This happened to me with Spanish which is my second language and I'm only semi fluent, but it seems to be more difficult to pronounce words in general now which is killer when it's the only way I'm able to communicate with some family members..
Thank you so very much for sharing. I can’t tell you how encouraging this has been. I saved it to my Home Screen to watch regularly. I’m in a relapse (but really all through the relapse times), I am so self conscious and aware of certain peoples annoyance with my speaking that I rush and it does make it worse. The same if I’m having walking problems, if I try to rush, it’s risky, but also painful because I’m pushing my legs, hips in quick movements. I’m going to own all of it, take my time, and work on the things you mentioned. Thank you 😊
That is so good to hear, Debbie 🥰 yes, you have to learn to pace yourself in your speech and basically in life! I hope you get through the struggle soon 💪🏻🧡
Yes, every once in a while, I ‘ll have the experience that I know what I want to say, but I have to really concentrate on how to actually form the words in my mouth and have some difficulty. It usually just lasts a day when it happens and I’ve asked friends and co-workers if they can tell a difference in my speech when this happens, but they can’t. For me, it’s very uncomfortable, but as with other symptoms, it is what it is.
Seb: I can relate as someone with progressive MS I suffer from strange symptoms as I now have severe allergic reactions to scents so bad that I have wear a mask and carry an epi-pen with me everywhere I go in order to keep from going into anaphylactic shock when some elderly lady passes by wearing too much perfume. I lost over forty I.Q. points and my eidetic memory is obliterated. I’m a ten credits shy of possessing five academic degrees and, in the past, I used to be able to perform stupendous acts with my mind and can now barely manage to think. So, know that you’re not alone. Just stay strong and do not give into our mutual enemy; and don’t waste too much of your time lamenting your losses. Just focus on what you can still do.
Thank you very much for being so honest, clear and explaining without false abellishments. It is really useful for me (and of course for many other people I suppose) that you share your long term experience. It helps me to understand better what my son is going through (MS since April 2022), and alas prepare for what will most probably happen in the (near?) future. 🍀💪
Thank you for reminding me to approach ms (and other) difficulties with courage and with as much kindness as I have in other aspects of my life and vice versa as well. My husband is currently hospitalized with depression-a repeated problem for him-and I have been inspired by this video to recognize his courage and to be kind. Thank you.
wow, I was recently diagnosed with MS, but have been going to an ENT for problems with losing my voice and the shakiness that I sometimes have in speech. I used to sing and loved speaking but now I'm always nervous because of how I sound. I'm going to try to give myself more grace but its very frustrating for me.
Um losing my voice. It started with a qiwrd tuxkle tingles that never goes away and sometimes and som etimes worse than others. I find myself constantly clearing my throat the need to is constant and I've trained myself to hold back on clearing my throat every 30 seconds.My voice is much Quieter than it used to be.
I'm newly diagnosed for a year now..My voice went from being deep, loud, and very expressive to soft, quiet, almost almost calming. I don't like the change because its NOT my voice so I try to speak with my normal voice but It comes off as unnatural and just sounds like im yelling for no reason...Also to make matters worse, In the last couple of months I've realized lately when I trip over words I tend to use alot of curse words to buy time till I get the word or pronunciation out...I don't even realize the vulgar language and how much profanity I'm using when I speak. So people who don't know me probably hear me yelling and cursing and think I have tourettes syndrome or I'm a very angry person.. Hopefully this is just another crazy symptom that will soon pass...
Thank you for your story. Im so sorry you had to go through that. Im bilingual myself and have bouts of this during some of my ms attacks. Language can be a huge part of a person. Hard for this to be a predominant problem. I really hope it gets better 💕 Thank you, nice to know we are not alone.
Difficulty speaking was my first “obvious” sign that something was wrong … I was always a comfortable public speaker but I am very less so since I had trouble speaking, I couldn’t say “have a happy New Year” it was too complex for me and I couldn’t speak beyond a whisper. Thankfully my voice came back and I only have occasional difficulties.
@@tinahatcher5186 within a few weeks my voice returned but for about six months or so I would have difficulty with pronunciation if I was tired. I didn’t know why it was happening but thankfully stroke had been ruled out. It was still two years until I had a Primary Progressive Multiple Sclerosis diagnosis, and with that I came to realize other strange symptoms I’d had for years were MS (and not just me being crazy). Symptoms like foot drop & drag, a burning sensation in my finger & tongue, urinary issues, terrible itching when the temperature goes up …
Thank you, Dear Seb, You really make the blessing service for all us, whose every day need to come and to continue our life with MS. You help us to feel not alone in this war every day !!!
I am a poliglotte with Arabic, French, English, Spanish, Chinese but don’t have any phonetic problems maybe it is only related to practicing languages that we can forget and not anything else
The vocal spasms are the WORST. I'm talking and it sounds like I'm about to cry. :( It's so embarrassing!! Usually it only lasts about a day or two. I have trouble with the words 'memory' 'remember' - there are other 'm' words but I can't think of them right now. Ha ha. I have to slow down and pace myself too. When I get stressed my voice and pronunciation get really bad. So it's just the stress? I WONDER WHY THIS HAPPENS!!
I probably would have ever noticed but everyone used to say I was really loud. But I almost have to yell at times now. I also every now and then I have to force out words. I don't know if this is a speech issue or a cognitive issue but I forget my words at times. Yesterday I was needing help from my husband and I couldn't explain it. He kept asking me questions about it but I didn't have any way to explain it so it was getting frustrating. I felt bad but I got so confused and it made me mad. I have never liked when people will ask the me the same question but rewording it. It gave me anxiety. But add the fact that now I will have a hard time finding the words the first time. Finally I just told him straight up that he was upsetting me because I didn't have the words to explain things for him to understand. And instead of him just coming over and seeing what was wrong he kept questioning me. I have gotten to a point with my husband, and sometimes other people, that I get mad and tell them that they need to be more understanding.
Good to hear your story Thanks for sharing I really appreciate your stories! I understand that it affects my voice My father says sometimes I speak too loud I speak 7 languages, Mandarin was when I had problems I've cooled off on my problems with my languages
I have not have a clear diagnostic yet. Still have allot more studies to go. One of the symptoms lately is my speach. I speak English and Spanish. I used to correct my wife on Spanish pronunciation and now my wife is correcting me. I am starting to stutter allot of my words now. I really have to slow down and maybe try like 2-4 times so I can pronounce it right.
My main language is "English" I like to call it American, but I don't make those rule in society. I have a very extensive vocabulary and have been praised for my articulation. Recently I have been having more issues with pronouncing words that I definitely know how to pronounce! It's extremely frustrating! I have major issues with my memory too! I can't remember names or faces. When I'm driving I go on auto pilot because I forget where I'm going, especially if I get distracted!
Does slurring words count as a speech problem? I've noticed lately I stutter sometimes when I say words that start with s and other words. My native language is English. Other times I'd be in the middle of a convo and can't finish the sentence and have to start over over as my words will jumble up together to make one big word instead of 3 small words. It's a bit startling and I'm still waiting to see a neurologist. Should I let them know this is another new symptom as to why I should be tested for MS in additon to my other symptoms? How can this symptom be fixed?
Hey Kendre, yup, that all sounds very familiar to me. You can improve your speech control by holding a pencil between your teeth as you speak. Read a book out loud! Unfortunately I am not sure the neurologist will consider that a direct sign of MS… 🙏🏻🧡
@@LifeofSebMS Thank you! I will try that and see if there's some improvement. I'm not sure if they will recognize it as a symptom either but I have plenty of other symptoms that point to MS. Much appreciated 🙏
3:01 It was when I noticed my legs were consistently tired and taking a long time to recover. At first I thought it was due to excessive exercise but after a few days of rest the problem continued. The Jelinek diet and VitaminD has helped me a lot.
Wow, thank you so much, Seb for your video! It gave me alot of hope and the reassurance I needed today. Thank you so so much! You really touched my heart. I appreciate you and your time you took to make this.
This happened to me with Spanish which is my second language and I'm only semi fluent, but it seems to be more difficult to pronounce words in general now which is killer when it's the only way I'm able to communicate with some family members..
I can't remember or speak Spanish. I can't do anything smooth lol, glad English is more choppy.
Thank you so very much for sharing. I can’t tell you how encouraging this has been. I saved it to my Home Screen to watch regularly.
I’m in a relapse (but really all through the relapse times), I am so self conscious and aware of certain peoples annoyance with my speaking that I rush and it does make it worse. The same if I’m having walking problems, if I try to rush, it’s risky, but also painful because I’m pushing my legs, hips in quick movements. I’m going to own all of it, take my time, and work on the things you mentioned.
Thank you 😊
That is so good to hear, Debbie 🥰 yes, you have to learn to pace yourself in your speech and basically in life! I hope you get through the struggle soon 💪🏻🧡
Yes, every once in a while, I ‘ll have the experience that I know what I want to say, but I have to really concentrate on how to actually form the words in my mouth and have some difficulty. It usually just lasts a day when it happens and I’ve asked friends and co-workers if they can tell a difference in my speech when this happens, but they can’t. For me, it’s very uncomfortable, but as with other symptoms, it is what it is.
Seb:
I can relate as someone with progressive MS I suffer from strange symptoms as I now have severe allergic reactions to scents so bad that I have wear a mask and carry an epi-pen with me everywhere I go in order to keep from going into anaphylactic shock when some elderly lady passes by wearing too much perfume. I lost over forty I.Q. points and my eidetic memory is obliterated. I’m a ten credits shy of possessing five academic degrees and, in the past, I used to be able to perform stupendous acts with my mind and can now barely manage to think. So, know that you’re not alone. Just stay strong and do not give into our mutual enemy; and don’t waste too much of your time lamenting your losses. Just focus on what you can still do.
Thank you very much for being so honest, clear and explaining without false abellishments. It is really useful for me (and of course for many other people I suppose) that you share your long term experience. It helps me to understand better what my son is going through (MS since April 2022), and alas prepare for what will most probably happen in the (near?) future. 🍀💪
Best wishes to you and your son 🙏🏻🧡
Thank you for reminding me to approach ms (and other) difficulties with courage and with as much kindness as I have in other aspects of my life and vice versa as well. My husband is currently hospitalized with depression-a repeated problem for him-and I have been inspired by this video to recognize his courage and to be kind. Thank you.
My acquaintance opened up to me about this. I thought it was just his accent, I'm glad he told me. 😌
☺️🙏🏻
wow, I was recently diagnosed with MS, but have been going to an ENT for problems with losing my voice and the shakiness that I sometimes have in speech. I used to sing and loved speaking but now I'm always nervous because of how I sound. I'm going to try to give myself more grace but its very frustrating for me.
You are beautiful, keep being strong and keep fighting! Love you ♥️
Wonderful video content! The world needs such beautiful brave souls like you! Keep it up!
Um losing my voice. It started with a qiwrd tuxkle tingles that never goes away and sometimes and som etimes worse than others. I find myself constantly clearing my throat the need to is constant and I've trained myself to hold back on clearing my throat every 30 seconds.My voice is much Quieter than it used to be.
Love your videos. Even GP said it was weird, all in my head ,found a new doc.
Good on you! 🙏🏻🧡
I'm newly diagnosed for a year now..My voice went from being deep, loud, and very expressive to soft, quiet, almost almost calming.
I don't like the change because its NOT my voice so I try to speak with my normal voice but It comes off as unnatural and just sounds like im yelling for no reason...Also to make matters worse, In the last couple of months I've realized lately when I trip over words I tend to use alot of curse words to buy time till I get the word or pronunciation out...I don't even realize the vulgar language and how much profanity I'm using when I speak. So people who don't know me probably hear me yelling and cursing and think I have tourettes syndrome or I'm a very angry person..
Hopefully this is just another crazy symptom that will soon pass...
I'm still cursing, and life...
It’s crazy how MS can sweep in and affect every aspect of our being… I hope it passes soon! 🧡🙏🏻
Thank you for your story. Im so sorry you had to go through that. Im bilingual myself and have bouts of this during some of my ms attacks. Language can be a huge part of a person. Hard for this to be a predominant problem. I really hope it gets better 💕 Thank you, nice to know we are not alone.
Difficulty speaking was my first “obvious” sign that something was wrong … I was always a comfortable public speaker but I am very less so since I had trouble speaking, I couldn’t say “have a happy New Year” it was too complex for me and I couldn’t speak beyond a whisper. Thankfully my voice came back and I only have occasional difficulties.
💪🏻🧡
How long did it take?
@@tinahatcher5186 within a few weeks my voice returned but for about six months or so I would have difficulty with pronunciation if I was tired. I didn’t know why it was happening but thankfully stroke had been ruled out. It was still two years until I had a Primary Progressive Multiple Sclerosis diagnosis, and with that I came to realize other strange symptoms I’d had for years were MS (and not just me being crazy). Symptoms like foot drop & drag, a burning sensation in my finger & tongue, urinary issues, terrible itching when the temperature goes up …
Thanks Seb. I appreciate you sharing your challenges with MS. It helps me as I try to come to terms with my own experiences.
you are a wonderful man Seb we thank you for your videos
Thank you, Dear Seb, You really make the blessing service for all us, whose every day need to come and to continue our life with MS. You help us to feel not alone in this war every day !!!
I am a poliglotte with Arabic, French, English, Spanish, Chinese but don’t have any phonetic problems maybe it is only related to practicing languages that we can forget and not anything else
I've been noticing this problem more recently. My mouth just wont seem to form words correctly. It feels like it forgot how it used to shape itself.
Did it ever clear up or are you still having this issue
@@Cam-re9pi it comes and goes in severity, but it hasn't gone away
Yeah I get accused of slurring as though I’m drunk. People just don’t get it even though I have explained everything time and time again.
It’s crazy that it’s so hard for people to understand 😞🧡
I didn't notice at all I was actually wondering when you get to the point that you healed perfectly lol xo
The vocal spasms are the WORST. I'm talking and it sounds like I'm about to cry. :( It's so embarrassing!! Usually it only lasts about a day or two. I have trouble with the words 'memory' 'remember' - there are other 'm' words but I can't think of them right now. Ha ha. I have to slow down and pace myself too. When I get stressed my voice and pronunciation get really bad. So it's just the stress? I WONDER WHY THIS HAPPENS!!
| currently experiencing this .
Thank you for making this video. I love your voice. I have difficulty with saying the wrong words. Slowing down my help
I probably would have ever noticed but everyone used to say I was really loud. But I almost have to yell at times now. I also every now and then I have to force out words. I don't know if this is a speech issue or a cognitive issue but I forget my words at times. Yesterday I was needing help from my husband and I couldn't explain it. He kept asking me questions about it but I didn't have any way to explain it so it was getting frustrating. I felt bad but I got so confused and it made me mad. I have never liked when people will ask the me the same question but rewording it. It gave me anxiety. But add the fact that now I will have a hard time finding the words the first time. Finally I just told him straight up that he was upsetting me because I didn't have the words to explain things for him to understand. And instead of him just coming over and seeing what was wrong he kept questioning me. I have gotten to a point with my husband, and sometimes other people, that I get mad and tell them that they need to be more understanding.
Thank you 😊
🙏🏻🧡
Thank you for sharing!
I'm a linguists too, been there... felt that... kinda passed it and againg it's showing up! It hurts to be in a loop of pain and disabilities
Good topic. Thank you....
Good to hear your story
Thanks for sharing
I really appreciate your stories!
I understand that it affects my voice
My father says sometimes I speak too loud
I speak 7 languages, Mandarin was when I had problems
I've cooled off on my problems with my languages
whenever i have speech problems i encourage people to laugh at it, because i would rather have people laugh than feel sorry for me.
I don't expect people to understand me, anymore. I can't control the pace, well. If I use a foreign accent everyone seems to understand better.
Yeah I’ve also reached that conclusion. If they understand me, good, if they don’t, whatever… 🙏🏻🧡
I have not have a clear diagnostic yet. Still have allot more studies to go. One of the symptoms lately is my speach. I speak English and Spanish. I used to correct my wife on Spanish pronunciation and now my wife is correcting me. I am starting to stutter allot of my words now. I really have to slow down and maybe try like 2-4 times so I can pronounce it right.
Sorry to hear! I’ve had the same for years… 🙏🏻🧡
Can ms cause you to also have troubles planning and constructing sentences?
I say weird things with my ms flare ups, like odd things, lol.
My main language is "English" I like to call it American, but I don't make those rule in society. I have a very extensive vocabulary and have been praised for my articulation. Recently I have been having more issues with pronouncing words that I definitely know how to pronounce! It's extremely frustrating! I have major issues with my memory too! I can't remember names or faces. When I'm driving I go on auto pilot because I forget where I'm going, especially if I get distracted!
Slurred speech was my first symptom. I couldn’t anúnciate to save my life!
I suspect I have MS…lately my symptoms have progressed to where I stutter
😕🧡
Thank you Seb xoxox
ha! i have said "wow, that came out loud!" i have left vocal cord paralysis
Does slurring words count as a speech problem? I've noticed lately I stutter sometimes when I say words that start with s and other words. My native language is English. Other times I'd be in the middle of a convo and can't finish the sentence and have to start over over as my words will jumble up together to make one big word instead of 3 small words. It's a bit startling and I'm still waiting to see a neurologist. Should I let them know this is another new symptom as to why I should be tested for MS in additon to my other symptoms? How can this symptom be fixed?
Hey Kendre, yup, that all sounds very familiar to me. You can improve your speech control by holding a pencil between your teeth as you speak. Read a book out loud! Unfortunately I am not sure the neurologist will consider that a direct sign of MS… 🙏🏻🧡
@@LifeofSebMS Thank you! I will try that and see if there's some improvement. I'm not sure if they will recognize it as a symptom either but I have plenty of other symptoms that point to MS. Much appreciated 🙏
Keep us posted 🙏🏻🧡
Crossing my fingers for you 🤞🏻🧡
My brother is having speech issues due to ms it's a recent diagnosis and flare up was a few weeks ago. Normally how long do symptoms last?
A flare up can vary a lot... but I’d say from a couple of weeks to a couple of months + time to recover...
thank youuu 🙌
🙏🏻🧡
You're just fine.
I’m sick of it I know it’s a cure for us suffering with this 🥺🥺🥺🥺🥺😩
It’s a struggle for sure 💪🏻
3:01 It was when I noticed my legs were consistently tired and taking a long time to recover. At first I thought it was due to excessive exercise but after a few days of rest the problem continued. The Jelinek diet and VitaminD has helped me a lot.
🙏🏻🧡
Wow, thank you so much, Seb for your video! It gave me alot of hope and the reassurance I needed today. Thank you so so much! You really touched my heart. I appreciate you and your time you took to make this.
Thank you for your recognition, Rebekah!! 🧡🙏🏻
I'm ms patient .
I think its forign accent syndrome. ??!
What do you mean?
That’s how I was diagnosed with MS, I woke up and couldn’t speak or use my right hand since 2014
😢
No me dijiste cuántos años tienes. ☹️
Bueno venga, para que te lo escondo. Tengo la edad de Jesús desde hace un mes y la llevo con mucho orgullo aunque ya esté hecho un abuelito...
@@LifeofSebMS Mi percepción no andaba mal. Te calculaba unos 30, tienes 33. ¿Por qué dices que estás hecho un abuelo?
Porque a las 10 ya estoy durmiendo y con una copa ya estoy borracho 🥳😂
@@LifeofSebMS Jaja. ¿En serio? Entonces eres muy sano
Juro. Hoy me tomé una copa de vino con la comida y ya estoy con resaca 🤣