My daughter is being tested in the US for this right now and I have been diagnosed with fibromyalgia and chronic fatigue but this is making a whole better sense. Thank you so very much for this information.
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Have you seen a different provider since? As an RN, and lifelong recipient of doctors’ gaslighting, I want to put it out there that they work for the patient (a fact many forget). If they minimize you and your suffering, time to fire them. You deserve support and understanding and relief 💕💕 🦓
My daughter is being tested in the US for this right now and I have been diagnosed with fibromyalgia and chronic fatigue but this is making a whole better sense. Thank you so very much for this information.
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Thanks for pointing out the connection between MCAS and the neuroinflammation related with activated glia cells!
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Thank you for the post!
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Can we have links for devices mentioned?
Yes, at least the names please!
So would you call the deactivation cycle the "cascade" after the anger and rage or rumination?
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
My newest doctor told me more people have it then I think and it’s not really that big of a deal 😳😢
"Not that big a deal" is incorrect and is gaslighting when your body is falling apart.
it's technically just another phenotype of natural human body development. like how Autism is a neurotype. It's just not a body built for capitalism.
Hia ! Just letting you know , I set up my channel to raise awareness for EDS and share my music 🎶! I had to take a break after getting a big jaw surgery, but getting back to doing videos now !! If you feel like following , that would be amazing!!! Thanks so much, Lisa xx ❤️
Have you seen a different provider since? As an RN, and lifelong recipient of doctors’ gaslighting, I want to put it out there that they work for the patient (a fact many forget). If they minimize you and your suffering, time to fire them. You deserve support and understanding and relief 💕💕 🦓