Hypermobility/EDS and Sleep

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  • Опубліковано 3 жов 2022
  • It’s not uncommon for those with Hypermobility and EDS to have difficulty getting into a comfortable sleeping position. Subluxating/dislocating joints, gastric issues, pain, and even anxiety, are all factors that many of those with conditions like Ehlers Danlos syndrome and hypermobility struggle with when it comes to sleeping.
    With so many with hypermobility struggling with sleep, you would expect to find a wealth of information on how to actually sleep better. However, when looking online you find the same old advice, tips and tricks across the internet. Relax before bed, don't use screens, blah, blah, blah.
    So, the purpose of this video is to cover hypermobility sleeping positions, for the larger more comprehensive article we wrote on hypermobility and sleep.
    Full article here: www.thefibroguy.com/blog/hype...
    Check out our hypermobility online course here: www.thefibroguy.com/shop/

КОМЕНТАРІ • 202

  • @Thefibroguy
    @Thefibroguy  Рік тому +28

    * A Little footnote: I should of said cardiac patients favour their right side, I just noticed this when watching the video back*

    • @bigbird3970
      @bigbird3970 Рік тому +4

      Adam could you include a link to the pillows you favour please, there are so many available, I need to spend my money wisely! Thank you 😊

    • @Thefibroguy
      @Thefibroguy  Рік тому +5

      @@bigbird3970 Sure, the one in the video can be found below if you follow the link.
      As with all pillows, stick them in the tumble dryer for 5-10 mins to fluff them up before use 😀 or if you have had it for a while.
      www.amazon.co.uk/dp/B093YG8964?ref=ppx_pop_mob_ap_share

    • @bigbird3970
      @bigbird3970 Рік тому

      @@Thefibroguy excellent, thank you Adam 👍

    • @PARoth2011
      @PARoth2011 Рік тому +1

      So glad you corrected as my ex used to sleep on his right because the left side hurt his heart and I was really wondering.

    • @GoodnightJLH
      @GoodnightJLH 5 місяців тому +1

      I was confused. I have hEDS and I just can’t handle the way each heartbeat slams against my chest when I sleep on my left side. It’s very uncomfortable even though my heart rate is only in the 50s.

  • @edwin5419
    @edwin5419 8 місяців тому +21

    Waking up from a dislocated shoulder is always so much fun. At least it goes back in easily

  • @moviefreakjd
    @moviefreakjd 8 місяців тому +43

    I am 33 and trying to get diagnosed with EDS. I saw this video about 4 days ago and my pregnancy pillow arrived yesterday. I woke up this morning and my face doesn't ache from sleepiness, my joints feel better, I didn't wake myself up from SI pain trying to reposition myself multiple times in the night. You may have changed my life and I am so incredibly grateful. I seriously don't have the words. Thank you.

    • @Thefibroguy
      @Thefibroguy  8 місяців тому +6

      Aw nice one Stacy! Knowledge is power and its great to see you taking back some control. Sleep is so important, so this is brilliant news 😀

    • @jsjourney3295
      @jsjourney3295 5 місяців тому +7

      lol I’m 33 and just found out I’m hyper mobile hahaha and I also found this video 4 days ago 🤣🤣 yes I know it’s a month apart but hahah TWINS !! My right side from my neck to my hip are all out of whack ! QL, SI, Groin, shoulder 😫😫😫

    • @moviefreakjd
      @moviefreakjd 5 місяців тому

      @@jsjourney3295 that's awesome 🤣 twinsies!

    • @mooselove
      @mooselove 4 місяці тому +4

      I am also 33! Had no idea I was hyper mobile until I say my rheumatologist (for my arthritis) for a check up. She realized I was a 6-7 on the scale, which I had no idea because I compared myself with the extreme cases I’ve seen! Seems like soooo many of us suffer with chronic pain, poor sleeps, and SI joint pain specifically!

    • @MrPidgenoir
      @MrPidgenoir Місяць тому +3

      Please please please get life insurance B4 you get diagnosed as I can't get insurance now ... I can get travel insurance through but u also have to check that ur medicines are OK in the country with the embassy with the country you are going Not just take it for granted that its OK because the travel insurance said so .

  • @emslefuri3810
    @emslefuri3810 Рік тому +90

    I'm 22, hypermobile and have had insomnia most of my life. The most comfortable nights of sleep I've had have been in a cheap net hammock whilst camping. I don't know if it's advisable, but I'm probably going to end up installing one if I ever own a house

    • @Clairymoo
      @Clairymoo 10 місяців тому +14

      I bought a metal hammock stand to have a hammock in my apartment, it's easy to disassemble and store away too!

    • @naniki29
      @naniki29 10 місяців тому +9

      Hyper mobility is connected to histamine intolerance and MCAS
      Your histamine may be high.
      A low histamine diet for even a few days may help you confirm.
      Mast cell 360 has the best list of foods to avoid

    • @ashleydavis5557
      @ashleydavis5557 9 місяців тому +3

      I’ve had insomnia & Hypermobility too x shame drs told tell you any of this valuable info x

    • @emslefuri3810
      @emslefuri3810 9 місяців тому +9

      @@naniki29 makes sense. I have loads of random allergies that only trigger sometimes. I have to pick my battles with the dr's tho, as it's hard enough to make them listen anyway

    • @cherylsstuff9141
      @cherylsstuff9141 8 місяців тому +3

      my ex uses a free standing hammock stand. serves him well

  • @JulieKowing
    @JulieKowing 7 місяців тому +14

    I have extremely unstable knee and hips joints so I have the strangest mix of pillows all over my bed to support everything. So glad I came across this video!

  • @Carla-th8gl
    @Carla-th8gl 3 місяці тому +5

    I have hypermobility and I think this video just saved my life. I just slept for 9 hours straight with the pregnancy pillow and woke up with NO pain at all!! Bless you for sharing this and thank God for leading me to you.

  • @daniellepark8219
    @daniellepark8219 10 місяців тому +29

    I have had issues with my throat on and off for years! I have tried so hard to find the proper terminology for what’s been happening and have seen multiple doctors with no help. I even went to the ER one time because I felt that it was affecting my breathing and I was in a lot of pain every time I swallowed. No one knew what was wrong. Over the years I’ve found that aggressively coughing can pop things back into place but it still brings on a lot of anxiety when it happens. Thank you so much for talking about the hyoid bone, it’s helpful to know what is happening!

    • @Thefibroguy
      @Thefibroguy  10 місяців тому +12

      Thanks for the kind words Danielle 😀 I purposely made sure to include this in the video, because whilst it’s not a super common issue we see in our hypermobile clients, it occurs enough that we have noticed it and have had to develop protocol’s help people with it.
      I actually have in my diary to shoot a video about it and the causes, along with how to get the hyoid to sit lower again, so please keep an eye out for that video 😀

    • @daniellepark8219
      @daniellepark8219 10 місяців тому +2

      @@Thefibroguy I will definitely keep an eye out for that video - thanks!

    • @eliserenee4219
      @eliserenee4219 4 місяці тому +5

      Ok this is so weird I've been feeling for a while that my throat is messed up almost pops when I swallow and feels like something is out of place...good to know I'm not crazy

    • @mooselove
      @mooselove 4 місяці тому +3

      This is so wild because I was hospitalized as a kid because I was so scared to choke because of this sensation! Then id do something to fix it myself after a while. Now when I happens I don’t freak out and I’m able to correct it without incident. didn’t know this was all tied back the hyper mobility

    • @jamiejones8508
      @jamiejones8508 2 місяці тому +2

      Yeah, been there too a couple of times and seriously unpleasant and hard to explain to doctors without sounding just a bit weird!

  • @b_uppy
    @b_uppy 11 місяців тому +13

    On the face down position, you put you face on the edge of the pillow, instead of in the middle. This way the neck is less craned. When I have a cold, I move my head and pillow to the edge of my bed for even more air circulation.
    Another possibility is the half down, half sideways position, where you are angled between perpendicular and flat...

  • @emmacolton-nn2vj
    @emmacolton-nn2vj Рік тому +41

    2 nights sleeping like this and best sleep I’ve ever had. No joint pain on waking. No round the bed trip trying to get comfy. Only have a V pillow but just ordered a larger one. Keeping me off my shoulder I’m waiting to have physio on after repeat sublux (Hyper mobile). Only diagnosed 2 weeks ago at 42 and so glad I found your socials ❤

    • @Thefibroguy
      @Thefibroguy  Рік тому +1

      Oh that’s soo good to read Emma! 💪🏻 nice one!

    • @AntonioLiberato08
      @AntonioLiberato08 10 місяців тому +1

      How were you diagnosed? I want to ask my rheumatologist. I want to rule out all the Eds’
      Been having tendonitis bilaterally that won’t heal, spine neck and an array of weird symptoms ball over… gut issues all weird… thank you!!

    • @emmacolton-nn2vj
      @emmacolton-nn2vj 10 місяців тому

      @@AntonioLiberato08 diagnosed via rhumatologist with hyper mobility. They’re querying Eds but getting anywhere along to get that diagnosed is as easy as finding unicorn poop.

    • @pizchi2606
      @pizchi2606 5 місяців тому +1

      Just last week rheumatologist said I have hyper mobility cause leg pain. Glad that I found this video. May I know what is it called ? Is any special category of pillow where to get?

  • @awitness4jehovah
    @awitness4jehovah 2 місяці тому +2

    Until my reflux got insane in my 30's, my favorite sleep position was my stomach. Except, I slept with my arms under my legs lol. It took me a long time to learn how to sleep with a pillow, and I still rarely use one.
    I'll be 50 next month and I mostly sleep in a ball like a cat. The worst thing about that is simply trapping heat and waking drenched in sweat. I've always run hot in my sleep and it (and reflux) cause me the most problems. Or waking with my wrists in extreme pain because I decided to fold them under my neck.
    I hate sleeping and push myself past exhaustion just to avoid it.
    If I lie flat for too long, my hips sublux and my knees hyperextend.
    I'll look into those pregnancy pillows! Great video.

  • @ZeatherMusic
    @ZeatherMusic 2 місяці тому +2

    You’re a very eloquent and knowledgable presenter 😊

  • @WomanTakenBytheWind
    @WomanTakenBytheWind 24 дні тому +1

    UA-cam showed me this finally when i needed it, THANK YOU. I finally can talk to my doctor with more info about why my arm is messed up.

  • @jenniferbellaw5095
    @jenniferbellaw5095 8 місяців тому +9

    Wow! Thank you for this video! I was diagnosed with EDS and POTS 5 yrs ago following the birth of my daughter. I have struggled with insomnia since I was a kid, but it became debilitaing (as well as the POTS) to the point of forcing me to quit working. Severe GERD that didn't resolve after my pregnancy didn't help. Long story short, even after my diagnosis, working with doctors that dont understand all the implications of EDS, it has taken a lot of research on my part to realize I was subluxing my shoulders, hips, and ribs. I bought a giant pregnancy pillow and trained myself to sleep on my back with my adjustable bed's head raised. I actually have the middle curve of the pillow under my knees and hug the ends of the pillow under each arm. It keeps me from rolling over. When i have issues with my shoulders rolling forward and my lower back becomes strained i place a long, thin round pillow along the length of my spine from top of the tail bone to the base of my skull. Seems to help and i have finally managed to get an average of 5 to 6 hrs of good quality sleep. I also recently had an endoscopy and barium swallow test for the exact thing you were describing with hyoid displacement! (My drs agreed that that was the likely cause of my discomfort after i showed them some research!) Sorry for the long comment but I wanted to express my gratitude for the validation your video gave me and is in a form I can share with drs and those around me that dont seem to think that sleep can cause me so many issues. This was incredibly informative, covering many comorbities in one place when it is so rare for those to ever be mentioned in any sort of context that someone with EDS would encounter it and be able to bring those concerns to their drs. So..... THANK YOU! ❤

  • @anabelle672
    @anabelle672 11 місяців тому +10

    it feels so unfair that no doctor has diagnosed me. but i have all the things you are talking about, and you are so educated on it. you know so much. but it’s like not even known about where i am and i’m not getting the right help😭

    • @anabelle672
      @anabelle672 11 місяців тому +4

      but i really appreciate you making all these videos. thank you for helping those that are hypermobile i appreciate it so much

    • @anabelle672
      @anabelle672 11 місяців тому +4

      im so tired of being sick and tired. i’m in severe pain most days and it’s exhausted and frustrating that the doctors don’t understand what’s going on

    • @Deadaccount741
      @Deadaccount741 9 місяців тому +3

      Hang in there, it does get better. You’ll start to learn more about your own body, and what it needs, and eventually you get to a point where you can tell the doctors what you need instead of the other way around. Unfortunately, it kind of Has to be that way because people really don’t know a lot about this on average, but you will get there and things will get better. Just don’t give up

  • @BiologistDillon
    @BiologistDillon 10 місяців тому +18

    I felt so called out in this video in the absolute best way! Been having shoulder issues the past few months I couldn't figure out. It's 100% the side sleeping. Interestingly, I have less acid reflux on my right side instead of the left. Just ordered one of those pillows. Thank you for this video!

  • @sammenter1
    @sammenter1 Рік тому

    An excellent, informative support video. Thank you

  • @RelaxCafecito
    @RelaxCafecito 10 місяців тому

    Thank you for making this video!!

  • @PresUTube1
    @PresUTube1 10 місяців тому +1

    Wow best Sleep & pain video I've ever watched

  • @taytertottt
    @taytertottt Рік тому +3

    5 minutes in and I saved this video. Thank you so much for this info I'll definitely be subscribing.

  • @MJstitch
    @MJstitch Рік тому +6

    Really helpful video! A lot of great advice and info. I’ve been having a lot of neck issues and tingling down my arm/hand and a lot makes sense now. I’ll be getting one of those pillows to try asap 👍

  • @SamskaraSystem
    @SamskaraSystem 8 місяців тому +10

    You’re a hero! Thanks for talking about the hyoid bone. I’ve had some slippiness there over the past couple years but didn’t understand it fully. I love being able to be specific with my doctor about my symptoms.
    This video is wonderful; loved your article too. You’re helping so many people. 🙏🏻

  • @vettelisa
    @vettelisa Рік тому +3

    I am super excited to have found this video! Can’t wait to watch the rest of your videos.
    Hopefully I can find a position to sleep in comfortably when my pillow arrives.
    I flip side to side all night long trying to get comfortable. I currently sleep with a pillow between my knees and one under my arm to keep my shoulders more comfortable…still not comfortable.
    SI Joint and shoulder instability issues.
    Thanks 🙏

  • @Sophira1
    @Sophira1 Рік тому

    Very helpful thank you. I will give it a go!

  • @Mel-oe3dw
    @Mel-oe3dw 3 місяці тому

    Awesome video!

  • @Spisoffer
    @Spisoffer 11 місяців тому +6

    Have HEDS and I've always had problems when it comes to sleep. Have snoring and breading problems when sleeping on the back, have issues with my ribs, hips, arms, shoulders and neck when sleeping on the side and sleep on my stomach *no way*. Have been at the doctor, rehab center, special doctors and no one have been able to help me. But when you described all the stuff with the joints, it all makes sense... I need to get one of those pillows now! Thank you so very much! 💜💙💚Hopefully my back and shoulders will hurt a little bit less 😊

  • @elibell19
    @elibell19 2 місяці тому +1

    This channel should have more views. This video is so informative. Thank you!

  • @munyangsan
    @munyangsan 6 місяців тому +5

    I wanted to extend a thank you for the best sleep I've had in years (if not ever). After watching your video I jumped straight in and ordered the pregnancy pillow you showed and OMG that bad boy is a godsend. I've been trying other options for years and never managed anything sustainable or suitable. Your 'what, why & how' approach provided the information I've been craving. Thank you 🤘

    • @Thefibroguy
      @Thefibroguy  6 місяців тому +1

      Thanks so much 😀 I am super thrilled it’s has been such a help. This video has been really well received, I’m actually planning a part two over the holidays.

  • @hulamei3117
    @hulamei3117 8 місяців тому

    The MOST helpful video! Wow...

  • @lexikera83
    @lexikera83 Рік тому +5

    Thank you, I feel seen. I think I have experienced all of the problems :/. Rotating much at night; always more or less tired through the day ..

  • @mariasoeters
    @mariasoeters 7 місяців тому +3

    Thank you so much for this video! About 2 weeks now I've come to realize my hypermobility is the cause of the many issues I am having. I knew for some time I was hypermobile but never connected the dots (I just thought it was very convenient during yoga). But now I know why sleeping on my side hurts my back and shoulders. Thank you so much again for these insights. The last few weeks have been that one puzzle piece after the other falls right into place... you just got yourself a new follower 😊
    Ps. I love to sleep on my back. With a small pillow under my knees. I will start looking for a new pillow soon since I think mine is a bit high.

  • @bradkristinn9119
    @bradkristinn9119 Рік тому +2

    Love these validations.. cardiac issues sleep in left.. yesssss

  • @StrwberryAsh
    @StrwberryAsh 3 місяці тому

    Words cannot express how much I appreciate all this information! I believe this is what I have and I am just starting to research!

  • @melusine826
    @melusine826 Місяць тому +1

    As a very pear shaped person, THANK YOU! The fact i cant handle camping mattresses AT ALL and keeps me out of a lot of things i would like to do outdoors

  • @EleanorNeville618
    @EleanorNeville618 4 місяці тому

    Brilliant video. I feel so seen 🥲

  • @victoriamorrison2195
    @victoriamorrison2195 10 місяців тому

    very helpful, thanks

  • @joshlandis3414
    @joshlandis3414 14 днів тому

    Fantastic video! I’m hypermobile, and I am also a bodyworker and trainer who specializes in working with hypermobile folks. This is such a great resource! I appreciate you!

  • @sofikat22
    @sofikat22 8 місяців тому +1

    Very helpful, thanks the algorithm. I just wrap the duvet around my legs, probably for hips and knees and when you talked about it it finally made sense

  • @alexmizak7063
    @alexmizak7063 8 місяців тому +3

    I have always slept on my front due to unstable shoulders. As a child I realised that it was the only position I didn’t feel pain in and could actually relax. Must’ve contributed to my neck issues 😅 After a very bad period of low shoulder stability due to unrehabilitated injury, I have strenghtened my shoulder muscles and now sleeping on the side is 1. possible, 2. comfortable.
    I have never heard anyone speak about the things I’ve been trying to figure out for years, and I am so glad to discover your channel. Thank you for putting such detailed information out there, very excited to learn more through your channel!!!! ❤

  • @tashiz8
    @tashiz8 6 місяців тому +3

    Switching to a Soft foam mattress and using lots of props helped immensely

  • @SamskaraSystem
    @SamskaraSystem 8 місяців тому +2

    I had to come back after a couple weeks to thank you. I was unable to sleep for months after a work injury triggered TOS. My hands would be so painfully numb it would wake me up. With all these tips and tools I have been able to fix that and I’m able to get a full 8 hours again. THANK YOU!!!

  • @GagaBambika
    @GagaBambika 6 місяців тому +2

    Im 35 and i knew my body was different but I never knew it’s a condition until few days ago. Just a simple terminology helped me to find such a good and helpful content, like this! I sleep with 3 different pillows and I’m very picky about the mattress, but I’ll definitely try the pregnancy pillow now. And check all of your videos ofc😊 thank you!

  • @conniegarvie
    @conniegarvie Місяць тому

    Thank you for this amazing video! I'm going to try one of those pillows!

  • @deathsheadtarot7875
    @deathsheadtarot7875 2 місяці тому +1

    I feel like this video is a life saver! I sleep on my right side, have GERD and major issues with my shoulder hypermobility causing issues with my collar bones and my hips....I have struggled with pillows and mattresses most of my life. This has so much info that I feel will actually help me!! Thank you 🙏

  • @Sgottamuse1
    @Sgottamuse1 Рік тому +1

    Very helpful

  • @74afra
    @74afra 7 місяців тому +1

    Thank you for this video. I am sleeping with the C pillow for a week now and i feel so much beter. And my back is almost not hurting annymore during the day. Thank you ❤

  • @shawnrisley2404
    @shawnrisley2404 Місяць тому

    Great advice and detailed analysis. Retired occupational therapist here, can observe patterns in others. Not so good in analyzing myself, past adjusting position when joints start feeling pull due to laxity. This is so helpful to hear the full-meal deal, and will listen to this several times. Seems that people on the downhill side of 50 would benefit from watching this video, since you cover so many medical/body issues. Well done.

  • @Roshni-sp1vi
    @Roshni-sp1vi 10 днів тому

    thankyou!! all my pains and aches / and hacks explained. appreciate all the info and detailed demos.

  • @fluffymountainbunny
    @fluffymountainbunny 2 місяці тому

    Thank you this! Im one of the unlucky ones that is having hypermobility issues almost everywhere. Going to try out some of these!

  • @jeffreybutcher4451
    @jeffreybutcher4451 5 місяців тому

    I’m 23 and struggling, thanks so much mate

  • @Enigmommy
    @Enigmommy 9 місяців тому +2

    Excellent information and explanation as to why certain positions cause pain during the night. I use a pregnancy pillow also but mine is shaped like an upside down U - that way I can easily roll over when needed during the night without having to take the pillow with me.

  • @Momma_Bee29
    @Momma_Bee29 7 місяців тому +1

    I have a hypermobility disorder but haven’t yet found out if it is EDS… going to try the prego pillow , you literally explained my struggle

  • @elizameimusic
    @elizameimusic 3 місяці тому +1

    Finally got through this, glad I did, thank you for the demonstration. I had heard of pregnancy pillows but didn't quite know what to picture. This seems like it would fix the problem of me having 3-5 pillows to be adjusting all the time.

  • @leandraainlove
    @leandraainlove Рік тому +9

    This video is ridiculously helpful. I am so hypermobile and have been in pain while sleeping the last 4 years. I am ordering a pregnancy pillow. Asap!!! Thank you for this thorough contecnt!

    • @kar460
      @kar460 4 місяці тому +1

      Define pain.. stiffness or muscular pain?

    • @leandraainlove
      @leandraainlove 4 місяці тому +2

      @kar460 stiffness and pinched nerves in my neck and thorasic spine.

  • @cristianserious
    @cristianserious 5 місяців тому

    Thank you very much for the video will order a pillow and see !!!!!!

  • @brendellaella
    @brendellaella 7 місяців тому +4

    Our adrenaline kicks in at night with EDS too. An adrenaline blocker like Metoprolol ER Succinate can help.

  • @deniserichter7067
    @deniserichter7067 Місяць тому +1

    The tips about shoulder and hip width and related were really helpful. I cannot remember ever having a comfortable bed and I wake a lot and in pain then usually change position. I am need a new bed and am going to take all this info into consideration. I find side is better but i have shoulder issues, i cannot manage to stay on my back. I am tired of being sore and tired. No one I asked could give me helpful info on beds or pillows.

  • @hulamei3117
    @hulamei3117 8 місяців тому +1

    I'm looking forward to a NO PAIN morning!

  • @michaelajoyce4598
    @michaelajoyce4598 8 місяців тому

    Hello, thanks for the info! As I get older I am experiencing more issues relating to my hypermobility but it’s also motivating me to look into what I can do to help manage the condition.
    I have realised that my symptoms are worse in the morning, likely due to poor sleeping posture and the pillow you have demonstrated in this video looks like a promising solution!
    Please can you share a link to the pillow?

  • @illuzion30
    @illuzion30 8 місяців тому +2

    #1: Tight Nissen fundoplication is a lifesaver.
    #2: I use 5 comforters to shape however I like.
    #3: Humidifier and large air purifier are a must for me.

  • @caitm8209
    @caitm8209 6 місяців тому

    The body pillows are genius. I know what I am getting for christmas this year! My ribs are killing me these days.

  • @shannongreenwell1278
    @shannongreenwell1278 8 місяців тому +1

    I’m 49 And I have EDS + Sleep Apnea, I have to sleep with a CPAP but I want to be able to sleep without subluxations or Dislocations of my joints, too. I have cEDS or Classical EDS. My rib is the problem area mainly during sleep 💤. I have GERD and I noticed that, Thanks for the helpful hint!

  • @rubymonday9059
    @rubymonday9059 5 місяців тому

    Thank you so much for this. I watched it from beginning to end and learned more in thirty minutes from you, than thirty years of living with hypermobilism.
    Also, what size if your bed, it's huge!

  • @LotteLane
    @LotteLane 9 місяців тому

    This is great, thanks. I know youre not doing affiliate links but any chance of a link to the pillow? Or just what to put into google? 😊

  • @dagmarrojas9563
    @dagmarrojas9563 5 місяців тому

    Wow thank you for explaining all these issues. Now how do you go about switching sides with this pillow? Or do you not?

  • @jeanetteclark9556
    @jeanetteclark9556 5 місяців тому +1

    Very interesting video. I'm thinking of trying one of those pillows, does it need to be S shaped or would a flexible U shape do the same?

  • @lennymac5915
    @lennymac5915 11 місяців тому +5

    I have just turned 60 a couple of days ago and have recently been told that it's likely I have Hypermobility. I've been telling people for years I have over the top flexibility and not one of those doctors said anything, So my journey and new bed starts now. But I do have one question if you wouldn't mind sharing. "How big is that bed"? 😂😂😂

  • @ninanano2777
    @ninanano2777 7 місяців тому +2

    I'm hypermobile + ADHD and I have a pregnancy pillow for 2 months. I sleep much better now, more comfy, more snuggly. However, mine is a little too high on the head, I may need to put some of the filling out. And biggest problem: I'm moving a lot in my sleep, and I also need to have this freedom. Usually I turn around a lot and it's like a workout each night. The big pregancy pillow is restricting and that wakes me up some time in the night and I need to kick it away to not get too irritated...

  • @chulainna
    @chulainna Рік тому +3

    Thank you so much for this -- you've described my experience perfectly! Question: What size *IS* that bed!? Is it 2 queens put together?

  • @MelanieSchwartfigure
    @MelanieSchwartfigure Рік тому

    I'm hypermobile and toss and turn from the pain all night. I can't remember the last time I had a good night's sleep. I'm going to have to try one of those pillows!

  • @NeurospicyKat
    @NeurospicyKat 6 місяців тому +1

    I Front sleep with CPAP machine so can have my face down a bit more. I have 2 thin pillow and so i can have my head in a better position, i kinda cuddle one of the pillows.
    We also have a water bed which molds to your body shape. It's so good.
    Shoulders are a major issue for me. I've also go a very large chest.

  • @user-ol2hk9fv5h
    @user-ol2hk9fv5h 6 місяців тому

    Thank you so much.. ive wondered about those pillows for ages. I also have a hypermobility ankle ( born with it overextended) i have ti strap it uo at night ti keep it stable. When hips and back wre really bad the only positioni can take is on my back with two firm pillowsunder my knees and two wedges of very reistant foam ( like big door stops) that i made myself under my hips. Tens machine helps at that point. Iknow there are new generation ones wothout wires id like to try. Ive also thought obout the slippery undersheet and p.js thst can make yurning much easier. At the moment ive found long sayin nightdresses really help me turn. As does holding onto the mattress handles!

  • @sufiharvy7063
    @sufiharvy7063 28 днів тому

    Can you please, please post info about which pregnancy pillow you're using in this video? Thank you for all your support to the EDS/HSD community ! ❤

  • @rainbowvisionart8025
    @rainbowvisionart8025 8 місяців тому +2

    I’m too much for my G.P😂😂 no seriously though, I give up.
    I’ve been diagnosed with benign Hypermobility, gerd, fibromyalgia, insomnia, TMJ disorder and anxiety/depression.
    I’m always in pain on different scales, but I’m totally fed up as a human being.

  • @early_morning_sd_team
    @early_morning_sd_team 8 місяців тому

    I’m not diagnose hyper mobile but I have extremely lax shoulders, and I have knee issues. I had a pinched nerve in my neck and in turn with taking steroids had to sleep on my back… I tried the whole pillow under the knees which didn’t help. Once I was done with the steroids it was back to sleeping on my side.
    I’ll try to see if I can get one of those pillows. I recently found pillows that are fiberfill and feathers, they are a mix of my favorite thing about a feather pillow, and my favorite thing about a fiberfill.
    I also need to get my room clean so I can get my new mattress from my sister’s house and see if it will help.
    To note I have knowingly dislocated (and personally relocated) one of my knees twice. Now they sublimate a lot. I’m pretty sure I’ve dislocated ribs and one of my hips on several occasions. I have dislocated my right shoulder blade several times, and I can tell when it it because it hurts to move, it also juts out more then normal.

  • @kryssalou
    @kryssalou 4 місяці тому +1

    i knew the need for a soft mattress had to be related. i noticed a big difference staying long term with family using an old firm mattress vs. the two futon mattresses i had stacked with a pillow top cover. my body is literally crying for replacements.

  • @mariposavioleta9007
    @mariposavioleta9007 7 місяців тому +1

    I'm a depends on what's going on at the time type person for sleep but best sleep is in a recliner because it's back but not flat either and legs are a little up which helps me with not being completely flat with this and POTS.

  • @Wil_Dsense
    @Wil_Dsense 4 місяці тому +2

    28:02 dude u sold me on the pillow here lol. I need it, for all these reasons ai feel like it could help me a lot. It takes me a while every-night just to get too comfortable, with this U pillows it could be so beneficial and make it so much easier to sleep! Needless to say, I might have EDS and life is difficult. Any of these pillows you can recommend or link? I will check on Amaz but I must have one, looks well comfy😊 Thanks for the informative video.

  • @J.DaviesArt
    @J.DaviesArt 2 місяці тому

    I sleep all over the place 😅 constantly moving trying to find a pain free position ... buying a pregnancy pillow, my symptoms are hips, leg, back, neck and shoulder mainly on the right side. Tried smaller pillows/props in the past with no joy so maybe the bigger pillow will help. Tiny hips . Good video 👍

  • @Deuce7Off
    @Deuce7Off Рік тому +6

    I suspect my ribcage hypermobility is twisting while I'm asleep and causing my diaphragm on the right to not function properly. Any suggestions? My serratus anterior on the right is chronically tight and might be pulling the ribs.

  • @dan__________________
    @dan__________________ 10 днів тому

    Great video. You can still get Pez btw.

  • @amehiito
    @amehiito 6 місяців тому +1

    I’ve learned to sleep against the wall at a diagonal angle. I’ll set up a blanket against the wall, a soft pillow, and a body pillow in front of me to separate my arms and legs

  • @bethanyleblanc736
    @bethanyleblanc736 4 місяці тому +1

    What kind of pillow is the big gray one? A long pregnancy one? So many helpful tips!!

  • @SheCreatesStuff2
    @SheCreatesStuff2 7 місяців тому +1

    I have hEDS and experience most of what you talked about. I never realized some of this was happening, i.e. my hyoid bone slipping. It's good to put a name, so to speak, to it. Where can I find that pillow?

  • @jamiejones8508
    @jamiejones8508 2 місяці тому

    Any thoughts on eds & scoliosis sleeping positions? I was taught to sleep on my back as a kid, but now I have severe scoliosis my back isn’t flat so without a really good memory foam mattress i end up in a lot of pain. Family history of sleep apnoea and I’ve got a heart arrhythmia…I’ve never thought about this until now so thanks so much for this!!!

  • @samcookiebox
    @samcookiebox 2 місяці тому +1

    I think I switch back and forth between side and back sleeping. My hips like to sleep froggy on my back but my knees like the freedom of movement that side sleeping allows (they m fucking hurt if they stay in any position for too long).
    Also,
    Hypermobility and EDS are very common within the autistic and Neurodiverse community. Obvs everyone's sensory experiences are different, but I feel like, at least this autistic, would enjoy weighted-blanket style cuddliness of that pillow.

  • @oneandonlyone1
    @oneandonlyone1 Рік тому

    Thanks for covering this. I sleep like a pretzel which gave me dvt in the juggular.

  • @Musika1321
    @Musika1321 10 місяців тому +2

    I have GERD and sleeping on my right where stomach is in higher position is terrible. Left and back - kind of ok. Front, hips in so much pain on waking. I have type 3

  • @KazWinchester
    @KazWinchester 6 місяців тому

    Do you have any u shaped pillow recommendations? A lot I see online are not as advertised (flat and thin)

  • @Sovereignlupi
    @Sovereignlupi 4 місяці тому +1

    The reasons I had to stop singing kettle bells for strengthen, started pulling my neck out, laxity collarbone left side

  • @carollinley7768
    @carollinley7768 Рік тому +5

    Good,informative video. I would just like to add that one of the problems with the pregnancy pillows for me is that I find them too hot. I have transitioned from back sleeping to side sleeping but still only get decent sleep if I am cool. For me this is a summer weight duvet in the depths of winter and only a cotton sheet in summer. As you say trial and error. 🙂

    • @Thefibroguy
      @Thefibroguy  Рік тому +4

      It’s funny that you mention that as I run hot constantly as well. The C pillow I use comes with different covers, and then one I have is the cool cover, it doesn’t heat up 😀

    • @ninavandenabbeele9667
      @ninavandenabbeele9667 10 місяців тому

      Maybe a bamboo wife might be an option it's not the same but it might help against the heat plus with stabilizing hips and shoulders

    • @YeshuaKingMessiah
      @YeshuaKingMessiah 8 місяців тому

      R u in the Deep South?
      I have to be warm enough to sleep but I do like it mid60s ideally, in the room
      Lotttttts of covers

  • @frankscappatura699
    @frankscappatura699 5 місяців тому

    Please tell me where I can buy this pillow I’m in Australia thank you, I would appreciate it

  • @granthutchinson5937
    @granthutchinson5937 3 місяці тому

    Are there any elasticated shoulder braces available that keep the shoulder joint from dislocating when sleeping?

  • @Hummingbird-ns1fp
    @Hummingbird-ns1fp 7 місяців тому +1

    I was a front sleeper as a child, then a side sleeper. After hip surgeries and DDD I’m down to my back. Adjustable bed in zero gravity position is great for me. I love sleeping on my side, but too much pain. Oh well.

  • @cassandrabeard5070
    @cassandrabeard5070 8 місяців тому

    If i start off sleeping on my side i often end up on the front because i just lean into it as i relax. I tend to sleep in all of those positions at different points in the night though because of the pain and needing to move. I do feel though that my bed is very comfortable. Ive had many dislocations and subluxations just from sleeping though lol...neck, back, shoulder, hip but especially knees. It all started with my knees anyway though since i was very young...they are usually the ones to go, happens frequently so im kinda just used to it at this point.

  • @999octavious
    @999octavious 7 місяців тому +1

    I finally got diagnosed with hypermobility last year but have struggled with it my whole life. Sleep has always been hard for me. Insomnia since high school. I can only sleep flat on my back, or I may pop my collar bone out of place😢 just have to learn tricks.

    • @CandBYoung
      @CandBYoung 6 місяців тому

      Side sleeping and mild scoliosis meant a permenently subluxed collar bone for me. Turns out it’s extra high on one side due to my being rotated. It used to hurt a lot and though over time the pain went away the issue has not. Probably won’t as long as I have scoliosis.

  • @ninavandenabbeele9667
    @ninavandenabbeele9667 10 місяців тому +2

    I sleep in stable side position most of the time everything else feels to wobly . But i get inflamation of my chest bone sometimes from the presure . so this is a really good video 😅

    • @neon.neutral
      @neon.neutral 5 місяців тому +1

      I think that's what's going on for me right now! Not fun.... How's yours doing and did anything help? @ninavandenabbeele9667 ?

    • @ninavandenabbeele9667
      @ninavandenabbeele9667 5 місяців тому +2

      @@neon.neutral to be honest it comes and goes so far taking anti inflammatory painkillers like ibuprofen and putting something under my arm so it doesn’t pull my shoulder down helps the most . But there’s not much else you can do for pain in other joints gaining more muscle seems to help

  • @annegreenwood3624
    @annegreenwood3624 8 місяців тому

    i sleep in the running pose as my hips hurt it’s 5 am and still awake if i could i’d sleep on my head 😂such great information thanks for sharing

  • @thesavagefamily1603
    @thesavagefamily1603 5 місяців тому +2

    What's the pillow called I have all of what you've mentioned and not getting good sleep

    • @alishasouslesoleil
      @alishasouslesoleil 19 днів тому

      It's in the pinned comment. I had to sort by "newest" to see it.

  • @IceCreamCoolio123
    @IceCreamCoolio123 Рік тому +2

    is it okay to sleep on my back without a pillow at all? every position hurts except that one...but it does start making my body ache after a couple of days of doing it. I've also read that you really shouldn't but i can never find any reasons as to why it's not good

  • @kar460
    @kar460 4 місяці тому +1

    I do the pillow between the legs. But i have no problem. Or if i sleep on my side and the knee is up. The pillow is under my knee. But yep it does get thrown out