I think it's a combination of things. When I was 9, I had two traumatic brain injuries within six months of each other. I had 3 or 4 idiopathic grand mal seizures between the ages of 19 and 23. I was also placed on an anti seizure medication during that period of time. It's a medication called dilantin that some people say could be one of the meds that are a contributing factor to the onset of movement disorders. A month prior to my first symptoms which were quite mild initially, I had a bike fall. I didn't injure myself in any way but it was a jolt to my system. During that same period of time, I was transitioning from working going back to school for my masters degree, so it was a very stressful period. I think a combination of these things may have played a part but I don't have any direct cause effect relationship that I can pinpoint.
@@TomSeamanCoaching fair enough, prior to my BIG TBI in June 2023, I had a long history of head injuries. There’s no doubt in my mind it’s played a role in my persistent symptoms for over a year now.
@@headtrips1 I wouldn't be surprised if there was a connection. I know lots of people with head trauma at different times of their life who developed dystonia/tremors
@@TomSeamanCoaching have you heard of people who get relief/improvement from SSRIs? I’ve talked to two people who had blepharospasm and got relief from antidepressant meds? I’m curious, if that were true, if theres was a more psychogenic type of movement disorder like FND-related?
@@headtrips1 In most cases, I hear of people who get worse with anti-depressants. They are known to either cause or worsen dystonia symptoms. This is not universal, but something to keep in mind. FND is a confusing diagnosis and I am not sure of anti-depressants in those cases act on the body differently than non FND situations.
Great 👍
Thanks Tom! You bring so much knowledge into so many lives!!!!
Thank you Erika!
Hey Tom, I remember you said you had theories of why you think your CD started.
Can you share a couple of brief theories?
I think it's a combination of things. When I was 9, I had two traumatic brain injuries within six months of each other. I had 3 or 4 idiopathic grand mal seizures between the ages of 19 and 23. I was also placed on an anti seizure medication during that period of time. It's a medication called dilantin that some people say could be one of the meds that are a contributing factor to the onset of movement disorders. A month prior to my first symptoms which were quite mild initially, I had a bike fall. I didn't injure myself in any way but it was a jolt to my system. During that same period of time, I was transitioning from working going back to school for my masters degree, so it was a very stressful period. I think a combination of these things may have played a part but I don't have any direct cause effect relationship that I can pinpoint.
@@TomSeamanCoaching fair enough, prior to my BIG TBI in June 2023, I had a long history of head injuries. There’s no doubt in my mind it’s played a role in my persistent symptoms for over a year now.
@@headtrips1 I wouldn't be surprised if there was a connection. I know lots of people with head trauma at different times of their life who developed dystonia/tremors
@@TomSeamanCoaching have you heard of people who get relief/improvement from SSRIs? I’ve talked to two people who had blepharospasm and got relief from antidepressant meds? I’m curious, if that were true, if theres was a more psychogenic type of movement disorder like FND-related?
@@headtrips1 In most cases, I hear of people who get worse with anti-depressants. They are known to either cause or worsen dystonia symptoms. This is not universal, but something to keep in mind. FND is a confusing diagnosis and I am not sure of anti-depressants in those cases act on the body differently than non FND situations.