Are You Wasting Your Energy? // Chronic Illness Life [CC]
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- Опубліковано 5 лис 2017
- #LovelyPeopleMerch: bit.ly/LovelyPeopleMerch
Have you ever told someone with limited energy that they are 'wasting' it? Well... let's talk.
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“So I can tell you to shut the hell up.” QUEEN
THANK YOU. Keeping myself alive is an endurance event. I will spend my remaining scraps of energy doing whatever convinces me that it's worth continuing with. This video is getting sent to everyone I know!
Rose Kirby û
❤
honestly, taking a shower is probably the hardest thing i do, and people don't even think about this most of the time
chicklebird ...totally agree!!!
I used to take 2-3 showers a day, just because Florida. Now, I've given showers up, because I don't trust my balance enough, but even taking a bath takes 2 hours to clean everything right, and it's exhausting! I can't do it every day anymore, so I'm not as clean as I'd like to be, and it really bothers me! It's probably the worst thing about chronic illness/ pain (and now, I'm crying, dammit!). People take things like this for granted all the time, and they don't even realize....
i completely get that, no one understands how it takes me more than hour to finish showering, i can't believe there are people that do it quicker than that, i have a shower chair so luckily i can still take showers but i still end up with hand, legs, and feet cramps at the least the entire time i'm trying to wash, it's really not an easy task!
I totally agree! People think it's gross that I only shower twice a week but that's all I have the energy for!
Maria Cragg ....and that's what beauty cloths are for!🤣
Love this video!
My husband actually gets mad at people who tell me that for me. He also tells me to "waste" my energy on the things he knows make me feel better about me - like sitting in a salon chair for 3+ hours to get my underlayer dyed bright purple and blue. But other people just don't get it...
Also, thank you for the "just stop it" bit! I quoted it to Dan, because he didn't hear the video, and just about died laughing! Like, yes, thank you for trying to heal me, but if we could stop now that'd be great! 😂
This has so perfectly articulated how I feel about this! Chronic illness really does rob you of so much. I used to be a very active person and would spend most of my time outdoors exploring and hiking and such. And now I just spend so much time indoors on the couch. Whenever I have a bit of extra energy, you can bet I’m going to spend it on doing something outside even if there are dishes or laundry that i “should do” instead. We deserve to have fun and enjoy life ☺️❤️🥄
I hate the insinuation by some professionals that I am wasting my energy. I run a UA-cam channel and blog, with serious illness and am classes as palliative care. It’s like they expect me to be living a completely full and exhilarating life... when actually I’m doing LOADS despite of all my horrendous medical conditions. Side note: your dog is the cutest thing I’ve ever seen xx
❤ subscribed. U r amazing
Some doctors tell me that I need to exercise but they don't get that I do exercise but I can't do cardio and there are long periods when I can't do anything
Thank you!! One of the things that really bothers me about my chronic illness is that I can’t clean & organize my house the way I want. It’s not that cleaning is “everything”; but, when all you can do is sit at home resting - you have plenty of time to notice everything that needs to be cleaned & organized. It’s frustrating.
How I recognise myself in this..
Was just thinking this to myself
I have this problem too
WOW, that's me. No one tells me I shouldn't waste my energy. I have that internal dialogue with myself. I just can't stand seeing so much disarray so I feel guilty doing something that I WANT to do. This topic has come up a few times recently in an ME group and I realized how much I'm missing. If I'm having fun doing something, then my day will have a brighter outlook so it's a win win. After all, my house will never be pin neat or organized no matter how much time I spend on it. I won't feel guilty anymore about allowing myself some me (not ME, LOL) time.
❤ I feel this!
Yesss thisssss. I have fibro and its as if people think because I become essentially useless (and extremely emotional) during flares that I shouldn't take days off when I feel well or basically ever relax haha...they don't understand that I need and deserve that time even if some of my time is 'wasted' by my illness. ORRR they act like I'm being leisurely if I spend a whole day cooking and meal prepping, but they don't understand that my illness is directly impacted SOOO MUCH by my diet/nutrition...they talk about cooking/prep as if its a cute thing I like to do, and sure I like it sometimes, but sometimes it sucks, I have no choice.
Jordan V im 22 and learning to finally cope with fibro. And you’re totally right. Keep your head up, you’re awesome 👍
You’re not alone! Fibro here, too (along with hyper mobility, anxiety and panic attacks, depression, and some other health issues,) and sometimes the fatigue is so bad that I have to sleep for 10-12 hours just to get the few things I need to get done that day .. actually done. It can be difficult not to feel guilty when people don’t understand what you need to do to live your life, but people often attribute the actions of others to internal factors/personality or character (laziness, picky-ness, poor time management, etc.) rather than considering external factors (injury or illness, a wreck on the highway making them late, etc.,) even though they consider external factors for themselves when analyzing their own behavior. (It’s a very human thing called the fundamental attribution error, and it’s interesting to look into.) So, just know that the people judging you are falling victim to their own biases, and their judgement isn’t an accurate reflection of you, but of them.
Also, I had a twelve-hour speech competition yesterday and this is the first time in four years I've come back from one and didn't need one or two days' recovery. So go me.
I'm HIV positive and I'm LOVING your point of view to help me be more compassionate to myself with the symptoms 💚
If this video does not go viral, I will rage. Everyone needs to see this. This is so so so good and sums up everything I have spent most of my life trying to explain to my loved ones when it comes to how I live.
Jessica, you are a gem. Thank you. Lots of love.
This is so right! I never heard it phrased this way but it's true my fatigue and pain definitely stops me being the real me! Thank you Jessica :)
Great video! I tend to need to have this discussion with myself rather than other people, but it's good to be reminded that doing things that bring me joy is not a "waste" of energy (even if there are other more "important" things I could be doing). I shouldn't have to be only either sick or productive all the time! Both rest and productivity are important, but there also needs to be room for fun in there somewhere. Life would be terribly dull otherwise.
Your necklace is stunning!
This was a wonderful video. I think the principles you discussed sort of apply to ALL people, too! If you spend your energy on something that makes you happy and makes you feel like the best version of yourself, who am I to tell you you're wrong, no matter who you are?! Thank you for sharing yourself so vulnerably. You are such a delightful human!
Thank you for your videos. I just found you and you have profoundly touched me.
I was diagnosed with a rare (last I heard I was 1 of 15 cases) illness that affects my lungs, lymphatics and causes terrible pain. I have been disabled for over 16 yrs now. I was only 31 when I was placed on oxygen full time. I have heard terrible things come from caring people who just don't understand. If I don't have cancer and can do my makeup, well I guess I am not trying hard enough. Also, your comment on bathing was spot on. It is exhausting and more often than not causes me to go lay back down.
So I am very grateful for your sharing. I look forward to more of your videos. Take care and keep doing what makes you happy.
There are many choices and trade-offs that my clients make. I can't know how much it costs them physically, emotionally and in other ways to show up to an appointment or talk with me on the phone. Flares and 'bad' days can knock a person flat. You do a great job of adjusting, Jessica. Wonderful and informative vid!
Thank you so much!! I evangelize about the importance of morale and "treating yourself like a human being" all the time -- it's more important, in my opinion, than pretty much anything that would be considered a "basic need." The examples I like to use all involve money instead of energy, because in the US if you're disabled significantly enough you fall into one of two categories:
a) the highly paid motivational speaker, who most likely also writes books and a blog and does UA-cam and runs a nonprofit, or, because there are way more of us than there are opportunities to do that (we can't *all* be highly paid motivational speakers, the market's pretty dang saturated already),
b) the homeless person who makes his living either by panhandling or by getting into a vocational program off a wait list and being (legally!) paid less than minimum wage because Aren't You Just Soooo Grateful That We're Giving You A Job At All?
So my favorite example to use is, "Let's say your daily food budget is $3, and you don't have access to a safe kitchen to store ingredients or cook. The most practical thing to do is spend it on a fast food value meal, which just by its sheer size will meet your calorie and maconutrient needs for the day, even though eating low-quality food like that will make you feel like crap. But if there's something you really *enjoy* eating, 'normal' humans can just choose to walk into the establishment that sells it and buy it for themselves in response to the craving, and it's important to give yourself that experience too, to remind yourself what being a 'normal' human feels like. When you're queuing up for, say, that pumpkin muffin at your favorite bakery, you're treating yourself in the exact same manner as all the other, much wealthier people in line, so for that moment, you're not in poverty, you're one of them. You all are there for the same reason: to acquire an "unnecessary" delicious treat for no other reason than to make yourself feel good." The power of that experience is, I believe, way more important than getting enough calories, because good morale is itself an alternative energy source!
I'm biggest problem is people not understanding that I'm unable to do things, why can't I do them then seeing their faces whenever I say "I can't do that" or "keep up won't you?" It's frustrating.
Oh girl!! Thank you for this. Nobody really knows how I spend my energy because I’m pretty solitary lately which is another whole ball of wax. But I’m getting down on myself for this seemingly useless things I find hours of entertainment doing and before you know it I’ve burned a whole day… Whoops! You are the best.
This was so incredibly helpful for me to hear right at this moment in my life! I have fibromyalgia and lupus and my "energy issues" are really bad lately. As long as I am able to take care of my cats and feed myself, I'm doing okay. I also have OCD, and I am not able to keep my home to my OCD standards-- you gave me good answers to the critical voices in my own head! Thank you, thank you, thank you! You are such an inspiration!
This video was right on the money! I have multiple autoimmune conditions, CFS being one of them. When I'm in a major flare, going to the grocery store is like a marathon. I'm thankful for my family doing the "little things" that make life easier.
I'm a recent subscriber! I absolutely love your videos. Keep up the great content ❤️
I found you on my suggestion part of my page and clicked an older video because it mentioned you being deaf. I'm married to a man who was born partially deaf so I wanted to see what you had to say. I subbed and went to sleep. Tonight I saw this video and clicked again because I have Lupus and Fibromyalgia. Needless to say, I am thoroughly hooked now and will be binge watching your videos now to catch up! THANK YOU for doing what you do!!
Love how you use your channel to educate with a dose of humor. 💛
Mad4U2Love ....while being stunning 😊
+
Very important topic. Thank you for sharing! I need to find ways to articulate these thoughts when people question me. Now I can say what you've said! :)
Jessica, I 100% agree with every word you said in this video. When you spoke about your personality being subsumed by your illness I had tears in my eyes because I feel that way too; sometimes it feels as though I'm buried so deep that I'll never get out from underneath. Thank you for reminding me that I can and I will.
You mentioning that you feel like you can’t access a part of who you really are because of your illness really hit hard for me. I used to be the girl who was up for anything. I loved roller coasters, running around with friends all day and night, chugging a coffee to work long hours on a complex project, going on spontaneous trips, eating all kinds of food, and generally living a full and free life. All of those parts of me are now gone. I will occasionally eat a brownie or a taco even though I know it might make me feel like garbage later just because for a brief moment I feel like I’m getting that part of my life back and sometimes that’s worth it.
Thank you so much for this. You described it perfectly. I actually don't get asked that a lot by other people, but sometimes I do it to myself. Like "how is you can take pictures now if you felt so bad you had to leave work early in the morning"? O guess sometimes we're our own worst enemy.
very interesting, i had surgery a couple of months ago and took a month to bounce back, i understand the energy level a little now, i had none and to do things like take a shower, eat, do dishes, etc. took everything out of me, feel so bad you have to suffer with this all the time, , love how you can do your makeup and look so lovely all the time and bless your wife, so happy for both of you
I’ve read about your spoon theory before, I have a chronic illness and it helps others understand my conditions on limited energy so thank you so much for that ❤️
You’re so eloquent! I’ve never related to a video more! Including the organising and making things perfect thing. I thought my personality just “changed” but it really hasn’t, just isn’t worth the energy most of the time. But occasionally I will go crazy and sort the heck out of something because of an urge and I remember how happy it can make me still. :D
My primary physician once told me to save energy by not talking....I had to spend three days in bed and silent, in order to have the energy to speak my mind in that appointment. I knew that after the appointment, I would have to go directly to bed and wouldn't be able to digest food, because my fatigue causes my gut to cease functioning and my blood pressure to plummet.
I’ve been almost bedridden for almost two weeks because of my disabilities and was struggling with this exact thing! Feeling so bad if I used my energy to be up for two hours to watch a show ( which requires sitting up on the couch which if you’re fully able bodied may shock you takes a lot of energy!) rather helping my dad with the dishes for 20 mins... you almost made me cry because I don’t have to feel so terrible when I utilize any small amount my energy on things that make me happy! Thank you. :) yay thank you for always being so open and for confronting things like this head on!
I get this all the time. For a variety of reasons, whenever people tell me I’m wasting my energy it makes me feel 5000% worse and less able to do anything afterwards. If they didn’t say so in the first place, I would feel so much better and manage my energy better
As someone who gets mocked for not doing my own cooking, I appreciate it! I can't do it because it will be all I do that day, but even friends who are good about my disability make it out like it makes me like a child. If I expend my energy on the survival requirements in the hierarchy of needs, I won't ever get to do the things I love or want. Part of living a "normal" life is "wasting" energy on the frivolous things most people do, even if it means not being able to do the things people see as more essential or important.
Cooking takes a damn lot of energy! They're just lucky they don't know that themselves.
But, um, there are tons of career-focussed men who basically never cook. What makes them think you're so different you should? Have they not realized what pre-made food in supermarkets and restaurants are for, to get by, without cooking?
I do cook but even get raised brows for saying I don't _like_ cooking. What is it with people's weird fetish for meal preparation..
VERY TRUE! I have found my personality to have been so changed by the shift in my health, so I loved hearing that it's a common thing (it somehow never occurred to me). Also, this video is so vindicating. One additional point to the list... "I assure you that I am internally telling myself I'm wasting time CONSTANTLY- I really don't need that coming from an external direction as well!"
Spoonies Unite! 🤗 "shut the hell up"......girl after my own heart. 💕 I'm sending this to all my family members. They give me issues all the time for my "laziness", as if a shower could possibly leave you down for the count for a day, uh yeah, I really enjoy being a dirty, greasy, lump on a log, in my jammies I change every week. 😉
That bit around 7:16 made me tear up, you put words to something. I have some energy intensive hobbies that I want to do so badly but the stupid chronic fatigue gets in the way of. But they're more then hobbies tho, it's part of who I am.
Thank you. This is incredibly validating. In my experience, people usually say those kinds of things because they feel guilty for not making "good use" of their own energy.
Thank you ❤ my mom has cfs but unfortunately she keeps doing stuff around the house and I see she's doing worse. I really wish she could just read trashy magazines like you said instead of feeling guilty about her illness even though she can't help it. This video really helps and I'm showing her this asap so maybe it'll help her as well 💕 thank you again for being so open and inspiring
You're part of my 20% these days :-) Love, love your videos. Thank you.
i’m a spoonie aswell and seeing someone else with a chronic illness being so successful really inspired me
Amazing! I was just trying to explain this to someone today that I don’t want to just conserve my energy bc I also really want to have a life and go out to dinner and such even if it will make me more sick the next day.
Thank you again for teaching me so much about chronic illnesses ! And being absolutely lovely as you share😘😘 I think you are perfect as you are🤗🤗
Guilty as charged! Here I was thinking, gee, I have to motivate this person to “seize the day” and do something productive. My mistaken idea of tough love. I want to believe every stage of life should be enjoyed and not “wasted”. Thank you most beautiful Lady for putting things in perspective so kindly. I think I will better appreciate the people I know or will ever meet. 🤭
I have an invisible illness EDS but managed to work as a nurse therapist part time until recently, one of the things I love to do is put makeup on, it makes me feel better about myself and stops me looking Ill, and it’s one of the things I’m still able to do! One of the therapists commented on this about how I have the energy to do this when she only managed to get dressed in a morning a silent insinuation of “ are you really ill”. I could have commented that she did have the energy to do Zumba, go clubbing, attend drama clubs etc etc when really my life consisted of work and bed and putting makeup on predominantly to stop people asking if I’m Ok all day, but I just smiled and wondered what she had actually studied during her 5 yr psychotherapy training!
Yay for dogs ... they don't care much what you are up to unless it's moves toward the kitchen or their leese 😊 🐶💗💗💗
#2 is SO IMPORTANT! Thank you for the great points, Jessica. 🥰
I come back to this video a lot when feeling my worst, thank you for these makes me feel less alone 🩷
You have explained chronic illness perfectly!
I have never commented on a UA-cam video before but just stumbled upon your channel recently and have been just blown away by your awesome attitude and charm. It is rare to come across individuals who are so well composed, well spoken and fun to watch. Great videos with some needed insight into life from a different perspective. Thanks for creating such fantastic content. 😀. Ps that makeup is so on point!
I am so glad I came across your channel last week. Your videos are amazing and I so often find myself going “yep, me too”. I have Rheumatoid Arthritis, Ehlers-Danlos hypermobile type, gastroparesis (and so many other GI issues that my gastrointestinal doctor doesn’t think we will ever figure out what is exactly wrong) and now there is suspicion of MCTD (my grandmother had this disease as well). As many other chronically ill people my road has been hard and devastating at times. I just appreciate seeing videos of someone who lives my life. You and your wife Claudia and your pups are a truly beautiful family. Thank you so much for your videos. Watching them the past week has helped me pull myself out of low point.
I just purchased a robot vacuum cleaner and felt so guilty when ppl asked me why -from the outside:maybe not such a good decision in the midst of a financial crisis. BUT for me I decided it was worthwhile because doing the vacuuming is SUCH a waste of spoons! I don't want to give up living in a nice house-just because I can't lift the vacuum every week. I get lots of ppl can't afford that type of help(I couldn't either if I hadn't of saved up and found a really good discount on an older model), but sometimes doing the best for you doesn't look like doing the best for another person. 🤷♀️
Heart and dreams buried beneath rubbishes of life and illness but still yelling to shine; I think it’s both sad and beautiful. I think it show me a person could always be more than what I see and assume; I think this video tries to bridge the narrative and feeling that connect audiences to their voice and humanity across ignorance and stereotypes.
I just found you and I love you! I suffer from a few chronic illnesses. I can have really good days where I am not tired or just beat down. Then other days I sleep all day because I am just that exhausted. I was happy to see you do the spoon analogy too! Keep up your great work :)
Explained perfectly, I put out washing powder, fabric softener everything I need to wash my clothes in the kitchen down stairs the night before. day 2 bring the clothes downstairs to fill washing machine and have enough energy to get back up the stairs. Day 3 hang out the washing. Pray it doesn't rain collect fold . day 4 bring upstairs and pack away.
You should look up a video called "catching Kayla". It's a beautiful story about a girl who runs but has MS, and as a result she can't feel her legs the longer the race goes on. Therefore when she finishes the race, her coach has to catch her. I think you'd love it!
Do not listen to them Jessica. I only know you from your videos, but you seem like an absolute sweet person and I feel you. I have to explain to people about why I have low energy a lot of times.
One of the things I've found to be most helpful both in energy levels and my disability symptoms is avoiding showers as much as possible. Baths for the win.
Using the hair dryer can be exhausting. I discovered Revlon all in one dryer/styler, but I still put off the whole hair thing because it whips my butt.
@@lauriepowell3959 Absolutely, which is why I also avoid that - when I take my baths in the late afternoon, I wrap it in 8-12 rags for curls like Jessica - if I do it while it's super wet, use setting lotion, and be sure to wrap my ends well, in 10 minutes of work and about 16 hours of waiting I have perfect hair for 4 days. If you don't have much upper body strength the brush out is hell, but I do only 6 sections then, to make it easier and slightly more casual.
I have Lupus, and a host of other coinciding medical issues. I have chronic fatigue syndrome on top of everything else, so I have to be very careful with how I spend what little energy I do have. Thank you for speaking out about this, Blessings Be.
Thank you again for educating all of us. Of course everyone has to do what makes them feel best! I only ask why someone wastes their energy on something if it is clearly visible and if they tell me that it doesn't make them happy. Because in that case I am concerned for them. Otherwise, if you want to use your energy on doing a five minute yoga practice with your dog on your living-room floor, do it. Do whatever makes you most happy
This video is so great and so important! Also, I’m beyond thrilled to find another disabled, vintage loving lesbian! ❤️
I’m sending this video to myself. About my own disability. I’m kind of an a-hole to myself sometimes.
Edit: the temptation to send this to my professors is extremely strong as well lmao.
I find there are 2 types of "don't waste your energy on that". One is that judging type describe on the video. The other type is the caring type that is continued with "I can take care of that". Like, picking up your clothes after you when you're really tired and it really makes a difference if you can just drop your clothes and fall into bed.
Hello Jessica! This is the best video you have ever made. I almost can't speak well enough to get the speech to text work because I think I'm going to start bawling my eyes out. Love you
Yaaaaaaaaas!! 👏👏👏👏👏 my family constantly tell me this so much and it’s so annoying! I hate getting asked why do you bother making your own cleaning products when you can buy it? Why do you bother trying to do yoga? I have saved this video and now when I get asked I shall just whip out you tube and make them use their own time and energy watching this video! Xx
I find showering and shampooing my hair to be exhausting. I have to save it for a really good day. Even brushing my hair is difficult some days, so I just shove the tangles into a ponytail. Don't even get me started on the week's worth of dishes that have piled up.
As a narcoleptic, I enjoyed this video.
also if you have difficulties with your body, you can't really afford to also get problems (or more) mentally. So do what you think works best for you ♥️
This makes me feel so much better about everything. Able bodied ppl just wont understand how much it takes just to do one chore
I am a scout and it is a big part of me. So I go on camps four times a year. I'm usually knocked out for days afterwards, but it is worth it in the end!!!
I have had Chronic Fatigue for a long long time. The spoon theory made me really happy, because I can now easily explain why my time management is the way it is.
I've a spondylarthritis and I fall in love with your youtube channel by a total hasard! (just googling for some real good pin-up tutorial, haha...) But I'm so glad I've found your channel because when in need to feel good, I watch a video of yours
Jessica love this! Sums up a lot for me, as now got physical side of difficulties now. So well my brain is going let's do all this..... my body is no not happening. Found you on your video with Chloe-dissociadid. You both have helped me with lots of ideas and tips. Big thanks there! Wish my energy would let me be able to look that glam...but nope the simple stuff comes first. Got some awesome support ladies that are a huge help now. And even got them and their boss asking who you and Chloe are so they can learn more too. Always have a watch when it's lie down and rest time(more often than I like to be) usually with my little cat who listens in, as he always joins me in resting. Wonder if Tilly and Walter are the same. And like them shoes mean he going in his garden for a walk too, not good when he isn't. He has got a little fan club going with the support ladies, CPN etc. Can see your two being the same. Keep up the great videos. Thanks
I too have major issues about wanting my life and home to be perfect but just don't have the energy to keep that up. I have a cleaner once a week as well as a companion that takes me out in the community, just so I don't waste my energy on things that I can't do myself. I like wasting my little bonus energy on exactly the same things you do, I too live the 1950's look and I love what that does for my mental wellbeing.
I will be sharing this video on my Facebook page as well in a few support groups. I absolutely love how you explained the life with limited energy and abilities, thank you so much for putting yourself out there and sharing what many spoonies go through.
I just love your videos, and can't wait to see your travel videos. Travelling is my life's passion and still do as much as possible, it is just about knowing your limitations and adjusting your plans accordingly. I travel home to Sweden to see my family every year, as I now live in Australia how ever I now only go every second year as the airplane trips take to much out of me. Our last big trip was living in Thailand for 6 months as well as a trip to KL and a month travelling around Nepal for a month. I'm so looking forward to my next trip home to Sweden in June my hubby will come with me for the first time in 4 years, we will be doing a side trip to Brighton to celebrate us meeting there 20 years ago.
I dont have as little energy but i have chronic illness and get tired more easily i understand the perfect wants
I fucking love you!
This video made me cry first and then feel so empowered. Thank you thank you thank you thank you.
I love how positive and funny you are... civility and humor are the 1st things I seem to jettison when I'm having a bad day (symptom-wise). Secret?
You are the most amazing person ever!!!! Your description of how much energy it takes to shower is spot on!!! I’ve actually had to take a nap after a shower it was so draining.💖💖
Your videos are so great!!! Keep up the great work, I love how authentic you are in your videos! It makes your videos crazy interesting. I found your videos out of nowhere and I’ve been watching all night and clicked subscribe the first video I saw
This was a great reminder. Thank you!
Could not love this video more. Thank you, Jessica!
My gosh- I am word for word that person who Loves to run, and just Can't anymore. But, a couple days ago I finally talked my parents into getting me a wheelchair to try out, and hopefully not having to walk everywhere will mean that I get to run sometimes. Hopefully I can find the spoons for that 5 minutes.
(I absolutely love your videos and have spent all day just going through them. You're a fantastic person, and so well spoken and eloquent about your disabilities. And also Beautiful as well! You have a Gorgeous style!)
The bathroom...I'm having mine torn out at the moment and redone to accommodate my needs (walk-in shower, no tripping hazards, paddle handles on faucets, etc.) But in the meantime, I have to go to the second floor to use the upstairs bathroom. While I knew I'd be sans toilet and all for the duration, somehow that trek in the middle of the night has become like climbing Mount Everest. Plus I tend to forget there is no downstairs facilities, and have caught myself more than once on the way to the demolished bathroom, only to have to turn around and find the other.
Some people have asked me why I walk to my sister's house instead of taking the bus. I *need* to be outside. I always was an outdoorsy type, and having fibromyalgia and psoriatic arthritis doesn't change that. I get excited at seeing a Cardinal fly past, or seeing a hare dart across the road to stop at my feet and take a rest. (Yes, that happened. It was awesome to think that this little creature somehow knew it was safe there) So, while I don't climb trees any more, I still need to be around them. I need to walk through the wild part of the park to get to my sister's house. Not that it's anyone's business. Of course, when I get there, I'm knackered. Fix me a cuppa, please, Di, I'm too beat to get one for myself. And some biscuits, please?
You are an inspiration! Sometimes people just need to be grateful for what they have and focus on the positive. I really like your optimistic and positive attitude in life. It really brings me up on a rough day. Thank you for sharing your content! 😊
Thank you. Thank you. Thank you. Now I know what to answer.
Haha wish I could be sass and send this to sooo many people!!! Speak it!
This is wonderful to go back and watch these, I really needed to see this today. Thank you Jessica 🙂
I love this - this is so accurate and I am so thankful someone is talking about it.
I love this so much. you explain things in such a nice way, whilst making it clear how seriously you mean what you say. I really hope your trip to Malaysia is amazing!
I love this video so much. Thank you for articulating so many things that I feel.
I love your videos! Thank you for bringing more awareness to disabilities. Your in-depth discussions in your videos really help me and you describe everything so well I have to share to my friends.
I so so appreciate this video.
I found you're channel today and started binging your videos. And ive learned a lot. And im am loving how cherry and positive you are, it just brightens my day.
So much all if this!! Thank you for making this video
What a wonderful video! And so spot on.
That necklace is so amazing. Ahh I love how you coordinate things.
SO beautiful! i loved every word. you make the world such a magical place with the amount of energy you spend. I truly can't thank you enough for spreading this message out to people. I now have a video people can reference.
I love this video 💕💕 thank you for educating people (f.ex. me) about this important topic ❤️