Hi Bethinn, I've just come across your channel and wanted to say thanks for sharing these videos! I'm a physio student and it's great to actually see what it's like for someone with CF, away from all of our textbooks and lectures. This was an emotional watch at times, but really appreciated!
@@sabellcarstens6896 That is true, however; you can have exacerbations, get a cold or flu, and get more sick than usual. Either way, wishing someone to feel better is never a bad thing.
Hey. I hope you feel a little better. Please take good care for yourselfe and take it easy. You look so pretty by the Way. I hope you're doing okey. Have a nice Day/Night ^^
I honestly don't know why you as a consumer of being a CF patient don't get angry to change bed availablity ? We would never put up with such bad service here in Australia, further, why the CF service can't support IV antibiotics at home ? It's a bad model of care , makes patients dependent on inpatient beds, and actually cheaper of the NHS had any sensible staff figuring their books ! To keep patients reliant on inpatient bends not only costs a lot, it stops self education of disease and management, yet also educating the client and family. Sorry NHS your model disgusts me !!!
1:32 -1:41, 6:16 - 6:23 6:44 - 6:58, 9:12 - 9:19
6:19 6:20 6:21 6:23 1:33 1:34 1:36 1:39 6:44 6:45 6:47 6:56 9:13 9:17
Hi Bethinn, I've just come across your channel and wanted to say thanks for sharing these videos!
I'm a physio student and it's great to actually see what it's like for someone with CF, away from all of our textbooks and lectures.
This was an emotional watch at times, but really appreciated!
Sending you a ton of love, feel better soon!
Cystic fibrosis is chronic it won’t go away
@@sabellcarstens6896 That is true, however; you can have exacerbations, get a cold or flu, and get more sick than usual. Either way, wishing someone to feel better is never a bad thing.
one thing you do really well girl is BEING CARA DELAVINGE!! AMAZING
You look like Margo Robbie so pretty I enjoy these videos as I have heart issues and these videos of real are necessary
I also have cf , glad you are feeling better now . Sending love .
Thank you. I hope you're well also :)
aww i feel you on this i also have cf x
Love you 😘 prayers dear.. with you always
6:44 OMG
lol
1:33
Upsetting that people still don't get stuff like Trikafta.
Walter White all of the new drugs available don't work for my uncommon mutation so i can't have any of it :(
Hey. I hope you feel a little better. Please take good care for yourselfe and take it easy. You look so pretty by the Way. I hope you're doing okey. Have a nice Day/Night ^^
Sorry when i ask, but coul i maybe have your Age? If you don't mind of caurse. I'm trying to find new Friends, since i don't have much real friends..
1:32 6:44 9:12
6:45 9:13 ❤️🥺😷
I honestly don't know why you as a consumer of being a CF patient don't get angry to change bed availablity ? We would never put up with such bad service here in Australia, further, why the CF service can't support IV antibiotics at home ? It's a bad model of care , makes patients dependent on inpatient beds, and actually cheaper of the NHS had any sensible staff figuring their books ! To keep patients reliant on inpatient bends not only costs a lot, it stops self education of disease and management, yet also educating the client and family. Sorry NHS your model disgusts me !!!
Have cf aswell
Trikafta!
Hello again