A DAY IN THE LIFE OF ANGELMAN SYNDROME
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- Опубліковано 24 лип 2024
- This is a day in Griffin's life, our 5 year old son with Angelman Syndrome. Please subscribe to watch our family grow!
Our last video: ALL ABOUT GRIFFIN'S COMMUNICATION AAC DEVICE/TALKER: • ALL ABOUT GRIFFIN'S CO...
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We are a big family of eight with Mom(Emily), Dad(Will), and our six kids, Harrison, Wyn, Griffin, Sawyer, Posey, and Lindy.
#BigFamily #AngelmanSyndrome #YouAreWonderful
Wow, Emily you're super mom! I'm a special needs mama to a beautiful 8 year old girl with a rare syndrome as well, and it can be such an intense, but beautiful journey! Griffin is lucky to have you for his mama! He is so adorable!!!
Are u comfortable saying her/his syndrome
Wow Emily - your mom would be SO proud of you as a mother - you give it your all. So much to do just for Griffin - then you have Sawyer and all the others....plus all the therapy, calls etc. Must be SUCH a help having Will home - your a really great team. Love to you all from Scotland xx
Go on line ok😊❤
I'm from Scotland 🎉
It’s AMAZING how well Griffin is doing ❤️‼️ YOU ARE WONDERFUL ❤️❤️❤️
Emily you’re amazing!! Such an inspiration to other mothers. Love Griffin 🥰🥰🥰🥰🥰🥰
Very informative and really shines a light on the complexity of taking care of just one special child and you have 2+ and also the regular needs of the other kids! Doing a fantastic job!
You r both doing a great job. Can I please ask what the strapping is over griffens body that you wrap arounD him.
@@joystevenson9014I think Will said that they are called Twizer Cables and Emily said that they are supposed to help him with his Pigeon Toe
Emily & Will, you are rocking this journey!!! Griffin has come so far along and is such a joy to watch! 👍💕
Whooo. Exhausted just watching you getting thru one kid’s day! And you do it while looking like a model.
You two are the best. Griffin is blessed to have the both of you!
Griffin is just the sweetest and your just the best mother and Griffin could not have any better of a parent
Thank You for sharing some of his life. You are Amazing Parents. God Bless you all.
What a beautiful children you have 😍❤️ All of them!
Was missing you! Good to see this. Well done! 👍💖💙
Thanks for this video! Griffin... You are wonderful ❤ 💖 ♥
taking the labels of bottle is my favorite thing to do
You are the wonderful one, love your family ❤️
It never fails that she is super extremely informative
You do have your hands full Emily.I sometimes dont know how you handle everything.I only had 2 and I was worn out alots.God must have known you could handle things.Hang in there ..
Love everyone’s positivity!
I like how you put the last video in the description
Best family on UA-cam
Definitely
Great job Emily and Will a lot of work but you managed 👍
Where did you get the touch screen computer? We need one for our son. Thanks so much
Someone in my town has AS. And he loves this playground ware I shoot hoops.Then when the mom saw my clamshell AFO’s.She cried and told me about AS.And also he has AFO’s but not clamshell.
Are the twins in the same classroom/have the same teacher.
Can you do one of these for his twin/ the other kids.
Good Night sweet Griffen
Have u ever wondered what griffin’s voice will sound like if he could talk
Hello. You are a. Great mom for takeing such gd care of him irs are wk . soo glad he is getting. So much better. As.you say a year ago . andmuch more help then as BEFORE. You would have stayed back in the other atate things would have never.changed for your family. And will would still a postal. Man wking long hrs and you with little help .. I no what thats like no kid help at all its hard and nofamily help period. !! Till next time. Take care !
Wow 11pm here
Amazing!!! I cannot believe how far Griffin has come since being in Colorado. It’s hard work for you and Will but thankful to God you are in Colorado and Will is his nurse! Take a bow, all of you! Cheers to Colorado!
My favorite time of the day is when I take my showers I feel So clean After I take my shower
He's so cute and sweet
Awesome video
All their vids are awesome
Griffin is so handsome and has a great smile 😄💗
Griffin is the cutest kid in the world
can you do the day in in life of sawyer
Does griffin take any new medicine?
Do not use your laptop without the need for the new battery system, or if it doesn't have a new version, you will be prompted for the
New follower here, just want to ask a question. Why does Griffin wear a strap around his legs?
5:26 she says that it’s supposed to help with his Pigeon Toe. Basically to straighten and strengthen his legs. Then the SMO’s she said once is supposed to help with his feet so he can walk flat because just like Sawyer he is prone to falling down when walking on tip toes. And then the walker is supposed to help with his walking and his balance at school!
The straps are called twizer cables they help with pigeon-toes. Smos help with balance. Now he wears cables for the same reason
❤❤❤prayers
😊
Hiiii is there any way we can communicate thou Email cuz my Daughter has Angelman too
What medicine does griffin take?
She said earlier in the vid
👏🏼👏🏼👏🏼💜💖❤️
How tell you he want to go loo? Does he have wearing Nappies?
He's nonverbal so he can't say. He still wears diapers
He wears nappies
Is upd Angelman highsr functioning
Huh *im a special ed* They get to be a special ed teacher at kindergarten/ I need to wait till 3rd grade and special ed is you stay till 4th grade they are lucky
How old are the twins
7. They both have disabilities. Sawyer has autism ADHD and hyperlexia. It makes him smart in reading and math. Griffin has dysphagia Angelman syndrome and epilepsy.
What school does Griffin and Swayer go to? Is it a school with kids with special needs?
I don't know what school they went to. They were in a special ed class. Griffin now is in full time ABA. Sawyer is still in school
Griffin got hurt at school so that's why he's not in school
S
Will Griffen eat pudding or plain yogurt with his meds? Thank you for letting me see Griffin daily life.....he is such a happy camper....love his smile n Laughs...
@@anothergoldilocks1077 it's just a question...
Can ya just stop with these beautifully emotional videos Emily?? 😂💗 I was nodding along with you with your last comment about how far Griffin has come, I echo again everything I said in my last comment to you in your last video with his AAC device. I know not everyone has been with you guys since the beginning but I honestly URGE anyone to go back & watch older videos prior to your move, the change is truly amazing, & let’s not forget how amazing you & Will are too Emily. You’ve gone above & beyond for all of your babies.
Just a quick question, because Griffin has the 2 male chromosomes, does that equate to his additional strength? Has that ever been mentioned? I was just curious.
Love & blessings to all of you! Xxx
Emily try to give Griffin vitamin B complex along with magnesium and potassium, it is very good for muscles, nervous system and the brain, try it, maybe you"ll see changes for the better, you are a superwoman!!!
Is he potty trained
No. He still wears diapers. His syndrome makes it hard