand, but do everything else with my right hand, deep brain stimulation or laser treatment would have to be done on both sides of my brain, correct?

    • @glenfernandes253
      @glenfernandes253 2 роки тому

      Hi Pat, hope you are doing well. I am dealing with something similar. I to detected hand shaking when I was 18-19. I initially thought it was because of the cigerrates I used to smoke but then over the years it has not stopped but it also has not gotten worse. I am 26 now. But I have had OCD and other psychological troubles with anxiety and stress management and incidentally I am afraid of memory issues. Could you give me some tips on how you managed to handle the ET and if you had some psychological issues. How did you manage to handle them ?

  • @TOMMYSURIA
    @TOMMYSURIA Рік тому

    So many ads.🙄

  • @marinalipciuk8974
    @marinalipciuk8974 2 роки тому

    Hi!!! Doctor let as talk about medication!👀👈

  • @DONABUG2001
    @DONABUG2001 4 роки тому

    DBS?

  • @kimberleigh6776
    @kimberleigh6776 4 роки тому +1

    I've had ET in my hands since I was a teenager. I feel like it was not progressing until this year at 33 years old. I'm starting to have a mild voice tremor and shaking in hands is so bad I cannot hold a fork or spoon steady or even use a computer mouse. This is tough because I start IVs in my profession. I've tried propanolol with little help. Started Lexapro and Wellbutrin two months ago and my tremors are exponentially worse. I'm at a loss of what to do next. My patients and co workers are scared for me to put needles anywhere near them when my hands are shaking. It's embarrassing and worries me for the future.

    • @mindboard8203
      @mindboard8203 4 роки тому

      try primidone

    • @darcylucilly
      @darcylucilly 4 роки тому +2

      I have ET and was on a large dosage of wellbutrin and had a seizure. I have no idea if those two things are related or not, but I've been strongly advised to stay away from that family of medicine going forward. I thought I'd mention it. My warning sign leading up to the seizure was increased occurrence of the deja vu feeling, which I was having sometimes multiple times a day. Since the grand mal seizure (2005, when I was 23), and never taking wellbutrin again, I've felt deja vu maybe half a dozen times.

    • @mindboard8203
      @mindboard8203 4 роки тому +1

      @@darcylucilly is wellbutrin indicated for ET? The only two efficient medications for ET are propranolol and primidonez as far as i know, i don't know why you both used wellbutrin, it stimulates dopamine and it's recommended for people who want to quit smoking

    • @kimberleigh6776
      @kimberleigh6776 4 роки тому +1

      @@mindboard8203 wellbutrin for depression. Not ET.

    • @dvijay461
      @dvijay461 2 роки тому

      I'm in a similar situation. I study acupuncture and now my tremors are getting out of control.

  • @kath3611
    @kath3611 Рік тому +1

    my father drank a bottle of wine every night but he never seemed to get drunk held down a job working an office I never associated with ET but he probably did it to relax unfortunately he was also a chain smoker. he left to be 86 on his tra
    enorvel was probably about the same as mine at 68. sorry about the spelling I have to talk to my phone I'm sure you get it.

  • @donnacarney4252
    @donnacarney4252 Рік тому

    What now

  • @cynthialacy5977
    @cynthialacy5977 2 місяці тому +1

    too much extraneous information. Please get to the point,

  • @doryfrye
    @doryfrye 4 роки тому

    Is a 34 yr old too young to have this condition?

    • @mindboard8203
      @mindboard8203 4 роки тому +2

      not at all, much younger people have it. i'm 34 and have it aswell

    • @love-oc3ew
      @love-oc3ew 3 роки тому +1

      @@mindboard8203 and I'm 19

  • @christinelyons9544
    @christinelyons9544 Рік тому

    Are you kidding me charging for all of us as you put it ET sufferers?! Good for you glad you feel better. WE don’t earn we loose income. You keep being peppy. This has not helped at all

  • @ksoper1351
    @ksoper1351 3 місяці тому

    Really a commercial

  • @kimwright8795
    @kimwright8795 Рік тому

    True older u get worse

  • @mrgraham9007
    @mrgraham9007 Рік тому

    JUST DRINK WATER and do not over eat!! The body will look after itself. All things in moderation!!!

  • @loispozsar2965
    @loispozsar2965 5 місяців тому

    Hi Dr., I just reread my post to you and I realize that the word didn’t come out. It’s lorazepam. It helps but not very much so if you could recommend other medication’s or doctors in the Jersey area that would help I would really appreciate it. My movement specialist is wonderful but so far that’s all he’s been able to do for me is give me the lorazepamand it’s just not enough thank you

  • @MarilynPhillips
    @MarilynPhillips 5 років тому +2

    My son (age 36) has spastic cerebral palsy; high functioning but confined to a wheelchair. He also has periods of anxiety and panic attacks...has always been easily startled. Any connection?