#MyMSMoment
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- Опубліковано 13 бер 2022
- Stories of life with multiple sclerosis are told through the everyday moments people with MS experience.
The National MS Society amplifies the stories of people living with MS to raise awareness - until the moment we find a cure.
nationalmssociety.org/msawareness
![Mood & Cognition in MS: [What you can do]](/img/n.gif)
The first joke I was able to laugh at was “I’m not drunk. I just have MS.
😅 I felt this.❤
I'm sorry for everything you have to experience. I went completely blind in 2010 and I was diagnosed with MS. I am 26 now and my vision is back but it isn't the best but I can see, soon after I got my vision back in 2010. I soon lost my feelings in my legs, so I couldn't walk. I had to use a wheelchair and then walking frame. I had to learn to walk again but I can walk now and see, so I am very grateful for eveerything. Thank you for sharing
it gets worse after spms...cause you never recover...get hsct before you
become spms.
25 years now for me. 26 years old to 51 now. It’s been a roller coaster. I live and love my very best everyday. That’s what I do.
God bless you
🧡🧡
Hello , my friend has ms , please is it possible to connect with you looking for a support group
Thank you so much! As a 24 year old girly who just started diagnosis this makes me feel so much stronger inside
@@nataliawitek6765 Yes! Consider MS our unwanted friend. Surround yourself with unconditional love and support. Start a high efficacy drug that you’re comfortable with. And live your very best life. Like I said before MS is a roller coaster but you got this Mama. My very best to you!🧡
I have been diagnosed with multiple sclerosis last week. I need to see this because it gives me hope.
I'm sorry to hear that , I hope you doing well and I'm sure you going to be stronger than the MS . My wife just got it and I'm doing everything to make her feel beter . I made a lot of research to understand it and how to deal with it , keep up the good feelings and god bless you
I was diagnosed in February
I am Sorry about that. However, there is a medical student in Dar es Salaam, Tanzania that I wish you connect with. She is so inspirational and she was diagnosed with MS in 2017. Dropped out of collage. Went through all the pain and all that cometh with MS. However, last year she went back to collage and she is doing well. I wish all MS patients to talk to her.
I will be most happy to connect you to her.
We need a cure.
I got diagnosed in 2020 and it was the biggest fear finding out I had MS. It’s still hard for me and I feel depressed all the time. It’s really hard for us and we keep moving and we are warrior’s.
I feel that way too and I really want to be in a group with people that deal with this
Hey, I was myself diagnosed late in 2022, getting good care and care and hope everyone get same help
What Specifically Does the MS Society in the United States do for YOU or HELP YOU IN ANY WAY? I LIVE IN ILLINOIS. IN 2020 WE IN IL RAISED 21 Million Dollars. Wow & Wow. WHERE DOES ALL THE $$$ GO EACH DAY.MONTH/YEAR/ HOPE FOR A CURE WHEN IS THE MS SOCIETY HELPING ANY OF US?????????????????????? TIMES UP, TIME FOR A CHANGE IN 2023!!!!!!
What medication are you taking and is it affordable?
Yes we are!
I was diagnosed when I was 13.I have relapsing remitting MS. Lately, been struggling with spasms, tingling sensations in leg, generalized fatigue as well as cognitive decline. I cannot easily remember things and recent memories.💔 and whats more heartbreaking is surrounded by people who cannot understand my symptoms.
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Multiple Sclerosis with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️
Sorry to hear that can you walk without help?
@@dragonfire3727 hello there. Month of June was very hard and painful to walk with spasms during 3 am always, it lasted for a month. But then by July I was referred to a cardiologist with other concerns not related to MS. Symptoms of MS is like pseudorelapse. You can feel it then goes a way, not psychological for me since im not feeling any anxiety just cant control it. For 2 weeks I walked with assistance walking like an 80 year old. 😂
I was diagnosed in 2020 also ... It's a real battle everyday .. I was humbled real quick .. Never take anything for granted .. I will never give up or quit ! And I will never lose hope .. I am a MS Warrior !! May God Bless you all ..
I was diagnosed five years ago, and with more than twelve lesions in my brain Jesus has kept me walking and by HIS power in all honesty my cognitive function is getting better. God can make anything possible. Even my doctor marvels at my progress let alone people when I tell them I have MS.
We are all warriors living with this horrible disease 😢
I am one of the Warriors I also have MS living it for 4 1/2 years it’s been very rough for me I’ll be honest it’s even rougher because I’m a single mother with a seven-year-old son and I am terrified because I live alone and I don’t know when another MS attack will happen and he my son is only seven he can only do so much he doesn’t really understand and grass How horrible this is but he understands it in his little way he understands when mommy doesn’t feel good mommy can’t do very much he tries to help in his own little way but it breaks my heart to see his little face knowing he can’t do anything to make me better and I hate it 😢
Do not know how much longer will I be able to live by myself with my son well the only way I could say it we’ll see what this new year comes and I’ll see what happens so wish me luck!!!!
Stay away from negative thoughts anxiety it’s make things worse
Talk to a psychologist that’s going to help you feel better.
go paleo- avoid 🐷and 🦐🦞 any crustaceans. Diet free from fake food, starch, sugar and bad fats will give you relief with long periods of remission in between attacks. I know this from personal experience. Food is a huge trigger for most of the symptoms.
My wife was diagnosed today….. naturally it brought me here.
I’m a guy who doesn’t show his emotions in fear of having my wife lose hope; but I can tell you now in absolute honestly…… I’ve never been more afraid in my life.
Hows it going now?
Lucky wife. No one wants to believe anything is wrong with me. Best advice I can say is listen to her. 😊
@@chap97 she is having her transfusions every 6 months (next one in June) AND we’ve just found out we’re pregnant with our first child 😁
@@Invited2theBBQ thank you x
That means a lot
@@phoenixmackenzie01 how is your wife and you all doing? Is her treatment treating her well? I myself am starting my own MS journey. Not sure what to expect.
I was diagnosed in 2021, it has been very rough but mostly mild in comparison, and I am so thankful I can still walk. I do however, struggle with the fear that one day I am going to wake up and be unable to walk.
This video really hit hard, when the lady was talking about waking up without being able to feel her leg, that nearly made me cry, because is a terrifying thing.
just get hsct so you don't become spms...
I got diagnosed in the year I graduated high school which was 2017 and I didn’t really looked at my life the same anymore. All of the feelings that was explained in this video was a nice breath taker because I’m knowing I’m not the only one dealing with this tragedy. Friends and family would look at me differently and try to show sympathy but I know it’s not pure as if a person didn’t have anything wrong with them. It’s a really tough battle and I want to say to all my MS fighters that we can do it and we should not let MS control our life.
I got diagnosed in 2020. I collapsed at work and could barely lift my leg. 3 years later, I’m walking with a noticeable limp and chronic pain in my right foot and legs. I constantly trip over my feet. My legs freeze up at any giving moment. This shit sucks man. Truly the worst thing that’s ever happened to myself. But with GOD I will be ok. We will be ok. Keep positive energy, thoughts and prayers with you at all times. This is a tough battle. God bless.
go paleo- avoid 🐷and 🦐🦞 any crustaceans. Diet free from fake food, starch, sugar and bad fats will give you relief with long periods of remission in between attacks. I know this from personal experience. Food is a huge trigger for most of the symptoms.
Was diagnosed a month ago.. it's wonderful to have some answers... now where to go!! I am strong!! I will be ok!! I'm scared!!!I have ms!! You won't define me!!
I hope you are doing well. I was diagnosed earlier this year. I met with my MS specialist in a few weeks. I guess the journey begins for both of us. Stay strong. We are definitely not alone.
I was diagnosedin 2018 as me and my wife were just months away from the birth of our first child! legions on my spine and spotting on the brain!
I have never talked much about this disease but im a warrior and I have MS, MS doesn't have me!
I will strive to live the best life i can!
I hope you and your family are doing well. I was diagnosed earlier this year and just about to meet with my MS specialist early next month. Definitely a scary journey to be starting.
I am disabled and strong ❤ there is nothing to be ashamed of. You can fight but don’t push yourself too hard.
Why people can't understand when you're tired?
It surely isn't a "normal" tired. That being said I don't think they know what this kind of tired is.
Because they confuse it with common tiredness, but is not... The "correct" word to use is fatigue... It is completely different.. Is like the body is a machine that has an "on-off" button.. At least for me. We have to explain it until they understand. I know that this not easy every time, but it helps... Autoimmune fatigue is the most invisible symptom and it s hard...
I have MS and fatigue isn't a symptom for me but the nerve pain in my feet, legs, and shoulder is so annoying.
When I’m at school, I always drink water so sometimes I may use the bathroom to frequently but my teachers just think that I try to miss class whenever I ask to go use the restroom
Yessss..
I’m 22 and i have MS for 5 months now, i want to be strong enough to live my normal life I don’t want to think about my future but sometimes I can’t ! I have health anxiety and I diagnosed myself after a long trip googling my symptoms that i have MS in September 2019 I went to 2 doctors and told them about my fear no one believed me for 2 years until i had a strong attack that turned out i was always right now I can’t believe anyone, I’m stuck alone !
Do you have muscle twitching
@@firestorm2123 yes i do ! it was one of my first symptoms even tho my left leg is still twitching
@@Itsme1. where was your twitches at
@@firestorm2123 I remember it was under my hand! I search about it it’s call “Balm” yup
@@chris1960 this came on time ! I loved your mom my mom don’t talk about it at all she always wants me to act like i have nothing, my mom don’t actually know what MS is and she doesn’t want to know ! God bless you and your family. You made me happy thank u 🤍
I've never been more grateful to be in pain again ! ❤️ wow
It’s nice to know you’re not alone, that someone else is experiencing something similar to you even though you never would wish it upon anyone. For so long I thought I was lazy cause I couldn’t do what everyone else did. It’s like having a young soul with an old body.
I recommend you to Dr Okolo herbal medicine formula which can you cure you
I can identify with so much of this
unbelievable production. thank you for this.
Very inspiring. We are MS STRONG 💪🏾 & MS WARRIORS 🧡. We will overcome. No quit in us. Faith over Fear. Have a great day.
#INSPIRED
That part💪
💪🏾 AMEN!!! 🧡
🧡🧡🧡
I'm pretty sure I have ms but no diagnosis yet. They'll probably wait until it's progressed to an undeniable point
Perfectly capturing the symptoms we experience in a creative, nuanced way. Taking stories of hopelessness and finding the positive. That's what we warriors gotta do 🧡 I have MS but MS doesn't have me. Through this illness I've met some of the most incredible people and I'm very lucky and grateful for that at least
Thanks foe helping people understand
Stay strong everybody 💪 love from Poland
You all in the video did an awesome job...and you are definitely warriors!!! I was diagnosed in 2001, am not taking DMDs, and so far I am pretty ok...Hugs to all of you!!!
Thank you for this!!!
I really do agree with everyone because what you have shared with us all is so true. I found out 8 years ago But it really is different for all of us but I appreciate the opportunity to share with others that understand me because I can't tell anyone else I don't speak with old friends some family because they only see the old me and if I can't remember but I do remember the past but if I can't speak clearly I don't speak thank you all
Very informative and helpful thanks..
Uau, that is breathtaking! I am sending lots of love from Brazil.
You´re all the same as you´ve always been.
There is no such a thing that can change the inner beauty inside of yourselves.
* For the new diagnosed people living with MS, find a neurologist to trust, because they have annual meetings where neurologist from across the planet discuss the new and current imuno modifiers and ways to best treat MS.
Also take a health lifestyle, exercise, music, art, friends, that is all very possible.
Science is working really hard to bring the news everyone wants.
So keep it up!
MS treatments have evolved so much in the last decade.
Please take good care of yourselves, lots of love xxxx
yes..but the best is hsct and yet people can not get it done.
Praying for them all I was once lost with Ms but Avonex blessed me to live my life
I totally understand all of these people 🙂
I appreciate the video. I work for a specialty pharmacy and this really put a picture to the medications I’m solving problems for and scheduling to ensure they’re delivered to a patient on time. ❤
I was recently diagnosed with ms and i’m only 26. We’re always tired, memory loss, can’t sleep, i have liaisons on my brain and spine, i can’t have children, multiple mris, cant walk for long or stand and they still don’t know anything about this illness
👈Herpes has been one of the most significant virus in the US now, and its spreading really fast, and the government are only producing medical drugs that can suppress it but rather keep on eliminating the African herbal doctors who were able to discover a way to completely cure the virus..I'm delighted to be finally cured of herpes 2 after i applied Herbal treatment I received from dr Ogbebor herbal centre whom I found here on UA-cam ,for just two week🏳️
@It’sme hello dear in India we deal with those whose symptoms came under the autoimmune disorders.. We have a Natural process of heali g and since last 8 years we have been helping people fight the diseases like diabetes, MS, Cardiac diseases and Cancer.. We have Natural remedies and thw treatment is prakalpic nutron chikitsa... We know how leaves heal a body u can connect with us.
@@kalkeshdevrajhow can we connect with u?
My Mum has MS. I have MS. My sister has symptoms.
I’ve had numbness in my leg and arm…but they still moved. I’ve been rendered limping in numbness…but they still moved.
I’m. Still. MOVING.
(And, yes, being the primary caregiver for my Mum helps. Can’t lay about when needs must be met. Still…)
I’m 15 and was diagnosed with MS and bone marrow edema ❤
I don't feel strong, I feel more like a burden. I cannot travel as I want as I struggle with my bladder and walking, I'm stuck in a monthly hospital visit to get Tyrabri that I personally do not feel is working but my neurologist just says "well, least it's not getting worse". While I wish to have Lemtrada but no neurologist in the entirety of the country is comfortable to administer it.
I cannot see the world as my paycheck is not for me, it's for medications which if I stop, stops my body. The only reason I have a job is that I managed to get one before I were diagnosed and now they're kinda stuck with me and I with them, we hate each other but I don't feel another company wants to hire a fatigued waste of space.
I'm not living a life anymore, I'm working to stay alive for another day where rent and medications drains my paycheck all while prices go up on everything but my paycheck is reduced since the company needed to save money and I were an easy target to destroy..
I hate this disease and I struggle to see the point of life anymore.
I was diagnosed 3 years ago and I don't know what kind of MS I have yet. Nor have I been able to get my infusions yet because I came in contact with someone that had TB. I had to get rid of the TB before I could even do my infusions. Walking around for me is VERY tiring and difficult. Just going to the rest room takes my breathe away. If I do any kind of laborsome work, I get short of breathe and sweat like I was running a marathon.
Most recently, I found out that my vehicle needed engine repairs in the tune of $2500. I used to be able to go out to the car and just start wrenching but I can't to that now, nor can I afford to pay a repair shop to do the work for me.😢 that's why I started a gofundme but no one has donated because I don't socialize the way the newer generation does. So I'm left to "deal" with my problems until they're solved.
Well said everyone.
I was diagnosed in 2021 with PPMS. It is called a snowflake disease for a reason, everyone is affected differently. Walking around you would think I'm normal until I talk long enough. My brain is overprocessing and I slur. Quickly I realized I couldn't do what I did before. I was an on the road 3D Graphic Artist Trainer for Broadcasting in particular. Things I could normally do in seconds now takes days...or weeks. Luckily I have a supportive wife, MS webinar meetings, the Mighty website, National MS website, and still can't find work. Scary, but glad for support and staying positive!
I obviously do not know you but I felt this. I was Dx on Jan. 1 2012. I was 18. Keep your head up. Eat and live clean. Surround yourself with love. I wish you the best.
@@wawjr1can you still walk and write
I’m slipping through the cracks but will be tested for this 😢
In my experience, I can relate to feeling pain and loving it!!
The pain was necessary for me to know, I can feel, so loved it!
@@macsam8778 nah ,I hate pain
@@SRBOMBONICA86 In most situations I would live pain free as well, but, if it tells me my body parts are still there, I welcome it! I understand what you're saying. Stay strong!
I'm so sorry. I feel everything. I know all. I don't matter to anyone anymore. They left me behind in life.
Thank you fellow WARRIORS! 🧡
You guys are so wonderful for sharing this. I have relatives with it and I really don't understand it well. I appreciate you taking the time to educate us. Prayers. Though I know that seems so useless. But I put it out there for you guys. Thank you!!!!
I have been diagnosed with MS! I have to wait 11 weeks until I get to be seen by a Neurologist 😮. I watch videos and trying to get information on MS… I’m tired and have brain fog!!! Good luck 🍀 to us all 🧡🧡. Orange-MS support
Do paleo and avoid pork and crustaceans- eat good fats. Food is a trigger for most of the symptoms. I know from personal experience
The way this world is makes it very tough to have hope with this disease. Even my own father can't seem to understand why i struggle financially. There aren't enough resources, I have experienced being homeless because I am sick with a chronic disease, and its just a bullshit system that we have.
too many suffer because we put money over people.
I was diagnosed in 2021 without actually being told i had it (they had told me my sight issue was purely Psychosomatic and that i didnt have anything to worry about), the hospital didnt actually tell me until last year. I went through a whole 2 years going through Relapses like Optical Neuritis and even to this day, I'm going through difficulty walking, memory issues, and hand-eye Co-ordination problems. I wish i could tell people that are just finding out that they have this, That it's going to get better but i dont know anymore... All i can say is: This Disease doesn't define you, it doesn't make you any less of a person (In fact, in a weird way, it makes you stronger.) Never stop fighting, one day (hopefully in the near future) they'll find a cure but even if they don't, that's okay, just focus on doing stuff you want to do, be the person you wanted to be before you found out about this disease.
I just got diagnosed a month ago so it’s all new to me rt now but these videos help
Fuck M.S. I've been fighting for the last 10 years and I use a cane but I will not give up fighting. God bless you all, and you're not alone. ❤
Understand the pain and frustration of it all.
multiple sclerosis for almost 10 years, it seems to me that simple exercises slow down its development, I am an example of this obvious. This is why the channel on UA-cam started
Wow...I never heard anyone say what I felt in this situation. I have been so afraid of the future of my RRMS that I couldn't live in the "NOW". I almost turned away someone that I really care about because of that fear
hello i have been stuggling with epesods numness tingling..cralling..burning sensaitions..i feel nurve pain when i get hot that makes me feel like im cold..i have trijemanralja in my face ..intention tremmer..and crippiling tiredness..vison problems..my cognitive function has got so bad..that im sluring my words..feel like im falling apart..i was dignosed..with fibro and me after a clear mri about ten years ago..i have loss of feeling in my finder tips and feet.and i feel like i have water driping on me.i have had to leave work..its steatly getting worse now ..i dont think it fits fibro..great video ..just because people cant see it dosnt mean that your fine..my huband works nights and then says im so tired u dont understand . i do i have all this and 2 and a 5 year old...i just want to be the mum i thought i would be
I was an international student on Canada. I was diagnosed with MS and transvermilitus in 2021 december. They say that now I am okay but in future I can get the attack. I get shocks in my feet a lot. My legs and feet are numb, I have a foot drop which is not going. I can't walk properly. I have anxiety issues and depression. This all makes me so weak. It feels like there is no meaning of life anymore. My mom is a single parent, I wanted to do so much for her but now I am just a baggage. When will the symptoms go? When these shocks will go? When will I be able to walk properly? When this numbness will go? This depression, anxiety! I don't have any answer. M just stuckk.
Hi,how are you? I'm scared. But the worse is having symptoms without knowing what is it. I wanted to go to Canada but I don't know if I ever could achieve that. :-(((
@official rupam hello dear in India we deal with those whose symptoms came under the autoimmune disorders.. We have a Natural process of heali g and since last 8 years we have been helping people fight the diseases like diabetes, MS, Cardiac diseases and Cancer.. We have Natural remedies and thw treatment is prakalpic nutron chikitsa... We know how leaves heal a body u can connect with us.
Please talk about the rebound effect of Gilenya. Your MS can become worse if stop using Gilenya and decide to do a wash out period. No wash out period should be done because it is a sequestering drug (it doesn't kill B cells, it sequesters them). Please spread this information. Mayzent, Zeposia, and Gilenya all work the same way.
Nicole want you are right today just be ready for tomorrow it may be better!
Is there a way we can be a part of this? I would like to share my story 🧡 MS warriors unite!
Hello everyone I can understand Marti I woke this morning with this same thing. Unable to bend my leg thinking the same thing.is this forever. Got tot to bend a Lil but it bend t9 walk. I’m so scared because I know if you don’t use it you will lose it. Currently I went from being full-time working 40 hours a week to being part-time working maybe 16 hours a week I moved to a different state and it’s taking a toll on my body. I do have a family member that was diagnosed with MS and he is bedridden he’s unable to do things for himself and I can’t help but to think of that situation I’m not ready for that...
I was self-employed and lived alone and didn't care what was happening to me but in the beginning with couldn't feel my legs and hands. A lot of pain in my body in different spots. losing my vision. Tingling in my ears. Confusion and fatigue, sometimes worse and may better. Somrtimes can't do simple task followed by loosing everything I had. My home, car, business, employees. Phone, ... And no family or friend. Nothing left. Currently struggling to survive but I gave up. All I can gather the wisdome to think in about I don't know if there is any source I can get help?! I relized that just people was connected to me because of my previous condition and they don't getting touch with me anymore. Went to forest for 4 months now but meditation couldn't make be better. I guess my immune system out of order not listening to me somehow just fight my own body. That's one crazy immune system. 😂. I believe in miracle.
I’m crying I’ve been suffering alone since 2014
Was the 3rd to be DXed in my family. It sux. 👍 Amen
Hope a cure can be found. Each time there are more people with this disease. :-(
Not cure, but prevention maybe possible. Studies showing that a vaccine for EBV may prevent MS from developing.
Is the EBV virus hides in your B cells. The B cells can be found in your nerves. In the brain and spine. When EBV reactivates it triggers an immune response.
When I was 2 I had bone marrow transplant and the chemotherapy messed up one of my veins from eye to brain that's what the doctor's said, and since I was young sometimes i feel dizzy and start seeing colors revolving and my eyes follow the revolving colors , feels like a seizure sometimes , when im working out in the sun,heat it happens more often also when i get too tired ,I don't know what's this thing I suffer from is called anyone knows ? Or feels the same ?
I got diagnosed in 2019 😢.
I have no pain with my MS
What caused your MS and is acupuncture therapy good for MS and what are the medicines prescription for MS.
my doctors think that I have MS. I have to wait mouths to get the tests done to find out. I'm trying not to be but I'm scared. It explains so much about how my life has been. its been getting worse and the idea that I have to accept that ill never be independent I'll never be able to support myself is humiliating I cant even handle a full shift at work anymore. I've spent most of my life being blamed for my symptoms. for being lazy and selfish. I don't know what I'm more afraid of getting the diagnosis or not getting it and have everything people said about me being true.
I have muscle twitches all day this months, went to doctors check blood came out fine , i notice yesterday at night see light turning halo like .. maybe i was just tired . I also have ptsd and axintey and depression, saw some videos saying axintey can also cause this .
Hi, thanks for your story. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now? Thanks
I've had ms for 10 years and didn't know lol I kinda knew because of google but never really cared until I woke up blind in one eye. On that not I went to doctors and a few hospitals for them to say there is nothing wrong with me come back if it gets worse. Uhhh I've got one eye how will I get back if I'm completely blind lol so I went to Sydney eye hospital and stayed for a few days they done some tests and mri. So I found out I've got it and that's okay I'm cool with that I've already had 4 legions or what ever on the brain 🧠 but no permanent injury. Now we are working out a plan the professor said I'll need a shot in the neck every so often to keep them at bay so I get 1 day off a month yewww keep on keeping on peeps
Ps my eye came good in a few days with some steroid treatment I can see clearly now the clouds are gone
lmao shred on brother! 🤘🏼
There's some similar symptoms between Fibromyalgia & MS.
Hi guys, I am wondering... Since ms' symptoms could be very vague... have you ever just felt like some tingling around a specific area of your body? My fiancee started with schotoma two months ago, but specialists couldn't determine if it was ms or not (yes she got an mri). She is currently on immune supressors but today just started this feeling like a tingling around the eye (which had the first problem).
What got me here is that i was diagnosed today with ms after a lot of regressions specialists and so on. My head is spinning with so many questions. Is there someone out there whose been through the same today yesterday etc to guide me or at least give me some comfort in the sense im not gonna be immobile or im gonna make it etc? Thanks for ur time
Hello Leo, I got diagnosed around 2 weeks ago. Lost sight on left eye almost 2 months ago and well, here we are. Not easy to assimilate at all, right? We're going to make it Leo, one day at a time. Can't guide you as I'm a newbie haha but what I can tell you is please stay close to your loved ones, it makes a world of difference. If you have the chance, look for professionals who can support you and guide you, and ask them as much as you can, at least that's what I've been doing. Greetings from Mexico.
@@yilanzeper7267 thanks so much for the support fellow newbie 🙂 do u ever feel lonely? Most of the days i ve not only being unstable mentally, i ve been feeling like the loneliest creature on earth i know it doesn't make sense but that's how i ve been feeling. I have also been having breathing problems and bowel problems unfortunately this last month. How are u coping with everything yourself? I hope u are doing great. Greetings from cyprus (an island in the Mediterranean)
@naitzel84 I understand how you feel when you have a life transition it is hard I do not have family close I realized my job was my safety net when that stopped the loneliness kicked in having a good support system is crucial
Hello! I would like to play this video during church. Are we free to use this video or do we need a license?
What happened to the MS navigators? Any time I have tried it says they're not currently available but they're happy to take more donations?
Great video. Has anyone ever had burning hands (particular the tips) as part of their symptoms?
Hi! That can be a symptom. Do you have other symptoms?
@@lillyrocks2011 @LillyRocks Yes but I thought it started with the horrible burning fingertips which no doctor I saw could explain. After other symptoms slowly emerged my family doctor and now rheumatologist fear its MS. Hindsight 3 years ago had terrible pain in feet that never went away which also could not be explained. Had multiple xrays and blood tests for everything but nothing showed up. Tried different meds for immune problems but nothing worked. Now realize its the muscles tightening causing the pain and burning. I now have most symptoms of MS and have a MRI for my head next week. Thanks for the reply.
@@duggywild
Try the Gupta program to calm your immune system. You could also try wim hof with cold exposure to relive the pain
Did they diagnose it?
Please make MS MEDICINE! i need it!😢
www.nationalmssociety.org/Treating-MS
I have numbness feet , sometimes double vision. All bloods are ok I’m worried now I got this. Do I need an MRI? So lesions are the definitive answer to ms. Year later I’m still trying find a cause. Should I get a brain MRI or full body .
I need help need some sporting groups
Those lip rings are scary.
Why do I feel like I am going crazy with ms?
Jesus Heals, Jesus Saves, Jesus Delivers!
Who is Jesus?
WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.
As a person having and fighting RRMS since few months ago, i have to say that nothing is gonna happen so strange and like trauma! PLX stop sharing such negative videos! The first and the most important thing about it is DO NOT be sad, stressed or shocked! Life is flowing and never find your way different from others!
We should all invest to make a robot suit people can wear so the robot suits exercises for us
You should see the robots they have
It doesn't make sense people haven't made a robot suit we can wear that exercises for us
Every bit of pain is related to a lack of exercise because muscle control pain
Let's invest together to make robot suits people can wear that exercises for us
Please find me a cure.
Omega 3 and Moringa
Why they have to make the music and vibe so scary and overwhelming omg
My ms started at 14 ig 🙂 but now am 19 its its worst
GO SEE DR. MARK GHALILI OF REGENERATIVE MEDICINE LA
Hello. While having MS while eating does your lip go numb,does inside of your mouth get hot,does the tip of your ears get hot & tingling does it make you not sleep at night & chest pain daily
I have the MS Hug 24/7. The only time I don't feel is when I sit or lie down.
Yes
Yes the tip of my young has gotten better,but now I can't lick my lips
Depressing dramatisation
I have some of the symptoms, but I know it's because of my eating disorder. I eat all kinds of junk and sweets.
I had a seizure for 5 minutes straight
Walking myself was difficult for me because of my parkinson health situation but am happy that Dr Madida medicine on youtube I was able to get cured. Now I can walk properly🙏🙏
Why did they need to dramatise this like some blockbuster movie?
I hate those stupid visual and sound effects. I want to hear their storiees damnit.
Seaport me Sar /Madam