POTS explained - ua-cam.com/video/1etxgERhkDg/v-deo.html #LovelyPeopleMerch - bit.ly/LovelyPeopleMerch How to JOIN the Kellgren-Fozard Club and SPONSOR this channel - ua-cam.com/users/JessicaKellgrenFozardjoin
abby ehrenstein oh my god same !!!!! And also that I need to calm down. I had a treatment and it had been stopped. The product isn’t produced anymore. But because I am not diagnosed with a precise condition I cannot have any of the other medications because « it’s for people with a condition and you don’t have one » excuse me sir but that you just don’t know what’s happening to my body and I have nothing isn’t the same thing !!!!
YES! Along with this my doctor told me to stop drinking coffee/espresso. The thing is I had not had a drop of caffeine in months when he said it. I explained it to him and he just said to keep not drinking it, ignoring the fact that this means that I was having symptoms without it.
Interesting-my roommate has POTs, and one of her major symptoms is that her body can’t control its temperature, so she’s constantly getting really hot and then getting really cold again
Ehlers-danlos Syndrome here, developed POTS after a surgery, I need to send articles to my cardiologist, she tried to convince me it was anxiety, but I'm a psychologist, and explained her my methodology to confirm that it was not. Also, Fitbit helped a lot!
When I was waiting to get approved for disability, I went to Social Services to see what I could qualify for as I was living with my parents, and they weren't made of gold. All they could offer me was food stamps, but once my Social Security kicked in, I got Medicaid retroactively for a short time. Also, if you have low income, you might also qualify for Medicaid. Good Luck with getting help!
@@kadeline1 it doesn't take much to be above the line of qualifications. I feel like they're too too low here, even I didn't qualify I would have no hope of affording private healthcare. I hope so much you are able to get diagnosed soon, it must be maddening to feel like you have "something" but not knowing what.
@@EEsmalls I'm sorry you can't get help. As for me, I AM diagnosed, and as time goes on, I've acquired quite a collection of diagnosis. Nevertheless, thanks to Social Security work incentives and a great doctor, I am working a little. Most communities have a clinic in association with their major private social services, and may have a free pharmacy connected with it. Sometimes the income guidelines are less stringent. If you need monthly food comodities, you might find them there too. I hope I've given you something to work with; take care.
I got diagnosed with multiple sclerosis yet I can't afford the $100,000 a year that it takes to afford caring for myself with that disease. I'm living with my parents now again and my dad makes too much for me to get assistance but not enough to actually afford that ridiculous amount of medical costs for one of the three people he supports. It's just insane how my country thinks my life is worth nothing now yet I mentally have so much more to give as I'm making videos on my UA-cam channel if you want to check out videos about coping with life and the truth of the difficulties I faced. I'm so done with the fake stuff and I love people just being real and I'm part of that now. I hope you have a beautiful day and I hope that we can make some changes in the next decade or so or we really are going to risk going extinct. These billionaires are literally killing us because they think they're more entitled to all of the money in our currency then the rest of us and it's very sick. There needs to be above others is only a mental weakness as far as I can see. Putting greed above life is just stupid. Life should always be the most sacred things in life the way I see the world.
People get really confused when they find out I'm on birth control, because I'm married to a female, but not having a menstrual cycle has been so amazingly helpfully for more than one of my conditions.
I’ve always assumed I was just an able-bodied wimp who couldn’t stand for long periods of time, especially in warm weather. I just called the vision issues “spots in front of my eyes”. The racing heart and nausea I assumed was hypoglycemia, etc. Finally since discovering your channel many of these unusual symptoms and a lifetime of avoiding any activity involving sitting or standing in warm weather have a probable explanation. Thank you so much for offering some insights into my 65+ year life - you are a joy and a treasure! p.s. - will i get tested? Dear me, no - i already know they would bring on a very uncomfortable episode!
I can relate so much to the 'wimp who can't stand very long' idea... I thought that for the longest time, until my cousin said that she only wanted to speak to me when I was lying down, or else I would not be clear headed and would be huffing and puffing too much. Then it clicked. We're not wimps, we're POTS warriors!
You know, POTs was one of the first symptoms of my EDS that I dealt with, but it actually never occured to me to lie on the floor! Thanks for talking about this and spreading awareness, Jessica!
same :) once i finally was diagnosed with pots after many years of blacking out and ending up on the floor it got the ball rolling and ive finally been diagnosed with eds and mcas
I have All PoTS symptoms but bc of diagnosed brain tumor (two actually). Surgery on number one on April 30, 2019. Send positive vibes. Bravo on how clear you are on topic and what a great advocate for your own and others health. 🌿
A couple of weeks ago, I was talking to my brother, and i stood up, went dizzy, and immediately ended up on the floor (which does happen a fair bit, lmao) and he just stood there for a minute, until I said 'Don't worry, we're Gucci.' and he replies with 'No, you're Tesco Value' which is still the funniest thing anyone has ever said to me. (I feel like I should mention, I've not being diagnosed with anything, waiting on more blood tests lmao)
Ditto, I didn't faint until I was in med school. Then I was forced to stand for long periods and it started. I'd adapted and would normally just naturally sit or lean of I couldn't sit.
I've been told for years that these are just symptoms of my Post Traumatic Stress Disorder... but thanks to this video (which I showed to my doctor, as well as bringing along the list of symptoms) I'm finally being tested for POTS and HOPEFULLY will be able to figure out a way to deal with these symptoms, as they've been wrecking havoc on my life for the last four years. Thankyou so much, Jessica, for finally making people listen when we say SOMETHING IS WRONG!
This is great! Keeping a link to this handy so I can stop explaining POTS every 5 minutes. Also a fun symptom not mentioned: temperature dysregulation. I get intense hot flashes (often in the evening or when lying done) where my extremities feel like they’re on fire and painful tingling shivers when I’m cold (or tired or standing too long). This all goes with the circulatory / ANS mess.
I have all of the symptoms, yaaaayyyyy! I've actually been considering making videos to talk about my experience with POTS, the utter hell it was to get it diagnosed, realising that I had actually been struggling with this all my life and had been misdiagnosed (or rather, ignored and brushed off) since childhood, etc. But then I get annoyed with myself just even thinking about it because I already feel sick every day, I don't want to think and talk about it even more... and then I think about how much videos like Jessica's have helped me and that maybe I could help someone else... and then get annoyed with myself again and the endless cycle continues lol
I receive my "Some Such Tosh" mug, very quickly, as a matter of fact. It's lovely and I'm thinking of taking it to the next meeting at work and showing it off (whenever appropriate to what someone has to say).
Unrelated to my previous comment, after watching the whole video, I have already several doctor appointments coming up in relation to blood and digestive issues and basically 90% of the issues discussed here seem to apply to me so suddenly this might be a whole lot more useful to me personally. Joy!...
me too! haven't been diagnosed because "you're just tall" "eat more salt" "stand up slower" "you can't have an MRI because theres no reason" though I have all the symptoms and get intense shooting pains in the center of my brain that leave me exhausted and crying.. doctors🙄
fellow potsie here, bless you for this video! I had pots symptoms since I was 10/11 and didn’t get diagnosed until I was 17/18, and my symptoms were constantly explained away by doctors as other things until I had about 10 different tests done. I SORELY needed a video like this back then! In terms of symptoms I get: Mild to extreme dizziness/light headedness as upon sitting up/standing up from sitting/lying down; EXTREME palpitations to the point that the sensation makes me nauseous/is painful; Migraines; Tiredness/Weakness (usually severely for periods of weeks at a time, then periods without, but also more minor daily effects); Shakiness; Shortness of breath; DIGESTIVE PROBLEMS (near constant nausea, stomach ache, etc); Tunnel vision/total vision loss; Poor temperature regulation; However I don’t get blackouts or brain fog! Before I was diagnosed, doctors told me my symptoms were IBS/Chronic Fatigue/Symptoms of my anxiety/depression (which I do actually have), so this made it very difficult to get diagnosed - I had every single one of the tests Jessica mentioned at least once before they finally confirmed it, especially as a lot of doctors who aren’t specialists seem to not know a lot about it. So if you think you may have pots, I would ask about if specifically with your doctors as my diagnosis really changed my life for the better as now I finally know how to manage my symptoms :)
Notification squad 🙌🏻 My symptoms include lightheadedness, extremely fast and hard heartbeat, vertigo/dizziness, shortness of breath with a sometimes tight chest, near fainting, orthostatic headache (in addition to migraine), exhaustion, brain fog, shakiness, digestive problems, and my vision blacking out, all of these when I sit or stand up. I’m also sensitive to caffeine, dehydration, heat, and overexertion. Your videos contributed to my success in getting diagnosed with POTS. My possible triggers are genetics (my aunt has it, and we have a connective tissue issue, plus anxiety), but also my two rounds of mononucleosis, and a concussion. Thank you for your lovely video! PS: the Sims jokes, I can’t 😂 and the big pot hahah I love it
Oh! I attributed my caffeine sensitivity to my lyme, but it might be POTS related, instead. Interesting! Thanks for sharing. Instead of drinking coffee, I eat a bit of high quality pure chocolate, which has the same effect on me as a cup of coffee would have on others. I don't need to feel sorry for myself hahaha
AnneloesF glad to help! Unfortunately, I have to drink one cup of coffee per day for migraines, sometimes more), but when I do I know to take it easy and be careful because my heart will go nuts and my POTS will flare a bit. Chocolate is great for a pick me up but it affects me the same too!
@@clairespahn6639 Oh no, both those things are annoying! Sorry to hear...pff. My POTS comes and goes a little, and I was always wondering why chocolate sometimes helps to keep me awake at work, and sometimes not. I will now see if it is related to my POTS being a bit better sometimes. I may have to take a few sips of coffee on the days on which staying upright is not a chore. (If that makes any sense.) Thanks again for helping me understand myself better! Very helpful to read everyone's comments here. All the best with managing your symptoms as well as possible!
When I first started watching your videos I was very lost regarding my body, as I was very slowly coming to terms with my declining health. Thanks to your videos I managed to learn more and more about having a chronic illness as my chronic fatigue syndrome started to rear its ugly head. You have been such a help to me and still continue to be such a positive role model in all aspects, particularly accepting my disabled body! Not to mention how I feel comfortable laughing along with your jokes about pots and chronic illness lol! Never stop being amazing, lost of love 💕
If it is, I highly recommend Vitassium Salt Sticks as a sodium/potassium supplement! You get them on Amazon, it's the one with the blue bottle cap. They help to raise your BP, which can help slow your heart rate down a little and give you a break. (Only take them though if you have no other issues with salt intake, and your doctor says it's alright!)
Basically every symptom listed here, I have. I also have most of the symptoms for fybromyalgia. Struggle is, all these symptoms overlap with a fun condition of mine- oh yes, it's anorexia nervosa, everyone's favourite. For the umpteenth time, I'm starting recovery and none of the symptoms have gone away yet. I think I will wait a few months, try not to relapse, and if the symptoms persist, consult my doctor. Also, excellent title. Never related more. I'm on the floor a lot. Like a lot. I may or may not be on the floor right now. ... I am.
Though I know that my mother gets extreme palpitations. She asked her doctor about it and they basically just told her that oh, we don't really know but don't worry about it, I guess, might be normal!
Anorexic POTSie here too. I’m recovered but when I was I’ll nobody believed I had POTS and even went as far as saying it would go away with weight gain. I faint just as much when I was 40 lbs lighter lol. But at least I bruise less when I hit the floor 😅
An Acquired Taste I think you should go to the doctor and get blood work done. Even if you don’t have anything it could really help with getting healthy
@@Stuartette I did, I'm lowkey everything-deficient. Especially iron and B12, also my blood sugar is "alarmingly low." I'm on a whole pile of supplements.
I had a tilt table test which showed that I had an episode of low blood pressure. The neurologist that organised it sent me back to my GP to test for Addison’s disease, when that came back negative, he just said to try wearing compression stockings and tilting my bed...I asked him what it could be then if not addisons, and he said ‘sometimes girls your age just have low blood pressure, you’ll grow out of it’..honestly at this point if I don’t laugh I’ll cry! Thanks for making me feel less alone Jessica, it’s not easy being ill for 3 years with doctors not caring ❤️
Just so you know, I’ve been through the EXACT SAME THING with so many doctors, and it sucks, but you’re not alone. Your problems are absolutely 100% real no matter how doctors treat you.
Kathryn Barnhart I just turned 30 last week, so the whole blaming it on your age thing doesn’t change as you get older either! I’ve had the whole anxiety thing too, I swear they just don’t care ☹️
So...I watched this video just because I love Jessica and watch all of her videos, but it made me realize I might have POTS. It’s hard to tell for sure because I also have anxiety issues, but I’ve always felt lightheaded after standing and have trouble standing for long periods of time. I’m going to have to research this now, thank you! This video was incredibly helpful.
Oh my dear, I hope you feel better soon! Thank you for always sharing your experiences, and showing us these glimpses of your life. Sometimes it's hard to see your disabilities, and for those of us who are fully-abled, it helps us understand to see these moments of your life.
Oh Em Gee, I am so happy that I found this video and your channel! I can’t believe I finally found a little community of people with the same issues I have and who enjoy/feel better spending as much time on the floor, LOL. You all get me ❤️🤗
Thank you for making videos like this, there are so few easy to digest non medical jargen information sources out there on rarer disabilities and I know this will surely help alot of people. Xx
I shared this on all my social media as I have pretty much the same form of pots as you! This has helped me find a way to explain what I’m feeling and what causes mine!!
Also thank you so much Jessica! Watching your original video on POTS helped me figure out something was wrong and eventually receive treatment/ diagnosis by being my own physical health advocate.
OMG this is what my former girlfriend was finally diagnosed with, after years of me worrying about her ! She had been dealing with such a strange variety of symptoms and it was such a mystery for years. We would travel and (trying to) work out together but I'd constantly have to stop and help her just keep from falling over. :( Never blamed her or anything impatient like that, of course. I believed her that it was more than just feeling tired or hungry... but it was so mysterious. I'm glad she finally went to an ACTUAL doctor to get diagnosed and she says she's taking care of it better these days. BTW, one strange symptom that she had (which I'm assuming was related to her POTS) was compulsive BURPING. Yes, she'd have painful burping spells, the way most people would have the hiccups. She'd pass it off as being funny when we started dating... lol but then it got a bit concerning........ and she'd be embarrassed in restaurants.
I just found your channel a few days ago. You've literally taught me more about POTS then the doctor has. I just got diagnosed about 2 months ago and still trying to figure out what to do to make my symptoms better.
Ehrlos Danlos member here with scoliosis, keiloid scarring and epilepsy 👍 thank you for your videos Jessica they really help as I don't know anyone as unique as us. Used to get POTs symptoms sometimes when standing up too quickly but hasn't happened for a while. Many hospital stays were full of nearly passing out with the seeing stars vision thing.
The description of the shakiness as an analogy to hangover throwing up was incredibly descriptive 😳 made me chuckle with a knowing smile - dearly me bless all those who have POTS
As someone with pots, my most noticeable symptoms are dizziness and blackouts, real bad brain fog (especially when taking an important test because of course), v bad heat intolerance/I can barely go outside in the summer, migraines, and anxiety. I also drink an ungodly amount of water. But I don't actually faint very often or have digestive issues. So it's true, pots is very different for everybody. Loved the video, Jessica!
I was just diagnosed with POTS last week. Thank you for posting your videos and sharing your experiences. I don’t know of anyone with POTS in real life so it’s great seeing someone I can relate with. I love all your videos Jessica. Keep on doing what you’re doing! 💜💜
I've been experiencing many of these symptoms for years but never knew this condition existed! I'll bring it up at my next doctors appointment. Thank you so much Jessica!
your earlier video is what helped me realize i have it!! mine developed suddenly and we think it might be related to my chronic pain (yay! no going away!) my current symptoms: -actually fainting when standing too long -feeling super lightheaded when i sit up for too long -migraines ! -ironically,, i have high blood pressure which my cardiologist thinks is a symptom because when i go off my hbp medication, my pots gets worse -BRAIN FOG ! -nausea oh my god -getting hot makes me lightheaded fun fact when getting tested for pots: my cardiologist had me do a standing test and after just 4 minutes and 19 seconds, my heart rate was almost 150! safe to say that he was pretty confident in my diagnosis. i now use a wheelchair for most activities just to show you how much it effects me personally.
Love your videos so much! ❤️ I’d love to see one similar to this about Chronic Fatigue Syndrome-I’ve always wondered how you got diagnosed and if any treatments help at all! Much love to you, Claud and the pups! ☺️❤️
@@HippieNikkiTheTopeteTribe For me the most notable symptom was dizziness upon standing. I have a couple other chronic conditions that have a lot of similar symptoms. It was getting to the point where I would almost pass out almost every time I stood up. I went to my Primary doc, and we ruled out any sort of imbalances and medication interactions. Once that was all fine and good, I went to a cardiologist. We did a scan of my heart to check for abnormalities, then a tilt table test (TTT). We also did a 2 week test with a heart monitor. Between the two I was diagnosed. I know this is a lot to read, but if you have any concerns about your health, track them and bring it into your primary. I'm really lucky that medication helps me to the point where I'm symptomatic maybe 20% of the time, instead of 80-90% like I was before diagnosis.
Once again, thank you Jessica, for sharing this with us. I was diagnosed with hypothyroidism/hashimoto syndrome when I was a child and have always associated my fainting, blackouts, perpetual tachycardia, fatigue no matter how much I sleep, etc, to this and also my atypical asthma. I fainted multiple times through life, had to take anti seizure medicine for chronic migraines during my teens and am always shaking. P.E. during my school years was a torture. As was my teenage years with people thinking I was just lazy for sleeping whenever I had nothing else to do. I have been on treatment for severe depression with a psychiatric and therapist for 4 years now, but I am feeling much better and all the symptoms you mentioned remain. So maybe I should do as you suggested and take an article describing POCS on my next appointment with my endocrinologist as well. Thank you and hope today is/was kind to you. xxx
I really needed this. I don’t have POTS but I’m having an insanely bad flare up right now and watching these videos always makes me feel less alone. I’m currently going through the motions of getting a second opinion on my fibromyalgia after about three years of diagnosis and wow is it tiring. But I’m great full that I am able to see the medics professionals necessary to do this
thank you for the best explanation of POTS I have ever heard, I was diagnosed with POTS and Ehlers-Danlos Syndrome (hypermobility joint syndrome) last fall and my tachycardia was so bad I had a cardiac ablation which is basically one of the lowest risk and least invasive of heart surgeries. my doctor originally said it would only take about an hour and it ended up taking 5 hours because there were 70+ arrhythmias in every four chambers of my heart and each one had to be individually cauterized. Explaining my condition to able body people is one of the hardest things about it besides ya know randomly passing out or dislocating my knees. It took 18 years to get a diagnosis because it's just not well known and since EDS and POTS cause so many different problems we were treating each one as its own thing. Thank you for spreading awareness and creating a sense of community for people with POTS it's way more common than most people think and the more education about it the better!
I like how you explain stuff that at first seems complicated. Really helps me understand the whole situation better 😊 Also,guess who fell of the stairs for the second time in a week? Yep its me (thanks to chronic migraine and (presumably) POTS) I will show your video's to some of my friends, since it is hard for them to understand the whole situation. Please keep making educational video's, i love them 😊
My honest to God first reaction. Signs you have pots, you open your cabinets, and there they are! LOL. Seriously though, life with chronic illness is poop when doctors are just like Yay drink water!
hey Jessica! I found your channel about 6 years ago during a time I was facing a whole grocery list of symptoms and no way to make sense of them. I'm so happy to report that all these years later, I've finally gotten an actual POTS diagnosis! I wanted to thank you so much for these videos and speaking about your experience. You were a major player in me finding out what I have and finally being able to get proper care.
I really enjoy your positive content. I've been going through some things and your channels have really helped. Finding your channel is a great way for me to learn and to keep smiling. Keep up the great work.
Thank you. Your video made me remember recently my teenage cousin was diagnosed with pots, and that i had the same symptoms. since the age of 14 after a brain injury and very quickly contracting viral meningitis, I’ve had these problems and I’ve looked on nhs website and decided to ask my mum to print out the page so I can take it with me to the walk-in clinic. 😊
This is brilliant! I was misdiagnosed and/or looked at like I was crazy by more doctors than I can count over almost 20 years before proper diagnosis. I was always asked which symptom was worse when I would tell them that the symptoms all happened together. An episode would always start by having a vague feeling of apathy and fatigue and feeling like my heart was rapidly beating in my stomach, then migraine-like pain from my eyes/head down my entire body, terrible nausea that would lead to endless vomiting, tunnel vision and hearing, labored breathing etc… I found out about POTS and disautonomia by watching a Discovery Heath show ‘Mystery Diognosis’. I was lying prone at the time, so very unwell, but inthralled that someone was finally describing all of my symptoms together and there was a reason for this. Hopefully your video will help someone in the same way. My cardiologist has said my POTS in chronic since it started in my 20s but manageable, thought to be brought on from the Epstein Barr virus damaging my heart. With an enormous amount of fluid and salt, as well as not getting over heated or avoiding environmental fragrances and pollutants (from perfume to cigarette smote to car exhaust) and staying active enough, I can manage to not feel like I’m going to “lose my legs” and spiral into all other symptoms.
I'm currently devoting parts of each session with my psychologist to us trying to decide if my symptoms are POTS or anxiety! She's got a lot of spoonie patients so she's super understanding, even if we haven't been able to figure things out, it's better than the frustration of seeing doctors as a mentally ill person who is also regular ill.
Thank you for doing this video. I have a condition called Complex Regional Pain Syndrome as well as Amplified Musculoskeletal Pain, as well as other health issues which don't have an official diagnosis yet *yay* and after watching this it's given me a lot to think about. I'm currently recovering from anaemia and surgery so I can't fully pinpoint what is causing some of my symptoms but after watching this I'm gonna keep POTS in the back of my mind as I had a few of these symptoms before my anaemia. Thanks for this lovely video, and for also persisting on despite not being great that day xx
Hello all! I have dysautonomia but not specifically POTS. Mine is secondary to a genetic metabolic condition I have. I have both passed and failed a tilt table test in the same day bc my issues are primarily surrounding my blood sugar and hydration. When my blood sugar drops suddenly... the POTS-like symptoms return. So it’s imperative I eat at very specific times and drink plenty of water. Doing so will never cure me but has helped me live a better quality of life. Everyone with dysautonomia is different so I hope this may be helpful to someone out there :) Also.... side note.... my heat intolerance issues in which my heart rate would pass 200 beats per minute was just diagnosed as Mast Cell Activation Syndrome. A separate issue from my dysautonomia related just to heat intolerance. I’m so glad Jessica makes these videos, it’s great to see I’m not alone!
You are so stunning and I think it’s admirable that you do videos from the floor when you’re not able to get up. I also love how informative your videos are and I think us able-bodied people benefit from watching these as well. I’m currently down with a bad cold and watching your videos always lifts my mood up, lots of love from my floor 💕
Bitesize Berty i’m part of the kellgren-fozard club 😌 one of the perks is these cute emojis next to your name, it also changes the longer you’ve been a member
The day you release this video, I have a heart monitor stuck on my chest for the next week as part of testing me for POTS so I feel like this video is a sign
I learned about POTS from you and Stevie and realized that I think I've been having symptoms for years. I finally talked to my doctor about it and have an appointment with a specialist. I'm cautiously optimistic about finally getting some help!
Oh my God I knew! I have the pots. I will check to get diagnosed first if any of my doctors know about it. Before I researched any of the symptoms I was dealing with, I often asked my mother if this was normal. She often replied anxiety but it didn't make sense to me. As well as the fact I have little to nothing of anxiety myself. Once I researched and found what could be the answer (pots) I just need it had to be it but I wasn't sure because I didn't have all the symptoms that I could be dealing with. Thank you for this video!
Jessica you are so awesome. I'm having the worst Fibromyalgia flare of the past 2 years and needed some Jessica in my life! I've often wondered about POTS as well. As I pass out a lot. We've been wondering about blood sugar too.
I accidentally clicked this video, and I am grateful cuz it really helped me out. I've been wondering for years what is wrong with me, I do have HASHIMOTO'S, which makes me tired but this makes so much more sense with the tiredness I feel. Like I feel like my blood is suffocating. I'm going to talk to my doc about it tomorrow. Thank you.
I swear you born to be a doctor. That was a better, more concise and holistic explanation of a medical illness than I have heard from Real professionals. I always marvel at how your experiences with the healthcare system have endowed you with such insight and compassion into health. Wonderful video as always
This has honestly explained so much for me. I always thought I was just really out of shape and super sensitive to heat. I get light headed and get the dark veil almost every time I stand up, I get shakey, I get light headed and nauseous for no reason, especially when standing too long, ESPECIALLY when it's warm out, and my heartbeat will decide to just go on a marathon sometimes. I've been spending a long time thinking this was all panic attacks and anxiety, but these things happen to me no matter what the situation is, and then I panic because I think I'm dying. I'm going to talk to my doctor about this after I spend some time documenting each time I experience a symptom.
This came out the day I had my testing. Thank you for raising awareness about POTS, I can’t tell you how many doctors told me to just get up slower or drink more water and told me seeing black or passing out was normal. It wasn’t until I watched one of your videos that I thought oh maybe that’s what I have. So I asked my doctors about it, was tested, and boom. I was right. Now just to find a specialist which is a bit difficult in the Midwest...
this video has inspired me to go to the doctor for my constant joint pain. i’m 15 and it feels like i have the joints of a grandma which is prooobably not normal lol. thank you!
I don't have any physical disabilities (unless you count eczema?) but these videos are super interesting! They've let me look at things from a different point of view and helped me see that not all physical disabilities can be seen.
I have POTS. I relate to the symptoms you talked about in your video. I feel like no one in my school really knows about it so it feels nice to hear someone has similar struggles and experiences.
I have most of the symptoms you mentioned. The fainting is not as bad since I've gone off to college, but now the gastrointestinal issues are horrific. It's a relief to know that I may have a name for my struggles.
Holy shit... You just answered some unexplained things that happen to me. I looked up the symptoms, and I've known to have unexplained tachycardia (they can't find the cause) since I was a teen. This explains so much.
This has come at exactly the right time. I passed out at silly o'clock this morning and bounced my face off the kitchen counter, and am now having trouble explaining to my pals what happened and why I'm not freaking out about it! Thankyou!
My best friend (who I live with) will usually say things like "don't worry, she just does this" or "she's all right. She'll come round in a minute." And on one memorable occasion "I suppose I have to do all the laundry now." Lol. Understanding friends are the best.
@@SarahBent there's a note in the magnetic letters on my fridge at the bottom where I'm frequently found that says "oooooh I'm a ghost" 😂 my friends are the best
POTS explained - ua-cam.com/video/1etxgERhkDg/v-deo.html
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Do you find "the black curtain" is actually black for you or more like a static tv / more greyish?
Instablaster...
When every doctor says “just drink more water and eat more salt” and you want to scream at them
abby ehrenstein oh my god same !!!!! And also that I need to calm down. I had a treatment and it had been stopped. The product isn’t produced anymore. But because I am not diagnosed with a precise condition I cannot have any of the other medications because « it’s for people with a condition and you don’t have one » excuse me sir but that you just don’t know what’s happening to my body and I have nothing isn’t the same thing !!!!
It's the most frustrating thing
omg wait that's what mine said.. do I have POTS? I commented my symptoms but I have all the same as Jessica..
YES! Along with this my doctor told me to stop drinking coffee/espresso. The thing is I had not had a drop of caffeine in months when he said it. I explained it to him and he just said to keep not drinking it, ignoring the fact that this means that I was having symptoms without it.
@@starkid981 what an idiot lmao
To possibly add to your POTs jokes: an alternative Dutch word for lesbian is actually a 'pot'!
Interesting-my roommate has POTs, and one of her major symptoms is that her body can’t control its temperature, so she’s constantly getting really hot and then getting really cold again
Can "You're doing great darling, don't worry" be the next merch quote? ❤
Charlotte Gray co-sign
Yes, please!!!
Oh, that would be so sweet and lovely.
Charlotte Gray that’s a lovely idea!
I need it on a T-shirt and/or a notebook
Having my tilt table test and fainting half way through it was such a relief because it meant the doctors finally actually believed me.
Ehlers-danlos Syndrome here, developed POTS after a surgery, I need to send articles to my cardiologist, she tried to convince me it was anxiety, but I'm a psychologist, and explained her my methodology to confirm that it was not.
Also, Fitbit helped a lot!
How can anyone look this good lying on the florr, sick? At that angle?!
That will always be a mystery to me.
especially the angle Jesus I look like a human blob fish at that angle
@@vaporwavedog I would have a triple chin at this angle lol
Because she is Jessica and can make anything and everything look gorgeous and stylish.
I live in the US, most of my symptoms are undiagnosed because... I'm not a millionaire.
When I was waiting to get approved for disability, I went to Social Services to see what I could qualify for as I was living with my parents, and they weren't made of gold. All they could offer me was food stamps, but once my Social Security kicked in, I got Medicaid retroactively for a short time. Also, if you have low income, you might also qualify for Medicaid. Good Luck with getting help!
@@kadeline1 it doesn't take much to be above the line of qualifications. I feel like they're too too low here, even I didn't qualify I would have no hope of affording private healthcare. I hope so much you are able to get diagnosed soon, it must be maddening to feel like you have "something" but not knowing what.
@@EEsmalls I'm sorry you can't get help. As for me, I AM diagnosed, and as time goes on, I've acquired quite a collection of diagnosis. Nevertheless, thanks to Social Security work incentives and a great doctor, I am working a little. Most communities have a clinic in association with their major private social services, and may have a free pharmacy connected with it. Sometimes the income guidelines are less stringent. If you need monthly food comodities, you might find them there too. I hope I've given you something to work with; take care.
That’s such a messed up system I’m so sorry
I got diagnosed with multiple sclerosis yet I can't afford the $100,000 a year that it takes to afford caring for myself with that disease. I'm living with my parents now again and my dad makes too much for me to get assistance but not enough to actually afford that ridiculous amount of medical costs for one of the three people he supports. It's just insane how my country thinks my life is worth nothing now yet I mentally have so much more to give as I'm making videos on my UA-cam channel if you want to check out videos about coping with life and the truth of the difficulties I faced. I'm so done with the fake stuff and I love people just being real and I'm part of that now. I hope you have a beautiful day and I hope that we can make some changes in the next decade or so or we really are going to risk going extinct. These billionaires are literally killing us because they think they're more entitled to all of the money in our currency then the rest of us and it's very sick. There needs to be above others is only a mental weakness as far as I can see. Putting greed above life is just stupid. Life should always be the most sacred things in life the way I see the world.
People get really confused when they find out I'm on birth control, because I'm married to a female, but not having a menstrual cycle has been so amazingly helpfully for more than one of my conditions.
omg yes.. i have a lot of kidney problems and since i got on birth control, my health has drastically gotten better.
I have never managed to make laying on the floor look as elegant as you do. 👍
I’ve always assumed I was just an able-bodied wimp who couldn’t stand for long periods of time, especially in warm weather. I just called the vision issues “spots in front of my eyes”. The racing heart and nausea I assumed was hypoglycemia, etc. Finally since discovering your channel many of these unusual symptoms and a lifetime of avoiding any activity involving sitting or standing in warm weather have a probable explanation. Thank you so much for offering some insights into my 65+ year life - you are a joy and a treasure!
p.s. - will i get tested? Dear me, no - i already know they would bring on a very uncomfortable episode!
I can relate so much to the 'wimp who can't stand very long' idea... I thought that for the longest time, until my cousin said that she only wanted to speak to me when I was lying down, or else I would not be clear headed and would be huffing and puffing too much. Then it clicked. We're not wimps, we're POTS warriors!
I definitely thought I had hypoglycemia at first, the shaky feeling, and nausea..
You know, POTs was one of the first symptoms of my EDS that I dealt with, but it actually never occured to me to lie on the floor! Thanks for talking about this and spreading awareness, Jessica!
Same!!!! Mine started with chronic fatigue syndrome developed with POTS and finally all the other issues being a zebra causes. 🙃
same :) once i finally was diagnosed with pots after many years of blacking out and ending up on the floor it got the ball rolling and ive finally been diagnosed with eds and mcas
I have All PoTS symptoms but bc of diagnosed brain tumor (two actually). Surgery on number one on April 30, 2019. Send positive vibes. Bravo on how clear you are on topic and what a great advocate for your own and others health. 🌿
Hope your surgeries go well.
Hey, good luck in your surgery! Update us afterwards please so we know you're ok!
Watery Star 💫 Thank you 🙏
Twitchyboi ✨Thanks.
Rebecca White Yup. Will do. Thanks for your concern🌿
I'm able-bodied but my best friend has POTS. I love learning about it so I can best help her. Thanks for your videos!!
Ha! I opened UA-cam whilst lying on the floor.... To find something to pass some time... On the floor! Just chronic illness things 😂
Fen Ratdad , same... sorta
Same xD
On my bed for POTS reasons, so...semi same!
On the bed today I’ve totally graduated! 🤣
Not gonna lie, I laughed out loud when you had the flower pot in your hand! Thank you for another fun and informative video! You’re the best!
PhoebeFay RuthLouise that was def a good comedic moment
A couple of weeks ago, I was talking to my brother, and i stood up, went dizzy, and immediately ended up on the floor (which does happen a fair bit, lmao) and he just stood there for a minute, until I said 'Don't worry, we're Gucci.' and he replies with 'No, you're Tesco Value' which is still the funniest thing anyone has ever said to me.
(I feel like I should mention, I've not being diagnosed with anything, waiting on more blood tests lmao)
Mae-Lea Simon-Horton I hope they’re able to help you what is going once you get the results of the blood tests. Good luck!
I have POTS but I don't faint. A lot of doctors inexperienced in POTS think you need to faint to have POTS. I also have Idiopathic Hypersomnia.
Ditto, I didn't faint until I was in med school. Then I was forced to stand for long periods and it started. I'd adapted and would normally just naturally sit or lean of I couldn't sit.
@@emilyb5557 i rarely faint, but if i stand to long i feel like im about to go-
So composed and elegant, even on the floor.
Jaz Helton agreed
I've been told for years that these are just symptoms of my Post Traumatic Stress Disorder... but thanks to this video (which I showed to my doctor, as well as bringing along the list of symptoms) I'm finally being tested for POTS and HOPEFULLY will be able to figure out a way to deal with these symptoms, as they've been wrecking havoc on my life for the last four years. Thankyou so much, Jessica, for finally making people listen when we say SOMETHING IS WRONG!
This is great! Keeping a link to this handy so I can stop explaining POTS every 5 minutes. Also a fun symptom not mentioned: temperature dysregulation. I get intense hot flashes (often in the evening or when lying done) where my extremities feel like they’re on fire and painful tingling shivers when I’m cold (or tired or standing too long). This all goes with the circulatory / ANS mess.
As I'm currently in hospital for what my doctors think is POTS, this video was perfect timing for me!
Same!
@@fe5018 yes! Love her. It was a great video to show my mother while we sat here w/ her freaking out about it all.
I hope you gonna be okay
Take care
Hope you find out and good timing for the video 😀
Educating, informing AND looking great - all with great smarts and humor...Awesome!
Diane Mc Gowan indeed!
Casual been laying on the floor for hours and then see the title for this 😂
🤣
Was literally just talking to my wife about how I think I probably have POTS. Oh, the irony!
You don't know what "irony" means.
@@r0bw00d look I meant something along the lines of coincidence but was really drugged up on pain meds and that was the word that came to mind
You’re phones listening too u no lie, happens to me!
Jessica it's like you KNEW I went in for my tilt table test yesterday.
Bree Mae 💛
I have all of the symptoms, yaaaayyyyy! I've actually been considering making videos to talk about my experience with POTS, the utter hell it was to get it diagnosed, realising that I had actually been struggling with this all my life and had been misdiagnosed (or rather, ignored and brushed off) since childhood, etc. But then I get annoyed with myself just even thinking about it because I already feel sick every day, I don't want to think and talk about it even more... and then I think about how much videos like Jessica's have helped me and that maybe I could help someone else... and then get annoyed with myself again and the endless cycle continues lol
Nat GL I will totally watch your videos if you make them 😀
I receive my "Some Such Tosh" mug, very quickly, as a matter of fact. It's lovely and I'm thinking of taking it to the next meeting at work and showing it off (whenever appropriate to what someone has to say).
Unrelated to my previous comment, after watching the whole video, I have already several doctor appointments coming up in relation to blood and digestive issues and basically 90% of the issues discussed here seem to apply to me so suddenly this might be a whole lot more useful to me personally. Joy!...
Hazel Irons good luck !!! I feel some symptoms apply to me too...
me too! haven't been diagnosed because "you're just tall" "eat more salt" "stand up slower" "you can't have an MRI because theres no reason" though I have all the symptoms and get intense shooting pains in the center of my brain that leave me exhausted and crying.. doctors🙄
fellow potsie here, bless you for this video! I had pots symptoms since I was 10/11 and didn’t get diagnosed until I was 17/18, and my symptoms were constantly explained away by doctors as other things until I had about 10 different tests done. I SORELY needed a video like this back then!
In terms of symptoms I get:
Mild to extreme dizziness/light headedness as upon sitting up/standing up from sitting/lying down;
EXTREME palpitations to the point that the sensation makes me nauseous/is painful;
Migraines;
Tiredness/Weakness (usually severely for periods of weeks at a time, then periods without, but also more minor daily effects);
Shakiness;
Shortness of breath;
DIGESTIVE PROBLEMS (near constant nausea, stomach ache, etc);
Tunnel vision/total vision loss;
Poor temperature regulation;
However I don’t get blackouts or brain fog!
Before I was diagnosed, doctors told me my symptoms were IBS/Chronic Fatigue/Symptoms of my anxiety/depression (which I do actually have), so this made it very difficult to get diagnosed - I had every single one of the tests Jessica mentioned at least once before they finally confirmed it, especially as a lot of doctors who aren’t specialists seem to not know a lot about it. So if you think you may have pots, I would ask about if specifically with your doctors as my diagnosis really changed my life for the better as now I finally know how to manage my symptoms :)
Notification squad 🙌🏻
My symptoms include lightheadedness, extremely fast and hard heartbeat, vertigo/dizziness, shortness of breath with a sometimes tight chest, near fainting, orthostatic headache (in addition to migraine), exhaustion, brain fog, shakiness, digestive problems, and my vision blacking out, all of these when I sit or stand up. I’m also sensitive to caffeine, dehydration, heat, and overexertion.
Your videos contributed to my success in getting diagnosed with POTS. My possible triggers are genetics (my aunt has it, and we have a connective tissue issue, plus anxiety), but also my two rounds of mononucleosis, and a concussion. Thank you for your lovely video!
PS: the Sims jokes, I can’t 😂 and the big pot hahah I love it
Oh! I attributed my caffeine sensitivity to my lyme, but it might be POTS related, instead. Interesting! Thanks for sharing. Instead of drinking coffee, I eat a bit of high quality pure chocolate, which has the same effect on me as a cup of coffee would have on others. I don't need to feel sorry for myself hahaha
AnneloesF glad to help! Unfortunately, I have to drink one cup of coffee per day for migraines, sometimes more), but when I do I know to take it easy and be careful because my heart will go nuts and my POTS will flare a bit. Chocolate is great for a pick me up but it affects me the same too!
@@clairespahn6639 Oh no, both those things are annoying! Sorry to hear...pff. My POTS comes and goes a little, and I was always wondering why chocolate sometimes helps to keep me awake at work, and sometimes not. I will now see if it is related to my POTS being a bit better sometimes. I may have to take a few sips of coffee on the days on which staying upright is not a chore. (If that makes any sense.) Thanks again for helping me understand myself better! Very helpful to read everyone's comments here. All the best with managing your symptoms as well as possible!
Oh my god you literally just described every single one of my symptoms!
When I first started watching your videos I was very lost regarding my body, as I was very slowly coming to terms with my declining health. Thanks to your videos I managed to learn more and more about having a chronic illness as my chronic fatigue syndrome started to rear its ugly head. You have been such a help to me and still continue to be such a positive role model in all aspects, particularly accepting my disabled body! Not to mention how I feel comfortable laughing along with your jokes about pots and chronic illness lol! Never stop being amazing, lost of love 💕
artificially basic same
This was really helpful because I've had it suggested that my mystery fainting illness is POTS, thank you! Also that dress is absolutely beautiful! 😍
If it is, I highly recommend Vitassium Salt Sticks as a sodium/potassium supplement! You get them on Amazon, it's the one with the blue bottle cap. They help to raise your BP, which can help slow your heart rate down a little and give you a break. (Only take them though if you have no other issues with salt intake, and your doctor says it's alright!)
Jenny T it’s a great video
Basically every symptom listed here, I have. I also have most of the symptoms for fybromyalgia.
Struggle is, all these symptoms overlap with a fun condition of mine- oh yes, it's anorexia nervosa, everyone's favourite. For the umpteenth time, I'm starting recovery and none of the symptoms have gone away yet. I think I will wait a few months, try not to relapse, and if the symptoms persist, consult my doctor.
Also, excellent title. Never related more. I'm on the floor a lot.
Like a lot. I may or may not be on the floor right now.
...
I am.
Though I know that my mother gets extreme palpitations. She asked her doctor about it and they basically just told her that oh, we don't really know but don't worry about it, I guess, might be normal!
An Acquired Taste sending you hugs and good vibes x x
Anorexic POTSie here too. I’m recovered but when I was I’ll nobody believed I had POTS and even went as far as saying it would go away with weight gain. I faint just as much when I was 40 lbs lighter lol. But at least I bruise less when I hit the floor 😅
An Acquired Taste I think you should go to the doctor and get blood work done. Even if you don’t have anything it could really help with getting healthy
@@Stuartette I did, I'm lowkey everything-deficient. Especially iron and B12, also my blood sugar is "alarmingly low." I'm on a whole pile of supplements.
Mine is affected by heat. Vasodilation coupled with standing up is a recipe for syncope.
I had a tilt table test which showed that I had an episode of low blood pressure. The neurologist that organised it sent me back to my GP to test for Addison’s disease, when that came back negative, he just said to try wearing compression stockings and tilting my bed...I asked him what it could be then if not addisons, and he said ‘sometimes girls your age just have low blood pressure, you’ll grow out of it’..honestly at this point if I don’t laugh I’ll cry! Thanks for making me feel less alone Jessica, it’s not easy being ill for 3 years with doctors not caring ❤️
Just so you know, I’ve been through the EXACT SAME THING with so many doctors, and it sucks, but you’re not alone. Your problems are absolutely 100% real no matter how doctors treat you.
Kathryn Barnhart I just turned 30 last week, so the whole blaming it on your age thing doesn’t change as you get older either! I’ve had the whole anxiety thing too, I swear they just don’t care ☹️
McKaya Pugh Thank you so so much, honestly that means more to me than you know ❤️
So...I watched this video just because I love Jessica and watch all of her videos, but it made me realize I might have POTS. It’s hard to tell for sure because I also have anxiety issues, but I’ve always felt lightheaded after standing and have trouble standing for long periods of time. I’m going to have to research this now, thank you! This video was incredibly helpful.
Thank you for another awesome (and very informative) video!! :) You make my day ^^
Oh my dear, I hope you feel better soon! Thank you for always sharing your experiences, and showing us these glimpses of your life. Sometimes it's hard to see your disabilities, and for those of us who are fully-abled, it helps us understand to see these moments of your life.
I love your take on this kind of thing.
The title alone brightened my day. :)
And yes; I do spend too much time on the floor courtesy of PoTS.
Oh Em Gee, I am so happy that I found this video and your channel! I can’t believe I finally found a little community of people with the same issues I have and who enjoy/feel better spending as much time on the floor, LOL. You all get me ❤️🤗
such an informative and useful topic you've covered. thank you!! though I would listen to you speak about anything your voice is SO lovely and calming
Jessica, you just may have helped me solve a mystery for somebody I care about! Thank you!💖 You've just relieved quite a bit of worry!
2CuteMadHatter ❤️
Thank you for making videos like this, there are so few easy to digest non medical jargen information sources out there on rarer disabilities and I know this will surely help alot of people. Xx
Hazel Irons same
Just love your videos, you are just amazing xxx you have given me the strength to blog about my invisible illnesses and my life, thank you!! Xx
Thank you 😭😭😭 Jessica you've given me so much hope and motivation to seek diagnosis and treatment. I'm so thankful for you! ❤❤❤
I shared this on all my social media as I have pretty much the same form of pots as you! This has helped me find a way to explain what I’m feeling and what causes mine!!
Also thank you so much Jessica! Watching your original video on POTS helped me figure out something was wrong and eventually receive treatment/ diagnosis by being my own physical health advocate.
OMG this is what my former girlfriend was finally diagnosed with, after years of me worrying about her !
She had been dealing with such a strange variety of symptoms and it was such a mystery for years.
We would travel and (trying to) work out together but I'd constantly have to stop and help her just keep from falling over. :(
Never blamed her or anything impatient like that, of course. I believed her that it was more than just feeling tired or hungry... but it was so mysterious.
I'm glad she finally went to an ACTUAL doctor to get diagnosed and she says she's taking care of it better these days.
BTW, one strange symptom that she had (which I'm assuming was related to her POTS) was compulsive BURPING.
Yes, she'd have painful burping spells, the way most people would have the hiccups.
She'd pass it off as being funny when we started dating... lol but then it got a bit concerning........ and she'd be embarrassed in restaurants.
The burping can be caused by acid reflux and other stomach issues. Sounds pretty frustrating. I'm glad she finally got a diagnosis.
I just found your channel a few days ago. You've literally taught me more about POTS then the doctor has. I just got diagnosed about 2 months ago and still trying to figure out what to do to make my symptoms better.
Ehrlos Danlos member here with scoliosis, keiloid scarring and epilepsy 👍 thank you for your videos Jessica they really help as I don't know anyone as unique as us. Used to get POTs symptoms sometimes when standing up too quickly but hasn't happened for a while. Many hospital stays were full of nearly passing out with the seeing stars vision thing.
The description of the shakiness as an analogy to hangover throwing up was incredibly descriptive 😳 made me chuckle with a knowing smile - dearly me bless all those who have POTS
Jessica!!! Your outfit gives me life you look so gorgeous here!
As someone with pots, my most noticeable symptoms are dizziness and blackouts, real bad brain fog (especially when taking an important test because of course), v bad heat intolerance/I can barely go outside in the summer, migraines, and anxiety. I also drink an ungodly amount of water. But I don't actually faint very often or have digestive issues. So it's true, pots is very different for everybody. Loved the video, Jessica!
I was just diagnosed with POTS last week. Thank you for posting your videos and sharing your experiences. I don’t know of anyone with POTS in real life so it’s great seeing someone I can relate with. I love all your videos Jessica. Keep on doing what you’re doing! 💜💜
I love your style so much. It’s so beautiful and classy. And this was a good video. Also I was diagnosed with vaso vagal but I think I have pots.
I've been experiencing many of these symptoms for years but never knew this condition existed! I'll bring it up at my next doctors appointment. Thank you so much Jessica!
your earlier video is what helped me realize i have it!! mine developed suddenly and we think it might be related to my chronic pain (yay! no going away!)
my current symptoms:
-actually fainting when standing too long
-feeling super lightheaded when i sit up for too long
-migraines !
-ironically,, i have high blood pressure which my cardiologist thinks is a symptom because when i go off my hbp medication, my pots gets worse
-BRAIN FOG !
-nausea oh my god
-getting hot makes me lightheaded
fun fact when getting tested for pots: my cardiologist had me do a standing test and after just 4 minutes and 19 seconds, my heart rate was almost 150! safe to say that he was pretty confident in my diagnosis. i now use a wheelchair for most activities just to show you how much it effects me personally.
I was vlogging through getting diagnosed with POTS, but haven’t been well enough to make videos recently. Hoping to get back to it soon! 🤞
Emily Cricket I hope you feel better soon!
Love your videos so much! ❤️
I’d love to see one similar to this about Chronic Fatigue Syndrome-I’ve always wondered how you got diagnosed and if any treatments help at all! Much love to you, Claud and the pups! ☺️❤️
I'm watching this on the floor because POTs lol. I love this video
OceanicMarauder what were your symptoms? I think I might have it too
OceanicMarauder same!
@@HippieNikkiTheTopeteTribe For me the most notable symptom was dizziness upon standing. I have a couple other chronic conditions that have a lot of similar symptoms. It was getting to the point where I would almost pass out almost every time I stood up. I went to my Primary doc, and we ruled out any sort of imbalances and medication interactions. Once that was all fine and good, I went to a cardiologist. We did a scan of my heart to check for abnormalities, then a tilt table test (TTT). We also did a 2 week test with a heart monitor. Between the two I was diagnosed.
I know this is a lot to read, but if you have any concerns about your health, track them and bring it into your primary. I'm really lucky that medication helps me to the point where I'm symptomatic maybe 20% of the time, instead of 80-90% like I was before diagnosis.
I'm also on the floor haha! It's astonishing how many of us like the floor
Once again, thank you Jessica, for sharing this with us. I was diagnosed with hypothyroidism/hashimoto syndrome when I was a child and have always associated my fainting, blackouts, perpetual tachycardia, fatigue no matter how much I sleep, etc, to this and also my atypical asthma. I fainted multiple times through life, had to take anti seizure medicine for chronic migraines during my teens and am always shaking. P.E. during my school years was a torture. As was my teenage years with people thinking I was just lazy for sleeping whenever I had nothing else to do. I have been on treatment for severe depression with a psychiatric and therapist for 4 years now, but I am feeling much better and all the symptoms you mentioned remain. So maybe I should do as you suggested and take an article describing POCS on my next appointment with my endocrinologist as well. Thank you and hope today is/was kind to you. xxx
I really needed this. I don’t have POTS but I’m having an insanely bad flare up right now and watching these videos always makes me feel less alone. I’m currently going through the motions of getting a second opinion on my fibromyalgia after about three years of diagnosis and wow is it tiring. But I’m great full that I am able to see the medics professionals necessary to do this
thank you for the best explanation of POTS I have ever heard, I was diagnosed with POTS and Ehlers-Danlos Syndrome (hypermobility joint syndrome) last fall and my tachycardia was so bad I had a cardiac ablation which is basically one of the lowest risk and least invasive of heart surgeries. my doctor originally said it would only take about an hour and it ended up taking 5 hours because there were 70+ arrhythmias in every four chambers of my heart and each one had to be individually cauterized. Explaining my condition to able body people is one of the hardest things about it besides ya know randomly passing out or dislocating my knees. It took 18 years to get a diagnosis because it's just not well known and since EDS and POTS cause so many different problems we were treating each one as its own thing. Thank you for spreading awareness and creating a sense of community for people with POTS it's way more common than most people think and the more education about it the better!
I like how you explain stuff that at first seems complicated. Really helps me understand the whole situation better 😊
Also,guess who fell of the stairs for the second time in a week? Yep its me (thanks to chronic migraine and (presumably) POTS) I will show your video's to some of my friends, since it is hard for them to understand the whole situation. Please keep making educational video's, i love them 😊
My honest to God first reaction. Signs you have pots, you open your cabinets, and there they are! LOL. Seriously though, life with chronic illness is poop when doctors are just like Yay drink water!
SinginginD or tell you to loose weight or gain it... not very helpful.
hey Jessica! I found your channel about 6 years ago during a time I was facing a whole grocery list of symptoms and no way to make sense of them. I'm so happy to report that all these years later, I've finally gotten an actual POTS diagnosis! I wanted to thank you so much for these videos and speaking about your experience. You were a major player in me finding out what I have and finally being able to get proper care.
I really enjoy your positive content. I've been going through some things and your channels have really helped.
Finding your channel is a great way for me to learn and to keep smiling. Keep up the great work.
Thank you. Your video made me remember recently my teenage cousin was diagnosed with pots, and that i had the same symptoms.
since the age of 14 after a brain injury and very quickly contracting viral meningitis, I’ve had these problems and I’ve looked on nhs website and decided to ask my mum to print out the page so I can take it with me to the walk-in clinic. 😊
I love the length of your outros!
This is brilliant! I was misdiagnosed and/or looked at like I was crazy by more doctors than I can count over almost 20 years before proper diagnosis. I was always asked which symptom was worse when I would tell them that the symptoms all happened together. An episode would always start by having a vague feeling of apathy and fatigue and feeling like my heart was rapidly beating in my stomach, then migraine-like pain from my eyes/head down my entire body, terrible nausea that would lead to endless vomiting, tunnel vision and hearing, labored breathing etc…
I found out about POTS and disautonomia by watching a Discovery Heath show ‘Mystery Diognosis’. I was lying prone at the time, so very unwell, but inthralled that someone was finally describing all of my symptoms together and there was a reason for this. Hopefully your video will help someone in the same way. My cardiologist has said my POTS in chronic since it started in my 20s but manageable, thought to be brought on from the Epstein Barr virus damaging my heart. With an enormous amount of fluid and salt, as well as not getting over heated or avoiding environmental fragrances and pollutants (from perfume to cigarette smote to car exhaust) and staying active enough, I can manage to not feel like I’m going to “lose my legs” and spiral into all other symptoms.
I'm currently devoting parts of each session with my psychologist to us trying to decide if my symptoms are POTS or anxiety! She's got a lot of spoonie patients so she's super understanding, even if we haven't been able to figure things out, it's better than the frustration of seeing doctors as a mentally ill person who is also regular ill.
Thank you for doing this video. I have a condition called Complex Regional Pain Syndrome as well as Amplified Musculoskeletal Pain, as well as other health issues which don't have an official diagnosis yet *yay* and after watching this it's given me a lot to think about. I'm currently recovering from anaemia and surgery so I can't fully pinpoint what is causing some of my symptoms but after watching this I'm gonna keep POTS in the back of my mind as I had a few of these symptoms before my anaemia. Thanks for this lovely video, and for also persisting on despite not being great that day xx
Thank you for such an educational video! 🙂
Hello all! I have dysautonomia but not specifically POTS. Mine is secondary to a genetic metabolic condition I have. I have both passed and failed a tilt table test in the same day bc my issues are primarily surrounding my blood sugar and hydration. When my blood sugar drops suddenly... the POTS-like symptoms return. So it’s imperative I eat at very specific times and drink plenty of water. Doing so will never cure me but has helped me live a better quality of life. Everyone with dysautonomia is different so I hope this may be helpful to someone out there :)
Also.... side note.... my heat intolerance issues in which my heart rate would pass 200 beats per minute was just diagnosed as Mast Cell Activation Syndrome. A separate issue from my dysautonomia related just to heat intolerance.
I’m so glad Jessica makes these videos, it’s great to see I’m not alone!
You are so stunning and I think it’s admirable that you do videos from the floor when you’re not able to get up. I also love how informative your videos are and I think us able-bodied people benefit from watching these as well. I’m currently down with a bad cold and watching your videos always lifts my mood up, lots of love from my floor 💕
what’s that emoji next to your username?
Bitesize Berty i’m part of the kellgren-fozard club 😌 one of the perks is these cute emojis next to your name, it also changes the longer you’ve been a member
Minja M that’s cute! how do you join? x
I have POTS too and your videos really help me make the best out of it! ❤️❤️
The day you release this video, I have a heart monitor stuck on my chest for the next week as part of testing me for POTS so I feel like this video is a sign
I learned about POTS from you and Stevie and realized that I think I've been having symptoms for years. I finally talked to my doctor about it and have an appointment with a specialist. I'm cautiously optimistic about finally getting some help!
Jessica: Poisoning you can get from some metals
Me: * Pauses midway through picking my tooth with a metal bobby pin *
Oh my God I knew! I have the pots. I will check to get diagnosed first if any of my doctors know about it. Before I researched any of the symptoms I was dealing with, I often asked my mother if this was normal. She often replied anxiety but it didn't make sense to me. As well as the fact I have little to nothing of anxiety myself. Once I researched and found what could be the answer (pots) I just need it had to be it but I wasn't sure because I didn't have all the symptoms that I could be dealing with. Thank you for this video!
Jessica you are so awesome. I'm having the worst Fibromyalgia flare of the past 2 years and needed some Jessica in my life!
I've often wondered about POTS as well. As I pass out a lot. We've been wondering about blood sugar too.
(Sobs at the thought of giving up sugar)
I accidentally clicked this video, and I am grateful cuz it really helped me out. I've been wondering for years what is wrong with me, I do have HASHIMOTO'S, which makes me tired but this makes so much more sense with the tiredness I feel. Like I feel like my blood is suffocating. I'm going to talk to my doc about it tomorrow. Thank you.
I swear you born to be a doctor. That was a better, more concise and holistic explanation of a medical illness than I have heard from Real professionals. I always marvel at how your experiences with the healthcare system have endowed you with such insight and compassion into health. Wonderful video as always
I love you videos, please take care of yourself!
This has honestly explained so much for me. I always thought I was just really out of shape and super sensitive to heat. I get light headed and get the dark veil almost every time I stand up, I get shakey, I get light headed and nauseous for no reason, especially when standing too long, ESPECIALLY when it's warm out, and my heartbeat will decide to just go on a marathon sometimes. I've been spending a long time thinking this was all panic attacks and anxiety, but these things happen to me no matter what the situation is, and then I panic because I think I'm dying. I'm going to talk to my doctor about this after I spend some time documenting each time I experience a symptom.
This came out the day I had my testing. Thank you for raising awareness about POTS, I can’t tell you how many doctors told me to just get up slower or drink more water and told me seeing black or passing out was normal. It wasn’t until I watched one of your videos that I thought oh maybe that’s what I have. So I asked my doctors about it, was tested, and boom. I was right. Now just to find a specialist which is a bit difficult in the Midwest...
this video has inspired me to go to the doctor for my constant joint pain. i’m 15 and it feels like i have the joints of a grandma which is prooobably not normal lol. thank you!
7:34 I know exactly what you mean! I caught a bad stomach bug for the first time a few months back and I felt the same exact way!!
I don't have any physical disabilities (unless you count eczema?) but these videos are super interesting! They've let me look at things from a different point of view and helped me see that not all physical disabilities can be seen.
I have POTS. I relate to the symptoms you talked about in your video. I feel like no one in my school really knows about it so it feels nice to hear someone has similar struggles and experiences.
I love when anytime people are lying or sitting on the floor your pets take it as an invitation to hangout and play with you, it's so cute !
I totally have POTS, I have all of the symptoms, just now piecing it all together 💙 thank you!
I have most of the symptoms you mentioned. The fainting is not as bad since I've gone off to college, but now the gastrointestinal issues are horrific. It's a relief to know that I may have a name for my struggles.
Holy shit...
You just answered some unexplained things that happen to me. I looked up the symptoms, and I've known to have unexplained tachycardia (they can't find the cause) since I was a teen. This explains so much.
This has come at exactly the right time. I passed out at silly o'clock this morning and bounced my face off the kitchen counter, and am now having trouble explaining to my pals what happened and why I'm not freaking out about it! Thankyou!
My best friend (who I live with) will usually say things like "don't worry, she just does this" or "she's all right. She'll come round in a minute." And on one memorable occasion "I suppose I have to do all the laundry now." Lol.
Understanding friends are the best.
@@SarahBent there's a note in the magnetic letters on my fridge at the bottom where I'm frequently found that says "oooooh I'm a ghost" 😂 my friends are the best
I have pots and it is really horrid-thank you for this video, Jessica ❤❤
Watching this right after having been to the cardiologist to lock in a pots diagnosis. This was a well timed video
Three months of being in and out of the hospital.. all of these symptoms are 💯 me.
Guess who got diagnosed two days ago!!! This gal. Boy was it annoying, but it was also quite helpful and took less time than expected!