I suffered since I was a child - literally throwing up and feeling sick around bread (&gluten) for as long as I could remember - my family got very frustrated that I was such a picky eater, wouldn’t eat a lot bread, pie, pasta or pizza as I’d complain of stomach aches & headaches. Honestly I thought feeling ‘full’ meant feeling like having a lead cannonball in your stomach - because that’s how I would feel after eating. I experienced low Vit D, iron anemia & calcium deficiency for years and years - was put on anti-depressants for anxiety - gained a lot of weight because I was starving and would eat a lot of crap on top of my meals (overweight but malnourished) - I could pack away snacks all day and still not feel satiated. It was at 22 years old that I *asked* to be tested for coeliacs disease - just before I was about to be referred for chronic fatigue syndrome - that relief to finally have answers was indescribable.
Hi Sophie, My partner was diagnosed with Coeliac Disease 10 years ago. He lost such a lot of weight and was feeling ill and bloated all the time. It's been a long journey. We have both had to learn a lot. It runs in families, he has a cousin and an auntie with it. They all have different symptoms which is why it can be difficult to diagnose.We have been a gluten free household ever since his diagnosis as it makes cooking safer and easier. It can be tough but since the UK government changed the laws on allergens it's a lot easier to shop and eat out. I know you like to bake and it is possible to bake delicious gluten free foods. I use Doves Farm GF flours as they are amazing, you just have to add a little more liquid to regular recipes as GF flours are a lot drier. I wish you luck on your journey, I'm certain you will adapt and learn different ways to make all the foods you love. Sending hugs, Jo xx
I have never related more to another person’s symptoms. For so long I was feeling like I was crazy and no doctor would believe me when I said SOMETHING IS WRONG! A gastroenterologist told me that I had IBS, but I knew that there has to be more than that. I just had my celiac blood test this week and I’m so anxious to get it back.
Such courage you’ve had to find. It’s wonderful to hear you feel a lot better but what a process you had to go through. Great video really informative x
I was just diagnosed with probable coeliac (celiac in US) but they need a biopsy to confirm. I had 2 positive autoantibodies then my genetic test was positive. I've had what I assumed multiple bouts of extreme food poisoning over the past 6 months, then in August it was weekly and I was like there is no way this is just food poisoning. Ended up in the ER with dehydration thinking I would need my gallbladder out! I'm a dietitian and I didn't even suspect gluten could be the culprit. Definitely not looking forward to the gluten challenge when they can get my biopsy scheduled. Thank goodness for Zofran. Hopefully they can come up with less invasive ways to confirm in the future. So far I haven't found a great bread recipe but I'm also an awful baker. But what I will say is Trader Joe's GF bread has tasted the best by far (so far every GF TJ product I've had is good), and Schar's is a close second. Also I haven't found reasonably priced GF croutons, but they are easy to make with GF bread tossed in olive oil in the airfryer on 330°F/165°C then just checking every 10 minutes until they're crispy. Also, local Facebook groups for GF dining where you can share your experiences are very helpful navigating restaurants.
Ive been having horrific symptoms over 15 years, I've been to the Dr over the years and they have put it down to anxiety, my weight, stress, ibs.....i commented on your tictok a few weeks ago thinking I had coeliac. I went gluten free a month ago and started feeling so much better but then noticed blood in my stool...I had a colonoscopy due to bleeding and have now been diagnosed with colitis(another autoimmune disease) waiting for biopsies to see how much of my colon is affected. I since found out gluten makes colitis worse but still bleeding very heavily at the moment but I finally have some answers that I've been fighting for for 15 years. Looking forward to gluten free tips and ideas. Sending you lots of healing energy x
Diagnosed with celiacs about 4 months ago. Found out through a blood test for my liver. Never really had symptoms except being tired. No stomach issues or anything. I still occasionally eat gluten. Going for endoscopy next month.
I've had load of issues when I was younger and was told just go without, eliminate what makes you poorly (just to avoid me spending NHS money) and eventually I was diagnosed with wheat intolerance. And for me keto is just the best x the minute I have something with gluten I'd be suffering x Glad you better now xx
Very similar story to me! I had bloating for ten years and then started to get headaches and migraines about 6 years ago. I just thought it was my hormones causing them. Also had the dark circles, fatigue that felt like I was dragging a block of concrete around, sores on my tongue and ulcers. Lots of other weird things too. I couldn’t tolerate the endoscopy though, I stopped breathing as I panicked. Well done for getting through it! So now I’m gluten free again while a have another long wait for the endoscopy again but under anaesthetic. I feel better gluten free but still have bloating and migraines thinking I’d just been getting glutened . I just noticed when I get them is always on my period 😳 so I need to go back to my gp. Always good to keep a diary of symptoms. Can I ask if your migraines and bloating went away? I’m also overweight and the GI doesn’t think I’m Coeliac because I’m not skinny 😠
Just to say to the people in the comments who have gone GF before the endoscopy - if you're eating gluten free the small intestine can heal to the point the endoscopy won't be accurate, so the advice should be to eat gluten up until the endoscopy so that having gone through that horrible procedure it's actually accurate! I made this mistake. A blood test was postive so i immediately went GF...........by the time I had the endoscopy the gut had healed to the point they were uncertain if it was coeliac. So just when I started to feel better I had to eat gluten again to get a second and accurate endoscopy - at which they diagnosed Coeliac disease.
Great point! I was advised by the doctors to go gluten free after my blood test to then be told 4 weeks before I should be eating it! Luckily mine did show up still x
Hi Sophie I got diagnosed ibs years ago but always still struggled ,since January I've been really poorly but got other health issues anyway so put it down to that after watching your journey a fortnight ago I'd had enough and thought I'm just going try gluten free and omg with in a week my pain in my stomach and eased and the horrendous headaches which I was getting daily have stopped I'm giving it a months trail then its a trip to the gp I do have a hospital appointment tomorrow so I'm going mention it then ,so thank you chicken you sharing your story as definitely helped me ive if I'm not diagnosed celiac I don't think I will go back to my old diet I don't want that pain again its was making me pass out when trying to use the loo I know tmi but us girls have got to have each other back ❤
I suffered since I was a child - literally throwing up and feeling sick around bread (&gluten) for as long as I could remember - my family got very frustrated that I was such a picky eater, wouldn’t eat a lot bread, pie, pasta or pizza as I’d complain of stomach aches & headaches.
Honestly I thought feeling ‘full’ meant feeling like having a lead cannonball in your stomach - because that’s how I would feel after eating.
I experienced low Vit D, iron anemia & calcium deficiency for years and years - was put on anti-depressants for anxiety - gained a lot of weight because I was starving and would eat a lot of crap on top of my meals (overweight but malnourished) - I could pack away snacks all day and still not feel satiated.
It was at 22 years old that I *asked* to be tested for coeliacs disease - just before I was about to be referred for chronic fatigue syndrome - that relief to finally have answers was indescribable.
Hi Sophie, My partner was diagnosed with Coeliac Disease 10 years ago. He lost such a lot of weight and was feeling ill and bloated all the time. It's been a long journey. We have both had to learn a lot. It runs in families, he has a cousin and an auntie with it. They all have different symptoms which is why it can be difficult to diagnose.We have been a gluten free household ever since his diagnosis as it makes cooking safer and easier. It can be tough but since the UK government changed the laws on allergens it's a lot easier to shop and eat out. I know you like to bake and it is possible to bake delicious gluten free foods. I use Doves Farm GF flours as they are amazing, you just have to add a little more liquid to regular recipes as GF flours are a lot drier. I wish you luck on your journey, I'm certain you will adapt and learn different ways to make all the foods you love. Sending hugs, Jo xx
I have never related more to another person’s symptoms. For so long I was feeling like I was crazy and no doctor would believe me when I said SOMETHING IS WRONG! A gastroenterologist told me that I had IBS, but I knew that there has to be more than that. I just had my celiac blood test this week and I’m so anxious to get it back.
I hope you finally get the answers!! It’s so frustrating not being listened to!xxx
Such courage you’ve had to find. It’s wonderful to hear you feel a lot better but what a process you had to go through. Great video really informative x
I was just diagnosed with probable coeliac (celiac in US) but they need a biopsy to confirm. I had 2 positive autoantibodies then my genetic test was positive. I've had what I assumed multiple bouts of extreme food poisoning over the past 6 months, then in August it was weekly and I was like there is no way this is just food poisoning. Ended up in the ER with dehydration thinking I would need my gallbladder out! I'm a dietitian and I didn't even suspect gluten could be the culprit. Definitely not looking forward to the gluten challenge when they can get my biopsy scheduled. Thank goodness for Zofran. Hopefully they can come up with less invasive ways to confirm in the future.
So far I haven't found a great bread recipe but I'm also an awful baker. But what I will say is Trader Joe's GF bread has tasted the best by far (so far every GF TJ product I've had is good), and Schar's is a close second. Also I haven't found reasonably priced GF croutons, but they are easy to make with GF bread tossed in olive oil in the airfryer on 330°F/165°C then just checking every 10 minutes until they're crispy. Also, local Facebook groups for GF dining where you can share your experiences are very helpful navigating restaurants.
Ive been having horrific symptoms over 15 years, I've been to the Dr over the years and they have put it down to anxiety, my weight, stress, ibs.....i commented on your tictok a few weeks ago thinking I had coeliac. I went gluten free a month ago and started feeling so much better but then noticed blood in my stool...I had a colonoscopy due to bleeding and have now been diagnosed with colitis(another autoimmune disease) waiting for biopsies to see how much of my colon is affected. I since found out gluten makes colitis worse but still bleeding very heavily at the moment but I finally have some answers that I've been fighting for for 15 years. Looking forward to gluten free tips and ideas. Sending you lots of healing energy x
I’m so glad you finally have some answers!!🫶🏻 sending you healing energy too!🩷🩷
Diagnosed with celiacs about 4 months ago. Found out through a blood test for my liver. Never really had symptoms except being tired. No stomach issues or anything. I still occasionally eat gluten. Going for endoscopy next month.
I've had load of issues when I was younger and was told just go without, eliminate what makes you poorly (just to avoid me spending NHS money) and eventually I was diagnosed with wheat intolerance. And for me keto is just the best x the minute I have something with gluten I'd be suffering x
Glad you better now xx
Thank you so much for sharing your story ❤
It pisses me off to no end that women are always told “It’s stress” even though we know it’s not normal 😠😤
Men as well 🙄
@@grievousmink3889 I’m more referring to gynaecological issues so those with uteruses which can be men and women and others
Very similar story to me! I had bloating for ten years and then started to get headaches and migraines about 6 years ago. I just thought it was my hormones causing them. Also had the dark circles, fatigue that felt like I was dragging a block of concrete around, sores on my tongue and ulcers. Lots of other weird things too. I couldn’t tolerate the endoscopy though, I stopped breathing as I panicked. Well done for getting through it! So now I’m gluten free again while a have another long wait for the endoscopy again but under anaesthetic. I feel better gluten free but still have bloating and migraines thinking I’d just been getting glutened . I just noticed when I get them is always on my period 😳 so I need to go back to my gp. Always good to keep a diary of symptoms. Can I ask if your migraines and bloating went away? I’m also overweight and the GI doesn’t think I’m Coeliac because I’m not skinny 😠
Thankyou so much for this Sophie 🫶
Just to say to the people in the comments who have gone GF before the endoscopy - if you're eating gluten free the small intestine can heal to the point the endoscopy won't be accurate, so the advice should be to eat gluten up until the endoscopy so that having gone through that horrible procedure it's actually accurate!
I made this mistake. A blood test was postive so i immediately went GF...........by the time I had the endoscopy the gut had healed to the point they were uncertain if it was coeliac. So just when I started to feel better I had to eat gluten again to get a second and accurate endoscopy - at which they diagnosed Coeliac disease.
Great point! I was advised by the doctors to go gluten free after my blood test to then be told 4 weeks before I should be eating it! Luckily mine did show up still x
Hi Sophie I got diagnosed ibs years ago but always still struggled ,since January I've been really poorly but got other health issues anyway so put it down to that after watching your journey a fortnight ago I'd had enough and thought I'm just going try gluten free and omg with in a week my pain in my stomach and eased and the horrendous headaches which I was getting daily have stopped I'm giving it a months trail then its a trip to the gp I do have a hospital appointment tomorrow so I'm going mention it then ,so thank you chicken you sharing your story as definitely helped me ive if I'm not diagnosed celiac I don't think I will go back to my old diet I don't want that pain again its was making me pass out when trying to use the loo I know tmi but us girls have got to have each other back ❤
I’m so glad my video helped you and that you are feeling better by going gluten free!🥺 I hope you get the answers you need soon, sending so much love🩷
How long after you quit gluten, did you start to see improvements, or start to feel better.
About a month for me!xxx
Sorry if it's tmi, but how long until your diarrhoea stopped after you quit gluten?
About 4 weeks until I saw a significant improvement xx
@@SophieFaye Thanks xx
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