Tom, I just stumbled across this video and to be honest, you may have just saved my life. Your story has given me hope as I’m newly diagnosed after many years of seeking a diagnosis. I’m on a tremendous amount of pain medication and I hate it. Botox injections don’t help much and I can’t take the meds due to side effects. Just as you were in the beginning, I’m feeling hopeless, helpless and very alone. My quality of life is horrible as you know, the depression and pain keep me from doing anything that might make me happy. Your story is changing my mindset and giving me the strength and courage to start working hard at taking care of myself to live the best life possible despite this demon living inside of me. I cannot thank you enough ❤
I am so touched by your words that it is hard to know what to say. I hate that you have to live with this as well, but so happy you finally received a diagnosis. There are many treatments beyond meds and Botox, so I hope you can find some relief. Here is another video with a variety of different treatment ideas. Please keep in touch and reach out anytime if I can help with anything at all! - ua-cam.com/video/PzAefKeQiKQ/v-deo.html
Thanks for this great video, Tom! You were speaking straight from the heart, and it resounded with how I feel about all that has happened to me with Dystonia. Thank you from the bottom of my heart.❤
I really appreciate every word! Thank you! It has been quite a journey and one that I hope others can find within a piece of themselves. All the best to you...
Tom, I just stumbled across this video and to be honest, you may have just saved my life. Your story has given me hope as I’m newly diagnosed after many years of seeking a diagnosis. I’m on a tremendous amount of pain medication and I hate it. Botox injections don’t help much and I can’t take the meds due to side effects. Just as you were in the beginning, I’m feeling hopeless, helpless and very alone. My quality of life is horrible as you know, the depression and pain keep me from doing anything that might make me happy. Your story is changing my mindset and giving me the strength and courage to start working hard at taking care of myself to live the best life possible despite this demon living inside of me. I cannot thank you enough ❤
I am so touched by your words that it is hard to know what to say. I hate that you have to live with this as well, but so happy you finally received a diagnosis. There are many treatments beyond meds and Botox, so I hope you can find some relief. Here is another video with a variety of different treatment ideas. Please keep in touch and reach out anytime if I can help with anything at all! - ua-cam.com/video/PzAefKeQiKQ/v-deo.html
Thank you so much, I will check it out now.
Thanks for this great video, Tom! You were speaking straight from the heart, and it resounded with how I feel about all that has happened to me with Dystonia. Thank you from the bottom of my heart.❤
I really appreciate every word! Thank you! It has been quite a journey and one that I hope others can find within a piece of themselves. All the best to you...
I don't believe you had a bad case of dystonia..it feels like a vitamin deficiency and needing psych help
That couldn’t be more wrong. You might want to look at my story in a bit more detail and you’ll see how bad it was