GRIFFIN'S NEW WHEELCHAIR AND DEVICES Angelman syndrome

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  • Опубліковано 23 гру 2024

КОМЕНТАРІ • 67

  • @LauraBidingCitizen
    @LauraBidingCitizen 5 років тому +3

    I have noticed when Griffin is in his walker *just* how wonderful he walks! Oh my goodness, he just fly’s around with all that freedom, it’s just wonderful to see. I think with more time & your perseverance mamma, he could definitely walk !!
    However, I love his new ride, it makes total sense to get one until that day comes, but also so his little legs don’t get tired. I know you guys like to go for walks in the summer & this will be perfect for Griffin. He’s a beautiful little boy & a true blessing to watch 🥰 xx

    • @michellemarshall1116
      @michellemarshall1116 5 років тому +2

      Laura Williams I agree! He is going to walk in his own one day. We have a friend with Angelmans and he is walking now by himself at 3. But when they need to fo somewhere, and take long walks, the wheelchair is auch a great option!

    • @LauraBidingCitizen
      @LauraBidingCitizen 5 років тому +3

      Michelle Marshall Absolutely! As someone who isn’t able bodied myself, I don’t see wheelchairs & other pieces of equipment as ‘permanent’, just as ‘tools’ we need to help us get by, be more independent & to enjoy our days out etc! Never a need to think little Griffin will be in it all the time, & how wonderful to hear your friends little one is up & walking, that truly is so lovely to hear. I just know Griffin will do it in his own time, he has so much more confidence now with that walker ☺️❤️

  • @chelemichele1524
    @chelemichele1524 5 років тому +8

    I've said this forever but his smile is so beautiful....such a happy little man. Nice ride... and seat to keep him safe..
    Have a great evening ⛄⛄⛄

  • @kristam4765
    @kristam4765 5 років тому

    I’ve stayed subscribed but I haven’t watched videos in months, probably half a year or more. I remember the process of diagnosing and the grief and hurt you were going through and to see you in this video, happy and confident and accepting. It’s amazing.

  • @margaretcrane7477
    @margaretcrane7477 5 років тому +17

    He is adorable. Glad he has a new ride.

  • @tristanrowlee8963
    @tristanrowlee8963 5 років тому +7

    My 7yo is a full time wheelchair user (he has spina bifida and cannot stand or walk). They are a great ticket to freedom. A few thoughts: 1. Find videos of kids or people using wheelchairs themselves so he can see them in action. 2. Put one of his older siblings in and let them help you show Griffin how to use the wheels, by doing it themself. He will become interested and learn with practice. 3. Have him play in it every day for a bit so he has time to figure out how to propel himself. When you are out, you push him. Then, in a year or two when you really want him to have some independence with it he will already have had a lot of time to figure it out.
    Also, Hot wheels has two wheelchairs toys, one silver, one green. Fun to play with.
    And look up Aaron Fotheringham on UA-cam. He does cool stunts and skate park fun in a wheelchair.

  • @cathykillion5958
    @cathykillion5958 5 років тому +7

    So happy he has wheelchair and new seat. Y’all are doing so much for him. God bless

    • @ArrowHeart15
      @ArrowHeart15 5 років тому +1

      Yes, I agree! And with five other siblings to boot! Emily is a Supermom!!! (and Will is Superdad, ofc lol)

  • @laurenmmendoza3215
    @laurenmmendoza3215 5 років тому +3

    I am so glad that 1) you want Griffin to strive to achieve as much independence as possible! 2) you are finally getting access to the equipment Griffin needs!

  • @marymilbrandt9610
    @marymilbrandt9610 5 років тому +1

    I love that little guy. Please try to keep him walking. He does so well You are all awesome!❤️

  • @bonnienash8585
    @bonnienash8585 5 років тому +1

    Jumper said it all , his got this ! . He has come on leaps and this will help him continue to keep strengthening his muscles and improving. You are wonderful parents. He is loved and happy just like the rest of your children. I hope you see how incredible you are doing. I don’t know how you manage it all and still make and edit videos 😳 my hat comes off to you both . I think you’re awesome.

  • @bonnie3994
    @bonnie3994 5 років тому +7

    He has one Awesome Beautiful smile. Giffern💖

  • @michelelong3205
    @michelelong3205 5 років тому

    Yay! I think these devices will be a game changer as Griffin grows and becomes more independent! He is just precious! Thanks for sharing! Hugs from West Texas!

  • @alwaysaa5063
    @alwaysaa5063 5 років тому +1

    I love your baby boy so so much! He always manages to put a smile on my face. I think he will be just fine when he grows up.

  • @dianaperez8230
    @dianaperez8230 5 років тому +1

    God bless y’all for your family an your angel he is adorable Jesus bless him an heal him

  • @Swirlofcolours
    @Swirlofcolours 5 років тому +4

    We have exactly the same one by the looks a zippy zone? Our daughter will use the wheels if the arm rests are off so I only put them on when we are pushing her.

  • @bionicprincess8008
    @bionicprincess8008 5 років тому

    I am sooo glad you guys have received some devices for Griffin he really needs. I am sure all of this is really new to you and a big adjustment. You are such a sweet and caring Mom. One day at a time 🙏🏻💗😊

  • @stacieclark-benson688
    @stacieclark-benson688 5 років тому +1

    YAY! Im so happy for Griffin & you. Its going to be so helpful to have these.

  • @pamhumler3903
    @pamhumler3903 5 років тому

    I love Griffin’s new wheelchair and seat. When the vlog was over and your music came on I realized how much I missed your music when you didn’t vlog for awhile. Love you guys and look forward to your next vlog to see what the kids are doing. Have a great day!

  • @mommyduncan84
    @mommyduncan84 5 років тому

    Ugh, I could just squeeze him 🥰 Such a sweet and precious boy 😊

  • @kathleenharris2239
    @kathleenharris2239 5 років тому +1

    Awesome Emily!! And I think aiming for independence is a no brainer because you and Will know him so well you know he’ll probably be able to move the chair himself eventually cause he is smart(thanks to his loving and attentive parents).I’m so glad you have the chair great for him and you,I know it sounds silly but I’m so excited about the things that have become available to you so that your family can all go out and all be together and enjoy time out and about.Go Griffin you’re an awesome little man!!!🎈🎈🎈🎈🎈You guys rock too😊👍

  • @MissScrapAlot
    @MissScrapAlot 5 років тому

    Hes precious! Glad you got the chair so outings might not be as stressful.....hugs loves and prayers always !

  • @hannahjones8629
    @hannahjones8629 5 років тому +1

    Those devices look amazing for Griffin I hope they work well for your family you are doing an amazing job with him you’re wonderful!

  • @jessijacobs8
    @jessijacobs8 5 років тому

    OMW that is so super cool!! I especially love the seat attachments!! Brilliant stuff Emily!! This is going to help you guys so much!! 💙💜💙💜💙💜

  • @ieksoreacts
    @ieksoreacts 5 років тому

    I like the green good choice💚. Your an amazing mother. I look up to you.

  • @Kris7828
    @Kris7828 5 років тому +1

    Thank you for sharing the tomato seat. We are looking for something similar for our 4 year old.

  • @jazzyj4765
    @jazzyj4765 5 років тому +3

    Yay!! That is so exciting. I'm so happy for Griffin. The chair seat will be amazing at restaurants.
    Is he still pushing himself away from the kitchen table? Do you still bungee cord the chair?

  • @janicehall1611
    @janicehall1611 5 років тому

    I just love him I love that chair I wish I could be as happy as he is all day long you are such a good mommy hope you guys are having a blessed day till the next time

  • @minniegisela4680
    @minniegisela4680 5 років тому

    Ur both are great parents thank goodness for those devices to make Griffin' s life easier

  • @evadelgado7339
    @evadelgado7339 5 років тому +3

    That is so great. I hope this helps you guys so much.

  • @ArrowHeart15
    @ArrowHeart15 5 років тому

    I haven't watched y'all in a long while, but that is a RAD ride you got him! He'll get used to it with time, I'm sure. :) I'm special needs myself (a rare genetic disorder called CHARGE syndrome - look it up), and this video brings me back to when I was little and needed special devices! I never had to use a wheelchair, but I had to wear a fanny pack every time I walked bc poor balance (which I still have, but it's a lot better than 30 years ago thanks to PT), and I had to use a helmet just to play outside.
    Good Bless this family!

  • @kassystacey
    @kassystacey 5 років тому +2

    His reactions were so adorable. ❤️

  • @desireeromero2384
    @desireeromero2384 5 років тому +1

    I hope this helps him and your family sending well wishes your way he's so cute I loved when he was signing out good job

  • @lisasherwood482
    @lisasherwood482 5 років тому

    Everything helps! I'm glad he seems so happy. I know how it is to feel to rise a child with special needs. My youngest son has autism.

  • @faylew1012
    @faylew1012 5 років тому +1

    He is just the most gorgeous little guy ever.

  • @amychantell1558
    @amychantell1558 5 років тому

    Griffin is truly an amazing child he is the sweetest and cutest lil boy and I hope nothing but the best for him in his future and you are an amazing mother the things u have gotten thrown at bad or good u always do ur best they are truly lucky to have U as a mother best channel on UA-cam !!!!!!

  • @MS-vi9xo
    @MS-vi9xo 5 років тому

    Such a sweet boy! Momma, you are amazing!

  • @hannataylor2254
    @hannataylor2254 5 років тому

    that’s a awesome wheelchair I think it’s good to have a wheelchair for him for safety reasons even though he can walk with a walker or someone holding onto him he’s a awesome smart boy

  • @denisespurlock7869
    @denisespurlock7869 5 років тому +6

    Keep encouraging him to walk by himself as much as possible.

  • @rockinmissbeth
    @rockinmissbeth 5 років тому

    So very happy for Griffin and you.

  • @melissapatel813
    @melissapatel813 5 років тому +1

    He is so adorable!

  • @ejdoug8328
    @ejdoug8328 5 років тому

    Wow! Those are some kool tools you have there.

  • @wendellmonster6179
    @wendellmonster6179 5 років тому

    Griffin is so lucky and he such a smart little boy 👍

  • @frugalfamilyof6946
    @frugalfamilyof6946 5 років тому +2

    YAY Griffin! 🎉💕💕💕

  • @liemdrake
    @liemdrake 2 роки тому

    He is really cute that he has a nice wheelchair.

  • @kristenherndon8250
    @kristenherndon8250 5 років тому

    You're an amazing Mom!❤️

  • @foxgeirgesda
    @foxgeirgesda 5 років тому

    💕💕💕
    Such a beautiful boy!!

  • @suk-yeewong4725
    @suk-yeewong4725 5 років тому +1

    Griffin is so cute....🥰🥰🥰

  • @sabahattinkalya927
    @sabahattinkalya927 3 роки тому

    ALLAH YAR VE YARDIMCINIZ OLSUN ABLAM

  • @catiemason1551
    @catiemason1551 5 років тому

    Poor baby boy bless his heart

  • @bazinga13713
    @bazinga13713 5 років тому

    So happy for Griffin!!

  • @christopheryanik8986
    @christopheryanik8986 11 місяців тому

    He is so cute

  • @ediedowning
    @ediedowning 5 років тому

    He is getting so tall😊

  • @baileybullins3862
    @baileybullins3862 5 років тому

    Giffen you have a nice new ride

  • @missdaisy5736
    @missdaisy5736 5 років тому

    The wheelchair and booster seat looks terrific and will be very helpful with safety and griffinsability to enjoy eating his meals👍🏻

  • @kimcressman6508
    @kimcressman6508 5 років тому

    He is so stinking cute!

  • @heidiholom8086
    @heidiholom8086 5 років тому

    He’s so cute!

  • @danonda9584
    @danonda9584 5 років тому

    Your amazing 💯🎉❤️🇨🇦

  • @ChristopherJohnson-q5d
    @ChristopherJohnson-q5d Рік тому

    D.C Mr. Johnson 41 😢push mobility

  • @pennybentley5125
    @pennybentley5125 5 років тому

    🥰😍😘

  • @skyemckee5014
    @skyemckee5014 4 роки тому

    I subbed.

  • @tiffanyyoung3865
    @tiffanyyoung3865 5 років тому

    💓💓💓💓💓💓😍😍

  • @SarahEveringham-l6m
    @SarahEveringham-l6m 7 місяців тому

    😅😅

  • @SarahEveringham-l6m
    @SarahEveringham-l6m 7 місяців тому

    R😂😂😂😂 😂😂

  • @terrisargent1846
    @terrisargent1846 2 роки тому

    Amber cbmaert is 2 10