'Living With MS' - Getting Dressed
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- Опубліковано 28 вер 2014
- 'Living With MS' is a weekly video series demonstrating how Multiple Sclerosis can affect a person's daily life. Each week will have a new video highlighting daily activities and how MS has altered how they are performed.
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What a great example of positivity for people with MS, as well as every other human being struggling with challenges. Your videos give us hope to see the glass half full and to look for the silver lining in everything that is difficult.
I have a lot of respect for you for posting this helpful video and maintaining such a positive attitude throughout.
Patience and Positive attitude you have is WONDERFUL...God Help and Bless you in your daily life! :)
Well done my brother. I'm still in the earlier stages of PPMS. I hope I keep the attitude you have when I start losing more of my legs.
My mom suffers from this and she always cries and gets broken so I showed her this video and u really taught her how to be strong and positive and I just want to thank u for inspiring people to deal with this disease and thanks to u if I get this disease I am sure that I will be as strong as you❤ Stay strong
Thank you for the kind words.
My boyfriend has MS, he is nowhere near where you are, people can't tell he has some sort of condition, but he is very scared of what might come in the future. He is a pretty active person, probably more than I am, and the thought of not being able to go about completing all the activities he enjoys seems to scare him more than anything. He has told me that, if his condition worsens, he will break up with me, as he believes his mood will bring me down too and that he will somehow be a burden in my life. It hurts seeing people with limited motion abilities and thinking about how my boyfriend could wake up tomorrow in the same condition all of a sudden because I know how much it will affect him, so I'm trying to familiarize myself with the toughest parts of having severe MS symptoms in order to help him any way I can and support him emotionally the best way possible. I know that, if it ever comes to that, I'll have bad days too, feeling that I can't relate to what he is going through, maybe even being torn between what I want to do for myself and what is best for him and us both, as a couple, and I really hope we'll make it through these bad days. I really don't want to quit the fight. I want to be there for him, I want to be able to promise that to him and keep my promise. I don't understand everything he feels -or doesn't feel. I don't have to understand it to believe that he is living with it, I don't have to understand it to be his best friend through everything. I love him and I want to be next to him no matter what happens and prove my love every step of the way. Having a disabled boyfriend does not scare me. Having a depressed one, because of his inability to function the way he used to, though, does.
Well cookie you're a sweetie.Remember Christopher Reeves ( superman) when he got disabled, if the wife just left him because of his disability she sad to say got lung cancer. You see every person living will eventually get sick but jehovah promises one day at isiah 33:24 no one will say i am sick.
Don't pressure yourself too much. After seen you I understand I have nothing to complain about.
Thank you for being kind, brave, and sharing.
“Hello, foot!” I was diagnosed a little over two years ago. You are inspiring, to say the least. Fight the good fight, brother. Much love.
Thank you!
this is exactly how I do it too !! I totally understand the struggle, MSer for 26 years. Thank you for having the courage to share Robert.
Thanks for sharing, Robert!...Don't give up and keep those videos coming!
Thank you for sharing your experience, as a medical student it is vital for me to not only better understand MS but also the people it touches. You're courage inspires me even more to find more effective treatments!
Michael Rozum dr terry wahls diet
I hope you will buck the indoctrination of big pharma influenced western medicine....I have MS... I like quality coconut oil for fatigue, cog fog etc.... Take about a tablespoon with breakfast, lunch, dinner. I like Dua Dua brand, its the best! not processed at all, organic, extra virgin. Dont worry bout all
the big pharma & cooking oil industry propaganda against using it. I also hear fantastic things with brain injury patients when treated with ambien during the day when "active". would like to see if it helps MS patients...
I am sorry it takes you that much difficultly to get your shorts on. Thanks for posting this - it sheds light on the M.S. struggle I didn't know much about. Hugs to you.
Thanks for doing these videos!! It's so hard to explain this in words alone!!
Yep! That's what I do every day too!
More power to you my man.
Great video, thanks for sharing your daily trials of dressing. I also have MS and have trouble dressing.
You’re my hero!! I just wanna hug you and hold you tight!! Blessings!!
Really helpful to watch. I am a support worker and found this interesting to watch before meeting my client.
Mat God bless. Thank you for sharing.
This video is so helpful beyond words. Your amazing in helping so many.
Brother in God, Bless us! Im almost the same you.How ever, the life continues. We all to be strong, always. Our soul its all
You are simply and truly a champion.
Thanks for sharing bro. God bless you
I've had MS since I was two. Now I'm 41. This video made me cry. This is so hard to see . This is what I do in the morning to. It's really hard
You are not alone my friend. Stay positive!
Thank you for sharing! Thank you for being who you are and may the Lord bless you!
Thanks for a great video! I am studying to be an Occupational Therapist and this gives a real insight and I hope I can use what you have taught to help others in the future.
great courage..im 52 with primary progresive and lonely and depressed
George your not alone love you
@@jackieredding9019 I was depressed for a year until I started my vlog. This keeps me going now and motivated to look for the Silver Lining every day.
take a look at ua-cam.com/channels/R0m0da7tGP_qn-dnRr6SkA.html?view_as=subscriber
and let me know what you think
Cheers,
Al
You are motivator.
i just got diagnosed with relapsing remitting MS. trying to understand this disease more i’m only 21 so it’s definitely scary thinking about my potential future but i guess take it one day at at a time. us ms patients gotta stick together and stay strong brother.
I'm sorry to hear that Good luck to you
Robert Welker thank you 🙏
Great courage... You know Robert my husband is ppms and he's fighting same as you... I wish if there is a cure bring our life back before ppms... It's tough and frustrating but we're fighting hoping one day we win.. thank you for sharing your experience with us
Thank you for watching my video! And best wishes to you and your husband.
Thank you for the video.
Watching in 2024 hope your still around
Stay strong brother!!
Good afternoon 🌞 god 🙏 bless you and keep up the good work
God bless you!
Hi, I'm very impressed with the way you handle yourself. I'm hoping to get back on my feet after about 4 years of sitting around. It's great to see how much you can do for yourself. I'm curious about the way you got up in a previous video. What is the type of bed do you use to help you sit up? I'm just beginning to research those kind of beds. On first try they seem extremely expensive. If you have any tips I'd like to hear them. Congratulations on your great videos. Thank you!
Thank you for sharing this, its a bit scary cos I'm a fair bit off where you are ... Best wishes 🌻
Well done, Warrior!
Thank you!
I applaud you for being able to dress yourself, I don't know how you situation is in 2017 if it remains the same or it is worse. I just found your video and can relate because I have PPMS, it is a slow progression and only affects my right side at this time, walk with the help of a brace on right leg and a cane and my fear is that eventually end up in a wheelchair, anyhow God bless you.
God Bless you
God bless you
I know the struggle my man i been living with MS since 2011 i am 50 yrs old
Unless you have this disease it is hard to know what this takes. I know. This is exactly how every day begins.
Toda mi admiracion hacia vos.
Well ,this what i do too....
With my narcissist husband shouting in the background that i am too slow
The words cut through me n i feel hopeless
No help from him whatsoever 😢
I cook clean bathe myself, dress myself n take care of 2 kids who also have other autoimmune conditions
Its extremely hard while my narcissist husband has the time of his life
Im like your case but your are greater than me i will learn from you
hello, a really close friend of mine has been recently diagnosed, is this the later phases of the condition ? im trying to gain knowledge of ms in order to help him
Wow Hard way, but all the best for you.....
Laea van Moon Yes it’s a hard way but the only way if you’re on your own.
Hi, I am learning about MS for my BTEC Level 3 Health and Social Care exam. How does Lumbar Puncture help monitor MS? I admire your positivity and resilience especially considering how unpredictable MS symptoms can be. Thanks - Josh
Thank you Josh. As far as I know lumbar punctures are only for diagnosis,
Go get lemtrada and see if it helps. I start December 10th , 2018
love you
Please check out Chris Cowell's video's. He is a quad from sky diving but I have learned so much from him on living a good life on my own as much as possible.
Update please
Rob ms is a mind thing
I love you God bless you my freind
+Hizzy Razz Just like he's blessed him with this wonderful condition?
leon floyd Stop shoving your atheist beliefs down my throat. What a basic and absurd reasoning you have of God.
Thanks for doing this Robert, do you mind if I use this footage? The footage will be used for a course called Patient Perspectives at the University of Edinburgh for my degree in Regenerative Neurology (MSc). I have a task of creating an online lecture not so much for viewing as much as using various strategies (diagrams, audio, text, and videos) to present the clinical side of the disease--which arguably goes a miss. To my knowledge it won't be shown to students (unless you wish to spread the video), i'm sure it will depend on my grade aha. Either way, this is at the graduate level and is a very serious conversation but I figured it was appropriate to ask for your consent. Thank you
Absolutely!
Cheers mate! To show people how it's done ;) take care@@RobertWelker
hi. just doing a very small project in my biology class about nerve/brain related diseases. ms is one of them. ive noticed when you speak the issue i notice does not happen, but often when you go to move you arms or hands or torso, you stop. as if you hadent told your body whAT to do or it forgot mid stride. is this a normal condition of ms? could you explain a little bit on this. wish you all the best sir. thank you for posting
SFC, ret. USA. Suffering MS, dressing is similiar. However, I do it somewhat differently for added safety.... low bed height ...same height of padded shower chair..a reachable bar on wall so balance one hand on bed..other on bar stabilizes me upright. Behind chair is a small open cabinet..for diapers & clothes. Another dresser with socks. tshirts. shorts...and in front of me by the wall..on top also holds water bottle..pills..clock radio helpful as well. Shoes leaned up with sock on top of them..ALSO.in between bed and chest... A walker (front has wheels rear has rubber tips) STABLE DRESSING ACCOMPLISHED.. ALSO BY THE DRESSER US A SMALL WASTE BASKET! (change diaper at ded time)...walker also has a soft pouch which holds 2extra diapers..and phone...nail clippers/files...also use a wet cooling towel for daytime?nightime.
My mom has MS too but she is 24/7 in pain. I was wondering if a lot of ppl with MS experience pain 24/7 too? Thank you!
Angie Quintero My pain isn't 24/7. It's very often though.
Have you ever looked into the wahls protocol or.. the ann boroch diet for MS? both these women were in wheelchairs and reversed their MS. Only curious not telling you to do anything. I have alot of MS symptoms and steadily getting more debilitating.. not diagnosed yet. Looking into natural ways to reverse or slow it myself.
SoulSolaris I currently eat a diet based on the Wahls Protocol Diet. I'll have to look at the other one as well. Thank you!
Robert Welker The other one, she basically went about ridding her body of candida and once she put the protocol into place for that slowly her symptoms started dissipating. I have a woman on facebook who has been in a wheelchair for 20 years and been on this protocol 2 years and can now walk with the assistance of two canes and the help of her husband at times aswell. Im not really sure which diet/protocol i should be doing. The candida diet is much more strict plus added supplements to kill off the fungus. Def look into it if you're curious :) I dont often suggest things to people incase of accidentally offending them. Its all very confusing, isnt it. I do hope you find something that helps to some extent x and thanks for replying.
This is so me
Ive have MS.for 20 years now.and it really sucks.
Agreed! Best of luck to you.
thank you for this video I have m.s. too I have been angry with putting my pants on you make me see that I'm not that bad yet thank you and god bless you sir.
To anyone who finds my comment that is suffering from multiple sclerosis: speak chiropractor, try the Mediterranean diet and use Herb's turmeric, ginger and Asian ginsing, Blessed be.
i am 6 foot 6 inches tall 370 lbs and do not look foward to this day
Getting dressed before leaving the bed is much easier.
What ms does he have I have rrms almost 3 years now
Primary progressive. 16 years now.
I’m the same , awful disease, hate it
h ml