Living with multiple sclerosis | Felix's story
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- Опубліковано 11 січ 2018
- Felix, who lives with multiple sclerosis (MS), is a 31-year-old photographer and football fan. He experienced his first symptom of MS in 2005, and was diagnosed with relapsing MS (RMS) in 2009.
In this video, Felix talks about how despite the impact of the disease on daily life, he maintains independence and lives his life to the fullest.
You can learn about MS, as well as read more of Felix’s story, here: www.roche.com/ms.
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Hey, Im Royce! Im currently 17 now and I was diagnosed with MS when I was only 8 years old. Just know that its gonna be alright! 😄
Good luck , ur the strongest ever
God bless you!
I was diagnosed when I was 11yrs old. I’m 28 now. How are you doing nowadays? I’ve recently went through some blurry vision recently and have just realized my terrible memory is part of this. I guess my disassociation with my problems isn’t the best way to deal with this.
Hey just a question what are some early signs of it because I have had muscle twitches and pins and needles everywhere
@@Joe-zg2gt you have it. 100%
I just got the first start of a diagnosis. I’m worried. Lots of testing to come. I appreciate all the positive info!
hope it goes well. Take care always!
I’ll pray for you!
Hope you're okay
Thank you for the kindnesses. I am RRMS now, on Tysabri treatments, off work since April. My hubby and young kids are struggling with what it all means. I guess I am too…
Hello sir can you help me for differenting the symptom
Stay Strong! We are always here to help! 💙
I'm 21 and diagnosed with MS but I am not going to give up on myself 👍
👍👍
Keep going ❤
Hey neha . I feel I have symptoms of ms. I am in agony from one year. Doctors cannot diagnose my problem I am almost wanting to give up. Plz can u help me with ur symptoms so that I can understand what is wrong with me
These videos with the personal stories are really helpful for people and it is great that a pharmaceutical company had the idea to do this informative series of videos.
I like how calm he is
Such a great testimony. We are proud to support people with MS and others with mobility and fall recovery assistance.
Keep on photographing Felix!
i guess I'm quite off topic but do anyone know of a good website to stream new tv shows online ?
@@malachiaxl3178 Fbox.To
Extremely informative and useful to both new patients and new scientists.
I was diagnosed 2021 , stay strong y'all . I understand .
Stay strong Felix!
Stay strong felix..and well done
Thanks For your Clip Brother.
My Sister and I have too MS.
And the Motto is never give Up.
Best Wishes Luis-Juan
God Bless you.Thank you for sharing your story
Hi I would like to tell few tips to reduce the intensity of MS symptoms
1) Yoga or meditation as Stress triggers the symptoms
2) Stop smoking ( If u r a smoker)
3) Get enough sleep
And remember anything can be dealt be confident be happy stay safe 😷
Ru sure? What symptoms do u have?
Take cod liver oil as well. It has vitamin d
It sucks bc I can feel it getting worse after smoking but it’s been the only thing that’s helped my anxiety and now that I haven’t been able to without an attack my anxiety has gotten worse
Hi, Felix! It looks like you have a great attitude. I am 26, and started experiencing symptoms just two years ago. Everyone is certainly different, but it sounds like staying active and living independently will help us both stay healthy! :)
This means a lot. I am exhibiting numerous symptoms that are linked to MS.
Wish you the best ❤️
I’m afraid I have it too. I have problems with my limbs where it feels like they are being ripped off if I lift them for days sometimes. It happened to my arm and now my leg. I have feelings in my toes like being stuck with a hot needle. I have numbness for no reason in my hands. I have pains sometimes in my arms that seems to shoot down that whole side of my body. I’m seeing double sometimes. The list goes on……
35 year old with ms. I feel your pain my friend
Inspirational!👍🏽
Positive attitude, being pro-active, and never letting go of your smile, will see you through very challenging times. Know that so many people care and are eager to be a friend and help in whatever way we can!
Felix you rock buddy
I hope a cure or something can be found to cure or better treatments. Every time are more ppl with Multiple Sclerosis and the quality of life is very bad in most cases.
Please find a cure or better treatments! 🙏🏽🙏🏽🙏🏽🙏🏽💚💗
Keep living keep inspiring
All the best Felix 😁
I got officially diagnosed today. I am 22 years old. I´m a 2nd-year med student and I found out just a couple of hours ago that I will probably never be able to work in a hospital. I have never felt worse and I don´t know what to do.
I am so sorry that you have to go through this. I hope things work out for you.
I got the diagnosis MS when I just started my master in chemistry. I exactly know, how you feel. All dreams are crushed and it is difficult to find a new plan. I keep on studying, but it takes much longer and I don't know how much longer I can be working in the lab. Whish is the most important part for me. Maybe you can switch to Clinical Studies or something in that direction. If you would like some help. The scariest part for me was in the beginning. We could talk about it, if you want. Just say it =)
Wishing u all the love in the world. I believe you can get through this. You're a beautiful and smart person. I know you will pick it back up and find a way to do what you love no matter what.
U can do this, im just so sure :)
God bless you.
Hope you are doing Well Felix.
Make sure you work on your balance bare feet, particularly on that cushion to improve sensory input and awareness+ better balance :)
Don't worry your not alone I'm 26 and I have multiple sclerosis
Same...
@@vince7528 What is your symptomps
Hi! What were the symptoms that made you seek a professional help? Thank you!
Hi, thanks for your story. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now? Thanks
Just got diagnosed with multiple sclerosis. I can't feel my legs and im scared cause im only 25 years old.
Im so sorry !!! Please keep praying, stay positive ,I can understand only a little of how scared u must be. But imma keep u in my prayers. GOD BLESS DEAR ONE
Give it time, I lost sensation from the neck down with my first episode and over about a month I started to recover.
@@jingly1000 Okay. So almost a month passed from my first complications. I didn't had any previous symptoms except of tiredness and slight headache from time to time. And on the 26th on novermber i started feeling both my legs started to 'freeze' (sorry im not native English speaker), but it just slight sensation and next day i woke up i didn't felt half my body. From the waist down and couldn't walk. I was rushed to the hospital and i was diagnosed MS. They gave me hormonic medicine for 5 days and after that i was given reabilitation for 20 days. I will have a meeting next month regarding futher healing. At the moment i dont drink any medication only vitamins. Now i can walk pretty good now, but still feel some 'freezing', in my both legs. I don't really know how to feel cause in the last 2 years i lost my father, grandfather and cousin. Life just dont give me a brake and it is ironic that i was in perfect health and none of my family members had this disease.
@@jonoalf1986 Thank you for your comment. Im feeling a lot better. I can walk again normally. But i still sense the 'freezing' sensation, just a lot less then before.
@@cactuslietuva i am sorry for you hope you feel better now , i have ms too I can’t feel my half body and one eye is blurring and i am going under medication for 5 days hope i will feel my legs again and my eye back to nromal its sucks but we have to be strong 💪🏻 ....
In multiple sclerosis, myelin sheath that surrounds axons is damaged by
autoimmune mechanism. Microglia and T lymphocytes destructive
activity is much more than the ability of oligodendrocyte to produce
myelin
My mom has sclerosis and it has just begun to get way worse every year. It has made her hallucinate and made her nearly forget all of the basics (she used to work in pharmaceutical companies but now she doesn't even know that smoking kills). Everytime I talk to her she keeps changing the subject wit hsomething else and then trreats me like I am a baby when I'm actually 20 years old. It is mostly troublesome when my mom forces my little sister to stay with her so she won't feel lonely, while my sister goes to a school that she lives in that is many kilometers away and then makes my sister skip her classes. My mom doesn't even admit she has the disease anymore and has never ever gotten help for it, so now I just wonder how can I help my mom, what should I do with her?
😢 I relapsed 4-5 times and every relapse happening I get bouts of depression and after them I cannot feel myself the older one who was energetic previously but now a lethargic one with no wish or will to do simple tasks. In my country nobody is educated about this disease and when told they stigmatize the patients even blame them that they deserve it. Only I know how much I cope and struggle to remain calm and contented and I try best to just live my life.
The disease is already killing us and the uneducated population also take toll on our mental health. 💔
I was diagnosed with MS over a year ago at 19 years old. I still haven't taken any medication yet, I think they caught it early because I haven't relapsed yet.
How does catching it early help without medications?
Hi, I hope your condition has gotten better since your diagnosis. May I know what were the initial symptoms you exhibited that led you to seek a professional help?
I was daignosed age 17 on 2004 they didnt start till i became 20 when i became 24 i stopped the treatment 5 yrs
Then gilenya till now i can wall run jump but no coordination on stairs 🌚
Hey)be strong 🤛🏻☺️
My name is Meonica and I have ms. I was told I lost cartilage out of my right knee which was really the ms . From there it took over my left foot. It took them a long time to get to the results but I can now say what’s wrong with me .
Hello what us your symptom
How did ms affect your knee exactly?
I have just been diagnosed with MS.. I am 28 year old male.. suddenly left portion of my body below my shoulders has gone numb with constant feeling of pins and needle.. I m just discovering about this today and I am really scared to death .. where I live medical facilities are inadequate.. pls help me if you know what should i do
How are you now Sir?
Sorry to hear, dealing with similar issues. How are you now? Try to keep in mind symptoms come and go the bad bits will pass..
Come to our medical colleage in Jabalpur Madhya Pradesh where multiple sclerosis is treated by specialist
You have e.d. too ?
Guarav, get a methylmalonic acid blood test, which will show you your B12 tissue level. A low B12 at the tissue level will cause the M acid to elevate and dissolve the sheaths from the nerves. It's often misdiagnosed as MS. A normal B12 blood test won't show the tissue level, you need the methylmalonic acid test. If this is your problem, you can take B12 injections to bring the M acid down and eventually the damage to your nerves will be healed. Good luck
Exercise is so important
Hi, thanks for your story and insights. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now, what do you think or should I rule out MS? Thanks
Hi
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I can remember the pages but my eyes cant focus on the lines i skip some diagnosed 2004
I was only diagnosed last week and been having the symptoms since about 2009 I noticed during sex and after that my dissertation spells were daily the blurred vision got worse ....I thought I was always just unhealthy the only reason they noticed is from a year ago til now they were tracking my brain threw mri every three months then my spine ...the past 3 weeks I've gotten progressively worse, I wish they found it earlier, but better late then never
If you have questions regarding a treatment or medication, please consult your healthcare provider first or get in touch with one of our offices in your country. You can find a detailed list of Roche offices: www.roche.com/about/business/roche_worldwide.htm
Hi, how are you now? I hope you're doing better than before.
Hope your good ❤
Hey my mum was just diagnosed with ms and I’m really scared and I don’t know how to handle it
My dad was as well, we have to be strong for them and just be the support system that they need.
hey sorry im late, my mum has it too. I was very scared too but remember this isnt the worst thing ever. My mom is ok because she knows that. Having this doesnt mean your mum will be invalid. Our moms wont be :). Just stay strong please, im saying the truth. A lot of people have it and they arent invalid and they are living a literally normal lifes. Thats it. ❤️
Don’t be scared. As someone who has a sister with MS I can say that it more affects the way you live your life than how long you’re going to live. In fact the average life expectancy for someone with MS is 5-10 years lower than someone without MS, but that gap seems to be getting lower so that’s great news!! Also most people with MS live active and healthy lives (aside from the fact they have MS)
Stay strong and continue supporting your mom 🥰
Your mom got this, Joe! MS may cause great damage to one's quality of life, but it's less about how long a person with MS can live. I hope your mom's condition gets better over time.
Your infobox is wrong, its about Craig but the Video is about Felix. Or is this on purpose?
Hi Sophia, thank you for bringing this to our attention, much appreciated!
I am scared:(
I can’t read book also 😂I also don’t remember previous page )
Diagnosed with primary progressive multiple sclerosis since 3 years💔
How old are you ? Diagnosed with rrms at 23.
Poor fella :(
my friend jospeh macias has scoliosis 😿
I was found at 33
Hi I have been suffering from dizziness since 8 years
My wife too. Suffering of balancing and dizziness. Dont know what to do.5 yrs of suffering
@@donaldbasalo5872 check vitamins level
@@shadabhussain9284 Do u have MS ?