MY COELIAC DISEASE DIAGNOSIS STORY | GLUTEN FREE LIFE
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- Опубліковано 2 тра 2020
- I was diagnosed with coeliac disease in 2002 and wanted to share my coeliac disease diagnosis story today in a bid to try and help others! I've also collated these helpful links below so I hope if you're struggling with symptoms and think you may have coeliac disease to PLEASE go and speak to your GP about it!
Please note: I am NOT a medical professional and am only relaying my own personal experience. Please always talk to your doctor if you have any health concerns.
READ MY COELIAC DISEASE DIAGNOSIS STORY HERE: theglutenfreeblogger.com/coel...
COELIAC SYMPTOMS AND HOW TO GET TESTED:
theglutenfreeblogger.com/the-...
WHAT TO DO WHEN YOU'VE BEEN DIAGNOSED WITH COELIAC:
theglutenfreeblogger.com/coel...
EIGHT REASONS TO STAY POSITIVE ABOUT GLUTEN FREE LIFE:
theglutenfreeblogger.com/coel...
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That's so cool they gave you food when you were diagnosed. I definitely think that would be helpful to implement here in the US.
I was cured from celiac disease, no more intestine damage or diarrhea, fatigue, with the root tea medication of Dr idialu🍀 ua-cam.com/users/shorts5Wo9BMbQgmY?feature=share
you were so lucky to be found when you were young. You got the chance to get heald. I been found at my age of 52 and I will never get a complete healing till I die. Is awful.
Awesome, thanks for sharing and mentioning all the key points! Recently diagnosed myself its totally changed my life for the betterer, just going through trying to get the rest of the family tested and your story may just help, so thank you!
I was just diagnosed with celiac disease 2 days ago. Thanks for sharing your story
Trust me it’s not that bad I use to have it for 8 years
I have it as well - its so nice to hear someone else speak about it xx
ME TO DIAGNOSED WHEN I WAS 8
I am not diagnosed, but I’ve gone to the doctors (in the USA) due to a lowered immune system. I went to a hematologist, they eventually referred me to a rheumatologist. I have had joint pain, fatigue, and frequent bouts of diarrhea with stomach cramps from time to time. I thought I had rheumatoid arthritis or lupus, but I recently realized most people don’t have diarrhea at least 3 times a week like I have. I’m suspicious, so I’ve been mindful of the gluten intake. But I’ll take your advice and see my doctor first. I also get migraines! I’m pregnant now too, so my stomach cramps really scared me so much! That’s when I googled it and realized wow this might be it! Thanks for the informative video. I’m also small and was always told I need to gain weight 😅 I’m going to have to grieve letting go of pasta and ramyeon (my husband is korean and we often eat it haha) if this is the best solution. Thank you!!
I'm glad you were diagnosed. I have either a gluten intolerance or celiac disease but I have not been tested. I figured out during the early pandemic that I had a problem with gluten, but access to doctors was hard so I just stopped eating gluten. After a few weeks, I felt so much better that I completely quit gluten and have been eating gluten-free since. I wish I had been tested before quitting gluten, but avoidance of gluten is the same for both conditions so I manage. Thanks for sharing your story. 😊😊I do agree that a gluten-free life can be fine and delicious. I make all kinds of gluten-free meals.
Hi Sarah. Thanks for this video, I had an endoscopy in February and got my diagnosis of coeliac in March. I've been on a gluten free diet since then and due to everything going on I've yet to have any contact with a dietician or my gp so I want to thank you for your content. You recipes and videos have made this change a lot easier.
Ahhh I'm so pleased I could help (and welcome to the coeliac club!) I'm always happy to answer any questions or have a go at baking any recipes you miss so always drop me a message if I can help at all xx
I have never really liked bread and recently now paying attention to my symptoms after eating gluten I have noticed achy stomach aches like you described bloating headaches and tiredness out of nowhere I went to get an allergy test they tested for wheat but I had no reaction so they have are now sending me for a blood test for celiac! Both my aunts have celiac disease.
UK medical student here, thank you so much for sharing your experience. Astonishing it took so long to come to a diagnosis! Times have really changed and it would be very rare for a current doctor to miss a diagnosis so that's something positive :)
Ahh that is so good to hear! Glad this helped!!
I's not that rare to still go so long without a dx unfortunately :( I've been going to my gp and gastro dr. for the last 10 years complaining of stomach issues and all the other symptoms and only just finally got a dx 3 months ago after changing to a different gastro. No one else even suggested celiac in the last 10 years. Canada resident.
I don't think it's that rare even now to go undiagnosed for many years. Doctors are for some reason extremely reluctant to diagnose Celiac, at least here in the UK. I've been through absolute hell with it - been suffering very severe symptoms since earliest childhood, now in my forties and still not officially diagnosed. Doctors have fobbed me off with everything from "you are just imagining everything" to "you just got IBS" (oh yeah - what about the other symptoms then...?), "that's just normal for you", "you are just anorexic" (never been anorexic!) etc etc etc. One doctor insisted I must have Crohn's Disease - guess what, I don't. Another insisted that I "must be anorexic and just imagining that I eat" - it got so nasty I had to take witnesses to the GP surgery to confirm that I do eat to prevent him lumbering me with a false diagnosis of mental illness!
I've been on a glutenfree diet for 20 years now, which has dramatically improved my health - it's not perfect, I will always have some malabsorption issues and bowel symptoms, but I can have a more or less normal life now whereas before I couldn't even walk I was in so much pain.
Never had no support from doctors who have (with only one exception) throughout been horrible and made me out to be crazy and just imagining everything. They have refused proper tests (they did one blood test when I was already on a glutenfree diet so of course it came back borderline - and that was over 20 years ago!) and have fobbed me off with tablets, more tablets and then some. My constant battles with alopecia, anemia (both iron deficiency and folate deficiency), severe vitamin D deficiency, osteoporosis which I already had at 16, amenorrhea, loss of most of my teeth, severe fatigue etc get fobbed off as me allegedly just being too stupid to know how to consume a healthy diet.
To this day, they insist that I "don't have Celiac" and that I should just eat gluten! If I did that, I'd be screaming in pain again with an abdomen grotesquely distorted and severe diarrhea - because that's how it was before I changed to a glutenfree diet!
@@LittleKitty22 what did u do for alopecia, anemia, deficiencies of important vitamins, and other problems??
Are u now able to come up from these or still struggling with it?
@@vanshika6942 No, still struggling with it. The glutenfree diet has improved my health dramatically but the alopecia continued to get worse no matter what I've tried, because I will always have malabsorption. Same with the anemia - I can't take iron supplements and doctors refuse to let me have iron injections.
The vitamin D deficiency I've been treating for several years with a supplement, my levels are still quite low though. I also take folate, but it's just not being absorbed properly by my body.
The osteoporosis got better over the years with estrogen tablets and calcium supplements but it so damaged my bones that my spine is now so damaged that it's like the spine of an old person.
Still no support from doctors. All I get is "just take painkillers".
I just got diagnosed with Celiacs after my mum did last year. I was diagnosed with Graves disease when I was 15 but my mum suspects I've had it my whole life. I was also a small child and my height stopped when I was 12. I suspected you had an overactive thyroid when you described your childhood a little in this video. I'll subscribe now, so informed and well spoken.
i was diagnosed in 2014, when i was 7 turning 8 i am currently 13 turning 14, I just hate it when i get invited to parties and things like that and everything at the part is gluten, it makes me a bit sad but you eventually get used to it. My case is severe, with proper reactions such as diarrhea, vomiting, sore stomach (like SUCH sharp pain), fainting, undernourishment and stomach lining breaking. My Dad has it too but he only reacts with a sore stomach (lucky). when i was in primary school i remember missing so many days because i wouldn't stop vomiting (lasting up to 5 hours). I absolutly hate it though when people are like "I'm going on a gluten free diet" when they don't even need it i just hate it because then when they say things like this "it's not even that bad i can do it", it just makes me want to slap some sense into them. Enjot the food and life that you get given because it can easily be taken away in a second.
Ah, I feel you! When I used to go to birthday parties, I was surrounded by people eating gluten. I always had to bring a cupcake and slice of pizza with me to the party and then I would have to explain to the other kids that I couldn’t eat the normal pizza and cake. My mom has celiac disease, so I’ve been gluten free my whole life. We figure that I also have it based on one time when I ate gluten and had diarrhea and vomited. There is always stuff that I wish I could eat, but is hard to make gluten free.
Totally understand what you're going through.
Exactly!! I missed out on the last week of school, because I kept having a sore tummy and threw up 24/7 because of this and I could not get ANY food down my throat. I also have a severe case so I totally feel u with all the symptoms:/ it's honestly awful and unfair. U have to watch everything u eat, bcs gluten is absolutely everywhere and it sucks
I also have celiac disease. Just found out. My skin is really bad, I need help with my rash but I do feel better 5 weeks gluten free. I had all the classic symptoms. I’m 58 years old. And I had what I call an attack on my intestines. I lost about 40 pounds during that time and I was breaking out more. But I have psoriatic arthritis mutalins. I just thought it was the psoriatic arthritis. But I’m highly allergic to gluten, I’m glad I know and if I could get the rash under control I would be so much better. God bless you , Leslye
Hey! I was diagnosed 2 years ago! Wish you well
Wishes, Anonymous
I was diagnosed with Fibromyalgia but recently i have been getting a lot of abdominal pain after I eat. Something clicked when you spoke about brain fog..I get it really bad, especially while grocery shopping..its embarrassing. Ive thought about Gluten because I don't consume very much dairy. I'm going to ask about getting tested. Loved watching this.
My boyfriend was 'diagnosed' with fibromyalgia 5 years ago, but none of the treatments have helped him. Most of the symptoms are present in coeliac or none coeliac gluten intolerance, so he is being investigated for that now. Fingers and everything else crossed!!
Fibromyalgia is a symptom, not a disease. Try acupuncture.
I've got a test this Wednesday it will hopefully answer alot of questions
Thank you.
You would maybe do that video on your thyroid story.
Be well.
This week, I had a endoscopy and diagnosed with the celiac disease. I feel so good after the endoscopy and get the assurance that I have nothing in the stomach but some lactose and gluten intolerance.
Thanks for your story. Be stick to the diet but don't rely on the medicine
The only ultimate sources is our food and vegiies.
My daughter diagnose this disease through test, this weak,she is just 4,After andoscopy you are fully well and eat gluten
@@amnazaib1571 yes I am doing well. But I skipping all the milk product and less dependent on gluten item.
Hosting hookworms put my celiac disease into full remission. Highly recommended!
I also have coeliakie, and lactose intolerant... I think also as a kid.. But Just did a blood test.. And now i know for sure.. Love your video's and tips and food. 👌🏻🌺❤️🤗
My daughter is 4 and she was having tummy aches and frequently going to the toilet. I thought it was worse after pasta and bread so thought I’d try cutting out gluten. She improved straight away.
I spoke to the doctor and now she’s back on gluten for 6 weeks to have a celiac test. I feel awful giving her gluten again but the doctor said it’s important for us to find out if it’s just gluten intolerance or celiac. We’re half way through the 6 weeks at the moment.
How did it go? Hope she's doing better
My daughter is also 4,same feeling condition ,doctor diagnose celiac disease,suggest forever leave wheat made product,how long time you cut off your daughter from gluten
Hi! I was diagnosed at 14 months old, so I have had coeliac almost 13 years. I obviously don’t remember being diagnosed, but what my parents told me was I had a biopsy(the camera kind).
Oh wow that's a young age to be diagnosed - good you can't remember it!
Thank you for sharing your story . I had all the same symptoms you had. We were a large family in Connecticut USA and ate a lot of bread, beans, potatoes and pasta. I wasn’t diagnosed until my 50th birthday 🥳 along with celiacs disease I was diagnosed with Non Hodgkin Lymphoma which spread to my spleen and pancreas. I’ve also found out I’m allergic to nightshades. Since being diagnosed with fibromyalgia, diabetes, oral leukoplakia and I’ve battled hashimotos thyroid disease. I believe all because of undiagnosed celiac disease. I was wondering if you are RH- bloodline? My mother and sisters are and we all have autoimmune disorders. My Mom suffered most of her life with intestinal issues and passed away at 47. I’m so glad I found your yt channel. Be well ♥️
Oh and I’m allergic to all alcoholic beverages ! No parties for me! 🎉
I’m sorry, hope you feel better soon
I was diagnosed at 4 years old, but I haven't had symptoms in years and I've eaten gluten for a while now. I know that it was ignorant, but I didn't think that it was that big of a deal. My blood test say otherwise, unfortunately. I have to get back to my gluten-free diet and I hate it so much..
I have been finally diagnosed too but took 35 years and added thyroid issues, wonder if they are connected if the body starts attacking my thyroid too and causing a noticable gotire: - ( had a lump in my neck growing I thought It was my adsms apple which luckily was caught before it turned to cancer. I had all those tummy aches my whole childhood rolling around on the floor curled up in a ball. So skinny Its amazing how it affects the body in so many ways. Love your recipes and hope your coping well in lock down in the UK.
Thank you for your video.
Fairly sure I have undiagnosed coeliac disease. I have extremely foul gastrointestinal symptoms that have gradually got worse and worse over the years, starting in my early to mid teens.
I’m also extremely irritable all the time, and have mood swings, depression and anxiety. My mum and cousin have both been diagnosed with coeliac but the doctors seem to be trying to rule out every random disease before they put me on the waiting list for an endoscopy. I’m totally miserable. It has really interfered with my life.
Might be worth going back to the GP now as with COVID they're diagnosing through bloods now I think! Hope you manage to get some answers xx
I went undiagnosed for years but I decided to stop and live a gf life. I'm better emotionally, physically because I live in the west indies sometimes foods czn be difficult but I just eat healthy.
Coeliac is hereditary so you probably have it.
Hi thank you so much for the wonderful GF recipes. I wonder if you would have the time to make a video about your thyroid condition. This would be so helpful to me as I have a thyroid goiter and am hyperthyroid. I have been trying to give up gluten so that's how I'm here, Many thanks
Funnily enough it's on my to-do list and hopefully coming soon! :D
I am now 57. On August 2019 I got diagnosed with coeliac after many years of being sick since I moved from Thailand to live in The Netherlands. Because of very strict with gluten free diet, my health problems get better and better. For my age everything might not get back to normal but I don't give up.
There is a chance that an optimal dose of D3 (750mcg/day) may help as well. There is a book called "The Optimal Dose" about D3. I believe it helps the intestinal permeability repair and auto-immune disease in general. There is also something called the Coimbra protocol, which uses much higher doses of D3 for auto-immune disease.
@@MrApplewine Thank you very much for your information.
I am very interested in "The Optimal Dose" about D3 and the Coimbra protocol. I will study more about them.
Normally I take vitamin D3 (1,000 IU/25 mcg) and B12(1,000 mcg) everyday.
In September last year I got DEXA scan and the test result showed that I have normal bone density.
Thanks for sharing this and great that you got a diagnosis at a relatively young age. I got diagnosed when I was 30 about 10 years ago.
Here’s my story - it’s long but I hope it’s not too self-indulgent and boring - I’m writing it out in case it helps someone!
Growing up I’d go to the GP every couple of years and they’d just tell me it was IBS. I was also very skinny and very short. There’s photos of me next to my school friends and I was up to their chests which wasn’t much fun when you’re a boy. Incidentally, I suddenly started growing at about 17 and reached 6ft 1” by 20 years old but I’ve no idea how or why lol.
In my late teens the GP said I just needed to eat a lot of fibre and told me to eat Bran Flakes or Weetabix cereal every day. In hindsight this was the absolute worst advice possible but I did this diligently for many years until about my mid 20s but it made me so ill. I assumed this was just part and parcel of having IBS and perhaps it was just getting worse with age. The wind I had was so ridiculously bad that my mum thought the house was rotting away and got a professional fumigator out a few times and someone to inspect the crawl space or whatever. I was too ashamed to tell her it was me making the place smell so badly thanks to the silly advice from my GP haha. I stopped with the high wheat cereals around my mid 20s and felt significantly better. Suddenly no more wind and suddenly my waist size not going from 32” to 42” multiple times a day. I was still ill but I felt a big change. I even had the courage to ask a girl out and got my first girlfriend!
Eventually when I was around 30, I was fed up and told my GP I was having diarrhoea 20 to 25 times a day and often having “accidents” and I really didn’t think that was normal. It was a locum GP I saw - a lovely woman - who agreed that it wasn’t normal and took it seriously. Asked me if I’d ever been tested for coeliac disease and I said no so she ordered the blood test which came back positive and the rest is history.
One thing in this video I think is not fully explained is about is the diagnosis. Initially they do a blood test - now this blood test checks for the tTG antibodies. These will only be present if you have coeliac disease and also have been eating gluten. This is why, as she says, you must be eating gluten for 6 weeks before you get the blood test.
Afterwards, if you have a positive test then they follow it up with an endoscopy with a biopsy of your intestines. If the biopsy, under a microscope, shows your villi is worn down (they call it “subtotal villous atrophy”) then you have a confirmed diagnosis of coeliac disease.
I’ve had a few endoscopes now and each time I’ve been offered either just numbing spray, sedation or general anaesthetic. The numbing spray I think is lidocaine - similar to what a dentist uses but with a weird banana smell. It makes your throat numb.
For sedation they give you IV diazepam (that means liquid Valium injected in to a vein) to make you sleepy, chilled out, lowers your anxiety although you’re still awake.
In my experience, I found the first endoscopy absolutely horrific - like a hosepipe is being thrust down your throat and you’re constantly in a state of gag-reflex trying to get it out as you’re held down by people. That was under sedation, so I’d been given IV diazepam.
So these sedatives like diazepam are a class of drug called benzodiazepines which are muscle relaxants. They also give you amnesia but for some reason I remember it all vividly. Each time since then I’ve opted for the general anaesthetic (being completely asleep). I’d never do the sedation route again but that’s just me lol.
You are then (here in the UK) entitled to food by prescription. Different counties have different allowances (some have zero allowance) but in Scotland, we can get a LOT of food. I get 6 loaves of bread, 8 pizza bases, 6 boxes of pasta etc. each month free of charge which is pretty amazing so I can’t complain.
I think in England you have to pay for prescriptions though.
It’s irritating that it took so long to get diagnosed. I think GP’s are - or at least, were - just not so clued up about CD. Anyway, I hope this doesn’t sound too depressing - I’m much happier now and have discovered a real love of cooking which is great - but I hope my experience helps someone
I got diagnosed a year or two ago when I was 11. but my tTG levels were 110-140 I can’t remember, so I didn’t need a biopsy.
I loved pasta and had chronic pain, nausea, diarrhoea, constipation. Mainly post lunch time because I didn’t eat breakfast.
I have been diagnosed with coeliac disease and an underactive thyroid
Thanks for sharing your story! I was 30 before anyone decided to have a look at potential coeliac. Just got my diagnosis the other day, FINALLY an answer! 15 years of not much gut symptoms but unexplained anemia resulting in fatigue and psychological symptoms. As I’m female, all the docs I had seen about my issues were men and kept putting the anemia down to heavy periods 😂😂
So did you improve?
If you find it early in life you’ll never know what a regular sandwich is like ,what food is like from a carnival.Places like stadiums and theatres really need to pull their head out of their 💥 .You have never had options for me but I can be thrown out for bringing my own.
Those are the kind of situations that have always bothered me .
They missed my allergy since birth...1965 . Treated for numerous diseases causing high fevers and pain. Scarlet fever, rheumatoid fever... yada yada. Luckily mom cooked whole foods and wasn't big on sweets. Always skinny, abismal teeth, dentists are another PitA, chronic fatigue would set in at the ost opportune times. Passed out on the bench between shifts in hockey. By the time I was 16 the more severe symptoms showed up. Always dumb as a stick after lunch and 0 memory. Arthritis started in my feet and worked its way through my body, some times multiple joints at once. Doctors best plan was aspiration of the joints and cortesone, nsaids and a heeavy diet of codine. I knew it was an allergy.
Found out a 7 yrs ago it was either peanut butter or bread. Doctors still haven't made a diagnosis and I'm dealing with nearly 50 yrs of the damage done to my body, mostly joint issues.
Thanks for sharing! About endoscopy, I got it for something else (GERD) and I wasn't sedated at all (a common practice in my country apparently) and I have to say it was absolutely horrific, so for anyone who might read this I strongly recommend going for sedation or anesthesia if you can. I still have nightmares about that damn tube :( Going to ask my GP about celiac disease now, have lots of symptoms apparently.
I had an endoscopy in the UK and wasn't sedated. When they inserted the tube I had a violent gag reflex and 2 nurses needed to hold me down. It wasn't intentional by me, it was just a reflex action. The experience was horrible, in my mind time passed differently though. I thought the endoscopy lasted 3 minutes, however the doctor actually informed me it was 7 minutes. I would recommend the sedation if possible
@@adkh5826 I also wasn't sedated here in the UK! It was awful!
I was sick with all sorts of issues for years - treated for depression anxiety, had sleep studies, saw all kinds of specialists but no one could tell me what was wrong with me. I kept getting told I was overweight and needed to exercise more. I had my gallbladder removed bc it was no longer functioning. I was still sick and even after my gallbladder surgery I was still having gastrointestinal issues and abdominal pain. I was blood tested for celiac disease about 7 years ago and my TTG- IGA antibodies were positive. However, My practitioner at the time said it definitely was NOT celiac disease, only an intolerance and to go on a gluten free diet. I will admit I cheated a lot over the years because if it wasn’t actual celiac disease then it wouldn’t cause damage but for the most part I ate gluten free. In the last several years I started developing a rash that would not go away. I still physically felt terrible all the time and have lots of trouble concentrating and focusing with lots of diarrhea and reflux and stomach issues. I also started having SVT/Palpitations. So I started researching celiac disease more on my own and found more information about the symptoms and then theres the fact my antibody test was positive. Im not a doctor, but since reading what I have along with my positive antibody test, I believe I have celiac disease and was misdiagnosed. I have really been trying to stick to a gluten free diet. I don’t want to go back to eating gluten regularly and be sick and in the ER all the time with heart issues just to have an endoscopy but it’s really frustrating not knowing for sure.
If I were you I would treat it as celiac disease, sounds like you are positive for it with those antibodies. Treat as celiac and see if you feel better over time! God bless :)
Thank you for your story! I got my diagnosis about 3 weeks ago. Shortly after my daughter was born I started fainting daily, started having seizures and constant cramps, and I was just always in a brain fog and so fatigued. It took them 4 years to figure out what it was. But 3 weeks on a gluten free diet has made me feel tons better, although pretty sad often when my partner can eat things that I love that I now can't eat, but I'm working on finding alternatives!
I really needed this comment. I've just recently got diagnosed with Coeliac and I've had such bad stomach cramps, daily tension headaches and just feeling tired and frizzy and I got so terrified. I've been scared I have a serious neurological issue, like a brain tumor or so, since my headaches have been on-going for a month now, but perhaps it really is just coeliac. I've had chest pains for the past 3 and a half years, along with nausea, diarhea, vomiting, fatigue, not being able to eat, cramps, stinging, it's been very stressful. I'm still very anxious about coeliac, especially the headaches. I can't imagine what it must've felt like for you as a mother to suddenly have seizures and fainting episodes. I feel somewhat better knowing someone has had a somewhat similar experience with coeliac. Hope you and your daughter are well :)
@@emmasemradova I’m so sorry to hear that!! It’s so hard to live a normal life when you have issues like this just constantly in the way. Going in for a sleep deprived EEG next month to see if maybe I have epilepsy. Although frankly I’ve been wondering this week if it’s not the fact that 4 months after I had her I started vaping because I was so stressed. 3 months later I had my first faint. And lately it’s only during my ovulation or period that I faint or seize. So maybe I’m just hella sensitive to nicotine during that time so I’m slowly weaning myself off of it now. Other than that it’s been tons better. Been a year next month since I got my diagnosis and the difference in how I feel (apart from the occasional faint/seizure) is night and day. Maybe there’s something you’ve recently started doing that’s causing you issues still? Hope you find some answers!!
@@Nevermorenest Thank you! I'm sorry you had to go through all of that stress. It's awful honestly. I hope I find some awnsers soon! It's just that the wait lists are very long and it's all taking so much time :")
@@emmasemradova really does take a long time.. took me 4 years to get my diagnosis, and I’ve waited for this EEG for 4 months now lol
@@Nevermorenest Yea it took me 3 and a half years to get diagnosed and now I'll probably have to wait 5-6 months before I can go to a Gastroentologist or neurologist:(
I think i have a grotty office carpet, had ceoliac for years . Still a pain and have the problems to deal with we all do..
Loved the video. There isnt much help from the doctors with reference to ceoliac disease which is sad .Do you remember the bread in tins😂
They just automatically put us out here in my state. I just went in again due to stomach and digestive issues because I have no energy with numb feet and my hand and after not eating much for days I decided to make myself eat so I made pancakes and ate 3 of them. Within about 30-40 minutes I had severe abdominal pain where it doubled me over and had my guts just blow up with gas. At first I could pass the gas and get a tiny bit of relief but then I kept feeling like a needed to poop but it hurt so bad sitting on the toilet and at first nothing would come out. I felt so terrible that I kept going from the bed to the toilet and was having the cold sweats and high heartbeat and thought I was going to pass out. Finally the 4th time up I had a super soft and smelly bowel movement and it finally relieved the horrible pain. I just got back from getting blood tests for Celiac and my B vitamins so we will see. I don’t know what else to think anymore. I already have Fibromyalgia and arthritis with brain fog and also starting menopause so I’m feeling like absolute shit.
Like your blogging thing. Discovered about 18 months ago that I'm either gluten intolerant or celiac. Chronic bad guts, no need for details, bloaty and all that. Laid off gluten, immediate improvement. Phoned doc and was told to do the 6 week gluten eating thingy. No chance. I'm not walking around with a bog strapped to my backside just to prove what I already knew. Now going gluten free. Was a nuisance to start but getting used to it. It's all out there, even beer, yippee, just a case of being very particular and very vociferous to EVERYONE about your condition. And be prepared to getting used to reading every label when you shop. Do it, you'll be surprised there's quite a few things out there that are free of gluten but not advertised as such. Good luck. I know it's a pain , but it beats being dead apparently.
Nippostrongylus brasiliensis is a type of nematode/gastrointestinal roundworm or nematode. If I’d had this disease this would be the first thing I’ll will try to find out if I had it and by fixing this type of parasite the disease should be gone with it. I think it is worth to check on it at least.
I just found your channel. I've recently found out I may have Celiac. I tested positive on a blood test and my doctor was like welp, just try a gluten free diet and see if you feel better. I honestly feel extremely angry with my doctor. Because apparently I tested positive 4 years ago and she randomly just mentioned it during a recent appointment and she certainly didn't care to mention an my further testing. I'll definitely no longer be seeing her but she's probably damaged my body by not informing me about this 4 years ago!!!!!
That is terrible! I'd definitely complain, so sorry to hear you've been living with this for so long but hopefully now you have a diagnosis you can start to feel a lot better and heal your body xx
I got when I was nine and ignore it but now in pay attention
Endoscopy was awful for me.
I had no sedation. ( I have a lot of allergies)
I still have anxiety whenever I think about it.
If I ever need another one they would need to put me to sleep.
So about 2 years ago I noticed I had horrible stomach pains and so I tried cutting out gluten and it went away but my mom wants to get me tested for celiac disease but I don’t know what to do because I have to be eating a gluten diet which I haven’t done in 2 years and I would be in extreme pain again so I’m kinda in a tricky situation here
I had it for 30 years before diagnosis
The stomach pain made me give up, i wasnt happy about removing gluten because i lost some weight size after switching gluten free which me frustrated now i am not as big as i was
eat more peanut butter eggs and red meat
I had celiac disease ever since I was 7
Hi i’m 22 years old and I’ve never really had dietary issues before, but recently I’ve been having dietary issues for the past 2-3 months, and I just thought I was drinking too much coffee, recently I went on a diet for an unrelated reason and it’s the egg diet ,and on it my stomach, pain and dietary issues have dissipated quite a lot today I ate a subway sandwich and I’ve been in pain all day, I know it’s possible to develop coeliac disease any time in your life, do you have any advice in regards to this I also live in the uk so anything you mention would be really helpful
Thank you
I didn't understand before your endoscopy you had TTG,TTA tests for celiac disease because I am also so weak and my BMI is low very low and I had TTG,TTA antibodies tests doctor didn't told me about any endoscopy or other test but these two tests were normal the antibodies were in normal range.
But I have learnt from someone that TTG,TTA tests sometimes gives wrong results you cannot rely on these tests.....
Kindly inform me if you have any idea it would be helpful.....
I don't know why people are told to buy these special gluten free processed products on a small section of the shelf. White rice has existed for a long time. It is a simple product you can buy for very cheap in bags 15 pounds or larger. Also, nixtamalized corn flour is very good. I don't know if they have it in the UK, but it is in many parts of the US, especially at mexican or korean supermarkets etc. Then meat and all animal foods are gluten free and of course if you want vegetables or fruits those are gluten free too.
Like the caveman diet
my friend is named claire and she got a coeliac disease at the age of 4 and i do not know how did she get it
Just been diagnosed just feel so lost xx
They never done magic eye xx
I know now my body if i eat gluten i get stomach pain and cramps, noisy ,diarrhea,
Headaches
@@blackpillaudrius3015 do you get yellow stools?
Same here faye😕
@@rses916 yellow, sometimes dark n greasy, river of half digested food. It's always a surprise
Glad you are doing well. I also have celiac disease and have lost 20-25 pounds. How long did it take you to gain weight again after going gluten free? Did you gain a little bit of weight each month?
Theres so much variety of foods in Africa that is gluten free like tropical fruit and veg pumpkins several types of beans yams coco yams cassava sweet potato green bannanas most of these can be used in baking
I have had celiac disease since i was three and I am twelve now (almost thirteen) 😔. I don’t remember what normal food tastes like at all. 😢
It tastes the same! Actually, I think gluten-free food is better than """"normal food"""". I have celiac too.
I wish I didn't remember I was just diagnosed 2 days ago and I am 16 now and I really dont know what to do without gluten
@Syd Letko you will pull through!!! Once you get used to it, it’s not as bad as it sounds.
Syd Letko hey, it’s easier than you think. Nowadays there’s gluten free food everywhere. I’m from Portugal so I don’t have many options in here, but I totally can live with it. I started cooking more and the best side of having celiac? When someone asks you for a piece of your food you have the perfect excuse to say no hahahaha I’m 16 too. I was 14 when I was diagnosed and it was totally fine for me. If you wanna know more about celiac disease or know the best ways to face this “thing” you can count on me. My instagram is @_biauhu_
@@beatrizaguiar3815 Hello Beatriz, my child is 8 years old and he was diagnosed 5 days ago he didn't have any sympthoms other than he is shorter and less weight than the avarage , could you help me if you had any sympthoms since you started your gluten free food?
Whaaat! I was diagnosed in 2017 and my GI doctor didn’t do anything other than tell me to google and use a gluten free diet😫😫😫😫he was so horrible and it’s been a journey but I would have loved free samples or assistance because the switch to all gluten free was and still is difficult. Gluten free food is still very expensive.
Oh yes general physician don't know much about this you better go to a dietitian I am a gp from India 😊
I think I have this
I like your nose pin.
Eating gluten just before i got diagnosed
Any good news about your thyroid? (Sorry for off-topic)
Not yet - it's a work in progress!!! I'll have to do an update on that soon!
does this disease effect your height growth?
I've had chronic constipation for years, normally I do to the toilet once a week, I thought it was normal. I went to the doctor for something else, and they just were like, how often do you go, so i said about 1 weeks, not phazed, and i maybe go to the toilet for a pee once or twice a day, i can go for about 8 hours without going, my family is quite tall but im small I've gotten these blister rashes with my exzema i get TERRIBLE stomach aches. Also, do you know when you get a gut feeling something was wrong i gto that, we've been to a&e multiple times and they gives me laxitives and i always felt something more was wrong like, why? I told my mum there's something more but she brushed it off, I've had laxitives but as soon as a lay off them it comes right back, then my egg allergy came, and we cut it out but i still had rashes, constantly, and we noticed whenever i had pasta it appeared, I would be constantly bloated, I always said to myslef i was fat, but reducing the gluten (still have to keep it in for teh test) has made my bloated stomach go down and i actually realised its flat, FLAT! I'm constantly tored like i can sleep for 14 hours and still get multiple naps in, my uncle was confused when we were on holiday. Its hard, it got worse over quarantine, my passion was baking and i had to stop it would've been easier with eggs, but the thing is, my doctor also told me what happened to me is rare, i grew out of a childhood allergy, then i came back but worse now i can't even eat anything with it in without swelling. And my gp was sort of useless, not to be rude, they're always just like go to A&E, when a&e says it's THEIR job since that's what they're better at, or when we said we think i have an allergy that just came, he said "well i don't think allergoes can just come for no reason" my mum who knows all about that then corrected him but the last thing that threw me iver the age was a comment one of the senior doctors had basically told the gp "well fi you know for definite that its egg, do you really need to get tested and go to the allergy clinic, my mum was mad, my the school nurse made sure we got a place, im currently waiting for my appointment and my mum is looking into celiac disease a bit more, there's a possibility sorry its long and messy, what do you think?
Dovete dare gli ingrediente e peso di tutto grazie
Was just diagnosed today, I do not want to die I’m only 28
Make all your own food. Don't go out to eat at all or trust anyone else's cooking. Do not eat anything that is not labeled as gluten free (really just get away from processed foods, gluten free microwave meals will still make you feel like garbage). If you ever do go out, take a glutenease pill just in case. I would also recommend removing grains and tough to digest veggies. I would avoid beans, lentils, legumes (soy nbeans and panuts) and dairy. For me, rice, potatoes, chicken, beef, and squash are the only things I can eat without feeling bad. If food that is supposed to be digested in the small intestine isn't broken down properly, it causes issues in your large intestine. It is a terrible life transformation, but you MUST BE VERY STRICT WITH YOUR DIET TO START FEELING BETTER.
Does complete blood count shows Celiac disease? I just notice my stool it yellow sometimes, and have a lot gases and acid reflux. My complete blood work came out normal
No u need to ask for it
Right now I m suffering from celiac disease . Is kiss safe to do in relationship or not?
Bcz somewhere gluten is transfer by kissing.
See my video is this gluten sensitivity and very weak??
Am tired for being in pain all the time
its not scary..haha..just imagine doing colonoscopy alone already scary lol
Be an interesting search on E Bay or Amazon
Is not that bad, I had one when I was a teen. You’re asleep the whole time
cOeliac?lol
Judging by your videos you should get your thyroid checked. I am concerned for you.